Not Defined by Endo (Teniola Ogunro)

Welcome to episode 7 and the final episode of Endo 101! What an amazing educational few weeks it has been!

Today, we are going to discuss a case study on a woman who was diagnosed with Endometriosis and the treatment route that her doctors took, all hypothetical. We want you to know that even if you or someone you know has been diagnosed with Endometriosis, you do not remain without hope. There are many treatment approaches that your doctors can take, considering your individual case and you can regain your quality of life back. Most importantly, please never forget that you are not alone. There is an army of women, fellow sufferers, doctors, researchers and advocates fighting with you. 

If you have any questions you are keen to get answers to or if you just enjoyed this episode and would like us to know, send an email to info@notdefinedbyendo.com with your questions, or DM me on Instagram @notdefinedbyendo or the Instagram Page of Chelsea Centre for Minimal Invasive Gynaecology (CCMIG) @ccmig.london. There, Tom shares a lot of relevant and helpful information on Endometriosis.

Don't forget to share, rate, and subscribe to this podcast. 

Till next time, remember, you are not defined by endo!

Background Music:

Life by Roa https://soundcloud.com/roa_music1031

Creative Commons — Attribution 3.0 Unported — CC BY 3.0

Free Download / Stream: https://bit.ly/_-life

Music promoted by Audio Library https://youtu.be/dXqEepAme-M

Welcome to today's episode of Not Defined by Endo Podcast! Today, we are speaking with Anna Brightman, founder of UpCircle Beauty.

UpCircle Beauty is a natural sustainable skincare company that repurposes would-be waste ingredients to create award-winning skincare and beauty products that are uplifting for the skin.

Anyone that knows me knows how important sustainable living is to me, especially living with Endometriosis, a condition that is hugely affected by our hormones. So you can imagine my excitement when I discovered how UpCircle is making use of leftover coffee grounds, aromatic chai spices, and even fruit-stone waste to make good-for-you and good-for-the-environment skincare products. Join me today as we understand more of Anna’s story and get inspired by what she’s doing!

If you want to know more or try out their products, please go to www.upcirclebeauty.com. There are so many awesome products on there, you’ll be spoilt for choice.

Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.

Don't forget to share, rate, and subscribe to this podcast.

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all.

Till next time, remember, you are not defined by endo!

“Endometriosis is not a fatal disease, but despair can be” – Nancy Petersen of Nancy’s Nook. 

Today’s conversation is with phenomenal pioneer Endo warrior, Nancy Petersen. She is the brain behind the Facebook Group, Nancy’s Nook that has helped thousands of women with Endometriosis. She is a retired Nurse who also battled with Endometriosis for years and got a hysterectomy, which of course did not eliminate the Endo. 

Nancy shares her knowledge on Endo, the resistance of doctors when it comes to this disease, the Lupron and Orilissa band-aids and all the work she does behind the scenes. 

Join Nancy’s Nook Group on Facebook here. 

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. 

Don't forget to share, rate and subscribe to this podcast. 

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all. 

Till next time, remember, you are not defined by endo! 

Music:

Underground Stars by Loxbeats https://spoti.fi/34tPBBO  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: https://bit.ly/underground-stars  Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA 

We Are Here by Declan DP https://soundcloud.com/declandp  Licensing Agreement: http://declandp.info/music-licensing  Free Download / Stream: https://bit.ly/_we-are-here  Music promoted by Audio Library https://youtu.be/kNqzp11gXio 

Up to 50% of women with Endometriosis experience infertility issues. This means that many eventually choose to go through the process of assisted fertility. Over the years, the success rates of assisted fertility methods have increased, and 1 in 4 treatment cycles are said to be successful. For those less than 35 years old, the success rates increase to 1 in 3. 

In vitro fertilisation (IVF) is when eggs are collected from the ovaries and then combined with the sperm in a laboratory dish, and any fertilised embryos are then implanted into the womb. 

Today’s conversation is with Kristen, an embryologist whose job it is to care for the embryos from the time of egg retrieval to when is it safely implanted in the woman’s uterus. Kristen will be sharing with us what her job is like, what the process of IVF entails and what makes her job so fulfilling. Kristen's Instagram page is @ilikemyeggsfertilised. Go show her some love!

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. 

Don't forget to share, rate, and subscribe to this podcast. 

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all. 

Till next time, remember, you are not defined by endo! 

Intro Music

Underground Stars by Loxbeats https://spoti.fi/34tPBBO  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: https://bit.ly/underground-stars  Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA 

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast.

Today’s conversation is with Stephanie Moss. Stephanie is an Endometriosis advocate, Infertility warrior, Trauma survivor, and a third-year Medical Student pursuing her Medical Doctorate (M.D.) at Rush Medical College in Chicago. She has a passion for trauma-informed care and advocating for those disenfranchised in society. She loves to share her story through writing, social media, podcasts, and presentations. Her work has been featured across various platforms including The Endometriosis Foundation, KevinMD, American Medical Women’s Association, and Survivor Revive. She has also created a website called medpsycmoss.com which features her blog, links to her work, and a comprehensive selection of trauma-informed resources for both patients and health care providers.

Don't forget to share, rate, and subscribe to this podcast.

If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to  info@notdefinedbyendo.com.

Till next time, remember, you are not defined by endo!

Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

Today’s conversation is with Jessica Drummond of Integrative Women’s Health Institute.

Jessica equips thousands of clients to start their own health coaching practices and regularly lectures on topics such as integrative pelvic pain management, natural fertility options, optimal hormone health, and functional and integrative nutrition for rehabilitation, nutrition, wellness, fitness, and medical professionals.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. 

Don't forget to share, rate and subscribe to this podcast. 

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all. 

Till next time, remember, you are not defined by endo! 

 Music:

Underground Stars by Loxbeats https://spoti.fi/34tPBBO  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: https://bit.ly/underground-stars  Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA 

My guests today are from Mendu, a community created for women and by women. 

Mendü is a Woman-of-Colour founded company. A space that helps you do wellness in a way that works for you. They teach you to take out all the unappealing parts of therapy and keep only the parts that make you feel good. Their goal is to make investing in mental & emotional wellbeing as vibrant and fun as the women they engage.

Mendü are hosting a wellness event teaching people how to go from surviving to thriving on the 21st of February at 6.30pm at Redbull Studios in Covent Garden. Click the link https://www.eventbrite.com/e/self-care-surviving-or-thriving-tickets-92347232057 to get the tickets. 

They are also giving away free tickets to the event so head on over to my Instagram page @notdefinedbyendo to find out how to enter for the giveaway.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. 

Don't forget to share, rate and subscribe to this podcast. 

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all. 

Till next time, remember, you are not defined by endo! 

 Music:

Underground Stars by Loxbeats https://spoti.fi/34tPBBO  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: https://bit.ly/underground-stars  Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA 

We Are Here by Declan DP https://soundcloud.com/declandp  Licensing Agreement: http://declandp.info/music-licensing  Free Download / Stream: https://bit.ly/_we-are-here  Music promoted by Audio Library https://youtu.be/kNqzp11gXio 

Welcome to our 'Endo Research Unveiled: Seeking Answers' series on Not Defined by Endo Podcast.

Today’s conversation is with Dr Barbara Guinn, a Reader in Biomedical Sciences at the University of Hull.

As well as teaching the undergraduate and postgraduate degree courses in the Centre for Biomedicine, Hull York Medical School, Barbara also supervises MSc, MD and PhD students in their research. Barbara read Genetics at Aberystwyth University and received a PhD in Medicine from the University of Wales College of Medicine, Cardiff.

Following 4.5 years working at the University of Toronto in the Department of Immunology, Barbara set up her own research group in the Department of Haematological Medicine at King’s College London to identify new targets for the treatment of acute leukaemia. Barbara worked on the development of DNA vaccines to treat leukaemia at the University of Southampton and then started to work on ovarian cancer. In 2016 Barbara joined the University of Hull and began her work on developing new treatments for endometriosis and a urine test for endometriosis called EndoTect.

Barbara has three children and two dogs and loves to X. Her X handles are @BarbaraGuinn1 @GuinnLab.

Don't forget to share, rate, and subscribe to this podcast.

If you’d like to share any research studies you are involved in or interested in, please reach out on Instagram or Facebook, or send an email to  info@notdefinedbyendo.com.

Till next time, remember, you are not defined by endo!

Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

Today’s episode is with Ana G. Herrera, founder of Hormone University, an educational platform with the mission to improve hormone health through accessible knowledge and to advocate for social impact in our communities. Ana suffered from stage IV Endometriosis for years and went through excruciating PMS pain, infertility, and five surgeries, the last one ending in a full hysterectomy and a colon resection, which led to surgical menopause.

Join the conversation today as Ana shares her story and her passion for what she does.

Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

I hope you enjoyed today’s episode. If you did, let us know on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.

If you want to get involved in any way, please visit www.hormone-university.com to learn more.

Don't forget to share, rate, and subscribe to this podcast.

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all.

Till next time, remember, you are not defined by endo!

Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK. 

In this first episode, we are asking, what is Endometriosis? How and why does it happen?

If you enjoy this episode, I would love to know. Join me on Instagram and Facebook. You can also follow the Instagram Page of Chelsea Centre for Minimal Invasive Gynaecology (CCMIG) @ccmig.london, where Tom shares a lot of relevant and helpful information on Endometriosis.

Don't forget to share, rate and subscribe to this podcast. 

Till next time, remember, you are not defined by endo!

Background Music:

Life by Roa https://soundcloud.com/roa_music1031

Creative Commons — Attribution 3.0 Unported — CC BY 3.0

Free Download / Stream: https://bit.ly/_-life

Music promoted by Audio Library https://youtu.be/dXqEepAme-M

Welcome to our 'Endo Research Unveiled: Seeking Answers' series on Not Defined by Endo Podcast.

Today’s conversation is with Dr Anita Sharma and Courtney Omrod. Dr. Anita is a General Practitioner based in Manchester, United Kingdom and a national campaigner on women’s health. Courtney is an endometriosis warrior and advocate making a difference in this space. We hear a lot about the work they have both been doing and how Courtney's personal experiences with Endo have impacted every aspect of her life. 

Don't forget to share, rate, and subscribe to this podcast.

If you’d like to share any research studies you are involved in or interested in, please reach out on Instagram or Facebook, or send an email to  info@notdefinedbyendo.com.

Till next time, remember, you are not defined by endo!

Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

It is hard enough that many of us have been going through pain and ill-health for so many years. Now we are told that most of our appointments have been canceled because of the Coronavirus (Covid19) pandemic. We fear that our ill-health could make us more susceptible to the virus. And all of these fears, stress, and worries result in endometriosis pain flares, to make matters even worse.

So, the question is, are we at any more risk than other people?

Listen to my thoughts on the matter.

Remember that I am not a medical professional, so everything I share is simply to inspire and remind you that you are not alone. Remember to speak to a medical professional before making any changes to your diet or lifestyle.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. 

Don't forget to share, rate and subscribe to this podcast. 

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all. 

Till next time, remember, you are not defined by endo! 

Links:

Symptom Tracker: www.covid.joinzoe.com

Babylon Health: https://www.babylonhealth.com/

Push Doctor: https://www.pushdoctor.co.uk/

Music:

Lights Of Elysium - AERØHEAD https://soundcloud.com/aerohead Creative Commons — Attribution-ShareAlike 3.0 Unported — CC BY-SA 3.0 Free Download / Stream: https://bit.ly/lights-of-elysium Music promoted by Audio Library https://youtu.be/FyDoQB0vBZI

Many Endometriosis sufferers have either also been diagnosed with PCOS, or suspect that they have PCOS. Some of the symptoms suffered are similar and some of the deficiencies overlap. That's why we will be talking to a PCOS Expert today.

Angela Grassi, MS, RDN, LDN, has spent 20 years as an internationally known nutrition and health expert on PCOS. She suffers from the disease herself and knows how frustrating it is to live with the disease. She provides help to people with PCOS to improve their health through evidence-based nutrition.

There's so much to take away from this conversation so enjoy!

To learn more about Angela and her work, go to www.pcosnutrition.com.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. 

Don't forget to share, rate, and subscribe to this podcast. 

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all. 

Till next time, remember, you are not defined by endo! 

Books:

The PCOS Workbook: Your Guide To Complete Physical And Emotional Health

The PCOS Nutrition Center Cookbook: 100 Easy And Delicious Whole Food Recipes To Beat PCOS

Music:

Underground Stars by Loxbeats https://spoti.fi/34tPBBO  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: https://bit.ly/underground-stars  Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA 

Today’s conversation is with Katie Edmonds, a Certified Nutritional Therapist certified through the Nutritional Therapy Association and a Paleo Autoimmune Protocol certified coach. She founded Heal Endo, a diet and lifestyle approach to aid the body in healing from the worst symptoms of Endometriosis. Katie wrote a 100-page evidence-based book on the dreaded endo-belly, and has also authored the 4-Week Endometriosis Meal Plan.

If you've battled with endo for years or are newly diagnosed, this may be the holistic lifestyle approach to endo you have been missing. Based on a whole-foods, whole-movement, and whole-lifestyle approach to reclaiming your life. You can find out more on www.healendo.com. You can also buy Katie’s book on Amazon, it is available in both the Kindle and Paperback versions. 

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. 

Don't forget to share, rate and subscribe to this podcast. 

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all. 

Till next time, remember, you are not defined by endo!

 Music:

Underground Stars by Loxbeats https://spoti.fi/34tPBBO  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: https://bit.ly/underground-stars  Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA 

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast.

Today’s conversation is with Tihesia Bennet. Tihesia is a 24-year-old incoming Junior Doctor. She was inspired to create her sexual and reproductive health awareness page, She Talks, after she was diagnosed with superficial endometriosis in 2020. Join me as we listen to Tihesia’s story.

Don't forget to share, rate, and subscribe to this podcast.

If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to  info@notdefinedbyendo.com.

Till next time, remember, you are not defined by endo!

Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

Welcome to episode 6 of Endo 101!

Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK. 

Today’s episode will be about the myths that have plagued this disease. There are so many inaccuracies we have always known to fly around when it comes to this disease. Myths such as Pregnancy cures endometriosis can do a lot more harm than good. Therefore, today Tom and I will be discussing some of these myths and Tom will be giving us an idea of the origins or the reasons why these untruths find their way into society.

If you have any questions you are keen to get answers to or if you just enjoyed this episode and would like us to know, send an email to info@notdefinedbyendo.com with your questions, or DM me on Instagram @notdefinedbyendo or the Instagram Page of Chelsea Centre for Minimal Invasive Gynaecology (CCMIG) @ccmig.london. There, Tom shares a lot of relevant and helpful information on Endometriosis.

Don't forget to share, rate, and subscribe to this podcast. 

Till next time, remember, you are not defined by endo!

Background Music:

Life by Roa https://soundcloud.com/roa_music1031

Creative Commons — Attribution 3.0 Unported — CC BY 3.0

Free Download / Stream: https://bit.ly/_-life

Music promoted by Audio Library https://youtu.be/dXqEepAme-M

Today's episode is with Dr. Olajuwon Alabi. Dr. Juwon is a Consultant Gynaecologist and Obstetrician, the founder and Medical Director of Southshore Women’s and Children’s Hospital in Lagos Nigeria. Southshore is run both in Victoria Island and GRA Ikeja in Lagos. Dr. Juwon trained in Nigeria and also in Manchester and Leeds in the United Kingdom. He was trained in Minimal Access Surgery and developed interest in this subspecialty, and there got involved in a lot of Endometriosis cases. On his return to Nigeria, he realised the skills gap in laparoscopic surgery and decided in 2012 to start Southshore, which focuses predominantly on women’s health.

One of their specialties is the treatment of fibroids and endometriosis, he is an excision specialist and today I am excited to talk about what it is like treating endometriosis patients in Nigeria. We discuss the challenges, and we receive golden advice from Dr. Juwon on dealing with this disease.

Dr. Juwon has an Instagram account as well @drjuwonalabi for those who want to reach out to him.

Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.

Don't forget to share, rate and subscribe to this podcast.

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all.

Till next time, remember, you are not defined by endo!

Music:

Underground Stars by Loxbeats https://spoti.fi/34tPBBO Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: https://bit.ly/underground-stars Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA

Today’s conversation is all about Yoga with Lara Heimann, a physical therapist and Yogi with over 20 years of experience under her belt. Yoga’s practise is in Princeton, New Jersey. 

Lara is the creator of the LYT Yoga Method and can be found on Instagram @lara.heimann and on the website https://lytyoga.com/ 

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. 

Don't forget to share, rate, and subscribe to this podcast. 

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all. 

Till next time, remember, you are not defined by endo! 

Music 

Underground Stars by Loxbeats https://spoti.fi/34tPBBO  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: https://bit.ly/underground-stars  Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA 

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast.

Today’s episode is with lovely Kailey Lee and Betsy Austin. Kailey & Betsy host the Not Cha Momma Podcast where they talk about endometriosis, adenomyosis, infertility, & childlessness in their 30s. I particularly love how they talk about being child-free, and not child LESS. And the very important message that not having a child does not make you less. They regularly share insight into their daily lives with chronic illnesses and their pursuit to redefine worth and enjoyment of their kid-free lives. They are also on Instagram @notchamommapod. 

Don't forget to share, rate, and subscribe to this podcast.

If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to  info@notdefinedbyendo.com.

Till next time, remember, you are not defined by endo!

Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast.

Today’s conversation is with Tanya. Tanya is a 30-year-old endometriosis advocate from London. She was suffering from endometriosis for eight years before she was diagnosed and underwent extensive surgery. She now lives life with an ileostomy bag on her stomach because of endometriosis and how much damage it had done to her organs. It was so refreshing speaking all things endo, stoma, and living our best lives with Tanya! So sit back, relax and join us in this conversation! Follow her instagram @tanyalivingfree.

Don't forget to share, rate, and subscribe to this podcast.

If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to  info@notdefinedbyendo.com.

Till next time, remember, you are not defined by endo!

Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

A board-certified Physical Medicine and Rehabilitation physician, Dr. Ahmed is also a fellow of the Academy of Physical Medicine and Rehabilitation and a member of the International Pelvic Pain Society.

After spending the last five years honing her skills in outpatient care, Dr. Ahmed is ready to focus on her passion for treating pelvic pain. Dr. Ahmed has chosen a focused practice at pelvicrehabilitation.com, because she believes concentrating on a specific field creates the greatest expertise. Chasing that greatness has been her consistent driving force.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. 

Don't forget to share, rate, and subscribe to this podcast. 

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all. 

Till next time, remember, you are not defined by endo! 

Music

Underground Stars by Loxbeats https://spoti.fi/34tPBBO  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: https://bit.ly/underground-stars  Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA 

Welcome to episode 4 of Endo 101!

Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK. 

The last episode we discussed the path from symptoms to diagnosis and really went into the different hormonal treatment options for Endometriosis. Today, we will be talking about surgical treatments for Endometriosis, and why the gold-standard treatment for Endometriosis is excision surgery to remove the disease completely. It is also very important to understand that there are many factors that can require your doctors to offer various other treatments other than surgery. This could depend on your situation, for example, the desire to have children which means your fertility has to be treated as a priority, the location of the disease, e.g. if it is Deep Infiltrating bowel disease that could be complex and potentially require a colostomy bag, and so on. One thing that is very important is to understand all your options, and why your doctor thinks a particular approach is the best one for you.

So join us again on this episode as Tom breaks it all down for us!

If you have any questions you are keen to get answers to or if you just enjoyed this episode and would like us to know, send an email to info@notdefinedbyendo.com with your questions, or DM me on Instagram @notdefinedbyendo or the Instagram Page of Chelsea Centre for Minimal Invasive Gynaecology (CCMIG) @ccmig.london. There, Tom shares a lot of relevant and helpful information on Endometriosis.

Don't forget to share, rate, and subscribe to this podcast. 

Till next time, remember, you are not defined by endo!

Background Music:

Life by Roa https://soundcloud.com/roa_music1031

Creative Commons — Attribution 3.0 Unported — CC BY 3.0

Free Download / Stream: https://bit.ly/_-life

Music promoted by Audio Library https://youtu.be/dXqEepAme-M

Welcome to today's episode of Not Defined by Endo Podcast! Today, we are speaking with Valentina Milanova, founder of Daye, a female health research and development company on a mission to bridge the gender gap in product innovation. They have created pain-relieving tampons infused with CBD which are not only effective but also sustainable.

Join me today as we listen to the incredible journey of Daye and how they are raising the standards of women’s healthcare.

If you want to know more or try out their products, please go to https://yourdaye.com.

Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.

Don't forget to share, rate, and subscribe to this podcast.

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all.

Till next time, remember, you are not defined by endo!

Welcome to episode 5 of Endo 101!

Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK. 

Last episode we discussed the surgical treatments for Endometriosis, and why the gold-standard treatment for Endometriosis is excision surgery to remove the disease completely. We also understood the different surgical approaches based on the kind of Endometriosis, whether an endometrioma, peritoneal endo or even deep infiltrating bowel endometriosis. Today, we want to talk about Endometriosis and Infertility. Up to 40-50% of women with Endometriosis do suffer from infertility or subfertility. So let’s talk about this and understand better how and why this happens.

If you have any questions you are keen to get answers to or if you just enjoyed this episode and would like us to know, send an email to info@notdefinedbyendo.com with your questions, or DM me on Instagram @notdefinedbyendo or the Instagram Page of Chelsea Centre for Minimal Invasive Gynaecology (CCMIG) @ccmig.london. There, Tom shares a lot of relevant and helpful information on Endometriosis.

Don't forget to share, rate, and subscribe to this podcast. 

Till next time, remember, you are not defined by endo!

Background Music:

Life by Roa https://soundcloud.com/roa_music1031

Creative Commons — Attribution 3.0 Unported — CC BY 3.0

Free Download / Stream: https://bit.ly/_-life

Music promoted by Audio Library https://youtu.be/dXqEepAme-M

Welcome to episode 2 of Endo 101.

Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK. 

Today we are talking about the colours, the stages, and the sites where Endometriosis can be found. 

If you have any questions you are keen to get answers to or if you just enjoyed this episode and would like us to know, send an email to info@notdefinedbyendo.com with your questions, or DM me on Instagram @notdefinedbyendo or the Instagram Page of Chelsea Centre for Minimal Invasive Gynaecology (CCMIG) @ccmig.london. There, Tom shares a lot of relevant and helpful information on Endometriosis.

Don't forget to share, rate, and subscribe to this podcast. 

Till next time, remember, you are not defined by endo!

Background Music:

Life by Roa https://soundcloud.com/roa_music1031

Creative Commons — Attribution 3.0 Unported — CC BY 3.0

Free Download / Stream: https://bit.ly/_-life

Music promoted by Audio Library https://youtu.be/dXqEepAme-M

“None of us alone can save the nation or the world. But each of us can make a positive difference if we commit ourselves to do so.” - Cornel West

Today's episode is with Amy, an amazing advocate for Endometriosis, and founder of 'In Sixteen Years of Endometriosis' Podcast, where she and her co-host Brittany give us incredibly uplifting accounts of their experiences dealing with Endometriosis for over 16 years. Amy is very active on social media, specifically Instagram, through her page ‘in16yearsofendo’, where she thoroughly educates the community on Endometriosis and the scientific research available and provides resources to support women with the disease. She also has a website https://insixteenyears.com/ where she has so many resources to educate and support women going through the disease.

Amy and I support each other a lot and share our life experiences, and we thought it would be great to do a podcast episode together. We realised that something that we had both been thinking about is racial bias in healthcare as well as access, or the lack of it, to healthcare in lesser developed countries like Nigeria. We decided that this is something we both wanted to explore, research and talk about and here we are! 

Remember that you can follow me on instagram @notdefinedbyendo, and you can follow Amy @in16yearsofendo. This episode is airing on each of our podcasts, so kick off your shoes, get yourself a refreshing drink, and let’s have a listen!

Music 

Underground Stars by Loxbeats https://spoti.fi/34tPBBO  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: https://bit.ly/underground-stars  Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA 

Today, we are chatting to Stacey Foat, Naturopathic Doctor who found herself at menopause at age 27, and worked on her body and mind to achieve hormonal balance and wellness. Stacey is passionate about helping women with Endometriosis add tools to their arsenal that helps them fight the disease. She shares her 7 steps to achieving hormonal balance. 

To find Stacey and work with her, visit her website www.balancedbabes.net. She also has supplementary products to help you on your journey to wellness. 

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. 

Don't forget to share, rate and subscribe to this podcast. 

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all. 

Till next time, remember, you are not defined by endo! 

 Music:

Underground Stars by Loxbeats https://spoti.fi/34tPBBO  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: https://bit.ly/underground-stars  Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA 

We Are Here by Declan DP https://soundcloud.com/declandp  Licensing Agreement: http://declandp.info/music-licensing  Free Download / Stream: https://bit.ly/_we-are-here  Music promoted by Audio Library https://youtu.be/kNqzp11gXio 

Pain is no stranger to chronic illness sufferers, in fact, sometimes it feels like we don’t remember what it feels like to be without pain. 

Many of us have been told that the pain is only in our heads, which only serves to unfairly invalidate what we are going through. 

But what exactly is pain? Is it caused by strange endometriosis implants in our bodies? Is it caused by inflammation? Is it caused by structural abnormalities within our organs, muscles, or bones? How are pain signals transmitted from the brain? These are all very important questions and today’s episode is with Dr. Howard Schubiner, a clinician, author, and researcher who has conducted ground-breaking research on a treatment plan that can resolve, rather than manage, chronic pain. 

He is the director of the Mind-Body Medicine Center at Providence Hospital in Southfield, Michigan, and a Clinical Professor at Wayne State University and Michigan State University School of Medicine. He has authored over 60 scientific publications and lectures nationally and internationally.  

Dr. Howard is the author of the book Unlearn Your Pain and co-author of the book Hidden from View - A clinician's guide to psychophysiological disorders. 

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. 

Don't forget to share, rate, and subscribe to this podcast. 

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all. 

Till next time, remember, you are not defined by endo! 

Music

Underground Stars by Loxbeats https://spoti.fi/34tPBBO  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: https://bit.ly/underground-stars  Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA 

Welcome to episode 3 of Endo 101.

Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK. 

Today, we are talking about the path from symptoms to diagnosis and treatment options for Endometriosis. Remember, that the gold-standard treatment for Endometriosis is excision surgery to remove the disease completely. However, there are many factors that can require your doctors to offer various other treatments such as birth control, hormonal treatment, pain management, pelvic therapy and so on. These options could depend on your situation, for example, the desire to have children which means your fertility has to be treated as priority, the location of the disease, e.g. if it is deep infiltrating bowel disease that could be complex and potentially require a colostomy bag, and so on. One thing that is very important is to understand all your options, and why your doctor thinks a particular approach is the best one for you.

So join us on this episode as Tom breaks it all down for us!

If you have any questions you are keen to get answers to or if you just enjoyed this episode and would like us to know, send an email to info@notdefinedbyendo.com with your questions, or DM me on Instagram @notdefinedbyendo or the Instagram Page of Chelsea Centre for Minimal Invasive Gynaecology (CCMIG) @ccmig.london. There, Tom shares a lot of relevant and helpful information on Endometriosis.

Don't forget to share, rate, and subscribe to this podcast. 

Till next time, remember, you are not defined by endo!

Background Music:

Life by Roa https://soundcloud.com/roa_music1031

Creative Commons — Attribution 3.0 Unported — CC BY 3.0

Free Download / Stream: https://bit.ly/_-life

Music promoted by Audio Library https://youtu.be/dXqEepAme-M

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast.

Today's episode is with Nicole Marriott, a warrior who lives with Endometriosis, Adenomyosis, and PCOS. Nicole set up her Instagram account @endo.of.an.era to raise awareness and break the stigmas and taboos surrounding chronic conditions, infertility, and menstruating.

After a 20-year journey to diagnosis and a nearly 10-year journey with primary and secondary infertility, her aim is to connect, raise awareness and help others feel seen, heard, and free in their own truths and all aspects of their journey living with these conditions. Nicole believes in an inclusive community that does not exclude the voices and experiences of others.

Don't forget to share, rate, and subscribe to this podcast.

If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to  info@notdefinedbyendo.com.

Till next time, remember, you are not defined by endo!

Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

Today, we will be discussing the psychology of sex. This is a topic that makes many uncomfortable. There is a stigma when it comes to speaking about any difficulties one is experiencing with sex. However, many endometriosis sufferers are silently experiencing painful sex as a symptom of their disease. I will be speaking today to Dr. Lauren Fogel Mersy. Dr. Lauren is a psychologist, relationship therapist, and certified sex therapist. She specialises in sexual difficulties such as low libido, problems with arousal, orgasm difficulties, and sexual relationship problems. She is currently writing her first book about libido. Her practice is in Minneapolis, Minnesota. 

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. 

Don't forget to share, rate, and subscribe to this podcast. 

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all. 

Till next time, remember, you are not defined by endo! 

Books: 

Come as You Are: The Surprising New Science That Will Transform Your Sex Life by Emily Nagoski 

When Sex Hurts: A Woman's Guide to Banishing Sexual Pain by Andrew T. Goldstein, Caroline F. Pukall, and Irwin Goldstein 

Becoming Cliterate: Why Orgasm Equality Matters - and How to Get It by Laurie Mintz 

Music:

Underground Stars by Loxbeats https://spoti.fi/34tPBBO  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: https://bit.ly/underground-stars  Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA 

Today’s episode is with Lily Jane Avery, a 19-year Endometriosis warrior, and advocate. Lily was diagnosed with endometriosis at the very young age of 14, and she is one of the few who have had to carry this burden of a chronic disease at such a young age. Despite her early diagnosis, Lily was once told by her doctor to buy a colouring book to colour away her pain. This only made her fight even harder to be heard. Lily is not a victim, oh no! Instead, she has embarked on the very important cause of advocating for and educating both young and old about endometriosis and letting people know that the pain is not in their head. Lily started an Instagram account called @over.endo where she educates people on the various aspects of the disease. Please follow her and show her some love.

Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.

Don't forget to share, rate and subscribe to this podcast.

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all.

Till next time, remember, you are not defined by endo!

Music:

Underground Stars by Loxbeats https://spoti.fi/34tPBBO Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: https://bit.ly/underground-stars Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA

Welcome to today's episode of Not Defined by Endo Podcast!

Today’s episode is with Manju Bangalore, the founder and executive director of Operation Period, a grassroots, youth-led nonprofit dedicated to creating a world where menstruation holds no one back. They fight for menstrual freedom through art, advocacy, education, community engagement, and direct aid. Manju started this organisation after experiencing severe period pains and encountering those who could not even afford their menstrual products.

If you want to get involved in any way, please visit www.operationperiod.org to learn more.

Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.

Don't forget to share, rate, and subscribe to this podcast.

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all.

Till next time, remember, you are not defined by endo!

Today's conversation is with a warrior. A warrior in name and deed.

Alex has been through a lot with her endometriosis. The common myth to take out your uterus was debunked in her case as she presented with thoracic endometriosis even after her hysterectomy. Excision surgery was what gave Alex a chance to enjoy life once again and be present for her husband and her two sons.

Alex is a voice and an advocate for women with endometriosis all over the world and it was great to have her on the show.

If you are interested in telling your story, please reach out to me through my email or social media.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. 

Don't forget to share, rate and subscribe to this podcast. 

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all. 

Till next time, remember, you are not defined by endo! 

 Music:

Underground Stars by Loxbeats https://spoti.fi/34tPBBO  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: https://bit.ly/underground-stars  Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA 

Welcome to today's episode of Not Defined by Endo Podcast!

Today’s episode is with Jodie Hughes, the founder of the charity Endometriosis South Coast in the UK, and a Ph.D. student studying how endometriosis differs in different sample groups of people. Jodie’s endometriosis story begins at the tender age of 11, and like many of us, she has had to navigate a behemoth healthcare system, advocating for herself and others and raising awareness about the disease.

Endometriosis is such a poorly-funded and poorly-researched disease, and Jodie is working hard to change this by devoting her life to studying the impact of Endo. For her undergraduate and master's studies, she researched the stress levels of patients with endometriosis and was able to obtain statistically significant results in both studies.

Apart from doing research on Endo, she also founded the all-inclusive charity called Endometriosis South Coast, supporting and educating those with endometriosis by running webinars and support groups. 

Here is the link to Jodie's survey -

https://roehamptonuniversity.onlinesurveys.ac.uk/a-study-on-the-effects-of-location-ethnicity-and-care-app

Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.

Don't forget to share, rate, and subscribe to this podcast.

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all.

Till next time, remember, you are not defined by endo!

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast.

Today’s episode is with Amy Corfeli, a powerhouse and amazing advocate in the world of Endometriosis and chronic illness. Amy has endometriosis and has also been diagnosed with IC, fibro, Mast cell activation syndrome, and Small Intestine Bacterial Overgrowth. She was diagnosed with endo at thirty-three, sixteen years after her symptoms began. She’s the content creator of the popular podcast called In Sixteen Years of Endometriosis. With her co-host Brittany, they laugh, cry, and shout about all things endometriosis. Amy is also the author of Finding Peace with a Devastating Disease. It's a beautifully raw and honest collection of seventy-six reflections on acceptance, meaning, and self-compassion. On Amy's website and Instagram, @in16yearsofendo, you can find accurate information and trustworthy resources for endometriosis.

Don't forget to share, rate, and subscribe to this podcast.

If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to  info@notdefinedbyendo.com.

Till next time, remember, you are not defined by endo!

Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast.

Today, we carry on listening to Kailey and Betsy’s stories and how they have overcome all they have been through in their diagnoses of endometriosis and infertility. If you didn’t listen to Part 1, please click on the previous episode to do so.

Kailey & Betsy host the Not Cha Momma Podcast where they talk about endometriosis, adenomyosis, infertility, & childlessness in their 30s. I particularly love how they talk about being child-free, and not child LESS. And the very important message that not having a child does not make you less. They regularly share insight into their daily lives with chronic illnesses and their pursuit to redefine worth and enjoyment of their kid-free lives. They are also on Instagram @notchamommapod. 

Don't forget to share, rate, and subscribe to this podcast.

If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to  info@notdefinedbyendo.com.

Till next time, remember, you are not defined by endo!

Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

Cycle charting. Is it the same as period tracking? 

We are speaking today with Melissa Buchan, an integrative health coach and a neo fertility advisor. 

 Melissa is the founder of Virtus Fertility Centre in Texas USA, and she provides her clients, many of whom are endometriosis and PCOS patients, with the tools to monitor and track their fertility cycles. Melissa provides cycle-targeted diagnostic testing to optimize fertility treatment plans.

Melissa also developed a fertility app called Chart Neo which acts as a powerful tool for charting your cycle and assessing your health. 

Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle. 

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. 

Don't forget to share, rate and subscribe to this podcast. 

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all. 

Till next time, remember, you are not defined by endo! 

Intro Music

Underground Stars by Loxbeats https://spoti.fi/34tPBBO  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: https://bit.ly/underground-stars  Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA 

Welcome to today's episode of Not Defined by Endo Podcast!

Today’s episode is with Kelly Newton, who founded BP3 Underwear in 2019. Kelly founded BP3 as a result of her issues with bladder incontinence as she entered menopause. We know that many young women with Endometriosis, Interstitial cystitis, and even those in postpartum also have bladder issues, and Kelly soon realized that all of these women could use her knickers both for their periods and leaks and incontinence.

Kelly also has a fascinating story about her endometriosis and I really had so much fun getting to know her.

Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.

Don't forget to share, rate, and subscribe to this podcast.

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all.

Till next time, remember, you are not defined by endo!

Hello and welcome to this first episode of 'Endo University,'. This is a short lightening podcast season where I'll be sharing a lot of information on all things Endometriosis. 

Today, we're delving into the fundamentals with a focus on 'What does Endometriosis look like?' 

Articles & References:

Kennedy S, Bergqvist A, Chapron C, D'Hooghe T, Dunselman G, Greb R, et al. ESHRE guideline for the diagnosis and treatment of endometriosis. Hum Reprod. 2005;20:2698–704. [PubMed] [Google Scholar]

Stratton P, Winkel CA, Sinaii N, Merino MJ, Zimmer C, Nieman LK. Location, color, size, depth, and volume may predict endometriosis in lesions resected at surgery. Fertil Steril. 2002;78:743–9. [PubMed] [Google Scholar]

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2505050/#:~:text=The%20typical%20appearance%20of%20endometriosis,also%20be%20endometriosis%20(1).

Disclaimer:

Remember that I am not a medical professional. So whatever I share on this podcast is to enlighten and inspire. Please always speak to your healthcare professional before making any changes to your diet or lifestyle.

Music:

Sunrise - Mehul Choudhary https://soundcloud.com/mehulchoudhary

Creative Commons — Attribution 3.0 Unported — CC BY 3.0

Free Download / Stream: https://bit.ly/3RYLj0k

Music promoted by Audio Library https://bit.ly/48AUtab

This episode, we will be talking about how to navigate an endo diagnosis, and the process, especially for those that are resident in the UK. 

Dr. Shaheen Khazali is an internationally renowned expert in advanced endometriosis surgery. His practice, both on the NHS and privately, is almost exclusively dedicated to looking after women with the most severe forms of endometriosis when the disease has affected other organs such as the bowel, bladder, ureters and pelvic nerves.

He also sees and treats women with other benign gynaecological conditions such as heavy menstrual bleeding, ovarian cysts and menstrual disorders.

He is also an NHS Consultant at Ashford and St Peter’s Hospitals NHS Foundation Trust (ASPH) in Surrey. ASPH has a long history in the treatment of severe endometriosis for many years and was one of the first few centres accredited for treatment of severe endometriosis by the British Society for Gynaecological Endoscopy (BSGE). In 2012 Mr Khazali co-founded CEMIG (Centre for Endometriosis and Minimally Invasive Gynaecology) at ASPH, which has been one of the busiest accredited centres for the treatment of severe endometriosis in the UK. In 2018 and again in 2019, CEMIG treated more patients than any other accredited endometriosis centre in the UK, making it the busiest BSGE centre in the country.

Don't forget to share, rate, and subscribe to this podcast. 

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all. 

Till next time, remember, you are not defined by endo! 

Intro Music

Underground Stars by Loxbeats https://spoti.fi/34tPBBO  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: https://bit.ly/underground-stars  Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA 

Today’s episode is with  Dr. Allyson Shrikhande, a board certified Physical Medicine and Rehabilitation specialist and the Chief Medical Officer of Pelvic Rehabilitation Medicine.  Allyson is a leading expert on pelvic health who works with expert gynecologists, urologists, physiatrists, and interventional pain physicians, and also specialists in pelvic floor physical therapy, kinetics, and movement, as well as acupuncturists, nutritionists, cognitive-behavioral therapists, and functional medicine physicians. This means that even with an extensive background in mainstream clinical medicine, she also makes use of many alternatives, holistic and homeopathic approaches.

Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.

Don't forget to share, rate, and subscribe to this podcast.

If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all.

Till next time, remember, you are not defined by endo!

Not Defined by Endo Podcast, hosted by Endometriosis Warrior Teniola Ogunro, is created for and dedicated to women who have been diagnosed with endometriosis, or who suffer from symptoms that they suspect to be caused by endometriosis.

Every week, Teniola shares her own experiences, interviews health professionals and Endo specialists who provide their much-needed insight and speaks to fellow endometriosis warriors who know what it feels like to live with and fight an incurable disease.

Welcome to Not Defined by Endo Podcast, Season 1 - Episode 1.

Our first full episode this season tells my endometriosis story. How it all began, and where I am on my journey now.

As many chronic illness sufferers know, there never seems to be an end to the journey. But we each have a unique, though familiar story, and we need to embrace every aspect of our journey. Healing is never linear, so we take it one day at at time. 

My story is by no means done, and I would love for you to join me on this journey of healing and self-discovery.

Intro Music - Trip by KV https://soundcloud.com/kvmusicprod Creative Commons — Attribution 3.0 Unported — CC BY 3.0 http://creativecommons.org/licenses/by/3.0/ Music promoted by Audio Library https://youtu.be/uIqpcRPRy7s

Endometriosis and pelvic pain. Painful sex. Painful urination. Painful bowel movement. These are just some of the symptoms many of us experience, both during and outside of our menstrual periods. Many say endometriosis causes pelvic floor dysfunction.

But what exactly is the pelvic floor? What are the signs that I have a pelvic floor dysfunction? And how does Endometriosis affect this? How can I improve my pelvic health?

Today's episode is with amazing Nicole Cozean DPT, a Physical Therapist I had the honor of meeting a while ago. Nicole has a private practice, called Pelvic Sanity in Orange County, California and treats women and men with any sort of pelvic concern such as pelvic pain, sexual dysfunction, urinary and bowel conditions and pre- and post-natal issues.

Nicole has so much knowledge about the relationship between endometriosis and pelvic health and teaches us how to address our pelvic pain by addressing our sources of pain generators and therefore calming down our central nervous system.

For more information on Nicole’s practice, visit www.pelvicsanity.com. Also follow her on Instagram @pelvicsanity and make sure to watch her IGTV Endo and Gut health mini-series. Nicole’s Book, the Interstitial Cystitis Solution is available on amazon and can be found here.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.

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Till next time, remember, you are not defined by endo!

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Does an Ultra-sound detect Endometriosis? Why do I still have so much pain after my surgery? Does pregnancy really cure Endometriosis? What are my options?

Many Endometriosis sufferers have all these questions, but feel like no one, not even the medical professionals who we trust so much, can answer them. This is why I am so excited to be speaking to Dr Iris Orbuch in today's episode.

Iris is an Endo Excision specialist and the Director of the Advanced Gynecologic Laparoscopy Center in Los Angeles and New York City. She operates at Lenox Hill Hospital, Mount Sinai and Beth Israel Hospital in New York City. 

She is one of the few physicians who understand that even though excision surgery is the gold standard for endometriosis treatment, the disease requires an integrative approach combining both Eastern and Western medicine to help patients heal and get them on the road to recovery. Infact, she just released a book called ‘Beating Endo’ with her co-author Dr Amy Stein. 

There is so much to learn from Iris today and it is an absolute honour to be interviewing her. So, sit back, relax and let’s have a listen!

If you want to reach Dr Iris and know more, please visit her website www.lagyndr.com. You can also call the number on the website. Also make sure to buy her book, Beating Endo, which is now out. You can get it on www.HarperCollins.com or www.HarperCollins.co.uk and also on Amazon.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.

Don't forget to share and subscribe to this podcast.

Till next time, remember, you are not defined by endo!

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What exactly is an ILU Massage? Why is pelvic health the missing link between Endometriosis and Pelvic Pain?

Today's episode is with Amy Stein DPT. 

Amy is a Doctor of Physical Therapy, a leading expert on the treatment of pelvic floor dysfunction, pelvic pain, women’s health and functional therapy for men, women and children. She is the founder of Beyond Basics Physical Therapy in NYC.

Amy is the author of  the award winning book, ‘Heal Pelvic Pain’, an easy-read self-help book and she created a video, ‘Healing Pelvic and Abdominal Pain: The ultimate home program for patients and a guide for practitioners’. She also co-wrote the book, ‘Beating Endo’ with Dr Iris Orbuch, where she explains the impact of endo on our pelvic health.

Amy serves as the president of the International Pelvic Pain Society, is featured in the Endo What? documentary, and is one of the founders of the Alliance for Pelvic Pain, a patient-oriented educational retreat. Amy has an undeniable passion for helping women (and men) heal their pain and I am excited to be speaking to her today!

If you want to reach Amy, please visit her website www.beyondbasicsphysicaltherapy.com. You can also call the number on the website.

Also make sure to buy her book, Beating Endo, which she co-authored with Dr Iris Orbuch. You can get it on www.HarperCollins.com or www.HarperCollins.co.uk and also on Amazon.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.

Don't forget to share, rate and subscribe to this podcast.

Till next time, remember, you are not defined by endo!

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Statistics say 1 in 4 pregnancies result in miscarriage, and 1 in 8 women experience infertility.

So even if you are not experiencing infertility, someone you know might.

With Endometriosis, the ante is raised even higher. Join me today as we follow Kunbi's story.

Kunbi is an Attorney and Founder of lifestyle publication Perfête! She is a recent founder of TTFC- a community for those trying to freaking conceive. Kunbi is also an Endo sister who finally got her big fat positive after multiple cycles of IVF.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.

Don't forget to share, rate and subscribe to this podcast.

Till next time, remember, you are not defined by endo!

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Endometriosis is a beast. With it comes lots of challenges, a major one being infertility. 1 in 4 pregnancies result in miscarriage, and 1 in 8 women struggle with fertility. But up to 40-50% of women with endometriosis struggle with fertility. While the statistics look grim, we must do all in our power to improve our chances even with endometriosis.

Today, we are speaking with Dr Haylee and Kristin, a Nutritional Therapy Practitioner. Haylee and Kristin both founded Tiny Feet, with the aim to help struggling women with their fertility struggles, and help them realise their dream of a healthy life and a healthy baby.

They provide online courses, consultations, advice on functional testing and supplements etc.

 If you want to reach Dr Haylee and Kristin, go on their website www.tinyfeet.co. On there, you can take the quiz ‘Are you Healthy Enough to get pregnant?’ and follow the steps to a healthier life in preparation for a healthy baby.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.

Don't forget to share, rate and subscribe to this podcast.

 Till next time, remember, you are not defined by endo!

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This week’s episode is all about nutrition and how we can use it as a tool to fight endometriosis. Eating right is one of the hardest things to do in life, period! Whether you have endometriosis or not.

So we are catching up with lovely Kristy Dishmon, a Nutritional Therapist, who will be dishing out lots of advice on the power of nutrition, how to read food ingredient labels, how to begin to choose the right foods when you have chronic illness and more.

For more information about Kristy and the services she provides, visit www.therooted.life, where there are lots of resources and guides that you can download and learn more about nutrition. 

For our wonderful listeners today, Kristy has provided a fantastic freebie, The Spoonie Food Journal Challenge. It is part food journal, part health challenge, and a how-to-guide all in one. It shows us how food can affect the body, but it also tracks emotions, sleep and cycle information. This guide is the perfect tool to have in your tool box if you aren’t ready to work with a nutritionist one on one. To get this free gift, visit www.therooted.life/the-spoonie-food-journal. 

You can also email Kristy at kristy@therooted.life and find her on Instagram @endo.foodie.

Don't forget to share, rate and subscribe to this podcast.

 Till next time, remember, you are not defined by endo!

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"Live like the disease isn't there" - Cam Williams

Living with chronic illness is a huge burden, one that sometimes feels too heavy to carry. How do we keep our smile? How do we rise above sickness and remember that there is more to life than just pain and more pain?

Speaking with lovely Endo Warrior / Boss / Badass Cam Williams definitely reminded me to choose joy. Cam’s joy is contagious, and you wouldn’t believe everything she has been through.

She refuses to let illness define her life, and she is here to share her journey with us today. 

Cam offers coaching services to help you take your life back from sickness, and be your best self. There are also lots of insightful articles on her website www.camwilliams.co. Sign up for her newsletter and learn 3 simple strategies to delay, diminish and erase flares from your life. You can find her on Facebook & Instagram @camluvslife.

If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.

Don't forget to share, rate and subscribe to this podcast.

Till next time, remember, you are not defined by endo!

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