RealTalk MS (Jon Strum)
Explore every episode of RealTalk MS
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| 26 Apr 2021 | Episode 191: COVID-19 Vaccines and MS -- What You Need to Know Before You Go with Dr. Dorlan Kimbrough | 00:32:12 | |
With 200 million Americans having already received their COVID-19 vaccination, public health officials are warning that vaccine hesitancy is a growing challenge to our nation's ability to fully bounce back from the pandemic and resume something resembling the life we once knew.
If what you're seeing and hearing about the COVID vaccines on social media or from well-meaning friends and family is making you nervous, my guest, Dr. Dorlan Kimbrough, is joining me to set the record straight. Dr. Kimbrough is a member of the National MS Society's COVID Vaccine Guidance Task Force and we're talking about vaccine side effects among people living with MS, vaccine interactions with MS disease-modifying therapies, and other information that you should know before you go for your vaccination. We're also talking about new progressive MS research that's about to be funded by the International Progressive MS Alliance. We're sharing the good news about a DMT that's just been approved for people living with relapsing-remitting MS in England and Wales. And we'll share some of the research that was discussed last week at the American Academy of Neurology 2021 Annual Meeting. We have a lot to talk about! Are you ready for RealTalk MS??! International Progressive MS Alliance reviews research award applications 2:50 Kesimpta approved for RRMS in England and Wales 3:38 News from the AAN 2021 Annual Meeting 4:32 Dr. Dorlan Kimbrough discusses what you need to know about COVID-19 vaccines and MS 10:36 Share this episode 30:02 Have a minute? Leave a rating & review for the podcast 30:22 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/191 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 191 Tags: MS, MultipleSclerosis, COVID19, COVIDVaccine, MSResearch, MSSociety, RealTalkMS | |||
| 02 Jan 2023 | Episode 279: A New Framework for Researching, Diagnosing, and Treating MS with Professor Tanja Kuhlmann | 00:28:09 | |
Every episode of RealTalk MS features updates and reports about emerging science. And, as you listen, some of you may wonder, 'When will these scientific achievements benefit me? When will these breakthroughs and advancements make their way from the laboratory workbench to the clinic?' That's exactly what the panel of MS experts who comprise the International Advisory Committee on Clinical Trials in MS are proposing in a new framework that leverages what scientists are continuing to learn and re-defines how we talk about MS, research MS, diagnose MS, and treat MS.
The new framework being recommended by the committee is broadly outlined in a paper that was published about 8 weeks ago. Joining me to discuss what this proposed framework is all about is the paper's lead author, Professor Tanja Kuhlmann. We're also talking about the new high-efficacy disease-modifying therapy that received its FDA approval last week. We're sharing the details behind the FDA's approval of a Phase 3 clinical trial for Masitinib, an investigational therapy for treating progressive MS. We'll tell you about Abata Therapeutics' first T-cell treatment candidate for treating progressive MS. And you'll hear about the results of a study that compared the outcome of treating people living with secondary progressive MS with autologous hematopoietic stem cell transplantation (aHSCT) versus treatment by disease-modifying therapies. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Experts recommend a new framework for researching, diagnosing, and treating MS :22 FDA approves Ublituximab (Briumvi), an anti-cd20 disease-modifying therapy 1:12 FDA approves Phase 3 clinical trial for Masitinib as a treatment for progressive MS 4:35 Abata Therapeutics announces its first T-cell therapy candidate to treat progressive MS 7:20 Study shows aHSCT more effective than DMTs in treating secondary progressive MS 10:14 Professor Tanja Kuhlmann discusses a new framework for researching, diagnosing, and treating MS 13:51 Share this episode 26:37 Have you downloaded the free RealTalk MS app? 26:57 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/279 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: Ublituximab versus Teriflunomide in Relapsing Multiple Sclerosis AB Science RealTalk MS Episode 205: A Potentially Transformational Therapy for Progressive MS with Samantha Singer and Dr. Richard Ransohoff STUDY: Hematopoietic Stem Cell Transplantation in People with Active Secondary Progressive MS Take the iConquer MS Caregiver Survey Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 279 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 25 Feb 2020 | Episode 130: MS Advocacy with MS Activist Diane Kramer | 00:28:04 | |
We're just a week away from the National MS Society's Public Policy Conference in Washington, D.C. And my guest is Diane Kramer, an MS Activist from State College, Pennsylvania, who will be attending the Public Policy Conference for the first time.  Diane has experienced some of the same obstacles and frustrations that so many people living with MS experience -- insurance companies preventing her from getting the disease-modifying therapy that her neurologist prescribed, having the high cost of her MS medication force her to make nearly impossible financial choices, even skipping treatment. But whether she's knocking on the doors of neurologists' offices in her area so that she can connect them with resources from the MS Society, or starting an MS support group in her community when she found there wasn't one, Diane is a force to be reckoned with. Jon also has some difficult news to share. And we'll tell you how you can support Jon in this year's Walk MS. We have a lot to talk about! Are you ready for RealTalk MS??! ___________ Greetings from the ACTRIMS Forum :22 Some Difficult News :58 You Can Support Jon in WALK MS 2:36 My Interview with Diane Kramer 3:58 Share This Episode 26:37 Reminder...Please Donate to Walk MS 27:02 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/130 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Jon's WALK MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 130 Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, MSPPC20, RealTalkMS
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| 30 May 2022 | Episode 248: Pregnancy and MS with Dr. Annette Langer-Gould | 00:32:32 | |
Starting a family is a big step for anyone. And when you're living with MS and you're on MS medications along with other symptom management medications, planning a family creates a lot of questions about what's safe and what's not.
Dr. Annette Langer-Gould, a clinician-scientist and MS specialist in the Kaiser-Permanente health system, joins me to answer questions about how to safely and successfully navigate conception, pregnancy, and the postpartum period with MS. We'll also get a briefing from Principal Investigator Dr. Jiwon Oh on the long-term extension study of Tolebrutinib, an investigational MS medication that's part of a whole new category of MS medications. And we're sharing details of the 2022 Black MS Experience Summit, taking place June 15-16. Find out how and where to register for this free event! We have a lot to talk about! Are you ready for RealTalk MS??! I'm heading to the Consortium of MS Centers Annual Meeting :22 Dr. Jiwon Oh discusses the long-term extension study of Tolebrutinib 1:02 The Black MS Experience Summit is happening June 15-16 11:01 Can-Do MS is hosting a webinar on "Bowel and Bladder: How to Find Confidence and Control" 12:03 Dr. Annette Langer-Gould discusses pregnancy and MS 13:01 Share this episode 31:00 Download the RealTalk MS app for your iOS or Android device 31:20 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/248 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS The National MS Society Presents the Black MS Experience Summit Can Do MS Webinar Information and Registration iConquer MS Survey for MS Caregivers iConquer MS Survey for Researchers and Healthcare Providers Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 248 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS
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| 13 Mar 2018 | RealTalk MS Episode 23: Accelerating the Cure for MS | 00:36:44 | |
The Accelerated Cure Project for Multiple Sclerosis is a national non-profit organization dedicated to accelerating advances toward a cure for MS. My guests on this week's podcast are Dr. Robert McBurney, the President & CEO of the Accelerated Cure Project for MS, and David Gwynne, who manages their Alliances & Collaborations. We're talking about some of their major initiatives, their recent announcement about a new collaboration, and you'll even learn how you can be a part of MS research. We're also talking about amazing research being done at Cambridge, where they're successfully repairing myelin in the lab using a patient's skin cells. And we're re-capping the National MS Society's Public Policy Conference and Day on Capitol Hill in Washington, D.C. We have a lot to talk about! Are you ready for RealTalk MS?
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| 10 Mar 2025 | An ACTRIMS Forum Conversation with Dr. Nara Michaelson | 00:07:16 | |
Just a couple of weeks ago, 1,800 scientists, clinicians, postdoctoral fellows, and medical residents gathered in West Palm Beach, Florida, for the Americas Committee for Treatment and Research in Multiple Sclerosis annual meeting, better known as the ACTRIMS Forum.
Dr. Nara Michaelson is a Multiple Sclerosis Fellow at Harvard's Massachusetts General Hospital. We first talked with Dr. Michaelson last summer when her article, The Unraveling, was published in the journal, Neurology. At the ACTRIMS Forum, we talked with Dr. Michaelson about how she uses arts therapy with her patients, and how lessons learned studying piano when she was 8 years old continue to serve her today in her work as an MS specialist. We have a lot to talk about! Are you ready for RealTalk MS??! SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/actrims02 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS on YouTube Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Bonus Episode | |||
| 06 Jul 2020 | Episode 149: A Biomarker to Predict MS Progression with Dr. Robert Fox and Caroline Sincock | 00:45:21 | |
The International Progressive MS Alliance is about to publish a paper that recommends advancing research on a specific biomarker to predict MS progression, and we're getting a pre-publication preview of what that paper is all about. My guests are Dr. Robert Fox, a neurologist and Vice-Chair for Research at the Cleveland Clinic Neurological Institute, and Caroline Sincock, who lives with progressive MS. Both Doctor Fox and Caroline are members of the International Progressive MS Alliance Scientific Steering Committee and are among the authors of the new paper that we're going to preview.  We're also talking about the results of a study that show how increasing the energy in cells damaged by demyelination may stop MS progression. We'll tell you why Mayzent failed to gain approval to treat active secondary progressive MS in England. We'll introduce you to the winner of the first Novartis Innovation Prize for Assistive Tech for Multiple Sclerosis. And we'll discuss study results that show that a protein in the blood called neurofilament light chain may predict MS progression. We have a lot to talk about! Are you ready for RealTalk MS??! The 2020 ACTRIMS-ECTRIMS Virtual Conference 3:10 Boosting cellular energy at sites of myelin loss may stop MS progression 4:18 Why NICE failed to approve Mayzent to treat active secondary progressive MS 6:29 Novartis Innovation Prize awarded to AccessNow 9:04 Elevated neurofilament light chain may predict risk of MS progression 10:02 My Interview with Dr. Robert Fox and Caroline Sincock 11:27 Share this episode 42:11 Please Support the National MS Society COVID-19 Response Fund 42:30 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/149 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) National MS Society COVID-19 Response Fund International Progressive MS Alliance Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 149 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS
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| 27 Oct 2023 | ECTRIMS EXTRA with Dr. Daniel Ontaneda | 00:09:03 | |
With more than 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Dr. Daniel Ontaneda.
Dr. Ontaneda is a neurologist at the Cleveland Clinic Neurological Institute's Mellen Center for Multiple Sclerosis and, while attending the ECTRIMS-ACTRIMS meeting, Dr. Ontaneda co-chaired a scientific session on artificial intelligence in MS. We have a lot to talk about! Are you ready for RealTalk MS??! SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/ectrims2304 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS ECTRIMS Extra with Dr. Daniel Ontaneda | |||
| 21 Oct 2024 | Episode 373: ECTRIMS Research Roundup Part 2 with Dr. Bruce Bebo | 00:27:45 | |
Now that he's had a chance to digest all of the research presented at ECTRIMS, Dr. Bruce Bebo, the National MS Society's Executive Vice President of Research, is back to share the key research presented at the largest MS research conference in the world.
This episode of RealTalk MS is the perfect follow-up to my initial conversation with Bruce, which occurred just minutes after ECTRIMS ended. (If you missed our conversation, you may want to check out Episode 369 of RealTalk MS.) We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Part 2 of our coverage of ECTRIMS 2024 :22 Dr. Bruce Bebo shares the key research presented at ECTRIMS 1:06 Share this episode 26:13 Have you downloaded the free RealTalk MS app? 26:31 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/373 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Episode 369: ECTRIMS 2024 with Kristine Werner Ozug and Dr. Bruce Bebo Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 373 | |||
| 11 Sep 2019 | Bonus Episode: ECTRIMS 2019 Day 1 | 00:09:21 | |
Welcome to a special episode of RealTalk MS coming to you from ECTRIMS 2019 in Stockholm, Sweden. ECTRIMS is an acronym that stands for the European Conference for Treatment & Research in Multiple Sclerosis, and this annual scientific congress is the largest MS research conference in the world. There are over 9,000 attendees here from more than 100 different countries to share new information, hear research updates, and get face to face with the leading MS researchers in the world.  We're talking about some of the announcements that we expect to hear from some of the pharmaceutical companies in attendance. And we'll also tell you about a session that you'll be able to catch on a live webcast tomorrow morning.We have a lot to talk about. Welcome to ECTRIMS 2019! ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review ECTRIMS 2019 Scientific Programme Live Webcast from ECTRIMS Tomorrow, 5:45 AM EST
Download the RealTalk MS App for iOS Download the RealTalk MS App for Android ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS ECTRIMS Day 1 Tags: MS, MultipleSclerosis, ECTRIMS2019, EMDSerono, Roche, BrainstormCell, RealTalkMS | |||
| 13 Jul 2020 | Episode 150: The Cost of MS Medications, Drug Development, and More: My Conversation with Genentech CEO Alexander Hardy | 00:32:52 | |
Conversations about MS almost always get around to the high cost of MS disease-modifying therapies. Joining me on the podcast is the CEO of Genentech, Alexander Hardy. Genentech is a biotech company that many of you know as the manufacturer of Ocrevus, the first approved disease-modifying therapy that treats both relapsing-remitting MS and primary progressive MS. During our wide-ranging conversation, Alexander and I get into the cost of MS prescription medications, the real costs of bringing a new drug to market, racial disparities in clinical trials, inequities in our healthcare system, and more. It's a conversation that you won't want to miss.  We'll also tell you where you can get a FREE copy of Dr. Brandon Beaber's book, Resilience in the Face of Multiple Sclerosis, and where to sign up for the next series of Virtual Jumpstart programs from CAN-DO MS. We'll even share the details about this Sunday's Longest Day of Golf, a creative (and very successful!) DIY fundraising event for the National MS Society. We're also talking about a newly published study that shows that most relapsing-remitting MS disability accumulation is progressive and not tied to relapses. And we'll tell you about another study that shows that most people living with MS want to discuss the cost of their treatment with their neurologist, but very few do. We'll even share our thoughts about how we can begin to fix this. We have a lot to talk about! Are you ready for RealTalk MS??! It's Our 150th Episode! :22 Get in Touch with RealTalk MS 1:36 Get Your Free Copy of Resilience in the Face of Multiple Sclerosis 3:34 CAN-DO MS Virtual Jumpstart Programs 4:43 The Longest Day of Golf Fundraising Event for the National MS Society 5:38 Study Finds Most Relapsing-Remitting MS Disability Accumulation Is Progressive and Not Tied to Relapses 7:29 Survey Shows Most MS Patients Want to Discuss the Cost of MS Care...But Don't 9:50 "Patients" are Customers! 11:31 My Interview with Alexander Hardy 13:09 Share this episode 29:31 Please Support the National MS Society COVID-19 Response Fund 29:50 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/150 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) National MS Society COVID-19 Response Fund To receive a free copy of Resilience in the Face of Multiple Sclerosis, just jump onto Twitter, and request your copy by sending a Tweet to the author, @Brandon_Beaber. CAN-DO MS Virtual Jumpstart Programs Longest Day of Golf Fundraising Event for the National MS Society Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 150 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Genentech, Ocrevus, Resilience, RealTalkMS
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| 19 Dec 2022 | Episode 277: Re-Visiting Pathways to Cures with Dr. Carol Whitacre and Professor Alan Thompson | 00:34:31 | |
For me, the holiday season is a time for joy, celebration, and reflection. And when I reflect upon the advances in MS research that we've seen in the past year, it's hard not to feel encouraged. 2022 will be remembered as the year when the National MS Society published the Pathways to Cures research roadmap, a bold initiative focused on stopping MS progression, restoring lost function, and ending MS forever.
I talked about this pivotal moment in the history of MS research with Dr. Carol Whitacre and Professor Alan Thompson, and they each shared their insights into what the Pathways to Cures research roadmap was all about and what this historic initiative means for people affected by MS. My conversations with Dr. Whitacre and Professor Thompson were two of the most important conversations that I had in 2022 and, as the year draws to a close, I think they're worth revisiting. We have a lot to talk about! Are you ready for RealTalk MS??! Re-visiting the publication of the Pathways to Cures research roadmap :22 Dr. Carol Whitcare discusses how Pathways to Cures came about and what it means for people living with MS 2:36 Professor Alan Thompson discusses the current status of MS research and what has to happen next to stop MS progression, restore lost function, and end MS forever 15:17 Share this episode 32:55 Have you downloaded the free RealTalk MS app??? 33:16 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/277 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 277 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 15 May 2023 | Episode 298: From the Pathways To Cures Global Summit (Part 2) | 00:37:26 | |
Don't miss the second installment of our Pathways To Cures Global Summit coverage. For this unprecedented event, the National MS Society brought together the best and brightest minds in MS research, the CEOs of major MS Societies, representatives from the pharmaceutical industry, and people affected by MS to update the scientific foundation of the Pathways To Cures research roadmap and set the global MS research agenda for the next 3-5 years.
In Part 2 of our coverage, we're taking you back inside this historic meeting, where you'll hear from more of the top MS experts in the world who participated in this remarkable event. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: We wrap up our coverage of the Pathways To Cures Global Summit :22 We've learned more about the prevalence of MS in the United States 1:22 Dr. Anne Helme discusses the wide variance in MS treatment 5:13 Dr. Paula Zaratin talks about the importance of research governance 11:01 Dr. Peter Calabresi discusses the uncertainty of living with MS 18:19 Dr. Daniel Ontaneda suggests how people living with MS should be thinking about the Pathways To Cures global research initiative 24:57 Dr. Mitzi Joi Williams discusses the importance of ensuring that the Pathways To Cures initiative doesn't leave anyone behind 30:15 Summing up the Pathways To Cures Global Summit 35:16 Share this episode 36:05 Please remember to take our listener survey! 36:25 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/298 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Take the RealTalk MS Listener Survey RealTalk MS Episode 297: From the Pathways To Cures Global Summit (Part 1) RealTalk MS Episode 125: From the Pathways To Cures Think Tank RealTalk MS Episode 238: The Pathways To Cures Research Roadmap Pathways To Cures RealTalk MS Episode 81: The Prevalence of MS with National MS Society CEO Cyndi Zagieboylo, Dr. Bruce Bebo, and Dr. Ruth Ann Marrie Take the RealTalk MS Listener Survey Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 298 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 28 Aug 2018 | Episode 50: The MS Comprehensive Care Model with Dr. Jacqueline Nicholas | 00:40:47 | |
Part of the unpredictability of multiple sclerosis is that it can attack in so many different ways. MS can impact your physical well-being, your emotional well-being, your functional abilities and your quality of life. And if your response to MS is to be seen by a single healthcare professional, some of those many aspects of MS can end up being overlooked and, sometimes, even unrecognized. And so they go untreated. That's why the best approach to treating MS is a team approach. My guest is Dr. Jacqueline Nicholas, a clinical neuroimmunologist specializing in MS at OhioHealth in Columbus, OH. OhioHealth operates an MS Comprehensive Care Center that uses this interdisciplinary team approach to provide personalized treatment that's based upon each patient's specific needs.
We're also talking about the discovery of MCMS -- a new MS subtype. We'll tell you about an online resource that offers a comprehensive listing for every kind of support service in key cities throughout the U.S. We're looking at a report just issued by the nonpartisan Government Accountability Office that examines the ways that the U.S. Department of Health & Human Services has been gaming the Affordable Care Act -- and why that's going to cost you more money next year. And we're talking about a study that measures the impact of MS-related swallowing difficulties on quality of life. We have a lot to talk about! Are you ready for RealTalk MS? ___________ New MS Subtype Discovered. Meet MCMS 2:25 GAO Report: HHS Should Enhance Its Management of Open Enrollment Performance 6:25 Study: The Impact of Swallowing Problems (Dysphagia) on Adults Living with MS 13:07 Interview with Dr. Jacqueline Nicholas 17:29 ___________ LINKS National MS Society Listing of MS Comprehensive Care Centers Health Insurance Exchanges: HHS Should Enhance Its Management of Open Enrollment Performance The Frequency of Dysphagia and Its Impact on Adults with MS Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 50 Tags: MS, MultipleSclerosis, MSResearch, DrJNicholas, OhioHealthMS, ClevelandClinic, DefendPreex, Sydney_Uni, RealTalkMS | |||
| 29 Mar 2021 | Episode 187: Progressive MS Research, Treatment, and Rehabilitation with Dr. Kathy Zackowski and Dr. Daniel Ontaneda | 00:39:43 | |
About 80% of the people with relapsing-remitting MS will eventually be diagnosed with secondary progressive MS. At that point, their remissions stop and their MS symptoms continue to worsen. And about 15% of the people diagnosed with MS are diagnosed from the beginning with primary progressive MS. So identifying ways to optimally treat progressive MS is a priority.
Joining me with updates on progressive MS research, treatment, and rehabilitation are Dr. Kathy Zackowski and Dr. Daniel Ontaneda. Dr. Ontaneda is an associate professor of Neurology at the Cleveland Clinic Lerner College of Medicine of Case Western Reserve University and a staff member at the Cleveland Clinic Neurological Institute's Mellen Center for Multiple Sclerosis. And Dr. Zackowski is the Senior Director of Patient Management, Care and Rehabilitation Research at the National MS Society and a member of the International Progressive MS Alliance Scientific Steering Committee. We're sharing some startling details about MS care from the European MS Platform's MS Barometer 2020. We're talking about a study that shows that lifestyle choices like increasing physical activity and choosing not to smoke can have a positive impact on MS fatigue. And we'll tell you about a new program that empowers people affected by MS to pose the questions that will drive MS research. We have a lot to talk about! Are you ready for RealTalk MS??! Details from the European MS Platform's MS Barometer 2020 1:34 The International Progressive MS Alliance issues a call to action on progressive MS rehabilitation with Dr. Kathy Zackowski 4:35 Study shows that lifestyle changes can impact MS fatigue 18:00 Our Own Questions Have Power 19:20 Progressive MS treatment and Research with Dr. Daniel Ontaneda 21:03 Share this episode 38:17 Take the RealTalk MS Listener Survey and you could win a $100 Amazon Gift Card 38:38 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/187 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Listener Survey (You'll be entered to win a $100 Amazon Gift Card!) National MS Society COVID-19 Vaccine Guidance for People Living with MS iConquer MS: Our Questions Have Power Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 187 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, RealTalkMS | |||
| 18 Dec 2023 | Episode 329: Revisiting the Pathways To Cures Global Summit | 00:48:54 | |
The holiday season provides me with an opportunity to indulge in what's become a RealTalk MS tradition. I reserve the last two episodes of the year to revisit the most compelling,and important conversations that I've had over the past year. This week, I'm revisiting the conversations I had at the Pathways To Cures Global Summit that took place in New York last May.
The National MS Society brought together the best and brightest minds in MS research, the CEOs of major MS Societies, representatives from the pharmaceutical industry, and people affected by MS to update the scientific foundation of the Pathways To Cures research roadmap and set the global MS research agenda for the next 3-5 years. I had the opportunity to speak with several of the top MS experts in the world at this meeting and, collectively, these are the conversations that have resonated with me all year long. We have a lot to talk about! Are you ready for RealTalk MS??! Happy Holidays! :22 This Week: Revisiting the Pathways to Cures Global Summit :54 My conversation with a distinguished group of CEOs representing 5 major MS Societies 2:55 Dr. Tim Coetzee discusses the current state of MS care and the work ahead 9:11 Kathy Smith shares her perspective on the Pathways to Cures Global Summit 13:54 Dr. Anne-Katrin Probstel talks about stopping MS 20:26 Dr. Naila Makhami discusses detecting MS early 31:36 Dr. Daniel Ontaneda suggests how people living with MS should be thinking about the Pathways to Cures global research initiative 35:53 Dr. Mitzi Joi Williams discusses the importance of ensuring that the Pathways to Cures initiative doesn't leave anyone behind 41:11 Share this episode 47:21 Have you downloaded the free RealTalk MS app? 47:42 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/329 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Learn more about Pathways To Cures Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 329 | |||
| 22 Sep 2017 | RealTalk MS: Episode 001 | 00:16:22 | |
Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS. | |||
| 09 Jan 2018 | RealTalk MS Episode 14: New Year News Roundup | 00:16:21 | |
It's a new year and we have a lot to talk about! There's good news about new clinical trials...the FDA has given a "Breakthrough Therapy" designation for the first MS treatment approved for children and teens living with MS...UCLA researchers have identified why estrogen seems to have real potential as a treatment for MS...prices for some MS drugs are going up...pharmaceutical companies are suing the state of California over prescription price transparency...and host Jon Strum will tell you why the pace of scientific discovery is going to increase in 2018. Are you ready for some RealTalk MS? | |||
| 26 Sep 2022 | Episode 265: Making MS Research Accessible to People Affected by MS and Why That Matters with Sharon Roman | 00:33:36 | |
Living with MS comes with its own set of sometimes significant challenges. But being in the dark, unaware of the noteworthy and remarkable advances being made in MS research is one challenge that we're learning to overcome.
Sharon Roman is a patient-partner and writer for the British Medical Journal Group. Sharon lives with MS and she also writes a blog called Tremlett's MS Research Explained. The blog features plain-English posts detailing the research being done by Professor Helen Tremlett and her team. Professor Tremlett is the Canada Research Chair in Neuroepidemiology and Multiple Sclerosis at the University of British Columbia. Sharon joins me to talk about Professor Tremlett's pioneering research on the prodromal phase of MS, and to discuss why it's important to make MS research accessible and understandable to everyone in the MS community. We're also sharing study results that show the key to reducing MS fatigue could be a trip to the gym. We'll tell you about a study that measured improvements in physical disability, fatigue, and health-related quality of life among people with MS after they received stem cell therapy. We'll tell you about the significant differences in the gut microbiome of people living with MS and what that might mean for potential new treatments. We'll tell you about a study that discovered an interesting difference in immune cells among people living with MS. And we'll explain the riddle this poses for scientists. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The importance of making MS research accessible to people affected by MS :22 A study shows that high-intensity resistance training improves MS fatigue 2:44 A study measures the long-lasting benefits of aHSCT for people living with MS 6:31 A study identifies differences in specific bacteria levels in the gut microbiome of people living with MS 9:59 A study reveals differences in immune cells among people living with MS 13:22 Sharon Roman discusses the importance of making MS research accessible to people affected by MS 18:43 Share this episode 32:04 Download the RealTalk MS app for your iOS or Android device 32:24 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/265 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS Tremlett's MS Research Explained STUDY: High-Intensity Resistance Training in People with Multiple Sclerosis Experiencing Fatigue: A Randomised Controlled Study STUDY: Impact of Autologous HSCT on the Quality of Life and Fatigue in Patients with Relapsing Multiple Sclerosis National MS Society: aHSCT and MS STUDY: Gut Microbiome of Multiple Sclerosis Patients and Paired Household Controls Reveal Associations with Disease Risk and Course STUDY: Broader Epstein-Barr Virus-Specific T Cell Receptor Repertoire in Patients with Multiple Sclerosis Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 265 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 12 Oct 2018 | Episode 58: Live from Day 2 of ECTRIMS 2018 | 00:17:00 | |
It's Day 2 at ECTRIMS in Berlin! Today, we're talking about the Shift.ms booth in the Exhibition Hall, where you can take part in a virtual reality demonstration of what it might be like to accomplish even the simplest tasks if you're living with MS.
And if you've downloaded the RealTalk MS app from the Apple App Store for iOS or the Google Play Store for Android, I hope you enjoy the bonus video of the virtual reality demonstration that I shot on the Exhibition Hall floor. I wanted to get an expert's opinion about which ECTRIMS presentations were especially noteworthy, so I turned to Bruce Bebo, the Executive Vice President of Research at the National MS Society. Don't miss my exclusive conversation with Bruce in today's podcast episode. Be sure to download the special ECTRIMS episode of RealTalk MS tomorrow! We have a lot to talk about!! ___________ LINKS Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 58 Tags: MS, MultipleSclerosis, ECTRIMS2018, MSSociety, Shiftms, RealTalkMS | |||
| 29 Jan 2024 | Episode 335: Know Your Employment Rights If You're Living With MS with Christina Forster | 00:32:08 | |
How, and to whom, should you disclose your MS at your job? And if you decide to disclose, is that information confidential? What does reasonable accommodation mean? If you need a day or two to bounce back after an infusion, is that part of your PTO? And what do you do when you no longer have days off available? If you're living with MS and you're employed, you absolutely need to know and understand your rights in the workplace.
MS Navigator Christina Forster joins me to answer these questions and more as she shines a bright light on your rights in the workplace. I'll also remind you why I consider the MS Navigator program to be the gold standard when it comes to customized, one-on-one problem solving and support for anyone affected by MS. (And did I mention there's no charge???) I hear your questions, so we're taking a moment to review what the RealTalk MS show notes are all about, and where to find them. We're sharing study results that show a wheat-free diet may reduce MS severity (and it's not about the gluten!) We'll tell you about a call by experts to adopt a new framework for describing Parkinson's Disease (and we'll explain why that's relevant to the MS community) Scientists have identified 4 variant genes that place an individual taking some common MS disease-modifying therapies at higher risk of contracting PML. There's a test for that, and we'll tell you how to have that genetic testing done at no cost. We're talking about research that uncovered new details about how cells in the central nervous system communicate with the cells that produce myelin. And we'll tell you why zebrafish are the key to this research. And we're sharing a change in strategy for treating MS contained in the updated guidelines published by the Spanish Society of Neurology We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Successfully navigating the health insurance maze :22 Why the MS Navigators are the gold standard when it comes to support for people affected by MS :56 Everything you need to know about the RealTalk MS show notes 2:12 STUDY: A wheat-free diet may reduce MS severity 5:28 Experts call for a new framework for describing Parkinson's Disease 8:31 A test to determine who is at high risk for contracting PML is available...at no cost 11:36 STUDY: Researchers identify specific proteins and signals involved in myelin formation in zebrafish 14:08 The Spanish Society of Neurology has updated its guidelines for treating MS 15:42 MS Navigator Christina Forster discusses your rights in the workplace 19:35 Share this episode 30:37 Have you downloaded the free RealTalk MS app? 30:57 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/335 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Contact an MS Navigator STUDY: Attenuation of Immune Activation in Patients with Multiple Sclerosis on a Wheat-Reduced Diet: A Pilot Crossover Study Progressive Multifocal Leukoencephalopathy Genetic Risk Variants for Pharmacovigilance of Immunosuppressive Therapies No Cost PML Risk Genetic Test STUDY: Synaptic Input and Ca2+ Activity in Zebrafish Oligdodendrocyte Precursor Cells Contribute to Myelin Sheath Formation Consensus Statement of the Spanish Society of Neurology on the Treatment of Multiple Sclerosis and Holistic Patient Management in 2023 Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 335 | |||
| 11 Feb 2020 | Episode 128: Pregnancy & MS with Dr. Riley Bove | 00:31:15 | |
My guest is Dr. Riley Bove, and we're talking about some of the things you might want to consider when you're thinking about getting pregnant, some important things to consider when you are pregnant, some things to discuss when you and your doctor are planning your delivery, and things to be aware of following your pregnancy.  We're also talking about the results of two different studies that underscore the important relationship between the gut and MS. We'll give you a few different opportunities to participate in MS research, and we'll remind you about why your participation is important. And we'll share the sobering results of a large study that serves to remind everyone why diagnosing and treating depression among people living with MS should be a priority. We have a lot to talk about! Are you ready for RealTalk MS??! ___________ Changes to Medicaid Could Impact Families Affected by MS 1:11 Study Shows Positive Effects of Probiotics in MS 5:04 Study Shows Reducing This Amino Acid in Your Diet Could Delay Onset & Progression of MS 7:17 Opportunities for You to Participate in MS Research 10:48 Study Shows People Living with MS at Higher Risk of Death by Suicide 14:13 My Interview with Dr. Riley Bove 17:26 Share This Episode 29:31 Download the RealTalk MS App 30:02 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/128 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Jon's WALK MS Fundraising Page
EMD Serono & MyHealthTeams Family Planning Resource Center Participate in Research: Health Behaviors in Adults with MS Who Use Wheelchairs - Contact Stephanie Silveira, enrl@uabmc.edu or (205) 975-1306 Participate in Research: Health Beliefs & Physical Activity Participate in Research: The iConquer MS Patient-Powered Research Database STUDY: Association Between Neurological Disorders and Death by Suicide in Denmark Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 128 Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Medicaid, RealTalkMS
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| 19 Mar 2019 | Episode 82: Minority Participation in MS Clinical Research with Dr. Mitzi Joi Williams | 00:32:20 | |
MS is an equal opportunity neurological disease. It doesn't seem to discriminate against any particular ethnic or racial group. It affects Latinos and African-Americans, as well as Caucasians. And if you're an MS research scientist, who's hoping to create a viable treatment that's going to be safe & effective for the diverse population living with multiple sclerosis, then having that diversity represented in your clinical research seems like it would be important. Unfortunately, it doesn't always happen that way. Minority populations are frequently overlooked and under-represented in MS clinical research. My guest on the podcast is Dr. Mitzi Joi Williams, a neurologist and MS Specialist with a strong interest in better understanding the course of MS in ethnic minority populations, and in increasing diversity in clinical research.  We're also talking about important MS stem cell research that's being funded by the Department of Defense, the risks associated with stem cell tourism, a new oral Disease Modifying Therapy for relapsing-remitting MS, and a newly-approved prescription medication for treatment-resistant depression. We have a lot to talk about! Are you ready for RealTalk MS?! ___________ Promising MS Stem Cell Research Funded by Department of Defense 1:33 National MS Society Announces Strategic Partnership with U.S. Department of Veteran Affairs 4:32 The Risks of Stem Cell Tourism 5:26 Celgene Seeks EMA Approval of Ozanimod 11:29 FDA Approves Esketamine for Treatment-Resistant Depression 12:50 My Interview with Dr. Mitzi Joi Williams 16:27 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@RealTalkMS.com ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review Using Reprogrammed Stem Cells as a Therapy for MS FDA Approves Esketamine Nasal Spray for Treatment of Resistant Depression MS Made Simple by Dr. Mitzi Joi Williams ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 82 Tags: MS, MultipleSclerosis, MSResearch, mssociety, Ozanimod, Esketamine, iConquerMS, Stemcells, RealTalkMS
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| 13 Mar 2025 | Bonus: An ACTRIMS Forum Conversation with Dr. Mikael Simons | 00:07:46 | |
Just a couple of weeks ago, 1,800 scientists, clinicians, postdoctoral fellows, and medical residents gathered in West Palm Beach, Florida, for the Americas Committee for Treatment and Research in Multiple Sclerosis annual meeting, better known as the ACTRIMS Forum.
Dr. Mikael Simons is a neurologist and researcher at Technical University Munich and the Centre for Neurodegenerative Diseases in Munich, Germany, and he's this year's recipient of the Barancik Prize for Innovation in MS Research. At the ACTRIMS Forum, we talked with Dr. Simons about his research in myelin repair. We have a lot to talk about! Are you ready for RealTalk MS??! SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/actrims06 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS on YouTube Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Bonus Episode | |||
| 12 Mar 2025 | Bonus: An ACTRIMS Forum Conversation with Dr. Christina Azevedo | 00:08:27 | |
Just a couple of weeks ago, 1,800 scientists, clinicians, postdoctoral fellows, and medical residents gathered in West Palm Beach, Florida, for the Americas Committee for Treatment and Research in Multiple Sclerosis annual meeting, better known as the ACTRIMS Forum.
Dr. Christina Azevedo is an Associate Professor of Neurology at the University of Southern California. At the ACTRIMS Forum, we talked with Dr. Azevedo about updates to the McDonald criteria, which are the criteria used to diagnose MS, and the benefits of getting an early MS diagnosis. We have a lot to talk about! Are you ready for RealTalk MS??! SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/actrims04 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS on YouTube Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Bonus Episode | |||
| 03 Apr 2018 | RealTalk MS Episode 26: Stephanie Buxhoeveden Is An MS Nurse Who Also Happens To Have MS | 00:29:50 | |
My podcast guest Stephanie Buxhoeveden was diagnosed with MS when she was 25 years old, working as a neurosurgical ICU nurse. Today, Stephanie is a board-certified Multiple Sclerosis Nurse, she is a Nurse Practitioner and she is the Co-Director of the MS Comprehensive Care Center where she has also been a patient.  Stephanie will share some of her experiences and observations from the dual perspective of someone who is a medical specialist who treats patients with MS, and also someone who lives with MS. We're also talking about the results of the very first clinical trial to demonstrate a slowing in the progression of disability in secondary progressive MS. We'll tell you about a new Canadian study that shows a clear connection between depression and physical disability in MS. And we'll talk about the kind of information that California's new prescription drug price transparency bill is revealing. ____________ :18 MS Awareness -- It's A 12-Month Campaign 3:01 New Drug Slows Disability Progression in Secondary Progressive MS 4:09 Study Shows Depression Impacts MS Physical Disability 6:42 Drug Price Transparency Law in California Begins to Reveal Real Information 8:49 Interview with Stephanie Buxhoeveden ___________ LINKS Articles & Videos by Stephanie Buxhoeveden GPS For Your MS: Initiating Your Wellness Journey Facing the Emotional Symptoms of MS Together TedX Talk: Thriving In The Face of Adversity ___________ For more RealTalk MS, follow us on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 26 Tags: MS, multiple sclerosis, Stephanie Buxhoeveden, Siponimod, MS and depression, MS prescription drug prices, prescription drug price transparency, MS podcast, RealTalk MS | |||
| 10 Jun 2024 | Episode 354: From the Consortium of MS Centers 38th Annual Meeting -- Part 2 | 00:40:05 | |
Two weeks ago, thousands of clinicians, nurses, physician's assistants, rehabilitation experts, and others traveled to Nashville to attend the Consortium of Multiple Sclerosis Centers 38th Annual Meeting. This is Part 2 of our coverage from that meeting.
In this episode, we're sharing our conversations with some of the experts who were at the meeting to present their research. You'll hear the National MS Society's Executive Vice President for Advocacy and Healthcare Access, Bari Talente, share her thoughts on why getting early support when you've been diagnosed with MS can make a difference in how you begin your MS journey. Dr. Nancy Sicotte talks about why early diagnosis and treatment are important in ensuring the best long-term patient outcomes. Dr. Brian Sandroff asks and answers the question, "Does exercise improve cognitive function in MS?" And Dr. Anthony Feinstein shares what he and his team have learned about how cannabis impacts people with MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Part 2 of our coverage of the CMSC Annual Meeting :22 National MS Society Executive Vice President for Advocacy and Healthcare Access, Bari Talente, discusses the importance of finding early support when you've been diagnosed with MS 1:18 Dr. Nancy Sicotte explains why early diagnosis and treatment make a difference in MS 8:57 Dr. Brian Sandroff poses (and answers) the question, "Doe exercise improve cognitive functioning in MS?" 17:11 Dr. Anthony Feinstein shares evidence gathered from his team's research into how cannabis impacts MS 23:58 Share this episode 38:13 Next Week: The North American Research Committe on Multiple Sclerosis (NARCOMS) with Managing Director, Dr. Robert Fox 38:34 Have you downloaded the free RealTalk MS app? 38:54 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/354 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Episode 353: From the Consortium of MS Centers 38th Annual Meeting with Dr. Kathy Zackowski and Dr. Stephen Krieger Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 354
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| 17 Dec 2019 | Episode 120: Closing Out 2019 with Prof. Gavin Giovannoni | 00:39:01 | |
Is MS preventable? Is progressive MS modifiable? We'll tackle these questions and more with my guest, Professor Gavin Giovannoni. Professor Giovannoni is not only a leading academic neurologist based at Barts and The London School of Medicine and Dentistry, Queen Mary University London, he's also a prolific blogger, tweeter, speaker, author, and opinion leader. It's a conversation you don't want to miss!
We're also taking a look back at the major MS news stories of 2019. We're talking about new disease-modifying therapies, stem cell therapy (both the legitimate and the less-than-legitimate variety), MS biomarkers, the skyrocketing cost of MS prescription medications (and what's being done about it), the nearly one million families living with MS in the United States, and more! We have a lot to talk about! Are you ready for RealTalk MS??! ___________ Thank you! We're Trending On Apple Podcasts :22 A Look Back at the MS News of 2019 2:18 My Interview with Prof. Gavin Giovannoni 15:01 Share This Episode 37:16 Why You Should Download the RealTalk MS App This Week 37:44 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: http://realtalkms.com/120 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review Download the RealTalk MS App for iOS Download the RealTalk MS App for Android ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 120 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, GavinGiovannoni, RealTalkMS
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| 20 May 2019 | Episode 90: The MS Association of America with President & CEO Gina Murdoch | 00:33:07 | |
The Multiple Sclerosis Association of America, or MSAA, provides programs and resources designed to improve the lives of people affected by MS. Whether it's financial assistance for an MRI exam, a new computer, mobility equipment, or even a cooling vest, the MSAA can help. My guest today is Gina Murdoch, the President and CEO of the MSAA, and we're talking about the organization's almost 50-year history, their shared management philosophy of living with MS, and we're taking a deeper dive into into some of their remarkable programs.
We're also talking about the Progressive MS Alliance Scientific Steering Committee Meeting that begins tomorrow in Copenhagen, Denmark. You'll hear about the Patient 360 meeting that EMD Serono hosted last week in Washington, D.C., and I'll tell you why that meeting was so special to me. We're talking about the just announced $100,000 research grant to investigate the challenges faced by people of color who are living with MS and their caregivers. You'll learn about the special search engine that matches MS patients with financial support for disease-modifying therapy. We'll tell you about 2 new programs from Can-Do MS, focused on young adults who are living with MS and people who are living with secondary progressive MS. And you'll find out how you can be my special guest on the 100th episode of RealTalk MS. We have a lot to talk about. Are you ready for RealTalk MS??!  Progressive MS Alliance Scientific Steering Committee Meeting in Copenhagen :22 EMD Serono Hosts Patient 360 Meeting 2:27 Accelerated Cure Project & Us Against Alzheimer's Receive $100,000 Grant to Study Challenges Faced by People of Color Living with MS & Alzheimer's Disease 6:07 MAT Can Connect You to Financial Support for Disease-Modifying Therapy 7:53 Can-Do MS Announces Programs for Young Adults Living with MS and People Living with Secondary Progressive MS 9:58 Finalists Announced for Lyfebulb-Celgene Addressing Unmet Needs in MS: Innovation Challenge 12:22 My Interview with MSAA's Gina Murdoch 16:13 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com International Progressive MS Alliance Multiple Sclerosis Association of America MAT (Medicine Assistance Tool) Can-Do MS Young Adults Take Charge Program Can-Do MS Secondary Progressive MS Webinar Series Celgene Lyfebulb MS Innovation Challenge Be My Guest on RealTalk MS Episode #100 Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 90 Tags: MS, MultipleSclerosis, MSResearch, ProgressiveMS, CanDoMS, MSAA, EMDSerono, Celgene, Lyfebulb, Caregiving, RealTalkMS
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| 05 Apr 2021 | Episode 188: Managing Your Cognitive Health in MS with Dr. Victoria Leavitt | 00:31:20 | |
More than half of all the people living with MS will develop problems with cognition. And while experiencing cognitive dysfunction can be challenging and frustrating, these kinds of changes can also be frightening.
Joining me to talk about things you can do to better manage cognitive changes and preserve healthy cognition is neuroscientist and neuropsychologist, Dr. Victoria Leavitt. We're also talking about the encouraging results from a small clinical trial that tested stem cell therapy to treat progressive MS. We'll tell you about a person living with secondary progressive MS who will soon be receiving the very first dose of an investigational antibody to treat progressive MS administered via nasal spray. And we'll tell you about a game-based digital therapy for MS-related anxiety that is awaiting FDA approval. We'll share news about the new Sanofi-Genzyme website that's been launched to recruit participants with MS for a large clinical trial. And you'll hear about a novel device designed to improve walking for people with MS that's just been approved by the FDA. We have a lot to talk about! Are you ready for RealTalk MS??! Thank you! :27 Positive Results from stem cell clinical trial for progressive MS 3:00 Patient with secondary progressive MS will be first to receive Antibody to treat MS via nasal spray 5:01 MS-related anxiety? There may soon be an app for that! 7:24 New Sanofi-Genzyme website recruiting for clinical trials 8:59 PoNS device to improve walking for people with MS receives FDA approval 10:48 Dr. Victoria Leavitt discusses preserving cognitive function in MS 12:48 Share this episode 29:51 Take the RealTalk MS Listener Survey and win a $100 Amazon Gift Card 30:12 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/188 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Listener Survey (Win a $100 Amazon Gift Card!) National MS Society COVID-19 Vaccine Guidance for People Living with MS Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 188 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 13 Feb 2023 | Episode 285: MS in Kids and Teens with Dr. Brenda Banwell | 00:38:37 | |
Between 3 and 5% of the people living with MS are diagnosed before their sixteenth birthday. In many respects, pediatric MS is just like MS in adults. But it carries with it a distinct set of what I call social complications that can feel even more challenging to navigate than MS itself. Just think back to the awkwardness of your pre-teen and teenage years. The pressures of school, friends, and dating are a lot for any kid to contend with. And that's without having to think about living with a chronic disease like multiple sclerosis. Joining me for what I consider to be a masterclass in pediatric MS is Dr. Brenda Banwell. Dr. Banwell is Chief of the Division of Neurology and Co-Director of the Neuroscience Center at Children's Hospital of Philadelphia, and one of the foremost experts on pediatric MS in the world.
We're also sharing the details of very encouraging research that sheds new light, as well as provides new evidence, about primary progressive MS, suggesting a new pathway for future treatments. We'll tell you about Healthy Aging in MS, the new clinical and research initiative at the University of Texas at Austin Dell Medical School. And we'll share what the latest research is telling us when it comes to answering the question, "Should you discontinue your disease-modifying therapy once you turn 60?" We have a lot to talk about! Are you ready for RealTalk MS??! This Week: It's a masterclass in pediatric MS :22 Researchers take a major step forward in understanding and potentially treating primary progressive MS 2:01 University of Texas at Austin Dell Medical School launches Healthy Aging in MS initiative 6:49 Is it safe to stop your disease-modifying therapy as you age? Here's what the latest research is telling us 8:58 Dr. Brenda Banwell takes us on a deep dive into pediatric-onset MS 13:05 Share this episode 37:05 Have you downloaded the free RealTalk MS app? 37:25 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/285 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: Cerebrospinal Fluid Immunoglobulins in Primary Progressive Multiple Sclerosis are Pathogenic STUDY: Discontinuation of Disease-Modifying Therapy in MS Patients Over 60 Years Old and Its Impact on Relapse Rate and Disease Progression RealTalk MS Episode 255: Aging with MS with Dr. John Corboy PEDIATRIC MS RESOURCES: National MS Society Information and Resources on Pediatric MS Oscar the MS Monkey In-Person Camp and Retreats for Kids with MS and Their Families Network of Pediatric Multiple Sclerosis Centers iConquer MS Kids & Teens Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 285 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 17 Apr 2018 | RealTalk MS Episode 28: Pediatric MS With Dr. Emmanuelle Waubant | 00:31:26 | |
When we think about MS, we tend to think about it as an adult disease. But the National MS Society reminds us that between 8,000 and 10,000 children up to 18 years old are living with MS in the United States. And studies suggest that between 2 and 5% of everyone living with MS has a history of experiencing the onset of at least one MS symptom before the age of 18.  My guest on the podcast is Dr. Emmanuelle Waubant, one of the true pioneers and experts in the field of pediatric MS. We're talking with Dr. Waubant about some of the challenges involved in diagnosing pediatric MS, which disease-modifying therapies can be used to treat pediatric MS (since the FDA hasn't specifically approved any drug to treat pediatric MS) and how kids living with MS deal with all of the challenges that life throws at them. ____________ Healthcare Spending Doubles For People Living With MS 3:38 Vocal Biomarker Detects MS By the Sound of Your Voice 6:44 Researchers Will Study Quality of MS Care in the U.S. 8:11 2018 Dystel Prize for MS Research To Be Awarded 9:33 Interview with Dr. Emmanuelle Waubant 11:24 ___________ LINKS Healthcare Spending Doubles for People Living With MS Sonde Health Patents Vocal Biomarker Technology Study Looks At Quality of MS Care Dystel Prize For MS Research Awarded to Dr. Frederik Barkhof ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 28 Tags: MS, multiple sclerosis, pediatric MS, MS patient costs, Sonde Health, vocal biomarker, Dartmouth Medical Center, MS Care, Dystel Prize, Dr. Frederik Barkhof | |||
| 10 May 2021 | Episode 193: Managing the Emotional Fallout of the Pandemic with Dr. Gayle Lewis | 00:39:00 | |
The COVID-19 pandemic has created what experts are calling a mental health crisis of unparalleled proportion. Many people affected by MS have had to add pandemic-related stresses and anxieties to the already existing anxieties that come from living with a chronic illness. And that's a lot to carry around every day. Joining me to talk about managing your mood and quieting some of the noise in your head is psychologist, psychoanalyst, Certified Multiple Sclerosis Specialist, and MS Partner in Care, Dr. Gayle Lewis.
We're also talking about the initial findings of the COVER-MS study, which is looking at how the COVID-19 vaccines are affecting people living with MS. We're inviting all MS care partners to participate in a short survey designed to measure their awareness of patient-focused drug development as well as their interest in adding their unique perspective to this work. We'll tell you about OCTOPUS, a revolutionary progressive MS clinical trial that is designed to be a game-changer when it comes to MS clinical trials. And we'll share the details and tell you where and how to register for this month's CAN-DO MS programs. We have a lot to talk about! Are you ready for RealTalk MS??! Initial findings of the COVER-MS study 1:43 Announcing the Care Partners in Patient-Focused Drug Development Survey 4:28 Introducing OCTOPUS, a revolutionary progressive MS clinical trial 5:57 CAN-DO MS May Programs 8:13 Dr. Gayle Lewis discusses emerging from the trauma of the pandemic 10:00 Share this episode 36:55 Have a minute? Leave a rating & review for the podcast 37:19 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/193 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS Dr. Gayle Lewis MS Teletherapy STUDY: COVER-MS Initial Findings: Side Effects Participate in the COVER-MS study Patient-Focused Drug Development for Care Partners Survey Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 193 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 23 Jan 2023 | Episode 282: Preventing Falls (And Staying Safe When You Can't!) with Dr. Sara Migliarese | 00:32:43 | |
The CDC tells us that 36 million falls are reported each year, resulting in 3 million adults being transported to the emergency room and 32,000 adults dying from their falls. Studies have shown that, in any six-month period, more than 50% of the people living with MS fall at least once, and more than 30% fall multiple times. Falling can cause broken bones, brain damage, and worse. That's why I'm dedicating this entire episode of RealTalk MS to fall prevention.
Dr. Sara Migliarese joins me with tips, tools, and strategies you can use to prevent falls while keeping yourself safe and more independent. Dr. Migliarese is a Board Certified Neurologic Clinical Specialist, and a Professor in the Department of Physical Therapy at Winston-Salem State University where she is also the Director of the Neurologic Clinical Residency Program. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Fall prevention could be a life-saver :22 Dr. Sara Migliarese shares tips, tools, and strategies for preventing falls (and tells you what to do when you can't!) 2:08 Share this episode 31:12 Have you downloaded the free RealTalk MS app? 31:32 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/282 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society: Free from Falls Program Take the iConquer MS Caregiver Survey Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 282 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 08 Jan 2024 | Episode 332: Managing the Cost of Generic, Biosimilar, and Other Prescription Medications with Robin LaRue | 00:29:21 | |
If you remember your Economics 101 class, the introduction of generic and biosimilar drugs should cause prices to drop. Yet, when it comes to MS disease-modifying therapies that isn't always the case.
MS Navigator Robin LaRue joins me this week to discuss how to manage the sometimes crazy costs of MS prescription medications. We're also sharing results from a study that show there is absolutely no association between consuming dairy and gluten products and MS disease activity. We'll tell you about two different studies that suggest that non-pharmaceutical interventions may be effective in lessening MS fatigue. We're sharing results from a trial that reveal an innovative approach to supporting MS caregivers. And we'll tell you about 4.6 million euro in new funding from the International Progressive MS Alliance that will go toward research focused on developing new treatments for progressive MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Managing the cost of MS medications :22 STUDY: No association between consuming dairy and gluten products and MS disease activity 1:42 STUDY: SMS-messaging is shown to improve MS-related fatigue 4:50 STUDY: Talk therapy is shown to improve MS-related fatigue 8:36 STUDY: Remote coaching and online information improves the well-being of MS caregivers 10:43 International Progressive MS Alliance announces new research funding 13:32 MS Navigator Robin LaRue discusses how to manage the cost of MS prescription medications 15:57 Share this episode 27:48 Have you downloaded the free RealTalk MS app? 28:09 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/332 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: Dairy and Gluten in Disease Activity in Multiple Sclerosis STUDY: Text Messaging Intervention for Fatigue Self-Management in People with Stroke, Spinal Cord Injury, and Multiple Sclerosis: A Pilot Study STUDY: Effectiveness of a Blended Booster Programme for the Long-Term Outcome of Cognitive Behavioural Therapy for MS-Related Fatigue: A Randomized Controlled Study STUDY: Effect of 2-Arm Intervention on Emotional Outcomes in Informal Caregivers of Individuals with Multiple Sclerosis: A Randomized Pilot Study Trial International Progressive MS Alliance Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 332 | |||
| 12 Sep 2019 | Bonus Episode: ECTRIMS 2019 Day Two | 00:10:52 | |
Welcome to a special episode of RealTalk MS coming to you from Day Two of ECTRIMS 2019 in Stockholm, Sweden. ECTRIMS is an acronym that stands for the European Conference for Treatment & Research in Multiple Sclerosis, and this annual scientific congress is the largest MS research conference in the world. There are over 9,000 attendees here from more than 100 different countries to share new information, hear research updates, and get face to face with the leading MS researchers in the world. We're talking about stem cell therapy, the long-term outcomes of MS, new data about Ocrevus, the importance of managing comorbidities, and a new global initiative that puts the voice of people living with MS at the center of MS research and MS care. We have a lot to talk about. Welcome to ECTRIMS 2019! ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review ECTRIMS 2019 Scientific Programme Download the RealTalk MS App for iOS Download the RealTalk MS App for Android ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS ECTRIMS Day 2 Tags: MS, MultipleSclerosis, ECTRIMS2019, EMDSerono, Stemcells, PROMS, RealTalkMS | |||
| 12 Jun 2023 | Episode 302: De-Stressing Air Travel If You're Living With MS with Dr. Scott Crawford | 00:39:34 | |
When you’re living with MS, air travel can sometimes get complicated. We’re heading into the summer vacation season, so the timing couldn’t be better to talk with Dr. Scott Crawford. Dr. Crawford is a neuropsychologist who lives with MS and has extensive experience as a passenger on commercial airlines. Dr. Crawford is also an MS Activist and he's joining me to walk us through how to de-stress airline travel and to explain your rights as an airline passenger if you're living with a disability.
You're also going to meet MS patient advocate Julie Stamm and Dr. Jenny Woo, the two difference-makers behind a project called 52 Essential Inclusion Skills: An A-to-Z Guide to Kindness, Compassion, and Respect for Diverse Abilities. We'll give you your last reminder to sign up for the Black MS Experience Summit. It's happening virtually this Wednesday and Thursday, June 14th and 15th. And we'll also tell you where you can sign up for the global webcast that I'll be hosting this Thursday, June 15th, from the International Progressive MS Alliance Scientific Congress in Vienna, Austria. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: De-Stressing Air Travel If You're Living with MS :22 June 14th and 15h -- It's the Black MS Experience Summit 1:19 June 14th -- Don't miss the webcast from the International Progressive MS Alliance Scientific Congress live from Vienna, Austria 2:17 Julie Stamm and Dr. Jenny Woo share 52 Essential Inclusion Skills: An A to Z Guide to Kindness, Compassion, and Respect for Diverse Abilities 2:55 Dr. Scott Crawford discusses how to de-stress air travel if you're living with MS 19:29 Share this episode 38:00 Have you downloaded the free RealTalk MS app??? 38:21 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/302 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com 52 Essential Inclusion Skills: An A-to-Z Guide to Kindness, Compassion, and Respect for Diverse Abilities REGISTER for the Black MS Experience Summit REGISTER for the International Progressive MS Alliance Scientific Congress LIVE Webcast Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 302 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 10 Jul 2023 | Episode 306: Making Meal Planning and Prep Easier When You're Living with MS with Trevis Gleason | 00:31:02 | |
Living your best life with MS often means planning ahead and, when circumstances require, knowing when and how to adapt. Many of us find ourselves in the kitchen every day. And, while cooking can be pleasurable, it can also be a chore that only gets worse if you're dealing with pain, fatigue, mobility issues, tingling in your hands and arms, unsteady balance, or other MS symptoms. Award-winning author, chef, and blogger, Trevis Gleason joins me to talk about how planning ahead and adopting new behaviors can ease the burden of meal preparation. Trevis was diagnosed with secondary progressive MS in 2001, and he's sharing tips and strategies designed to make your meal planning and prepping easier.
We're also sharing the details about Crush MS, a fantastic mix of wine, food, and music that raises funds for MS research. We'll introduce you to Air4All, a company that's out to make air travel a much better experience for wheelchair users. We'll share the outcome of a study that has identified a single genetic variant that may determine how fast an individual's MS will progress. We'll tell you about another study that gives us one more important reason to quit smoking if you're living with MS. And we'll share study results from Denmark that demonstrate the impact of a plant-based diet on people living with MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: How to make meal planning and prep easier if you're living with MS :22 I'll be at Crush MS! Will I see you there? 1:23 Air4All may change everything about air travel for wheelchair users 3:10 Researchers have identified a single genetic variant that may determine how fast MS progresses 5:55 Study results provide one more really good reason to stop smoking if you're living with MS 8:10 Study results illustrate the impact of a mostly plant-based diet on people living with MS 11:08 Award-winning author, chef, and blogger, Trevis Gleason, shares tips and strategies designed to make meal planning and prep easier if you're living with MS 13:54 Share this episode 29:29 Have you downloaded the free RealTalk MS app??? 29:51 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/306 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Crush MS RealTalk MS Episode 302: De-Stressing Air Travel If You're Living With MS with Dr. Scott Crawford Air4All STUDY: Locus for Severity Implicates CNS Resilience in Progression of Multiple Sclerosis STUDY: The Effects of Different Types of Smoking on Recovery From Attack on Hospitalized Multiple Sclerosis Patients STUDY: Dietary Patterns and Their Association with Symptom Levels Among People with Multiple Sclerosis: A Real-World Digital Study Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 306 | |||
| 17 Jul 2019 | Episode 98: Navigating Social Security Disability Benefits with Jamie Hall, Esq. | 00:42:07 | |
Applying for social security disability benefits can be difficult. It's a stressful and challenging process with an outcome that seems fraught with uncertainty. My guest, Jamie Hall, has represented social security disability claimants before administrative law judges and the Appeals Council in 24 different states. He is also a strong supporter of the National MS Society, where he's conducted numerous seminars on social security disability issues. Jamie is a member of the MS Society's 2010 Leadership Class, and he served as an editor of the National MS Society's SSDI guidebook. Today, we're talking with Jamie about how to take some of that stress and uncertainty out of the process.
We're also talking about the serious blow to your ability to access quality healthcare that occurred last week. We'll explain why the World Health Organization rejected the MS International Federation's application to add 3 MS disease-modifying therapies to the 2019 Essential Medicines List. There's news about the connection between your lifestyle choices and MS depression, and I'll share why I see MS depression as a potential matter of life or death. We have a lot to talk about. Are you ready for RealTalk MS??! NEW! Download a transcript of this episode! ___________ The Facts Behind the Attack on the Affordable Care Act 2:00 World Health Organization Rejects All MS Medications Submitted for the 2019 Essential Medicines List 10:04 Diagnosing MS With a "Breath Biopsy" 13:00 Australian Researchers Show a Link Between Lifestyle Choices and MS Depression 15:29 Why Treating MS Depression Matters So Much 19:47 My Interview with Jamie Hall 23:15 Have You Downloaded the RealTalk MS App? 40:11 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com The Law Office of Jamie R. Hall STUDY: Modifiable Factors Associated with Depression and Anxiety in Multiple Sclerosis STUDY: Association Between Suicide and Multiple Sclerosis: An Updated Meta-Analysis Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review NEW! Download a Transcript of This Episode ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 98 Tags: MS, MultipleSclerosis, MSResearch, AffordableCareAct, Depression, MSIntFederation, RealTalkMS
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| 24 Jun 2020 | Episode 146: An Integrative Medicine Approach to Treating MS with Dr. Allen Bowling | 00:46:28 | |
Integrative medicine combines evidence-based alternative medicine with conventional medicine. My guest is Dr. Allen Bowling, an internationally renowned neurologist who specializes in integrative medicine for MS.  When it comes to care and treatment for MS, Dr. Bowling has published over 100 articles in clinical and basic science journals. He's been involved in research related to nutrition, dietary supplements, and other non-pharmacologic therapies for the past 30 years. And our conversation covers CBD and other cannabis products as potential treatments for MS symptoms, we'll talk about diet and exercise, over the counter supplements, maintaining your emotional health, and lots more. An international committee of distinguished experts has just issued an important clarification in the terminology used to describe the status of a person with MS (including "active" secondary progressive, "worsening", and "progression"). We'll tell you all about this clarification and explain how it affects everything from recruiting for clinical trials to providing access to current MS disease-modifying therapies. We're also talking about a new Cleveland Clinic study that shows that neurological function deteriorates more quickly in depressed MS patients. We'll tell you about a study that underscores the importance of screening and treating people living with MS for anxiety along with depression. And you'll hear about a new web-based tool designed to help manage your emotional wellness. We have a lot to talk about! Are you ready for RealTalk MS??! Expert panel clarifies terms used in describing MS disease status 2:33 COVID-19 in people with MS being treated with Ocrevus 7:45 Study shows neurological function deteriorates quicker in depressed MS patients 10:44 Anxiety & Depression in MS -- Study measures impact on quality of life 13:34 MS Trust & Biogen launch ACT MySelf web-based emotional wellness tool 16:06 My Interview with Dr. Allen Bowling 19:19 Share this episode 43:18 Please Support the National MS Society COVID-19 Response Fund 43:41 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/146 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) National MS Society COVID-19 Response Fund Dr. Allen Bowling: Neurology Care The 2013 Clinical Course Descriptors for Multiple Sclerosis: A Clarification Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 146 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS
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| 04 Sep 2018 | Episode 51: MS Research From Australia with Dr. Lisa Melton | 00:29:46 | |
MS Research Australia has published a report titled, Health Economic Impact of Multiple Sclerosis in Australia 2017. The report provides a detailed snapshot of the economics behind MS, looking at employment, quality of life issues, and even calculating the cost per person living with MS in Australia. The report concludes with some powerful recommendations for future steps. My guest is Dr. Lisa Melton, Head of Research at MS Research Australia, and we're talking about what this report is telling us, what it's recommending, and how we transition those recommendations into actionable steps.  We're also talking about some good news for people living with progressive MS -- the extremely positive outcome of the Phase 2 clinical trial for Ibudilast. We'll tell you about a couple of upcoming educational webinars about Ocrevus and primary progressive MS, and Ocrevus and relapsing remitting MS. We'll update you on the latest news about Phase 2 clinical trials for cannabis-based medications to treat MS, you'll get a heads-up about a very sneaky (and very dangerous) piece of legislation that is potentially devastating to people living with MS in the U.S., and we'll tell you how you can catch an online video of last week's Progress in MS Research: Live Update 2018 presentation in Australia. We have a lot to talk about! Are you ready for RealTalk MS? ___________ Ibudilast Clinical Trial Shows Unprecedented Slowing in Brain Atrophy in Progressive MS 1:11 Upcoming Ocrevus Educational Webinars 3:17 MMJ Intl Asks FDA to Approve Cannabis-MS Study 4:22 Pre-Existing Conditions Bill is Healthcare Wolf in Sheep's Clothing 5:34 Progress in MS Research Lie Update 2018 11:33 Interview with Dr. Lisa Melton 12:30 ___________ LINKS Phase 2 Trial of Ibudilast in Progressive Multiple Sclerosis Ensuring Coverage for Patients with Pre-Existing Conditions Act Video: Progress in MS Research Live Update 2018 Report: Health Economic Impact of Multiple Sclerosis in Australia 2017 Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 51 Tags: MS, MultipleSclerosis, MSResearch, MSResearchAustralia, Ibudilast, ClevelandClinic, CleClinicNews, Ocrevus, Cannabis, MMJInternational, PreExistingConditions, Prexxatstake, RealTalkMS | |||
| 01 May 2018 | Episode 30: Dr. Matthew Miles & MS Research Australia | 00:41:29 | |
We have a lot to talk about in this podcast episode! First, a big announcement...the RealTalk MS Podcast has its own Amazon Alexa Skill! If you already own an Amazon Echo, Dot, or any Alexa-enabled device, you can access all sorts of convenient features for listening to RealTalk MS! (And if you don't yet have an Alexa-enabled device, this might be one more reason to get one!)  My guest on the podcast is Dr. Matthew Miles, the CEO of MS Research Australia, the largest non-profit organization dedicated to funding, coordinating, and advocating for MS research in Australia. We're talking with Matthew about some of the amazing research collaborations that MS Research Australia is driving in Australia and around the world. (NOTE: During our conversation, Dr. Miles references the MS Research Australia website as "www.msra.org". The correct website is www.msra.org.au. Sorry for the confusion!) We're also talking about the results of MS research studies that were announced at the just concluded American Academy of Neurology Annual Meeting. These are studies that you need to know about! ____________ The Alexa Announcement 2:22 Introducing Matthew Miles & MS Research Australia 5:48 Study Shows MS Progresses Faster in African-Americans 6:46 Gilenya Shown To Be Effective in Delaying MS Progression & Disease Activity in Pediatric MS 8:00 MS Disease-Modifying Drugs May Lose Effectiveness As You Age 9:46 Interview with Dr. Matthew Miles 11:20 ___________ LINKS The RealTalk MS Podcast Alexa Skill STUDY: MS Progresses Faster in African-Americans STUDY: Gilenya Effective in Delaying MS Progression & Disease Activity in Pediatric MS Patients MS Disease-Modifying Therapies May Be Less Effective As You Age Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 30 Tags: MS, multiple sclerosis, Alexa, Matthew Miles, MS Research Australia, AAN, Gilenya | |||
| 28 Nov 2017 | RealTalk MS Episode 11 | 00:18:00 | |
Whether it's research, news, or even pending legislation, there's a lot happening around the world that's going to impact families living with MS. In this week's podcast, we'll round up some of that news and bring you up to speed on some of the things that you ought to know about. We're talking about how the pending income tax legislation can be financially devastating to families living with MS - and we'll explain what you can do about it right now. We'll look at a new clinical trial testing a cannabis-based medicine designed to treat MS symptoms. We'll talk about the construction of what's being billed as, "the world's leading treatment and research center for multiple sclerosis." We'll give you one more very good reason why people diagnosed with MS should not be smoking. And we'll break down how, when, and by how much, multiple sclerosis impacts a woman's pregnancy. We've got the news, views, interviews & breakthroughs that are important to you. So...are you ready for RealTalk MS? | |||
| 14 Aug 2018 | Episode 48: The Intersection of Art & Science with Elizabeth Jameson | 00:37:29 | |
Elizabeth Jameson is an artist who specializes in creating a bridge between art and neuroscience. Since being diagnosed with MS, Elizabeth has transformed her brain MRI scans into remarkable and provocative images that challenge how we view the brain, disability, and illness. In addition to creating her amazing artwork, Elizabeth is an ePatient Scholar and advisor to Stanford Medicine X, and she's written extensively about patient-centered healthcare, design, and the arts. This week, we're standing at the intersection of art and science with my special guest, Elizabeth Jameson, talking about being an ePatient, embracing our imperfect bodies, and the importance of developing a creative narrative about living with MS.
We're also talking about a new theory on the cause of MS, how artificial intelligence may change medical imaging to better detect MS, and how one doctor used a bogus MS treatment to cheat his MS patients and their insurance companies out of thousands of dollars. We have a lot to talk about! Are you ready for RealTalk MS? ___________ Researchers Offer a New Theory on the Cause OF MS :50 Australian Government Invests in AI Imaging Technique to Better Detect MS 5:54 A Doctor's Bogus MS Treatment Scams MS Patients and Their Insurance Companies 7:45 Market Research Company Recruiting People with Primary Progressive MS to Complete Paid Online Survey 14:19 Interview with Elizabeth Jameson 15:13 ___________ LINKS Australian Government Invests in Artificial Intelligence for Medical Imaging California Medical Board Legal Complaint Against Dr. Michael Arlata VIDEO: Elizabeth Jameson at TedxStanford: Learning to Embrace Our Imperfect Bodies Mind On Fire (Elizabeth Jameson's Blog) Share Your Feedback About RealTalk MS Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 48 Tags: MS, MultipleSclerosis, MSResearch, AI, ElizabethJameson, RealTalkMS | |||
| 06 Mar 2023 | Episode 288: Oceans of Hope with Robert Munns | 00:38:54 | |
When you visit the Oceans of Hope U.K. website, it reads, "Oceans of Hope is for people with MS, led by people with MS." It goes on to say, "Our aim is to offer people from all over the world the opportunity to experience sailing as a way of learning new skills and restoring the self-confidence which can be stolen by MS."
The folks at Oceans of Hope U.K. can make that claim with high confidence. My guest today is the founder of Oceans of Hope U.K., Robert Munns, who lives with MS himself. Robert had what he describes as a life-changing experience while serving as a member of the crew on what turned out to be an unforgettable sailing adventure. Robert's story is one you won't want to miss. Today, Oceans of Hope U.K. offers anyone living with MS the opportunity to experience that same personal transformation that Robert experienced. When you review your MRI scans with your neurologist, the focus is on those white matter lesions that characterize MS. However, study results announced at the 2023 ACTRIMS Forum show that white matter lesions are not the cause of severe MS disability. We're breaking down this game-changing research. And speaking of game changers, we're sharing the details of a small, portable MRI device that can effectively image MS lesions. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: News from the 2023 ACTRIMS Forum and a story that I hope you find as compelling as I did :22 Study results show that white matter lesions are not the cause of severe MS disability 2:22 A portable less invasive MRI device capable of imaging MS lesions 6:33 Meet Robert Munns, the founder of Oceans of Hope UK 9:25 Share this episode 37:20 Have you downloaded the free RealTalk MS app? 37:41 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/288 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Oceans of Hope U.K. Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 288 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 20 Feb 2018 | RealTalk MS Episode 20: Help at Home From Helping Hands | 00:27:51 | |
While we're tracking the breakthroughs and discoveries that move us closer to solving the riddle of multiple sclerosis, it's also important to remember that people living with MS need help today. Some of them need help with even the most basic sorts of daily tasks. My guests on the podcast are Angela Lett and Alison Payne from Helping Hands, a non-profit organization that helps adults with MS and other mobility impairments live independent lives by providing them with a very special service animal -- a highly trained capuchin monkey -- to live in their home and assist them with the tasks of everyday living. We're also talking about how 3D printing technology is paving the way for important MS research. And we're talking about the cutting-edge research by an award-winning neuroscientist who is investigating the effects of aging on mylenation. And Canadian researchers may have identified an anti-depressant that can be re-purposed to treat Progressive MS. We have a lot to talk about! So are you ready for RealTalk MS? | |||
| 20 Jun 2022 | Episode 251: MS in the LGBTQ+ Community with Dr. William Conte, Payshunz Nagashima, and Andreina Barnola | 00:27:43 | |
Health disparities, systemic inequities, and discrimination often stand in the way of gaining access to MS care for members of the LGBTQ+ community.
As we explore some of the obstacles faced by members of the LGBTQ+ community in accessing healthcare, we'll gain the clinician's perspective in our conversation with MS specialist, Dr. William Conte. We'll hear about the experiences of a queer trans person living with MS when we talk with Payshunz Nagashima. And we'll learn about the National MS Society's efforts to broaden access to MS care for members of underserved communities when we speak with the MS Society's Director of Health Equity Initiatives, Andreina Barnola. We have a lot to talk about! Are you ready for RealTalk MS??! June is Pride Month :22 Dr. William Conte discusses obstacles to MS care faced by members of the LGBTQ+ community 1:12 Payshunz Nagashima shares their experience as a queer transgender person living with MS 10:30 Andreina Barnola discusses the role of the National MS Society in improving access to MS care for members of underserved communities 20:20 Share this episode 26:09 Download the RealTalk MS app for your iOS or Android device 26:30 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/251 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 251 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 17 Aug 2020 | Episode 155: Managing Caregiver Stress with MaryAnne Sterling | 00:37:22 | |
Being a caregiver can be stressful in the best of circumstances. And life certainly doesn't get any easier or less burdensome for a family caregiver during a global pandemic. Research shows that COVID-19 is adding to the long list of things that caregivers worry about, adding a whole new layer of stress and anxiety to the situations they face every day.  My guest this week is MaryAnne Sterling. MaryAnne is an expert on the challenges of family caregiving. And we're talking about ways that MS caregivers can offset stress and avoid burnout by incorporating self-care into their daily routine. We're also talking about a UTSW research team that's identified a new target for minimizing inflammation in the central nervous system. We're looking at some alarming results from a study that shows 1 in 5 MS patients fail to stay on their oral disease-modifying therapy. And we're sharing the details of a new at-home UTI test kit. We don't want you to miss A&W's Burgers to Beat MS Day this Thursday, so we'll tell you how you can participate -- even if you're nowhere near an A&W! And we'll share some of the alarming findings from a report on the impact of the COVID-19 pandemic on family caregivers. We have a lot to talk about! Are you ready for RealTalk MS??! Reelin' in a new treatment for Multiple Sclerosis 2:32 Study finds 1 in 5 MS patients don't stay on their oral DMT 5:50 At-Home UTI Test Kit launching in the U.K. 8:15 Thursday is Burgers to Beat MS Day! 10:18 Survey shows that COVID-19 has increased the pressure on caregivers 12:44 My Interview with MaryAnne Sterling 16:43 Share this episode 34:10 Please leave a rating & review 34:29 Please Support the National MS Society COVID-19 Response Fund 34:52 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/155 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) Caregiving and COVID-19 Report National MS Society COVID-19 Response Fund Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 155 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSSocietyCA, Reelin, Caregiving, Caregiver RealTalkMS
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| 18 Nov 2019 | Episode 116: Dual-Tasking & MS with Dr. Soha Saleh | 00:30:49 | |
Last week, the National MS Society and RealTalk MS announced a new partnership. And we're definitely talking about it!  My guest is Dr. Soha Saleh, a research scientist at Kessler Foundation's Center for Mobility and Rehabilitation Engineering Research, and we're talking about her innovative research in understanding how MS impacts dual-tasking -- something that all of us do, all day long. We'll tell you about the newly announced Weill Neurohub, and why that's such promising news for people affected by MS. We're also talking about the price of Vumerity, the new oral disease-modifying therapy, and suggesting some of the things to keep in mind as we consider steps to ensure that everyone living with MS has access to affordable prescription medications. And we'll tell you about the alternative to EDSS that's been proposed by the Multiple Sclerosis Outcome Assessments Consortium. We have a lot to talk about! Are you ready for RealTalk MS??! ___________ A BIG Announcement About RealTalk MS! 1:19 Introducing the Weill Neurohub 3:36 The Price of Vumerity 5:47 An Alternative to EDSS Has Been Proposed 9:58 My Interview with Dr. Soha Saleh 13:49 How to Subscribe to RealTalk MS, Download the RealTalk MS App, or Listen with Alexa 29:31 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/116 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review The National MS Society & RealTalk MS Announce a Partnership Evaluation of Multiple Sclerosis Disability Outcome Measures Using Pooled Clinical Trial Data The Kessler Foundation Center for Mobility and Rehabilitation Engineering Research Give RealTalk MS a Rating & Review Download the RealTalk MS App for iOS Download the RealTalk MS App for Android ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 116 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, KesslerFdn, RealTalkMS
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| 06 Aug 2019 | Episode 101: With Charcot Award Recipient Professor Catherine Lubetzki | 00:31:09 | |
The Charcot Award recognizes lifetime achievement in outstanding research into the understanding and treatment of MS. My guest is Professor Catherine Lubetzki, this year's recipient of the Charcot Award. Professor Lubetzki is being recognized for her very significant contributions to better understanding the underlying disease processes of MS, and her groundbreaking work in furthering our understanding of demylenation and remylenation.  Professor Lubetzki is a professor of Neurology at Sorbonne University and head of the department of neurological diseases at Salpetriere Hospital, where she also coordinates the Salpetriere Multiple Sclerosis Clinical Research Center. We're also talking about the research team that identified the specific brain cells that MS destroys. We'll tell you about a new oral disease modifying-therapy for relapsing-remitting MS that's making its way to market. And we'll tell you about the research team that has created a "predictive profile" that identifies who will likely be diagnosed with aggressive MS. We'll tip you off about the specific cognitive functions that are affected by MS depression. And we have lots of news for and about MS caregivers. We have a lot to talk about. Are you ready for RealTalk MS??! ___________ International Research Team Identifies Which Brain Specific Brain Cells are Destroyed by MS 2:04 Oral DMT Pronesimod Moves Closer to FDA Approval 5:29 Early Clinical Markers Are Clues to Aggressive MS 7:20 MS Depression Affects Specific Cognitive Functions 11:18 Laws are Changing for Family Caregivers 12:48 My Work with Embracing Carers and Time Counts 16:29 My Interview with Professor Catherine Lubetzki 19:06 Have a Minute? Leave Us a Rating & Review! 29:59 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: Nueronal Vulnerability and Multilineage Diversity in Multiple Sclerosis STUDY: Early Clinical Markers of Aggressive Multiple Sclerosis STUDY: Dissociable Cognitive Patterns Related to Depression and Anxiety in Multiple Sclerosis Give RealTalk MS a Rating & Review Download the RealTalk MS App for iOS Download the RealTalk MS App for Android ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 101 Tags: MS, MultipleSclerosis, mssociety, MSResearch, MSIntFederation, caregiving, EmbracingCarers, EMDSerono
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| 16 Jan 2023 | Episode 281: Autologous Hematopoietic Stem Cell Transplantation (aHSCT) for MS with Dr. Richard Burt | 00:56:10 | |
Today, we're talking about a topic that you've told me is the topic that you'd most like me to cover on this podcast -- autologous hematopoietic stem cell transplantation, or HSCT. And I'm dedicating this entire episode of RealTalk MS to a deep dive on the subject with the man who pioneered autologous HSCT as a treatment for relapsing-remitting MS, Dr. Richard Burt.
We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Autologous HSCT with Dr. Richard Burt :23 Dr. Richard Burt takes us on a deep dive into autologous HSCT for MS :57 Share this episode 54:38 Have you downloaded the free RealTalk MS app? 54:59 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/281 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Amazon: Everyday Miracles: Curing Multiple Sclerosis, Scleroderma, and Autoimmune Diseases by Hematopoietic Stem Cell Transplant by Dr. Richard Burt National MS Society: aHSCT in MS Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 281 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 28 Feb 2022 | Episode 235: National MS Society Public Policy Conference Preview with Bari Talente | 00:29:02 | |
I've always believed that the things people affected by MS want most -- things like access to quality healthcare, affordable prescription medications, and funding for MS research -- are all functions of public policy. The people who decide whether we get those things are our elected officials at both the state and federal level. That's why advocacy is a priority.
The National MS Society's Public Policy Conference is taking place on March 7th. Joining me with a preview of what we can expect to see and hear at this year's conference, as well as how you can register to participate, is the MS Society's Executive Vice-President of Advocacy and Healthcare Access, Bari Talente. Last week, the America's Committee for Treatment and Research in Multiple Sclerosis convened the 2022 ACTRIMS Forum, their annual research conference. One of the highlights of the ACTRIMS Forum is the presentation of the Barancik Prize for Innovation in MS Research. This year's recipient of the Baranick Prize is Dr. Amit Bar-Or, who was recognized for his pioneering work in uncovering how the immune system drives MS and his cutting-edge research focusing on precision medicine to achieve long-term remission and, ultimately, prevent MS progression. Dr. Bar-Or also joins me on this episode of the podcast to talk about his innovative work aimed at improving outcomes for people living with MS. We have a lot to talk about! Are you ready for RealTalk MS??! Why talking about MS advocacy is so important :22 Greetings from the 2022 ACTRIMS Forum 1:47 My conversation with Dr. Amit Bar-Or 3:54 We're just days away from the PPC 12:43 Bari Talente discusses the value of MS advocacy and the legislative issues that we'll be talking about at the Public Policy Conference 13:19 Share this episode 27:25 Download the RealTalk MS app for your iOS or Android device 27:49 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/235 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS Register for the MS Society's Public Policy Conference Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 235 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, ACTRIMS2022, RealTalkMS | |||
| 30 Jan 2023 | Episode 283:12 Years Old and Diagnosed with MS with Faith Bigam | 00:32:38 | |
Faith Bigam was diagnosed with MS in 2014, when she was 12 years old. She didn't know what MS was because, well, why would any 12-year-old kid know what MS is? But Faith quickly learned and just a year later, she had already become an Ambassador for the MS Society of Canada. The initial years of Faith's MS journey weren't easy, and I'm not sure how someone of any age who had less resilience might have handled them. But I'm pretty sure that next to the word "resilience" in the dictionary you'll find a picture of Faith Bigam. And I promise you, there are some things about Faith that are going to surprise you.
The National MS Society's 2023 Pathways to Wellness virtual program takes place February 9th. We'll give you the details and tell you how to register for this free event. You'll hear about L'Oreal's "smart" lipstick applicator. It's the first product in a line designed to make the task of putting on makeup accessible to people living with disabilities. And we'll tell you what researchers discovered in a study that focused on analyzing the gut microbiome of young people living with pediatric MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Meet the embodiment of resilience and adaptability, Faith Bigam :22 Learn more and register for the 2023 Pathways to Wellness in MS virtual program 1:15 L'Oreal develops an adaptive lipstick application device (and why that matters!) 2:21 A research team analyzed the gut microbiome of young people living with pediatric MS 4:27 My conversation with Faith Bigam 7:56 Share this episode 31:07 Have you downloaded the free RealTalk MS app? 31:28 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/283 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Pathways to Wellness: Emotional, Spiritual, and Social Wellness Virtual Program Metagenomic Analysis of the Pediatric-Onset Multiple Sclerosis Gut Microbiome Explained https://tremlettsmsresearchexplained.wordpress.com/2023/01/05/metagenomic-analysis-of-the-pediatric-onset-multiple-sclerosis-gut-microbiome-explained STUDY: Metagenomic Analysis of the Pediatric-Onset Multiple Sclerosis Gut Microbiome Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 283 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 09 Sep 2024 | Episode 367: Budgeting for Living with MS with Bruce McClary | 00:34:46 | |
Living with MS is expensive. A recent study funded by the National MS Society found the average cost of living with MS in the United States is $88,487 a year. Even with insurance, that can turn out to be a heavy lift. One thing you don't need is to be worrying about money while you're already worrying about MS. So, when I think about discussing budgeting and managing your personal finances when you're living with MS, I think we're really talking about preserving your quality of life.
Joining me with strategies for budgeting and managing debt when you're living with MS is the Senior Vice President of Membership and Media Relations at the National Foundation for Credit Counseling, Bruce McClary. We'll also tell you about the updated Pathways to Cures Research Roadmap and the first ever global landscape analysis of MS research funding. We're sharing very encouraging results from the Phase 2 open-label extension study of Fenebrutinib, an experimental BTK inhibitor. We'll give you the details of a pilot study that demonstrated what may be a successful treatment for sexual dysfunction among men and women living with MS. We'll tell you why middle-aged people with MS may want to consider resistance training. And we'll tell you how to register for the National MS Society's Voting Without Barriers webinar. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Budgeting for Living with MS :22 The Pathways to Cures Research Roadmap has been updated and refined 1:25 There's very encouraging news from the Phase 2 open-lable extension study of Fenebrutinib 5;31 Results from a pilot study point to successful treatment for sexual dysfunction among men and women living with MS 6:35 Study results show that resistance training is beneficial for middle-aged people with MS 9:52 We're 8 weeks away from election day in the U.S. and the National MS Society is hosting a webinar about access to polling places 11:36 Senior Vice President of Membership and Media Relations at the National Foundation for Credit Counseling, Bruce McClary, shares tips and strategies for taming your household budget and budgeting for living with MS 15:49 Share this episode 33:16 Have you downloaded the free RealTalk MS app? 33:36 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/367 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Episode 297: From the Pathways To Cures Global Summit (Part 1) RealTalk MS Episode 298: From the Pathways to Cures Global Summit (Part 2) The Refined Pathways To Cures Research Roadmap The First Global Landscape Analysis of Multiple Sclerosis Research Funding STUDY: Tibial Nerve Stimulation in the Management of Primary Sexual Dysfunction in Patients with Multiple Sclerosis: A Pilot Randomized Control Trial STUDY: Is Resistance Training an Option to Improve Functionality and Muscle Strength In Middle-Aged People with Multiple Sclerosis? A Systematic Review and Meta-Analysis REGISTER for the Voting Without Barriers Webinar Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 367 | |||
| 03 Aug 2020 | Episode 153: Improving Your Health Literacy with Dr. Kalina Sanders and Managing MS with Wellness Coach Kate Costello | 00:35:56 | |
MS patients experience better treatment outcomes when they actively participate in their own care. And that requires high health literacy. One of my guests is health literacy expert Dr. Kalina Sanders and we're talking about how being an informed patient can have a significant impact on the healthcare you receive.
A well-rounded MS treatment plan will include wellness practices like making smart food choices and adding exercise to your routine. But making changes to our health behaviors is challenging for everyone -- and maybe more challenging if you're already trying to manage a chronic illness like MS. My second guest is wellness coach Kate Costello and we're talking about how changing your health behaviors can be a lot easier when you have someone supporting you every step of the way.
We're also talking about the new guidelines for diagnosing and treating MS in Canada. We'll tell you about a 10-year study that shows that when motor skills decline, walking takes the first hit. Find out where to apply for the CAN-DO MS two-day Take Charge program for young adults and their support partners. And we'll tell you how (and why!) to share your voice about MS advocacy issues. We have a lot to talk about! Are you ready for RealTalk MS??! Canadian MS Working Group issues new MS diagnosis & treatment guidelines 2:14 When motor skills decline, walking takes the first hit 4:14 The importance of health literacy with Dr. Kalina Sanders 6:33 CAN-DO MS announces two-day Take Charge program for young adults living with MS and their support partners 17:10 Add your voice to the National MS Society's public policy survey 19:16 My Interview with wellness coach Kate Costello 20:55 Share this episode 32:40 Leave a rating & review for RealTalk MS 32:59 Please Support the National MS Society COVID-19 Response Fund 33:15 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/153 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) Kate Costello at Wildcrafted Wellness Treatment Optimization in Multiple Sclerosis: Canadian MS Working Group Recommendations CAN-DO MS Take Charge Program for Young Adults National MS Society Public Policy Survey National MS Society COVID-19 Response Fund Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 153 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS
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| 05 Nov 2019 | Episode 114: Understanding & Treating Cognitive Impairment in MS with Dr. Silvana Costa | 00:25:30 | |
My guest this week is Dr. Silvana Costa, a research scientist in the Neuropsychology and Neuroscience Center at the Kessler Foundation. Dr. Costa's work is focused on cognitive impairment in MS, specifically, information processing speed, which is something that people living with MS often have to deal with. We'll talk with Dr. Costa about some of her specific research, along with a promising intervention designed to improve cognitive processing speed for people living with MS.  We're also talking about the FDA approval of Vumerity, an oral disease-modifying therapy for relapsing-remitting MS and active secondary progressive MS. We'll tell you about the stem cell therapy that was just approved for people with MS in Scotland. The Patient-Centered Outcomes Research Institute is an important part of the Affordable Care Act. It's currently authorized to operate for just 16 more days. You'll learn about the bipartisan effort in the U.S. Congress to re-authorize PCORI, and why that benefits people affected by MS. November is National Family Caregivers Month, and we're talking about what that means, why it's important, and why MS caregivers need to #BeCareCurious. We have a lot to talk about! Are you ready for RealTalk MS??! ___________ Let's Meet Up! Where I'll Be in November :22 Vumerity Receives FDA Approval 3:44 Patient-Centered Outcomes Research Institute (PCORI) Bipartisan Re-Authorization Bill 4:34 Hematopoietic Stem Cell Transplantation (HSCT) Approved for MS in Scotland 8:38 November is National Family Caregivers Month 10:42 My Interview with Dr. Silvana Costa 15:53 How to Subscribe to RealTalk MS, Download the RealTalk MS App, or Listen with Alexa 24:19 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review Patient-Centered Outcomes Research Institute Caregiver Action Network -- National Family Caregivers Month Give RealTalk MS a Rating & Review Download the RealTalk MS App for iOS Download the RealTalk MS App for Android ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 114 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, PCORI, stemcells, BeCareCurious, KesslerFdn, RealTalkMS
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| 05 Feb 2024 | Episode 336: Applying for Social Security Disability Insurance with Jamie Hall, Esq. | 00:39:32 | |
When people living with MS find themselves unable to continue working due to disability, they turn to Social Security Disability Insurance (SSDI). And when they do, many are surprised to find the long, winding, sometimes confusing road that lies ahead.
This week, disability law expert Jamie Hall joins me to demystify the process of applying for SSDI benefits. Jamie specializes in social security and long-term disability law. And he, literally, wrote the book for the National MS Society on applying for SSDI benefits. We'll also tell you about the amazing work this year's recipient of the Barancik Prize for Innovation in MS Research is involved in. We're reporting on the progress that scientists are making in penetrating the blood brain barrier (And we'll remind you about why that makes a real difference for everyone living with MS!) We're sharing the details about KYV-101, the experimental CAR-T cell therapy that's been given a Fast Track designation by the FDA. We'll tell you about study results that show people with a university education are more likely to be on a disease-modifying therapy. And we're sharing study results that identify the inequity in geographic proximity to MS care in the United States. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: How to apply for Social Security Disability Insurance benefits :22 This year's recipient of the Barancik Prize for Innovation in MS research 1:58 Real progress reported in efforts to penetrate the blood brain barrier 7:17 FDA gives Fast-Track designation to CAR-T cell therapy for MS 10:03 STUDY: Having a university education makes it more likely that someone with MS will be on a DMT 13:04 STUDY: Geographic proximity to MS care in the U.S. is far from equal 15:04 Disability law expert Jamie Hall discusses how to apply for SSDI benefits 19:29 Share this episode 38:01 Have you downloaded the free RealTalk MS app? 38:21 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/336 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Applying for Social Security Disability Benefits: A Guidebook for People with MS and their Healthcare Providers Predictive High-Throughput Platform for Dual Screening of mRNA Lipid Nanoparticle Blood Brain Barrier Transfection and Crossing STUDY: University Education Facilitates Uptake of Disease-Modifying Therapies for Multiple Sclerosis: A Community-Based Study Using the UK MS Register STUDY: Geographic Proximity in Access to Neurologists and Multiple Sclerosis Care in the United States Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 336 | |||
| 01 Aug 2022 | Episode 257: Dating With MS with Alaya McKinney and Akeem McMichael | 00:30:32 | |
Dating can be tricky for anyone. And it doesn't get any easier if you happen to be living with MS. In addition to all the typical dating considerations, you also have to think about things like if, how, and when to disclose your MS. You want to make sure your dating activities are physically doable. That might mean no long walks on the beach when the temperature is soaring. It might mean no hikes up steep mountain trails. And it might even mean having to postpone your date because your symptoms are acting up.
But like so many other things in life, with a little planning and adaptation, a person living with MS can enjoy a fulfilling dating life. I'm devoting this entire episode of RealTalk MS to a conversation about dating with MS. Alaya McKinney and Akeem McMichael, two millennials who are each out there in the dating world, join me to share their real-world experiences and strategies for dating while living with MS. We have a lot to talk about! Are you ready for RealTalk MS??! Alaya McKinney and Akeem McMichael talk about dating with MS :22 Share this episode 29:04 Download the RealTalk MS app for your iOS or Android device 29:25 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/257 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 257 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS
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| 14 Oct 2019 | Episode 111: The Changing Face of MS Over 20 Years -- The CLIMB Study with Dr. Tanuja Chitnis | 00:30:48 | |
For almost 20 years, the CLIMB Study has been following thousands of MS patients, discovering so many aspects of multiple sclerosis and documenting how the disease changes over time. My guest is Dr. Tanuja Chitnis, Director of the CLIMB Study, Director of the Partners Pediatric Multiple Sclerosis Center at MassGeneral Hospital for Children, as well as the Director of the Translational Neuroimmunology Research Center at Brigham and Women's Hospital.  We're also talking about an emerging topic that will continue to grow in importance and impact -- aging and MS. We're taking a deep dive into new changes in Medicare and how these changes will affect people living with MS. We'll tell you about a study that's going to evaluate how different types of exercise impact specific MS symptoms. And if you're living with MS in Canada, we'll remind you of what you have to do before you vote next week. We have a lot to talk about! Are you ready for RealTalk MS??! ___________ What I'll Be Talking About at the MSIF Forum :22 Aging with MS 1:26 A Deep Dive Into New Improvements to Medicare & How They Will Affect People Living with MS 5:05 The MS Society of Canada's #MakeMSMatter Campaign 14:06 Studying Exercise & Its Effect on Specific MS Symptoms 15:14 My Interview with Dr. Tanuja Chitnis 17:55 Subscribe to RealTalk MS 29:46 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review MS Society of Canada's #MakeMSMatter Campaign University of Washington Clinical Trial testing 2 non-pharmacological approaches to managing MS-related pain delivered via online video conference. Email: msadapt@uw.edu Phone: (855) 320-8230 Kessler Foundation MS Research Give RealTalk MS a Rating & Review Download the RealTalk MS App for iOS Download the RealTalk MS App for Android ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 111 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, KesslerFdn, MakeMSMatter, RealTalkMS
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| 09 May 2022 | Episode 245: The Journey to an MS Diagnosis with Dr. Michael Robers | 00:32:53 | |
For some, the journey to their MS diagnosis is relatively quick and straightforward. For others, it can be lengthy and convoluted, sometimes taking years.
Joining me to talk about some of the twists and turns that can pop up on the road to being diagnosed with MS is Dr. Michael Robers, a neurologist in the Multiple Sclerosis Program and an assistant professor in the Department of Neurology at Barrow Neurological Institute. We're also talking about a study that measured MS prevalence among Black, White, Hispanic, and Asian people. We'll share results of a survey that looked at cannabis use among Canadians living with MS. We're also sharing results of a survey that looked at where Americans living with MS get their information about cannabis. If you're an MS caregiver, healthcare professional, or researcher, we'll give you the details about an important survey that you can participate in. And we're even taking a moment for a special thank you! We have a lot to talk about! Are you ready for RealTalk MS??! A quick look at the numbers and a heartfelt thank you! :22 A date that each person remembers 2:59 Study looks at MS prevalence among different racial and ethnic groups 4:36 Survey results show cannabis use among Canadians with MS 7:41 Where do you get your information? 10:07 Survey results show where Americans with MS get their information and guidance about cannabis 11:20 An important survey for MS caregivers, healthcare professionals, and researchers 14:37 Dr. Michael Robers discusses the journey to an MS diagnosis 17:03 Share this episode 31:20 Download the RealTalk MS app for your iOS or Android device 31:41 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/245 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS STUDY: Racial and Ethnic Disparities in Multiple Sclerosis Prevalence SURVEY: Medical Cannabis Used in Canadians with Multiple Sclerosis SURVEY: Sources of Cannabis Information and Medical Guidance for Neurologic Use: NARCOMS Survey of People Living with Multiple Sclerosis iConquer MS Survey for MS Caregivers iConquer MS Survey for Researchers and Healthcare Providers Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 245 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 10 Apr 2023 | Episode 293: An Update on Diet and MS with Dr. Ilana Katz Sand | 00:40:31 | |
You've told me that the subject of diet and MS is one of your top three interests. And a quick scan of social media platforms reveals that a lot of people living with MS agree!
This week, Dr. Ilana Katz Sand, the Associate Director of the Corinne Goldsmith Dickinson Center for Multiple Sclerosis at Mount Sinai, joins me with an update on what the latest research is revealing about the impact of diet on MS, and to answer that eternal question -- Is there an MS diet? We're also talking about the launch of OCTOPUS, a groundbreaking clinical trial for progressive MS. We'll talk with Dr. Erin Longbrake, the principal investigator in CELLO, a national clinical trial that's focused on potentially neutralizing MS before symptoms even develop. And if you're living with MS and you're looking for one more reason to stop smoking, we're sharing some recently published sobering evidence. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: An update on the impact of Diet on MS :22 OCTOPUS, a groundbreaking clinical trial for progressive MS launches 1:17 Principal investigator Dr. Erin Longbrake discusses the importance of the CELLO study 4:06 STUDY: People with MS who continue to smoke may be facing multiple negative outcomes over time 10:33 Dr. Ilana Katz Sand updates us on the latest research and evidence of how diet impacts MS 16:03 Share this episode 38:58 Have you downloaded the free RealTalk MS app? 39:19 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/293 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Register Your Interest in Participating in OCTOPUS Details about participating in the CELLO Study STUDY: Influence of Oral Tobacco Versus Smoking on Multiple Sclerosis Disease Activity and Progression Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 293 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 27 Sep 2021 | Episode 213: COVID-19 Vaccine Booster Update for People Living with MS with Dr. Amit Bar-Or | 00:28:17 | |
If you're on an MS disease-modifying therapy and you're concerned about how effective your COVID-19 vaccination might be, or you aren't sure whether having MS qualifies you as being immunocompromised and cleared to receive a third dose of the COVID-19 vaccine, or you can't begin to figure out whether you qualify to receive a COVID-19 booster, then this podcast episode is for you.
Joining me to help us make sense of the flurry of recent announcements by the CDC and provide us with an update on his lab's work in looking at the immune response to COVID-19 vaccines among people living with MS who are on b-cell depleting therapies is the Chief of the Division of Multiple Sclerosis and Related Disorders and the Director of the Center for Neuroinflammation and Experimental Therapeutics at the University of Pennsylvania, Dr. Amit Bar-Or. If you're living with MS in the U.K., we'll update you on your eligibility to receive a COVID-19 booster. If you're living with MS in the European Union, we'll update you on the EMA's recommendation of Vumerity, an oral disease-modifying therapy for adults with relapsing-remitting MS. We'll tell you about a drug that's been on the market for over a decade that's been shown to help manage overactive bladder among people living with MS. Imagine having your phone send you an email or text letting you know that you're showing early signs of depression or cognitive dysfunction. We're talking about potentially game-changing technology that Apple is developing for the iPhone. And we'll share the details of Episode 3 of The MS Caregiver Conundrum, which debuts Thursday, September 30th. Parenting includes its own set of caregiving responsibilities. Imagine adding the additional responsibilities that go with caring for a child with MS. In Episode 3, of The MS Caregiver Conundrum, we'll meet two remarkable moms, each of whom is not only a parent but a caregiver for a child living with pediatric MS. We have a lot to talk about! Are you ready for RealTalk MS??! Vaccine booster shots for people with MS in the U.K. 2:04 Vumerity for people with MS in the European Union? 3:48 Drug helps treat overactive bladder among people with MS 4:30 Apple is developing tech to identify depression and cognitive decline 6:11 Dr. Amit Bar-Or updates us on who gets a COVID-19 vaccine booster, who gets a 3rd dose, and all the rest 8:37 Share this episode 26:50 Catch The MS Caregiver Conundrum 27:10 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/213 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS The MS Caregiver Conundrum Podcast STUDY: Efficacy of Fesoterodine Fumarate (8 mg) in Neurogenic Detrusor Overactivity Due to Spinal Cord Lesion or Multiple Sclerosis: A Prospective Study Register for Big October 2021 Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 213 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 01 Feb 2021 | Episode 179: The Importance of Exercise in MS with Dr. Nora Fritz and Judy Boone | 00:36:11 | |
Research has shown that, for people living with MS, regular exercise and physical activity can improve their quality of life while helping to manage MS symptoms. But research has also shown that people living with MS tend to be less active than people in the general population. In response, the National MS Society convened a group of experts to develop fact-based guidance for promoting exercise and lifestyle physical activity for all people with MS, regardless of their ability level.  Joining me to talk about these exercise recommendations along with some of the real benefits that exercise produces for people living with MS is Dr. Nora Fritz, a board-certified Neurologic Physical Therapist and an Assistant Professor in the Physical Therapy Program in the Department of Health Care Sciences and Department of Neurology at Wayne State University School of Medicine, where she’s also the Director of the Neuroimaging and Neurorehabilitation Laboratory.  Judy Boon was diagnosed with MS in 2007. Judy is a true MS Warrior who has fully integrated fitness activities and exercise into her everyday lifestyle. Judy is also joining me to talk about how exercise has impacted her MS journey. We're also talking about a University of Washington study that measured the willingness to receive a COVID-19 vaccine among people living with MS. We'll tell you about a study from Italy that measured the long-term benefits of autologous hematopoietic stem cell transplantation (aHSCT). And we're talking about an important survey that measured the perspectives and preferences regarding MS research among racial and ethnic groups. We have a lot to talk about! Are you ready for RealTalk MS??! Study measures COVID-19 vaccine willingness among people living with MS 2:23 Study shows long-term benefits of analogous Hematopoietic Stem Cell Transplantation 6:32 Study measures perspectives and preferences for MS research among racial and ethnic groups 9:15 Study shows a cancer treatment may protect the blood-brain barrier and reduce neuroinflammation 9:05 My interview with Dr. Nora Fritz 12:45 My interview with Judy Boone 25:14 Share this episode 34:47 Walk MS 2021 is coming! 35:07 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/179 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society COVID-19 Vaccine Guidance for People Living with MS What You Need to Know About Coronavirus (COVID-19) RealTalk MS Episode 177: Dr. Nancy Sicotte Answers Your Questions about the COVID-19 Vaccine and MS STUDY: Long-Term Clinical Outcomes of Hematopoietic Stem Cell Transplantation in Multiple Sclerosis National MS Society COVID-19 Response Fund Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 179 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 13 Aug 2019 | Episode 102: MS Disability Progression & Socioeconomic Status with Professor Helen Tremlett | 00:33:59 | |
My guest is Professor Helen Tremlett, who holds the Canada Research Chair in Neuroepidemiology and Multiple Sclerosis at the University of British Columbia, in Vancouver, Canada. Professor Tremlett has been involved in more than 200 published research studies, and we're going to talk about a few of them -- including the research that she's done on the correlation between MS disability progression and socioeconomic status.  We're also talking about a study that indicates starting disease-modifying therapy early can slow brain atrophy among people living with MS. You already know that physical activity -- even walking -- is beneficial for people living with MS. We'll tell you why it might be even more beneficial for people living with MS to listen to music while they're walking. And we'll share news about potentially positive legislation for federal workers who are also MS caregivers. We have a lot to talk about. Are you ready for RealTalk MS??! ___________ Starting Disease-Modifying Therapy Early Slows Brain Atrophy in MS 1:14 Why You'll Want to Take Your Tunes With You When You Walk 3:23 House Approves Paid Family Leave for Federal Workers 6:29 My Interview with Professor Helen Tremlett 11:38 RealTalk MS & Your Amazon Echo or Echo Dot 32:27
___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Give RealTalk MS a Rating & Review STUDY: Socioeconomic Status and Disability Progression in Multiple Sclerosis: A Multinational Study STUDY: The Gut Microbiota and Pediatric Multiple Sclerosis: Recent Findings Give RealTalk MS a Rating & Review Download the RealTalk MS App for iOS Download the RealTalk MS App for Android ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 102 Tags: MS, MultipleSclerosis, MSResearch, caregiving
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| 16 Dec 2019 | RealTalk MS Bonus: MS Mindshift with Cathy Chester | 00:12:37 | |
This episode is sponsored by Celgene and the MS MindShift Initiative, which aims to educate about the important role the brain plays in MS. My guest is Cathy Chester, who is a paid spokesperson for the MS MindShift. Cathy has lived with relapsing-remitting multiple sclerosis since 1986 and knows that although she has MS, MS does not have her. Today, Cathy hopes to empower, educate and inspire others to live a rich, full life despite living with a disability.
We’ll be talking to Cathy about how your brain health may be impacting your relationships as well as advice on how to have meaningful relationships while balancing symptoms of MS. We’ll also talk about the importance of brain health and share some lifestyle tips on what people living with MS can do to keep their brain healthy. To learn more about the brain's role in MS and the lifestyle choices you can make to help keep your brain as healthy as possible for as long as possible, visit www.MSMindShift.com | |||
| 11 Sep 2018 | Episode 52: Enjoying the Ride with MS Activist & Author Mitch Sturgeon | 00:35:24 | |
My guest on the podcast is Mitch Sturgeon. Mitch is an award-winning blogger, and with the publication of his book, Enjoying the Ride: Two Generations of Tragedy and Triumph, Mitch is a published author, as well. In 2001, Mitch was diagnosed with Primary Progressive MS. He was 35 years old at the time, and that was the same age that Mitch's mother was when she took a fall that left her a quadriplegic. Mitch's book is more than just a reflection of his MS journey. It's a story about a family with all of the quirks, idiosyncrasies, strengths, and faults that any family might have...and how they lived through and even prospered, in the face of tragic circumstances.  We're also talking about what it means to transition from caregiver to advocate. We'll talk about the concept of cognitive reserve and its relationship to MS disability and depression. And we'll share the latest statistical evidence that makes the case for identifying a reliable biomarker for MS disease progression. We have a lot to talk about! Are you ready for RealTalk MS? ___________ Transitioning from Caregiver to Advocate 1:11 Cognitive Reserve, Disability & MS Depression 10:21 Neurofilament Light Chain As a Reliable Biomarker for MS Disease Activity 13:09
Interview with Mitch Sturgeon 16:17 ___________ LINKS
Cognitive Reserve Attenuates the Effect of Disability on Depression in Multiple Sclerosis Neurofilament Light Chain as a Biological Marker for Multiple Sclerosis: A Meta-Analysis Study Enjoying the Ride: Two Generations of Tragedy and Triumph (Book) Enjoying the Ride (Blog) Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 52 Tags: MS, MultipleSclerosis, MSResearch, Caregiving, CognitiveReserve, NeruofilamentLight, Enjoying_Ride, RealTalkMS | |||
| 25 Jul 2022 | Episode 256: How NeuraLight May Revolutionize Drug Development and MS Care with Co-Founder and CEO Micha Breakstone | 00:35:49 | |
Imagine that, using your smartphone, you log into a Zoom call from home. You connect with your MS specialist and, while you're chatting, an artificial intelligence-based system is analyzing biometric measurements that will enable your doctor to deliver or fine-tune an MS treatment plan that's been personalized to meet your exact needs.
That's the vision driving NeuraLight, an early-stage company that's, first, aiming to re-write clinical trial design and accelerate new drug development. Joining me to give us an exclusive briefing on NeuraLight's game-changing mission is the co-founder and CEO of NeuraLight, Micha Breakstone. We're also sharing the results of a pilot study that looked at the impact of intermittent fasting on people living with MS. We'll tell you about a study that explored how social support affected the quality of sleep among people living with MS during the COVID-19 pandemic. We've talked a lot about neurofilament light chain in past episodes of RealTalk MS. In this episode, we'll tell you about Labcorp's 2,000 patient service centers that now offer a blood test to measure neurofilament light chain levels. (And we'll tell you why that's a very good thing!) We'll also share the results of a study that shows how experts may be underestimating the economic burden of living with MS in Canada. And if you think you might be interested in participating in a study designed to measure the impact of different diets on MS, we'll give you the details about how you can get involved. We have a lot to talk about! Are you ready for RealTalk MS??! NeuraLight's vision of the future :22 Intermittent fasting produces immune and metabolic changes in people with MS 1:28 Study shows social support is a predictor of sleep quality in people with MS during the COVID-19 pandemic 4:30 Labcorp announces availability of neurofilament light chain blood test 6:39 CanProCo research shows the economic burden of living with MS in Canada may be underestimated 8:58 Dr. Terry Wahls is recruiting for a study of how 3 different diets impact MS 12:16 Micha Breakstone gives us an exclusive briefing about how NeuraLight may change everything (for the better!) when it comes to MS drug development and MS care 15:28 Share this episode 34:17 Download the RealTalk MS app for your iOS or Android device 34:38 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/256 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS NeuraLight STUDY: Intermittent Calorie Restriction Alters T-Cell Subsets and Metabolic Markers in People with Multiple Sclerosis STUDY: Social Support Predicts Sleep Quality in People with Multiple Sclerosis During the COVID-19 Pandemic STUDY: Productivity Loss Among People with Early Multiple Sclerosis: A Canadian Study Screening Survey for Efficacy of Diet on Quality of Life in Multiple Sclerosis Study Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 256 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS
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| 15 Jan 2019 | Episode 73: Making Connections with MSPals Mary Pettigrew | 00:37:36 | |
Recent research suggests that loneliness is one more invisible symptom of MS. But social outreach and interaction have never been more accessible. My guest is Mary Pettigrew, an MS Warrior and social media phenom. In 2014, Mary launched MSPals, a Twitter group that has evolved into a community of more than 5,000 followers. We're talking with Mary about the benefits of connecting online and the importance of finding your creative outlet.
We're also talking about new research on the severity and impact of MS fatigue, along with a new smartphone app designed to improve MS fatigue. We'll tell you about a new way of treating spasticity, and we'll give you the details about a new study that's looking at TeleRehab. We'll even tell you how to sign up for the study! We have a lot to talk about! Are you ready for RealTalk MS?! ___________ Severity & Impact of MS Fatigue 2:06 MS TeleCoach App Designed to Improve MS Fatigue 4:31 A New Treatment to Manage Spasticity 6:45 The STEP MS TeleRehab Study 8:17 You Can Participate in the STEP For MS TeleRehab Study 10:23 My Interview with Mary Pettigrew, Founder of MSPals 11:58 ___________ SHARE YOUR FEEDBACK, QUESTIONS, AND IDEAS Email: jonstrum@RealTalkMS.com Phone: (310) 526-2283 ___________ LINKS Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 73 Tags: MS, MultipleSclerosis, MSResearch, STEPMS, MSPals, RealTalkMS
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| 15 Dec 2022 | Bonus Episode: MS in the 21st Century -- Are We Nearly There Yet? Achieving Freedom from Disease | 00:38:04 | |
This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century. In this special episode of RealTalk MS, I'm joined by Professor Peter Rieckmann, Stanca Potra, and Maria Paz Giambastiani. We're taking a look back at the advances that have been made in treating MS and focusing our eyes ahead to determine the work that still needs to be done.
Professor Rieckmann is the Chief Physician of Neurology and Clinical Neuroplasticity at the Medical Park Loipl, Germany. Professor Rieckmann has also served as the Chair of the MS in the 21st Century initiative since its inception in 2011. Maria Paz Giambastiani has been living with MS for the past 17 years. She's a columnist, writing about disability and inclusion for More Than Words magazine. Maria has also authored several books and publications focused on MS. Stanca Potra is the founder of the Smile Center, a support and counseling center for people living with MS in Romania. Stanca has been living with MS for the past 9 years. Professor Rieckmann, Stanca, and Maria are active members of the MS in the 21st Century initiative. To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com. | |||
| 08 Apr 2019 | Episode 85: Meat Fight with MS Warrior Alice Laussade | 00:35:36 | |
In less than a decade, Meat Fight has actually grown from a backyard barbecue to a non-profit organization that hosts several different fundraising events, offers some unique programs for people affected by MS, and has raised more than $1 million dollars for the National MS Society. My guest today is Alice Laussade, the creator of Meat Fight, and the very definition of a real MS Warrior.
We're also talking about a new research initiative to investigate cannabis and MS. We'll tell you about the potential dangers of unregulated stem cell therapy procedures, a start-up that's out to make getting to your medical appointments easier than it's ever been, and a research study that you can complete from the comfort of your own home -- and get compensated for your time! We have a lot to talk about. Are you ready for RealTalk MS??! ___________ MS Society in Canada Invests $1.5 Million in Cannabis Research 5:33 Stem Cell Therapy for MS: Still Work to Be Done 6:50 Kaizen Health Is Changing the Way Patients Get to Medical Appointments...for the better! 10:40 MS Research Opportunity 13:57 My Interview with Alice Laussade 15:57
Download the Free RealTalk MS App 34:38 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com MS Society Canada Team Grant: Cannabis Research in Priority Areas For More Info on the Kessler Foundation Research Study Contact Michael DiBenedetto Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 85 Tags: MS, MultipleSclerosis, MSResearch, Cannabis, Stemcells, KaizenHealth, KesslerFdn, Meatfight, RealTalkMS
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| 29 Jan 2019 | Episode 75: MS Risk Factors with Epidemiologist Dr. Farren Briggs | 00:29:37 | |
One of the fundamental questions on the minds of just about everyone living with MS is How did I get it? What causes MS? It's a question that's still awaiting a definitive answer. But as we wait for that answer, science is uncovering more and more information about MS risk factors -- the things that can make living with MS better or worse. My guest is Dr. Farren Briggs, an epidemiologist who's focused on the etiology, or the cause of multiple sclerosis, and the risk factors that actually impact the course of the disease for an individual.
We're also talking about the Progressive MS Alliance's commitment to including the voice of people living with MS in MS research. We'll tell you about a study that looked at predicting physical disability and cognitive dysfunction in people living with MS. You'll hear about a study that evaluated the facts that are available on the Internet about diet and MS, how online relaxation therapy can improve anxiety and depression, new guidelines from the U.K. for pregnancy and MS, and how shared decision-making can lead to greater adherence to MS disease-modifying therapy. We have a lot to talk about! Are you ready for RealTalk MS?! ___________ Progressive MS Alliance & Patient Engagement in MS Research :23 Predicting Physical Disability & Cognitive Dysfunction in MS 2:16 Diet & MS: A Study of Facts vs Beliefs 3:52 Online Relaxation Training Shown To Be Effective in Reducing Anxiety & Depression Among People Living with Long-Term Neurological Conditions 9:57 Guidelines for Pregnancy & MS in the U.K. 11:58 Shared Decision-Making Leads to Greater Adherence to MS Disease-Modifying Therapy 13:40 My Interview with Dr. Farren Briggs 17:34 Add Your Voice To Our Conversation 28:15 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@RealTalkMS.com Phone: (310) 526-2283 ___________ LINKS Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review STUDY: Predicting Clinical Progression in Multiple Sclerosis After 6 and 12 Years STUDY: Diet and Multiple Sclerosis: Scoping Review of Web-Based Recommendations UK Consensus on Pregnancy in Multiple Sclerosis: Association of British Neurologists Guidelines STUDY: Impact of Shared Decision-Making on Disease-Modifying Drug Adherence in Multiple Sclerosis ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 75 Tags: MS, MultipleSclerosis, MSResearch, CWRU, MSDiet
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| 25 Oct 2021 | Episode 217: Living with MS and Managing Comorbidities with Dr. Alissa Willis | 00:39:01 | |
Research shows that more than 50% of the people living with MS will experience another chronic health condition in their lifetime. These additional health conditions, known as comorbidities, have been shown to negatively affect disability progression and health-related quality of life. In other words, living with comorbidities makes living with MS more challenging than it has to be.
Joining me to talk about living with MS while managing and even avoiding comorbidities is Dr. Alissa Willis, Chair of the Department of Neurology at the University of Mississippi Medical Center. I'm also sharing my take-aways after watching Introducing, Selma Blair, the documentary film that portrays Selma Blair's MS journey and her stem cell therapy treatment. You'll hear some thoughts about why including patients in conference presentations about the patient perspective might just be a good idea. You'll meet MS patient advocate Julie Stamm when we talk with Julie about her new children's book, SOME DAYS: A Tale of Love, Ice Cream, and My Mom's Chronic Illness. (And we'll tell you how you can win your own copy of Julie's book!) And we'll share completely different outcomes from two mesenchymal stem cell clinical trials. We have a lot to talk about! Are you ready for RealTalk MS??! Some thoughts about the documentary film, Introducing, Selma Blair 1:12 Don't forget the patients in presentations about the patient perspective 9:14 MS patient advocate Julie Stamm talks about her new children's book, SOME DAYS: A Tale of Love, Ice Cream, and My Mom's Chronic Illness 11:25 Two Mesenchymal Stem Cell clinical trial outcomes 19:49 Dr. Alissa Willis discusses living with MS while managing and even avoiding comorbidities 23:01 Share this episode 37:16 Catch Episode 7 of The MS Caregiver Conundrum 37:37 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/217 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS The MS Caregiver Conundrum Podcast National MS Society: aHSCT in MS STUDY: Safety, Tolerability, and Activity of Mesenchymal Stem Cells Versus Placebo in Multiple Sclerosis (MESEMS): A Phase 2 Randomised, Double-Blind Crossover Trial STUDY: Central Nervous System Atrophy Predicts Future Dynamics of Disability Progression in a Real-World Multiple Sclerosis Cohort Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 217 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 24 Jul 2023 | Episode 308: Improving Your Balance and Walking When You're Living With MS with Dr. Nora Fritz | 00:36:20 | |
Experiencing difficulty walking is one of the most common mobility challenges faced by people living with MS. The good news is that there are things you can do -- both with a physical therapist and by yourself, at home -- that can make a real difference. Joining me to discuss improving your gait, avoiding falls, and what experts are learning from the latest research in this area is the Director of Research for the Department of Health Care Sciences at Wayne State University School of Medicine, Dr. Nora Fritz.
We're also sharing the results of a study that looked at whether disease-modifying therapies had an impact on the number of hospitalizations or visits to the doctor someone with MS might experience over a 22-year period. We'll tell you about a study that measured the outcome for people with relapsing-remitting MS who were treated with autologous hematopoietic stem cell transplantation (aHSCT) compared with the outcome for people with relapsing-remitting MS who were treated with Gilenya, Tysabri, or Ocrevus. We'll share the results from a study that analyzed 56 other studies to determine the prevalence of sexual dysfunction among women living with MS. We'll tell you about a nationwide study that's about to get underway that will try to answer the question, 'Should people with MS over the age of 65 discontinue their disease-modifying therapy?' And we'll remind you about how you can join us in Napa Valley this Saturday, July 29th, for Crush MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Improving your balance and gait :22 A research team analyzed the risk of hospitalization over a 22-year period for people with MS who were on a disease-modifying therapy and compared those results to people with MS who weren't on a DMT 1:21 Researchers compared patient outcomes associated with autologous hematopoietic stem cell transplantation (aHSCT) and compared them with outcomes associated with Gilenya, Tysabri, and Ocrevus 4:40 A research team in Iran analyzed results from 56 separate studies about sexual dysfunction in women with MS 8:29 Should someone over the age of 65 discontinue their disease-modifying therapy? 11:40 Dr. Nora Fritz discusses gait, balance, fall prevention and more 15:20 Share this episode 33:49 I'll be at Crush MS! Will I see you there? 34:09 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/308 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: Disease-Modifying Drugs for Multiple Sclerosis and Subsequent Health Service Use Tremlett's MS Research Explained: Disease-Modifying Drugs for Multiple Sclerosis and Subsequent Health Service Use STUDY: Comparative Effectiveness of Autologous Hematopoietic Stem Cell Transplant vs Fingolimod, Natalizumab, and Ocrelizumab in Highly Active Relapsing-Remitting Multiple Sclerosis STUDY: Prevalence and Risk of Developing Sexual Dysfunction in Women with Multiple Sclerosis (MS): A Systematic Review and Meta-Analysis RealTalk MS Episode 255: Aging With MS with Dr. John Corboy Crush MS Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 308 | |||
| 10 Aug 2020 | Episode 154: Vaccinations for People Living with MS with Dr. John Ciotti | 00:32:32 | |
One of the things that people affected by MS seem to worry about every year is the flu vaccine. And the question is always the same -- is it safe for someone with MS to get a flu shot? This year, that question and its accompanying anxiety are compounded by the COVID-19 pandemic. Is it safe for someone with MS to get a flu vaccination during the pandemic? Is it safe for someone with MS to get a COVID-19 vaccination when one becomes available? And what about the impact of MS disease-modifying therapies on the effectiveness of any vaccination?  My guest is Dr. John Ciotti, a board-certified neurologist and clinical fellow at Washington University in St. Louis, Missouri. Dr. Ciotti is with us to answer those important questions. We're talking about flu shots and other vaccinations, and we're even talking about how a COVID-19 vaccine -- which doesn't exist today -- is likely going to affect people with MS who are on disease-modifying therapies. This is a conversation you don't want to miss because the perfect antidote to worrying is getting your hands on good, credible information. We're also talking about the very positive outcomes of two clinical trials comparing ofatumumab to Aubagio. It's likely that next month, ofatumumab (Arzerra) is going to receive FDA approval for treating MS, so these clinical trial results are something you'll want to know about. We'll share the results of a study that should give you the most important reason yet to include exercise as part of your regular routine and we'll point you toward the new exercise resources that have been created especially for people living with MS. The National MS Society conducted a survey to measure how the COVID-19 pandemic was affecting people living with MS. We'll share some of the highlights from the survey and we'll even remind you where to find the resources that were requested most by survey respondents. And we'll tell you about the very first study to measure the incidence of MS in China. We have a lot to talk about! Are you ready for RealTalk MS??! National MS Society survey measured the impact of the COVID-19 pandemic on people living with MS 1:54 Clinical trial data shows ofatumumab outperforms Aubagio 4:08 Research shows that exercise preserves key areas of the brain among people with MS 6:53 Research team is first to report the incidence of MS in China 10:00 My Interview with Dr. John Ciotti 12:55 Share this episode 28:25 Please leave a rating & review 28:48 DUNK MS is happening Saturday! 29:01 Please Support the National MS Society COVID-19 Response Fund 29:40 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/154 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) Effects of MS Disease-Modifying Therapies On Responses to Vaccinations: A Review STUDY: Ofatumumab vs Teriflunomide in Multiple Sclerosis National MS Society Recommendations for Exercise & Physical Activity For ALL People with MS VIDEO: Aerobic Exercise Tips for MS VIDEO: Breathing Exercise Tips for MS STUDY: Incidence of Multiple Sclerosis in China: A Nationwide Hospital-Based Study National MS Society COVID-19 Response Fund Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 154 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Vaccinations, COVID-19, RealTalkMS
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| 24 Jan 2022 | Episode 230: Managing MS Fatigue with Dr. Elizabeth Gromisch | 00:29:01 | |
Fatigue is one of the most common symptoms of MS. It just gets in the way of fully engaging in life, making fatigue one of the most bothersome symptoms of MS. And because MS fatigue is one of the main causes of early withdrawal from the workforce, fatigue is an MS symptom that can impose a hefty financial penalty on a household.
Joining me to talk about managing and even reducing MS fatigue is Dr. Elizabeth Gromisch, a neuropsychologist at the Mandell Center for Multiple Sclerosis in Hartford, Connecticut. We'll also share the results of a UCSF study that show how artificial intelligence may be able to predict MS in an individual years before they experience any typical MS symptoms. We'll tell you about two different experimental treatments for progressive MS that are showing some early promise. We'll give you the details of how you can join a virtual support group with a focus on using positive psychology for people living with MS. And we'll give you a reminder that MS Got Talent is being live-streamed this Saturday....and Jon's performing magic! We have a lot to talk about! Are you ready for RealTalk MS??! Did you catch last week's episode about EBV & MS? :22 Wait....Jon does magic???! 2:08 Study shows AI may predict MS years before it can be diagnosed 3:43 Study shows Hydroxychloroquine slows disability progression in primary progressive MS 7:28 Second patient receives Foralumab as treatment for secondary progressive MS 9:13 How you can join a virtual support group that focuses on using positive psychology for people living with MS 11:08 Dr. Elizabeth Gromisch discusses strategies for managing and even reducing MS fatigue 13:04 Share this episode 27:42 MS Got Talent is live streaming this Saturday 28:03 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/230 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS STUDY: Embedding Electronic Health Records Onto a Knowledge Network Recognizes Prodromal Features of Multiple Sclerosis and Predicts Diagnosis STUDY: Hydroxychloroquine for Primary Progressive MS Positive Psychology Virtual MS Support Group Study Contact Info MS Got Talent LIVE on Jan. 29th at 7PM Eastern/4PM Pacific Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 230 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 12 Aug 2024 | Episode 363: Safe Driving When You're Living with MS with Jenny Nordine, OTL, CDRS | 00:32:57 | |
For some people, getting in their car and heading for, well, anywhere represents freedom and independence. For others, it's a way to get to their jobs, get to their medical appointments, get the kids to school, and run necessary errands. MS can change all of that.
Occupational Therapist and Certified Driver Rehabilitation Specialist Jenny Nordine joins me to discuss how to preserve your independence while protecting yourself and the people around you when you're driving with MS. You'll also meet Dr. Susan Seizer, a true difference-maker and one of the founders of the Mobility Aids Lending Library. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Maintaining your independence and keeping yourself and others around you safe when you're driving with MS :22 Dr. Susan Seizer discusses the Mobility Aids Lending Library and the stigma of disability 1:26 Occupational Therapist and Certified Driver Rehabilitation Specialist, Jenny Nordine, discusses how to preserve your independence while protecting yourself and the people around you when you're driving with MS 20:35 Share this episode 31:25 Have you downloaded the free RealTalk MS app? 31:45 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/363 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Mobility Aids Lending Library Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 363 | |||
| 30 Aug 2021 | Episode 209: MS Superheroes with Madison Copot | 00:28:22 | |
Madison Copot was diagnosed with MS about 9 years ago, just before turning 13. And when she received her diagnosis, Madison was also told that she was too young to be seen by an MS specialist. Today, Madison is a 21-year old young woman, and if you want to hear what a real-life superhero sounds like, you won't want to miss my conversation with Madison.  While we're on the subject of superheroes, we'll tell you about Darkhawk, who debuted last week as the first Marvel superhero to be diagnosed with MS. We're sharing the American Academy of Neurology's COVID-19 vaccine guidance. And we have a very specific message to share with anyone living with MS who is still on the fence about being vaccinated. You'll learn about new NIH-funded research that may extend our understanding of how MS happens. We'll also tell you about a clinical trial getting underway in the U.K. that's exploring whether Mavenclad can slow the worsening of hand and arm function in people with progressive MS. And we'll share the line-up of no-cost CAN-DO MS virtual programs taking place throughout the month of September. We have a lot to talk about! Are you ready for RealTalk MS??! Darkhawk returns...and this time, he has MS :22 AAN issues its formal COVID-19 vaccine guidance 2:34 NIH-funded research will examine cell communication in the central nervous system 6:59 CHARIOT-MS clinical trial launches in the U.K. 9:54 CAN-DO MS September programs focus on staying in charge of your life 11:28 My conversation with Madison Copot 13:43 Share this episode 26:52 Download the free RealTalk MS app for your iOS or Android device 27:13 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/209 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS Darkhawk (2021) Issue 1 COVID-19 and Vaccination in the Setting of Neurologic Disease: An Emerging Issue in Neurology ChariotMS Clinical Trial Can-Do MS September Programs Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 209 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, COVID-19, Marvel, RealTalkMS | |||
| 28 Oct 2020 | Episode 165: Understanding MS Clinical Research with Dr. Sandi Cassard and Diane Kramer | 00:38:05 | |
Almost everything that we've learned about multiple sclerosis is the result of people with MS choosing to participate in clinical research. When it comes to MS and most every other chronic illness, clinical research is the common denominator of all medical progress.  This week, we're breaking down the details of MS clinical research with my guests, Dr. Sandi Cassard, a research associate in the Neurology department at Johns Hopkins School of Medicine, and Diane Kramer, who has participated in more than 20 research studies since being diagnosed with MS in 2010. After analyzing COVID-19 MS patient registries and studies from countries around the world, the MS International Federation has issued updated COVID-19 guidance for people living with MS. We'll tell you about it -- and if you've downloaded the RealTalk MS app from the Apple App Store or Google Play, you'll receive your own copy of this detailed guidance under the Bonus Content tab! We also have some final words before election day to share with our listeners in the U.S. And they're not even our words! We'll share the results of a study that may offer a clue as to why African-Americans with MS are likely to experience more relapses, greater disability, and often require mobility assistance earlier in their disease course when compared to Caucasians with MS. You'll also hear about an MRI study that shows Hispanics with MS are at a higher risk for developing more aggressive forms of MS at an earlier age when compared to Caucasians with MS. And you'll meet a true difference-maker when you meet Nightingale Award recipient and founder of MS Bright Spots of Hope, Michelle Keating. We have a lot to talk about! Are you ready for RealTalk MS??! Have you checked out MSTranslate? 1:03 Healthcare is on the ballot! Have you voted yet??? 3:42 MSIF issues updated COVID-19 guidance for people living with MS 9:38 Researchers discover 2 gene variants that may help explain why African-Americans with MS often have a more severe disease course than Caucasians with MS 10:58 A study shows that Hispanics with MS are at a higher risk of developing more aggressive forms of MS at an earlier age. 12:44 My Interview with MS researcher Dr. Sandi Cassard and Diane Kramer 14:57 My Interview with Nightingale Award recipient and founder of MS Bright Spots of Hope Michelle Keating 24:08 Share this episode 35:52 Donate to the National MS Society COVID-19 Response Fund 36:12 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/165 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) MSIF Global COVID-19 Advisory for People with MS UCSF Multiple Sclerosis Genetics Project STUDY: Brain MRI Finds Hispanic Patients Develop More Aggressive MS National MS Society COVID-19 Response Fund Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 165 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, RealTalkMS
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| 11 Jun 2019 | Episode 93: Stem Cells Are In the News & A Research Update from Dr. Karen Lee, V.P. of Research at the MS Society of Canada | 00:27:53 | |
Stem Cells are in the news, and we're talking about the U.S. District Court decision that will impact hundreds of stem cell clinics in the United States and the FDA's ability to regulate them. We'll also share two breakthroughs in stem cell research that will likely impact the future of stem cell therapy.
My guest on the podcast is Dr. Karen Lee, the Vice-President of Research at the MS Society of Canada. Canada has one of the highest rates of MS in the world, and the MS Society of Canada has responded by launching research initiatives on several fronts. Dr. Lee is going to give us an update on some of the research that the MS Society of Canada is involved in, including a major multi-year study that's focused on answering the questions, how and why does MS progress? We have a lot to talk about. Are you ready for RealTalk MS??! ___________ FDA Wins in Federal Court Against For-Profit Stem Cell Clinic Operator 2:15 Harvard Research Team Shows That Stem Cells Can Be Genetically Edited In The Body 7:38 University of California Irvine Uses Nanotech Treatment From Stem Cells to Reverse MS in Mice 10:11 AxoSim Licenses Mini-Brain Technology Developed at Johns Hopkins 12:26 My Interview with Dr. Karen Lee 15:09 Join the RealTalk MS Conversation 26:09 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com FDA Announces Federal Court Decision Against US Stem Cell Clinics In Situ Modification of Tissue Stem and Progenitor Cell Genomes Stem Cell-Derived Exomes as Nanotherapeutics for Autoimmune and Neurodegenerative Disorders CanProCo Study Information & Registration Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 93 Tags: MS, MultipleSclerosis, MSResearch, MSSocietyCanada, Stemcells, RealTalkMS
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| 27 Mar 2018 | RealTalk MS Episode 25: Progressive MS Day With Dan & Jennifer Digmann | 00:29:41 | |
March is MS Awareness Month, and tomorrow we'll be observing the first ever Progressive MS Day, which is being celebrated by several MS advocacy groups and state governments around the United States. My guests on the podcast are Dan and Jennifer Digmann. Jennifer was diagnosed with Progressive MS in 1997, and Dan was diagnosed with relapsing-remitting MS in 2000. Dan & Jennifer met at a National MS Society event in 2002, and they were married in 2005.
Together, Dan & Jennifer write an award-winning MS blog, they host the A Couple Takes On MS podcast on the MS & ME Radio Network, they've co-authored a book entitled, Despite MS, to Spite MS, and in 2015, they were inducted into the National MS Society Volunteer Hall of Fame for Advocacy. We'll talk with Dan & Jennifer Digmann and get their thoughts about Progressive MS Day, and on what life is like when both partners in a marriage have been diagnosed with multiple sclerosis. ____________ 1:42 Managing MS Pain Through Mindfulness 4:50 Improving Cognitive Processing By Walking On a Treadmill 6:11 The Importance of Sleep in MS Symptom Management 9:57 Progressive MS Day With Dan & Jennifer Digmann ____________ LINKS If your podcast app doesn't show these links, you'll find them in the show notes at www.RealTalkMS.com ____________ For more RealTalk MS, follow us on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 25 Guests: Dan & Jennifer Digmann Hosted By: Jon Strum Tags: Progressive MS Day, MS, multiple sclerosis, Dan and Jennifer Digmann, MS pain, Mindfulness, MS and cognition, MS and sleep, MS podcast, RealTalk MS | |||
| 09 Nov 2020 | Episode 167: A Veteran's MS Journey with Karla Clay, Capt USAF | 00:33:21 | |
November 11 is Veterans Day in the United States, giving us an opportunity to honor the men and women who have served in America's armed forces. More than 70,000 U.S. veterans are living with MS, and joining me on the podcast is Karla Clay, an Air Force veteran, and a National Veterans Wheelchair Games multiple medal winner. We're talking about the life-changing turn that Karla's MS journey ended up taking.
As of today, the fate of the Affordable Care Act and the legal protections for people with pre-existing conditions are in the hands of the Supreme Court. So we're also talking about The 100 Days Agenda: A Patient-First Blueprint. This document is the result of a collaboration between the National MS Society and 33 other patient organizations and it provides specific steps that the President and other elected officials can take to protect access to adequate, affordable insurance coverage for people with pre-existing conditions. We'll tell you about a study that identifies a potential new risk associated with disease-modifying therapies for people living with MS who are over the age of 45. And the month of November is loaded with outstanding webinars and conferences featuring some of the leading MS experts in the world. The good news is that you can virtually attend all of these online events at no charge, from the comfort of your own home. We're sharing all the details and we'll tell you where to register for each one! We have a lot to talk about! Are you ready for RealTalk MS??! As of today, the legal protections for people with pre-existing conditions is in the hands of the U.S. Supreme Court :22 National MS Society and 33 other patient organizations publish The 100 Days Agenda: A Patient-First Blueprint 2:25 Study identifies a potential new DMT risk for people living with MS who are over the age of 45 3:34 November is loaded with outstanding webinars and conferences that you can attend virtually...for FREE! 5:04 International Progressive MS Alliance Global Webcast: Speeding Life-Changing Treatments for Progressive MS 5:25 National Alliance for Caregiving and the Rosalynn Carter Institute for Caregiving webinar: Flattening the Caregiver Crisis Curve 5:57 European MS Platform Annual Conference: Understanding Progressive MS 7:52 MS Society of Canada 2020 MS-CONNECT Conference 8:48 My Interview with Karla Clay, Capt USAF (Ret) 9:41 Share this episode 31:09 Donate to the National MS Society COVID-19 Response Fund 31:28 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/167 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) National Veterans Wheelchair Games U.S. Department of Veterans Affairs Multiple Sclerosis Centers Of Excellence The 100 Days Agenda: A Patient-First Blueprint Register for Flattening the Caregiver Crisis Curve Register for the MS Society of Canada's 2020 MS-CONNECT Conference National MS Society COVID-19 Response Fund Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 167 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, VeteransDay, EMSPVirtual2020, MSConnect, Caregiving, RealTalkMS
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| 04 May 2020 | Episode 140: Vitamins, Nutrition & Stress Reduction -- Managing MS Symptoms with Dr. Elizabeth Crabtree | 00:32:11 | |
My guest is Dr. Elizabeth Crabtree, the Medical Director at the Tulane Center for Comprehensive MS Care. Dr. Crabtree is passionate about creating meaningful care models for patients living with MS. And this week, we're taking a deep dive with Dr. Crabtree into the impact of nutrition, diet, and vitamins in managing MS symptoms. We're also going to get into the impact of stress on MS, and Dr. Crabtree will even share some tips on how to best manage that stress.
We're also talking about a new mouse study that suggests starting treatment with Rituximab in people who are at risk of developing MS or in MS patients before they develop any motor symptoms may be a way to avoid inflammation and myelin loss, and actually prevent MS from further developing. We'll tell you about a new nanosensor that can diagnose MS with 97% accuracy before symptoms even develop. We'll share new data that shows Mayzent slowed physical disability progression and provided cognitive benefits to people with secondary progressive MS. And you'll hear about the study that shows that early use of Ocrevus may lower the need for a walking aid by 49% over 6 years. We have a lot to talk about! Are you ready for RealTalk MS??! A Fun Fact About Podcasts (...and a Thank You!) :23 Mouse Study Suggests Early Treatment with Rituximab May Prevent MS Symptoms From Developing 2:58 Nanosensor Can Diagnose Early Stage MS Before Symptoms Develop 5:18 New Data Shows Mayzent Slows Disability Progression & Provides Cognitive Benefits to People with Secondary Progressive MS 8:03 Study Shows Early Use of Ocrevus May Lower the Need for Walking Aid by 49% Over 6 Years 10:42 My Interview with Dr. Elizabeth Crabtree 13:33 Share this episode 28:50 The National MS Society COVID-19 Response Fund 29:25 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/140 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us on the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) National MS Society COVID-19 Response Fund Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 140 Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Rituximab, Ocrevus, Coronavirus, COVID19, RealTalkMS
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| 30 Sep 2021 | Bonus Episode: MS in the 21st Century -- Family Involvement in MS Care with Dr. Alice Laroni and Trishna Bharadia | 00:30:52 | |
This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century.
It's often said that MS doesn't just affect individuals, it affects families. And in this special episode of RealTalk MS, we're talking about family involvement in MS care with Dr. Alice Laroni and Trishna Bharadia. Dr. Laroni is a neurologist with over 18 years of experience providing clinical care to MS patients and more than 13 years of experience in neuroimmunological research. Dr. Laroni is also an Assistant Professor of Neurology at the University of Genova. Trishna Bharadia was diagnosed with MS in 2008, at the age of 28. She's a multi-award-winning health advocate and patient engagement advisor dedicated to raising awareness and finding solutions for people living with MS. Both Trishna and Alice are active members of the MS in the 21st Century initiative. To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com. | |||
| 20 Mar 2018 | RealTalk Episode 24: MS & Depression? There's An App For That! | 00:26:07 | |
Depression affects over one million people around the world who are living with MS. And when you fail to treat depression, every other aspect of life seems to get worse - and that can include your MS symptoms. My guest on this week's podcast is Dr. Athena Robinson, the Chief Clinical Officer at Woebot Labs, and we're talking about Woebot -- a breakthrough app that lives on your smartphone and has been proven to be effective in treating depression. We're also talking about a robotic arm brace that restores the use of paralyzed limbs due to MS, ALS, and stroke. And you'll hear all about 2 new MS research studies taking place at the University at Buffalo. We'll even tell you where you can sign up to test-drive a smartphone app that's been developed to help your neurologist fine-tune your MS treatment and better personalize your MS symptom management. We have a lot to talk about! Are you ready for RealTalk MS? | |||
| 27 Nov 2018 | Episode 66: Embracing Carers with EMD Serono's Scott Williams | 00:30:33 | |
We're into the final few days of National Family Caregivers Month, and my guest on the podcast is Scott Williams, Vice President, Head of Global Patient Advocacy and Strategic Partnerships at EMD Serono. We're talking with Scott about EMD Serono's commitment to MS caregivers.  We're also talking about creating a caregiver protocol that becomes part of the conversation in the neurologist's office as soon as someone is newly diagnosed with MS. We'll tell you about the FDA's new warning about stopping Gilenya. We'll share news about two different clinical trials that are exploring two different cell therapies for treating progressive MS. And we'll share some amazing statistics that demonstrate the reach and effectiveness of the National MS Society's MS Navigator program, a remarkable one-on-one MS support program. We have a lot to talk about! Are you ready for RealTalk MS?! ___________ Can We Talk About Establishing a Caregiver Protocol? 1:04 FDA Warns About Severe MS Worsening After Stopping Gilenya 4:54 Phase 2 Clinical Trial Planned for NurOwn Cell Therapy for Treating Progressive MS 6:30 ATA190 Cell Therapy Shows Promising Phase 1 Clinical Trial Results for Treating Progressive MS 7:43 MS Society's MS Navigator Program Demonstrates Reach & Effectiveness 10:36 Scott Williams, Vice-President, Head of Global Patient Advocacy and Strategic Partnerships Discusses EMD Serono's Commitment to MS Caregivers 14:08 ___________ LINKS Download the RealTalk MS App for iOS Download the RealTalk MS App for Android FDA Warns About Severe Worsening of Multiple Sclerosis After Stopping the Medicine Gilenya Epstein-Barr Virus-Specific T Cell Therapy for Progressive Multiple Sclerosis RealTalk MS Episode 19: MS Navigators -- A Seriously Remarkable Service That You Need to Know About DOCUMENTARY: Seeing MS From the Inside Out Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 66 Tags: MS, MultipleSclerosis, MSsociety, Gilenya, ProgressiveMS, MSInsideOut, EmbracingCarers, Caregiving, RealTalkMS
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| 01 Jun 2020 | Episode 144: Emotional Wellness and MS: A Check-In with Dr. Amy Sullivan | 00:44:41 | |
My guest this week is Dr. Amy Sullivan, a Clinical Health Psychologist and the Director of Behavioral Medicine at the Mellen Center for MS Treatment and Research at the Cleveland Clinic. We're talking about fighting feelings of isolation, building resiliency, caregiver emotional wellness, and how we should be thinking about living in a "new normal" world.
Massachusetts General Hospital and iConquer MS surveyed more than 1,000 people living with MS about the impact of the COVID-19 pandemic on their daily lives. We're among the first to hear the survey results from investigator Dr. Farrah Mateen and Hollie Schmidt. MS research is about to take a quantum leap forward. We're talking about how the MULTI-ACT patient engagement roadmap will change the face of MS research and involve people affected by MS in ways that they've never been involved in research before. And we'll share new data from an ongoing clinical trial that's evaluating a cutting-edge cell therapy designed to eliminate B-cells carrying the Epstein-Barr virus. (Many experts believe that eliminating the Epstein-Barr virus Barr virus might eliminate most multiple sclerosis.) We have a lot to talk about! Are you ready for RealTalk MS??! The International Progressive MS Alliance is partnering with MULTI-ACT -- and why that's a major step forward in MS research 2:26 New Data About ATA 188 Cell Therapy Clinical Trial Shared at the European Academy of Neurology Virtual Meeting 5:47 Dr. Farrah Mateen & Holly Schmidt Share Results from the Massachusetts General Hospital/iConquer MS COVID-19 Survey 10:08 My Interview with Dr. Amy Sullivan 30:21 Share this episode 41:27 Please Support the National MS Society COVID-19 Response Fund 41:50 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/144 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) National MS Society COVID-19 Response Fund Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 144 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Coronavirus, COVID19, iConquerMS, RealTalkMS
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| 04 Sep 2023 | Episode 314: Pelvic Floor Health and MS with Jill Ehrmantraut | 00:24:10 | |
When you're living with MS, managing your pelvic floor health may not be among the first things you think about. But pelvic floor dysfunction, and the problems that arise from it, like bladder and bowel issues, can seriously impact your health, well-being, and quality of life. Jill Ehrmantraut, a physical therapist and women's health clinical specialist with advanced training in pelvic rehabilitation, joins me to explain what pelvic floor rehab is all about, why it's important, and how you can get started on the path to improving your pelvic floor health.
We'll also tell you about the first 10 drugs that will be subject to price negotiations between Medicare and the companies that manufacture these drugs. (And we'll tell you how that's going to benefit tens of thousands of people living with MS) We'll share the details of how you can weigh in on setting future research priorities for studying women's health in MS. We'll let you know how you can participate in the Patient Community Day at ECTRIMS, the largest MS research conference in the world. If you're in New York and you're ready to laugh for a good cause, we have the details about the upcoming StandUp2MS comedy club benefit at Gotham Comedy Club. And we're sharing U.S. News & World Report's ranking of the best hospitals in the U.S. for neurology and neurosurgery. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Pelvic floor rehab can be a difference-maker in living your best life with MS :22 CMS announces the first 10 prescription drugs for which Medicare will negotiate prices 1:19 You can help set future research priorities for studying women's health in MS 3:00 The largest MS research conference in the world is hosting a Patient Community Day 4:17 The StandUp2MS comedy club benefit is less than two weeks away! 5:45 U.S. News & World Report has issued its ranking of the top hospitals in the U.S. for neurology and neurosurgery 6:58 Jill Ehrmantraut explains what pelvic floor health and why it's especially important when you're living with MS 9:52 Share this episode 22:37 Have you downloaded the free RealTalk MS app? 22:57 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/314 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com SURVEY: Research Priorities in Women's Health in Multiple Sclerosis MSMilan Patient Community Day Information and Registration Standup2MS Comedy Club Benefit Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 314 | |||
| 23 May 2022 | Episode 247: Biomarkers Can Help Diagnose MS, Predict MS, and Telegraph MS Progression with Dr. Tanuja Chitnis | 00:29:55 | |
Think about how much faster, easier, cheaper, and less invasive it would be if MS could be diagnosed by a simple blood test. Scientists have identified biomarkers that can be used to diagnose MS and even predict MS before someone experiences any symptoms. Biomarkers may even be used to predict MS progression before it occurs.
Joining me to discuss how biomarkers may change the way MS is diagnosed and treated is Dr. Tanuja Chitnis, a Professor of Neurology at Harvard Medical School, as well as the Director of the CLIMB Study and the Translational Neuroimmunology Research Center at Brigham and Women's Hospital. We're also talking about a recent breakthrough in myelin repair. We're sharing all the details about how you can participate in World MS Day on May 30th. We'll tell you about a report commissioned by the National Academy of Medicine that takes a close look at the challenges of identifying credible health information in social media. And if you're an MS caregiver, healthcare professional, or researcher, we'll give you the details of an important survey that you can participate in. We have a lot to talk about! Are you ready for RealTalk MS??! Biomarkers can change everything :22 May 30th is World MS Day 1:53 Lab-made molecule is shown to promote myelin repair in preclinical models of MS 3:23 National Academy of Medicine weighs in on the challenges of finding credible sources of health information in social media 5:03 An important survey for MS caregivers, healthcare professionals, and researchers 11:34 Dr. Tanuja Chitnis discusses biomarkers that may fundamentally change how MS is diagnosed and treated 13:38 Share this episode 28:23 Download the RealTalk MS app for your iOS or Android device 28:43 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/247 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS Report: Identifying Credible Sources of Health Information in Social Media: Principles and Attributes World MS Day iConquer MS Survey for MS Caregivers iConquer MS Survey for Researchers and Healthcare Providers Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 247 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 24 Oct 2022 | Episode 269: How and When the Inflation Reduction Act Will Affect The Price of Your MS Medications with Steffany Stern and Judy Wilson | 00:35:08 | |
A couple of months ago, the Inflation Reduction Act was signed into law. And while it touches on many different areas, it will be remembered as the most consequential healthcare bill since the Affordable Care Act. From the emails I've received, I know that many of you are wondering how and when this new law will impact what you pay for your prescription medications.
The National MS Society's Vice-President of Advocacy, Steffany Stern, and MS activist Judy Wilson, join me in this episode to explain how this new law benefits people who are living with MS, who, among everyone living with MS, will see some of those benefits first, and when you will begin to see those benefits. We're also talking about a study that showed people with progressive MS are four times more likely to experience serious infection requiring hospitalization, compared to people with relapsing-remitting MS. We'll tell you about a machine-learning algorithm that can predict MS patient outcomes when it comes to symptoms like fatigue, depression, and sleep disturbance. And we'll share some very sobering survey results from the MS Society in the U.K. We have a lot to talk about! Are you ready for RealTalk MS??! Greetings from Amsterdam! ECTRIMS kicks off this week! :22 This Week: How the Inflation Reduction Act Will Help You 1:02 People with primary progressive MS are 4 times more likely to experience serious infection 2:12 An app plus artificial intelligence predicts MS patient outcomes 5:03 The MS Society in the U.K. releases sobering survey results 9:33 MS Society V.P. of Advocacy Steffany Stern and MS activist Judy Wilson break down the specific benefits of the Inflation Reduction Act 12:17 Share this episode 33:36 Download the RealTalk MS app for your iOS or Android device 33:56 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/269 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Take the iConquer MS Caregiver Survey National MS Society: Become an MS Activist STUDY: Serious Infection in Patients with Relapsing and Progressive Forms of Multiple Sclerosis: A German Claims Data Study STUDY: Predicting Multiple Sclerosis Outcomes During COVID-19 Stay-at-Home Period: Observational Using Passively Sensed Behaviors and Digital Phenotyping Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 269 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 18 Jan 2021 | Episode 177: Dr. Nancy Sicotte Answers Your Questions About the COVID-19 Vaccines and MS | 00:29:37 | |
As Chair of the National MS Society's National Medical Advisory Committee, Dr. Nancy Sicotte led the expert task force that the MS Society convened to develop the COVID-19 vaccine guidance for people living with MS. Dr. Sicotte is returning to RealTalk MS to answer your questions about the vaccine and MS.  Dr. Sicotte is a Professor and Chair of the Department of Neurology at Cedars-Sinai Medical Center in Los Angeles, where she's also the Director of the Multiple Sclerosis and Neuroimmunology Program.  Diane Kramer was diagnosed with MS in 2010. As a healthcare worker, Diane has already received the COVID-19 vaccine. Diane is also joining me to share her experience with the vaccine. We have a lot to talk about! Are you ready for RealTalk MS??! Dr. Nancy Sicotte answers your questions about the MS Society's COVID-19 vaccine guidance for people living with MS 1:47 Diane Kramer shares her experience with the COVID-19 vaccine 19:51 Share this episode 27:24 Donate to the National MS Society COVID-19 Response Fund 27:44 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/177 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) COVID-19 Vaccine Guidance for People Living with MS Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 177 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, COVID19, CovidVaccine, RealTalkMS  | |||
| 30 Sep 2024 | Episode 370: Understanding the Updated Pathways to Cures Research Roadmap with Dr. Bruce Bebo and Shawna Golden | 00:31:34 | |
In 2020, the National MS Society convened the Pathways to Cures Think Tank. I shared news and interviews from what I considered a historic meeting back in Episode 125 of RealTalk MS. The information shared and the work generated by that Think Tank led to the Pathways to Cures Global Summit in 2023. In Episodes 297and 298 of RealTalk MS, I shared news and interviews from what I described as yet another historic meeting.
The Pathways to Cures Research Roadmap has been updated, and I'm devoting this week's episode of RealTalk MS to my conversation with the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, and the MS Society's Vice-President of Global Initiatives, Shawna Golden, to bring us up to date on how this global MS research initiative has been refined and enhanced and how it's resetting the global MS research agenda. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The Pathways to Cures research roadmap has been updated :22 Dr. Bruce Bebo and Shawna Golden discuss the refined and enhanced Pathways to Cures research roadmap 2:34 Share this episode 29:58 Have you downloaded the free RealTalk MS app? 30:18 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/370 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Episode 125: From the Pathways to Cures Think Tank RealTalk MS Episode 297: From the Pathways to Cures Global Summit (Part 1) RealTalk MS Episode 298: From the Pathways to Cures Global Summit (Part 2) Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 370 | |||
| 31 Oct 2022 | Episode 270: From the 2022 ECTRIMS Congress with Dr. Bruce Bebo | 00:22:16 | |
Last week, over 7,000 MS researchers and clinicians from more than 100 countries traveled to Amsterdam to attend the 2022 ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) Congress, the largest MS research conference in the world.
As has become an annual ECTRIMS tradition on RealTalk MS, the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, and I took up our vantage point on the steps right outside of the convention center to discuss the research that captured Dr. Bebo's attention. We have a lot to talk about! Are you ready for RealTalk MS??! Greetings from the 2022 ECTRIMS Congress! :22 If you're listening in the U.S., don't forget to vote next Tuesday 1:26 Dr. Bruce Bebo shares the research that captured his attention at ECTRIMS 3:25 Share this episode 20:43 Download the RealTalk MS app for your iOS or Android device 21:03 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/270 ADD YOUR VOICE TO THE CONVERSATION I've always thought of the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Take the iConquer MS Caregiver Survey National MS Society: Your Right to Vote and Polling Place Accessibility Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 270 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 29 Jul 2024 | Episode 361: Meet the new President and CEO of the National MS Society with Dr. Tim Coetzee | 00:30:23 | |
Less than two weeks ago, the National MS Society announced the appointment of Dr. Tim Coetzee as its new President and CEO. The MS Society's board chair, Peter Porrino, commented, "Tim is a trusted voice of the global MS community, a highly respected scientist, and we are excited for him to bring his transformative leadership to drive us into our next era to achieve a world free of MS."
I thought it was important for everyone in the RealTalk MS listener community to hear from Tim and learn firsthand what his vision and priorities are for the MS Society. So, I'm dedicating this entire episode to my conversation with the new President and CEO of the National MS Society, Dr. Tim Coetzee. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: A conversation with the new President and CEO of the National MS Society, Dr. Tim Coetzee :22 Share this episode 28:32 Have you downloaded the free RealTalk MS app? 28:52 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/361 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 361 | |||
| 20 Nov 2018 | Episode 65: Answering Listener Questions with Certified MS Nurse Cherie Binns | 00:36:46 | |
I've received some great questions from some of my listeners. And this week, Cherie Binns, an Internationally Certified MS Nurse and the co-chair of the iConquerMS Research committee, is joining me to answer listener questions. She's even going to share some of her tips for living well with MS!  We'll also explain why the Americans with Disabilities Act applies to sports arenas, but not to your doctor's office. We'll tell you about an outdoor adventure organization for young adults with cancer that's just expanded it's no-cost programs to include young adults living with MS. The National MS Society has awarded pilot funding to 20 high-risk novel research projects. We'll tell you about what some of these projects are hoping to achieve. And this week, we'll tell you about the people and organizations that we're especially thankful for. We have a lot to talk about! Are you ready for RealTalk MS?! ___________ The ADA Extends to Sports Arenas, But Not Your Doctor's Office 2:37 First Descents Extends Its Outdoor Adventure Program to Young Adults Living with MS 7:19 National MS Society Has Awarded Pilot Funding for 20 High-Risk Novel Research Projects 8:38 Have a Question? Send it In! 13:32 Internationally Certified MS Nurse Cherie Binns Answers Your Questions & Shares Some Tips for Living Well with MS 14:24 ___________ LINKS Download the RealTalk MS App for iOS Download the RealTalk MS App for Android National MS Society Announces 20 Novel Research Projects
Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 65 Tags: MS, MultipleSclerosis, MSActivist, iConquerMS, MSsociety, RealTalkMS
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| 15 Feb 2021 | Episode 181: Sex and MS with Dr. Linda Mona | 00:31:17 | |
A fulfilling sexual relationship with your partner can have a positive impact on your physical and mental health in a variety of ways. But studies suggest that about 80% of the people living with MS are affected by some kind of sexual dysfunction. We're devoting this entire episode of RealTalk MS to talking about sex and MS with my guest, Dr. Linda Mona.  Dr. Mona is a licensed clinical psychologist and founder of Inclusivity Clinical Consulting Services. She's been recognized by the American Psychological Association, the Academy of Spinal Cord Injury Professions, Paralyzed Veterans of America, and the Society for the Scientific Study of Sexuality for her work focusing on people living with disabilities. We have a lot to talk about! Are you ready for RealTalk MS??! Sex and MS with Dr. Linda Mona :18 Share this episode 28:42 Leave a rating and review for RealTalk MS 29:03 WalkMS 2021 is here! 30:14 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/181 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society COVID-19 Vaccine Guidance for People Living with MS National MS Society: Timing MS Medications with COVID-19 mRNA Vaccines Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 181 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 22 May 2023 | Episode 299: Update on the Prevalence of MS in the United States with Dr. Bruce Bebo | 00:35:31 | |
Evidence shows that MS can affect members of minority communities differently. But how does that impact the total number of people who are living with MS? For multiple reasons, it's a tricky problem to solve. Yet, it's important that the numbers reflect everyone living with MS and no one is left behind.
This week, the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, is on hand to walk us through the just-published results of a study that provides a more granular estimate of the prevalence of MS in the United States, analyzing it by race, ethnicity, age, sex, and geographic region. We're also reminding you that this is the final week for you to spend a quick couple of minutes taking the RealTalk MS listener survey...and, maybe, win a $100 Amazon gift card. On June 14th and 15th, the National MS Society is hosting the virtual 2023 Black MS Experience Summit. And we're sharing all the registration info. Can Do MS is hosting a day-long in-person and virtual More About MS program on June 2. We'll tell you how you can register for this free event. We'll give you the details about the latest advocacy win for people living with MS. And we'll tell you about the new MS Society in the UAE. We're sharing the results of a study that analyzed the benefits of virtual reality therapy for improving balance among people living with MS. And we'll tell you about the somewhat puzzling results of a study of the incidence of MS in the U.K. We have a lot to talk about! Are you ready for RealTalk MS??! Next Week: Episode 300 (Yikes!) :22 FINAL WEEK: Take the RealTalk MS listener survey...you might win a $100 Amazon gift card! 1:36 This Week: A deep dive into the prevalence of MS in the United States 2:31 Registration info for the 2023 Black MS Experience Summit 3:12 Registration info for the Can Do MS More About MS Program 4:12 An advocacy win! 6:13 An MS Society in the UAE 10:40 STUDY: Virtual reality therapy is shown to improve balance for people living with MS 12:34 STUDY: The incidence of MS in the U.K. has not changed for almost two decades 16:25 Dr. Bruce Bebo walks us through anewly-published study that takes a granular look at the prevalence of MS in the United States 21:09 Share this episode 34:05 Please remember to take our listener survey! 34:26 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/299 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Take the RealTalk MS Listener Survey STUDY: Population-Based Estimates for the Prevalence of Multiple Sclerosis in the United States by Race, Ethnicity, Age, Sex, and Geographic Region REGISTER for the National MS Society's 2023 Black MS Experience Summit REGISTER for the Can Do MS More About MS Program Advocate For Change -- Become an MS Activist The National MS Society in the UAE STUDY: Virtual Reality-Based Therapy Improves Balance and Reduces Fear of Falling in Patients with Multiple Sclerosis: A Systematic Review and Meta-Analysis of Randomized Controlled Studies STUDY: Incidence, Prevalence, and Co-Occurrence of Autoimmune Disorders Over Time and by Age, Sex, and Socioeconomic Status: A Population-Based Cohort Study of 22 Million Individuals in the U.K. Take the RealTalk MS Listener Survey Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 299 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 06 Jun 2022 | Episode 249: The Ball Came Out with Tyler Campbell | 00:28:27 | |
In 2007, Tyler Campbell was a running back at San Diego State, looking forward to a real shot at a career in the NFL. Instead, Tyler's life was turned upside down by an MS diagnosis.
For some people, that would have been the end of the story. For Tyler, it was only the beginning. In this week's episode, Tyler Campbell talks about his transformational journey from the football field to becoming a motivational and inspirational leader in the MS movement. We have a lot to talk about! Are you ready for RealTalk MS??! I met a real difference-maker! :22 My conversation with Tyler Campbell 1:12 Share this episode 26:56 Download the RealTalk MS app for your iOS or Android device 27:16 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/249 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS The National MS Society Presents the Black MS Experience Summit iConquer MS Survey for MS Caregivers iConquer MS Survey for Researchers and Healthcare Providers Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 249 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 21 Jun 2021 | Episode 199: MS and the LGBTQ+ Community with Matoaka Kipp | 00:41:58 | |
Receiving an MS diagnosis can be frightening. And receiving that diagnosis as a young adult can feel like your whole world just got flipped upside down. When Matoaka Kipp (she/her/hers) received her MS diagnosis at the age of 21, she not only had to come to terms with how that diagnosis would change her life but as a member of the LGBTQ+ community, Matoaka also had to confront some of the systemic inequities of our healthcare system. Matoaka joins me this week to share her MS journey.
We're also talking about why the U.S. Supreme Court tossed out a lawsuit that threatened access to healthcare for every person living with MS in the United States. We'll tell you who was just named this year's recipient of the prestigious Charcot Award and you'll learn how this person's work has directly affected your MS diagnosis. We're sharing the surprising results of a study of cannabis use and cognition among people with MS. And we'll tell you about a $1 million dollar award that will fund no-cost outdoor adventures (think adaptive skiing, kayaking, etc!) for young adults who are living with MS. We have a lot to talk about! Are you ready for RealTalk MS??! National MS Society's statement in support of the LGBTQ+ community :22 U.S. Supreme Court Tosses Out ACA Lawsuit (and why that matters to everyone living with MS) 3:26 Winner of the Charcot Award is announced 7:14 Surprising results from a study on cannabis and cognition among people with MS 10:07 If you're living in the U.K. and you use a wheelchair for mobility, here's your chance to be a part of MS research 14:07 First Descents receives $1 million dollars to support no-cost outdoor adventures for young adults living with MS 15:04 Matoaka Kipp shares her MS journey 17:30 Share this episode 40:41 Please join me next week for our 200th episode! 41:03 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/199 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS National MS Society LGBTQ+ Needs Survey Matoaka's Greeting Cards STUDY: Impaired Awareness: Why People with Multiple Sclerosis Continue Using Cannabis Despite Evidence to the Contrary University of Birmingham Study Participant Information First Descents Outdoor Adventures for Young Adults Impacted by MS Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 199 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
| 14 Sep 2020 | Episode 159: Resilience and MS with Dr. Dawn Ehde | 00:42:46 | |
You can't control the weather, but you can learn to dance in the rain. And developing resilience teaches you how to dance in the rain. My guest is Dr. Dawn Ehde, a clinical psychologist and professor of rehabilitation medicine at University of Washington Medicine. Dr. Ehde is an expert in understanding resilience, and she's joining us to explain why having resilience is central to improving the well-being of people affected by MS, and how to go about building your resilience -- even in the midst of a global pandemic.  We're also talking about Bafiertam, a lower-cost, FDA-approved bioequivalent to Tecfidera. We'll share the results of a study of more than 5,000 people who were newly diagnosed with MS -- and not prescribed a disease-modifying therapy for two years following their diagnosis. We'll also explain why that's just wrong! We'll talk to Suzi Claflin, the academic lead for Understanding Multiple Sclerosis, a free comprehensive 6-week online course that's open for registration right now. And we'll remind you about where you can register for next week's Black MS Experience Summit. We have a lot to talk about! Are you ready for RealTalk MS??! We're celebrating 3 amazing years! :22 The joint ACTRIMS-ECTRIMS meeting took place last weekend and that means a bonus episode of RealTalk MS is coming 2:38 Bafiertam is now available in the United States 4:44 Study shows that 2/3 of people newly diagnosed with MS in the U.S. are not prescribed any disease-modifying therapy for 2 years following their diagnosis 5:43 Understanding Multiple Sclerosis, a free online course, is open for registration. My interview with Suzi Claflin 8:44 The Black MS Experience Summit takes place next week 21:51 My Interview with Dr. Dawn Ehde 23:43 Share this episode 40:32 Donate to the National MS Society COVID-19 Response Fund 40:52 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/159 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) "Understanding Multiple Sclerosis" Online Course Registration National MS Society Black MS Experience Summit National MS Society COVID-19 Response Fund Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 159 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, UWMedicine, RealTalkMS
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| 12 Apr 2023 | Special Episode: Barancik Prize Conversations -- Part 1 | 00:30:47 | |
Welcome to Part 1 of a special two-part RealTalk MS series highlighting conversations with past recipients of the Barancik Prize for Innovation in MS Research. The Barancik Prize is awarded at the annual meeting of the Americas Committee for Treatment and Research in Multiple Sclerosis, a meeting better known as the ACTRIMS Forum. Several past Barancik Prize winners gathered at the 2023 ACTRIMS Forum to celebrate the 10th anniversary of the Barancik Prize, and I took that opportunity to chat with this remarkable group of MS research all-stars.
Part 1 of Barancik Prize Conversations features the 2014 and 2016 Barancik Prize winners. Dr. Philip De Jager, of Columbia University, was awarded the Barancik Prize in 2014 for applying powerful analytic approaches to better understanding how genes and the environment interact, with the goal of developing personalized treatments for MS and, ultimately, disease prevention. Dr. Daniel Reich, of the NIH Institute of Neurological Disorders and Stroke, received the Barancik Prize in 2016 for innovating approaches to imaging MS disease activity, creating new pathways to better treatments. We have a lot to talk about! Are you ready for RealTalk MS??! About the Barancik Prize Conversations :18 Dr. Philip De Jager 2:03 Dr. Daniel Reich 19:49 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/barancik1 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Bonus Episode: Barancik Prize Conversations -- Part 1 Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS | |||
