Bowel Moments (Alicia Barron and Robin Kingham)
Explorez tous les épisodes de Bowel Moments
| Date | Titre | Durée | |
|---|---|---|---|
| 06 Apr 2022 | Meet Dr. Lukasz Kwapisz! Episode 11 | 00:57:07 | |
In this episode you meet Dr. Lukasz Kwapisz! Dr. Kwapisz is an Assistant Professor and IBD Specialist at the Inflammatory Bowel Disease Center at Baylor College of Medicine in Houston, TX. We discuss how he chose to specialize in IBD and his passion for treating our community, his special interest in pouch disorders, tests that your doctor orders and why, the importance of early interventions, his clinical trials experience versus real life treatment, how close we're getting to personalized medicine, and tequila. And how he's a regular medical commentator on Canadian TV!
Let's get social!! | |||
| 13 Apr 2022 | Meet Caroline P.! - Episode 12 | 00:47:20 | |
This week we talk to Caroline Perry on being diagnosed with Crohn's disease very young, growing up with IBD, and what is was like to have a sibling with IBD as well as one without IBD. We also talk about establishing boundaries when we you have IBD and also work in IBD research, how important it is to find people who really "get it", creative outlets for expressing feelings, and the importance of therapy (again- always). We share some laughs, some stories about bathroom emergencies, some sparkling water, and sadly Alicia drinks wine alone.
Let's get social!! | |||
| 20 Apr 2022 | Meet Hannah C.! Episode 13 | 00:54:56 | |
This week we talk to Hannah Cramer! We talked a lot about surgeries, waking up with an unexpected ostomy, how the world could be more accessible for people living with ostomies, her challenging career and how her IBD influenced her career choice, and trauma and IBD. You won't want to miss this great conversation. We're convinced she's going to change the world. Let's get social!! | |||
| 27 Apr 2022 | Meet Josie M!- Episode 14 | 00:51:20 | |
This week we share a tequila cocktail with Josie McGarva! We talk about her Crohn's disease and her struggle with fistulas and abscesses. We also spend quite a bit of time talking about mental health and IBD and Josie's graduate work in health psychology. She's making great strides researching Post Traumatic Stress and IBD and health disparities and IBD. Very cool stuff and we're really excited. We also talked about how opening up about her disease and how getting an ostomy empowered her, gave her more freedom, and helped her connect with others. You won't want to miss this episode! Follow Josie on Instagram! @it_takesguts Let's get social!! | |||
| 04 May 2022 | Meet Dr. Sunanda Kane!- Episode 15 | 00:42:50 | |
In this episode you'll meet Dr. Sunanda V. Kane! Dr. Kane is a professor of medicine at the Mayo Clinic in Rochester, Minnesota; physician chair of the Mayo Clinic Quality Academy’s Fellow Subcommittee; and assistant chair of patient experience in the Gastroenterology and Hepatology Division of the Mayo Clinic. She has a special and passionate interest in women and IBD and so we spend a lot of time talking about fertility, hormones, pregnancy, and sexuality. We also talk about her upcoming book for patients on living well with IBD, being one of few female GIs, the PIANO study on pregnant women on IBD biologics, and a brief foray into why cilantro and ginger taste weird to some people.
Let's get social!! | |||
| 18 May 2022 | Meet Kim K.! Episode 17 | 00:52:10 | |
Meet Kim K! Alicia had to miss this recording so you'll hear an intimate conversation between long time friends Robin and Kim. Kim was diagnosed with Crohn's disease when she was very, very young and before there were really any treatments for kids. They spend a lot of time talking about raising kids while having IBD and how that may have helped their kids become more empathetic and understanding. They also talk about how IBD has impacted their relationships and how they cope with symptoms like brain fog and fatigue. And Kim and Robin have some great advice to share on living life to the fullest. Let's get social!! | |||
| 11 May 2022 | Research Roundup #1 with Dr. Anish Patel and Dr. Ashish S. Patel | 01:08:56 | |
This week we're joined by a couple of our past guests- Dr. Anish Patel and Dr. Ashish S. Patel- to discuss what's new in IBD research and what's coming down the pipeline! We had a great discussion about biosimilars, predicting colectomy risk in kids diagnosed with ulcerative colitis, using ultrasounds to help track disease progression, precision medicine, and new therapeutics. We learned a lot, gained a lot of hope for better patient quality of life, bemoaned the healthcare system, had a lot of laughs, and realized that Anish might be trying to take our jobs as the host of Bowel Moments. Clinical and Host Biological Factors Predict Colectomy Risk in Children Newly Diagnosed with Ulcerative Colitis Let's get social!! | |||
| 25 May 2022 | Meet Dr. Smita M.- Pelvic Floor Physical Therapist! - Episode 18 | 00:56:28 | |
This week we talk to Dr. Smita Mehta, PT, DPT, PRPC! Dr. Mehta is a pelvic floor physical therapist and part of a multidisciplinary team for IBD at Brooke Army Medical Center in San Antonio, TX. She clarified what pelvic floor PT is, how it can help people living with IBD, how to find your pelvic floor, and so much more. This conversation was absolutely fascinating and a revelation for both of us. And Dr. Mehta is so passionate about her work! In addition to her impressive resume on pelvic floor rehabilitation, she also has certificates in Post Partum Corrective Exercise and Pelvic Oncology Rehabilitation and completed her Ashtanga Yoga Teacher's training.
Let's get social!! | |||
| 01 Jun 2022 | Meet Registered Dietitian Brittany! | 00:48:28 | |
This week we talk to Brittany Rogers (formerly Roman-Green)! Brittany is an IBD-focused registered dietitian nutritionist, certified personal trainer, and behavior change specialist. She's the the co-leader of the diet and nutrition national scientific advisory committee for the Crohn's & Colitis Foundation, the national leader of the Registered Dietitians in IBD practice group for the Academy of Nutrition and Dietetics, and the founder of Romanwell. She also happens to live with ulcerative colitis! Brittany is a non-diet dietitian and believes in a health at every size (HAES) approach. She's passionate about her work and helping her patients live well. We sincerely enjoyed our conversation about intuitive eating, IBD and food myths, and where research on diets and IBD are taking us.
Let's get social!! | |||
| 08 Jun 2022 | Meet Robin's Daughters- Logan & Baylee! | 00:45:26 | |
This week we had extra special guests- we welcomed Robin's daughters- Logan and Baylee! We discussed what is was like to grown up with a mom with IBD, how that may or may not have shaped their career choices, how Robin's parenting and their close relationship has shaped the way they live their lives, and we also share some fun childhood memories. This was a fun and heartwarming episode to record- we hope you enjoy!
Let's get social!! | |||
| 15 Jun 2022 | Meet Dr. Tiffany Taft! | 00:58:16 | |
This week we talked to Dr. Tiffany Taft! Dr. Taft founded Oak Park Behavioral Medicine in 2012 and serves in an administrative leadership role. She completed her doctoral degree at the Chicago School of Professional Psychology and predoctoral internship at the Jesse Brown VA Medical Center. Dr. Taft helped launch the first integrated behavioral medicine service in gastroenterology in the United States at Northwestern University Feinberg School of Medicine, where she worked from 2009 to 2023. She is an internationally recognized expert in the psychosocial effects of chronic digestive diseases. Now as a “retired” Associate Professor, Dr. Taft has brought together an excellent team of clinicians dedicated to expanding access to specialty GI psychology services for patients in Illinois communities and across the United States.
Let's get social!! | |||
| 22 Jun 2022 | Meet Nicole Williams, LPC! | 00:57:44 | |
This week we talk to Nicole Williams- Licensed Professional Counselor! Nicole has more than 20 years of experience in providing therapy services and specializes in working with people living with chronic illness. We talk to her about the grief and loss wheel she developed to help her patients understand the emotions that can go along with being diagnosed and living with a chronic illness, we talk about self-advocacy and being the captain of your healthcare team, we talk about resources you can use if you're living with a chronic illness, and we talk about living well and fully with IBD. Let's get social!! | |||
| 29 Jun 2022 | Meet Dr. Tim Ritter! | 00:47:16 | |
This week we talk to Dr. Tim Ritter- Senior Medical Director and lead for Clinical Trials at the GI Alliance. Dr. Ritter has been treating patients with IBD for more than 30 years and has a special interest in clinical trials. We talk to him about what's happening in the IBD research space, talking to patients about clinical trials, what patients can expect from participating in a trial, and bourbon.
Let's get social!! | |||
| 06 Jul 2022 | Meet Eitan! | 00:44:42 | |
This week's episode was SO FUN! Robin and I got to record in the same room after not getting to meet up for more that 2.5 years! AND we had the joy of talking with Eitan Kling-Levine! Eitan is a young professional living with NYC and working in healthcare marketing. After growing up in the theater, he attended NYU for acting, and during senior year, got diagnosed with ulcerative colitis. This began a long road of intense sickness and treatment. After a year of complications and trying various therapies, he ultimately decided on having a three-part surgery. Following the year-long recovery, he was able to move back to NYC, and thankfully has been able to live life to the fullest ever since. Most recently, he got engaged, and is excited to marry his life partner in July 2023. We talked about living and dating in NYC (and how hard it may be to find a bathroom!), we talked about his surgery experience, the French healthcare system, his foray into legislative and personal advocacy, his career moves, talking about sexuality with your GI, and our mutual love of Sauvignon Blanc. Let's get social!! | |||
| 13 Jul 2022 | Meet Stacey C- The Deuce! | 00:53:30 | |
This week we talk to Stacey Calabro who has decided that makes her "Stacey C- The Deuce." Stacey has been living with IBD since she was in high school. She's been a social worker, probation officer, and finally her IBD prompted her to go to nursing school. She's done travel nursing and had some fun adventures because of it including some brushes with celebrities! We talked to her about what it's like to travel so often with IBD and live somewhere with less accessible healthcare, we discuss how IBD affects her joints and other illnesses, we talk about how she found her IBD family through support groups and volunteering with a camp for kids with IBD, and how she's basically famous. We laughed SO hard during this episode. I know you'll love Stacey C The Deuce as much as we did. Let's get social!! | |||
| 20 Jul 2022 | Meet JPouch Jasmine! | 00:55:04 | |
This week week we interview Jasmine Bouche- AKA JPouch Jasmine! She's the first guest we've had on that neither Robin or Alicia knew already! It was so fun to get to know her and to hear her story of getting diagnosed in college, navigating the social scene and college experience while also navigating the healthcare system- and during a pandemic! We talked a lot about her decision to do the JPouch surgery, how she found connections and resources to help her cope, and about why she started her social media page focusing on her JPouch. Jasmine is in law school now and we know that she's definitely a woman to watch! Let's get social!! | |||
| 27 Jul 2022 | Meet Sari! | 00:47:59 | |
This week we shared an Earl Gray tea with Sari Grossman! Sari has a very unique case of Crohn's disease and she has a family history of Crohn's as well. We talk to her about growing up with Crohn's and also having a mother who is living with Crohn's. We discussed how she started navigating her own healthcare in her teens (with her Mom's coaching) and how and when she transitioned to an adult provider. We talked about her involvement with a club at her college for students living with IBD and how that provided her with both support and leadership opportunities. We talked about her choice of a career in immunology and her hope for future treatments and about medical trauma and how she figured out she was struggling with it and how she got help. This was such a great conversation and Sari is such a grounded and remarkable young woman. I think you'll learn a lot for this episode and enjoy meeting her very much. Let's get social!! | |||
| 03 Aug 2022 | Meet Clayton! | 00:55:55 | |
This week we talk to our friend Clayton Smith! Clayton is a self-described "autoimmune disease magnet" who lives with Crohn's, Celiac, Rheumatoid Arthritis, Lupus, a rare cardiac and soft tissue disease and who has also had 2 bouts with colon cancer. We talked to him about traveling to developing countries with IBD and how to prepare for that, we talk to him about rural vs. urban vs. tribal health systems, we talk about struggling with body image and mental health, we talk a lot about how running and getting involved in charity running events helped him connect with other people living with IBD (including Robin!), we hear some great stories about Robin, and we laughed a whole lot. We hope you enjoy our conversation with our talented friend as much as we enjoyed our 2 hours of recording.
Follow us on Instagram! Let's get social!! | |||
| 10 Aug 2022 | Meet Megan S.! | 00:49:36 | |
This week we talk to Megan Starshak! Megan was diagnosed with UC in high school and, while it compromised her ability to do some of her favorite activities for a while, it didn't prevent her from finding new ways to enjoy her life and even led to her meeting some new people affected by IBD. Megan has devoted much of her life to helping other people with IBD share their story, feel connected, and to feel a sense of community. She is one of the founders of the nonprofit The Great Bowel Movement and it's mission is to "foster conversations surrounding the complexities and realities of IBD, fueled by an empowered, active community of patients and caregivers like you." They started by selling cool, awareness-building shirts but it has grown to so much more.
Let's get social!! | |||
| 17 Aug 2022 | Meet Shawn L.! | 00:45:23 | |
This week we talked to Shawn Luna! Shawn was diagnosed with UC as an adult and it was a big surprise since he hadn't had any symptoms of it when he was younger. We talked about how quickly his UC came on, how scary it was to get diagnosed, and his struggles with pain and fatigue and to get into remission which lead to him being steroid dependent. As part of this process, his original gastroenterologist "fired" him and referred him to a IBD specialist and we talked to him about the difference in his care and how his new doctor got him into remission and helped him wean off of the steroids. Shawn was very open and honest about how he struggled with his mental health during the years when he wasn't in remission and how that affected his marriage, his parenting, and his sense of identity as a man and father. We were so impressed with Shawn's grit and positivity despite his difficult journey to remission and we love how he's used his experience to help other people struggling with IBD. Let's get social!! | |||
| 25 Aug 2022 | Bonus Episode! BMs 1st Anniversary! | 00:23:13 | |
We can hardly believe it but 1 year ago we published the first episode of Bowel Moments! Robin and I took this opportunity to reflect back on the last year, to talk about what we've learned, and to discuss how much we've loved working on this podcast. Let's get social!! | |||
| 24 Aug 2022 | Meet Dr. Jami A. Kinnucan | 00:56:43 | |
This week we talk to Dr. Jami A. Kinnucan! Dr. Kinnucan is a Senior Associate Consultant at Mayo Clinic in Florida (or as she calls it- the Sandy Mayo) and she is an IBD specialist. She has a special interest in and researches cannabis and IBD and so we spend a lot of time hearing all about the limited research available and on the importance of talking to your doctor about cannabis use. It was really interesting to hear about the research that's been done but there's still so much to learn. Let's get social!! | |||
| 31 Aug 2022 | Meet Tina of Own Your Crohn's Fame! | 01:13:46 | |
We were so excited to talk to Tina Aswani Omprakash this week! Tina is a powerhouse in our community and we loved hearing her IBD story and all of the awesome things she's been working on- and despite the super-sized episode, we just scratched the surface! We talked to her about her very complicated Crohn's and her other autoimmune conditions. We talked about her family history of IBD and how her culture shaped her disease journey and eventually motivated her to speak out via her popular blog called "Own Your Crohn's." After she started speaking out more publicly, more and more people of South Asian descent and even further afield started reaching out and thanking her for helping to demystify and destigmatize IBD. That prompted her to start a social media group (IBDesis) and the success of that motivated her and her team to start the South Asian IBD Alliance. We were so excited to hear about SAIA's mission and their amazing progress in such a short time.
Let's get social!! | |||
| 07 Sep 2022 | Meet Courtney Robert, LCSW! | 00:52:38 | |
This week we talk to Courtney Robert, LCSW! Courtney is a licensed clinical social worker and therapist for the IBD Center at GI Alliance in Baton Rouge, LA! We talked to her about the IBD Center that they're building that provides a holistic approach to IBD care. We discuss trauma in IBD and the therapeutic technique called Eye Movement Desensitization and Reprocessing (EMDR). It's a really fascinating and really effective technique to help people with trauma and post traumatic stress. We also talked about gut-directed hypnotherapy and guided imagery. We learned a lot from Courtney and we know you will too! Let's get social!! | |||
| 14 Sep 2022 | Meet Dewey! | 00:49:00 | |
This week we talked to self-described "IBD Dinosaur" Dewey Thom! Dewey has been living with IBD for more than 40 years and has lived quite a bit of that time with a J-Pouch. We talked to him a lot about the importance of finding a community of people who understand IBD. We talk about his accidental participation in a support group and his subsequent role as a volunteer facilitator for the group. He reminisced about his memorable time as a counselor for a camp with kids with IBD and what an amazing experience camp can be for the kids and also the adults. We also talked to him about obstructions, strictures, pouchitis, and how having IBD may have shaped his career decisions. Dewey is a gem and I know you'll enjoy our conversation. Let's get social!! | |||
| 21 Sep 2022 | Meet Ben and Katie! | 00:58:58 | |
This week we talk to Ben and Katie Portier. We talk to them about navigating Ben's IBD from dating to married life, from flares to hospital stays, to surgery, and life with an ostomy. We talk about anxiety, body image, managing relationships, and being social. We discuss finding support for yourself and offering support to others. We hope you enjoy - Cheers! Let's get social!! | |||
| 28 Sep 2022 | It's Robin and Stacey's 1 Year J-Pouch-iversary! | 00:55:46 | |
This week we bring back Stacey Collins, RDN to celebrate(?) jpouch-iversaries. We talked about what Stacey and I have learned and what's been happening in our lives. We shared some tips and some of the not-so-pretty aspects of recovery to give you a better understanding of what to expect if you're discussing j-pouch surgery with your GI. Alicia decided to keep in some of the stuff she usually cuts, so please excuse the entire minute of just us laughing at the beginning. We do actually get down to business. Let's get social!! | |||
| 05 Oct 2022 | Meet Dr. Jeanne Tung! | 00:50:53 | |
This week we talked to Dr. Jeanne Tung! Dr. Tung is the Director of the Center for Pediatric IBD at OU Health. We talked to her helping kids transition and transfer to adult IBD care and we talk to her about her involvement in ImproveCareNow which is a collaborative made up of pediatric IBD patients, parents, and healthcare providers that works to (big surprise) improve care for kids living with IBD. We also talk to her about helping parents with kids with IBD to let go and allow their kids to start to take charge of their own healthcare.
Let's get social!! | |||
| 12 Oct 2022 | Meet Dr. Claire Hamnett- Pelvic Floor Physical Therapist | 00:55:31 | |
This week we shared a Rowdy Mermaid and had such an interesting conversation with Dr. Claire Hamnett! Dr. Hamnett is a pelvic floor physical therapist at Solstice Physiotherapy in New York City and she has a special interest in working with people living with IBD. We talk to her about how pelvic floor PT can help with scar tissue issues, pain management, and surgical recovery. We also talk to her about how it can help with bladder, bowel, and sexual dysfunction. We also talk about insurance coverage for PT and how to access it. We also find out the surprising reason why she became and avid runner. Learn with us friends! This was such an informative conversation and Dr. Hamnett is super knowledgeable and passionate about pelvic floor PT!!
Let's get social!! | |||
| 19 Oct 2022 | Meet Jason W.! | 00:45:02 | |
This week we had a great conversation with our friend Jason Wild! We talked to him quite a bit about how he found a community of people living with IBD through Camp Oasis and how he's evolved from a counselor to a "Leader in Training" lead to a Camp Director. You can tell how much he loves camp and loves the community he's formed through it. We also talk to him about his use of medical cannabis to treat his UC and how he worked with his gastroenterologist to move to this option and to monitor his health. It was really interesting to hear a patient perspective on medical cannabis especially after our conversation about this with Dr. Jami A. Kinnucan a few weeks ago.
Let's get social!! | |||
| 26 Oct 2022 | Meet Dr. Tauseef Ali! | 00:49:15 | |
This week we talked to Dr. Tauseef Ali! Dr. Ali is the medical executive director of Saints Digestive Institute and director of IBD clinical and research program at SSM Health Saint Anthony Hospital. He is also a Clinical Assistant Professor of Medicine at the University of Oklahoma in the Digestive Disease and Nutrition section and adjunct faculty at Oklahoma State University. Additionally he's a board member and lead for professional outreach and education for the South Asian IBD Alliance. We talk to him about establishing an IBD Center of Excellence, we talk to him about all that he does for SAIA, we talked to him about the upcoming 2nd edition of his book "Crohn's and Colitis for Dummies", and we talk to him about "med twitter" and how active he is on there.
Let's get social!! | |||
| 02 Nov 2022 | Meet Wendy K.! | 00:52:24 | |
This is week we had such a fun conversation with Wendy Kovich! Wendy was diagnosed with Crohn's in her 20's very shortly after she married and it's been quite the roller coaster since. We talked to her about navigating through treatment options and surgeries, working with her healthcare team to get pregnant, dealing with a fistula, and what it's been like to raise her twins while having very active disease. We spent a lot of time talking about her decision to move from a J-Pouch to a permanent ostomy, what it took for her to emotionally make this decision, the team it took to do the surgery and to repair her fistula, how she learned from Instagram Influencers on how to care for her ostomy, and how much she loves her "Barbie Butt." We also laughed so hard about how her "white coat syndrome" manifests itself.
Let's get social!! | |||
| 28 Dec 2022 | Meet Dani E.! | 00:44:59 | |
We had the pleasure of getting to know Dani Edelstein in this episode! We talked to her about being diagnosed when she was only 8 years old and what it was like for her as the child of a doctor to have to navigate the medical system on her own when she got to be an adult. We discussed how the language used around IBD care can create difficulty for folks living with it- for instance when healthcare providers say that a patient has "failed" their medication. Dani talks about how that lead to patients feeling responsibility and even shame for their disease. We talked about the importance of mental health care, the differences between a loop and an end ileostomy, and so much more.
Let's get social!! | |||
| 09 Nov 2022 | Meet Registered Dietitian Neha Shah! | 00:48:57 | |
This week we tried something new! We let our friend Stacey Collins guest host the show! Stacey is a Registered Dietitian who specializes in IBD and our guest this week is Neha Shah who is also a Registered Dietitian who specializes in IBD. In addition to being a RD, Neha is also also a certified nutrition support clinician (CNSC), credentialed by the National Board of Nutrition Support Certification, a certified health education specialist (CHES), credentialed by the National Commission of Health Education Credentialing, and holds a Master’s in Public Health. She is in private practice but also is integrated into the IBD Center at UCSF. Beyond caring for her patients, she continues to provide lectures to healthcare providers, supervise nutrition interns, give community talks, author articles, and plan research studies with the medical teams. Neha is a powerhouse and a light. They had such an interesting peer-to-peer conversation on diets and IBD, the cultural aspects of diet and how to navigate that with IBD, learning "cultural humility" and how to work with people from other cultures, and so much more. Robin and I really enjoyed eavesdropping on their conversation and I know you'll be just as fascinated.
Let's get social!! | |||
| 16 Nov 2022 | Meet Matt K.! | 00:53:35 | |
This week we spoke to Matthew Kasabian! Matt told us about being diagnosed with IBD in college and how isolated it made him feel. He talked about how he saw all his friends out living their young, fun lives on social media and how frustrated he felt but also how he used these feelings of isolation and frustration to motivate him to seek out new treatments and new healthcare providers. We talked to him about the holistic diet he tried, we discussed his J-Pouch surgery and how living with an ostomy during that process helped him heal and gave him his life back, we talked about his healthy lifestyle of eating well and working out (with a few High Noons and other drinks incorporated), and about job hunting while going through the J-Pouch surgery process. Finally we talked to him about how he stays so positive and what an incredible impact an ostomy nurse named Andrew had on his life and his recovery.
Let's get social!! | |||
| 23 Nov 2022 | Meet Dr. Sabina Ali! | 00:44:10 | |
This week we had a great chat with Dr. Sabina Ali! Dr. Ali is a pediatric gastroenterologist and the medical director of the Inflammatory Bowel Disease Program at UCSF Benioff Children's Hospital Oakland. She also happens to be living with IBD herself. We talked to her about her special interest in quality of care research and involvement with ImproveCareNow. We also discussed caring for very young children with IBD, the importance of having a great care team, diets and IBD, and her involvement with the South Asian IBD Alliance.
Let's get social!! | |||
| 30 Nov 2022 | Research Roundup #2 with Dr. Sunanda Kane and Dr. Lukasz Kwapisz | 01:04:50 | |
Welcome to our second Research Roundup episode! We brought back Dr. Sunanda Kane- Professor of Medicine at Mayo Clinic and Dr. Lukasz Kwapisz- Assistant Professor of Medicine at Baylor College of Medicine to talk to us about the latest in what's happening in IBD research. We talked about new medications, biosimilars, diet research, and more.
Let's get social!! | |||
| 07 Dec 2022 | Meet Joshua S.! | 00:50:01 | |
This week we had such a great conversation with Joshua Samudre! Joshua is a medical student living with UC and so we talked to him about what it's like to study medicine while also a consumer of medicine. We talked to him about moving across the country and reestablishing yourself and your care. We talked to him about advocacy volunteer and volunteering at Camp Oasis and we had some good laughs about bidets, how mean kids can be, getting old and technology, and his unusual "fun fact" that he shared with us. Also- lots of shout outs to Grady Stewart! Be sure to check out his episode too!
Let's get social!! | |||
| 14 Dec 2022 | Meet Will A.! | 00:56:32 | |
This week we really enjoyed hearing Will Awve's story! We talked about his diagnosis with UC in college and how that affected his college experience. We discussed him trying basically all medication options to try to control his UC, his bouts with C. Diff, and then his eventual decision to go through J-Pouch surgery. We also had a chance to talk about how your mental health and how you mentally position your disease affects your attitude and resilience. And finally we talk about how UC can create some interesting, uncomfortable, and possibly even dangerous situations when out in the wilderness.
Interested in being a guest? Email Robin at robin@bowelmomentspod.com or Alicia at alicia@bowelmomentspod.com or both! Cheers! Let's get social!! | |||
| 21 Dec 2022 | Meet Lauren EB! | 00:57:00 | |
This week we caught up with our friend Lauren Erbach Barnfield! We've both known Lauren for several years but have never heard her full IBD story so it was really great to hear it all. We talked about her participation in the PIANO study which is a study about women living with IBD and taking biologics while pregnant and what all that entailed. We talked to her about finding the right treatment for her Crohn's and who choosing a biologic is intimidating especially when you can find so many negative stories on the internet. We also discussed talking to her small children about IBD, her going graduate school while living with Crohn's, having a full-time job AND a family, and about blogging about her Crohn's when she was younger. We also spent quite a bit of time talking about the importance of sharing your IBD story- even the mundane and seemingly normal parts- to help other people better understand what it's like to live with a chronic illness. And we talked a lot about the health insurance system in the US and how challenging it is to people with chronic illnesses.
Let's get social!! | |||
| 04 Jan 2023 | Meet Dr. Bhaskar Gurram! | 00:50:52 | |
We're ringing in the new year with a great episode! This week we talk to Dr. Bhaskar Gurram! Dr. Gurram is a pediatric gastroenterologist specializing in IBD at Children's Medical Center Dallas and UT Southwestern. We talked to him about the genetics of IBD and what we know about it from the current research. We discussed Fecal Microbiota Transplant (FMT) and it's role in treating C.Diff. We also discussed C.Diff in general and how to treat it as well as general health maintenance for people living with IBD (especially kids). Finally we talk about the language that's used in IBD care and how medical professionals can ensure that they're using patient-first language to help patients feel more successful and as truly part of the decision making process.
Let's get social!! | |||
| 11 Jan 2023 | Meet Christine R.! | 01:09:52 | |
This week we had the pleasure of talking to corporate executive, wife, mother, nonprofit board member, support group leader, author, and all around badass Christine Rich. And boy did we go all in on this conversation! We talked about mental health, body image, eating disorders, feeling safe or unsafe in your body, and so much more. We talked a lot about her book "Chronic" and how it was a very raw and important look at living with a chronic illness and hearing Christine's story.
Let's get social!! | |||
| 18 Jan 2023 | Meet Erron J. Maxey! | 01:00:31 | |
This week we talked to Erron J. Maxey! Erron is a retired International Professional Basketball Player and now a banker. He had his first Crohn's flare when he was traveling in Columbia for his job and that started a pretty wild ride to get diagnosed and to find him best treatment options. We talked to him about what it was like to live in many different countries while coping with his disease and what it was like to train and eat to compete at an elite level with Crohn's.. We also discussed how it can seem like men are reticent about talking about their health issues and especially their mental health. We also talked about this volunteer activities with The Color of Crohn's and Chronic Illness (Aka COCCI). It was so fun to talk to Erron and we just scratched the surface! Enjoy!
Let's get social!! | |||
| 25 Jan 2023 | Meet Kelly Issokson, RD! | 00:45:22 | |
This week we talked to Kelly Issokson, RD! Kelly is the Clinical Nutrition Coordinator at the F. Widjaja Foundation Inflammatory Bowel Diseases Institute at Cedars-Sinai in Los Angeles, California. Kelly provides nutrition therapy to children and adults in the IBD Institute, the Nutrition & Integrative IBD Subspecialty Clinic. She is the Course Director and Apprenticeship Director of the newly minted Cedars-Sinai Advanced Dietary IBD Education and Training (DIET) Program. Her research focus is on the nutritional optimization of surgical patients with IBD. We talked to her about this new provider training program and why it's so important. We discussed what patients can do to optimize their nutrition if they're preparing for surgery and what labs to ask for in general to get an idea of your nutrition status. We also talked about the nutrition care pathway that Kelly helped research and write for providers to track their patients nutrition status and to check for malnutrition and also her volunteer work doing advocacy on access to nutrition counseling services and medical food.
Let's get social!! | |||
| 01 Feb 2023 | Meet Maurie J! | 00:49:57 | |
This week we talked to Maurie Jhaveri! Maurie was diagnosed with Crohn's when she was 11 years old but she was not stranger to Crohn's. Her dad was also diagnosed when he was 11 and so she was already a bit familiar with it but obviously had many questions as she started to navigate it herself. She found great support, education, and comfort in the Child Life Specialist at her children's hospital (shout out to Brenda Sonnier!) and that lead her to choosing to study Child Life so that she could become that same source of support for other kids affected by illness. We talked about her path to finding a good treatment, the complicated guilt than can come with living with a chronic illness, a new diagnosis she's having to navigate and co-manage with her Crohn's, and some of her unusual side effects. We also talked about how dance helped her to cope with her Crohn's and to help her connect with others when she was younger and how she'd like to create a dance program of her own to help other kids living with chronic illness. Maurie was such a joy to talk to and we know you'll love this conversation too.
Let's get social!! | |||
| 08 Feb 2023 | Research Roundup with Stacey Collins, RD and Josie McGarva- GI Psychologist- Crohn's & Colitis Congress | 00:56:04 | |
This week friends of the show Stacey Collins, RD and Josie McGarva, GI Psychologist join us to recap the Crohn's & Colitis Congress. Congress is a conference for IBD HealthCare providers and researchers that's held by the American Gastroenterological Association and the Crohn's & Colitis Foundation. This conference focuses on the total care of people living with IBD from bench research to bedside and both Stacey and Josie presented about their research and work. We talked about what they spoke on, what they learned, what left them feeling hopeful both professionally and as patients with IBD, and their thoughts on how the conference can improve and evolve. It may sound like a stuffy conversation but we had a lot of fun and laughs in this conversation with our friends. Cheers!
Let's get social!! | |||
| 15 Feb 2023 | Meet Sam R.! | 00:59:05 | |
This week we had such a great conversation with Sam Reid! Sam works in digital engagement and communications for an independent, nonpartisan policy institute in Washington D.C. Her Crohn's disease has had a big impact on her career and many of the issues that she works to improve such as drug pricing and barrier to care. We had a very interesting and passionate conversation about healthcare access and affordability. We also talked about how she sought connection via social media and the blogs and articles that she's written to help other people coping with their disease. She's been published in Teen Vogue, Allure, Healthline and more. Sam had to learn how to navigate the healthcare system quickly and she's channeled that into such impactful and passionate outlets. We could have talked to Sam for so much longer and it was so hard to edit this episode down!
Let's get social!! | |||
| 22 Feb 2023 | Meet Dr. Jeremy Adler! | 00:35:35 | |
This week we had a great conversation with Dr. Jeremy Adler! Dr. Adler is the Director of the Pediatric IBD Program at CS Mott Children's Hospital at the University of Michigan. We talked to him about his research interests in quality of care improvements, health disparities and IBD, and the Covid vaccine and its effectiveness with children with IBD. We also talked to him about the medications used to treat children with IBD and his work leading the BISCUIT Study which looks at why biologic treatments are discontinued in the treatment of kids with IBD and the outcomes. We also talked to him about why he decide to go back to do even more medical school to become a pediatric IBD specialist after working as a pediatrician for many years. We really enjoyed sharing a cup of later afternoon coffee with Dr. Adler and hope to get to talk to him again soon!
Let's get social!! | |||
| 01 Mar 2023 | Meet Francesca F.! | 00:54:16 | |
This week we talked to Francesca Ferraro! Francesca was diagnosed with UC in 2019 and just had the first part of a J-Pouch surgery in January 2023. She has been absolutely loving life with her ostomy and talks a lot about the pros and cons of continuing with the next round of the J-Pouch process. She told us how her ostomy has improved her quality of life, decreased her anxiety, and has allowed her to go out and live the life she felt had been significantly compromised by her UC. We also talked about making such big decision as such a young age, the medication merry-go-round, and the emotional toll and trauma that can come with some IBD symptoms. We also talked about working with a therapist to help with the grief and trauma that can come with these diagnoses. Francesca is funny, resilient, interesting, ambitious, and so much more. I think you'll love meeting her as much as we did.
Let's get social!! | |||
| 08 Mar 2023 | Meet Jackie Z.! | 00:57:47 | |
This week Robin had a fan girl moment while we talked to Jackie Zimmerman! Jackie is one of the founders of Girls with Guts and was one of the OG IBD bloggers with her blog called "Blood, Poop, & Tears." Robin was a big fan of her blog and got a lot of information and support from it when she was originally diagnosed. We talked to her about creating community for women with IBD, living with both UC and Multiple Sclerosis, coordinating her care, building and running a business while living with IBD and MS, advocacy and advising with pharma companies, and so much more. This conversation had us feeling so many things- I hope you enjoy it as much as we did.
Let's get social!! | |||
| 15 Mar 2023 | Meet Dr. Alessandro Fichera- Colorectal Surgeon! | 00:52:19 | |
This week we talked to Dr. Alessandro Fichera! Dr. Fichera is the Division Chief of Colorectal Surgery at Baylor University Medical Center in Dallas, Texas and the Surgery Safety and Quality Officer since July 2020. His clinical and research interest include colorectal cancer and inflammatory bowel disease. We talked to him about the different types of surgeries for IBD including robotically assisted surgery. We talked a lot about J-Pouch surgeries and optimizing outcomes for patients. We discussed how he addresses sexuality with his patients when it may be affected by a surgery. Finally we discussed his "5 R's" principle for preventing surgical recurrence and his love of the blues.
Let's get social!! | |||
| 22 Mar 2023 | Meet Kajal P.! | 00:33:54 | |
This week we talk to Kajal Patel! Kajal is a 3rd year medical student originally diagnosed with UC but when she started to develop fistulas, her diagnosis was changed to Crohn's. We spoke to her about advocacy and a group she co-founded on campus for medical students with chronic illness. We talked about how she copies with everything that comes with IBD and school like setting up a 504 plan when you're an adolescent and registering with your college or university's office of disability services (even if you're in remission.) We discussed developing a sense of self/identity when diagnosed with IBD at a formative age and how she used to think she "was" her diagnosis and we talked to her about choosing GI for her career.
Let's get social!! | |||
| 29 Mar 2023 | Meet Traci Beebe, RN! | 00:40:11 | |
This week we talked to Traci Beebe! Traci is the Director of Nursing and Clinical Practice at The Permanente Medical Group and she also happens to be Robin's sister! Traci was in nursing school when Robin was diagnosed with IBD and we talked to her about what that was like. We also talked to her about her experience with pain management clinics and pain and IBD. We discussed how and why pain management is so complicated and misunderstood in IBD and what we can do to change that. We also talked about the importance of case management and involving family in chronic illness care and management. Finally we talked about what it's been like for her to experience and help Robin during some of her most challenging times with IBD. Traci is so passionate and such and advocate and it was such a JOY to get to know her during this conversation.
Let's get social!! | |||
| 05 Apr 2023 | Meet Tommy H.! | 00:41:27 | |
This week we talked to Tommy Hazelton! Tommy was diagnosed with UC back in the late 1990's and went through a period where his disease was not well controlled. He was working as a musician and a performer and we talked about how he was able to be up on stage while symptomatic. We talked about the unusual and intriguing things he credits as helping him into remission and to maintaining symptom remission. We discussed his involvement in a support group and in volunteering as a counselor at Camp Oasis. We also talked about his friendship with another one of our guests -Stacey Calabro! Tommy was funny, introspective, unique, and we had a lot of fun and laughs in this episode.
Let's get social!! | |||
| 12 Apr 2023 | Meet Laura Manning, MPH, RDN, CDN! | 00:42:35 | |
This week we had such a great conversation with Laura Manning, MPH, RDN, CDN! Laura is a registered dietitian that works with the IBD team at the Susan and Leonard Feinstein Inflammatory Bowel Disease Center at Mount Sinai Medical Center. We talked to her about her interesting and unique career before she became a dietitian and why she switched. We talked about nutrition therapy for people living with Crohn's disease and her research on scurvy and IBD. We discussed nutritional supplements and their safety and also how to introduce foods back into your diet. We also discussed the very effective and empowering GRITT-IBD program which is a multi-disciplinary program intended to provide services and support that will help patients have improved quality of life. Finally we talked about fish. We loved our conversation and laughs with Laura this week and we know you will too!
Let's get social!! | |||
| 19 Apr 2023 | Meet Abbe F.! | 00:42:35 | |
This week we talked to Robin's long-time friend, Abbe Feitelberg! Abbe is an attorney who is living with Crohn's disease. When she isn’t working, she is usually traveling, cycling, or finding time for fun no matter what that looks like. Abbe has lived with Crohn’s since the age of 17, getting through college and law school without a proper diagnosis and many difficult days. Following her diagnosis, Abbe went through multiple courses of ineffective treatment, several hospital stays, and some very scary days. But Abbe kept fighting and is proud to live each day to the fullest, truly believing that each one is crazy beautiful.
Let's get social!! | |||
| 26 Apr 2023 | Meet Madhura B.! | 00:54:41 | |
This week we had the absolute pleasure to get to know Madhura Balasubramaniam! Madhura is a Ph.D. student in Chennai, India and she is also the Director of Patient Outreach and Advocacy for the South Asian IBD Alliance (SAIA)! She was diagnosed with Crohn's disease in 2019 after struggling with her health for many years. She and her doctor decided to utilize a feeding tube to help her manage her disease and so we talked about her choice to do this and how it was received by her family and community. We talked a lot about IBD in India- how it's viewed, the stigma attached to it, the treatment options, the health insurance system and so much more. We also talked about how she got involved with SAIA and her role on the POA committee and what it's been like to be involved with South Asian patients from around the world who are living with IBD. This was a truly fascinating conversation and Robin and I both loved Madhura. She is so incredibly passionate and committed to improving the lives of everyone with IBD and smart, funny, and a joy on top of it!
Let's get social!! | |||
| 03 May 2023 | Meet Dr. Neil Nandi! | 00:52:38 | |
*** Warning- This episode discusses sexuality and contains sexual content and may not be suitable for all audiences.****
Let's get social!! | |||
| 10 May 2023 | Meet Natalie H.! | 00:56:26 | |
This week we had so much fun getting to know Natalie Hayden! You probably know her from her very popular blog- Lights, Camera, Crohn's: An Unobstructed View- and her Instagram account! Natalie is a journalist and worked as an on-air reporter for 3 different TV stations and was also the host of Wakeup Wisconsin all while coping with Crohn's disease. We talked to her about what it was like to work in such a public field while coping with her disease and figuring out the right treatment. We talked to her about when she decided to go public with her disease and to become a powerhouse patient advocate. We discussed how she uses her journalist skills to create informative and accurate stories for her blog and what it's like to engage on social media with our community. We also talked about motherhood and raising 3 small children while living with Crohn's and what it's like to navigate all the tasks associated with managing your disease like shots, appointments, ER visits and more with little ones. We also talked about tips that she has for other people who may be interested in getting active on social media as a patient advocate. We really enjoyed our time with Natalie and had so many more questions for her. If you don't follow her- do it now! You'll learn so much!
Let's get social!! | |||
| 17 May 2023 | Meet- Amanda D.! | 00:46:12 | |
This week we spoke to Amanda Dinkelman! Amanda is living with Crohn's disease but she doesn't let that stop her from being active and keeping fit. She credits getting out and moving her body with helping her cope with her disease and has even taken on a new challenge of powerlifting! We talk to her about training after a bowel resection and being very ill, how to trust your body, and how she keeps her body fueled. We also had a long conversation about the importance of finding a healthcare provider that's your true partner in your care and that you can trust. We also discussed how to become your own healthcare advocate and how therapy and meditation can help with learning acceptance, dealing with medical trauma, and with coping skills. We covered so many things and I think this conversation surprised all of us. We had fun and were playful and we also got deep and serious. I think you'll enjoy the ride as much as we did.
Let's get social!! | |||
| 24 May 2023 | Meet Ken C.! | 00:41:27 | |
This week we spoke to Ken Carpenter! Ken is the producer and host of Athlete 1 podcast and was diagnosed with UC when he was 46 years old. Since he's been diagnosed he has had a pretty wild ride finding the right treatment and the right provider but has been so fortunate to have his wife be his partner in this process. We discussed all of the health conditions that he's faced and how his community rallied around him. We talked about his love of all things sports including coaching baseball for many years and how he managed that while also struggling with his UC. We talked to him about his life and how he eventually found his path (with help from his wife!) but about all the things in tried along the way including serving in the Army as a paratrooper!
Let's get social!! | |||
| 31 May 2023 | Research Roundup #4- Dr. Bincy Abraham & Dr. Jami Kinnucan | 00:48:52 | |
This week we brought back Dr. Bincy Abraham- Distinguished Professor and Director of the Underwood Center- Fondren IBD Program at Houston Methodist and Dr. Jami Kinnucan- Senior Associate Consultant in the Section on Gastroenterology and Hepatology at Mayo Clinic in Florida. We talked to them about their recent trip to the Digestive Disease Week conference. They mentioned the themes that noted in the conference in advances in diagnostic tools, new medications, and information on diets and IBD. We learned a lot from them and had major FOMO that we didn't get to attend DDW as well. We also may have to try to convince them that "The Bincy and Jami Show" has a nice ring to it and produce their own podcast! ;)
Let's get social!! | |||
| 07 Jun 2023 | Meet Beth M.! | 00:55:24 | |
This week we had quite the conversation with Beth Meals. Beth was diagnosed with UC but also with Endometriosis and POTS. We talked to her about struggling with all of these medical conditions when she was younger and growing up and about how her family dismissed and minimized her health conditions. We also talked about her trying to find the right healthcare providers who would explore these symptoms and help her get the right diagnoses and treatments. We talked to her about how this led to hear not trusting her body and how working with a dietitian has helped her to trust food and her body more. We talked to her about medical gaslighting and how she has coped with that. We also talked to her about the importance of community and support.
Let's get social!! | |||
| 14 Jun 2023 | Meet Mara S.! | 00:56:57 | |
This week we had an entertaining conversation with Mara Shapiro! Mara was diagnosed with Crohn's disease fairly recently but has struggled with GI symptoms for quite some time. Her Crohn's was diagnosed after she was dealing with debilitating iron insufficiency. We talked to her about receiving iron infusions and how she's learned to read her labs to better know what's happening with her iron levels. We also talked to her about her chronic C Diff infections and using Fecal Microbiota Transplant to deal with it. It was quite the story and I think you'll laugh along with us when you hear it. Finally we talk to her about her other health conditions and how they've helped her become a fierce advocate for her health and to help her find community.
Let's get social!! | |||
| 21 Jun 2023 | Meet Dr. Brad Pasternak! | 00:43:50 | |
This week we talk to Dr. Brad Pasternak! Dr. Pasternak is the Director of the Inflammatory Bowel Disease Program at Phoenix Children's Hospital. We talked to him about how his UC influenced his choice to go into pediatric gastroenterology and how he's coped with his disease. We talked to him about his medical training in Israel and the differences between the Israeli and American medical system. We talked to him about his research and how doing basic science research helped him realize how much he loves patient care and developing deep relationships with his patients and their families. Finally we discussed his volunteer project providing medical care to a small town in Mexico. Let's get social!! | |||
| 28 Jun 2023 | Meet Barbara C- mother of Hannah C.! | 00:44:40 | |
This week we spoke to Barbara Cramer! Barbara has 2 children living with Crohn's disease. You met her daughter Hannah in episode 13 and this week you'll get to hear Barbara's side of some of Hannah's stories and experiences. Barbara's children were diagnosed at different ages- one as a teen and one has an adult- and have vastly different styles in how they cope with their disease. We talk to her about how she's handled these vastly different ways and how she's helped both of her children navigate this new world. We talked to her about leading a support group with Hannah for families affected by IBD. We discussed the helpful and not-so-helpful things that people say when you talk about having a kid with a chronic illness, were to find accurate information about IBD, and how important it is to know that you're not alone.
Let's get social!! | |||
| 05 Jul 2023 | Meet Sharan K.! | 00:51:49 | |
This week we spoke to Sharan K.! Sharan lives in the UK and is the creator of the Crohn's Babble Instagram account as well as the Director of Digital Engagement at the South Asian IBD Alliance! We spoke to her about getting diagnosed and navigating her Crohn's in the UK's healthcare system. We talked to her about how challenging the system could be at times being of South Asian descent because of language barriers and lack of understanding around how the diet information may translate to her family's cuisine. We talked to her about finding information and community online and how that helped her when she was living with an ostomy. We also discussed the importance of self-care and how she helped to form IBDesis- which is a Facebook group for people of South Asian descent living with IBD- and how that prompted the formation of the South Asian IBD Alliance.
Let's get social!! | |||
| 12 Jul 2023 | Meet Dr. Abdul Elkadri! | 00:49:17 | |
This week Alicia had a guest host! She was joined by friend of the show and past guest- Lauren Erbach Barnfield and they spoke to Dr. Abdul Aziz Elkadri! Dr. Elkadri is an Assistant Professor at the Medical College of Wisconsin where he specializes in pediatric IBD. We talked to Dr. Elkadri about his personal connecting to IBD, how he inadvertently chose GI as his specialty and why he prefers treating kids. We also talked to him about receiving his medical training in Lebanon and how that created some hurdles to him practicing in the US post training. We discussed his research into genetics and into very early onset (VEO) IBD and working with little kids (and their parents). We also talked about talking to teens about weight and eating when they have IBD and the impact of societal pressure/reward on weight. Lauren and Alicia had such a good laugh with Dr. Elkadri and always appreciate his irreverent sense of humor.
Let's get social!! | |||
| 19 Jul 2023 | Meet Kishore! | 00:57:37 | |
This week we met Kishore Pardasani! Kishore was diagnosed with UC when he was in college and struggled to find the right treatment for his disease. Eventually he decided to manage his disease through a permanent ostomy. As he was learning to navigate life with an ostomy he was underwhelmed by the tool available to help him track his supplies, measure his output, and manage his ostomy. That lead him to develop an app called OstoBuddy! OstoBuddy worked well for him and so he decided he needed to offer it to others living with ostomies. He applied for the Lyfebulb challenge addressing the unmet needs of the IBD community and was selected! We hear his whole riveting story, we brainstorm ways to improve ostomy supplies, we talk about the craziest thing he did after being diagnosed with UC, and what it was like to grow up in Barbados. It was such a fun conversation!
Let's get social!! | |||
| 26 Jul 2023 | Meet Lori P.! | 00:57:30 | |
This week we talked to Lori Plung! Lori has been living with Crohn's disease for more than 40 years and she has been living as fully and as well as possible. She's now been diagnosed with short gut syndrome and so we talk to her about what that is, what it's like, and how she uses TPN to optimize her nutrition and hydration. We also talked to her about how she came to leading a support group in partnership with UPMC and the Crohn's & Colitis Foundation and how that changed during Covid. We spoke to her about providing peer-to-peer support and the importance of community. We had such a great conversation with Lori and talked about so, so much more. I know you'll find Lori to be the ray of sunshine that we did!
Let's get social!! | |||
| 02 Aug 2023 | Meet Dr. Mike Dolinger! | 00:54:54 | |
This week we talked to Dr. Michael Dolinger! Dr. Dolinger is an Assistance Professor of Pediatric Gastroenterology at the Icahn School of Medicine and Mount Sinai Kravis Children's Hospital. Dr. Dolinger leads the Henry and Elaine Kaufman intestinal ultrasound program at the Susan and Leonard Feinstein Inflammatory Bowel Disease Center, the first of its kind in the United States. We talked to him all about intestinal ultrasound and how revolutionary it is as a noninvasive tool to monitor disease activity and treatment response. It's seriously super cool and we had such an interesting conversation with Dr. Dolinger! We also talked to him about his very personal reason for going into pediatrics and focusing on Inflammatory Bowel Disease. Dr. Doling is a joy and we loved speaking to him more than eating a pint of ice cream.
Let's get social!! | |||
| 09 Aug 2023 | Meet Nir S.! | 00:44:41 | |
This week we talked to Nir Salomon! Nir is the Founder and Director of the Integrative Gastroenterology unit at Sheba Medical Center in Israel. He's also the Co-Founder and Head of R&D at Evinature. Nir has done research for more than a decade on neutraceuticals for the treatment of IBD. We talked to him about his training in this area, what neutraceuticals are and how they and other types of integrative medicines are used in IBD care. We talked to him about how he chose the items that he decided to research and how he developed Evinature's CurQD protocol. We discussed the clinical trials that he went through and how this protocol can be helpful to the treatment regime of IBD. Finally we talked about research in Israel and why they may be able to research things that are not as readily studied in the United State. It was a really interesting conversation! Enjoy! Let's get social!! | |||
| 16 Aug 2023 | Meet Nicole and Luke! | 00:56:15 | |
This week we spoke to Nicole and Luke Pavlin! Nicole is living with Crohn's disease and Luke is her husband and care partner. We talked about the process for her to get diagnosed and the unusual birth defect she has that complicated her case. We talked about her ongoing struggles with food anxiety and medical trauma and how the GRITT- IBD program and staff have helped her cope. We talked to her about how her Dietitian and her mental health team have worked together to help her. We talked about her participation in a couple of research studies being put on by Mount Sinai including one with wearable devices. Nicole talked about why participating in these types of studies was especially important to her as a science educator and to help her feel like she was helping others. We also talked about her volunteer role with the nonprofit Nutrition Therapy for IBD.
Let's get social!! | |||
| 23 Aug 2023 | Meet Dr. David Choi! | 00:55:06 | |
This week we had such an informative conversation with Dr. David Choi! Dr. Choi is a Specialty Clinical Pharmacist and the Associate Director of the IBD Center at UChicago. We talked to him about his role as part of the IBD care team and how he plays an important part in patient advocacy and in getting the patient the treatment they and their provider think is best. We discussed his research in pharmacist-initiated interventions and prior authorizations and in other insurance issues in patient care and what they learned from this work. We talked a lot about biologic medications and biosimilars and what patients should know about these options and about switching to one. We also discussed supplements and how your pharmacist can help you figure out what is safe for you to use or what might have medication interactions. Finally we talked to him about training new or more pharmacists to do specialty IBD care and about networking with other IBD Pharmacists through the IBD Pharmacist Network. This was such an interesting conversation and I think you'll learn as much as we did.
Let's get social!! | |||
| 30 Aug 2023 | What's EMDR Like As a Patient with Hannah C. | 00:52:20 | |
This week we brought back friend of the show and former guest, Hannah Cramer! Hannah and Robin have both been using Eye Movement Desensitization and Reprocessing (EMDR) to help them with their medical trauma. EMDR is a psychotherapeutic technique used to help people process and recover from trauma and problematic traumatic memories that may interfere with life. They've found EMDR to be incredibly helpful and very quick to alleviate some really significant anxiety and trauma associated with their disease and with their experiences with the medical system. We discussed how the process has worked for them, what to expect if you're considering this, pros and cons to this technique, and how they've talked to others about it. It was super interesting to hear their different experiences but also so encouraging to hear how it helped them.
Let's get social!! | |||
| 06 Sep 2023 | Meet Dr. Meredith Craven! | 00:56:28 | |
This week we had such an interesting and fun conversation with Dr. Meredith Craven! Dr. Craven is a licensed health psychologist and she's the Director of GI Health Psychology in the Division of Gastroenterology and Hepatology at Stanford Health. We spent quite a bit of time talking about gut directed hypnotherapy and other brain-gut behavioral health techniques. We also had a really interesting discussion about Dr. Craven's research and work on health disparities and diversity, equity, inclusion, and justice. We also talked about her interest in and practice of yoga and how she's helped her patients use it as well as diaphragmatic breathing and mindfulness to manage their IBD.
Let's get social!! | |||
| 13 Sep 2023 | Meet Aaron B.! | 00:41:27 | |
This week we spoke to IBD and Rare Disease advocate, Aaron Blocker! Aaron lives with Crohn's disease as well as an ultra-rare disease called Hypophosphatasia. We talked to him about managing both illnesses and coordinating his care. We talked to him about how he set up his very popular and informative Facebook community called Support for Crohn's & Ulcerative Colitis and how he monitors this page to keep the conversations informative, supportive, and as accurate as possible. We also talked to him about his degree in biomedical research and how he uses it to help translate complicated scientific information for the patient population and to help educate our community. Additionally this has helped him engage with the pharmaceutical and scientific community professionally to help with patient education, marketing and much more. Finally we talked to him about parenting his three very small children, including twin babies (!), while living with two chronic illnesses.
Let's get social!! | |||
| 20 Sep 2023 | Meet Julia G-P! | 00:55:15 | |
***Warning that this episode includes an open discussion about sexuality and may not be suitable for all audiences.***
Let's get social!! | |||
| 27 Sep 2023 | Meet Marita Kametas, MSN, APN, FNP-BC, CMSRN, COCN! | 00:47:53 | |
This week we spoke to Marita Kametas, MSN, APN, FNP-BC, CMSRN, COCN! Marita is an Advanced Practice Provider Leader, IBD APN, and Ostomy Specialist in the IBD Center at the University of Chicago. We talked to her about all things ostomy! We discussed how providers can speak to patients about all of their treatment options including surgery and ostomies and how that language can really help to make patients feel more comfortable and in control. We talked about how she helps patients prepare for surgery and to deal with ostomies after surgery. We discussed the research she's doing into new ostomy technology and what she'd love to see advance in this area. We also talked about pregnancies with ostomies, complications one can have with an ostomy and so much more. It was super interesting and I think you'll learn just as much as we did.
Let's get social!! | |||
| 04 Oct 2023 | Meet Myisha! | 00:56:40 | |
This week we talked to Myisha Malone-King! Myisha is the brains and moderator behind the Facebook group Game of Crohn's n Chronic Illness! The goal of this group is to offer support and knowledgeable information about inflammatory bowel disease and to inspire others to not be afraid or hide because of a chronic illness. We talk to her about what discussions happen on the page and how it's helped her to support and educate other people living with IBD. We discuss her diagnosis process and how her Crohn's affected her pregnancies and how that led to her considering an abortion. We talked to her about everything that she considered as she made that decision and how difficult it was knowing that her health and her life could be so incredibly impacted by it. We talked to her about the pain she experiences with her Crohn's and how difficult it was to find a doctor that would believe her and help find the right treatment plan. We talked to her about grief and the grief that goes along with living with a chronic illness. Finally, we talk about journaling and writing poetry as a way to process living with a chronic illness. We discuss Myisha's new book of poetry called "Footprints of the Soul", where you can find your copy, and she reads us one of her beautiful poems.
Let's get social!! | |||
| 11 Oct 2023 | Meet Dr. Edward Barnes! | 00:52:34 | |
This week we spoke to Dr. Edward L. Barnes! Dr. Barnes is a gastroenterologist and clinical investigator dedicated to improving the care of patients with inflammatory bowel disease at the University of North Carolina School of Medicine. Dr. Barnes is also the 2021 Sherman Emerging Leader Prize Recipient. He has a particular interest in improving outcomes for patients with inflammatory bowel disease who require a colectomy and an ileal pouch-anal anastomosis. Patients with an ileal pouch-anal anastomosis may experience significant complications after surgery, including the development of new inflammatory conditions of the pouch. Dr. Barnes has developed multiple new research strategies to identify risk profiles for those patients at greatest risk for adverse outcomes and strategies to improve the effectiveness of available therapies for pouch-related disorders.
Let's get social!! | |||
| 18 Oct 2023 | Meet Derek D.! | 00:56:35 | |
***This episode includes discussions about suicide and suicidal ideation and may not be appropriate for some people.**** This week we had a really deep conversation with our friend Derek Dodson! Derek has been living with Crohn's disease for 40 years and so we talk to him about what it was like to live with Crohn's before there were any good treatment options, what it was like being a teenager on steroids, and what is has been like to see so much scientific and treatment advances. We discussed his family history with IBD including his grandfather's "ileitis" and his daughter Maurie Jhaveri's diagnosis and how her diagnosis compelled him to get more involved in the IBD community. We talk about his strong Christian faith and how it has been a source of comfort and solace during his hardest times but also how it has changed his faith, how he prays, and how it helped him come up with his life motto of "make it count." We also talked about how living with Crohn's for so long, multiple surgeries, and all his treatments have had lasting impacts on his health in other ways including some vitamin deficiencies. Finally we discuss how Derek's IBD has affected his mental health including his coping with suicidal thoughts and some very significant hopelessness. And how his faith, his family, his community, and working with a therapist has helped him cope and reframe living with his disease.
Let's get social!! | |||
| 25 Oct 2023 | Meet Dr. Alyse Bedell! | 00:56:35 | |
*** Warning: This episode discusses sexuality, sexual health and sexual trauma and may not be appropriate for all audiences.*** This week we spoke to Dr. Alyse Bedell! Dr. Bedell specializes in psychogastroenterology and is a sexual health counselor at the University of Chicago IBD Center. She has specialized training and knowledge in how stress, anxiety and depression can affect digestive health. Dr. Bedell works with patients struggling with a range of gastrointestinal conditions, such as inflammatory bowel disease. and using her expertise to help her patients cope with their condition and improve their gastrointestinal symptoms. Dr. Bedell is able to assist patients in better understanding and managing their symptoms through a holistic approach that addresses both physical and emotional components.
Let's get social!! | |||
| 01 Nov 2023 | Meet Adam F. - Author of "Up & Adam: A Patient's Experience on Winning with IBD" | 00:39:03 | |
This week we spoke to Adam Finkelstein! Adam was diagnosed with UC when he was just 2 years old. We talk to him about what it was like growing up with UC and dealing with it as a child. We spoke about how his experiences with the medical system prompted his interest in writing a children's book for other kids with IBD called "Up and Adam: A Patient's Experience on Winning with IBD." Also how it sparked his interest in becoming a physician and especially a surgeon. Finally we talked about Adam's experience as a Camp Oasis counselor, how he was able to share his book with all of the kids this summer, and what their reactions were and the conversations it started. Adam was a joy and we think he'll make an extremely empathetic doctor some day soon!
Let's get social!! | |||
| 08 Nov 2023 | Meet Alex B.! | 00:51:04 | |
This week we had the pleasure of getting to know Alex Boyd! Alex was diagnosed with UC when she was 26 years old when she thought she had caught a stomach bug that had gotten very aggressive. It was only 2 weeks after her diagnosis that she was advised to have her colon removed and to start her J-Pouch surgery process. We talked to her about the dramatic way that she was introduced to our community and how she worked with her medical team to make this decision. We talk to her about the issues that she's experienced with her J-Pouch and how she's coping with that. We talked to her about how she's focused on her mental health to help with her coping skills and also how she's worked with her employer to get the accommodations that she needs to be the best employee she can be. We also spoke about how living with an illness like this can lead you to examine your life and your relationships and how that can lead you to making some big, and at times scary choices to allow you to grow and lead the life you deserve. We really enjoyed hearing Alex's perspective and all that she's learned and we know you will too. Let's get social!! | |||
| 15 Nov 2023 | Meet Dr. David Schwartzberg- Colorectal Surgeon! | 00:53:49 | |
This week we had such a great conversation with Dr. David Schwartzberg! Dr. Schwartzberg is a double-board certified colorectal surgeon at Mather Hospital and Columbia specializing in IBD, pelvic floor conditions, re-operative colorectal surgeries, J-Pouch disorders, and minimally invasive surgical techniques. We talked to him about his passion for colorectal surgery and how he spends any free time he has that's not with his family researching and learning more about it. We talked to him about his drive to find a career that helped people and had a true impact on the world. We discussed his interest in J-Pouches and improving complications that may come with previous surgeries. We explored how some folks that had been diagnosed with UC to start may now have a Crohn's diagnosis post J-Pouch and also upper GI Crohn's disease. We also talked about his love of music and how he and his wife have fostered that love in his 3 boys. We also talked about many other things including the improved technology in buckets but I cut that part out. Needless to say we laughed, we cried, we went off the rails but I promise you're getting the best part. We don't think Dr. Schwartzberg could be more more passionate about caring for people living with IBD and their families and we can't wait for you to hear that in this conversation too.
Let's get social!! | |||
| 22 Nov 2023 | Meet Bianca H.! | 00:45:46 | |
This week we had the pleasure of talking with Bianca Hernandez! Bianca was diagnosed with Crohn's disease in 2015 and she almost immediately parlayed her diagnosis into advocacy for her community. She worked with her school system to get better access to the private bathroom at her school and rallied and inspired other students affected by IBD to advocate for this in their schools. She was selected to join the National Council of College Leaders program at the Crohn's & Colitis Foundation- USA which allowed her to lead in many other advocacy initiatives including step-therapy reform and Ally's law and to work on ensuring that educational materials developed were properly translated into Spanish. This program also introduced her to life-long friends and other inspiring young people in the IBD Community. We talked about her advocacy work and how her efforts to ask for what she needed lead her to becoming a fierce advocate for the whole IBD community. We discussed the perils of comparing your healthcare decisions and disease with other people's journeys and how to destigmatize medical decisions and to not compare yourself to others. We discussed how IBD impacts the Latinx community and ideas on how to raise awareness about IBD and colon cancer screening within these communities. Bianca was so much fun to talk to and is so inspiring. I know you'll find her passion as infectious as we did.
Let's get social!! | |||
| 29 Nov 2023 | Meet Ashley M.! | 00:41:41 | |
This week we talked to Ashley Mann! Ashley was diagnosed with Crohn's disease when she was 20 years old but she had been experiencing symptoms when she was in high school. We talked to her about what it was like being a competitive cheerleader with active disease. We talked to hear about what she describes as trying "every medication on the market" and navigating countless surgeries. We discussed her decision to move to a permanent ileostomy and how close she is to living with short-gut syndrome. We talked about how she's had to learn to manage her healthcare and advocate for herself while moving frequently because of her husband's career in the military. We also talked about what it was like to get her care in the military healthcare system and her experience with friend-of-the-show, Dr. Anish Patel. Finally we talked about the importance of making healthcare decisions that you feel are right for you even in the face of differing opinions from the people most important to you.
Let's get social!! | |||
| 06 Dec 2023 | Meet Michele Rubin, APN! | 00:53:18 | |
This week we spoke to Michele Rubin! Michele is an advanced practice nurse and is the Associate APN Director of the IBD Center at the University of Chicago Medicine. She specializes in surgery for IBD and has helped to create a J-Pouch specific clinic. We talked to her about surgery part of the treatment options, J-Pouches and what to expect in recovery, and how she works with patients to ensure they have the best outcomes. We also discussed the research that she's done related to IBD surgery and their efforts to try to predict a patient's response to their J-Pouch and how to treat complications. Finally we talked about how and why a surgeon may choose to hand sew instead of use surgical staples. Michele has been in the IBD space for a long time and has so much knowledge to share and she was such a joy and a light. We could have talked to her for hours. Let's get social!! | |||
| 13 Dec 2023 | Meet Liam R.! | 00:58:14 | |
This week we spoke to Liam Robertson! Liam was diagnosed with UC when he was a young adult but the process was lengthy and filled with times when he was not believed. We talked about what that was like to navigate the health system and his feelings on it. We discussed how he got so involved in social media, how that's helped him cope with flares and complications, and the importance of having a community around you. We also talked about the books that he's written including "More Than Meets the Eye: Living with Ulcerative Colitis" and the kids book series about Jack Jupiter who is a child living with IBD. We talked about what prompted him to write the books and the response he's gotten from people all over the world. We also discussed his job on an oil rig and what that's been like for him to be so far away from medical care with UC. And finally we spoke about him training in muay thai- what got him interested and more. Liam was so much fun to talk to! Go check out his books.
Let's get social!! | |||
| 20 Dec 2023 | Meet Dr. David T. Rubin! - EPISODE 100! | 01:22:53 | |
Welcome to our 100th episode! This week we talked to the renowned Dr. David T. Rubin! Dr. Rubin is the Joseph B. Kirsner Professor of Medicine and a Professor of Pathology, Chief of the Section of Gastroenterology, Hepatology & Nutrition and the Co-Director of the Digestive Diseases Center at The University of Chicago Medicine. He also currently serves as an associate faculty member at the MacLean Center for Clinical Medical Ethics, an associate investigator at the University of Chicago Comprehensive Cancer Center and is a member of the University of Chicago Committee on Clinical Pharmacology and Pharmacogenomics. He is the chair of the National Scientific Advisory Committee of the Crohn’s & Colitis Foundation, where he also serves as a Board of Trustees member. He is the deputy chair of the Executive Committee of the International Organization for the Study of Inflammatory Bowel Disease. In 2018, Dr. Rubin completed the Harvard T.H. Chan School of Public Health Leadership Development Course for Physicians. Dr. Rubin is a Fellow of the American Gastroenterological Association (AGA), the American College of Gastroenterology (ACG), the American Society for Gastrointestinal Endoscopy (ASGE), the American College of Physicians (ACP), and the Royal College of Physicians (Edinburgh). He is on the Board of Trustees for the ACG. Among numerous awards and honors, Dr. Rubin was chosen by his peers as a member of Best Doctors (recognized for superior clinical ability) and America’s Top Physicians (gastroenterology). Additionally, he twice received the ACG’s Governor’s Award of Excellence in Clinical Research (2003 and 2013), and the UChicago Postgraduate Teaching Award in recognition of significant contributions for fellowship education (2006). In 2012, he received the Crohn’s & Colitis Foundation’s Rosenthal Award, a national leadership award bestowed upon a volunteer who has contributed in an indisputable way to the quality of life of patients and families. He is an Associate Editor of the journal Gastroenterology and Editor-in-Chief of the ACG On-Line Education Universe. In 2020, Dr. Rubin received the Sherman Prize for Excellence in Crohn’s and Colitis. Dr. Rubin is an editor of a best-selling book Curbside Consultation in IBD which is now in its 3rd edition and an author or coauthor of over 500 articles on treatment and management of IBD, cancer in IBD and novel paradigms, as well as the first author of the 2019 ACG Guidelines for ulcerative colitis. His current research is in the area of novel approaches to monitoring of IBD (wearables and point of care intestinal ultrasound), prevention of progressive complications from uncontrolled inflammation, and a variety of collaborative and translational studies related to the causes of IBD and its complications. Episodes from some of Dr. Rubin's UChicago's team:
Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthc Let's get social!! | |||
| 10 Jan 2024 | Meet Amalia Karlin, RD! | 00:50:59 | |
This week we talked to Registered Dietitian, Amalia Karlin! Amalia experienced symptoms very similar to UC but she struggled to get a diagnosis. Eventually her symptoms got to be so severe she had to have a colectomy and now lives with an ostomy. After that she decided that she as going to devote her career to helping other people living with ostomies to maximize their nutrition and live their best lives. We also talked to her about life with an ostomy, the healthcare system in Canada, and experiencing pregnancy with an ostomy. She has a very dramatic story but we think you'll love meeting her as much as we did
Let's get social!! | |||
| 24 Jan 2024 | Meet Dr. David Binion! | 00:57:49 | |
This week we had the absolute pleasure to talk to Dr. David Binion! Dr. Binion is a physician-scientist who is also living with Crohn's disease. He is Co-Director of the IBD Center at the University of Pittsburgh School of Medicine. He was diagnosed with Crohn's when he was a teenager- before the information age and also before there were many treatment for IBD. He has devoted his career to analyzing "Big Data" to figure out how to predict disease outcomes, prognosis and flares. We talked to him about his longitudinal research, what he's learned, and how that's given him hope as an IBD patient. We talked to him about what he's seeing in reclassifying IBD into more subcategories and what that will mean for more effective treatment and also what he sees on the horizon for IBD research. Let's get social!! | |||
| 07 Feb 2024 | Meet Jordan M.! | 00:58:51 | |
This week Alicia was joined by guest host and past guest, Derek Dodson! They interviewed Jordan B. McConnell! Jordan is a Air Force veteran, IT professional, father and husband who also lives with Crohn's disease! We talked to him about being diagnosed as a young teen and how his disease was presented to his family and how he was able to join the military and how that affected his ability to continue in his military career. Jordan is also the creator and one of the hosts of the Crohn's Veteran podcast and lifestyle brand. We talked to him about creating the show, recruiting his co-hosts, and all of the amazing guests that they were able to interview as well as the community they created around the show. We also discussed coping with IBD as a male and how that may create situations where one may feel stifled in expressing needs and so much more. We had such a great conversation with Jordan and we can't wait for you to get to know him as well.
Let's get social!! | |||
| 21 Feb 2024 | Meet Dr. Jordan Shapiro! | 00:54:30 | |
***Warning that this episode discusses eating disorders, disordered eating, and medical trauma.*** This week we spoke with Dr. Jordan Shapiro! Dr. Shapiro is a GI Hospitalist at Peak Gastroenterology Associates in Colorado as well as a private practice GI at Gentle GI in Houston, TX (starting April 1, 2024). Dr. Shapiro also is a yoga instructor and enthusiastic practitioner and so we spend quite a bit of time learning about the practice of yoga that goes beyond the body movements we're probably all familiar with and how adding yoga to your care may be beneficial. He also has expertise in working with patients with eating disorders or disordered eating as well as in trauma-informed care. We talk to him about how he approaches patient care in a empathetic way and how he works with patients who have identified trauma experiences that may impact their care. We also talk to him about how he uses this knowledge and experience to help other providers learn how to create a safe environment for people who may be struggling with trauma responses. We really enjoyed this conversation with Dr. Shapiro and think you'll learn a lot from him as well.
Let's get social!! | |||
| 06 Mar 2024 | Meet Stephanie Brenner, LCSW! | 00:54:21 | |
This week we had a great conversation with Stephanie Brenner! Stephanie is a Licensed Clinical Social Worker at Chronic Illness Psychotherapy in Evanston, IL who has 13 years of experience working with clients with chronic illnesses. Through her journey as an IBD patient and clinician, she has developed a passion for helping people with health challenges live their lives to the fullest. We talked to her about how living with her IBD helped her develop a passion for being a therapist for kids and adults with chronic illnesses. We also discussed doing therapy with kids, medical hypnotherapy, medical gaslighting and how she works with people as they take on a new identity as they cope with a new diagnosis. We also discuss the guide for parents of kids with Crohn's that she wrote in coordination with Tina Aswani-Omprakash (Own Your Crohn's, SAIA, etc!). We spent a while talking about how she works with patients who may need to address challenges with healthcare providers who they need to remain connected to. We discussed so many aspects of mental health and tapped into Steph's professional experience and brain that we'll have to bring her back to talk more about her IBD and living with an ostomy!
Let's get social!! | |||
| 20 Mar 2024 | Meet Courtney W.! | 00:50:33 | |
This week we had such a great conversation with Courtney Walls! Like several of our guests, Courtney had a pretty dramatic introduction to the IBD community including needing urgent surgeries, C-diff infections, fistulizing disease, and she's now living with an ostomy (happily). We talked to her about going through all of that while also living with anxiety and how she's processing it using mental health therapies like CBT and internal family systems and going through the Employee Assistance Program through her work. Courtney also started a very successful Instagram account about her Crohn's journey called courts_crohns_corner. We talked to her about what it was like putting her story out so publicly, how different it is to be talking about her disease and her treatment decisions in real time versus sharing past history, and about how she's using her account to give support to others while also getting some herself. Finally we discussed her love to Charles Barkley and Arizona.
Let's get social!! | |||
| 03 Apr 2024 | Meet Kim Braly, RD! | 00:47:59 | |
This week we talk to Kim Braly, RD! Kim is a Registered Dietitian that specializes in IBD, consults on nutrition and IBD-related research studies, has expertise on IBD nutrition program development and educates practitioners on nutrition therapies for IBD. She is currently in private practice seeing adults and kids living with IBD virtually across the country. Previous to this she was part of the IBD Center at Seattle Children's Hospital where she saw patients as well as developed and participated in research studies on nutrition therapies for IBD. We talked to her about what it was like to develop these studies and how challenging it is to control for all the potential changes that can happen when participants are cooking their own foods. We talked about the Specific Carbohydrate Diet and how she talked to patients about the expectations and prepared them to take it on. We also talked about the efficacy of several diet therapies. We also discussed health and economic disparities and how these might affect the ability of some families to consider dietary therapies and the lack of insurance coverage to help. Finally we talked about the website that she developed with a woman living with Crohn's disease who was her patient at Seattle Children's called Eats for IBD. This website provides much-needed nutrition support and practical resources to those with IBD including educational sessions, support options, and delicious recipes that are friendly to dietary therapies. We had a lot of fun talking with Kim and we learned so much too! Cheers!
Let's get social!! | |||
| 17 Apr 2024 | Meet Abigail Marie- The Chef with IBD! | 00:48:34 | |
This week we talked to Abigail VanHoose- otherwise known as Abigail Marie the Check with IBD! Abigail was diagnosed with UC after a bad car accident and after she finished culinary school. Her disease journey was definitely rocky and very impacted by substandard medical care. Like may people living with IBD, she was told that "diet doesn't matter" but after dealing with multiple flares, she found the book "Breaking the Vicious Cycle that outlines the Specific Carbohydrate Diet and how it can be helpful for people with IBD. She decided to give it a try but found the recipes to be....less than exciting. She decided to put her culinary talents to work and started coming up with new recipes that followed the diet and than led her to decide to share her knowledge in her blog. We talked to her about following the SCD, how she creates the recipes, what she includes on her blog, and her favorite recipes. We also talked to her about her work with the nonprofit Nutrition Therapy for IBD and how she's been able to help them grown their recipe database, expand their social media, and much more. Finally we go on a rant about the medical system, steroids, and medical education. If you've listened to previous episodes, you know this is unsurprising. We had a great time hearing from Abigail, we know you will too and we're all set to try some of her yummy-sounding recipes. Cheers!
Let's get social!! | |||
| 01 May 2024 | Meet Dr. Megan Riehl! | 00:50:37 | |
This week we had such a great conversation with Dr. Megan Riehl! Dr. Riehl is a GI Psychologist, Assistant Professor of Medicine and the Director of GI Behavioral Health at the University of Michigan. We talked to her about all things IBD and mental health and how she helped to establish and incorporate GI behavioral health into the IBD center at the University of Michigan. We also talked to her about her interest in innovations in digital therapeutics, how she's worked with some developers to ensure the efficacy and quality of their products, and what apps that she recommends to patients as well as providers. We talked to her about her new book! It's called "Mind Your Gut: The Science-Backed Whole-Body Guide to Living Well with IBS." While this book is geared for people living with IBS, there is some really great information in there for people living with IBD as well and we discussed this with Dr. Riehl as well. Finally we went over some additional virtual resources that she finds helpful for patients. We really enjoyed talking with Dr. Riehl and we know you'll learn so much from her as well.
Let's get social!! | |||