Airing Pain (Airing Pain)
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| Date | Titre | Durée | |
|---|---|---|---|
| 27 Apr 2011 | 1: Introduction to Pain | 00:29:07 | |
In this first Airing Pain programme we introduce the subject of pain and its management with contributors with a variety of expertise and experience. Professors Blair Smith and Richard Langford take us through the causes of chronic pain and conditions associated with it, while Sherrill Snelgrove and Kiera Jones talk about the challenges faced by patients in being understood by the health professions. Dr Beverly Collett and explains the importance of the patients’ own understanding in managing their condition and keeping active.
We also feature short interviews with some of the experts we’ll hear more from in later programmes: Professor David Walsh discusses the importance of multidisciplinary approaches in helping patients to manage their pain, Professor Nick Alcott and Claire Rayner encourage older people to get help with their pain and Nicole Tang talks about how people with pain can improve their sleep, and finally, Pete Moore give some words of encouragement based on his own experience of learning to live well with pain.
In this programme:
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| 27 Apr 2011 | 2: Nerve Pain and How to Manage it | 00:29:43 | |
Elizabeth Carrigan of the Australian Pain Management Association talks about how pain management techniques helped her come to terms with chronic neuropathic pain after spinal injury. We speak to experts on neuropathic pain about how nerve damage can lead to prolonged pain and the drug treatments available, including amitriptyline, anti-epileptic drugs and the more controversial opioids. We also take a look at the issue of chronic pain after nerves are damaged in surgery or chemotherapy.
Also in the programme: Dr Mark Turtle is in the chair for our Q&A session providing answers to your questions about living with and managing pain.
In this programme:
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| 27 Apr 2011 | 3: Children in Pain | 00:29:42 | |
Chronic pain is as widespread in children and young people as in the population as a whole, but is probably even less well understood. Jan Barton and her son Sam, who grew up in constant pain, discuss their struggle to get a proper diagnosis and to find effective treatment, while, Dr Christina Liossi explains how hypnosis can be particularly valuable as an approach to managing pain for children. Dr Amanda Williams describes the psychologist’s role in helping patients manage their pain and Dr Tonya Palermo explains how a psychologist can explain pain to young people.
We also pay tribute to the late Claire Rayner, indefatigable campaigner for patients’ rights and patron of Pain Concern, who died October 12th aged 79.
In this programme:
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| 27 Apr 2011 | 4: Diet, CBT and Mindfulness | 00:30:00 | |
In this programme Airing Pain looks at a range of lifestyle changes and psychological approaches we can use to help with managing pain. Dr Rae Bell tells us how a good diet can help in managing pain, telling us about foods which are natural painkillers and why we should perhaps give cola a miss. Ron Parsons describes the exercise routine which has helped him to manage his lower back pain.
Prof Chris Main discusses Cognitive Behavioural Therapy and Vidyamala Burch explains how mindfulness can help people to live in the moment and accept pain while overcoming fear, anxiety and depression. Pain specialist Dr Mark Turtle answers your questions on weight loss, getting referred to a pain management programme by your GP and coping with visits to the dentist in our Q+A session.
In this programme:
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| 28 Apr 2011 | 5: Learning to Live with Pain | 00:29:42 | |
Pain management programmes can ‘remove the barriers’ that prevent people with pain from living a normal life, says Dr Owen Hughes of the Pain and Fatigue Management Centre in Bronllys, Wales.
Presenter Lionel Kelleway returns to the Bronllys Residential Pain Management Programme where he himself was a patient to talk with staff and patients about what happens on the programmes and also shares his own experience. Mary Rhys Williams describes her work as an occupational therapist helping patients to adjust their lifestyles and consultant Mark Turtle explains what makes a patient suitable for a pain management programme. We also hear from Sheila Day, whose partner has chronic pain, about the challenges faced by the loved ones of people with pain.
In this programme:
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| 28 Apr 2011 | 6: Pacing and Arthritis | 00:30:25 | |
Pacing is the thing that makes the most difference to his patients’ lives, says David Laird, Consultant in Anaesthesia and Pain Management in County Durham. We hear about how pacing allows people to build up slowly to doing more, and Pete Moore describes getting his life back on track and becoming a patient expert on pain management.
Also in the programme: Dr David Walsh provides information about the different forms of arthritis and the treatments available and Dr Paul Johnson and Nia Taylor set out some of the opportunities and challenges facing pain services over the next few years. In our Q&A session, specialist nurse Ruth Day answers your questions on painkillers.
In this programme:
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| 28 Apr 2011 | 7: Exercise and Improving Mobility | 00:30:00 | |
Airing Pain visits the Frenchay Hospital Pain Clinic in Bristol where we hear from staff and patients. Paul Evan sits in on a consultation with physiotherapist Pete Gladwell and hears the advice given to one patient about how to increase her mobility and exercise without causing flare up. We learn about how to talk to your health professional and the different ways of assessing pain. Also covered is how well funded Pain Care is by the health services, and the patients at Frenchay tell us their stories of living with and managing pain.
In this programme:
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| 28 Apr 2011 | 8: Work and Benefits | 00:29:42 | |
In the wake of the government’s introduction of the Employment and Support Allowance (ESA) which will see all people already on incapacity benefits reassessed for their ability to work by 2014, Airing Pain discusses benefit reforms as well as how work affects those living in pain and how they can stay in, or get back into, work.
Chris Main, Professor of Clinical Psychology at Keele University, and Elaine Heaver of the Bath Centre for Pain Research take us through the evidence showing the health benefits from being in work and explain how GPs now give ‘fit notes’ as well as sick notes. Paul Watson gives some advice on how to stay in work and talk to your employer and Dr Shilpa Patel talks about the barriers faced by unemployed people with chronic pain.
In this programme:
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| 28 Apr 2011 | 9: Relieving Pain: TENS and acupuncture | 00:29:42 | |
We take a look at the role of the pain specialist nurse in the community, eavesdropping on two consultations given by Kathryn Nur at her nurse-led clinic at Tenby Cottage Hospital, Pembrokeshire. We hear how Kath helps her patients, learning about what TENS machines are, how to use them and how they can help those in pain, how acupuncture can also help, and the importance of listening to what the patient has to say.
On the contentious issue of how little training medical students receive on pain matters – fewer hours than vets – Ann Taylor from the faculty of pain medicine at Cardiff University talks about a web service that may go some way towards redressing the imbalance.
In this programme:
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| 28 Apr 2011 | 10: Young People in Pain | 00:29:42 | |
Paul Evans visits the Centre for Pain Services at the Royal National Hospital for Rheumatic Diseases at Bath to find out about the pain management programme there. Clinical Director Dr Lance McCracken explains how the programme helps people get on with their lives and we meet the patient group to learn about their experiences in living with pain, what brought them to Bath and the things they’ve learned during their time on the programme. We also hear about how the team at Bath provide specific services to younger people and how pain affects their families and sleeping habits.
In this programme:
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| 28 Apr 2011 | 11: Music and Knitting | 00:29:41 | |
Paul Evans gets a knitting lesson when he visits the Stitchlinks group in Bath, where people use craft activities to manage their pain. Betsan Corkhill and Dr Mike Osborn talk about the medical science behind it, while the knitting group talk about their own experiences. We also meet Dr Laura Mitchell who subjects volunteers to pain tolerance testing to see how music can help relieve feelings of pain.
In this programme:
#AbleRadio #AiringPain #PainConcern
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| 28 Apr 2011 | 12: Trigeminal Neuralgia, Pelvic Pain and Cannabis | 00:29:36 | |
Paul Evans looks at the often uncomfortable subject of pelvic pain and how both women and men can get help. Dr William Notcutt, expert on medicinal cannabis use, talks about the potential for pain relief, side-effects and future possibilities of the controversial drug.
Nicky Jones tells her story of living with trigeminal neuralgia, with Jillie Abbot and Prof Joanna Zakrzewska providing more information.
In this programme:
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| 28 Apr 2011 | 13: Culture, Epidemiology and Back Pain | 00:28:35 | |
How do culture and religion affect the way we experience and manage our pain? Dr Shilpa Patel, Dr Sue Peacock and Sir Michael Bond talk about the relationship between cultural background and pain.
Also in the programme: Dr Steve Gilbert answers questions from people experiencing back pain; Phil Sizer of Pain Association Scotland provides advice on pain management programmes; and we learn about the epidemiology of pain and hear from Generation Scotland about how their study of pain in the Scottish population can help with the identification of risk factors.
In this programme:
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| 28 Apr 2011 | 14: Recent Developments in Nerve Pain and How to get a Good Night's Rest | 00:29:42 | |
Paul Evans meets Edith Mowatt who has nerve root pain and hears how she has learned to manage her condition and about her experience of spinal cord stimulation. We hear a doctor’s view on these machines from Dr Steve Gilbert, and how they can also be used to treat complex regional pain syndrome. Dr Candy McCabe tells us more about this condition, as well as the use of mirrors in therapy for phantom limb pains.
Finally, Professor Mark Blagrove and Dr Nicole Tang explain how pain affects sleep, and how a good night’s rest with the help of cognitive behavioural therapy can ease pain symptoms.
In this programme:
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| 28 Apr 2011 | 15: Effective Communication: Patients and professionals | 00:29:43 | |
Communication is fundamental to the relationship between patient and healthcare professional. In this programme Airing Pain looks at this issue from both the patient and doctor’s point of view. Psychologist David Craig of Glasgow comments on his communication skills training DVD for chronic pain professionals. GP Mark Ritchie explains how depression and chronic pain can be linked, and gives advice on how patients can prepare for medical consultations, using the memory aid: Ideas, Concerns, and Expectations. And finally, we hear from a number of patients about how they effectively broke down any communications barriers with health professionals in order to gain the most that they could from their consultations.
In this programme:
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| 28 Apr 2011 | 16: Power over Mind and Body | 00:29:43 | |
Pain management programmes teach people with pain the strategies they need to live as full a life as possible. Paul Evans talks to patients and professionals at Astley Ainslie Hospital in Edinburgh to hear their uplifting approaches to pain management. The programme focuses on the way that mind and body work together, with psychologists playing as important a role as physiotherapists. It looks at how tackling negative thoughts and patterns of behaviour are as crucial as dealing with the physical aspects of pain.
We also get an insight into the amazing benefits of hydrotherapy for those in pain, helping people to take the first step towards getting back into exercise.
In this programme:
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| 10 May 2011 | 17: Primary Care and Pain in the Brain | 00:29:58 | |
Airing Pain was at the launch of the British Pain Society’s Primary and Community Care Special Interest Group where we heard from healthcare professionals who are working to improve the management of pain conditions in the UK. The crucial role of GPs in recognising and treating pain was especially emphasised.
Plus, is pain all in the mind? Paul Evans learns about the science behind pain in the brain and the exciting studies being done by Prof Irene Tracy and her team at the Oxford University Brain Imaging Unit.
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| 23 May 2011 | 18: Growing Older with Pain | 00:29:56 | |
Pain has often been seen as an inevitable part of getting older. Airing Pain listened in to a panel of experts at a ‘Growing Old with Pain: Innovation, Creativity and Development’ conference in Edinburgh to hear how pain treatments can dramatically improve the quality of life of older patients. The importance of family and carers taking an active role in the management of elderly patient’s pain is highlighted, along with the importance of raising awareness of the best treatments for pain in older people among health professionals. We also hear the inspirational story of Michael and Rosemary Morrison who together have rebuilt their lives around their chronic back pain and the benefits of using computers and computer games to access information and exercise.
In this programme:
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| 03 Nov 2011 | 19: Family Therapy | 00:29:58 | |
Pain can sometimes seem like an ‘uninvited guest’ or ‘intruder’ into family life. In this programme we look at the strain pain places on all personal relationships and how family therapy can help. Clinical psychologist Dr Elaine McWilliams talks about the impact of pain on the sexual and intimate side of a relationship, and she and family therapist Jan Parker also explain the effects of pain on the parent-child relationship. Psychiatrist Dr John Rolland explains how a ‘resilience approach’ can help families to move forward together.
In this programme:
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| 17 Nov 2011 | 20: The Social Costs of Pain | 00:29:56 | |
Pain has a huge impact not just on individuals but also on society, healthcare systems and the economy. Airing Pain takes a look at how the International Association for the Study of Pain’s Declaration of Montréal and EFIC (the European Federation of International Association for the Study of Pain Chapters) are working to drive pain up the political agenda. We interview experts in healthcare policy and chronic pain treatment as well as patient groups at EFIC’s European Societal Impact of Pain symposium for their views on how the way society and the medical profession respond to pain could be improved.
In this programme:
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| 01 Dec 2011 | 21: Opioids and Managing Pain in Remote Areas | 00:29:53 | |
In this programme we hear about the challenges facing people with chronic pain in isolated parts of the country and how a pain management programme in the Highlands is helping such patients. Dr Cathy Stannard clears up some of the misunderstandings surrounding opioids and explains when they can and can’t help with chronic pain and the possible side-effects of taking them.
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| 16 Dec 2011 | 22: Pain Support Groups and Facial Expressions | 00:29:12 | |
People with mental illness and chronic pain often find it difficult to access the treatment they need. Specialist nurse Valerie Conway talks about her work in providing carers with the skills to better look after people with Alzheimer’s and dementia who have pain.
Measuring pain through facial expressions is one way in which health professionals can become more aware of the needs of those who are unable to verbalise their experience. Professor Jeffrey Mogil tells Airing Pain about his work measuring pain responses in the facial expressions of mice and how this could help in understanding human pain and in finding new drug treatments for pain.
We also hear from Sue Clayton about how sharing her experiences and getting pain management advice at a pioneering chronic pain support group in the eighties helped her put her life back together after post-surgical pain.
In this programme:
#AbleRadio #AiringPain #PainConcern
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| 03 Jan 2012 | 23: Complex Regional Pain Syndrome | 00:29:37 | |
Paul Evans talks to Sunny Boshoff about her experience of complex regional pain syndrome and learns more about the causes of the condition from Dr Bill Macrae. We also hear from him and Dr Joan Hester about their work counselling and treating patients requiring limb amputations, including the use of the Visual Feedback Mirror to help those who have phantom sensations in their amputated limb.
In this programme:
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| 13 Jan 2012 | 24: Exercise and Managing Pain | 00:29:55 | |
Paul Evans takes the plunge with Daphne Wood of Pain and Able to find out more about how swimming combined with the Alexander Technique can help people with persistent pain conditions. Physiotherapist and Pain Concern expert advisor Paul Cameron answers listeners’ questions on issues from dehydrated spinal discs to losing weight to reduce pain.
In this programme:
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| 30 Jan 2012 | 25: A Heads-Up on Migraines | 00:29:43 | |
Nine out of ten people report a lifetime history of head pain and 2012 has been designated the Global Year Against Headache by the International Association of the Study of Pain. Paul Evans finds out more about migraines from Dr Giles Elrington of the National Migraine Centre in London. We also hear from people who live with chronic migraine about their experiences, what triggers their episodes and the treatments they’ve tried, and Heather Sim tells us the steps to take to get referred to a migraine clinic.
In this programme:
#AbleRadio #AiringPain #PainConcern
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| 14 Feb 2012 | 26: Transforming Pain Services: Joining up pain management and involving the patient | 00:29:51 | |
The relationship between doctor and patient is crucial in managing pain. In this programme we look at how the British Pain Society’s newly launched Pain Patient Pathways Project should improve the way health professionals manage chronic pain conditions. We’ll hear from a patient about her varied experiences with health professionals and from doctors involved with treating pain about the importance of patients getting involved in the treatment of their own condition.
In this programme:
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| 21 Feb 2012 | 27: Arthritis: Challenging perceptions | 00:29:51 | |
In this programme we tackle the issue, raised by Judy on our forum, of how people with arthritis – which often has no obvious physical symptoms – can get help in explaining their condition to those around them. Professor David Walsh explains about the different kinds of arthritis. Jo Cumming, Kate Llewelyn and Minal Smith of Arthritis Care talk about their own experiences of the challenges of living with pain and how the information the charity provides can help people like them.
Although arthritis is commonly thought to be a condition which only affects the elderly it can affect people of all ages – even babies. Kate Llewelyn, who developed arthritis at a young age, tells us about Arthritis Care’s booklet for parents, which provides strategies on how to adapt family life when a child is diagnosed with a form of the disease.
In this programme:
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| 15 Mar 2012 | 28: Self-Management: Pacing and communication | 00:29:55 | |
In the previous edition of Airing Pain we featured the work of the charity, Arthritis Care, and, following up from that programme, Paul Evans looks into their self-management programme, the Challenging Pain Workshop, which is available to people with any kind of chronic pain, not just arthritis. We listen in to the course’s volunteer tutors and participants as they discuss learning to pace activities and improving communication skills. We also hear from Rachel Gondwe about how volunteers gain from sharing their experiences of pain and about a trial run by Arthritis Care in partnership with a health authority to measure the effectiveness of self-management programmes.
In this programme:
#AbleRadio #AiringPain #PainConcern
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| 28 Mar 2012 | 29: Fibromyalgia | 00:29:47 | |
Fibromyalgia affects an estimated 2.7 million people in the UK, yet it is a condition which is poorly understood leaving the people with it often facing ignorance and prejudice. Presenter Paul Evans, who has fibromyalgia himself, talks with Lexy Barber about her experiences of coping with it. We also hear from Professor Ernest Choy and Professor Dwight Moulin about advances in medical knowledge of the condition and possible ways of managing symptoms.
In this programme:
#AbleRadio #AiringPain #PainConcern
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| 05 Apr 2012 | 30: SUCCESSful Research into Chronic Conditions | 00:29:51 | |
How can patients with chronic pain get involved with research into managing their condition? Paul Evans talks to SUCCESS (Service Users with Chronic Conditions Encouraging Sensible Solutions) a group of patients, carers and former patients with experience of chronic conditions who work with researchers at Swansea University. The service users get involved with advising research teams working on healthcare policy, ensuring that patients’ priorities are reflected in social research and policy and that researchers get the benefits of the service users’ expertise.
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| 18 Apr 2012 | 31: Brain Imaging: Looking into your pain | 00:29:58 | |
In this programme we feature two areas of research which are helping in the understanding of pain.
Professor Karen Davis, a neuroscientist at the University of Toronto, Canada, explains how brain-imaging technology has revealed the overlap between experiences of pain and other sensations such as fear.
Dr Yves De Koninck, Director of the Quebec Pain Research Network, discusses how the latest research on chronic pain supports the position that pain is a condition in its own right caused by abnormalities in the nervous system.
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| 03 May 2012 | 32: Pain Management Programmes | 00:29:34 | |
Airing Pain sheds some light on pain management programmes: what they are, and how they can help. Paul Evans pays a visit to the Glasgow Pain Management Programme where he talks to health professionals and patients.
The programme’s clinical leader, consultant clinical psychologist Martin Dunbar, explains how his team help patients rebuild their lives despite continuing to experience pain. We hear patients on the programme speak about how they have benefited from sharing their experiences and better understanding their pain and Lyn Watson, the programme’s specialist nurse, talks about how she helps patients to manage their medications and get the most out of medical appointments.
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#AbleRadio #AiringPain #PainConcern
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| 16 May 2012 | 33: Gender and Communication | 00:29:45 | |
We hear about orofacial pain (pain of the face and mouth) from Dr Barry Sessle, a professor in the Faculty of Dentistry at the University of Toronto in Canada. Dr Sessle also explains why some types of chronic pain are more common in women than men. Continuing with this topic, clinical psychologist Dr Amanda Williams talks about pelvic pain and the difficulties men in particular have in coming forward to seek treatment.
The International Association for the Study of Pain designated 2012 as the Global Year Against Headache. We speak with a husband and wife on how they manage as a couple to live with husband Phil’s debilitating cluster headaches.
In this programme:
#AbleRadio #AiringPain #PainConcern
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| 30 May 2012 | 34: Ankylosing Spondylitis; The Patient Perspective | 00:29:56 | |
In this programme we look at ankylosing spondylitis (AS), a form of arthritis affecting the spine. Paul Evans speaks to Iain MacDonald and Tom Downie of the Edinburgh branch of the National Ankylosing Spondylitis Society, about their role in supporting people with the condition. Paul also talks to Janice Johnson of PSALV (Psoriasis Scotland Arthritis Link Volunteers) about psoriasis.
We also interview speakers from the Annual Scientific Meeting of the British Pain Society. Pain Concern’s Sue Clayton gives a patient perspective to healthcare professionals, while Emma Briggs of the British Pain Society’s Pain Education Special Interest Group explains the importance of improving the pain education of healthcare professionals.
In this programme:
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| 13 Jun 2012 | 35: The Northern Ireland Pain Summit: Pain, policy and employment | 00:29:46 | |
A special edition of Airing Pain, covering the 2012 Northern Ireland Pain Summit, organised by the Pain Alliance for Northern Ireland. There we interviewed representatives from government and the voluntary sector, health professionals, and of course patients.
We hear about the needs of patients and provision of pain services in Northern Ireland from, among others, Chief Medical Officer, Dr Michael McBride, and Dr William Campbell, Consultant in Anaesthesia and Pain Medicine at Ulster Hospital, Dundonald, Belfast. Patients attending the summit give us their stories and say what brought them there and Tanya Kennedy, director of Business in the Community, sets out her thoughts on how the world of business can better take account of chronic pain.
Dr Pamela Bell, Chair of the Pain Alliance for Northern Ireland, and Kate Fleck, national Director for Arthritis Care in Northern Ireland, conclude with their thoughts on the ‘road map’ for action following on from the pain summit.
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| 04 Jul 2012 | 36: Societal Impact of Pain | 00:29:52 | |
In this programme we explore issues affecting the management of chronic pain across the diverse societies of Europe.
In May 2012 over 400 delegates representing 35 European countries met in Copenhagen at the third Societal Impact of Pain conference organised by EFIC (the European Federation of the International Association for the Study of Pain Chapters). Airing Pain was there to listen in and speak to patient groups and leading experts on pain and public health policy from across the continent. We hear how chronic pain accounts for 500 million lost working days in the European Union every year, costing the EU economy over 34 billion Euros.
Interviewees talk about the strengths and weaknesses of pain management in their part of the continent, including Italian successes in raising political interest in pain treatment and a shining example of good practice in Kirklees, Yorkshire.
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| 27 Feb 2013 | 37: What is Pain? | 00:29:59 | |
In this programme Professor Lorimer Moseley, Professor of Clinical Neurosciences and Chair in Physiotherapy at the University of South Australia, explains the relationship between chronic pain and the brain, incorporating personal stories which illuminate this relationship. The importance of providing good explanations of pain to those living with it is also looked at. According to Moseley, the evidence shows that learning about your chronic pain can lead to a reduction in the pain you experience.
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#AbleRadio #AiringPain #PainConcern
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| 06 Mar 2013 | 38: Can Your Pharmacy Help? | 00:29:56 | |
Paul Evans speaks to Professor David Taylor from the University College London School of Pharmacy about the perceptions and reality of the pharmacist’s role and their skills. Pharmacist Emma Hinks talks about how pharmacists can help you with services like the Medicines Use Review (MUR), which looks at how you are getting on with your medicines. We also hear about the increasing emphasis on pharmacists communicating with their service users, working together with other services and recommending non-pharmaceutical forms of treatment.
In this programme:
#AbleRadio #AiringPain #PainConcern
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| 14 Mar 2013 | 39: National Pain Audit | 00:29:19 | |
t the launch of the National Pain Audit at the Science Museum in London, Paul Evans talks to people who took a leading role in its development about the need for an audit and what their findings suggest needs to be done in the future.
For the first time, the Audit will make available to patients and healthcare professionals detailed information on local pain management services. Richard Langford and Cathy Price of the British Pain Society discuss the reports findings, including the need for more pain clinics to adopt the minimum international standard for interdisciplinary services. This would enable them to take a biopsychosocial approach to pain management, which, as Richard Langford explains, can make a crucial difference to patients. Cathy Price also discusses how pain clinics could do more to help patients remain in or get back into employment.
We also hear from Christine Hughes and Jean Gaffin, who have both been involved in the campaign for better pain services, about the problem of inconsistent service provision and the need to work towards a national standard.
For more information on the National Pain Audit and to find out about your local pain services visit: www.nationalpainaudit.org
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| 28 Mar 2013 | 40: Children in Pain | 00:29:53 | |
This programme focuses on pain in children and young people, including the different needs they have and the unique challenges that their care presents compared to adult patients.
Paul Evans and Christine Johnston talk to experts at children’s hospitals in Edinburgh and Glasgow about the strategies they use for helping young people to cope with pain. Although there are obvious differences between treating an infant and a teenager, the aim is always to enable young people in pain to live the fullest lives they can, while minimising the effects on their education and socialisation.
We also consider the wider impact of a young person in pain upon the family unit and we hear from Sam Mason about how chronic pain has impacted his life at home and at school.
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| 10 Apr 2013 | 41: Inside a Multidisciplinary Pain Team | 00:29:58 | |
Presenter Paul Evans travels to Northern Ireland to meet a multidisciplinary pain team at Craigavon Area Hopsital, including doctors, psychologists and physiotherapists, led by Dr Paul McConaghy. We find out how cases of chronic pain are discussed by experts of different disciplines and how management strategies are then put into place. The importance of educating GPs about chronic pain is discussed, as well as the need for empathic and respectful professionals.
Paul Evans sees how the team works by sitting in on a meeting about an example patient: Dr Sam Dawson presents the case of a 38 year old woman with chronic lower back pain. Referred by her GP, treatment so far has not led to improvement and she is now experiencing depression.
The team discuss the strategies they would use in working together with such a patient. Psychologist Dr Nicola Sherlock stresses the importance of treating depression as it not only hinders the management of a person’s pain but worsens the symptoms and she and physiotherapist Michele McGeown explain the importance of dealing with pysychological issues, particularly fear of movement, in helping patients improve their physical fitness. The team also talk about how they could use TENS (transcutaneous electrical nerve stimulation) machines to help some patients and how medical doctors and psychologists can work together to understand how a patient is likely to respond to injections. Finally, Dr Jim McMullan explains how GPs can learn from and complement the multidisciplinary approach by listening carefully to the patient and taking into account psychological and social as well as physical aspects of their condition.
Glossary:
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| 24 Apr 2013 | 42: Endometriosis and Support Groups | 00:29:28 | |
This programme was funded by the Big Lottery Fund's Awards For All programme in Northern Ireland.
Paul Evans visits an endometriosis support group in Belfast, and interviews founder Anna Jaminson and guest speaker gynaecologist Dr David Hunter.
Dr Hunter discusses the research about how endometriosis develops and people living with the condition describe their experience in depth, including the impact upon personal relationships with family and friends. Members of the support group talk of their immense relief at finding people with similar stories to share.
We hear about the difficulties in diagnosing endometriosis – often mistaken for other conditions such as Irritable Bowel Syndrome – but also about some recent improvements to its management and the crucial role of sympathetic healthcare professionals.
We also learn more about surgical treatments and their likely prognoses, including hysterectomy, and we hear about the physical, psychological and emotional impact of such surgery.
Contributors:
#Endometriosis #Surgery #Familyandrelationships #Patientperspective #Educatinghealthcareprofessionals #Explainingyourconditiontoothers #Peersupport #Pelvicpain #Visceralpain
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| 08 May 2013 | 43: Patient Involvement and Pain Management | 00:29:47 | |
This programme was funded by the Big Lottery Fund’s Awards For All programme in Northern Ireland.
In this edition of Airing Pain, Paul Evans travels to Northern Ireland to visit a patients’ organisation, the Patient and Client Council. The Council provides patients with an independent voice in the health and social care system by involving those who live with chronic pain in the decision-making process and supporting patients who wish to make a complaint, with the overall aim of improving patient services in Northern Ireland.
Louise Skelly, Head of Operations at the Council, describes her organisation’s work promoting information and advice across the healthcare system and using patients’ experience, suggestions and stories to raise awareness of chronic pain. She highlights some of the advances and improvements that the Council has brought about in recent years.
Paul also speaks to pain patient and member of the Patient and Client Council’s pain strategy group, Jay Flood Coleman, who shares his own personal experiences of chronic pain which has been complicated further by a series of health issues.
Board member of the Patient and Client Council, Rena Shepherd, who herself lives with chronic pain, contributes with her first-hand expertise and explains that with little adjustment on the part of employers, employees suffering from long-term pain conditions can still work full-time and be productive, with self-management pain courses proving very beneficial.
Contributors:
#benefits #childrenandyoungpeopleinpain #chronicpainasaconditioninitsownright #educatinghealthcareprofessionals #generalpractitioners(GPs) #integratedhealthandsocialcarehealthcarepolicy #occupationaltherapy #painmanagementprogrammes #patientperspective #work
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| 22 May 2013 | 44: Pain Management at Both Extremes of Life | 00:29:23 | |
This edition has been funded by the Big Lottery Fund’s Awards for All Programme in Northern Ireland.
In this edition of Airing Pain, Paul Evans speaks to experts from Belfast and London about the similarities, differences and challenges in treating pain in infants and the elderly.
Maria Fitzgerald, Professor of Developmental Neurobiology at University College London, mentions the outdated theory that babies do not experience pain and how this misconception has been disproved. She raises the issue of communication, perhaps the biggest problem with babies and the elderly (particularly those with dementia) - if they cannot communicate about their pain effectively, their pain often cannot be adequately addressed. She also discusses the scientific research she and her team are carrying out as well as the importance of treating pain at an early age.
Paul speaks to Dr Pamela Bell, Chair of the Pain Alliance of Northern Ireland and former Lead Clinician for Pain Services at the Belfast Trust. She discusses how pain treatments work for infants and the consequences of not managing pain during the early stages of their development.
Peter Passmore, Professor of Aging and Geriatric Medicine at Queen’s University Belfast, talks to us about the large number of dementia patients who are thought to live with pain and the need for medical staff and carers to be able to recognise changes in the patients’ behaviour and therefore become more able to address their pain.
Contributors:
#Dementia #Postsurgicalpain #Brainimaging #Carers #Childrenandyoungpeopleinpain #Communicationskills #Explainingyourconditiontoothers #Facialexpressionsasameasureofpain #Medication #Olderpeople #Opioids #Patientperspective #Psychologicalapproachestopainmanagement #Research #Sleep #Talkingtoyourdoctor #Youngpeopleandchildren
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| 06 Jun 2013 | 45: Helping Us to Help Ourselves | 00:29:37 | |
This programme was funded by the Big Lottery Fund’s Awards For All programme in Northern Ireland.
Healthcare professionals and people with pain need to work together to manage chronic pain conditions, but how is this achieved in practice? Paul Evans speaks to a GP, physiotherapist and clinical psychologist to find out more.
We begin by hearing from GP and pain specialist Neville McMullan about his work with Ulster Hospital to improve access to pain management programmes by bringing them out of the hospital into the community and giving people the skills to manage their own pain.
Dr McMullan stresses the importance of getting patients out of a cycle of inactivity and physical deterioration. This is where physiotherapy comes in as we hear from Ashley Montgomery, a physiotherapist at Ulster Hospital. Montgomery describes how understanding the reality of chronic pain, being believed and getting the balance between rest and activity right can give people confidence to take the first steps towards self-managing their condition.
Consultant Clinical Psychologist Jenny Maguire explains how acceptance and commitment therapy (ACT) builds upon CBT (cognitive behavioural therapy) to help people adjust to living with pain as a long term condition.
Contributors:
#Activityrestcycle #Cognitivebehaviouraltherapy #Explainingpain #Generalpractitioners(GPs) #Pacing #Painmanagementprogrammes #Physiotherapy #Primarycare #Psychologicalapproachestopainmanagement #ReferraltopainmanagementprogrammesbyGP
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| 28 Oct 2013 | 46: Post-Herpetic Neuralgia and Migraine | 00:29:56 | |
This programme was funded by the Scottish Government.
Migraine is not ‘just a headache’ – it’s a disabling condition that can cause major disruption to work and personal life. So says David Watson, a GP who specialises in treating patients with chronic headaches.
Dr Watson explains that the ‘migraine brain’ is extra sensitive to changes in the environment, how small changes to lifestyle can help people to minimise episodes and how to avoid the pitfall of medication overuse. He also gives helpful advice on how patients with migraine can best prepare for a visit to their GP.
Post-herpetic neuralgia is another frequently misunderstood condition with myths about its contagiousness and relationship to chickenpox and shingles causing confusion. Marian Nicholson of the Shingles Support Society clears up these misunderstandings and emphasises the importance of preventative treatments. We also hear about a new vaccine which should help to protect older people who are most at risk of developing post-herpetic neuralgia after shingles.
Contributors:
#Activityrestcycle #Genderandpain #Headache #Medication #Migraine #Migraineclinic #Painkillersandsideeffects #Postherpeticneuralgia #Primarycare #Shingles #Talkingtoyourdoctor #Work
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| 06 Nov 2013 | 47: The Power of the Mind | 00:29:21 | |
This edition has been funded by a grant from the Scottish Government.
In this edition of Airing Pain Paul Evans explores the possibility of controlling pain through techniques that focus on the brain and the mind.
Paul meets Aleksandra Vuckovic, a rehabilitation engineer at the Southern General Hospital in Glasgow, who is conducting research into the use of neuro-engineering techniques to control chronic pain in those with injuries to the central nervous system. She explains that neuro-engineering works through patients training themselves to identify the part of their brain that controls their pain and then reducing it using brain waves. One of her patients, Andy Nisbet, shares his own experience of the technique and discusses the potential for future advancements in this method.
Paul also speaks to Vidyamala Burch, founder and director of Manchester-based organisation Breathworks, which offers training for healthcare professionals and individuals in mindfulness-based approaches to chronic pain. She introduces us to the mindfulness technique, which fuses modern medicine with age-old eastern practices, and talks about the advantages of becoming aware of emotional and physical states as they occur. Burch explains that mindfulness allows people to identify the behaviour patterns related to their suffering and to make a conscious choice about that behaviour. This technique impacts on all areas of a person’s life: allowing them to reduce stress, maintain good relationships with those around them and increase their self-esteem.
Contributors:
#Neuropathicpain #Brainimaging #Educatinghealthcareprofessionals #Familyandrelationships #Mindfulness #Painmanagementprogrammes #Patientperspective #Psychologicalapproachestopainmanagement #Psychologicaleffectsofpain #Research #Socialandeconomicimpactofpain
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| 20 Nov 2013 | 48: Nursing Beyond Drugs | 00:29:39 | |
This edition has been funded by the Big Lottery Fund’s Awards for All Programme in Wales.
'Imagine how it feels like if you’re in pain and people won’t help you.' Like other healthcare professionals, nurses can sometimes struggle to understand the perspective of people living with pain. At a training day for student nurses devoted to chronic pain, Gareth Parsons impresses on his audience the importance of believing the patient and delivers some uncomfortable truths based on his research about the frustrations people with pain often have of healthcare professionals: ‘you are the problem!’
Equipped with the training they receive, hopefully this group of nurses will instead be part of the solution. The first step is understanding that chronic pain is a condition in its own right – this way the nurses will be aware of the problems of treating chronic pain as if it were acute (for example, excessive use of opioids) and be able to help tackle anxiety and fear.
With a better sense of the nature of chronic pain, nurses will be less likely to ‘throw drugs’ at the problem, Owena Simpson says. She guides the student nurses in a session of relaxation therapy, while Maria Parry teaches the students basic massage techniques and recalls her own experiences of how a patient of hers was able to overcome insomnia thanks to massage therapy. Gareth Parsons finishes the session with an acupuncture lesson and explains why this treatment may be more effective for some patients than for others.
Contributors:
#Chronicpainasaconditioninitsownright #Complexregionalpainsyndrome #Neuropathicpain #Acupuncture #AlternativetherapyontheNHS #Educatinghealthcareprofessionals #Explainingpain #Medication #Opioids #Painkillersandsideeffects #Patientperspective #Primarycare #Specialistnurse
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| 06 Dec 2013 | 49: The Impact of Pain on Society | 00:29:58 | |
This edition has been funded by a grant from the Scottish Government.
Christine Johnston heads to Brussels to investigate the impact that pain has on society as a whole at the Societal Impact of Pain lobby group’s fourth annual event. Christine talks to Neil Betteridge of Neil Betteridge Associates which promotes a holistic approach to pain management. Betteridge explains that early intervention is beneficial not only for the patient but also for employers, as it leads to faster, more effective treatment and less time spent outside of the workplace. Jamie O’Hara, who works with Adelphi Real World and the Haemophilia Society, discusses the results of a survey carried out about the effect pain has on society, which found that those living with chronic pain and their carers experience disproportionately high levels of unemployment.
Christine also speaks to Jacqui Lyttle, an Independent Commissioning Consultant, who criticises the current care given to those with chronic pain conditions, citing wrong diagnoses and the subsequent delays in accessing effective treatment as the main issues. She explains that pain management costs more when it’s not managed effectively than when it is, both in terms of money and in working days lost through illness.
Paul Evans meets Jillie Abbott, the Projects Officer of Trigeminal Neuralgia Association, who describes the organisation’s attempts to raise awareness of the little-understood condition within the healthcare profession, citing the high frequency of misdiagnoses and ineffective treatment as the motivation for this educational focus. She also shares some coping mechanisms that can help those living with Trigeminal Neuralgia and emphasises the need for better communication between people living with the condition and healthcare professionals.
Contributors:
#Orofacialpain #Trigeminalneuralgia #Carers #Educatinghealthcar professionals #Socialandeconomicimpactofpain #Talkingtoyourdoctor #Unemployment #Work
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| 18 Dec 2013 | 50: Pain Services in the Community | 00:29:57 | |
This edition has been funded by the Big Lottery Fund’s Awards for All Programme in Wales.
‘Good pain services, based in the community will make a huge difference to the lives of individuals and the NHS’, says Sue Beckman, speaking on behalf of the NHS’s Delivery and Support Unit at the Welsh Pain Society Annual Scientific Meeting. But what does moving pain services into the community mean?
Beckman, together with pain specialists Mark Ritchie, Mark Turtle and Rob Davies debate the key issue of where pain management should take place.
General Practitioners (GPs) are often those closest to ‘the community’ – they often see patients over the course of years, but limited training in chronic pain and lack of time in appointments pose problems. The panellists also discuss the challenges of bringing services closer to the isolated communities of rural Wales while ensuring that as many people as possible can access pain services by public transport. Finally, could moving services away from the pain clinic ‘demedicalise’ chronic pain by causing healthcare professionals and their patients ‘to think outside the box’?
Contributors:
#Educatinghealthcareprofessionals #Epidemiologyofpain #Fundingandavailabilityofpainservices #Generalpractitioners(GPs) #Painmanagementinremoteareas #Primarycare #Socialandeconomicimpactofpain
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| 06 Jan 2014 | 51: At the Community Pain Management Programme | 00:29:30 | |
This edition has been funded by the Big Lottery Fund’s Awards for All Programme in Wales.
In the previous edition of Airing Pain we explored the pros and cons of taking pain management into the community. This time Paul Evans travels to Powys – the most sparsely populated county in Wales – to see how community pain management works in practice at the programme run by Ystradgynlais Community Hospital.
Course leader Gethin Kemp explains that the community approach makes pain management techniques available to people who are unable to undertake a residential programme. For people whose lives may have been completely taken over by pain the course offers strategies for coping with the emotional fallout, increasing their activity levels through pacing and getting a good night’s sleep.
Participants on the programme Toni and Nia explain what they hope to get from it. We hear from them again at the end of the 8-week course when they reflect on the progress they have made – from learning to communicate more effectively to rediscovering a love of painting.
Contributors:
#Depression #Activityrestcycle #Communicationskills #Familyandrelationships #Insomnia #Medication #Pacing #Painmanagementinremoteareas #Painmanagementprogrammes #Patientperspective #Psychologicalapproachestopainmanagement #Psychologicaleffectsofpain #Socialandeconomicimpactofpain
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| 17 Jan 2014 | 52: Better Care for People in Pain | 00:29:52 | |
This edition has been funded by a grant from the Scottish Government.
At the launch of a new guideline on treatment of chronic pain in Scotland, Paul Evans speaks to patients and healthcare professionals about how to raise awareness and improve care.
Marion Beatson and Susan Scott describe the struggles they both endured in trying to get appropriate care after developing chronic pain. They both hope that the new guideline will help people in pain get the support they need in future by setting out clearly the treatment they can expect to receive. Marion’s daughter Chloe talks movingly about how her own life and her relationship with her mum have been affected by Marion’s chronic pain.
Norma Turvill believes the guidelines could raise awareness of the under-recognised issue of chronic pain which is still not understood by some healthcare professionals and Steve Gilbert explains how they could help transform treatment in primary care. Paul Cameron discusses the guideline’s advice on exercise and the different ways in which patients can access exercise therapies.
In this programme:
#Backpain #Chronicpainasaconditioninitsownright #Neuropathicpain #Carers #Educatinghealthcareprofessionals #Exercise #Explainingpaintochildren #Familyandrelationships #Generalpractitioners(GPs) #Healthcarepolicy #Painmanagementprogrammes #Painkillersandside-effects #Patientperspective #Primarycare #Work
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| 30 Jan 2014 | 53: Headaches, Chilli Pepper Patches and the Placebo Effect | 00:29:25 | |
This edition has been supported by a grant from the Scottish Government.
Paul Evans meets Dr Paul Davies, a Consultant Neurologist from Northampton General Hospital, who explains that whilst most headaches are benign and can be self-medicated, some headaches – those that are frequent and very painful – require medical attention. He outlines the different types of headaches, including migraines, tension headaches and cluster headaches, and says that each kind requires a specific treatment. Dr Davies admits that GPs have a long way to go in diagnosing and treating chronic headaches effectively.
Dr Mick Serpell, a Consultant in Anaesthesia and Pain Medicine in Glasgow, gives us an introduction to topical medicine – medication applied to the surface of the body rather than introduced into it. The medication is applied to the painful area and the drug has a painkilling effect at a local level. Topical medicines can take the form of a cream, a gel or a plaster impregnated with a drug. We hear about two types which are usually used to treat neuropathic conditions – lidocaine and a chilli pepper plaster. One benefit of topical treatments is that they have very few side-effects and can usually be used alongside other analgesics.
Finally, Paul meets Michael Lee, a Research Associate at Oxford Centre for the Functional Magnetic Resonance Imaging of the Brain, who carries out extensive research into placebos ¬– treatments given purely for psychological effect. In defiance of those sceptical of the placebo effect, Lee’s brain imaging research shows that placebo medications can have a visible effect on the way that pain is transmitted to the brain. Lee also highlights the importance of psychological context in treatment, saying that what a patient believes about their doctor, their medication and the therapeutic process as a whole affects their response to medication.
Contributors:
#Clusterheadaches #Headache #Migraine #Neuropathicpain #Brainimaging #Medication #Painkillersandsideeffects #Psychologicalapproachestopainmanagement
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| 12 Feb 2014 | 54: Opioids, Memories and Prison Healthcare | 00:29:53 | |
Delving into the issues surrounding opioids and healthcare within prisons and investigating the relationship between memory and pain.
This edition has been supported by a grant from the Scottish Government.
Paul Evans talks to Dr Cathy Stannard, a Consultant in Pain Medicine at Frenchay Hospital in Bristol, who outlines the use and misuse of opioids in chronic pain management. She points out that whilst opioids are a useful analgesic for some people, they can have a detrimental effect on others due to their strong side effects. She emphasises the need for healthcare professionals to be aware of how to use opioids effectively as a pain management resource.
Paul also meets Dr Rajesh Munglani, a Consultant in Pain Medicine in Cambridge, who has carried out research into the relationship between pain and memory. He describes chronic pain as a circuit that can be triggered by seemingly small events or memories and highlights the importance of context and memories on pain. He explains that medical or psychological intervention is needed to disrupt the circuit of pain.
Then Paul speaks to Dr Cathy Stannard and Dr Ian Brew, a prison GP, about healthcare within prisons. Stannard reveals some problems in this area, saying that some medicines are a tradable commodity in prisons and that often prisoners’ account of pain are treated with mistrust. She reports that the situation is improving, as the healthcare needs assessment that prisoners receive when they arrive in prison now includes a section on pain, alongside the original sections on substance misuse and psychiatric disorders. Dr Ian Brew emphasises that prisoners deserve to receive equal healthcare to those outside of prison and says evidence suggests that good healthcare, alongside other rehabilitation initiatives in prisons, can reduce the rate of re-offending.
Contributors:
#Amputation #phantomlimbs #Neuropathicpain #Generalpractitioners(GPs) #Healthcarepolicy #Medication #Opioids #Research
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| 24 Apr 2014 | 55: More Power to You | 00:29:53 | |
This edition has been funded by a grant from the Scottish Government.
We hear about two very different ways of giving people in pain the knowledge and power to help themselves.
Will we soon be able to get a prescription of yoga on the NHS? Christine Johnson speaks to yoga teacher Anna Semlyen about a study that shows yoga can be an effective and cost-effective treatment for chronic low back pain. Semlyen, who helped design the programme used by the research trial, recalls how she has seen people get back into gardening or extreme sports after taking up yoga. The research study found a similar effect among the group of patients using yoga: reduced levels of disability and fewer days off work compared to the control group. Not only is this a low-tech and cheap treatment, but it’s also empowering, argues Semlyen, as it lets people ‘be their own healers’.
‘How are you?’ Three little words often dreaded by people in pain. Gareth Parsons explains to Paul Evans why these simple social rituals can be so difficult for people in pain and how social interactions can instead be made empowering. Parsons’ work on participatory action research gets people in pain together to recognise the negative attitudes or oppression experienced in daily life and find ways to help themselves. The real experts on pain are not the clinicians of researchers, but the people who live with it every day, he argues.
Contributors:
Further resources:
#Arthritis #Backpain #Lowbackpain #AlternativetherapyontheNHS #Communicationskills #Exercise #Explainingyourconditiontoothers #Peersupport
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| 21 May 2014 | 56: Images and Perceptions | 00:29:39 | |
This edition has been funded by a grant from the Scottish Government.
If only pain were visible... Deborah Padfield talks to Presenter Paul Evans about her project collaborating with people with pain to produce works of art that represent their experiences. Her photographs are co-creations, using objects and ideas brought to the studio by the orofacial pain patients from University College Hospitals, London.
The art produced not only provides a voice for individuals who may have felt their experiences marginalised by the medical establishment and wider society, but is also part of a study aimed at finding better ways for people to communicate their pain. Images created by Padfield – from a clenched fist to flying sparks – are now being trialled by patients not part of the project as visual prompts in ordinary medical consultations.
‘Pain is a memory’, says Dr Rajesh Munglani, explaining how the way we feel pain is affected by past experiences and our emotions. From the phantom limb pain of a soldier wounded in action to an injured motorist caught up in a bitter legal struggle for compensation, the context of chronic pain can be crucial in helping or hindering people from moving on. The different ways people perceive their pain also means, Dr Munglani argues, that perhaps pacing is not right for everyone, all of the time – a big night out might mean a few days in bed for a teenager with pain, but provide an important boost to their confidence.
Contributors:
#Artsandcrafts #Benefits #Communicationskills #Cultureandpain #Explainingpain #Explainingyourconditiontoothers #Pacing #Patientperspective #Psychologicaleffectsofpain #Talkingtoyourdoctor #Amputationandphantomlimbs #Fibromyalgia #Orofacialpain #Trigeminalneuralgia
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| 21 May 2014 | 57: Self-Management, Psychology and 'Physio-terrorists' | 00:29:54 | |
This edition has been funded by a grant from the Scottish Government.
‘Pain medicine isn’t good at dealing with the effect of pain on the person’, says Jonathan Bannister, head of the multidisciplinary pain team at Ninewells Hospital, Dundee. Paul Evans visits the clinic where Mr Bannister and some of his colleagues talk about how they care for people in pain.
We hear about the difficulties of getting a referral and how pain specialists can help GPs add pain management to their armamentarium, or doctors’ toolkit. Physiotherapist Lynn Sheridan describes how she has to win the trust of patients scared of visits to the “physio-terrorist” after encounters with the vigorous methods of traditional physiotherapy. Her more gentle approach focuses on regaining function and helping people do more without flare-ups.
Helping people distinguish between their thoughts and the truth is one of the key aims of Clinical Psychologist, Dr Jonathan Todman. He explains why mental health is very often affected by chronic pain and how pain affects people with mental health problems.
Contributors:
#Activityrestcycle #Educatinghealthcareprofessionals #Flareup #Generalpractitioners #Healthcarepolicy #Pacing #Painmanagementprogrammes #Primarycare #Psychologicalapproachestopainmanagement #Psychologicaleffectsofpain #ReferraltopainmanagementprogrammesbyGP
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| 04 Jun 2014 | 58: The Pain Toolkit | 00:29:59 | |
This edition has been funded by a grant from the Scottish Government.
'You have to learn to live with it.’ Pete Moore’s GP told him after running out of treatment options for chronic pain. From his own experiences of learning how to live with pain, Pete Moore developed the Pain Toolkit (first a leaflet and now a multimedia web resource) to help kick-start other people’s efforts in self-management.
Producer Paul Evans caught up with Pete at the British Pain Society’s Manchester meeting for an in-depth introduction to the Pain Toolkit. Rather than relying on an exclusively medical model of endless prescriptions, the Toolkit represents an educational approach giving people strategies for self-management. It’s an approach that goes beyond just treating the pain and looks at mood, sleep, exercise and relationships.
Pete describes how the Pain Toolkit uses images and humour to make self-management messages – gathering a supportive team of healthcare professionals, pacing and relaxation – hit home and the ways in which technology can help get the message out there.
Contributors:
#Communicationskills #Educatinghealthcareprofessionals #Exercise #Generalpractitioners #Pacing #Patientperspective #Psychologicalapproachestopainmanagement
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| 19 Jun 2014 | 59: Pain in the Family: Young adults 1 of 2 | 00:29:55 | |
This edition has been funded by the City of Edinburgh Council and NHS Lothian’s Self-directed Support Innovation Fund.
Lost childhood, financial burden, emotional turmoil and guilt – these are some of the challenges facing young people who care for people in pain on top of the caring itself. They’re often left feeling invisible, going unrecognised and unsupported for years.
In the first of two programmes putting young carers centre stage, Paul Evans talks to a family about how pain has affected their lives. Erin McGuigan was hospitalised after developing debilitating pain in her limbs and now uses wheelchair and crutches. She explains how her condition has affected her brother and sisters. Her sister, Donna, talks movingly of her feelings of powerlessness, how she has encouraged Erin, and the need to keep listening and understanding.
Terri Smith a Member of the Scottish Youth Parliament (MSYP), explains why and how she is campaigning to improve the situation for young carers. Hours of freely-given care saves the Scottish Government £1.4 billion a year, but often leaves young people struggling to stay in education and financially insecure.
Contributors:
#Carers #Childrenandyoungpeopleinpain #Communicationskills #Familyandrelationships #Painmanagementprogrammesandyoungpeople #Residentialpainmanagementprogrammes #Socialandeconomicimpactofpain #Youngpeopleandchildren
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| 02 Jul 2014 | 60: Pain in the Family: Young adults 2 of 2 | 00:29:54 | |
This edition has been funded by the City of Edinburgh Council and NHS Lothian’s Self-directed Support Innovation Fund.
In the second of our two programmes focusing on young carers for people in pain, we hear about the effect of pain on relationships between parents and children.
Family therapist Liz Forbat explains how pain can disrupt transitions from childhood to independent adulthood, especially during those difficult teenage years. She discusses with presenter Paul Evan’s his ‘martyrdom’ approach to managing chronic pain – he recalls keeping his children at a distance from it – and the dangers of building barriers between family members in a bid to protect them from the effects of the pain.
We hear the young person’s perspective from Kim Radtke, who grew up with a father often made irritable and emotionally unavailable by his ankylosing spondylitis. The situation was exacerbated, Kim says, because she and her brother did not fully understand the condition and were therefore unable to empathise and communicate with their father about it. Only as an adult has she been able to make the step – so important, according to Liz Forbat – of separating the pain from the person.
Contributors:
More information:
#Ankylosingspondylitis #Carers #Communicationskills #Explainingyourconditiontochildren #Familyandrelationships #Psychologicaleffectsofpain #Youngpeopleandchildren
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| 17 Jul 2014 | 61: Deciding Together | 00:29:33 | |
This edition has been funded by Pain Concern’s friends and supporters.
In this edition of Airing Pain we hear about how people in pain can take an active role in their care through shared decision making and technological tools.
‘Being collaborative is fundamental’ for managing pain, says Dave Tomson, a GP working on the MAGIC Programme (Making good decisions in collaboration). He speaks to Producer Paul Evans at the British Pain Society’s (BPS) Annual Scientific Meeting in Manchester about the advantages and challenges in developing an approach to medicine where decisions are made by doctors and patients together.
Technology can play a transformative role in empowering people in pain, but there are also pitfalls to be avoided. Jason Davies discusses the pros and cons of ‘telemedicine’ as a pain specialist working in the remote Argyll region of north western Scotland. Other members of the BPS Special Interest Group on Information and Communication Technology discuss the things patients and doctors should be looking out for when using online resources and the cultural change needed to make technology work – people in pain empowered to take responsibility for their pain.
Contributors:
#Communicationskills #Educatinghealthcareprofessionals #Fundingandavailabilityofpainservices #Healthcarepolicy #Painmanagementinremoteareas #Talkingtoyourdoctor
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| 30 Jul 2014 | 62: Independent Living | 00:29:39 | |
This edition has been funded by a grant from the Moffat Charitable Trust.
How can people left disabled and housebound by chronic pain be supported to live independently? Producer Paul Evans visits two Edinburgh-based organisations with different approaches to transforming the lives of people in pain.
The Lothian Centre for Inclusive Living (LCIL) is run by disabled people for disabled people with the aim, as its name suggests, of helping people to live full lives despite their condition. A key part of their service is supporting people as they apply for the benefits to which they are entitled in an often confusing and frustrating system. Jacqueline Todd recalls her struggle to be recognised as eligible for the Personal Independence Payment (PIP) and the freedom she has gained from adaptations to her home.
At the Thistle Foundation Paul speaks to members and staff about how their exercise and lifestyle classes bring people ‘out of the darkness’ of social isolation and pain. John Cunningham found the ‘supremely fit’ people at his local gym intimidating, but the welcoming and supportive environment has ‘changed [his] life dramatically’. Course leader Linda Douglas talks about the importance of finding a ‘safe space’ where people can focus on their strengths and find out what works for them.
Contributors:
More information:
#Fibromyalgia #Benefits #Exercise #Occupationaltherapy #Pacing #Peersupport
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| 04 Feb 2015 | 63: Interventional Pain Management | 00:29:17 | |
This edition has been funded by Pfizer.
Physiotherapy, exercise, medications and clinical psychology all play an important role in pain management, but what happens if these treatments don’t give people the relief they need to get their lives back on track? For some patients, more invasive treatments can make a big difference, but there are often difficult decisions to be faced, as Paul Evans discovers from sitting in on one of specialist in interventional pain management Dr Ron Cooper’s clinics in Causeway Hospital, Coleraine.
We hear from patients who have often waited years before being referred to the clinic where they will be considered for interventional treatments such as spinal cord stimulation, nerve-blocking injections and radio frequency treatment. Dr Cooper explains why interventional treatments are more appropriate for some patients than for others, how they are thought to work and why it’s important to see them as part of a broader pain management strategy.
Contributors:
#Backpain #Complexregionalpainsyndrome #Lowbackpain #Neuropathicpain #Postsurgicalpain #Trigeminalneuralgia #Exercise #Painmanagementprogrammes #Spinalcordstimulation #Surgery
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| 18 Feb 2015 | 64: Patients, Pills and Policies | 00:29:49 | |
This edition is funded by Grünenthal.
Almost 100 million EU citizens have chronic pain, but there is still much progress to be made in improving diagnosis and treatment. Pain Concern’s Rowena Jacobs attended the fifth Societal Impact of Pain symposium to find out how patient groups, healthcare professionals and policy makers are coming together to push pain up the agenda. We hear about a successful initiative to change the culture around opioid prescriptions in Italy and the problems facing patients across the continent due an excessive fear of drug dependence, while Northern Irish representatives explain how the Painful Truth campaign has brought the patient experience of pain home to healthcare professionals and policy makers, leading to greater recognition of pain. Pain specialists at the forefront of the campaign for better care explain why education and awareness raising is still such an important issue and Lars Møller, representing a Danish patient group, recalls his struggle to be get treatment for pain in the face of ignorant healthcare professionals. Finally, people in pain are urged to get involved in the fight for better pain management services by putting pressure on politicians.
Contributors:
#Chronicpainasaconditioninitsownright #Educatinghealthcareprofessionals #Epidemiologyofpain #Fundingandavailabilityofpainservices #Generalpractitioners #Healthcarepolicy #Opioids #Socialandeconomicimpactofpain #Psychologicaleffectsofpain
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| 05 Mar 2015 | 65: Hypnosis and Unexplained Pain | 00:29:56 | |
This edition is funded by a grant from the Dorothy Howard Charitable Trust.
In this edition of Airing Pain we hear how healthcare professionals can use hypnotic techniques to help people in pain. This is not the hypnosis of stage performances, but rather simple skills that can be mastered by most people. When patients enter the ‘meditative-type’ state of hypnosis they are able to use the imagination to change the perception of their pain and even reduce its intensity, says retired GP Dr Ann Williamson. More than just relaxation, hypnosis, she argues, gives us access to ‘mind-body links’ that are ideally suited for addressing both the physical and emotional dimensions of pain. Dr Jane Boissiere, also a doctor practising hypnosis, calls the lack of availability of hypnosis on the NHS ‘a tragedy’. She believes it is the most effective way of addressing medically unexplained symptoms by targeting emotional trauma in a way that puts the patient in control.
Contributors:
#Fibromyalgia #Generalpractitioners #Hypnosis #Psychologicalapproachestopainmanagement #Psychologicaleffectsofpain
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| 20 Mar 2015 | 66: Not a Burden | 00:29:49 | |
Friends don’t always understand, they don’t get out much and they’re faced with daunting responsibilities, but they wouldn’t change a thing about their families. So say the young people Paul Evans meets at a support day for carers in south east Wales.
There are 178,000 young carers in England and Wales doing unpaid work for parents too ill to perform essential household tasks or even look after themselves. Kerris Olsen-Jones, who works to support these children and young people – some as young as five years old – says that they sometimes ‘miss the opportunity to be children’. She and her colleagues help the young people to socialise and make the most of the opportunities available to them.
However, many young carers do not see themselves as carers, so may not get access to support. Ethan Mason, who cares for his mother who has fibromyalgia, describes how as an adolescent he had to deal with a house fire alone, while fire safety officer Julie Goodfield gives fire prevention tips for people with disabilities and their carers. More information on support for young carers can be found at childreninwales.org.uk Visit our webpage for young adult carers to listen to more Airing Pain programmes on this topic and find out more about the help available across the UK: painconcern.org.uk/how-we-help/young-adults.
Contributors:
#Carers #Familyandrelationships #Youngpeopleandchildren
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| 01 Apr 2015 | 67: Biopsychosocial and Spiritual? | 00:29:58 | |
This edition is funded by a donation from the residents at Falcon House, Edinburgh.
It’s well established that pain needs to be understood and treated as a biopsychosocial problem, but what about the spiritual side of life? Professor of nursing and Anglican chaplain Michelle Briggs speak to Paul Evans about how some people in pain can find relief and meaning in the prayer and community engagement offered by their faith.
We’ve looked at the issue of pain education before – Emma Briggs gives an update on the struggle to increase pain training for doctors and improve its quality. Her interdisciplinary pain management course brings healthcare professionals together with a focus on empathy, working as a team and understanding the importance of drug and non-drug treatments.
Physiotherapy and mental health care might seem at opposite ends of the pain management spectrum, but physiotherapist Nathan Goss sets out why we have to see pain as a mind-body problem and argues that mental health difficulties are ‘something we all experience’.
Contributors:
#Cultureandpain #Educatinghealthcareprofessionals #Explainingpain #Physiotherapy #Psychologicalapproachestopainmanagement #Psychologicaleffectsofpain
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| 15 Apr 2015 | 68: The Brain and the Genes | 00:29:40 | |
If someone steps on your toe, your toe hurts – simple as that, right?
Wrong! Professor Rolf-Detlef Treede explains how the brain and nervous system make pain and why we can feel pain in a part of the body that hasn’t been harmed. It’s not just a question of good science, Treede argues – better understanding will decrease discrimination against people in pain.
Genes also have a role to play in the story of pain, says Professor Ana Valdes. Her research is helping to explain why some people develop conditions such as fibromyalgia, migraine or rheumatoid arthritis and others do not based on differences in our makeup at the molecular level. Even our psychological responses to pain are affected by differences in the nervous system. Valdes believes these more sophisticated approaches to pain offer hope of effective treatment in the future.
Contributors:
#Arthritis #Depression #Fibromyalgia #Migraine #Educatinghealthcareprofessionals #Epidemiologyofpain #Explainingpain #Psychologicaleffectsofpain #Research
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| 29 Apr 2015 | 69: People not Patients | 00:29:52 | |
Can a doctor ever be too sympathetic? Health psychologist Professor Tamar Pincus explains why this might be the case – patients with long term conditions can feel like they are being ‘looked after’ rather than taking responsibility for their own health. Pincus also clears up some myths about the role of psychology in chronic pain and makes the case for acceptance and commitment therapy (ACT) as a key part of the pain management toolkit. Acceptance can be difficult when people in pain are under pressure from those around them to be ‘the person they were before the pain’.
GP Frances Cole’s rehabilitation service puts the people – not ‘patients’ – she sees in control of guiding their own treatment with the aim of being the best they can be with the pain. She asks them to focus on what matters most to them and helps them connect to ‘a new world’ where they can learn skills and knowledge from other people who’ve faced the same challenges. Contributors:
#Cognitivebehaviouraltherapy #Educatinghealthcareprofessionals #Generalpractitioners #Psychologicalapproachestopainmanagement
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| 13 May 2015 | 70: The Case for Pain Management | 00:29:58 | |
Make sure you stand up and do a few stretches after listening to this episode of Airing Pain!
‘Movement is medicine’ for people in pain, says consultant physiotherapist Eve Jenner. But it’s about more than just exercise – physiotherapists can help people understand pain, know the difference between ‘hurt and harm’ and get a better night’s sleep. Understanding pain matters for doctors and public health officials too, argues pioneer of pain management services Professor Michael Bond. It’s not just political correctness to look at pain as a problem in itself; it’s a question of biology. Changes in the spinal cord make pain persist. Getting the message across could be a matter of life and death. Research suggests that delays in the diagnosis and treatment of persistent pain can reduce life expectancy, Dr Manohar Sharma says. He explains why working as a team of different specialists, including the person in pain, is crucial for making the complex spinal interventions he specialises in succeed. Contributors:
#Backpain #Chronicpainasaconditioninitsownright #Educatinghealthcareprofessionals #Insomnia #Physiotherapy #Psychologicalapproachestopainmanagement
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| 27 May 2015 | 71: Protect our Girls | 00:29:50 | |
Over 100,000 women in the UK have been affected by female genital mutilation (FGM) with devastating long-term consequences including persistent pain. Janet Graves hears from FGM survivors and the healthcare professionals treating them about this culturally-embedded practice and how to uproot it.
Hanna Gilbremedhen and Valentine Nkoyo speak about the impact being cut as children has had on their psychological and physical health as well as their relationships. Nkoyo also explains how her Mojato Foundation is working to mobilise opposition to FGM from within the communities affected. Gilbremedhen’s experience of undiagnosed chronic pain after FGM highlights the lack of knowledge among healthcare professionals. Clinics with experience in seeing women with FGM are vital, says Specialist Midwife Juliet Albert, if they are to get the care they need. Midwife, ‘fighter’ against FGM and founder of the Hope Clinic Asia Eden shares her story and stresses the importance of education in ensuring the safety of the next generation. For a comprehensive list of FGM clinics and resources visit forwarduk.org.uk For more information on the Mojato Foundation visit valentinenkoyo.com The Hope Clinic: fgmhopeclinic.co.uk Contributors:
#Pelvicpain #Cultureandpain #Educatinghealthcareprofessionals #Familyandrelationships #Genderandpain #Psychologicaleffectsofpain
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| 21 Oct 2015 | 72: Breaking the Barriers to Pain Management | 00:29:08 | |
This edition is part of a project funded by the Health and Social Care Alliance.
We know that supported self-management reduces the impact of chronic pain on daily life, but many people in pain feel they are not getting that support from their GPs. Pain Concern’s research shows how simple things like short appointment times and long waiting lists for pain management services combine with more complex problems of communication and culture to hamper self-management.
And it’s not only people in pain who are frustrated with the system – GP Dr Graham Kramer outlines the problems with a medical approach that tries to fix problems that can’t be fixed. That means a difficult journey towards acceptance for people with pain and a transformation in the way doctors interact with patients from being ‘parent’ to ‘coach’.
Contributors:
#Educatinghealthcareprofessionals #Generalpractitioners #Healthcarepolicy #Primarycare #Psychological #Pychologicalapproachestopainmanagement
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| 28 Oct 2015 | 73: Foot Pain | 00:28:49 | |
This edition is funded by a grant from the Schuh Trust.
About 10% of the adult population experience disabling levels of foot pain. Producer Paul Evans hears from the experts about professional help, self-management and why we need toes. Gordon Hendry explains what podiatrists do – and it doesn’t involve using a hammer and chisel to lop off a bunion – and why we should appreciate the complex and clever structures that are our feet (and toes). More women than men are affected by foot pain. Jody Riskowski weighs up whether tight-fitting shoes are to blame.
As a former elite athlete retired because of injury, Riskowski shares her experiences of rehabilitation and gives tips for finding the middle ground between overdoing it and over-resting, while Kathryn Martin tackles the issues of getting active despite foot pain.
Contributors:
#Footpain #Activityrestcycle #Exercise #Pacing
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| 12 Nov 2015 | 74: Music | 00:29:49 | |
Could music be a key resource for managing pain? The results of a survey on music and chronic pain are promising, according to psychologist and musician Prof Raymond MacDonald. Meanwhile, most of us are already using music to influence our own psychological wellbeing.
We don’t need to wait until the research is in, says Dr Don Knox – people in pain can already ‘build music into their everyday pain management strategies’. He explains why whether it’s Tchaikovsky or the Ramones, our own tunes make the biggest impact on pain.
Finally, Producer Paul Evans gets a singing lesson from composer Gareth Williams, who explains why most of us are not breathing well and how vocal exercises can help.
Contributors:
#Music #Psychologicalapproachestopainmanagement
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| 25 Nov 2015 | 75: Back to Work | 00:29:45 | |
This edition is funded by a grant from the Moffatt Trust.
As many as a quarter of people with chronic pain go on to lose their jobs, so what can be done to make staying in work more achievable? We look for answers in this first of two episodes focusing on employment. ‘With the right support, many people on sick leave, could be in work or helped back to work faster’, says Dame Carol Black, independent expert advisor to the government. She explains why ‘good work’ – work where people are listened to, respected and have some control – is not only important for our mental wellbeing, but can even predict back pain.
The result of Dame Black’s report into this issue was the government’s Fit to Work scheme. Occupational therapist Gerry McFeely describes how the programme aims to help those on sick leave to develop a Return to Work Plan.
Contributors:
#Occupationaltherapy #Socialandeconomicimpactofpain #Work
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| 10 Dec 2015 | 76: Pain, Poverty and Employment | 00:29:54 | |
In the second programme in our Good Work double bill we hear how people in pain and their families are affected by barriers to employment and support.
Kieran McGee and his wife Anne-Marie tell how his neuropathic pain and a lack of ongoing support put an end to both his career and hers as she became his full-time carer. Angela O’Neill recalls having to leave the nursing job she loved and her ‘distressing’ experience of a poorly managed back to work scheme.
Staff at the Health and Social Care Alliance set out how the Access to Work programme can help people managing long term conditions to overcome obstacles to getting to and thriving in the workplace. And Jason Leitch of NHS Scotland discusses the Glasgow effect – Scotland’s largest city’s inequalities of health and life expectancy – and how to reduce them.
Find out more about the programmes and organisations featured in this episode: Health and Social Care Alliance Scotland Healthyworkinglives.com (NHS support for people with long term conditions and their employers) Access to Work
Contributors:
#Carers #Epidemiologyofpain #Healthcarepolicy #Socialandeconomicimpactofpain #Unemployment #Work
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| 22 Dec 2015 | 77: Realising the Painful Truth | 00:29:59 | |
How can healthcare systems adapt to meet the needs of people in pain? Airing Pain returns to Northern Ireland to find out how the findings of the Painful Truth report into chronic pain will be put into practice.
The Painful Truth had a big impact on decision makers – chronic pain is now recognised as a condition in its own right, healthcare professionals receive pain education and people in pain have a bigger voice in developing their services – but with resources tight and pressure on services, putting the report’s recommendations into practice won’t be easy.
We hear some of the stories behind the statistics. Zara and Aimee, teenagers living with pain, talk about how they cope with the ‘invisible’ illness of pain and rising above the challenges they face in their social lives and school work. Margaret Peacock and Carrie describe their difficulties in getting help from the medical profession.
Contributors:
#Carers #Epidemiologyofpain #Healthcarepolicy #Socialandeconomicimpactofpain #Unemployment #Work
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| 05 Jan 2016 | 78: Putting Children’s Pain in the Picture | 00:29:34 | |
‘In hospital. Don’t know what’s going to happen to me.’ These words, written by a child asked to describe her pain after surgery, speak of the anxiety caused by a failure to reassure and explain.
This edition of Airing Pain focuses on the communication challenges faced by children and those caring for them. Producer Paul Evans hears from Alyson Twycross and Bernie Carter – both are nurses and academics specialising in children’s pain – about how these barriers can be overcome using art produced by the children to represent their pain and its effect on them.
Twycross explains why it’s important for children to be informed and involved in decisions about their care. She also gives tips for parents on helping children recover from surgery and minimise the risk of developing post-surgical pain.
Contributors:
#Artsandcrafts #Childrenandyoungpeopleinpain #Communicationskills #Explainingpaintochildren #Postsurgicalpain
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| 03 May 2016 | 79: Side Effects, Placebos and a Brief History of Nerve Pain | 00:29:48 | |
Tens of thousands of soldiers in the First World War survived with limb amputations, but doctors and wider society were unprepared for and often unsympathetic to the long term pain they experienced.
Professor Andrew Rice brings us up to date with developments since then in treating pain caused by nerve damage and explains what makes neuropathic pain different from everyday pain. Although the drugs used to treat neuropathic pain may have improved, side effects are still a major problem for many. Researcher Sheena Derry discusses how we can balance out the risks and benefits. Understanding the harm caused by a drug can be challenging because even research study participants given sugar pills rather than real drugs may experience adverse effects. Psychologist Lena Vase explains that the latest research on the placebo effect shows that it’s always worth a doctor’s time to listen sympathetically to a patient. Contributors:
#Amputationanphantomlimbs #Neuropathicpain #Medication #Painkillersandsideeffects
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| 16 May 2016 | 80: Suffering is Optional | 00:29:52 | |
This edition has been funded by the MacRobert Trust and the Forces in Mind Trust.
‘Pain is inevitable, but suffering is optional.’ A motto tattooed onto the arm of a wounded veteran which, although easier said than done, is good advice for anyone living with pain. But how can ex-service personnel get the support they need to manage the pain and psychological trauma resulting from what are often horrific injuries?
Producer Paul Evans finds out in this the first edition of Airing Pain’s miniseries on former members of the armed forces who live with pain. Infantry veteran Michael Clough, whose injuries left him with complex regional pain syndrome (CRPS) and requiring the amputation of his leg, shares his story of the difficult transition from military hospitals to NHS care. Claire Stephens, CEO of the charity Wound Care for Heroes, and herself medically-retired after injury, outlines how care can be improved. We also hear from pain management specialists with military backgrounds about the challenges faced by this patient group. Vincent De Mello explains why ex-servicemen in pain often feel abandoned and says that the effects reach beyond the individual to the whole family, while Dominic Aldington discusses the problem of veterans feeling their pain is disbelieved by civilian clinicians. Contributors:
More information:
#Complexregionalpainsyndrome #Educatinghealthcareprofessionals #Funding andavailabilityofpainservices #Primary care
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| 31 May 2016 | 81: Life After Limb Loss | 00:29:54 | |
This edition has been funded by the MacRobert Trust and the Forces in Mind Trust.
Hundreds of veterans of the conflicts in Iraq and Afghanistan sustained injuries leading to the loss of one or more limbs. In the second of this Airing Pain miniseries on pain management for ex-service men and women we look at the support available to help amputees rebuild their lives.
At the Specialist Mobility Rehabilitation Centre (SMRC) in Preston Gregg Stevenson tells Producer Paul Evans about his two-year journey towards regaining mobility and adjusting to civilian life after losing his lower legs in an explosion. Thanks to prosthetic legs, a dedicated team of healthcare professionals and his own determination, Gregg is now a personal trainer helping others in similar situations.
Dr Fergus Jepson, who oversees the medical care at SMRC, explains why getting a prosthetic limb is just the first step on the road to recovery. Candy Bamford, the Centre’s Counselling Psychotherapist, describes how she helps veterans to control their pain and confront traumatic memories by using psychological techniques better suited to the military background of her patients than the more typical ‘talking therapies’.
Contributors:
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| 14 Jun 2016 | 82: Pain, PTSD and Perfume | 00:29:58 | |
This edition is supported by Forces in Mind Trust and the MacRobert Trust.
In the third instalment of our Airing Pain miniseries on military veterans living with pain we focus on the relationship between pain and psychological wellbeing. Anxiety, fear and anger are common responses to pain, but guilt and post-traumatic stress disorder (PTSD) can also be heavy burdens for ex-service personnel, explains clinical psychologist Dr Alan Barrett.
Gabriel Gadikor was caught in a rocket attack while serving in Iraq and has since suffered chronic pain and psychological trauma. He describes the coping strategies he has learnt while a patient at Dr Barrett’s clinic, including using a favourite perfume to ‘ground’ himself when troubled by pain and difficult thoughts or emotions. Although attitudes in the military have begun to change, it can still be difficult for servicemen and women to admit to psychological distress and many may not be coming forward to get the support they need. Gabriel urges his former colleagues facing the same issues to seek help: ‘the longer you keep your problem, the more difficult it is to treat’. Contributors:
More information:
#Psychologicalapproachestopainmanagement #Psychologicaleffectsofpain
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| 29 Jun 2016 | 83: Arthritis: From self-help to cutting edge research | 00:29:44 | |
This edition is funded by the Agnes Hunter Trust.
Over ten million people in the UK live with arthritis and it is the most common cause of pain. Professor David Walsh of Arthritis Research UK explains what causes the different types of arthritis, why the nervous system is the main culprit in arthritis pain and he updates us on the most promising lines of current research into drug treatments.
But there is much more to living well with arthritis than taking medication as producer Paul Evans finds out at an Arthritis Care Wellbeing Day in Renton, Scotland. He joins a specially adapted tai chi lesson and finds out from Sharon MacPherson about what to eat and drink and what to avoid when managing the condition: ‘Sassy Water’ is in, alcohol is out.
The workplace can be a challenge for anyone managing pain with 50 per cent of those with rheumatoid arthritis leaving work within a year. Hazel Muir emphasises the importance of knowing your rights and being able to explain about your pain to employers and colleagues.
Contributors:
#arthritis #diet #exercise #work
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| 12 Jul 2016 | 84: Cancer Pain | 00:28:48 | |
This edition is funded by the Agnes Hunter Trust.
More people than ever before survive cancer, but the disease and treatment can have long-lasting effects on health, including chronic pain. In this edition of Airing Pain we visit Maggie’s Centre, Edinburgh, which pioneers a compassionate, personalised approach to supporting those with cancer and survivors of the disease.
Cancer Nurse Andy Anderson explains how the tranquil, homely environment at Maggie’s gives service users a chance to regain control. Claire Tatterstall speaks about her long struggle with bone cancer, the stigma surrounding the ‘C word’ and the pain resulting from her life-saving treatment.
While Claire takes her pain as a reminder that she’s ‘still here’, the immense gratitude many survivors feel can lead to their pain going unreported, says cancer pain specialist Dr Lesley Colvin. She explains why cancer can lead to chronic pain and how we can improve pain management in palliative care and for survivors.
Contributors:
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| 27 Jul 2016 | 85: Pain in Europe | 00:28:11 | |
This edition is funded by Grünenthal.
Around 20 per cent of Europe’s adult population live with chronic pain and the consequences for individuals and society are devastating. In this edition of Airing Pain we head to the Societal Impact of Pain meeting in Brussels to hear from the patients, healthcare professionals and policy makers coming together to improve the lives of people in pain across the continent.
Dr Chris Wells explains why pain management is a matter of life and death and how to put pain higher up the political agenda. MEP Theresa Griffin takes up the baton with a call to make the workplace accessible to those living with pain.
Jane Moejlink describes the challenges of getting a diagnosis for interstitial cystitis and Sjögren’s syndrome in the face of sceptical doctors and the language barrier, while Professor Ilora Finlay makes the case for a different view of palliative care. Plus: an update from Ireland and bursting balloons to raise awareness.
Contributors:
#AiringPain, #Pain Concern, #Able Radio
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| 01 Feb 2017 | 86: Sickle Cell Disease | 00:29:22 | |
An estimated 15,000 people in the UK are living with Sickle Cell disease and at least 250,000 are carriers. Dr Elizabeth Rhodes explains the causes and symptoms of the genetic blood disorder, the areas where it is most prevalent and who is affected.
One such patient is Khadijat Jose, who describes her experiences growing up in Nigeria and why being a carrier of the disease is an advantage in countries with Malaria. For those with the condition however, each day can bring severe pain often requiring admission to hospital. Dr Oliver Seyfried highlights the life-limiting effects of this pain, especially on young people, and the challenges it poses in all spheres of life.
Self-management is therefore hugely important for those with Sickle cell disease, whether the pain experienced is mild or severe. Paul discusses the different approaches taken by the Red Cell Pain Management team at St George’s Hospital with clinical psychologist Dr Jenna Love and specialist physiotherapist Rebecca McLoughlin. Both emphasize the importance of being able to tackle sickle cell pain from an emotional and psychological perspective as well as a physical one.
Thanks to progress in medical training and increased awareness, the quality of life for Sickle Cell patients continues to improve. Dr Oliver Seyried and Dr Jenna Love mention the national sickle cell screening programme and parent education, on which more information can be found here: https://phescreening.blog.gov.uk/category/sct/
Contributors:
More information:
#airingpain #painconcern #audioboom #ableradio
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| 14 Feb 2017 | 87: Vulvodynia | 00:29:42 | |
This edition has been funded by a grant from the Women’s Fund For Scotland.
Vulvodynia is a nerve-based pain, often described as a burning or stinging sensation, which affects the vulva. 1 in 7 seven women are estimated to experience Vulvodynia at some stage during their life and the condition can be very distressing to live with, impacting on everything from clothing choices to relationships.
Dr Winston de Mello explains why many women with Vulvodynia experience difficulties on the path to diagnosis and why GPs under pressure create a “postcode lottery” for those in pain without any visible symptoms.
Dr Rebekah Shallcross describes what she found in her research into women’s experiences of Vulvodynia, including sexist treatment by some healthcare professionals, a lack of awareness of the condition within the medical community and the stigma associated with genital pain. The role played by penetrative sex in social constructions of female identity can create feelings of guilt and shame in patients with Vulvodynia where physical intimacy is problematised by pain, feelings which Dr Shallcross links with historical gender inequality and patriarchal attitudes towards sex.
Gynaecology consultant Dr David Nunns discusses the importance of the “four Ps” in patient treatment and improving the lives of those with Vulvodynia: patient education, pain modification, physiotherapy and psychological support. Plus the importance of discourse in raising awareness and reducing pain and associated stress.
Contributors:
More information:
#airingpain #ableradio #painconcern #audioboom #chronicpain #vulvodynia #vulvalpain #vulvalpainsociety #pelvicpain #GPs #healthcareprofessionals #gender #patriarchalmedicine #painmanagement #selfmanagement #psychology #womenspain #womensfundforscotland
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| 14 Mar 2017 | 88: What to EXPPECT When You're in Pelvic Pain | 00:29:34 | |
This edition has been funded by a grant from the Women’s Fund For Scotland.
Interstitial cystitis, aka painful bladder syndrome, is a poorly understood bladder condition that causes long-term pelvic pain and problems with urination. The charity Bladder Health UK estimates that 400,000 people in UK live with the condition. Of them, 360,000 are women.
Anne Cameron, retired nurse and now coordinator for Bladder Health UK in Scotland, explains the varied symptoms and treatments available, and how certain factors can make the path to diagnosis far from smooth for some women.
Jen stresses the importance of support groups in alleviating feelings of stress and isolation, and Pat describes how she overcame her initial reservations to try different self-management techniques, including yoga and mindfulness.
Dr Shona Brown is a clinical psychologist and part of the multi-disciplinary team at the EXPPECT pelvic pain clinic in Edinburgh’s Royal Infirmary. She describes the impact of pelvic pain on patients’ emotional wellbeing and why it’s important to include a psychological approach in pain management programmes.
Contributors:
For more support and information on living with pelvic pain, visit:
#airingpain #ableradio #painconcern #audioboom #chronicpain #bladder #bladderpain #cystitis #interstitialcystitis #pelvicpain #mindfulness #relaxation #yoga #yogaforpain #painmanagement #selfmanagement #psychology #bladderhealthuk #womenspain #womensfundforscotland
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| 11 Apr 2017 | 89: Dementia | 00:29:56 | |
This programme was funded by grant from W G Edwards and the Cruden Charitable Foundation.
According to a survey carried out by the Alzheimers Society, Dementia is the most feared health condition in the UK. Last year alone, 225,000 people developed dementia.
Paul talks to Professor Peter Passmore about the challenges of treating chronic conditions in people who develop dementia, including different medications and why we instinctively link age with pain.
In 2012 Lloyd Hughes authored a report, Managing Chronic Pain in Patients with Dementia. Now a GP trainee, Lloyd discusses how he incorporates his findings into every day patient care and what we can do as individuals to prepare for a future that may well include dementia.
Andy Lowndes, Deputy Chair of Glasgow based charity Playlist for Life, describes the power of music in helping those living with dementia - whether as a patient, carer or loved one - connect with each other and reconnect with themselves.
Contributors:
More information:
For more support and information on living and caring for people with dementia, visit
To read Lloyd Hughes’ report 'Managing Chronic Pain in Patients with Dementia', click here: https://www.gmjournal.co.uk/uploadedfiles/redbox/.../gmaug2012p18.pdf
To upload your own playlist to Playlist For Life click here: http://www.playlistforlife.org.uk/your-space/submit-a-playlist/#3106.
#dementia #airingpain #painconcern #ableradio #audioboom #playlistforlife #music #chronicpain
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| 10 May 2017 | 90: Back Pain | 00:29:08 | |
This programme was funded by a grant from The Schuh Trust.
Back pain causes more disability than any other condition in the UK[1]. It is the second most common cause of absence from work, resulting in the loss of four million working days per year[2]. This comes at a heavy price not only for the NHS, the Department for Work and Pensions, and the UK economy – reported to be costing each £480 million, £5 billion and £9.6 billion a year respectively – but for the increasing number of us who will experience back pain at some point in our lives.
Over 40% of over 50s go on to develop back pain[3], and with an ageing population it’s more important than ever that we know what we can do to prevent, reduce and manage this common but debilitating ailment.
Dr David Rogers is an Orthopaedic Physiotherapy Practitioner at the Royal Orthopaedic Hospital in Birmingham. In 2016 he co-authored the book ‘Back to Life: How to unlock your pathway to recovery (when back pain persists)’ with Dr Grahame Brown, in which readers can find clear, practical strategies for managing and relieving low back pain. David explains the ideas behind the book, the biopsychosocial model and why it’s so important, while Paul tries some 7:11 breathing and relaxation techniques.
Contributors:
More information:
For more support and information on living with persistent back pain, visit
Footnotes:
#Activity #AiringPain #Anxiety #back #Backpain #BacktoLife #Biopsychosocial #Breathing #ChronicPain #Exercise #FightFlightFreeze #FlareUps #Goals #GrahameBrown #DavidRogers #Catastrophising #Lowbackpain #Mindfulness #NICEguidelines #NonMedicationtreatment #Pacing #PainConcern #PainManagement #PersistentBackPain #Relaxation #SelfManagement #Social #SMARTtargets #Stretches #Stress #Visualisation #Work #7:11
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| 06 Jun 2017 | 91: Not an Old Man's Disease | 00:29:49 | |
This programme was funded by a grant from The Schuh Trust.
Gout is the most common form of inflammatory arthritis and affects 1 in 40 people in the UK. So why do we still see it as something that exists only in the pages of Victorian novels? In this episode of Airing Pain we go inside the Houses of Parliament and speak with MPs, clinicians, patients and UK Gout Society members to find out why.
What is gout? Gout is a type of arthritis caused by a build-up of uric acid crystals in the joints, most frequently the feet. As with many conditions, flare-ups can be brought on by a number of factors including lifestyle, stress and diet. Some people, however, have a genetic predisposition. Paul Webber and Alan Hughes both suffer with gout, describing the pain as being repeatedly being kicked in the shin and worse than a red-hot poker.
What’s the treatment? Treatments for reducing pain during attacks include icing the joint and taking medications, however there are also long term treatments. There are lifestyle changes we can make, such as consuming less yeast-rich food and drink, staying active and drinking plenty of water. Despite being relatively inexpensive to treat, gout comes at a great cost to the economy and society, as the Chief Executive of ARMA, Sue Brown, highlights.
Consultant Rheumatologist Dr Jonathon Rees identifies a lack of awareness in primary care, with cases often going undiagnosed. Paul also talks to Michael Snaith about his early gout and gender research at the UK’s first gender reassignment, and Lord Ramsbotham sums up perfectly why gout really is no laughing matter.
Contributors:
More information:
For more support and information on living with gout, visit
#AiringPain, #PainConcern, #AbleRadio, #gout, #UkGoutSociety, #ShoutAboutGout
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| 05 Jul 2017 | 92: Diabetes and Neuropathic Pain | 00:29:37 | |
This programme was funded by a grant from The Schuh Trust.
There are around 4.5 million people living with diabetes in the UK, and every day more than 20 leg, foot or toe amputations are carried out as a result of diabetic neuropathy. This is particularly shocking, as four out of five of these amputations could have been avoided with proper care*.
People with diabetes are often bombarded with advice on diet and exercise, however as with any long term condition it can affect all aspects of life. In this episode of Airing Pain we talk to Linda McGlynn from Diabetes Scotland and clinical specialist physiotherapist Ben Davies.
Linda explains how diabetes affects the nervous system and why it’s so important to look after our feet. Ben describes some the results of his research into pain management for those with diabetic neuropathy, and why diabetes specialists left feeling “clinically impotent” should look towards the pain community for better treatment models.
Contributors:
More information:
For more support and information on living with diabetes, as well as advice on how to look after your feet, visit
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| 01 Aug 2017 | 93: Easy Being Green | 00:29:59 | |
This programme was funded by a grant from The D’Oyly Carte Charitable Trust.
Getting some gentle exercise tops the NHS’ list of ten self-help tips for managing pain, with distraction and communication also playing important roles. In this episode of Airing Pain we see how gardening can help with all three, and the benefit for our minds as well as our bodies.
We talk to Craig Lister and Chris Speirs from The Conservation Volunteers about their community garden project Green Gym, which brings together volunteers in shared green spaces in cities across the UK. One such space is Waterlow Park in London, where Paul chats to volunteers Maddy and Rosie about how the weekly sessions have helped them overcome difficulties including depression, anxiety and chronic pain.
A few miles away from Waterlow Park is the Rheumatology department at Whipps Cross Hospital, where clinical nurse specialist Margaretta Rooney created a garden designed specifically with the needs of patients with arthritis in mind. Raised beds allow people to sit down as they weed, reducing stress on the joints, and a patio means there’s no need for mowing or other heavy equipment.
For fifteen years, volunteers Brian and Josephine have been meeting up each week to help tend to the garden. Brian explains how, thanks to Margaretta, even with arthritis in his hands he still has green fingers and enjoys the social aspect of being out in the fresh air with his friend. Josephine describes the vital role the garden played in managing her chronic pain and depression, and the feeling of giving back to the department and hospital community.
Contributors:
More information:
#airingpain #painconcern #gardening #greengym #TCV #chronicpain
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| 05 Sep 2017 | 94: Complex Regional Pain Syndrome 1 of 2 | 00:29:10 | |
This programme was funded by grants from the RS MacDonald Charitable Trust and The Hospital Saturday Fund.
The first of two programmes on complex regional pain syndrome, or CRPS, which can be described as continuous and sometimes debilitating pain that can be confined to one limb, but has been known to spread to other parts of the body. CRPS is poorly understood, and no direct cause has been identified.*
In this edition of Airing Pain, Paul Evans speaks to Sunny Boshoff, author of CRPS Awareness: Moving Against Pain, who has had her own experiences with the syndrome, describing the agonising sensations she felt while living with CRPS.
Professor Frank Birklein, head of the Peripheral Nerve Disorders and Pain Research and Treatment at the Department of Neurology, University Medical Centre Mainz in Germany is one of the world’s leading authorities on CRPS. He explains the meaning behind the syndrome’s name, what can cause it, and how understanding of the disease has progressed.
Clinical lead for the complex regional pain syndrome service at the Royal United Hospitals in Bath, Professor Candy McCabe, speaks about her experiences of treating people suffering from the disease, how it effects their emotional wellbeing, and the psychological therapies used to help people manage their pain.
Contributors:
More information:
For more information on CRPS, visit:
#AiringPain #AiringPainSeries9 #ChronicPainAsAConditionInItsOwnRight #CRPS #ExplainingPain #PainConcern #PainManagement #PainManagementProgrammes #PsychologicalApproachesToPainManagement
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| 11 Oct 2017 | 95: Complex Regional Pain Syndrome 2 of 2 | 00:29:36 | |
This programme was funded by grants from RS Macdonald Charitable Trust and the Hospital Saturday Fund.
Complex regional pain syndrome affects 1 in 3,800 new people every year in the UK*. It is a poorly understood condition and it can be frustrating for patients who are suffering to find peace of mind. The Royal National Hospital for Rheumatic Disease in Bath began its rehabilitation service for individuals with CRPS in 1999 and is one of the very few in the UK with outpatient and inpatient care dedicated to CRPS.
The centre, led by Professor Candy McCabe, strives to improve patients’ lives through up-to-date multidisciplinary techniques ranging from occupational therapy to mirror visual feedback (MVF). Michael and Julie, patients currently enrolled in the rehabilitation programme, speak to Paul about the injuries that caused them to develop the syndrome, how it affects their lives, and how the programme is helping them cope.
Paul also sits in on a session with Senior Physiotherapist Emma Houlihan and patient Chris, whose entire left side of his body has been affected by CRPS, to explore the therapies used at the centre to try to help him regain normal sensation.
Clinical Specialist Physiotherapist Jane Hall describes the process that new patients will go through, and how the centre helps patients even after they have left the programme.
Contributors:
More information:
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| 07 Nov 2017 | 96: The British Pain Society (BPS) at 50 | 00:48:18 | |
This programme was funded by an educational grant from Napp Pharmaceuticals Ltd.
In 2017, the British Pain Society celebrated its fiftieth year as one of the foremost organisations for furthering the understanding of pain, and is now the oldest and largest multidisciplinary pain-focused organisation in the UK.
Founded as The Pain Group in 1967, its membership was limited purely to anaesthetists working in pain clinics. In 1979, the organisation registered as a charity, changing its name to the Intractable Pain Society of Great Britain and Ireland.
Over the years, the organisation became increasingly multidisciplinary and, in 1988, changed its name to The Pain Society to reflect this shift. The society’s membership and activities continued to grow, and in 2004 the Pain Society transferred all its assets to an organisation with charitable status and became The British Pain Society.
As the largest professional organisation in the field of pain, the BPS continues to strive to provide an evidence-based, multidisciplinary approach to raising awareness for those living with pain, and to elevate pain education and management.
To celebrate this storied fifty years, Pain Concern invited Dr Andrew Baranowski, current president of the BPS, Professor Sir Michael Bond, one of the world’s leading authorities on the psychological effects of pain and one of the people involved in the society’s origins, to speak with Pain Concern’s chair Heather Wallace. This discussion explores the past, present and future of The British Pain Society.
Contributors:
More information:
#AiringPain #ableradio #painconcern #chronicpain #painmanagement #thebritishpainsociety #iasp #healthcareprofessionals #nappharmaceuticals #bps
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| 05 Dec 2017 | 97: Sex and Chronic Pain | 00:29:37 | |
This programme is supported by an educational grant from the Tillyloss Trust.
Along with food, shelter and clothing, sexual expression is one of the basic human needs. It allows us to express love and fulfils our need for human connection, but for the 14.3% of people in the UK living with moderately or severely disabling chronic pain, sex can be met with trepidation and anxiety.[1] This is understandable, as it is estimated that 75% of those that live with chronic pain experience sexual dysfunction.[2] There can also be a certain amount of embarrassment in discussing chronic pain and its effect on sexual activity with healthcare professionals, especially if they don’t have the skills to address these issues. This is why Pain Concern has updated its sex and chronic pain leaflet with authors Katrine Petersen, senior physiotherapist, and Dr Sarah Edwards, clinical psychologist, who specialise in abdominal pelvic pain at the Pain Management Centre, University College London Hospitals NHS Foundation Trust. You can find the leaflet on our website here: http://painconcern.org.uk/sex-chronic-pain-leaflet/
In this edition of Airing Pain, Paul speaks to Dr Edwards and Petersen about the major difficulties patients experience when it comes to living with chronic pain and managing sexual intimacy and techniques that can be used to combat them (you can find these techniques in our leaflet). Denise Knowles, family counsellor and psychosexual therapist working with relationship support charity Relate, speaks about her experiences of how relationships can be affected not only by physical pain, but by mental pain as well. She also stresses the importance of the distinction between ‘sex’ and ‘intimacy’.
Contributors:
More information:
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| 03 Jan 2018 | 98: IASP Global Year for Excellence in Pain Education and the Benefit of Pain Management Programmes | 00:29:55 | |
This edition is funded by Pain Concern’s donors and friends, assisted by an educational grant from Grünenthal.
The International Association for the Study of Pain (IASP), formed in 1973, is the leading forum of scientists, clinicians, healthcare providers and policy makers supporting and promoting the study of pain and using that knowledge to improve pain relief worldwide.
Each year IASP focuses on a different aspect of pain that has global relevance. In 2017, IASP focused on pain after surgery, and joint pain was the focus of 2016. In this programme, Paul Evans speaks to Dr Paul Wilkinson, task force lead for the 2018 Global Year for Excellence in Pain Education.
IASP hopes to advance the understanding of pain in the areas of government, professional and research education and ultimately create strategy to communicate the gaps in pain education globally.
Paul also speaks to clinical psychologist Dr Nicholas Ambler, patient trainer Lisa Parry and assistant psychologist Sareeta Vyas at the Bristol Pain Management Programme to find out if there is a correlation between investment in pain management research and development and patient benefit.
Contributors:
More information:
For more information on IASP, please visit
For more information on NHS North Bristol Pain Management Programme, visit:
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| 07 Feb 2018 | 99: Transition Services for Adolescents with Chronic Pain | 00:29:05 | |
This edition was funded by a grant by the Agnes Hunter Trust
With 8% of young people in the 13-18 age range affected by chronic pain (15,000 living with arthritis alone), the transition to adulthood, and the medical support that accompanies it, is an important process. Pain management consultant Dr Mary Rose and nurse Mandy Sim of the Royal Hospital for Sick Children in Edinburgh speak to Paul Evans about the methods they use to make the transition into adulthood as supportive as possible, as well as the importance of educating patients, parents and schools on the biopsychosocial aspects of pain and its management.
Dr Alison Bliss, paediatric anaesthesia and chronic pain consultant at Leeds Children’s Hospital, emphasises the importance of finding a balance between cultivating independence in young-adults with pain and helping them find the support in their transitional period.
Paul also speaks to Dr. Line Caes, psychology lecturer at Stirling University, touches on the nuances in dealing with how young people see themselves in comparison to their peers and making the classroom a more accepting space.
Contributors:
More information:
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| 14 Mar 2018 | 100: Airing Pain at 100 with the Glasgow Pain Education Session | 00:29:53 | |
In 2010, Airing Pain was conceived as a way for those with chronic pain, unable to leave their homes and attend support meetings, to easily access vital resources.
Heather knew that this undertaking would require a skilled and experienced producer, so she reached out to Paul Evans. In this edition, Paul reminisces about the first phone call they had together, his eye-opening experience of realising just how large the pool of knowledge on pain was, and how the pain education sessions came to be.
Paul then heads to Eastwood in the south of Glasgow to sit in on one of our sessions. He speaks to both pain education trainers and participants about their experiences how their relationship with pain has changed as a result.
Contributors:
More information:
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