Epilepsy Sparks Insights (Torie Robinson)

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	Date	Titre	Durée
	28 Sep 2023	Status Epilepticus: Complexities & Outcomes - Christoph Beier	00:17:44
Hear of research into complex refractory & super refractory status epilepticus; treatments, outcomes, & how to improve each - with Christoph Beier. ------------------------------------------ 🔗 Website & more about Christoph Beier: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/christoph-beier-status-epilepticus-complexities-outcomes ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10
	03 Oct 2023	Exciting Research Into The Ultra-Rare Epilepsy: Lafora Disease - Jordi Duran	00:13:53
Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the exciting research taking place to try and improve and save the lives of the children affected. With global lead researcher Jordi Duran. ------------------------------------------ 🔗 Website & more about Jordi: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jordi-duran-lafora-disease ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	04 Jul 2024	Cognitive Impairments In Epilepsy - Jon Kleen	00:17:15
Learn all about how people can have memory and other cognitive struggles as part of their epilepsy - in part 1 of 2 with epileptologist Jon Kleen from the UCSF Medical Center, USA! Jon speaks about his career focus, types of cognitive impairments, impacts on quality of life, and more. ------------------------------------------ 🔗 Website & more about Jon: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jon-kleen-cognitive-impairments-epilepsy-research ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #cognition #memory #epilepsy #jonkleen
	04 Apr 2024	Do Autism & Intellectual Disability Come With Epilepsy? - Vaishnav Krishnan	00:19:51
Do Autism & Intellectual Disability Come With Epilepsy? Learn of the Epilepsy, Autism and Intellectual Disability “triad” - studied by clinician scientist, epileptologist: Vaishnav Krishnan. ------------------------------------------ 🔗 Website & more about Vaishnav: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/vaishnav-krishnan-epilepsy-autism-intellectual-disability-triad ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #neurology #autism #intellectualdisability #vaishnavkrishnan
	13 Jun 2024	Understanding & Treating Autoimmune-Associated Epilepsy - Claude Steriade	00:16:58
Hear about Autoimmune-Associated Epilepsy and the intersection between epilepsy and immunology - in part 1 of 2 with epileptologist Claude Steriade from NYU Langone Health Epilepsy Center! Claude explains the causes, mechanisms, and impacts of Autoimmune-Associated Epilepsy upon people's lives, plus, how crucial early diagnoses and intervention are. ------------------------------------------ 🔗 Transcription & more about Claude: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/claude-steriade-autoimmune-associated-epilepsy-immunology ----------------------------------------- ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #autoimmune #autoimmuneepilepsy #neurology #immunology
	29 Jun 2023	Pilots & Seizures, Older People & Epilepsy - Joe Sirven	00:11:45
Pilots and seizures plus older people with epilepsy - all with epilepsy specialist neurologist & podcast host Joseph Sirven of Mayo Clinic, Florida. This is part 1 of 2. ------------------------------------------ More about Joe: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/joe-sirven-aviation-faa-older-people-independence ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Check out my website: 🔗 https://www.torierobinson.com ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	06 Apr 2023	Epilepsy and Mental Health: What Psychologists Should Know - Vaughan Bell, UCL	00:15:29
Clinical neuropsychologist and academic Vaughan Bell of UCL, UK, explains why we need to improve the understanding of the epilepsies among psychologists in general. This is part 1 of 2. ------------------------------------------ More about Vaughan: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/vaughan-bell-changing-psychologists-perceptions-epilepsy ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Website: https://www.torierobinson.com _______________
	18 Jul 2024	Cenobamate: A Game Changer For Epilepsy? - Ricardo Mocos	00:18:52
As well as preventing up to 100% of seizures in 20% of those with refractory focal epilepsy, Cenobamate may also (indirectly), positively impact mental health, cognitive function and reduce seizure propagation. Ricardo Morcos shares information on the titration of Cenobamate, pregnancy, and the importance of a 1:1 clinician-patient relationship. This is part 2 of 2. Please note that this is not an endorsement of any particular anti-seizure medication (Cenobamate or any of the others mentioned) and any questions or ideas from a patient or carer must be brought up with one’s neurologist/epileptologist. ------------------------------------------ Spanish consensus on the management of concomitant anti-seizure medications when using Cenobamate in adults with drug-resistant focal seizures https://www.researchgate.net/publication/379572148_Spanish_consensus_on_the_management_of_concomitant_antiseizure_medications_when_using_cenobamate_in_adults_with_drug-resistant_focal_seizures ------------------------------------------ 🔗 Website & more about Ricardo 👇 https://www.torierobinson.com/epilepsy-sparks-insights/ricardo-mocos-cenobamate-game-changer-for-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #cenobamate #focalepilepsy #partialseizures #epilepsy #RicardoMocos
	01 Oct 2023	Ultra-Rare Epilepsy: Lafora Disease - José Serratosa	00:10:47
Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected. With lead epileptologist and researcher José Serratosa of the Hospital Universitario Fundación Jiménez Díaz, Madrid, Spain. This is the first of 3 of our episodes re the ultra-rare genetic epilepsy: Lafora Disease. ------------------------------------------ 🔗 Website & more about José: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jose-serratosa-lafora-disease ----------------------------------------- ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	10 Aug 2023	Brain Tissue For Epilepsy Research - Neuropathology! - Katja Kobow	00:21:48
Molecular Neuropathologist & PI Katja Kobow explains her research into unraveling the intricate interplay between epigenetic alterations and the development of epilepsy, specifically in the context of the adult post-mitotic brain. ------------------------------------------ 🔗 Website & more about Katja: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/katja-kobow-brain-tissue-for-epilepsy-research-neuropathology ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Threads: https://www.threads.net/@torierobinson10
	16 Nov 2023	Epilepsy Specialist Pharmacists: The Value - Trudy Thomas	00:13:24
Epilepsy Specialist Pharmacist Trudy Thomas explains the incredible value of an Epilepsy Specialist Pharmacist, managing “A wonky stool”, and how and why other non-specialist pharmacists should learn more about the epilepsies. ----------------------------------------- 🔗 Website & more about Trudy: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/trudy-thomas-epilepsy-specialist-pharmacists-value ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	28 Mar 2024	Huge Seizure Reduction Through DBS (in LGS) - Linda Dalic	00:14:33
Learn of the huge reduction in seizures amongst adults with the epilepsy Lennox-Gastaut Syndrome - as the result of DBS! With Linda Dalic. ------------------------------------------ 🔗 Website & more about Linda: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/linda-dalic-stimulating-brain-reduce-seizures-neuromodulation ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #LindaDalic #LGS #DBS #Neuro _______________
	01 Jun 2023	Reassessing The Prescription of Levetiracetam/Keppra for Epilepsy - Ángel Aledo-Serrano	00:15:52
Epileptologist & neurologist Ángel Aledo-Serrano talks of his recent review and opinion on a former paper regarding the anti-seizure medication Levetiracetam/Keppra, its effectiveness in controlling seizures, but also the importance of precision medicine. This is part 1 of 2. ------------------------------------------ More about Ángel: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/angel-aledo-serrano-reassessing-the-prescription-of-levetiracetam-keppra-for-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Website: https://www.torierobinson.com
	15 Feb 2024	Epilepsy Is A Symptom! - Reetta Kälviäinen	00:14:28
“Epilepsy is not only a disease, epilepsy is a symptom of a brain disease. And brain health is everything, belongs to everybody!” Learn more of from and hear of the exciting, upcoming Kuopio Epilepsy Symposium in March 2024 - with exciting lead neurologist, researcher, and world-changer: Reeta Kälviäinen. ------------------------------------------ 🔗 Website & more about Reetta: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/reetta-kalviainen-genetic-rare-epilepsy-symptom-symposium ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #padaczka #ReettaKälviäinen
	03 Aug 2023	Idiopathic Generalised Epilepsies & People’s Needs - Brad Kamitaki	00:15:45
Award winning epileptologist Brad Kamitaki explains his research into and the needs of people affected by refractory Idiopathic Generalised Epilepsies. ------------------------------------------ 🔗 Website & more about Brad: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/brad–kamitaki-refractory-idiopathic-generalised-epilepsies ----------------------------------------- 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	23 Mar 2023	Politics & War Impacting People With Epilepsy - Samson Khachatryan	00:13:13
Learn of how politics and war impact populations affected by epilepsy in Armenia - with Samson Khachatryan. This is part 1 of 2. ------------------------------------------ More about Samson 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/samson-khachatryan-politics-war-impact-people-with-epilepsy ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Website: https://www.torierobinson.com
	06 Jun 2024	Huge Advances In EEG Monitoring & Analysis - Mark Cook	00:24:34
Mark Cook and Torie discuss the significant improvements in epilepsy treatments over the past few decades - thanks to technologies like MRI and genetics. Mark also explores the issue of overreporting and underreporting of seizures by patients and the potential of ambulatory EEG monitoring and big data analysis to provide a more accurate understanding of seizure activity which can lead to both improved treatments and improving peoples’ quality of life. ------------------------------------------ 📖 Transcript & more on Mark: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/mark-cook-huge-advances-in-eeg-monitoring-analysis ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #medtech #EEG #ambulatoryEEG
	27 Jun 2024	Our Need To Manage Stress - Neil Shah	00:19:26
Stress and anxiety levels are incredibly high amongst the population of those with an epilepsy and are commonly seizure triggers. Neil Shah of the Stress Management Society speaks of stress in today's society, the importance of recognising and addressing it, removing the guilt, shame, and stigma associated with it, and the power we have to limit it. ----------------------------------------- 🔗 Website & more about Neil: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/neil-shah-managing-stress-anxiety-with-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #stress #anxiety #sleep #neilshah
	25 Jul 2024	Cenobamate: Benefits & Risks - Ricardo Morcos	00:14:37
As well as preventing up to 100% of seizures in 20% of those with refractory focal epilepsy, Cenobamate may also (indirectly), positively impact mental health, cognitive function and reduce seizure propagation. Ricardo Morcos shares information on the titration of Cenobamate, how it is not suitable during pregnancy, and the importance of a 1:1 clinician-patient relationship. This is part 2 of 2. Please note that this is not an endorsement of any particular anti-seizure medication (Cenobamate or any of the others mentioned) and any questions or ideas from a patient or carer must be brought up with one’s neurologist/epileptologist. ------------------------------------------ Spanish consensus on the management of concomitant anti-seizure medications when using Cenobamate in adults with drug-resistant focal seizures 👇 https://www.researchgate.net/publication/379572148_Spanish_consensus_on_the_management_of_concomitant_antiseizure_medications_when_using_cenobamate_in_adults_with_drug-resistant_focal_seizures ------------------------------------------ 🔗 Website & more about Ricardo 👇 https://www.torierobinson.com/epilepsy-sparks-insights/ricardo-mocos-starting-cenobamate-cognition-pregnancy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10
	08 Jun 2023	Improving Care & Treatments For People With Epilepsy - Ángel Aledo-Serrano	00:14:31
Epileptologist & neurologist Ángel Aledo-Serrano speaks of the need to improve prescribing and avoid polypharmacy for people with an epilepsy, the need for further qualitative research into treatment and care, and ways to potentially convince clinicians that epilepsy is far more than seizures alone. This is part 2 of 2. ------------------------------------------ More about Ángel: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/angel-aledo-serrano-improving-asm-prescribing-appointments-qualitative-research-levetiracetam-keppra ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobins... - Facebook: https://www.facebook.com/TorieRobinso... - TikTok: https://www.tiktok.com/@torierobinson10 - Website: https://www.torierobinson.com
	15 Dec 2022	Results Of Epilepsy Research Using Flies! - Richard Baines #02	00:13:22
Hear of Richard Baines and his team use fruit flies in epilepsy research, the discoveries made, and the next steps for epilepsy research! Also hear more about the incredible Fly Facility at Manchester University!r University! ------------------------------------------ More about Richard: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/richard-baines-02 ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com
	17 Aug 2023	Psychosocial Impacts Of Epilepsy In Adolescents & Adults - Morten Ingvar Lossius	00:12:12
Epileptologist Morten Ingvar Lossius shares his crucial work in identifying the psychosocial challenges of individuals with an epilepsy and how best to improve their quality of life. Hear about the Beyond Seizures team at EpiCARE, Juvenile Myoclonic Epilepsy symptoms (other than seizures), and key discoveries made regarding risk. This is part 1 of 2. ------------------------------------------ 🔗 Website & more about Morten: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/morten-lossius-seizures-are-one-symptom-of-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	30 Mar 2023	How Can Sleep Disorders Impact Epilepsy? - Samson Khachatryan	00:10:06
Hear about research into the correlation between epilepsy and sleep disorders, with a focus on bruxism (teeth grinding) - with Samson Khachatryan. This is part 2 of 2. ------------------------------------------ More about Samson: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/samson-khachatryan-sleep-disorders-bruxism-tooth-grinding-epilepsy ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Website: https://www.torierobinson.com
	22 Feb 2024	AI & Epilepsy: Ethics & Biases - Daniel Goldenholz	00:17:49
How useful is and can AI be in helping people with an epilepsy? How safe it it? What are the biases to be challenged and the ethics to be followed? Hear answers from Daniel Goldenholz of Harvard Beth Israel Deaconess Medical Center. ------------------------------------------ 🔗 Website & more about Daniel: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-ai-safety-ethics-biases ----------------------------------------- Chapters 📖 00:00 Clip & intro 00:59 Meet Daniel 01:30 AI is fun and important for epilepsy 02:33 Using AI usefully and safely 05:12 Ethics and AI biased training 07:40 Tricking AI using AI tricks 08:32 Explainable AI controversy 10:40 AI intro pace in healthcare: benefiting and protecting humans 13:30 Epilepsy industry is full of data 14:02 When people don't want to wait 16:03 Not all epilepsy apps are proven to work 17:22 Thank you Daniel ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10 #epilepsy #medtech #danielgoldenholz #aibias #medicalai
	17 Apr 2024	6th Dianalund International Conference on Epilepsy - Overlapping Clinical Phenotypes in Monogenic Epilepsies; Common Molecular Pathways? - Elena Gardella, Rikke Møller, Guido Rubboli	00:08:30
Hear about the one-of-a-kind 6th Dianalund International Conference on Epilepsy in May 2024 - with lead genetic clinicians and researchers Elena Gardella, Rikke Møller, and Guido Rubboli. ------------------------------------------ 🔗 Website & more about Elena, Rikke, and Guido: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/6th-dianalund-international-conference-epilepsy-genetics-denmark-elena-gardella-rikke-moller-guido-rubboli ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #epilepsygenetics #monogenic #phenotypes #filadelfia #danishepilepsycenter #DICE
	30 May 2024	Exploring The Links Between Sleep & Epilepsy: CASTLE - Deb Pal & Paul Gringras	00:16:58
Deb Pal and Paul Gringras discuss their research on the links between sleep and seizures in epilepsy; sharing their work on the CASTLE project, which aims to improve sleep and Quality of Life for children, young people, and families affected. They discuss both their app called COSI - which provides evidence-based sleep interventions for parents, and the upcoming CASTLE conference, where they shall disseminate their research findings and discuss the importance of personalised approaches to sleep management in epilepsy. ------------------------------------------ Interested in attending the conference? 🎫 Contact us via deb.pal@kcl.ac.uk or via our X accounts @palneurolab, @TorieRobinson10, or @EpilepsySparks. ------------------------------------------ 🔗 Website & more about Deb and Paul: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/deb-pal-paul-gringras-exploring-the-links-between-sleep-epilepsy-castle ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #sleep #epilepsy #epilepsyresearch #CASTLE #COZY
	07 Mar 2024	Increasing Neuronal Excitement To Treat An Epilepsy?! - Jean-François Perrier	00:13:30
Surprising and exciting rare epilepsy (STXBP1) research discoveries that have led to the enhancement of excitatory synapses as a proposed treatment - by Jean-François Perrier of the University of Copenhagen, Denmark. ------------------------------------------ 🔗 Website & more about Jean-François: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jean-francois-perrier-STXBP1-excitatory-inhibitory-synapses ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #STXBP1 #Jean-FrançoisPerrier #genetics
	05 Jan 2023	What Is Status Epilepticus? - Stéphane Legriel #01	00:13:13
We hear from Stéphane Legriel: a Critical Care/ICU physician with a passion for helping people with experiencing status epilepticus - an ongoing, very dangerous, epileptic seizure. Stéphane tells us all about different types of status epilepticus and emergency care for people who experience it. ------------------------------------------ More about Stéphane: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/stephane-legriel-01 ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com
	02 May 2024	Pediatric Epilepsy Research Consortium - M. Scott Perry	00:13:57
M. Scott Perry explains how Epilepsy Researchers require intros and support to be the best that they can be and initiate, manage, and see results. It’s possible through the Pediatric Epilepsy Research Consortium (PERC). ------------------------------------------ 🔗 Website & more about Scott: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/m-scott-perry-pediatric-epilepsy-research/consortium ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #pediatricepilepsy #scottperry #PERC #epilepsyresearch
	08 Aug 2024	Seizures Caused By Insufficient Glucose! - Carla Marini	00:14:37
A mutation of a gene can lead to lack of absorption of glucose (our fuel) and cause epilepsy! Carla Marini, a paediatric neurologist and neuropsychiatrist tells us all about the rare epilepsy and metabolic disorder GLUT1 Deficiency Syndrome, emphasising the importance of early diagnosis, treatment using the ketogenic diet (which can help control seizures, improve cognitive function, and decrease the impacts of movement disorders). She also highlights the value of working closely with patient and family groups to understand the clinical manifestations and natural history of the disease. Carla shares an uplifting success story of a patient who has thrived with early intervention. ------------------------------------------ Papers mentioned 👇 “Glucose Transporter 1 Deficiency as a Treatable Cause of Myoclonic Astatic Epilepsy”: https://jamanetwork.com/journals/jamaneurology/fullarticle/1107863 “Early onset absence epilepsy due to mutations in the glucose transporter GLUT1”: https://www.researchgate.net/publication/26864996_Early_onset_absence_epilepsy_due_to_mutations_in_the_glucose_transporter_GLUT1 ----------------------------------------- 🔗 Website & more about Carla 👇 https://www.torierobinson.com/epilepsy-sparks-insights/carla-marini-glut1-disorder-metabolism-genetic ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10
	21 Dec 2023	A Cancer Drug That Prevents Seizures - Pablo Casillas-Espinosa	00:15:34
A compound designed to treat prostate cancer appears to be effective in treating temporal lobe epilepsy in rodents - including the cognitive and psychiatric aspects so commonly accompanying seizures! Hear more from Pablo Casillas-Espinosa! ------------------------------------------ 🔗 Website & more about Pablo: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/pablo-casillas-espinosa-sodium-selenate-temporal-lobe-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X / Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #PabloCasillasEspinosa #temporallobeepilepsy #DiseaseModifyingTherapies #Tau
	20 Jul 2023	Epilepsy On World Brain Day - Tissa Wijeratne	00:19:25
For World Brain Day, Tissa Wijeratne explains the importance of brain health and disability and how 50% or 4 Billion of us shall be affected personally by neurological disease. Tissa also speaks of how far we’ve come but how much we still need to do to improve both individuals’ lives and the lives of us as a species. ------------------------------------------ 🔗 My website & more about Tissa: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/Tissa-Wijeratne-Epilepsy-On-World-Brain-Day ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Threads: https://www.threads.net/@torierobinson10 _______________
	31 Aug 2023	Epilepsy Stigma - Eradicating It In Latin America - Gabriela Reyes Valenzuela	00:14:10
Stigma is to be challenged through education. Gabriela Reyes Valenzuela, a peadiatric epileptologist from Argentina explains her invaluable training regarding epilepsy provided to influential community leaders. ------------------------------------------ 🔗 Website & more about Gabriela: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/Gabriela-Reyes-Valenzuela-epilepsy-stigma-eradicating-latin-america ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	05 Oct 2023	Genetic Epilepsy - Lafora Disease - Challenges & Hopes - Berge Minassian	00:12:04
Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected, with Berge Minassian. ------------------------------------------ 🔗 Website & more about Berge: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/berge-minassian-lafora-disease ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	12 Sep 2024	Acute Symptomatic Seizures: Weaning Babies Off Of ASMs - Maria Gogou	00:12:59
Who knows about Acute Symptomatic Seizures and how the babies and children experiencing them can be carefully weaned off of the anti-seizure medications they are on? Paediatric neurologist and epilepsy specialist Maria Gogou from University General Hospital of Alexandroupolis, Greece, explains more. Paediatric neurologist and epilepsy specialist Maria Gogou from University General Hospital of Alexandroupolis, Greece, explains more. ----------------------------------------- 🔗 Website & more about Maria 👇 https://www.torierobinson.com/epilepsy-sparks-insights/maria-gogou-acute-symptomatic-seizures-weaning-babies-asms ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10
	08 Feb 2024	The Real Needs of Children With Epilepsy - Kirsten McHale	00:19:20
For Children's Mental Health Week meet Kirsten McHale who shares the complex needs of many children with an epilepsy, how their needs are not being met (in the UK), and how services must be improved. ------------------------------------------ 🔗 Website & more about Kirsten: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/kirsten-mchale-real-needs-children-with-epilepsy ----------------------------------------- Children's Mental Health Week: www.childrensmentalhealthweek.org.uk ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10 #epilepsy #epilepsynurse #youngepilepsy #childrensmentalhealthweek
	28 Dec 2023	Being An Epilepsy Nurse - Neil Williamson	00:13:47
Epilepsy Specialist Nurses provide a key part of the care package for people with an epilepsy. Hear of the value of flexibility and going above and beyond required, by Neil Williamson. ------------------------------------------ 🔗 Website & more about Neil: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/neil-williamson-being-an-epilepsy-nurse ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10 #epilepsy #NeilWilliamson #epilepsynurse
	20 Nov 2023	Epilepsy: The Israel-Palestine Crisis - Omar Danoun	00:12:15
Hear how the conflict in Palestine is impacting the thousands people with epilepsy in Palestine - but how support from around the world is making a difference - with our return-guest, epileptologist Omar Danoun د. عمر دنون.. ------------------------------------------ 🔗 Website & more about Omar: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/omar-danoun-epilepsy-israel-palestine-gaza-crisis ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - X/Twitter: https://twitter.com/torierobinson10
	29 Dec 2022	Challenging Racial Disparities in Epilepsy Care...plus, Brain Art! - M. Scott Perry #02	00:12:36
Scott Perry tells us about identifying and challenging racial disparities in epilepsy care, followed by a chat about brain art - an important method of communication when it comes to epilepsy, neuroscience, and more! This is part 2 of 2 with Scott. ------------------------------------------ More about Scott: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/scott-perry-02 ------------------------------------------ Book mentioned: "The Maths of Life & Death" - Kit Yates: https://www.amazon.co.uk/Maths-Life-Death-Kit-Yates/dp/1787475425 ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ Artists mentioned 🎨 Dana Simmons: https://www.dana-simmons.com John Bramblitt: https://bramblitt.com Stephanie Gowdy: Alyrical.com ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com
	23 Feb 2023	I Have Epilepsy...Will I Get Dementia? - Alice Lam (Pt 2 of 2)	00:19:30
Hear about common fears of dementia, other causes for dementia "symptoms", how to minimise dementia risk, and more! From adult neurologist & neuroscientist of MGH & Harvard Medical School, Alice Lam. This is part 2 of 2. ------------------------------------------ More about Alice: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/alice-lam-will-i-get-dementia-epilepsy-alzheimers-risk-minimisation ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com _______________
	27 Apr 2023	Slicing a Brain In Half To Treat Epilepsy - Georgia Ramantani	00:14:52
----------------------------------------- More about Georgia : 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/georgia-ramantani-slicing-brain-epilepsy-hemispherotomy-neurosurgery ----------------------------------------- Chapters 📖 00:00 Intro 01:00 Whole family included in child's healthcare 01:55 Hemispherectomy vs hemispherotomy 03:22 Candidates, results and benefits 05:16 Success measurement 06:45 Who is a candidate for a hemispherotomy? 07:18 Risks of surgery (mortality and morbidity) 10:00 Success measurement of patients after surgery 11:37 Common brain issues prior to surgery 13:15 Life with Half a Brain can be great ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com _______________
	11 Jul 2024	Epilepsy Surgery, Neuroplasticity, & Memory - Jon Kleen	00:20:14
People forget to bring up memory issues with their neurologist…because of their memory issues! Discover the potentials and limitations of neurosurgery and neuroplasticity with epileptologist Jon Kleen from UCSF medical Center. ------------------------------------------ 🔗 Website & more about Jon: 👇 https://www.torierobinson.com/epilepsy-sparks-insights/jon-kleen-epilepsy-surgery-neuroplasticity-memory-cognition ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #cognition #memory #epilepsy #jonkleen
	21 Mar 2024	Brain, Skull, And Neck Implants For Epilepsy?! - Anna Bochenek	00:15:18
Brain, Skull, And Neck Implants For Epilepsy?! What's the epilepsy treatment called VNS? Or DBS? Or RNS?! Learn about these cool neuromodulation treatments that can help to prevent and/or control epileptic seizures (!) with star epileptologist Anna Bochenek. ------------------------------------------ 🔗 Website & more about Anna: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/anna-bochenek-neuromodulation-vns-dbs-rns ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #neuromodulation #AnnaBochenek
	24 Aug 2023	How To Improve Epilepsy Appointments & Improve Quality of Life - Morten Ingvar Lossius	00:13:19
Epileptologist Morten Ingvar Lossius provides recommendations for people with an epilepsy and their clinicians when it comes to appointments, patient sex lives, easing drug side effects, precision medicine, and how crucial regular appointments are. This is part 2 of 2. ------------------------------------------ 🔗 Website & more about Morten: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/morten-lossius-improve-epilepsy-neurology-appointments-improve-quality-of-life ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	29 Aug 2024	How Worms Helped Us Understand Epilepsy! - David Henshall	00:23:24
David Henshall shares how information gathered when researching worms led to the discovery of microRNA, a far improved understanding of the epilepsies, and potential treatments - all explained in his new book (link below)! This is episode 2 of 2. ----------------------------------------- David’s book 📖 https://www.amazon.co.uk/Fine-Tuning-Life-MicroRNAs-Genomes-Regulators/dp/1009466429/ref=sr_1_1 ----------------------------------------- 🔗 Website & more about David: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/david-henshall-micro-rna-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #mrna #genetics #geneticepilepsy #DavidHenshall
	04 Jan 2024	SUDEP Caused By Lack Of Air Hunger? - Brian Dlouhy	00:14:34
Could the amygdala be responsible for lack of air hunger and SUDEP? Learn about the research from neurosurgeon and researcher Brian Dlouhy. ------------------------------------------ 🔗 Website & more about Brian: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/brian-dloughy-lack-air-hunger-sleep-apnea-amygdala-sudep ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10 #SUDEP #epilepsy #BrianDlouhy #amygdala #apnea
	12 Oct 2023	Nature: A “Treatment” For Epilepsy? - Elisabeth Doran	00:14:16
Exposure to nature: plants, water noises, and more, are proven to be of distinct benefit to human health. Epileptologist, Elisabeth Doran from St. James’s Hospital in Ireland explains the benefits of exposure to nature for those with an epilepsy. ------------------------------------------ 🔗 Website & more about Elisabeth Doran: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/elisabeth-doran-nature-treatment-for-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	18 May 2023	Injecting MicroRNA To Help Dogs & Humans with Epilepsy - David Henshall, RCSI, ROI	00:14:29
With human molecular physiologist and neuroscientist David Henshall, hear of a MicroRNA treatment for dogs with epilepsy that shall hopefully benefit them and potentially humans in the future. This is episode 1 of 2. ------------------------------------------ More about David: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/david-henshall-injecting-mirna-helping-dogs-humans-with-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com
	21 Sep 2023	Seizure Propagation: Identifying How Seizures Spread - Christina Maher	00:12:43
Learn of studies on the accurate prediction of seizure propagation and how identifying this for each person with an epilepsy can assist in more effective treatment - e.g. in presurgical workup, and more - all with biomedical engineer and neuroscientist Christina Maher from the University of Sydney. ------------------------------------------ 🔗 Website & more about Christina Maher: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/christina-maher-seizure-propagation-focal-bilateral-tonic-clonic ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10
	07 Sep 2023	Epilepsy - Part Of An Autoimmune Disorder? - Lucas Gabriel Orellana	00:19:26
Did you know that seizures and epilepsy can be part of an autoimmune disorder? E.g. Lupus, Coeliac disease, or Crohn's disease? Hear all about it from neurologist & epilepsy specialist Lucas Gabriel Orellana. ---------------------------------------- 🔗 Website & more about Lucas: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/lucas-gabriel-orellana-epilepsy-systemic-autoimmune-disorders ---------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ---------------------------------------- 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	16 May 2024	Epilepsy, Mood, Metabolism, And The Ketogenic Diet! - Graham Phillips	00:20:24
Learn of the evolution of the ketogenic diet, metabolic psychiatry, the treatment overlap between different diagnoses (e.g. the epilepsies and mood disorders), recommended reads, and the cognitive dissonance of many regarding the ketogenic diet. This is part 2 of 3 with the Pharmacist Who Gave Up Drugs: Graham Phillips. ------------------------------------------ 🔗 Website & more about Graham: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-hunger-mood-epilepsy-metabolism-ketogenic ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: torierobinson10 - LinkedIn: torierobinson - Instagram: torierobinson10 - Facebook: TorieRobinsonSpeaker - TikTok: torierobinson10 #epilepsy #keto #ketogenic #metabolichealth #weightloss _______________
	12 Feb 2024	International Epilepsy Day!! - Helen Cross	00:10:26
Hear all about International Epilepsy Day, the needs of those affected by the epilepsies, eradicating stigma, treating and preventing epilepsy, and hope for the future; all with global lead Helen Cross. ------------------------------------------ 🔗 Website & more about Helen: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/helen-cross-international-epilepsy-day ----------------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #InternationalEpilepsyDay #HelenCross #GreatOrmondStreet
	04 May 2023	The Sacrifices & Benefits Of A Hemispherotomy - Georgia Ramantani	00:14:06
More about Georgia : 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/georgia-ramantani-sacrifices-benefits-hemispherotomy-brain-surgery-neurosurgery-epilepsy ----------------------------------------- Chapters 📖 00:00 Intro 00:00 Who makes a good candidate for a hemispherotomy 02:34 Physical effects of surgery - the price for stopping seizures 05:03 Example of patient sacrifice & outcome 07:14 How the surgery works 08:17 Why aren’t there still seizures in one half of the brain?! 11:14 Research into patient outcomes ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com
	17 Jul 2024	World Brain Day 2024: Brain Health & Prevention - Tissa Wijeratne	00:15:03
For the 11th World Brain Day, hear from co-chair and lead neurologist Tissa Wijeratne, who explains how so many of the brain disorders in nearly 4 billion people can be prevented, and how you can help this happen! Links to the free World Brain Day webinar, and more, are below. ------------------------------------------ 🎧 Listen to ESI on Spotify!👇 https://open.spotify.com/show/14rwL06qUowezZQGwpR7GW?si=dE4AEAsrQhqbeDc8dKM-dQ Also on Apple Podcasts or anywhere else you listen! ----------------------------------------- World Brain Day 👇 https://wfneurology.org/activities/news-events/wfn-news/2024-05-07-wfn-wbd World Brain Day webinar 👇 https://us02web.zoom.us/webinar/register/WN_ayYclSOLRSKwriPFg7S5bg#/registration World Brain Day content toolkit 👇 https://drive.google.com/drive/folders/1TD_CyerWAa_x65614G6UmWJ8WUBocGNz World Health Organization Intersectoral Global Action Plan 👇 https://www.who.int/publications/i/item/9789240096356 ----------------------------------------- 🔗 Website & more about Tissa 👇 https://www.torierobinson.com/epilepsy-sparks-insights/tissa-wijeratne-world-brain-day-2024 ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #WorldBrainDay #WBD2024 #BrainHealthandPrevention #TissaWijeratne
	19 Oct 2023	Saving Lives: SUDEP Action Day - Sammy Ashby	00:19:45
Learn about SUDEP (Sudden Unexpected Death in Epilepsy), SUDEP Action Day (18th Oct 2023), minimising risks, and saving lives! With Sammy Ashby of SUDEP Action. ------------------------------------------ 🔗 Website & more about Sammy Ashby: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/sammy-ashby-saving-lives-sudep-action-day ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	12 Jan 2023	ICTALGroup: Improving Status Epilepticus Outcomes - Stéphane Legriel #02	00:14:34
Stéphane Legriel tells us about the ICTALGroup - an organisation formed of neurologists around France who share knowledge to improve the care of people experiencing status epilepticus. ------------------------------------------ More about Stéphane: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/stephane-legriel-02 ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com
	08 Dec 2022	Using Flies To Research Epilepsy! - Richard Baines #01	00:13:51
Hear of HOW Richard Baines and his team use fruit flies in epilepsy research, the discoveries made, and the next steps for epilepsy research! Also hear more about the incredible Fly Facility at Manchester University! ------------------------------------------ More about Richard: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/richard-baines-01 ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com
	15 Jun 2023	What Makes A Good Appointment With An Epileptologist? - Álvaro Beltrán Corbellini	00:13:22
Epileptologist Álvaro Beltrán Corbellini speaks of what he believes can help to make a good appointment and relationship between a clinician and patient, how epilepsy is “many diseases under one word”, sleep, and his new podcast "EpilepsyUpdate"! ------------------------------------------ More about Álvaro: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/alvaro-beltra-corbellini-what-makes-good-appointment-with-an-epileptologist ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 Check out my website: 🔗 https://www.torierobinson.com ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	13 Jul 2023	Epilepsy Hotel - Installing the Sprinklers To Treat The Short Circuit - Yichen Qiu	00:13:32
Neuroscientist Yichen Qiu of UCL shares with us her exciting research results regarding gene therapy for refractory temporal lobe epilepsy! ----------------------------------------- 🔗 Website & more about Yichen: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/yichen-qiu-epilepsy-hotel-installing-sprinklers-treat-short-circuit ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	16 Mar 2023	Children’s Epilepsy Camps?! - Maša Malenica	00:16:17
Peadiatric epileptologist Maša Malenica speaks of her incredible (& replicable!) epilepsy project that empowers patients, families, clinicians, & schools. ------------------------------------------ More about Maša: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/masa-malenica-educating-patients-clinicians ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Website: https://www.torierobinson.com ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com #MašaMalenica #epilepsyeducation #purpleday #croatia
	11 May 2023	The Idea of Epilepsy - Simon Shorvon, UCL, UK	00:09:27
Hear how societal, cultural, and medical attitudes and approaches to the epilepsies have evolved over the past 160 years, significant changes in research, diagnoses, and treatment methods, and how we need to remember to learn from the past! All from neurologist, emeritus prof. and writer, Simon Shorvon. ------------------------------------------ Simon's book 📖 amazon.co.uk/Idea-Epilepsy-Medical-History-1860-2020/dp/1108842615 ------------------------------------------ More about Simon: 👇🏻 torierobinson.com/epilepsy-sparks-insights/simon-shorvon-the-idea-of-epilepsy ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 📲 Join me on social media! - Twitter: twitter.com/torierobinson10 - LinkedIn: linkedin.com/torierobinson - Instagram: instagram.com/torierobinson10 - Facebook: facebook.com/TorieRobinsonSpeaker - Website: torierobinson.com
	06 Jul 2023	Epilepsy Stigma in Cuban-American & Latino Communities - Joe Sirven	00:09:18
Challenging epilepsy stigma in Cuban-American & Latino communities - with epilepsy specialist neurologist & podcast host Joseph Sirven of Mayo Clinic, Florida. This is part 2 of 2. ------------------------------------------ More about Joe: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/joe-sirven-epilepsy-stigma-cuban-american-latino-communities-usa ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Check out my website: 🔗 https://www.torierobinson.com ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	09 May 2024	The Ketogenic Diet - Graham Phillips	00:21:37
The Pharmacist Who Gave Up Drugs introduces us to the impacts of the western diet on our health, quality of life, life expectancy - and the potential benefits of the ketogenic diet - in part 1 of 3: Graham Phillips. ------------------------------------------ 🔗 Website & more about Graham: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-ketogenic-diet-pharmacist-part1 ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #keto #ketogenic
	09 Mar 2023	What are Infantile Epilepsy Syndromes? - Stéphane Auvin	00:12:38
What Infantile Epilepsy Syndromes are, potential disease-modifying treatments, steroids, and research - all fabulously explained by epileptologist & neuroscientist Stéphane Auvin! ------------------------------------------ More about Stéphane: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/stephane-auvin-what-are-infantile-epilepsy-syndromes ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com
	23 May 2024	Epilepsy: Managing Your Metabolism To Stabilise Your Brain - Graham Phillips	00:17:04
What should someone do if interested in adopting the ketogenic diet or looking further into "metabolic psychiatry"? Hear about sacrifices, benefits, weight loss, constipation, nutrition, and having the right support. All in part 3 of 3 with the “pharmacist who gave up drugs”, Graham Phillips. ------------------------------------------ 🔗 Website & more about Graham: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-epilepsy-changing-metabolism-stabilise-brain-ketogenic ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: torierobinson10 - LinkedIn: torierobinson - Instagram: torierobinson10 - Facebook: TorieRobinsonSpeaker - TikTok: @torierobinson10 #epilepsy #keto #ketogenic #metabolichealth #weightloss
	01 Aug 2024	The Importance of Genetic Testing For Epilepsies - Nazanin Azarinejad Mohammadi	00:15:44
Neuroscientist Nazanin Azarinejad Mohammadi discusses her research on epilepsy genetics, the clinical and functional characterisation of GABAA-receptor related disorders, and how mutations in the GABAA-receptor subunits can lead to epilepsy and morbidities. Nazanin also highlights the variability in symptoms among individuals with the same mutation and the need for further research to understand the factors that contribute to this variability. Plus, emphasised is the importance of genetic testing and personalised treatment for patients with these mutations. ----------------------------------------- Paper: “Clinical and functional characterization of GABAA-receptor related disorders: translating genetic diagnostics into personalized treatment” 👇 https://portal.findresearcher.sdu.dk/en/publications/clinical-and-functional-characterization-of-gabaa-receptor-relate ----------------------------------------- 🔗 Website & more about Nazanin 👇 https://www.torierobinson.com/epilepsy-sparks-insights/nazanin-azarinejad-mohammadi-genetic-testing-personalised-treatment-GABA-receptors ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇 https://www.epilepsysparks.com/glossary ----------------------------------------- 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10
	14 Sep 2023	Focal Epilepsy Onset Later In Life - With Origins In Childhood - Jacob Pellinen	00:13:43
Signs of focal epilepsy before the seizures start: hear all about it from epileptologist Jacob Pellinen, who shares with us his research and results proving that people can experience things like depression or learning difficulties at school or work before seizure onset. ------------------------------------------ 🔗 Website & more about Jacob: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jacob-pellinen-focal-epilepsy-onset-later-in-life-origins-childhood ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Twitter: https://twitter.com/torierobinson10 - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10
	27 Jul 2023	Cancer Drugs Used For Epilepsy?! - Madeleine Oudin	00:15:36
Hear of the similarities between neuronal cells in epilepsy and metastatic breast cancer, plus the potential repurposing of drugs. From lead PI, scientist Madeleine Oudin, inspired by daughter Margo (who has the rare genetic epilepsy SCN8A). ------------------------------------------ 🔗 Website & more about Madeleine: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/madeleine-oudin-drug-repurposing-cancer-epilepsy-genetics ----------------------------------------- Chapters 📖 00:00 Intro 01:16 Identifying the similarities between cancer & neuronal cells 04:07 Same ion channels anomalies in both epilepsies and cancer subtype 04:48 Epilepsy drugs to treat breast cancer?! 05:37 Cancer drugs to treat seizures?! 06:54 “New” epilepsy medications available through drug repurposing? 08:00 New grant studying the neuronal identity of tumours 09:12 Tools used in both epilepsy and cancer research 10:14 New SCN8A epilepsy research 12:18 Epilepsy research results to be used in cancer treatment?! 13:08 Current research & treatment development stage 14:08 Don’t be afraid of neuroscience and drug development! 14:37 Learn more ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Threads: https://www.threads.net/@torierobinson10 #MadeleineOudin #epilepsy #SCN8A #breastcancerresearch #neurosciences
	09 Feb 2023	Improving The Sex Life of Someone With An Epilepsy - Oliver Henning	00:13:56
Oliver and Torie speak of ways to speak about and improve the sex lives of people with an epilepsy (should they need it) - from both the clinician and patient perspectives. ------------------------------------------ More about Oliver: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/oliver-henning-sex-epilepsy-02 ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com
	14 Mar 2024	Epilepsy Caused by Brain Tumours - Kate Connor	00:14:24
Brain tumours vary greatly and 30% of them cause an epilepsy to develop - hence the name Brain Tumour Related Epilepsy. Hear more for Brain Tumour Awareness Month from cancer neuroscientist: Kate Connor. ------------------------------------------ 🔗 Website & more about Kate: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/kate-connor-epilepsy-brain-tumours-awareness-month ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10 #epilepsy #braintumour #braintumor #braintumourrelatedepilepsy #KateConnor
	20 Apr 2023	Preventing Unprovoked Seizures After A Stroke - Eugen Trinka	00:15:51
Learn about epileptogenisis and a study into seizure onset prevention among stroke patients, with Eugen Trinka. ------------------------------------------ More about Eugen: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/eugen-trinka-epileptogenesis-stroke-seizure-onset-prevention-epilepsy ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobins... - Facebook: https://www.facebook.com/TorieRobinso... - TikTok: https://www.tiktok.com/@torierobinson10 - Website: https://www.torierobinson.com
	09 Nov 2023	Epilepsy Awareness Month - Be Involved! - Meriem Bensalem-Owen	00:13:13
Raising awareness of epilepsy amongst everyone for Epilepsy Awareness Month - through events and just chatting! With epileptologist Meriem Bensalem-Owen. ------------------------------------------ 🔗 Website & more about Meriem: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/meriem-bensalem-owen-epilepsy-awareness-month-being-involved ----------------------------------------- Chapters 📖 00:00 Meet Meriem 02:27 Why focus on the epilepsies? 03:54 Promoting epilepsy awareness through bourbon! 05:51 Activities for Epilepsy Awareness Month - inc the Mayor of Lexington! 08:37 Help raise awareness during Epilepsy Awareness Month - through the gym… 10:09 Educating researchers and scientists about epilepsy! 12:17 Reassuring people with a new diagnosis of epilepsy 13:24 Telling PWE that heaps of people behind the scene are working for them 15:01 Thank you ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	01 Feb 2024	Why Aren’t More People Having Epilepsy Surgery? - Luke Tomycz	00:16:39
Why are only a small percentage who’d benefit from epilepsy surgery getting it? Hear from neurosurgeon Luke Tomycz of the Epilepsy Institute of New Jersey. ------------------------------------------ 🔗 Website, transcription, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-why-arent-more-people-having-epilepsy-surgery ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10 #epilepsy #LukeTomycz #epilepsysurgery #neurosurgery
	26 Jan 2023	Managing Transition from Paediatric to Adult Care - Abril Marone	00:14:20
Adult neurologist Abril Marone speaks of her sensitivity in managing the patient experience from paediatric to adult care, plus speaks of how important it is for patients to be able to speak about sensitive, personal concerns; such as sexuality. ------------------------------------------ More about Abril: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/abril-marone-patient-transition-paediatric-adult-care-sexuality ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com _______________
	15 Aug 2024	Fighting Epilepsy Stigma in Kenya - Eddie Chengo	00:25:50
Epileptologist Eddie Chengo from Kenya discusses the stigma faced by people affected by epilepsy in Africa, explaining that around 75% of people with epilepsy in the region experience stigma and emphasising the importance of addressing this whilst implementing medical treatment. Eddie also shares the various initiatives and research projects his organisation is undertaking to raise awareness and challenge the stigma associated with epilepsy. ------------------------------------------ 🔗 Eddie's papers 👇 https://www.researchgate.net/scientific-contributions/Eddie-Chengo-44151310 ----------------------------------------- 🔗 Website & more about Eddie 👇 https://www.torierobinson.com/epilepsy-sparks-insights/eddie-chengo-epilepsy-stigma-kenya ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #neurology #stigma #discrimination
	25 May 2023	Helping Dogs & Humans with Epilepsy 2 - Rodrigo Gutierrez-Quintana, Glasgow Uni, UK	00:16:17
With veterinary neurologist Rodrigo Gutierrez-Quintana, hear of his research study into helping treat dogs and humans (hopefully!) with refractory epilepsy! This is episode no. 2 of 2. ------------------------------------------ More about Rodrigo: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/rodrigo-gutierrez-quintana-helping-dogs-humans-with-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com _______________
	26 Mar 2024	Purple Day Openness! - Cassidy Megan	00:29:12
Hear about the origins of Purple Day, its purpose, the positivity and how to make a difference! With founder: Cassidy Megan!! We talk about how Purple Day was founded, Cassidy's personal epilepsy diagnosis, school, stigma, the diversities of the epilepsies, SUDEP, varying cultural experiences, media portrayals, credible sources of information, and brilliant clinicians! ------------------------------------------ 🔗 Website & more about Cassidy: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/cassidy-megan-purple-day-openness ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10 #purpleday #epilepsy #cassidymegan
	18 Apr 2024	Mistaking Epilepsy For Menopause?! - Jacqueline French	00:10:26
It's wild: when clinicians mistake an epilepsy (caused by a brain tumour!) for menopause! Or, when a parent doesn't believe that their daughter could have an epilepsy...! Why aren't organisations and governments promoting epilepsy awareness as well as they do stroke and MS?! Tune in to hear all about it from leading epilepsy specialist: Jacqueline French. ------------------------------------------ 🔗 Website & more about Jacqueline: 👇🏻 jacqueline-french-epilepsy-menopause ----------------------------------------- 🔗 Kin - that Irish TV series: 👇🏻 IMDB ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: torierobinson10 - LinkedIn: torierobinson - Instagram: torierobinson10 - Facebook: TorieRobinsonSpeaker - TikTok: torierobinson10 #epilepsy #epilepsyresearch #JacquelineFrench #humanepilepsyproject #EpilepsyStudyConsortium
	18 Jan 2024	The Safety & Efficacy Of Epilepsy Surgery - Luke Tomycz	00:12:59
Learn about epilepsy surgery and potential benefits and risks - from epilepsy neurosurgeon of the Epilepsy Institute of New Jersey: Luke Tomycz. ------------------------------------------ 🔗 Website, transcription, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-safety-efficacy-epilepsy-surgery ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10 #epilepsy #LukeTomycz #epilepsysurgery #neurosurgery
	19 Jan 2023	Using Frog Eggs To Research Epilepsy?! - Valentina Galassi Deforie	00:11:43
Valentina Galassi Deforie, a final year Ph.D. student of the UCL Neurogenetics Lab, speaks of using frog eggs to research the epilepsies and some new mutations discovered - e.g. those of the KCNA6 and NARS1 genes! ------------------------------------------ More about Valentina: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/valentina-galassi-deforie-frog-eggs-research-epilepsy-KCNA6-NARS1 ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com
	25 Apr 2024	Preventing Seizures Using Stem Cells?! - David Spencer	00:14:05
Hear about research into a new way of inhibiting temporal lobe seizure activity through GABAergic interneuron cell therapy! With epileptologist and neuroscientist David Spencer. ------------------------------------------ 🔗 Website & more about David: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/david-spencer-preventing-seizures-using-stem-cells ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #DavidSpencer #stemcell #interneuron #GABA
	05 Sep 2024	Staying On A Medication That “Doesn't Work”?! - Maria Gogou	00:14:41
Children may benefit from being weaned off of anti-seizure medications when they are on the ketogenic diet. Plus, find out how the ketogenic diet can significantly benefit children with epilepsy - even when it doesn’t control their seizures! Paediatric neurologist Maria Gogou discusses her work in managing rare and complex epilepsies in children. ----------------------------------------- 🔗 Paper: “Antiseizure medication reduction and withdrawal in children with drug-resistant epilepsy after starting the ketogenic diet” 👇 https://onlinelibrary.wiley.com/doi/full/10.1111/dmcn.15377 ----------------------------------------- 🔗 Website, transcription, & more about Maria 👇 https://www.torierobinson.com/epilepsy-sparks-insights/maria-gogou-staying-on-a-keto-diet-that-doesnt-work-dravet ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10
	22 Aug 2024	Fighting Epilepsy With MicroRNAs?! - David Henshall	00:18:33
David Henshall discusses the role and importance the role of microRNAs in epilepsy; which act as master regulators of gene activity and help stabilise the gene pathway. He discusses the potential of RNA therapy in treating epilepsy and the challenges of delivering RNA molecules to the brain. Henshall's book, 'Fine Tuning Life: A Guide to MicroRNAs, Your Genome's Master Regulators,' explores the fascinating world of microRNAs and their impact on gene regulation. ----------------------------------------- David’s book 📖 https://www.amazon.co.uk/Fine-Tuning-Life-MicroRNAs-Genomes-Regulators/dp/1009466429/ref=sr_1_1 ----------------------------------------- 🔗 Website & more about David: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/david-henshall-fighting-epilepsy-with-micrornas ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #mrna #genetics #geneticepilepsy #DavidHenshall
	13 Apr 2023	Epileptic Seizures Mimicking Anxiety - Vaughan Bell, UCL	00:09:56
Epileptic seizures can look or sound like a mental illness such as anxiety - learn from clinical neuropsychologist and academic Vaughan Bell of UCL, UK, who explains why we need to improve the understanding of the epilepsies among psychologists in general. This is part 2 of 2. ------------------------------------------ More about Vaughan: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/vaughan-bell-epileptic-seizures-mimicking-psychological-illnesses ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Website: https://www.torierobinson.com _______________
	16 Feb 2023	What’s The Link Between Epilepsy & Dementia? - Alice Lam (Pt 1 of 2)	00:13:05
Alice Lam: Lam Lab, Massachusetts General Hospital & Harvard Medical School, US Alice explains the bidirectional relationship between epilepsy and Alzheimer’s Disease. This is part 1 of 2. ------------------------------------------ More about Alice: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/alice-lam-epilepsy-dementia-epileptiform-activity-alzheimers-disease ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com _______________
	26 Oct 2023	Biochemistry In Epilepsy Research - Lafora Disease - Matt Gentry	00:13:25
Biochemist Matt Gentry shares with us his extensive research into the ultra-rare epilepsy Lafora Disease, his motivation from working with families, the brilliant work of the Lafora Disease charity Chelsea’s Hope, and support from both the NIH and the Chan Zuckerberg Initiative. ------------------------------------------ 🔗 Website & more about Matthew Gentry: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/matthew-gentry-biochemistry-epilepsy-research-lafora-disease ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	22 Jun 2023	Sleep Disorders: Common With An Epilepsy - Francesca Furia	00:15:18
Francesca Furia from the Filadelfia Epilepsy Hospital in Denmark, speaks of her research into sleep disorders amongst people with and families affected by the epilepsies and how to improve sleep quality. ------------------------------------------ More about Francesca: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/francesca-furia-sleep-disorders-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Check out my website: 🔗 https://www.torierobinson.com ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10
	25 Jan 2024	How Do You Measure Epilepsy Surgery Success? Engel Class? - Luke Tomycz	00:14:24
Hear about ways of measuring epilepsy surgery success, risks, and managing expectations. With neurosurgeon Luke Tomycz. ----------------------------------------- 🔗 Website, transcript, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-epilepsy-surgery-success-measurement-engel-class ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10 #epilepsy #LukeTomycz #epilepsysurgery #neurosurgery 5v102IYOXYSvK83CKKU2
	23 Nov 2023	Epilepsy Via Somatic Gene Mutations - Karl Martin Klein	00:15:17
Hear how somatic gene mutations can lead to an epilepsy and how this is being researched by lead clinician scientist of the University of Calgary: Karl Martin Klein. ----------------------------------------- 🔗 Website & more about Karl Martin: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/karl-martin-klein-epilepsy-via-somatic-gene-mutations ---------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - X/Twitter: https://twitter.com/torierobinson10
	02 Feb 2023	Sex and Epilepsy - Oliver Henning	00:13:15
In anticipation of Valentine's Day(!), epileptologist & psychiatrist Oliver Henning speaks about the common sexual challenges amongst some people with an epilepsy. Last time we checked, the majority of people with epilepsy were, on paper, sexual creatures, but, indeed, many can struggle with their sex lives - at times - a little more than those without epilepsy. Learn more through an open chat with Oliver. This is part 1 of 2. ------------------------------------------ More about Oliver: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/oliver-henning-sex-epilepsy-01 ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com
	22 Dec 2022	Measuring Effectiveness of Epilepsy Surgery in Children - M. Scott Perry #01	00:12:32
Scott Perry - Head of neurosciences and pediatric epileptologist at Cook Children’s hospital tells us all about genetic testing re the epilepsies, PERC: the Pediatric Epilepsy Research Consortium, and measuring the effectiveness of epilepsy surgeries in children. This is part 1 of 2 with Scott. ------------------------------------------ More about Scott: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/scott-perry-01 ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com
	29 Feb 2024	Seizure Forecasting Using AI - Daniel Goldenholz	00:12:34
Could we accurately predict epileptic seizures using AI? How accurate do predictions need to be? How cool to use do devices need to be?! Could seizure forecasting reduce injuries, decrease mortality, and improve people’s quality of life? Hear all about it from neurologist: Daniel Goldenholz. ------------------------------------------ 🔗 Website & more about Daniel: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-seizure-forecasting-artificial-intelligence ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10 #epilepsy #medtech #danielgoldenholz
	11 Apr 2024	Car Accidents Caused By Epilepsy! The Human Epilepsy Project - Jacqueline French	00:14:28
5% of a cohort* had at least 1 car accident (and up to 3) before their epilepsy diagnosis! Hear about the global Human Epilepsy Project by Jacqueline French and learn how seizures can present in so many different ways! *450 people ------------------------------------------ 🔗 Website & more about Jacqueline: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jacqueline-french-human-epilepsy-project ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #epilepsyresearch #JacquelineFrench #humanepilepsyproject #EpilepsyStudyConsortium
	11 Jan 2024	Brain Tumour-Related Epilepsy - Mark Cunningham	00:15:49
Brain tumours commonly cause epilepsy. Learn more about research into this and Brain Tumour-Related Epilepsy, today with Mark Cunningham of Trinity College Dublin. ------------------------------------------ 🔗 Website & more about Mark: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/mark-cunningham-brain-tumours-tumors-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10 #epilepsy #BrainTumours #BrainTumors #MarkCunningham #RCSI
	20 Jun 2024	Neurologists Recognising & Addressing Symptoms Other Than Seizures - Claude Steriade	00:14:48
Learn of when an Autoimmune-Associated Epilepsy can onset, potential causes, and the needs of people affected - other than seizure control! All in part 2 of 2 with epileptologist Claude Steriade from⁠ NYU Langone Health Epilepsy Center. ------------------------------------------ 🔗 Website & more about Claude: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/claude-steriade-other-symptoms-of-autoimmune-associated-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #autoimmune #autoimmuneepilepsy #neurology #immunology
	14 Dec 2023	Seizure Forecasting Using Machine Learning & AI - Ben Brinkmann	00:09:45
Hear about developments in seizure forecasting (using AI & machine learning), the benefits to people with epilepsy, trust, and managing expectations. With Clinical Support Scientist at the Mayo Clinic: Ben Brinkmann. ------------------------------------------ 🔗 Transcription & more about Ben: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ben-brinkmann-machine-learning-ai-forecast-prevent-seizures ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10 #epilepsy #BenBrinkmann #seizureforecasting
	30 Nov 2023	What Are MEG Brain Scans? - Stefan Rampp	00:15:22
Magnetoencephalographies - or MEGs - are brain scans with a very high sensitivity and are a distinct complement to EEG and MRI scans in preparation for epilepsy surgery. Hear all about them now from the expert in biosignal analysis: Stefan Rampp. ------------------------------------------ 🔗 Website & more about Stefan: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/stefan-rampp-MRI-magnetoencephalography-benefits-epilepsy-neurosurgery ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10
	07 Dec 2023	The Latest Ways To Scan Your Brain! - Ben Brinkmann	00:11:58
Exciting neuroimaging techniques are getting out there to help more and more people become seizure-free. Hear more about the latest from clinical support scientist Ben Brinkmann. ------------------------------------------ 🔗 Website & more about Ben: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ben-brinkmann-latest-ways-scan-brain-mri-eeg-mag-magnetoencephalography-7tesla-mri ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - X: https://twitter.com/torierobinson10 - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #BenBrinkmann #MEG #EEG #MRI
	02 Mar 2023	How Do We Make Medicines Taken In Pregnancy, Safe? - Rebecca Bromley	00:14:28
Peadiatric neuropsychiatrist & researcher Rebecca Bromley talks about the needs of families regarding positive research and international collaborations in regards to epilepsy medicine safety, aka pharmacovigilance. ------------------------------------------ More about Rebecca: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/rebecca-bromley-pharmacovigilance-sodium-valproate ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com
	02 Nov 2023	Epilepsy - Fundraising for Care - Romania - Eugenia Roza	00:11:42
Learn how funds are generated for the care of children with an epilepsy, fun times, and how it’s crucial to work with the whole family - with peadiatric neurologist and secretary of ILAE YES, Eugenia Roza, Romania. ------------------------------------------ 🔗 Website & more about Eugenia: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/eugenia-roza-epilepsy-fundraising-for-care-romania ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 - Twitter: https://twitter.com/torierobinson10 #epilepsy #EugeniaRoza #Seizures #peadiatricepilepsy

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