Sepsis Voices with Dr Ron (media@sepsistrust.org)

In the twelfth episode of Sepsis Voices with Dr Ron, Dr Ron Daniels is joined by Deborah Duval, managing editor of Kidney Care UK’s quarterly magazine, Kidney Matters, and head of the charity’s Kidney Kitchen.

As a Type 1 diabetic living with chronic kidney disease (CKD), and two-time sepsis survivor, Deborah is uniquely placed to speak to the interrelationship of the conditions, and what our organisations are doing to work together to improve sepsis outcomes for at-risk patient groups.

In this is episode, released in time for Diabetes Awareness Week (10th-16th June), the pair discuss:

- The differences between Type 1 and Type 2 diabetes, and the treatments for these conditions

- Deborah’s organ transplant journey – including connecting with donor families through mutual consent

- Risk factors that predispose kidney patients and diabetics to infection, and therefore sepsis  

- Deborah’s sepsis experiences, which resulted in life support

- What UKST and Kidney Care UK are doing in partnership to raise awareness of sepsis

- How sepsis can result in acute kidney injury, which needs to be treated with dialysis

- The amazing work of Kidney Care UK to support people with CKD and acute kidney injury

If you’d like to access Kidney Care UK’s amazing resources, head to their website: https://kidneycareuk.org/

If you’re looking for support following sepsis, whether you’re a survivor, carer or you’ve been bereaved by the condition, head to UKST’s website: https://sepsistrust.org/

In episode 16 of Sepsis Voices with Dr Ron, UKST’s Founder & Chief Medical Officer speaks with two inspiring guests for Men’s Health Month. Rob Forkan shares his extraordinary journey of resilience after surviving the 2004 Boxing Day tsunami and later battling sepsis. He offers powerful insights into finding purpose and strength through unimaginable challenges.

Devoted father Louis Rickman recounts his wife Louise’s recent battle with sepsis following the birth of their first child, Rex, as well as the devastating loss of his brother to sepsis in 1999. Together, Rob and Louis explore the profound physical and emotional toll of sepsis and the critical importance of community and mental health support in recovery. 

This episode covers: 

• Rob’s incredible story of mental resilience after surviving the Boxing Day tsunami and sepsis 
• The lasting impact of Louise’s sepsis experience on Louis’ family unit 
• The mental health challenges faced by men and carers in the aftermath of trauma
• The importance of timely recognition of sepsis symptoms, and men accessing healthcare  
• Practical advice for finding resilience, building support networks, and promoting recovery

Tune in to this special episode, released in honour of Men’s Mental Health Month during November 2024, to hear two extraordinary men reflect on their experiences with honesty and hope. 

Of course, if you’re struggling with your mental health at any time, you can also access free nurse-led sepsis support services via our website: https://sepsistrust.org/get-support 

You can also learn more about sepsis and UKST’s mission at sepsistrust.org 

Find out about Rob’s work with Gandys at gandys.com and Preveo at thinkpreveo.com 

In the tenth episode of Sepsis Voices with Dr Ron, UKST’s Founder & Joint CEO Dr Ron Daniels welcomes Rob Behrens, Parliamentary and Health Service Ombudsman, and Chair of the organisation, to share his thoughts on the evolving landscape of sepsis care.

As Rob approaches the end of his tenure, they reflect on the changes since the Ombudsman's groundbreaking sepsis report, 'A Time to Act,' in 2013.

They discuss improvements in sepsis detection, management, and patient outcomes over the past decade, as well as key takeaways from the Ombudsman's latest report, 'Spotlight on sepsis: your stories, your rights.'

The pair also cover:  

• Healthcare providers' responses to Ombudsman recommendations and barriers hindering implementation.
• Insights on driving systemic change and promoting patient safety during Rob's tenure.
• Recent updates to NICE sepsis guidelines and their significance for healthcare professionals.
• Necessary changes within the NHS and recommendations for sustained improvement in sepsis identification and treatment protocols.
• Addressing the balance between urgent treatment and antimicrobial stewardship in sepsis cases.
• The role of public awareness and education in improving sepsis outcomes.
• Rob’s advice for his successor

Visit www.ombudsman.org.uk to read the two sepsis reports and https://sepsistrust.org/professional-resources/ for UKST’s range of clinical tools and e-learning.

In episode 4 of Sepsis Voices with Dr Ron, UKST Founder and Joint CEO Dr Ron Daniels is joined by renowned journalist and editor, Matthew D’Ancona.

Sepsis survivor Matthew is editor-at-large of The New European, as well as contributing editor to Prospect, and a columnist for The Evening Standard. He’s held previous editor roles with the Spectator, slow-news outlet, Tortoise, and is also the former deputy editor of The Sunday Telegraph.

The pair cover:

• Matthew’s personal sepsis experience and why he chose to share it with Tortoise readers
• The ways charities like UKST can ensure their causes get media coverage – and how that’s changed in a post-Covid landscape
• The representation of sepsis in other media such as popular soaps, like Coronation Street
• Delicately walking the line between empowering and scaremongering – so A&E isn’t overwhelmed by the ‘worried well’
• The threat of antimicrobial resistance (AMR) and how to ensure the public understands this
• Opportunities to get sepsis higher up on the agenda of a new government

Read Matthew’s sepsis experience here: https://www.tortoisemedia.com/2019/08/13/delirium-tremendous/

Find out more about sepsis: https://sepsistrust.org/about/about-sepsis/

Get sepsis support: https://sepsistrust.org/get-support/

In episode 5 of Sepsis Voices with Dr Ron, UKST’s Founder & Joint CEO Dr Ron Daniels is joined by Dr Tom Ashfield a Senior Medical Advisor at Pfizer, and a GP. Tom is an employee of Pfizer UK, his contributions reflect the work of Pfizer UK in AMR and his own experience as a doctor. Pfizer UK have undertaken content approval of this episode. 

The two doctors discuss the threat of antimicrobial resistance (AMR), and the link to sepsis. They also explore the vital work of the Infection Management Coalition to put responsible antimicrobial stewardship on the agenda of global health leaders, as well as making the issue easy to understand so that patients are empowered to safeguard their own future.  

The pair cover:  

• What AMR is and how sepsis is regarded by the World Health Organization as the final common pathway to death from most untreatable infections  
• Public knowledge of AMR and what can be done to improve awareness  
• How UKST’s work has influenced Tom’s practice as a GP  
• Changes to community care following Covid-19 pandemic and impact on patients  
• Improving the way diagnostics are integrated into clinical settings 
• Tom’s experience in the pharmaceutical industry and the need for collaboration through initiatives like the Infection Management Coalition  

Find out more about the Infection Management Coalition: https://theimc.org/  

Find out more about sepsis, and the work of the UKST: https://sepsistrust.org/  

Final approval undertaken by Pfizer UK. Date of prep. August 2023; PP-UNP-GBR-6068 

Sepsis Voices with Dr Ron is a new podcast, coming soon, that is aimed at junior healthcare professionals, as well as health-conscious members of the public. It aims to educate and raise awareness about sepsis, as well as infection management more broadly.

The podcast is hosted by Dr Ron Daniels, who is an intensive care physician within the NHS, as well as the founder and joint CEO of The UK Sepsis Trust, and Vice President of the Global Sepsis Alliance.

In episode nine of 'Sepsis Voices with Dr Ron', UKST’s Founder & Joint CEO Dr Ron Daniels sits down with Dr Siwan Seaman, a Consultant at the in-patient unit at the Marie Curie hospice in Cardiff and the Vale, and recently appointed Medical Director at the hospice.

Marie Curie is the UK’s leading end of life charity. While they deal with patients with a range of life-limiting conditions, this episode focuses on cancer and sepsis, given that it was World Cancer Day on 4th February and King Charles III has recently been diagnosed with cancer.

The pair discuss:

• The intricate link between cancer and sepsis, unveiling pertinent risk factors
• The evolving landscape of coding on death certificates and its impact on understanding the correlation between these conditions
• Collaborative efforts between UKST and Marie Curie in developing a palliative care tool tailored for clinicians attending to hospice patients exhibiting sepsis red flags
• The paradigm shift ushered in by more acute interventions for individuals with life-limiting illnesses.
• The nuanced challenges in identifying and managing sepsis within the realm of palliative care, navigating the delicate balance between intervention intensity and prioritising patient comfort and quality of life
• The crucial involvement of patients and their families in decision-making regarding sepsis management, intricately woven within the framework of end-of-life care
• The promising potential of technology in augmenting sepsis recognition and management

The palliative care tool discussed in this episode is available for use across all hospice settings, not limited to Marie Curie's nine hospices, access it here: https://sepsistrust.org/professional-resources/our-clinical-tools/marie-curie-the-uk-sepsis-trust/

If you’ve been affected by sepsis, get support from UKST’s specialist support nurses: https://sepsistrust.org/get-support/

Learn more about Marie Curie: https://www.mariecurie.org.uk/

In episode 15 of Sepsis Voices with Dr Ron, UKST’s Founder & Chief Medical Officer is joined by Caroline Hughes, Support Services Manager at the Meningitis Research Foundation, to discuss the links between sepsis and meningitis.

Released following World Meningitis Day on 5th October, this episode sheds light on the interconnectedness of these life-threatening conditions – including the impact on survivors and their families – along with the urgent need for awareness, and how timely intervention can save lives. 

Caroline shares the vital work her organisation does to support individuals affected by meningitis and the global efforts to defeat it, including their involvement in the World Health Organisation’s initiative to defeat bacterial meningitis by 2030.

The episode covers:

• Caroline’s insights into the global burden of meningitis 
• The relationship between sepsis and meningitis 
• The importance of public messaging to raise awareness of the conditions 
• The long term impact of these conditions on patients and their loved ones 
• World Meningitis Day 2024 and how its initiatives are driving awareness globally
• Socioeconomic disparities in sepsis and meningitis outcomes, and the need for improved access to resources 
• How charities like ours are collaborating to promote clear and accessible messaging

Tune in for a comprehensive discussion on the importance of early recognition and the life-saving impact of collaboration in the fight against meningitis and sepsis.

You can learn more about sepsis and the UK Sepsis Trust’s mission at sepsistrust.org, and discover resources on meningitis at meningitis.org. 

Other resources mentioned in the episode: 

Read Lauren’s story: https://sepsistrust.org/sepsisvoices/lauren/ 

Listen to Tilly and Lucy’s story: https://sepsisvoices.podbean.com/e/beyond-the-numbers-illuminating-the-reality-of-paediatric-sepsis/ 

In episode 6 of Sepsis Voices with Dr Ron, UKST’s Founder & Joint CEO Dr Ron Daniels is joined by Cóilín Nunan, who is the Policy and Science Manager of the Alliance to Save Our Antibiotics, an alliance of 71 member organisations co-founded by Compassion in World Farming, the Soil Association and Sustain to campaign against the overuse of antibiotics in livestock farming.

Following the publication of Alliance to Save Our Antibiotics’ new report, a comprehensive assessment of the antibiotic policies of the UK’s leading catering companies, the duo discuss how antimicrobial resistance (AMR) could cause up to 10 million deaths a year by 2050 if we don’t act now.

The pair cover:

• Antibiotic use in the farming industry – how the UK is falling behind the EU
• Evidence showing that antibiotic consumption impacts human bugs, causing antimicrobial resistance (AMR) – and the scale of this threat
• Catering companies – who uses their services in the UK and why it matters if antibiotics are used in supply chains
• What retailers and governments are and aren’t doing to ensure food chains are antibiotic free
• How the press and celebrity ambassadors can help shine a spotlight on AMR
• What the individual shopper can do to protect themselves against AMR – especially if they are from a lower income household looking to sustain good nutrition

Read the catering report in full: https://www.saveourantibiotics.org/our-campaign/catering-companies-and-antibiotics/

Find out more about the UKST’s stance on antimicrobial use: https://sepsistrust.org/

Find out more about the work of the Alliance to Save Our Antibiotics at www.saveourantibiotics.org  

To mark Mental Health Awareness Week (13-19th May), episode 11 of Sepsis Voices with Dr Ron delves into the often-unseen mental health impact of sepsis with two remarkable guests, Taz Hoesli and Naj Devgun.

Tune in to this empowering episode for an enlightening discussion on mental health, resilience, and the journey to healing.

The guests:

• Recount their sepsis stories
• Share the profound mental toll of prolonged hospital stays, including the onset of Post Traumatic Stress Disorder
• Talk about how not being able to move their bodies in the same way post-sepsis affected their mental health
• Share how Functional Neurological Disorder affected them (Naj)
• Talk about how hair loss affected their self-esteem (Taz)
• Discuss how their support networks and professional interventions helped in their recovery journeys - including UKST's support services
• Share why it was important to them to be open about the challenges they have faced with others on social media and their personal circles

Dr Ron concludes by reminding listeners of the UK Sepsis Trust’s free support services, which include 1:1 calls with a support nurse; online and face-to-face support groups, and Facebook support & connect groups for sepsis survivors or the bereaved.

Access sepsis support today: https://sepsistrust.org/get-support/

If you or someone you know is struggling, you can access free mental health support:

https://www.samaritans.org/

https://www.mind.org.uk/

https://www.thecalmzone.net/

Trigger warning: Death, Grief, Child Loss

In the first episode of Sepsis Voices with Dr Ron, UKST Founder and joint CEO Dr Ron Daniels speaks to BAFTA award-winning actor Jason Watkins (The Catch, Line of Duty) ahead of the release of a new documentary about the tragic loss of Jason’s daughter, Maude, to sepsis in 2011.

The pair cover:

• Jason, Clara and Maude’s Sepsis Voices story
• The partnership required between parents and healthcare professionals to quickly identify and treat sepsis or other infections
• Jason’s approach to his recent role as a grieving father in Channel 5’s The Catch
• The role of charities like the UKST and Child Bereavement UK in helping navigate grief or trauma
• What viewers can expect from ‘Jason & Clara: In Memory of Maudie’, which will be broadcast on ITV1 on Thursday 30th March 2023 at 9pm

Guests: Dr Ron Daniels, Jason Watkins

Producer: Beth Kirkbride

More information:

https://sepsistrust.org/

https://www.childbereavementuk.org/

Got a question? Get in touch voices@sepsistrust.org

In episode thirteen of Sepsis Voices, UKST’s Founder & Joint CEO Dr Ron Daniels is joined by Jane Plumb MBE, Founder and CEO of Group B Strep Support, for an episode released during Group B Strep Awareness Month.

Group B Streptococcus is the leading cause of severe infection including meningitis in newborns, and Jane knows this all too well, having tragically lost her son, Theo, to it. Since Theo’s death, Jane has been at the forefront of advocacy and education efforts to combat this usually preventable infection.

Like any infection, left untreated Group B strep can progress to sepsis – therefore it’s vital that our two organisations work together to raise awareness in the hope of ending preventable deaths from these conditions.

The episode covers:

• Jane’s family’s story
• What Group B strep is and how it affects adults and children
• What expectant parents should know about Group B Strep – including managing the infection risk to newborns during pregnancy, labour and the early months after birth
• Group B Strep Support’s e-learning for healthcare professionals
• Group B Strep Support’s campaign for better data collection
• How UKST supported this campaign
• How Group B Strep Support will work with the new Government to enact change
• Opportunities for charity collaboration on infection management
• Incidence – how many people are affected by Group B Strep in the UK each year

You can find out more about Group B Strep Support’s work via their website: https://gbss.org.uk/ 

And as ever, you can learn more about sepsis or get support from UK Sepsis Trust at https://sepsistrust.org/  

In episode seven of Sepsis Voices with Dr. Ron, Melissa Mead shares her heart-wrenching story after losing her beloved son William to sepsis in 2014. Published on the anniversary of William’s death, a recently published report from the National Child Mortality Database found that clinical signs of sepsis were present in 701 child deaths between April 2019 and March 2022, out of a total of 1507 deaths; with 15% of those deaths related to infection.

Melissa illustrates how the sepsis landscape has changed over the nine years since her family’s tragic loss, and shares what she thinks still needs to be done to improve outcomes.

Dr Ron is also joined by Mandy Moores, whose identical twin daughters offer a unique insight into the long-term effects of sepsis on children. Mandy shines a light on the challenges faced by families affected by paediatric sepsis, celebrating what Tilly has achieved against the odds.

Join us as we amplify the voices of those who have experienced the devastating impact of sepsis firsthand and work towards a future where no child's life is avoidably cut short by this awful condition.

Read the report: https://www.ncmd.info/publications/child-death-infection/

Get sepsis support: https://sepsistrust.org/get-support/

Are you ready to take your knowledge of sepsis recovery to the next level? Join Dr Ron Daniels and Oliver Jones, UKST's Lead Support Nurse, as they delve into the nitty-gritty of sepsis recovery and Post Sepsis Syndrome (PSS).

Oliver’s background as a critical care nurse makes him the perfect candidate to discuss what information and aftercare is needed for sepsis survivors. Together with Ron, he explores the impact of PSS on people's lives and the challenges of getting it recognised by health professionals, insurance providers, and employers.

The pair discuss ways in which health professionals can help patients who may be experiencing problems after sepsis, and give an overview of the fantastic support services provided by the UK Sepsis Trust.

Find out more about Post Sepsis Syndrome: https://sepsistrust.org/get-support/support/support-for-survivors/post-sepsis-syndrome/

Get support: https://sepsistrust.org/get-support/

Guests: Dr Ron Daniels, Oliver Jones

Producer: Beth Kirkbride

In 2024’s first episode of Sepsis Voices with Dr Ron, Dr Ron Daniels is joined by Lindsay Duncan, who is World Animal Protection UK’s Farming Campaigns Manager.

Released in time for Veganuary, and following the recent publication of World Animal Protection’s report ‘Is factory farming killing us?’, the pair discuss the very real global threat of antimicrobial resistance and how consumer dietary habits will be vital in combatting the problem.

Do you have to go vegan to make a difference, or could giving greater consideration to the type and quality of meat we eat be a solution? Listen and find out! 

The pair discuss:

• The fact that by 2050, an estimated 10 million deaths per year globally will be caused by superbugs (bacteria that are resistant to the antibiotics normally used to treat infections), with an overall economic cost of US$100 trillion.
• How and why antimicrobials are used in farming in the UK, and globally
• How the overuse of antimicrobials in animal farming contributes to the spread of superbugs and reduces the effectiveness of antibiotics for treating the infections these superbugs cause in both humans and animals – with World Animal Protection’s report finding that almost 2000 human deaths in the UK can be attributed to the overuse of antibiotics on factory farms
• How consumers, supermarkets and governments can each play a part in reducing meat consumption to sustainable levels – even if you aren’t doing Veganuary!

Read the report: https://www.worldanimalprotection.org.uk/our-work/farming/superbugs

Find out more about World Animal Protection’s work: https://www.worldanimalprotection.org.uk/

Learn more about UKST’s attitude to antimicrobial stewardship: https://sepsistrust.org/about/about-the-charity/

In episode 14 of Sepsis Voices with Dr Ron, UKST’s Founder & Chief Medical Officer Ron Daniels is joined by former Member of Parliament Craig Mackinlay, for an episode released during Sepsis Awareness Month.

Craig’s story is one of immense resilience. After surviving sepsis, he underwent quadruple amputation and has since turned his experience into advocacy for better sepsis care. Recently appointed to the House of Lords, Craig is now using his platform to push for crucial changes in healthcare that could save lives and improve outcomes for sepsis survivors.

The episode covers:

• Craig’s personal experience with sepsis and the challenges of adapting to life with limb loss
• Post Sepsis Syndrome (PSS) and how it affects survivors, including physical, cognitive, and psychological aftereffects
• Craig’s decision to step down from his role as MP and his journey back to work after surviving sepsis
• How Craig’s new position in the House of Lords allows him to advocate for sepsis awareness and improved care – including better access to prostheses
• Socioeconomic disparities in sepsis outcomes and what needs to be done to address them
• UKST’s three key asks of the government during Sepsis Awareness Month: measuring sepsis care performance, integrating rapid diagnostics, and raising public awareness of sepsis symptoms and support services

Tune in for an inspiring conversation and insights that shed light on the realities of life after sepsis and the urgent need for change.

You can learn more about sepsis and UK Sepsis Trust’s ‘Step Up’ campaign by visiting sepsistrust.org  

In episode 3 of Sepsis Voices with Dr Ron, to mark maternal sepsis month UKST Founder & Joint CEO Dr Ron Daniels speaks to lecturer and mum Dr Poppy Gibson about her experience following the birth of her second child to raise awareness of the signs of sepsis among this at-risk group.

While anyone can get sepsis at any time, pregnant people and new mothers are particularly at risk of infection and therefore sepsis. As well as breaking down some of the stigmas around accessing support for your mental health as a new mum, the episode aims to empower parents – particularly first-time parents – to be prepared to ‘Just ask: Could it be sepsis?’ if something doesn’t feel right.

The pair cover:

• What maternal sepsis is, common causes and incidence
• Some of the commonly reported symptoms of maternal sepsis
• Poppy’s experience after giving birth to her second son
• Attachment with a new-born following sepsis
• How difficult it is to recover from sepsis - especially when you have a baby that needs you
• Support that UKST provides to sepsis survivors

Find out more about maternal sepsis: https://sepsistrust.org/get-support/maternal-sepsis/

Read Poppy’s Sepsis Voices story: https://sepsistrust.org/about/about-sepsis/patient-stories/poppys-story/

Access support: https://sepsistrust.org/get-support/