New Books in Disability Studies (New Books Network)

In Confidence Culture (Duke UP, 2022), Shani Orgad and Rosalind Gill argue that imperatives directed at women to “love your body” and “believe in yourself” imply that psychological blocks rather than entrenched social injustices hold women back. Interrogating the prominence of confidence in contemporary discourse about body image, workplace, relationships, motherhood, and international development, Orgad and Gill draw on Foucault’s notion of technologies of self to demonstrate how “confidence culture” demands of women near-constant introspection and vigilance in the service of self-improvement. They argue that while confidence messaging may feel good, it does not address structural and systemic oppression. Rather, confidence culture suggests that women—along with people of color, the disabled, and other marginalized groups—are responsible for their own conditions. Rejecting confidence culture’s remaking of feminism along individualistic and neoliberal lines, Orgad and Gill explore alternative articulations of feminism that go beyond the confidence imperative. Louisa Hann recently attained a PhD in English and American studies from the University of Manchester, specialising in the political economy of HIV/AIDS theatres. She has published work on the memorialisation of HIV/AIDS on the contemporary stage and the use of documentary theatre as a neoliberal harm reduction tool. She is currently working on a monograph based on her doctoral thesis. You can get in touch with her at louisahann92@gmail.com. Learn more about your ad choices. Visit megaphone.fm/adchoices

A memoir-in-essays from disability advocate and creator of the Instagram account @sitting_pretty Rebekah Taussig, processing a lifetime of memories to paint a beautiful, nuanced portrait of a body that looks and moves differently than most. Growing up as a paralyzed girl during the 90s and early 2000s, Taussig only saw disability depicted as something monstrous (The Hunchback of Notre Dame), inspirational (Helen Keller), or angelic (Forrest Gump). None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling. Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty: The View from My Ordinary Resilient Disabled Body (HarperOne, 2020) challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story. Dr. Christina Gessler’s background is in American women’s history, and literature. She specializes in the diaries written by rural women in the 19th century. In seeking the extraordinary in the ordinary, Gessler writes the histories of largely unknown women, poems about small relatable moments, and takes many, many photos in nature.   Learn more about your ad choices. Visit megaphone.fm/adchoices

People with dementia are uniquely qualified to discuss the challenges of their condition and the features of effective support, but their voices are all too often drowned out in research and debates about policy. According to People with Dementia at the Heart of Research: Co-Producing Research through The Dementia Enquirers Model (Jessica Kingsley Publishers, 2024) by Rachael Litherland & Philly Hare, it's time for that to change. Dementia Enquirers is an ambitious and novel programme of work which has tested out what it means for people with dementia to lead research and has developed a new 'driving seat' approach to co-research. This ground-breaking book features 26 research projects led by groups of people with dementia, supported by group facilitators and academics, to make their voices heard. Topics include giving up driving, GP dementia reviews, living alone with dementia, and using AI platforms such as smart speakers. The book also describes how people with dementia shaped the entire programme, and addressed head-on issues such as ethics approval processes and complex research language. The book is a key read for anyone involved in dementia support, this research brings the voices of people with dementia to the fore to explore their experiences of researching the condition. This interview was conducted by Dr. Miranda Melcher whose new book focuses on post-conflict military integration, understanding treaty negotiation and implementation in civil war contexts, with qualitative analysis of the Angolan and Mozambican civil wars. Learn more about your ad choices. Visit megaphone.fm/adchoices

Mimi Khúc is a PhD, writer, scholar, and teacher of things unwell. She is currently the Co-Editor of The Asian American Literary Review and an adjunct lecturer in Disability Studies at Georgetown University. Her work includes Open in Emergency, a hybrid book-arts project decolonizing Asian American mental health; the Asian American Tarot, a reimagined deck of tarot cards; and the Open in Emergency Initiative, an ongoing national project developing mental health arts programming with universities and community spaces.  Her new creative-critical, genre-bending book on mental health and a pedagogy of unwellness, dear elia: Letters from the Asian American Abyss (Duke University Press, 2024), is a journey into the depths of Asian American unwellness at the intersections of ableism, model minoritization, and the university, and an exploration of new approaches to building collective care. Julia H. Lee is professor of Asian American Studies at the University of California, Irvine. She is the author of three books: Interracial Encounters: Reciprocal Representations in African and Asian American Literatures, 1896-1937 (New York University Press, 2011), Understanding Maxine Hong Kingston (University of South Carolina Press, 2018), and The Racial Railroad (New York University Press, 2022). With Professor Josephine Lee, she is co-editor of Asian American Literature in Transition, 1850-1930 (Cambridge University Press, 2021), a Choice Outstanding Academic Title for 2022. You can find her on Instagram @julia.x.lee. Learn more about your ad choices. Visit megaphone.fm/adchoices

Johanna Dobrich, author of Working with Survivor Siblings in Psychoanalysis: Ability and Disability in Clinical Process (Routledge, 2021), is the recipient of the 2023 Sandor Ferenczi Award. The award is given for the best published work in the realm of psychoanalysis related to trauma and dissociation in adults and/or children. Survivor Siblings in Psychoanalysis: (Ability and Disability in Clinical Process is the first book to address the topic of relational trauma within the families of a child with severe disabilities. Working with Survivor Siblings in Psychoanalysis: Ability and Disability in Clinical Process explores a previously neglected area in the field of psychoanalysis, addressing undertheorized concepts on siblings, disabilities, and psychic survivorship, and broadening our conceptualization of the enduring effects of lateral relations on human development. What happens to a person’s sense of self both personally and professionally when they grow up alongside a severely disabled sibling? Through a series of qualitative interviews held between the author and a sample of psychoanalysts, this book examines both the unconscious experience and the interpersonal field of survivor siblings. Through a trauma-informed contemporary psychoanalytic lens, Dobrich combines data analysis, theory-building, memoir, and clinical storytelling to explore and explicate the impact of lateral survivorship on the clinical moment, making room for a contemporary and nuanced appreciation of siblings in psychoanalysis. Working with Survivor Siblings in Psychoanalysis: Ability and Disability in Clinical Process will be of immense interest and value to psychoanalysts and other mental health professionals, and for all therapists who work with and treat patients that are themselves survivor siblings. Uniquely integrating both academic and memoir writing, this book will also engage those building theory around the implications of the analyst’s subjectivity on clinical processes. Johanna Dobrich is a Licensed Clinical Social Worker and Psychoanalyst with a private practice in New York City that specializes in the treatment of dissociative disorders, among other conditions. Johanna has a master’s degree in political science from Rutgers University and an MSW from New York University. Johanna teaches courses in relational psychoanalysis and its intersection with traumatology and supervises post-graduate psychoanalytic candidates-in-training at the Institute for Contemporary Psychotherapy and at the Psychoanalytic Psychotherapy Study Center. Johanna enjoys writing, supervising, engaging and coming together with those who share an interest in understanding the complexities, joys and pains of human connection and expression. Judith Tanen, MA LP CANDIDATE. Email: judithtanen@gmail.com Learn more about your ad choices. Visit megaphone.fm/adchoices

How do we approach a "deeply forgetful" loved one so as to notice and affirm their continuing self-identity? For three decades, Stephen G. Post has worked around the world encouraging caregivers to become more aware of--and find renewed hope in--surprising expressions of selfhood despite the challenges of cognitive decline. In Dignity for Deeply Forgetful People: How Caregivers Can Meet the Challenges of Alzheimer's Disease (Johns Hopkins University Press, 2022), Post offers new perspectives on the worth and dignity of people with Alzheimer's and related disorders despite the negative influence of "hypercognitive" values that place an ethically unacceptable emphasis on human dignity as based on linear rationality and strength of memory. This bias, Post argues, is responsible for the abusive exclusion of this population from our shared humanity. With vignettes and narratives, he argues for a deeper dignity grounded in consciousness, emotional presence, creativity, interdependence, music, and a self that is not "gone" but "differently abled." Post covers key practical topics such as: - understanding the experience of dementia - noticing subtle expressions of continuing selfhood, including "paradoxical lucidity" - perspectives on ethical quandaries from diagnosis to terminal care and everything in between, as gleaned from the voices of caregivers - how to communicate optimally and use language effectively - the value of art, poetry, symbols, personalized music, and nature in revealing self-identity - the value of trained "dementia companion" dogs At a time when medical advances to cure these conditions are still out of reach and the most recent drugs have shown limited effectiveness, Post argues that focusing discussion and resources on the relational dignity of these individuals and the respite needs of their caregivers is vital. Grounding ethics on the equal worth of all conscious human beings, he provides a cautionary perspective on preemptive assisted suicide based on cases that he has witnessed. He affirms vulnerability and interdependence as the core of the human condition and celebrates caregivers as advocates seeking social and economic justice in an American system where they and their loved ones receive only leftover scraps. Racially inclusive and grounded in diversity, Dignity for Deeply Forgetful People also includes a workshop appendix focused on communication and connection, "A Caregiver Resilience Program," by Rev. Dr. Jade C. Angelica. Stephen G. Post is the director of the Center for Medical Humanities, Compassionate Care, and Bioethics at the Renaissance School of Medicine at Stony Brook University. Caleb Zakarin is the Assistant Editor of the New Books Network. Learn more about your ad choices. Visit megaphone.fm/adchoices

American Christianity tends to view disabled persons as problems to be solved rather than people with experiences and gifts that enrich the church. Churches have generated policies, programs, and curricula geared toward "including" disabled people while still maintaining "able-bodied" theologies, ministries, care, and leadership. Ableism―not a lack of ramps, finances, or accessible worship―is the biggest obstacle for disabled ministry in America.  In From Inclusion to Justice: Disability, Ministry, and Congregational Leadership (Baylor UP, 2022), Erin Raffety argues that what our churches need is not more programs for disabled people but rather the pastoral tools to repent of able-bodied theologies and practices, listen to people with disabilities, lament ableism and injustice, and be transformed by God’s ministry through disabled leadership. Without a paradigm shift from ministries of inclusion to ministries of justice, our practical theology falls short. Drawing on ethnographic research with congregations and families, pastoral experience with disabled people, teaching in theological education, and parenting a disabled child, Raffety, an able-bodied Christian writing to able-bodied churches, confesses her struggle to repent from ableism in hopes of convincing others to do the same. At the same time, Raffety draws on her interactions with disabled Christian leaders to testify to what God is still doing in the pews and the pulpit, uplifting and amplifying the ministry and leadership of people with disabilities as a vision toward justice in the kingdom of God. Bingwan Tian is a Ph.D. student at the University at Buffalo interested in the study of special education and citizenship education. Learn more about your ad choices. Visit megaphone.fm/adchoices

The right to decision making is important for all people. It allows us to choose how to we our lives – both on a daily basis, and also in terms of how we wish to express ourselves, to live in accordance with our values and desires. However, the right to make decisions has been, and continues to be, routinely denied to people with disabilities – sometimes by family members and carers, or by institutions and courts. In this conversation, Anna Arstein-Kerslake discusses situations where people with cognitive impairments are unjustifiably denied the right to make their own choices. She shares her own experiences to demonstrate how this unjustifiably and unnecessarily discriminates against people with disabilities. But it need not be this way; both in Restoring Voice to the People with Cognitive Disabilities (Cambridge University Press, 2017), and in this episode, Anna takes us through examples of how bringing greater equality for people with cognitive impairments can be of benefit to the entire community. Her book provides a roadmap for the future to bring greater equality for all. Jane Richards is a doctoral candidate in Human Rights Law at the University of Hong Kong. Her research interests include disability, equality and criminal law. You can find her on twitter @JaneRichardsHK where she avidly follows the Hong Kong protests. Learn more about your ad choices. Visit megaphone.fm/adchoices

Released in 1946, The Best Years of Our Lives became an immediate success. Life magazine called it “the first big, good movie of the post-war era” to tackle the “veterans problem.” Today we call that problem PTSD, but in the initial aftermath of World War II, the modern language of war trauma did not exist. The film earned the producer Samuel Goldwyn his only Best Picture Academy Award. It offered the injured director, William Wyler, a triumphant postwar return to Hollywood. And for Harold Russell, a double amputee who costarred with Fredric March and Dana Andrews, the film provided a surprising second act. Award-winning author Alison Macor illuminates the film’s journey from script to screen and describes how this authentic motion picture moved audiences worldwide. General Omar Bradley believed The Best Years of Our Lives would help “the American people to build an even better democracy” following the war, and the movie inspired broad reflection on reintegrating the walking wounded. But the film’s nuanced critique of American ideals also made it a target, and the picture and its creators were swept up in the anti-Communist witch hunts of the late 1940s. In Making The Best Years of Our Lives: The Hollywood Classic That Inspired a Nation (U Texas Press, 2022), Macor chronicles the making and meaning of a film that changed America. Joel Tscherne is an Adjunct History Professor at Southern New Hampshire University. His Twitter handle is @JoelTscherne. Learn more about your ad choices. Visit megaphone.fm/adchoices

In Disability Pride: Dispatches from a Post-ADA World (Beacon, 2022), disabled journalist Ben Mattlin weaves together interviews and reportage to introduce a cavalcade of individuals, ideas, and events in engaging, fast-paced prose. He traces the generation that came of age after the ADA reshaped America, and how it is influencing the future. He documents how autistic self-advocacy and the neurodiversity movement upended views of those whose brains work differently. He lifts the veil on a thriving disability culture--from social media to high fashion, Hollywood to Broadway--showing how the politics of beauty for those with marginalized body types and facial features is sparking widespread change. He also explores the movement's shortcomings, particularly the erasure of nonwhite and LGBTQIA+ people that helped give rise to Disability Justice. He delves into systemic ableism in health care, the right-to-die movement, institutionalization, and the scourge of subminimum-wage labor that some call legalized slavery. And he finds glimmers of hope in how disabled people never give up their fight for parity and fair play. Beautifully written, without anger or pity, Disability Pride is a revealing account of an often misunderstood movement and identity, an inclusive reexamination of society's treatment of those it deems different. Learn more about your ad choices. Visit megaphone.fm/adchoices

The Resistance, Persistence and Resilience of Black Families Raising Children with Autism (Peter Lang, 2020) presents nuanced perspectives in the form of counternarratives of what Black families who have children with autism experience at the intersection of race, class, disability and gender. It intentionally centers the expertise of Black parents, challenging what is considered knowledge, whose knowledge counts, and how knowledge can be co-generated for learning, sharing and advocacy. The book speaks directly to Black parents on the autism journey.  To right systemic racial inequities and to cultivate culturally responsive practices, it is critical for practitioners and professionals to understand what is known about Black families' experiences with autism in general and how these experiences differ because of our intersecting identities. University faculty and students in programs involving medicine, speech and language pathology, occupational therapy, nursing, political science, school psychology, teaching, special education and leadership can benefit from the wisdom offered by these parents. This text is perfect for several courses, including those in departments of anthropology, women and gender studies, health sciences, psychology, special education, teacher education and administrative leadership. In addition, given the uniquely Black perspective presented in the text, this text is relevant to other fields, including ethnic studies, cultural studies, urban studies and African American studies. It is relevant to individuals who wish to better understand how issues of race and intra-racial differences shape lived experiences with disability in American society. Learn more about your ad choices. Visit megaphone.fm/adchoices

In her new book, Unlearning Eugenics: Sexuality, Reproduction, and Disability in Post-Nazi Europe (University of Wisconsin Press, 2018), Dagmar Herzog examines the relationship between reproductive rights and disability rights in contemporary European history. In a study that appeared in the George L. Mosse Series in Modern European Cultural and Intellectual History, Herzog uncovers much that is unexpected. She analyzes Protestant and Catholic theologians that were pro-choice in the 1960s and 1970s; the ways in which some advocates of liberalized abortion access displayed hostility to the disabled; the current backlash against women’s reproductive rights in Europe fueled in part by activists presenting themselves as anti-eugenics and pro-disability; and the impressive advances in disability rights inspired by submerged, contrapuntal strands within psychoanalysis and Christianity alike. An outstanding contribution to the histories of religion, sexuality, and disability rights, this book is essential reading for anyone interested in post-1945 Europe. Michael E. O’Sullivan is Associate Professor of History at Marist College where he teaches courses about Modern Europe. He published Disruptive Power: Catholic Women, Miracles, and Politics in Modern Germany, 1918-1965 with University of Toronto Press in 2018. Learn more about your ad choices. Visit megaphone.fm/adchoices

Fitter, Happier: The Eugenic Strain in Twentieth-Century Cancer Rhetoric (U Alabama Press, 2024) is a thought-provoking exploration of the relationship between cancer rhetoric, American ideals, and eugenic influences in the twentieth century. This groundbreaking work delves into the paradoxical interplay between acknowledging the genuine threat of cancer and the ingrained American ethos of confidence and control. Agnew's meticulous research traces the topic's historical context, unveiling how cancer discourses evolved from a hushed personal concern to a public issue thanks to the rise of cancer research centers and advocacy organizations. However, she unearths a troubling dimension to these discussions--subtle yet persistent eugenic ideologies that taint cancer arguments and advocacy groups. By dissecting prevailing cancer narratives, Agnew brings into focus how ideals rooted in eliminating imperfections and embracing progress converge with concerns for safeguarding societal fitness. Fitter, Happier scrutinizes the military origins and metaphors that permeate government policies and medical research, the transformation of cancer's association with melancholy into a rallying cry for a positive outlook, and the nuanced implications of prevention-focused dialogues. Reflecting on the varied experiences of actual cancer patients, Agnew resists the neat assimilation of these stories into a eugenic framework. Agnew's insights prompt readers to contemplate the societal meanings of disease and disability as well as how language constructs our shared reality. Learn more about your ad choices. Visit megaphone.fm/adchoices

Creating a Person-Centered Library: Best Practices for Supporting High-Needs Patrons (Bloomsbury, 2023) provides a comprehensive overview of various services, programs, and collaborations to help libraries serve high-needs patrons as well as strategies for supporting staff working with these individuals. While public libraries are struggling to address growing numbers of high-needs patrons experiencing homelessness, food insecurity, mental health problems, substance abuse, and poverty-related needs, this book will help librarians build or contribute to library services that will best address patrons' psychosocial needs. Beth Wahler and Sarah C. Johnson, experienced in both library and social work, begin by providing an overview of patrons' psychosocial needs, structural and societal reasons for the shift in these needs, and how these changes impact libraries and library staff. Chapters focus on best practices for libraries providing person-centered services and share lessons learned, including information about special considerations for certain patron populations that might be served by individual libraries. The book concludes with information about how library organizations can support public library staff. Librarians and library students who are concerned about both patrons and library staff will find the practical advice in this book invaluable. NBN can get 20% off Creating a Person-Centered Library by using the discount code NBN20 on the Blooomsbury.com US website. Beth Wahler, PhD, MSW is founder and principal consultant at Beth Wahler Consulting, LLC and affiliated research faculty and previous director of the School of Social Work at the University of North Carolina- Charlotte. Dr. Wahler is a social work consultant, researcher, and experienced administrator whose primary focus is trauma-informed librarianship, library strategies for addressing patrons’ or community psychosocial needs, supporting library staff with serving high-needs patrons and reducing work-related stress/trauma, and various kinds of collaborations, services, and programs to meet patron, staff, or community needs. She has also published and presented internationally on library patron and staff needs, trauma-informed librarianship, and library/social work collaborations.  Sarah C. Johnson, MLIS, LMSW, is an Adjunct Lecturer at the School of Information Sciences at the University of Illinois at Urbana-Champaign where she teaches a graduate course on Library Social Work. As a researcher and educator, Sarah is the creator and host of the Library Social Work podcast which aims to inform the public about interdisciplinary collaborations between social service providers and public libraries. Dr. Michael LaMagna is the Information Literacy Program & Library Services Coordinator and Professor of Library Services at Delaware County Community College. Learn more about your ad choices. Visit megaphone.fm/adchoices

Stigma about mental illness makes life doubly hard for people suffering from mental or emotional distress. In addition to dealing with their conditions, they must also contend with social shame and secrecy. But by examining how mental illness is conceived of and treated in other cultures, we can improve our own perspectives in the Western world. In his new book, Nobody’s Normal: How Culture Created the Stigma of Mental Illness (Norton, 2021), anthropologist Roy Richard Grinker offers a critique of our current mental health system based on cross-cultural observations as well as suggestions for improving upon it. In our interview, we talk about the impact of stigma on mental health treatment and his ideas about where it comes from. He also explains why he feels optimistic about recent trends in the way individuals speak about their mental health challenges. Roy Richard Grinker is professor of anthropology and international affairs at George Washington University. His specialties include ethnicity, nationalism, and psychological anthropology, with topical expertise in autism, Korea, and sub-Saharan Africa. He is also the director of George Washington University’s Institute for Ethnographic Research and editor-in-chief of the journal Anthropological Quarterly. He is author of several books, including Unstrange Minds: Remapping the World of Autism. He lives in Washington, DC. Eugenio Duarte, Ph.D. is a psychologist and psychoanalyst practicing in Miami. He treats individuals and couples, with specialties in gender and sexuality, eating and body image problems, and relationship issues. He is a graduate and faculty of William Alanson White Institute in Psychiatry, Psychoanalysis, and Psychology in New York City and former chair of their LGBTQ Study Group; and faculty at Florida Psychoanalytic Institute in Miami. He is also a contributing author to the book Introduction to Contemporary Psychoanalysis: Defining Terms and Building Bridges (2018, Routledge) and has published on issues of gender, sexuality, and sexual abuse. Learn more about your ad choices. Visit megaphone.fm/adchoices

An autistic mom of three autistic kids, Dr. Jen Malia is the author of the children’s chapter book series The Infinity Rainbow Club and the picture book Too Sticky! Sensory Issues with Autism. Jen is Professor of English and Creative Writing Coordinator at Norfolk State University. She has a Ph.D. in English from the University of Southern California. We talk about her books, and her advocacy to discuss neurodivergence in children's literature. Mel Rosenberg is a professor emeritus of microbiology (Tel Aviv University, emeritus) who fell in love with children's books as a small child and now writes his own. He is co-founder of Ourboox, a web platform with some 240,000 ebooks that allows anyone to create and share flipbooks comprising text, pictures and videos. Learn more about your ad choices. Visit megaphone.fm/adchoices

Twentieth-century neuroscience fixed the brain as the basis of consciousness, the self, identity, individuality, even life itself, obscuring the fundamental relationships between bodies and the worlds that they inhabit. In Unraveling: Remaking Personhood in a Neurodiverse Age (University of Minnesota Press, 2020), Matthew J. Wolf-Meyer draws on narratives of family and individual experiences with neurological disorders, paired with texts by neuroscientists and psychiatrists, to decenter the brain and expose the ableist biases in the dominant thinking about personhood. Unraveling articulates a novel cybernetic theory of subjectivity in which the nervous system is connected to the world it inhabits rather than being walled off inside the body, moving beyond neuroscientific, symbolic, and materialist approaches to the self to focus instead on such concepts as animation, modularity, and facilitation. It does so through close readings of memoirs by individuals who lost their hearing or developed trauma-induced aphasia, as well as family members of people diagnosed as autistic--texts that rethink modes of subjectivity through experiences with communication, caregiving, and the demands of everyday life. Arguing for a radical antinormative bioethics, Unraveling shifts the discourse on neurological disorders from such value-laden concepts as "quality of life" to develop an inclusive model of personhood that honors disability experiences and reconceptualizes the category of the human in all of its social, technological, and environmental contexts. Claire Clark is a medical educator, historian of medicine, and associate professor in the University of Kentucky’s College of Medicine. She teaches and writes about health behavior in historical context. Learn more about your ad choices. Visit megaphone.fm/adchoices

This book cuts new ground, challenging the assumption of law as an objective concept. It draws out the way that binary frameworks situate and create the notion of the individual in law, delininating responsibilities and rights between concepts such as the state / individual, public / private, care / disability and capacity / incapacity. In The Spaces of Mental Capacity Law: Moving Beyond Binaries (Routledge, 2022) Dr. Beverley Clough draws into question spatial dynamics of law and disability. While she does so through the lens of analysis of the Mental Capacity Act 2005, this liminal work will be cause for broader application in all areas of law which function on "common-sense" understandings of autonomy and law. It will be useful for lawyers, policy makers, practitioners, and any person who wishes to understand the law and the way that it constructs subjectivity.  Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK Learn more about your ad choices. Visit megaphone.fm/adchoices

Mental Capacity in Relationship: Decision-Making, Dialogue, and Autonomy (Cambridge University Press, 2017), challenges the current legal landscape of mental capacity law and human rights legislation, arguing that assessments of mental capacity should take account the role of relationships in the decision-making capacity of individuals with impairments and mental disorders. Dr. Camillia Kong's is an interdisciplinary exploration, combining philosophy, legal analysis on the law of England and Wales, the European Convention of Human Rights, and the UN Convention on the Rights of Persons with Disabilities. Kong defends a concept of mental capacity, but one which at times provides scope for justifiable interventions into disabling relationships. The implications of Kong's hypothesis are groundbreaking; she provides a framework which articulates the practice of capacity assessments to help to better situate, interpret, and understand the decisions and actions of people with impairments.  This monograph is the basis of another publication (co-written with Alex Ruck Keene) Overcoming Challenges in the Mental Capacity Act 2005: Practical Guidance for Working with Complex Issues (Jessica Kingsley, 2018). You can listen to that interview with Dr. Kong and Ruck-Keene here. Dr Camillia Kong is a Senior Research Fellow at the Institute for Crime & Justice, Policy Research at Birkbeck, University of London. She is the Principal Investigator of Judging Values and Participation in Mental Capacity Law. Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK Learn more about your ad choices. Visit megaphone.fm/adchoices

People with disabilities have always struggled to make ends meet. Finding a job you can actually do, a housing situation you can afford that meets your needs, and simply going about the various daily tasks most of us take for granted all compound to make life under capitalism especially challenging. This makes the many disabled people who not only rise to meet their life-circumstances but go beyond them particularly inspiring. One such figure in this category would be E.T. Kingsley, a socialist activist at the turn of the 20th century. After an injury working on railway lines in Montana left him a double-amputee, Kingsley traveled west, first to California and then eventually to British Columbia where he would work as a political speaker, candidate for office, editor and writer in the radical left. His life is the focus of the book under discussion today, Able to Lead: Disablement, Radicalism, and the Political Life of E.T. Kingsley (U British Columbia Press, 2021) coauthored by Ravi Malhotra and Benjamin Isitt. Pooling their combined academic backgrounds and intellectual resources, the authors are able to tease out a number of quiet yet profound elements of Kingsley’s life and times, from the legal status of injuries and workers compensation to discussions around freedom of speech and the changing nature of the security-state. In all this contextual discussion, the authors still never allow Kingsley to disappear as a dynamic and passionate activist, one who managed to stand as a unique example of what it means to tirelessly fight for a better world. Drawing from a number of fields, the book will be of interest to a number of people, from labor historians and disability activists to legal scholars and political theorists, showing us that even as we are flung into circumstances not of our choosing, we can still rise above our circumstances and change the world. Ravi Malhotra is a professor in the Faculty of Law at the University of Ottawa. Benjamin Isitt is a historian and legal scholar based in Victoria, British Columbia. Learn more about your ad choices. Visit megaphone.fm/adchoices

This episode of How To Be Wrong is about humility, beauty and the ways in which our society dictates the nature and boundaries of what is deemed beautiful. We talk with philosophy professor and Pulitzer Prize finalist Chloé Cooper Jones about desirability and the ways in which difference is constrained through our social interactions, as well as her own experience as a disabled person. We also discuss some of the ideas in her superb book, Easy Beauty: A Memoir, published by Simon & Schuster in 2022. John Kaag is Professor and Chair of Philosophy at UMass Lowell and External Professor at the Santa Fe Institute. John W. Traphagan, Ph.D. is Professor and Mitsubishi Heavy Industries Fellow in the Department of Religious Studies at the University of Texas at Austin, where he is also a professor in the Program in Human Dimensions of Organizations. Learn more about your ad choices. Visit megaphone.fm/adchoices

The concept of madness as a challenge to communities lies at the core of legal sources. Aleksandra Nicole Pfau's book Medieval Communities and the Mad: Narratives of Crime and Mental Illness in Late Medieval France (Amsterdam UP, 2020) considers how communal networks, ranging from the locale to the realm, responded to people who were considered mad. The madness of individuals played a role in engaging communities with legal mechanisms and proto-national identity constructs, as petitioners sought the king's mercy as an alternative to local justice.  The resulting narratives about the mentally ill in late medieval France constructed madness as an inability to live according to communal rules. Although such texts defined madness through acts that threatened social bonds, those ties were reaffirmed through the medium of the remission letter. The composers of the letters presented madness as a communal concern, situating the mad within the household, where care could be provided. Those considered mad were usually not expelled but integrated, often through pilgrimage, surveillance, or chains, into their kin and communal relationships. Learn more about your ad choices. Visit megaphone.fm/adchoices

In 1896 the British physician William Pringle Morgan published an account of “Percy,” a “bright and intelligent boy, quick at games, and in no way inferior to others of his age.” Yet, in spite of his intelligence, Percy had great difficulty learning to read. Percy was one of the first children to be described as having word-blindness, better known today as dyslexia.  In Dyslexia: A History (McGill-Queen's UP, 2022), Philip Kirby and Margaret Snowling chart a journey that begins with Victorian medicine and continues to dyslexia’s current status as the most globally recognized specific learning difficulty. In an engaging narrative style, Kirby and Snowling tell the story of dyslexia, examining its origins and revealing the many scientists, teachers, and campaigners who put it on the map. Through this history they explain current debates over the diagnosis of dyslexia and its impact on learning.For those who have lived experience of dyslexia, professionals who have supported them, and scholars of social history, education, psychology, and childhood studies, Dyslexia reflects on the place of literacy in society – whom it has benefited, and whom it has left behind. Philip Kirby is lecturer in social science, King’s College London. Margaret J. Snowling is professor of psychology, University of Oxford, and president of St John’s College. Shu Wan is currently matriculated as a doctoral student in history at the University at Buffalo. As a digital and disability historian, he serves in the editorial team of Digital Humanities Quarterly and Nursing Clio. On Twitter: @slissw. Learn more about your ad choices. Visit megaphone.fm/adchoices

In the early 1960s, Massachusetts writer and homemaker Clara Park and her husband took their 3-year-old daughter, Jessy, to a specialist after noticing that she avoided connection with others. Following the conventional wisdom of the time, the psychiatrist diagnosed Jessy with autism and blamed Clara for Jessy's isolation. Experts claimed Clara was the prototypical "refrigerator mother," a cold, intellectual parent who starved her children of the natural affection they needed to develop properly. Refusing to accept this, Clara decided to document her daughter's behaviors and the family's engagement with her. In 1967, she published her groundbreaking memoir challenging the refrigerator mother theory and carefully documenting Jessy's development. Clara's insights and advocacy encouraged other parents to seek education and support for their autistic children. Meanwhile, Jessy would work hard to expand her mother's world, and ours. Drawing on previously unexamined archival sources and firsthand interviews, science historian Marga Vicedo illuminates the story of how Clara Park and other parents fought against medical and popular attitudes toward autism while presenting a rich account of major scientific developments in the history of autism in the US. Intelligent Love: The Story of Clara Park, Her Autistic Daughter, and the Myth of the Refrigerator Mother (Beacon Press, 2021) is a fierce defense of a mother's right to love intelligently, the value of parents' firsthand knowledge about their children, and an individual's right to be valued by society. Galina Limorenko is a doctoral candidate in Neuroscience with a focus on biochemistry and molecular biology of neurodegenerative diseases at EPFL in Switzerland. Learn more about your ad choices. Visit megaphone.fm/adchoices

Madness in Buenos Aires: Patients, Psychiatrists, and the Argentine State, 1880-1983 (Ohio UP, 2008) examines the interactions between psychiatrists, patients and their families, and the national state in modern Argentina. This book offers a fresh interpretation of the Argentine state's relationship to modernity and social change during the twentieth century, while also examining the often contentious place of psychiatry in modern Argentina. Drawing on a number of previously untapped archival sources, author Jonathan Ablard uses the experience of psychiatric patients as a case study of how the Argentine state developed and functioned over the last century and of how Argentines interacted with it. Ablard argues that the capacity of the state to provide social services and professional opportunities and to control the populace was often constrained to an extent not previously recognized in scholarly literature. These limitations, including a shortage of hospitals, insufficient budgets, and political and economic instability, shaped the experiences of patients, their families, and doctors and also influenced medical and lay ideas about the nature and significance of mental illness. Furthermore, these experiences, and the institutional framework in which they were imbedded, had a profound impact on how Argentine psychiatrists discussed not only mental illness but also a host of related themes including immigration, poverty, and the role of the state in mitigating social problems. Learn more about your ad choices. Visit megaphone.fm/adchoices

From 1942 through 1972, American biomedical researchers deliberately infected people with hepatitis. Government-sponsored researchers were attempting to discover the basic features of the disease and the viruses causing it, and develop interventions that would quell recurring outbreaks. Drawing from extensive archival research and in-person interviews, Sydney Halpern traces the hepatitis program from its origins in World War II through its expansion during the initial Cold War years, to its demise in the early 1970s amid outcry over research abuse. The subjects in hepatitis studies were members of stigmatized groups--conscientious objectors, prison inmates, and developmentally disabled adults and children. Dangerous Medicine: The Story Behind Human Experiments with Hepatitis (Yale UP, 2021) reveals how researchers invoked military and scientific imperatives and the rhetoric of common good to win support for the experiments and access to potential recruits. Halpern examines consequences of participation for subjects' long-term health, and raises troubling questions about hazardous human experiments aimed at controlling today's epidemic diseases. Claire Clark is a medical educator, historian of medicine, and associate professor in the University of Kentucky’s College of Medicine. Learn more about your ad choices. Visit megaphone.fm/adchoices

Today I talked to Autumn Wilke of Grinnell College about her book (co-authored with Nancy J. Evans, Ellen M. Broido, and Kirsten R. Brown) Disability in Higher Education: A Social Justice Approach (Jossey-Bass, 2017). Disability in Higher Education examines how disability is conceptualized in higher education and ways in which students, faculty, and staff with disabilities are viewed and served on college campuses. Drawing on multiple theoretical frameworks, research, and experience creating inclusive campuses, this text offers a new framework for understanding disability using a social justice lens. Many institutions focus solely on legal access and accommodation, enabling a system of exclusion and oppression. However, using principles of universal design, social justice, and other inclusive practices, campus environments can be transformed into more inclusive and equitable settings for all constituents. The authors consider the experiences of students, faculty, and staff with disabilities and offer strategies for addressing ableism within a variety of settings, including classrooms, residence halls, admissions and orientation, student organizations, career development, and counseling. They also expand traditional student affairs understandings of disability issues by including chapters on technology, law, theory, and disability services. Using social justice principles, the discussion spans the entire college experience of individuals with disabilities, and avoids any single-issue focus such as physical accessibility or classroom accommodations. The book will help readers: Consider issues in addition to access and accommodation Use principles of universal design to benefit students and employees in academic, cocurricular, and employment settings Understand how disability interacts with multiple aspects of identity and experience. Despite their best intentions, college personnel frequently approach disability from the singular perspective of access to the exclusion of other important issues. This book provides strategies for addressing ableism in the assumptions, policies and practices, organizational structures, attitudes, and physical structures of higher education. Marshall Poe is the founder and editor of the New Books Network. He can be reached at marshallpoe@newbooksnetwork.com. Learn more about your ad choices. Visit megaphone.fm/adchoices

By the early 1900s, the poor farm had become a ubiquitous part of America's social welfare system. Megan Birk's history of this foundational but forgotten institution focuses on the connection between agriculture, provisions for the disadvantaged, and the daily realities of life at poor farms. Conceived as an inexpensive way to provide care for the indigent, poor farms in fact attracted wards that ranged from abused wives and the elderly to orphans, the disabled, and disaster victims. Most people arrived unable rather than unwilling to work, some because of physical problems, others due to a lack of skills or because a changing labor market had left them behind. Birk blends the personal stories of participants with institutional histories to reveal a loose-knit system that provided a measure of care to everyone without an overarching philosophy of reform or rehabilitation. In-depth and innovative, The Fundamental Institution: Poverty, Social Welfare, and Agriculture in American Poor Farms (U Illinois Press, 2022) offers an overdue portrait of rural social welfare in the United States. Stephen Pimpare is director of the Public Service & Nonprofit Leadership program and Faculty Fellow at the Carsey School of Public Policy at the University of New Hampshire. Learn more about your ad choices. Visit megaphone.fm/adchoices

Through a thoughtful investigation, Disability in Ptolemaic Egypt and the Hellenistic World: Plato’s Stepchildren (Routledge, 2024) reveals often-overlooked narratives of disability within Ptolemaic Egypt and the larger Hellenistic world (332 BCE to 30 BCE). Chapters explore evidence of physical and intellectual disability, ranging from named individuals; representations of people and mythological figures with dwarfism, blindness and vision impairments; cerebral palsy; mobility impairments; spinal disability; and medicine, healing, and prosthetics. Morris examines the historiographical ways in which disability has been approached, and how ancient disability histories are (mis)represented in various contemporary spaces. It uses terminology informed by the disability community and offers guidance for disability inclusivity in curatorial and pedagogical museum and university contexts, as well as prioritizing disability as an essential area of research in ancient world studies and assisting readers with the identification of ancient disability artefacts. The first-book length treatment of the subject, Disability in Ptolemaic Egypt and the Hellenistic World provides a much-needed resource for students and scholars of ancient Egypt, Egyptology, Classics, Classical Studies, and disability in the ancient world. It is also suitable for researchers in Disability Studies, practitioners in broader Ancient World Studies, and museum and heritage professionals. It is accessible to disabled people curious about their own history, as well as nondisabled people interested in disability history and those interested in a more accurate view of ancient Egyptian history. Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of Queer Voices I talk to Dr. Terry Chase about her book Spoke by Spoke: How a Broken Back and a Broken Bike Led to a WholeHearted Life, released in November 2021 by Push On Press. Spoke by Spoke takes the reader on one woman’s journey to reinvent herself following a hit and run accident which left her back broken, and her bike crumpled by a speeding motor vehicle. The stories Terry shares will take you from the depths of despair and edges of darkness to bringing you up with her amazing spirit of perseverance and resilience. This book is not a how-to manual for facing the challenges of life but rather an inspirational guide for living a whole-hearted life no matter what hand someone is dealt. Terry Chase, ND, MA, RN, CEIP-Ed, is dedicated to health, growth & learning. She has a deep and multi-faceted background of advanced education and hands-on experience in healthcare, education, and professional development. A professional coach and speaker offering keynotes, experiential workshops and break-out sessions in communication, team skill and education practices, as well as coaching programs to develop extraordinary leaders. To learn more visit www.DrTerryChase.com. Morris Ardoin is the author of Stone Motel – Memoirs of a Cajun Boy (2020, University Press of Mississippi), which has been optioned for TV/film development. He also writes about medicine and health care, immigration and asylum, and higher education. He lives in New York City. His blog, “Parenthetically Speaking,” which focuses on life as a writer, cook, and a bayou boy living in New York City, can be found at www.morrisardoin.com. Instagram: morrisardoin. Learn more about your ad choices. Visit megaphone.fm/adchoices

Peoples & Things host, Lee Vinsel, talks to Raquel Velho, Associate Professor of Science and Technology Studies at Rensselaer Polytechnic Institute, about her recent book, Hacking the Underground: Disability, Infrastructure, and London's Public Transport System (U Washington Press, 2023). Hacking the Underground provides a fascinating ethnographic investigation of how disabled people navigate a transportation system that is far from accessible.  Velho finds disabled passengers constantly hacking and finding workarounds, including lots of fix-y maintenance tasks, to get from one place to another. While these workarounds involve obvious creativity, they are also the products of an unequal system and the failure to enact a more-thoroughgoing and radically-transformative redesigning of public transportation systems in the name of accessibility. Vinsel and Velho also touch on a wide range of other topics, including issues of theory and method, and they talk about what Velho is up to next. Learn more about your ad choices. Visit megaphone.fm/adchoices

Emily Pacheco speaks with writer and researcher Jessica Kirkness about her memoir, The House with All the Lights on: Three Generations, One Roof, a Language of Light (Allen & Unwin, 2023). Jessica has published in Meanjin and The Conversation, as well as other outlets. Her PhD focused on the ‘hearing line’: the invisible boundary between Deaf and hearing cultures. She is also a teacher of nonfiction writing at Macquarie University in Sydney, Australia. The House With All The Lights On explores linguistic and cultural dynamics within Deaf-hearing families. Jessica shares her experience having Deaf grandparents and navigating the cultural borderline between Deaf and hearing cultures. It is a wonderful memoir about family, the complexities of identity, and linguistic diversity. Learn more about your ad choices. Visit megaphone.fm/adchoices

Peoples & Things host, Lee Vinsel, talks with Meryl Alper, Associate Professor of Communication Studies at Northeastern University, about her recent book, Kids Across the Spectrums: Growing Up Autistic in the Digital Age (MIT Press, 2023). In addition to being a professor, Alper is also an educational researcher who has worked over the past 20 years to make inclusive and accessible learning products with media organizations such as Sesame Workshop, Nickelodeon, and PBS KIDS. Vinsel and Alper talk about disability studies, the nature of Alper’s empirical work, the arc of Alper’s career, including her future projects. Learn more about your ad choices. Visit megaphone.fm/adchoices

Neurodisability and the Criminal Justice System: Comparative and Therapeutic Responses (Edward Elgar Publishing, 2021) delves into an under-researched and little understood but extremely pertinent issue in law; the prevalence of neurodisability within criminal justice systems. Considering the challenges faced by both juveniles and adults with neuorodisabilities who come into contact with the criminal justice system, a host of interdisciplinary international scholars examine the issue from multiple perspectives; from that of lawyers, magistrates, and through the lens of therapeutic and legal analysis, this contribution offers suggestions for reform of both legislation and practice. The book makes the case that criminal justice systems lack the accommodations required both within the institution and the community to adequately support those with neurodisabilities who come into contact with the criminal justice system.  In this conversation, with one of the co-editors of the book, Anna Eriksson, we cover a broad range of ground - from the ways in which resources could be reallocated to better address issues of community safety, to how better with neurodisabilities may be better supported in a practical basis to bring more just, equitable and humane outcomes. This is an important book for criminal lawyers, policy makers, criminologists and members of the public who wish to understand and challenge the barriers that people with neurodisabilities face, not just as a result of the criminal justice system but on a day-to-day basis.    Gaye T. Lansdell is an Associate Professor in The Faculty of Law at Monash University.  Bernadette J Saunders is a Senior Lecturer in the Department of Medicine, Nursing and Health Sciences at Monash University.  Anna Eriksson is an Associate Professor in Criminology at Monash University.  Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK Learn more about your ad choices. Visit megaphone.fm/adchoices

Today I talked to Sarah and Larry Nannery about their new book What to Say Next: Successful Communication in Work, Life, and Love with Autism Spectrum Disorder (Tiller Press, 2021). What’s it like to live a life where there’s a time delay as you process what others are saying, what it might mean, and how you feel in response? Sarah Nannery knows that experience intimately, gaining in ability over the years to navigate everything from office politics to her personal life more adeptly given her ASD Brain. As a “neurotypical brain” person, her husband Larry Nannery adds his “two-cents” perspective here in terms of observing and helping Sarah and himself navigate their experiences together. Highlights of this conversation include: what internalization means to Sarah in coping with being “bottled up inside” more than perhaps most people, and how one makes a “conversational sandwich” as a way of handling small talk when it looms large as a challenge. Sarah Nannery is the director of development for Autism Initiatives at Drexel University. Larry Nannery is a technology consultant who focuses on organizational change and life-coaching. Dan Hill, PhD, is the author of nine books and leads Sensory Logic, Inc. (https://www.sensorylogic.com). His new book is Blah, Blah, Blah: A Snarky Guide to Office Lingo. To check out his related “Dan Hill’s EQ Spotlight” blog, visit https://emotionswizard.com. Learn more about your ad choices. Visit megaphone.fm/adchoices

What does an inclusive society look like? And what are the challenges and opportunities when the society in question, Timor-Leste, is one of the most resource-constrained in Southeast Asia? My guest today is interested in these questions of inclusion and participation, and argues that people with a disability are a key component of a truly inclusive society – and that employment can be a key policy lever for inclusion. With Timor-Leste recently ratifying the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD), now is the time, she says, for building an evidence base for employment as a foundational right that has transformational potential not only for people with disability but for the broader community. Dr Kim Bulkeley from the Faculty of Medicine and Health joins Dr Natali Pearson to share the work she is doing ion disability and work in Timor-Leste. Dr Kim Bulkeley is a Co-head of the WHO Collaborating Centre for strengthening rehabilitation capacity in health systems, senior lecturer in the Sydney School of Health Sciences and a stream leader in the Centre for Disability Research and Policy. Learn more about your ad choices. Visit megaphone.fm/adchoices

In our age of biomedicine, society often treats sickness and disability as problems in need of solution. Phenomena of embodied difference, however, have not always been seen in terms of lack and loss. Where Paralytics Walk and the Blind See: Stories of Sickness and Disability at the Juncture of Worlds (Princeton UP, 2022) explores the case of early modern Catholic Canada under French rule and shows it to be a period rich with alternative understandings of infirmity, disease, and death. Counternarratives to our contemporary assumptions, these early modern stories invite us to creatively imagine ways of living meaningfully with embodied difference today. At the heart of Dunn's account are a range of historical sources: Jesuit stories of illness in New France, an account of Canada's first hospital, the hagiographic vita of Catherine de Saint-Augustin, and tales of miraculous healings wrought by a dead Franciscan friar. In an early modern world that subscribed to a Christian view of salvation, both sickness and disability held significance for more than the body, opening opportunities for virtue, charity, and even redemption. Dunn demonstrates that when these reflections collide with modern thinking, the effect is a certain kind of freedom to reimagine what sickness and disability might mean to us. Reminding us that the meanings we make of embodied difference are historically conditioned, Where Paralytics Walk and the Blind See makes a forceful case for the role of history in broadening our imagination. Brenna Moore teaches in the Department of Theology at Fordham University and works in the areas of Catholic Intellectual History, particularly in modern Europe. Learn more about your ad choices. Visit megaphone.fm/adchoices

Black people and people with disabilities in the United States are distinctively disadvantaged in their encounters with the health care system. These groups also share harsh histories of medical experimentation, eugenic sterilizations, and health care discrimination. Yet the similarities in inequities experienced by Black people and disabled people and the harms endured by people who are both Black and disabled have been largely unexplored. To fill this gap, Embodied Injustice: Race, Disability, and Health (Cambridge UP, 2022) uses an interdisciplinary approach, weaving health research with social science, critical approaches, and personal stories to portray the devastating effects of health injustice in America. Author Mary Crossley takes stock of the sometimes-vexed relationship between racial justice and disability rights advocates and interrogates how higher disability prevalence among Black Americans reflects unjust social structures. By suggesting reforms to advance health equity for disabled people, Black people, and disabled Black people, this book lays a crucial foundation for intersectional, cross-movement advocacy to advance health justice in America. Rachel Pagones is an acupuncturist, educator, and author based in Cambridge, England. Learn more about your ad choices. Visit megaphone.fm/adchoices

Disability activism has fundamentally changed American society for the better--and along with it, the views and practices of many clinical professionals. After 1945, disability self-advocates and family advocates pushed for the inclusion of more positive, inclusive, and sociopolitical perspectives on disability in clinical research, training, and practice. In Disability Dialogues: Advocacy, Science, and Prestige in Postwar Clinical Professions (Johns Hopkins UP, 2022), Andrew J. Hogan highlights the contributions of disabled people--along with their family members and other allies--in changing clinical understandings and approaches to disability. Hogan examines the evolving medical, social, and political engagement of three postwar professions--clinical psychology, pediatrics, and genetic counseling--with disability and disability-related advocacy. Professionals in these fields historically resisted adopting a more inclusive and accepting perspective on people with disabilities primarily due to concerns about professional role, identity, and prestige. In response to the work of disability activists, however, these attitudes gradually began to change. Disability Dialogues provides an important contribution to historical, sociological, and bioethical accounts of disability and clinical professionalization. Moving beyond advocacy alone, Hogan makes the case for why present-day clinical professional fields need to better recruit and support disabled practitioners. Disabled clinicians are uniquely positioned to combine biomedical expertise with their lived experiences of disability and encourage greater tolerance for disabilities among their colleagues, students, and institutions. Learn more about your ad choices. Visit megaphone.fm/adchoices

Dr Daniel Gibbs is one of 50 million people worldwide with an Alzheimer's disease diagnosis. Unlike most patients with Alzheimer's, however, Dr Gibbs worked as a neurologist for twenty-five years, caring for patients with the very disease now affecting him. Also unusual is that Dr Gibbs had begun to suspect he had Alzheimer's several years before any official diagnosis could be made. Forewarned by genetic testing showing he carried alleles that increased the risk of developing the disease, he noticed symptoms of mild cognitive impairment long before any tests would have alerted him. In A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease (Cambridge UP, 2021), Dr Gibbs documents the effect his diagnosis has had on his life and explains his advocacy for improving early recognition of Alzheimer's. Weaving clinical knowledge from decades caring for dementia patients with his personal experience of the disease, this is an optimistic tale of one man's journey with early-stage Alzheimer's disease. Galina Limorenko is a doctoral candidate in Neuroscience with a focus on biochemistry and molecular biology of neurodegenerative diseases at EPFL in Switzerland. To discuss and propose the book for an interview you can reach her at galina.limorenko@epfl.ch. Learn more about your ad choices. Visit megaphone.fm/adchoices

Mental health care and its radical possibilities reimagined in the context of its global development under capitalism. The contemporary world is oversaturated with psychiatric programs, methods, and reforms promising to address any number of "crises" in mental health care. When these fail, alternatives to the alternatives simply pile up and seem to lead nowhere. In an original and compelling account of radical experimentation in psychiatry, Warren traces a double movement in the global development of mental health services throughout the 20th century: a radical current pushing totalizing and idealistic visions of care to their practical limits and a reactionary one content with managing or eliminating chronically idle surplus populations. Moral treatment is read in light of the utopian socialist movement; the theory of communication in the French Institutional Psychotherapy of Félix Guattari is put into conversation with the Brazilian art therapy of Nise da Silveira; the Mexican anti-psychiatry movement's reflections on violence are thought together with theories of violence developed in Argentinian psychoanalysis and Frantz Fanon's anticolonial therapeutic practice; the social form of the Italian Democratic Psychiatry and Brazilian anti-institutional movements are contrasted with the anti-psychiatry factions of the 1960s-70s North American counterculture. Storming Bedlam: Madness, Mental Health, and Revolt (Common Notions, 2024) subverts the divisions between social and biological approaches to mental health or between psychiatry and anti-psychiatry. By exploring the history of psychiatry in the context of revolution, war, and economic development, Warren outlines a minor history of approaches to mental health care grounded in common struggles against conditions of scarcity, poverty, isolation, and exploitation. Sasha Warren is a writer based in Minneapolis. His experiences within the psychiatric system and commitment to radical politics led him to cofound the group Hearing Voices Twin Cities, which provides an alternative social space for individuals to discuss often stigmatized extreme experiences and network with one-another. Following the George Floyd Uprising in 2020, he founded the project Of Unsound Mind to trace the histories of psychiatry, social work, and public health's connections to policing, prisons, and various disciplinary and managerial technologies. Resources: North American Networks of Alternatives to Psychiatry altpsy.net Of Unsound Mind Substack Learn more about your ad choices. Visit megaphone.fm/adchoices

As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness--much to the confusion of the world around her. While she cannot see well enough to operate without a guide dog or cane, she can see enough to know when someone is reacting to the visible signs of her blindness and can hear when they're whispering behind her back. And she certainly knows how wrong our one-size-fits-all definitions of disability can be. As a media studies professor, she's also seen the full range of blind and deaf portrayals on film, and here she deconstructs their impact, following common tropes through horror, romance, and everything in between. Part memoir, part cultural criticism, part history of the Deafblind experience, Being Seen: One Deafblind Woman's Fight to End Ableism (Simon Element, 2021) explores how our cultural concept of disability is more myth than fact, and the damage it does to us all. Learn more about your ad choices. Visit megaphone.fm/adchoices

Season Two erupts in our ears with a film-noir soundscape—an eerie voice utters strange and disjointed phrases and echoing footsteps lead to sirens and gunshots. What on Earth are we listening to? We unravel the mystery with NYU media professor Mara Mills  who studies the historical relationship between disability and media technologies. In Episode 8, “Test Subjects,” we examine the strange and obscure history of sound’s use as a psychological diagnostic tool. In the late 20th century, while many disabilities were eliminated through medical interventions, a host of new disabilities were invented, especially within the realm of psychology. Mills’s historical work in the audio archives of American Foundation for the Blind reveals how auditory projective testing was used to diagnose blind people with additional psychological disabilities. As we listen to these strange archival sounds, we learn how culture and technology shape the history of human ability and disability. Read Mara Mill’s article on auditory projective tests, “Evocative Object: Auditory Inkblot” and visit NYU’s Center for Disability Studies, which she co-directs with Faye Ginsburg.  Thanks to archivist Helen Selsdon and the American Foundation for the Blind for the use of the auditory projective tests. This episode’s theme music is by Mack Hagood with additional music by Graeme Gibson, Blue Dot Sessions, Claude Debussy, and Duke Ellington. The show was edited by Craig Eley and Mack Hagood. Learn more about your ad choices. Visit megaphone.fm/adchoices

Dennis Frost’s More than Medals: A History of the Paralympics and Disability Sports in Postwar Japan is a history of disability sports in modern Japan. The 1964, 1998, and upcoming Paralympics are important case studies, but Frost’s interests go far beyond this pinnacle of international, competitive disability sports. More than Medals explores the history and development of disability sports, highlighting Japan as an international actor, Oita prefecture as a domestic and international disability sports mecca, and most of all the ongoing tension between two visions of the purpose of disability sports: one which is primarily rehabilitative and the other which emphasizes elite athletic competition. This, as Frost shows, is fundamental to understanding the dynamics of accessibility and inclusivity in disabled sports. More than Medals will appeal to readers interested in the history of Japan, sports, and mega-events such as the Paralympics, as well as to those interested in disability studies. Nathan Hopson is an associate professor of Japanese and East Asian history in the Graduate School of Humanities, Nagoya University. Learn more about your ad choices. Visit megaphone.fm/adchoices

Between 1907 and 1937, thirty-two states legalized the sterilization of more than 63,000 Americans. In Fixing the Poor: Eugenic Sterilization and Child Welfare in the Twentieth Century (Johns Hopkins UP, 2020), Molly Ladd-Taylor tells the story of these state-run eugenic sterilization programs. She focuses on one such program in Minnesota, where surgical sterilization was legally voluntary and administered within a progressive child welfare system. Tracing Minnesota's eugenics program from its conceptual origins in the 1880s to its official end in the 1970s, Ladd-Taylor argues that state sterilization policies reflected a wider variety of worldviews and political agendas than previously understood. She describes how, after 1920, people endorsed sterilization and its alternative, institutionalization, as the best way to aid dependent children without helping the "undeserving" poor. She also sheds new light on how the policy gained acceptance and why coerced sterilizations persisted long after eugenics lost its prestige. In Ladd-Taylor's provocative study, eugenic sterilization appears less like a deliberate effort to improve the gene pool than a complicated but sadly familiar tale of troubled families, fiscal and administrative politics, and deep-felt cultural attitudes about disability, dependency, sexuality, and gender. Drawing on institutional and medical records, court cases, newspapers, and professional journals, Ladd-Taylor reconstructs the tragic stories of the welfare-dependent, sexually delinquent, and disabled people who were labeled "feebleminded" and targeted for sterilization. She chronicles the routine operation of Minnesota's three-step policy of eugenic commitment, institutionalization, and sterilization in the 1920s and 1930s and shows how surgery became the "price of freedom" from a state institution. Combining innovative political analysis with a compelling social history of those caught up in Minnesota's welfare system, Fixing the Poor is a powerful reinterpretation of eugenic sterilization. Shu Wan is currently matriculated as a doctoral student in history at the University at Buffalo. As a digital and disability historian, he serves in the editorial team of Digital Humanities Quarterly and Nursing Clio. On Twitter: @slissw. Learn more about your ad choices. Visit megaphone.fm/adchoices

Set in the remote, mountainous Guangxi Autonomous Region and based on ethnographic fieldwork, Families We Need: Disability, Abandonment, and Foster Care's Resistance in Contemporary China (Rutgers UP, 2022) traces the movement of three Chinese foster children, Dengrong, Pei Pei, and Meili, from the state orphanage into the humble, foster homes of Auntie Li, Auntie Ma, and Auntie Huang. Traversing the geography of Guangxi, from the modern capital Nanning where Pei Pei and Meili reside, to the small farming village several hours away where Dengrong is placed, this ethnography details the hardships of social abandonment for disabled children and disenfranchised, older women in China, while also analyzing the state’s efforts to cope with such marginal populations and incorporate them into China’s modern future. The book argues that Chinese foster families perform necessary, invisible service to the Chinese state and intercountry adoption, yet the bonds they form also resist such forces, exposing the inequalities, privilege, and ableism at the heart of global family making. Erin Raffety is a research fellow at the Center for Theological Inquiry, an empirical research consultant at Princeton Theological Seminary, and an associate research scholar at Princeton Seminary's Institute for Youth Ministry. Raffety researches and writes on disability, congregational ministry, and church leadership and is an advocate for disabled people. Shu Wan is currently matriculated as a doctoral student in history at the University at Buffalo. As a digital and disability historian, he serves in the editorial team of Digital Humanities Quarterly and Nursing Clio. Learn more about your ad choices. Visit megaphone.fm/adchoices

Time and again, antebellum Americans justified slavery and white supremacy by linking blackness to disability, defectiveness, and dependency. In The Mark of Slavery: Disability, Race, and Gender in Antebellum America (University of Illinois Press, 2021), historian Jenifer L. Barclay examines the ubiquitous narratives that depicted black people with disabilities as pitiable, monstrous, or comical, narratives used not only to defend slavery but argue against it. As she shows, this relationship between ableism and racism impacted racial identities during the antebellum period and played an overlooked role in shaping American history afterward. Barclay also illuminates the everyday lives of the ten percent of enslaved people who lived with disabilities. Devalued by slaveholders as unsound and therefore worthless, these individuals nonetheless carved out an unusual autonomy. Their roles as caregivers, healers, and keepers of memory made them esteemed within their own communities and celebrated figures in song and folklore.  Prescient in its analysis and rich in detail, The Mark of Slavery is a powerful addition to the intertwined histories of disability, slavery, and race. Jenifer L. Barclay is an Assistant Professor of History at SUNY Buffalo. Her research places African American history in conversation with the “new” disability history, a field that emphasizes disability as a lived human experience embedded in a set of socially constructed ideas that change over time, across cultures, and in relation to other categories of identity such as race, gender, class and sexuality. She earned her Ph.D. in African American History at Michigan State University.  Jerrad P. Pacatte is a Ph.D. candidate and School of Arts and Sciences Excellence Fellow in the Department of History at Rutgers University-New Brunswick. A social historian of gender, slavery, and emancipation in early America and the Atlantic World, Jerrad is currently completing his dissertation, entitled “The Work of Freedom: African American Women and the Ordeal of Emancipation in New England, 1740-1840” which examines the everyday lives, labors, and emancipation experiences of African-descended women in late-colonial and early republic New England. Jerrad is also increasingly interested in the history of slavery and disability in the context of early America; his research examining the lives and physically-disabling nature of enslavement in early New England will be published in two peer-reviewed anthologies - one of which is co-edited by Jenifer L. Barclay and Stefanie Hunt Kennedy - early next year.  Learn more about your ad choices. Visit megaphone.fm/adchoices

Mass shootings have become a defining issue of our time. Whenever the latest act of newsworthy violence occurs, mental illness is inevitably cited as a preeminent cause by members of the news media and political sphere alike. Eric B. Elbogen and Nico Verykoukis's book Violence and Mental Illness: Rethinking Risk Factors and Enhancing Public Safety (NYU Press, 2023) exposes how mental illness is vastly overemphasized in popular discussion of mass violence, which in turn makes us all less safe. The recurring and intense focus on mental illness in the wake of violent tragedy is fueled by social stigma and cognitive bias, strengthening an exaggerated link between violence and mental illness. Yet as Elbogen and Verykoukis clearly and compellingly demonstrate in this book, a wide array of empirical data show that this link is much weaker than commonly believed-numerous other risk factors have been proven to be stronger predictors of violence. In particular, the authors argue that overweighting mental illness means underweighting more robust risk factors, which are external (e.g., poverty, financial strain, inadequate social support), internal (e.g., younger age, anger, substance abuse), or violence-defining (e.g., lacking empathy, gun access, hate group membership). These risk factors need to be incorporated more fully into public policies around public safety. These risk factors need to be taken into consideration when crafting policies that concern public safety, with emphasis on strategies for reducing the viability and acceptability of violence as a choice. Learn more about your ad choices. Visit megaphone.fm/adchoices

The laws that govern psychiatric treatment under coercion have remain largely unchanged since the eighteenth century. But this is not because of their effectiveness, rather, these laws cling to outdated notions of disability, mental illness and mental disorder why deny the fundamental rights of this category of people on an equal basis with all others. In Men in White Coats: Treatment Under Coercion (Oxford University Press, 2017) Professor George Szmukler examines the violation of these rights, such as the right to autonomy, self-determination, liberty, and security and integrity of the person in the context of the domestic laws which themselves perpetuate ongoing discrimination against people with mental impairments. Tracing first the history of the medical coercion and involuntary treatment of people with mental illnesses and mental disorders, Professor Szmukler offers a potential path which he argues would end discrimination against this category of people. He puts forward a legal framework which is non-discriminatory and is based on a person's decision-making abilities and best interests, as opposed to a diagnosis. Crucially, he argues that this law is generic, and would not apply by reason of a person's mental disorder. His solution - Fusion Law - would better support people's autonomy, better engage with the Convention on the Rights of Persons with Disabilities, and have significant social value by recognising the dignity and equality of people with mental health impairments. It would also have implications for the forensics system, in particular, with regards to defendants who have mental disorders.  Professor George Szmukler is a psychiatrist who started practising in the field as a trainee in 1972. He retired from clinical work in 2012, and is now an Emeritus Professor of Psychiatry and Society at the Institute of Psychiatry, Psychology and Neuroscience at King's college London. His major research now concerns methods of reducing compulsion and ’coercion’ in psychiatric care, for example, through the use of ’advance statements’. A related interest is mental health law, particularly the possibility of generic legislation centred on impaired decision-making capacity which would apply to all persons, regardless of the cause of the underlying disturbance of mental functioning. Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK Learn more about your ad choices. Visit megaphone.fm/adchoices

The pressures Asian Americans feel to be socially and economically exceptional include an unspoken mandate to always be healthy. Nowhere is this more evident than in the expectation for Asian Americans to enter the field of medicine, principally as providers of care rather than those who require care. Pedagogies of Woundedness: Illness, Memoir, and the Ends of the Model Minority (Temple UP, 2021) explores what happens when those considered model minorities critically engage with illness and medicine whether as patients or physicians. James Kyung-Jin Lee considers how popular culture often positions Asian Americans as medical authorities and what that racial characterization means. Addressing the recent trend of writing about sickness, disability, and death, Lee shows how this investment in Asian American health via the model minority is itself a response to older racial forms that characterize Asian American bodies as diseased. Moreover, he pays attention to what happens when academics get sick and how illness becomes both methodology and an archive for scholars. Pedagogies of Woundedness also explores the limits of biomedical “care,” the rise of physician chaplaincy, and the impact of COVID. Throughout his book and these case studies, Lee shows the social, ethical, and political consequences of these common (mis)conceptions that often define Asian Americans in regard to health and illness. Learn more about your ad choices. Visit megaphone.fm/adchoices

Jacki Edry's Moving Forward: Reflections on Autism, Neurodiversity, Brain Surgery, and Faith (2021) is a journey between the worlds of autism, neurodiversity, brain surgery recovery, and faith. It provides a rare glimpse into how sensory and neurological processing affect functioning and thought, through the eyes of a professional, parent, and woman who has experienced them firsthand.This book presents an informative, emotional, and empowering account of the challenges and struggles on the road to recovery ‒ as well as the search for understanding, meaning, and faith. It enables you to step into the shoes of someone who has endured the types of sensory irregularities common in people with neurodiversity; including autism, ADHD, dyslexia, Irlen Syndrome, Auditory Processing Disorder, and more, and to gain understanding as to how to cope with these challenges and to compensate for them.Moving forward will enlighten parents, professionals, and family members to better understand and assist the neurodivergent people whom they work with and love. Galina Limorenko is a doctoral candidate in Neuroscience with a focus on biochemistry and molecular biology of neurodegenerative diseases at EPFL in Switzerland. To discuss and propose the book for an interview you can reach her at galina.limorenko@epfl.ch. Learn more about your ad choices. Visit megaphone.fm/adchoices

Sacrificial Limbs: Masculinity, Disability, and Political Violence in Turkey (University of California Press, 2020) is an exploration of “the ways in which . . .veterans’ gendered and classed experiences of warfare and disability are hardened into politics . . .how self, community, and the world-making practices of disabled veterans get tangled up with ultranationalist politics in contemporary Turkey.” Drawing on extensive interviews and participant observations, anthropologist Salih Can Açıksöz traces the experiences of veterans of Turkey’s ongoing counter-guerilla warfare in the country’s predominantly Kurdish eastern region. In Turkey, military service is mandatory, part of a “heteropatriarchal contract” between men and the state. Injury in wartime confers on veterans the status of gazi, meaning both “wounded soldier” and “holy warrior.” Yet military “operations” in southeast Turkey are not officially recognized as war, and disabling injuries in Turkey’s “deeply ableist society” deny veterans the implicit rewards of their gendered contract with the state. Therefore, since the 1990s, disabled veterans have organized to demand the state honor its debts. In his book, Professor Açıksöz shows the different forms these organizations take, as well as the ways in which veterans' groups became drawn into far-right political movements during the early 2000s. Reuben Silverman is a PhD candidate at University of California, San Diego Learn more about your ad choices. Visit megaphone.fm/adchoices

Dr Lucy Series Deprivations of Liberty in The Shadows of the Institution (Bristol University Press, 2022) is one that I have long been looking forward to reading, and it did not disappoint. Series provides a rich historical and socio-legal context to bring new understanding of the post-carceral era, and the legacies of the institutions which continue to shape the contemporary era of social care detention. She provides an in-depth analysis of the very odd legal landscape that has been imported into the British care system, to draw out the specific logics, locus and temporality of a complex social problem, for which the legal solution has produced anomalous results. Her key concern goes beyond bringing new understanding of the ways that individuals are regulated and controlled. Crucially, Series delves into what we should be aiming for.  Dr Lucy Series is a lecturer in the school for policy studies at the University of Bristol. She also writes a fabulous blog, The Small Places. Learn more about your ad choices. Visit megaphone.fm/adchoices

Bookshop.org is an online book retailer that donates more than 80% of its profits to independent bookstores. Launched in 2020, Bookshop.org has already raised more than $27,000,000. In this interview, Andy Hunter, founder and CEO discusses his journey to creating one of the most revolutionary new organizations in the book world. Bookshop has found a way to retain the convenience of online book shopping while also supporting independent bookstores that are the backbones of many local communities.  Andy Hunter is CEO and Founder of Bookshop.org. He also co-created Literary Hub. Caleb Zakarin is the Assistant Editor of the New Books Network. Learn more about your ad choices. Visit megaphone.fm/adchoices

Dr. Christopher Krentz is an Associate Professor at the University of Virginia, where he has a joint appointment with the departments of English and American Sign Language. He is also the author of Writing Deafness: The Hearing Line in Nineteenth-Century American Literature and editor of A Mighty Change: An Anthology of Deaf American Writing, 1816–1864, as well as numerous articles about disability in literature and culture. He is currently director of the University of Virginia’s Disability Studies Initiative and helped found their American Sign Language Program. Characters with disabilities are often overlooked in fiction, but many occupy central places in literature by celebrated authors like Chinua Achebe, Salman Rushdie, J. M. Coetzee, Anita Desai, Jhumpa Lahiri, Edwidge Danticat, and others. These authors deploy disability to do important cultural work, writes Christopher Krentz in his innovative study, Elusive Kinship: Disability and Human Rights in Postcolonial Literature (Temple UP, 2022). Such representations not only relate to the millions of disabled people in the Global South, but also make more vivid such issues as the effects of colonialism, global capitalism, racism and sexism, war, and environmental disaster. Krentz is the first to put the fields of postcolonial studies, studies of human rights and literature, and literary disability in conversation with each other in a book-length study. He enhances our appreciation of key texts of Anglophone postcolonial literature of the Global South, including Things Fall Apart and Midnight’s Children. In addition, he uncovers the myriad ways fiction gains energy, vitality, and metaphoric force from characters with extraordinary bodies or minds. Depicting injustices faced by characters with disabilities is vital to raising awareness and achieving human rights. Elusive Kinship nudges us toward a fuller understanding of disability worldwide. Autumn Wilke works in higher education as an ADA coordinator and diversity officer and is also an author and doctoral candidate with research/topics related to disability and higher education. Learn more about your ad choices. Visit megaphone.fm/adchoices

Movements that take issue with conventional understandings of autism spectrum disorder, a developmental disability, have become increasingly visible. Drawing on more than three years of ethnographic fieldwork and interviews with participants, Dr. Catherine Tan investigates two autism-focused movements, shedding new light on how members contest expert authority. Examining their separate struggles to gain legitimacy and represent autistic people, she develops a new account of the importance of social movements as spaces for constructing knowledge that aims to challenge dominant frameworks. Spaces on the Spectrum: How Autism Movements Resist Experts and Create Knowledge (Columbia University Press, 2024) examines the autistic rights and alternative biomedical movements, which reimagine autism in different and conflicting ways: as a difference to be accepted or as a sickness to treat. Both, however, provide a window into how ideas that conflict with dominant beliefs develop, take hold, and persist. The autistic rights movement is composed primarily of autistic adults who contend that autism is a natural human variation, not a disorder, and advocate for social and cultural inclusion and policy changes. The alternative biomedical movement, in contrast, is dominated by parents and practitioners who believe in the disproven idea that vaccines trigger autism and seek to reverse it with scientifically unsupported treatments. Both movements position themselves in opposition to researchers, professionals, and parents outside their communities. Spaces on the Spectrum offers timely insights into the roles of shared identity and communal networks in movements that question scientific and medical authority. This interview was conducted by Dr. Miranda Melcher whose new book focuses on post-conflict military integration, understanding treaty negotiation and implementation in civil war contexts, with qualitative analysis of the Angolan and Mozambican civil wars. Learn more about your ad choices. Visit megaphone.fm/adchoices

Disability is often described as a tragedy, a crisis, or an aberration, though 1 in 5 people worldwide have a disability. Why is this common human experience rendered exceptional? In All Our Families: Disability Lineage and the Future of Kinship (Beacon Press, 2022), disability studies scholar Jennifer Natalya Fink argues that this originates in our families. When we cut a disabled member out of the family story, disability remains a trauma as opposed to a shared and ordinary experience. This makes disability and its diagnosis traumatic and exceptional. Weaving together stories of members of her own family with sociohistorical research, Fink illustrates how the eradication of disabled people from family narratives is rooted in racist, misogynistic, and antisemitic sorting systems inherited from Nazis. By examining the rhetoric of genetic testing, she shows that a fear of disability begins before a child is even born and that a fear of disability is, fundamentally, a fear of care. Fink analyzes our racist and sexist care systems, exposing their inequities as a source of stigmatizing ableism. Inspired by queer and critical race theory, Fink calls for a lineage of disability a reclamation of disability as a history, a culture, and an identity. Such a lineage offers a means of seeing disability in the context of a collective sense of belonging, as cause for celebration, and is a call for a radical reimagining of carework and kinship. All Our Families challenges us to re-lineate disability within the family as a means of repair toward a more inclusive and flexible structure of care and community. Galina Limorenko is a doctoral candidate in Neuroscience with a focus on biochemistry and molecular biology of neurodegenerative diseases at EPFL in Switzerland. Learn more about your ad choices. Visit megaphone.fm/adchoices

Memoirs of Jewish life in the east European shtetl often recall the hekdesh (town poorhouse) and its residents: beggars, madmen and madwomen, disabled people, and poor orphans. Stepchildren of the Shtetl: The Destitute, Disabled, and Mad of Jewish Eastern Europe, 1800-1939 (Stanford University Press, 2020) tells the story of these marginalized figures from the dawn of modernity to the eve of the Holocaust. Combining archival research with analysis of literary, cultural, and religious texts, Natan M. Meir recovers the lived experience of Jewish society's outcasts and reveals the central role that they came to play in the drama of modernization. Those on the margins were often made to bear the burden of the nation as a whole, whether as scapegoats in moments of crisis or as symbols of degeneration, ripe for transformation by reformers, philanthropists, and nationalists. Shining a light into the darkest corners of Jewish society in eastern Europe―from the often squalid poorhouse of the shtetl to the slums and insane asylums of Warsaw and Odessa, from the conscription of poor orphans during the reign of Nicholas I to the cholera wedding, a magical ritual in which an epidemic was halted by marrying outcasts to each other in the town cemetery―Stepchildren of the Shtetl reconsiders the place of the lowliest members of an already stigmatized minority. Natan M. Meir is the Lorry I. Lokey Professor of Judaic Studies in the Harold Schnitzer Family Program in Judaic Studies at Portland State University. He also serves as a museum consultant and leads study tours of Eastern Europe with Ayelet Tours. 503-828-5303, meir@pdx.edu Steven Seegel is a Professor of History at the University of Northern Colorado Learn more about your ad choices. Visit megaphone.fm/adchoices

Valentina Capurri's book Not Good Enough for Canada: Canadian Public Discourse Around Issues of Inadmissibility for Potential Immigrants with Diseases And/Or Disabilities (U Toronto Press, 2020) investigates the development of Canadian immigration policy with respect to persons with a disease or disability throughout the twentieth century. With an emphasis on social history, this book examines the way the state operates through legislation to achieve its goals of self-preservation even when such legislation contradicts state commitments to equality rights. Looking at the ways federal politicians, mainstream media, and the judicial system have perceived persons with disabilities, specifically immigrant applicants with disabilities, this book reveals how Canadian immigration policy has systematically omitted any reference to this group, rendering them socially invisible. Shu Wan is currently matriculated as a doctoral student in history at the University at Buffalo. As a digital and disability historian, he serves in the editorial team of Digital Humanities Quarterly and Nursing Clio. On Twitter: @slissw. Learn more about your ad choices. Visit megaphone.fm/adchoices

With a focus on the court diversion of disabled people, Disability, Criminal Justice and Law: Reconsidering Court Diversion (Routledge 2020) undertakes a theoretical and empirical examination of how law is complicit in debilitating disabled people. In our post-institutionalisation era, diversion of disabled people from the court process is often assumed to be humane, therapeutic and socially just. However, in this work, Dr. Linda Steele draws on Foucauldian theory of biopolitics, critical legal and political theory, and critical disability theory to show that court diversion perpetuates oppression against disabled people. She shows how criminal law and mental health systems are complicit in the coercion and control of disabled bodies, of whom may not even be convicted. The normative function of court diversion is to reinforce boundaries which are at the core of jurisdiction, legal personhood and sovereignty. Steele critiques the United Nations Convention on the Rights of Persons with Disabilities to show that it does not deal with the complexities of court diversion, suggesting that the CRPD is of limited use in its abilities to challenge carceral control and legal and settler colonial violence.  Dr. Linda Steele is a Senior Lecturer in Law at the University of Technology, Sydney. She researches the intersections of disability, law and social justice. Prior to a career in academia, Dr. Steele was a solicitor with the Intellectual Disability Rights Service. Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK.   Learn more about your ad choices. Visit megaphone.fm/adchoices

Long before the English became involved in the African slave trade, they imagined Africans as monstrous and deformed beings. The English drew on pre-existing European ideas about monstrosity and deformity to argue that Africans were a monstrous race, suspended between human and animal, and as such only fit for servitude. Joining blackness to disability transformed English ideas about defective bodies and minds. It also influenced understandings of race and ability even as it shaped the embodied reality of people enslaved in the British Caribbean. Dr. Stefanie Hunt-Kennedy provides a three-pronged analysis of disability in the context of Atlantic slavery. First, she examines the connections of enslavement and representations of disability and the parallel development of English anti-black racism. From there, she moves from realms of representation to reality in order to illuminate the physical, emotional, and psychological impairments inflicted by slavery and endured by the enslaved. Finally, she looks at slave law as a system of enforced disablement. Audacious and powerful, Between Fitness and Death: Disability and Slavery in the Caribbean (University of Illinois Press, 2020) is a groundbreaking journey into the entwined histories of racism and ableism. Adam McNeil is a third-year PhD Student in the Department of History at Rutgers University. McNeil regularly contributes to the academic blogs Black Perspectives and The Junto. Learn more about your ad choices. Visit megaphone.fm/adchoices

A powerful analysis and call to action that reveals disability as one of the defining features of environmental devastation and resistance. Deep below the ground in Tucson, Arizona, lies an aquifer forever altered by the detritus of a postwar Superfund site. Disabled Ecologies: Lessons from a Wounded Desert (U California Press, 2024) tells the story of this contamination and its ripple effects through the largely Mexican American community living above. Drawing on her own complex relationship to this long-ago injured landscape, Sunaura Taylor takes us with her to follow the site's disabled ecology—the networks of disability, both human and wild, that are created when ecosystems are corrupted and profoundly altered. What Taylor finds is a story of entanglements that reach far beyond the Sonoran Desert. These stories tell of debilitating and sometimes life-ending injuries, but they also map out alternative modes of connection, solidarity, and resistance—an environmentalism of the injured. An original and deeply personal reflection on what disability means in an era of increasing multispecies disablement, Disabled Ecologies is a powerful call to reflect on the kinds of care, treatment, and assistance this age of disability requires. A full transcript of the interview is available for accessibility. Sunaura Taylor is an Assistant Professor in the Division of Society and Environment at the University of California, Berkeley. Taylor is a scholar and artist who works at the intersection of disability studies, environmental humanities, animal studies, environmental justice, feminist science studies, and art practice. Learn more about your ad choices. Visit megaphone.fm/adchoices

With no known cause or cure despite a century of research, Alzheimer's disease is a true medical mystery. In Mediating Alzheimer's: Cognition and Personhood (U Minnesota Press, 2022), Scott Selberg examines the nature of this enduring national health crisis by looking at the disease's relationship to media and representation. He shows how collective investments in different kinds of media have historically shaped how we understand, treat, and live with this disease. Selberg demonstrates how the cognitive abilities that Alzheimer's threatens--memory, for example--are integrated into the operations of representational technologies, from Polaroid photographs to Post-its to digital artificial intelligence. Focusing on a wide variety of media technologies, such as neuroimaging, art therapy, virtual reality, and social media, he shows how these cognitively oriented media ultimately help define personhood for people with Alzheimer's. Media have changed the practices of successful aging in the United States, and Selberg takes us deep into how technologies like digital brain-training and online care networks shape ideas of cognition and healthy aging. Packed with startlingly fresh insights, Mediating Alzheimer's contributes to debates around bioethics, the labor of caregiving, and a national economy increasingly invested in communication and digital media. Probing the very technologies that promise to save and understand our brains, it gives us new ways of understanding Alzheimer's disease and aging in America. Shu Wan is currently matriculated as a doctoral student in history at the University at Buffalo. As a digital and disability historian, he serves in the editorial team of Digital Humanities Quarterly and Nursing Clio. On Twitter: @slissw. Learn more about your ad choices. Visit megaphone.fm/adchoices

Deep below the ground in Tucson, Arizona, lies an aquifer forever altered by the detritus of a postwar Superfund site. Disabled Ecologies: Lessons From a Wounded Desert (U California Press, 2024) by Dr. Sunaura Taylor, tells the story of this contamination and its ripple effects through the largely Mexican-American community living above. Drawing on her own complex relationship to this long-ago injured landscape, Dr. Taylor takes us with her to follow the site's disabled ecology—the networks of disability, both human and wild, that are created when ecosystems are corrupted and profoundly altered. What Taylor finds is a story of entanglements that reach far beyond the Sonoran Desert. These stories tell of debilitating and sometimes life-ending injuries, but they also map out alternative modes of connection, solidarity, and resistance—an environmentalism of the injured. An original and deeply personal reflection on what disability means in an era of increasing multispecies disablement, Disabled Ecologies is a powerful call to reflect on the kinds of care, treatment, and assistance this age of disability requires. Our guest is: Dr. Sunaura Taylor, who is Assistant Professor of Environmental Science, Policy, and Management at the University of California, Berkeley, and author of the American Book Award–winning Beasts of Burden: Animal and Disability Liberation. Our host is: Dr. Christina Gessler, the producer of the Academic Life podcast. She holds a PhD in history, which she uses to explore what stories we tell and what happens to those we never tell. Playlist for listeners: A conversation about Sitting Pretty Pandemic Perspectives The Killer Whale Journals The Well-Gardened Mind Endless Forms Welcome to Academic Life, the podcast for your academic journey—and beyond! You can support the show by posting, assigning or sharing episodes. Join us again to learn from more experts inside and outside the academy, and around the world. Missed any of the 225+ Academic Life episodes? You’ll find them all archived here. Learn more about your ad choices. Visit megaphone.fm/adchoices

Asylum Ways of Seeing: Psychiatric Patients, American Thought and Culture (University of Pennsylvania Press, 2021) by Dr. Heather Murray is a cultural and intellectual history of people with mental illnesses in the twentieth-century United States. While acknowledging the fraught, and often violent, histories of American psychiatric hospitals, Heather Murray also suggests that it is in these hospitals that patients became more intense observers: they gave more conscious consideration to institutional and broader kinds of citizenship, to the nature and needs of communities versus those of individuals, to scientific modernity, and to human rights and solidarities among the suffering. All of these ideas have animated twentieth-century America, and, as Dr. Murray shows, have not just flowed into psychiatric hospitals but outward from them as well. These themes are especially clear within patients' intimate, creative, and political correspondence, writings, and drawings, as well as in hospital publications and films. This way of thinking and imagining contrasts with more common images of the patient—as passive, resigned, and absented from the world in the cloistered setting of the hospital—that have animated psychiatry over the course of the twentieth century. Asylum Ways of Seeing traces how it is that patient resignation went from being interpreted as wisdom in the early twentieth century, to being understood as a capitulation in scientific and political sources by mid-century, to being seen as a profound violation of selfhood and individual rights by the century's end. In so doing, it makes a call to reconsider the philosophical possibilities within resignation.  This interview was conducted by Dr. Miranda Melcher whose new book focuses on post-conflict military integration, understanding treaty negotiation and implementation in civil war contexts, with qualitative analysis of the Angolan and Mozambican civil wars. Learn more about your ad choices. Visit megaphone.fm/adchoices

"They don't know me. They don't know what I'm capable of." Diagnosed with pervasive developmental disorder, a form of autism, as a toddler, Anthony Ianni wasn't expected to succeed in school or participate in sports, but he had other ideas. As a child, Ianni told anybody who would listen, including head coach Tom Izzo, that he would one day play for the Michigan State Spartans. Centered: Autism, Basketball, and One Athlete's Dreams is the firsthand account of a young man's social, academic, and athletic struggles and his determination to reach his goals. In this remarkable memoir, Ianni reflects on his experiences with both basketball and the autism spectrum. Centered, an inspirational sports story in the vein of Rudy, reveals Ianni to be unflinching in his honesty, generous in his gratitude, and gracious in his compassion. Sports fans will root for the underdog. Parents, teachers, and coaches will gain insight into the experience of an autistic child. And everyone will triumph in the achievements of Centered. Galina Limorenko is a doctoral candidate in Neuroscience with a focus on biochemistry and molecular biology of neurodegenerative diseases at EPFL in Switzerland. To discuss and propose the book for an interview you can reach her at galina.limorenko@epfl.ch. Learn more about your ad choices. Visit megaphone.fm/adchoices

The UN Convention on the Rights of Persons with Disabilities in Practice: A Comparative Analysis of the Role of Courts (Oxford UP, 2018) brings together an extraordinary collection of data and analysis which concerns how domestic courts interpret and apply the Convention on the Rights of Persons with Disabilities. It is the first thorough comparative collection of research which brings together the approaches to the interpretation and application of the CRPD in domestic courts across thirteen jurisdictions from around the world. In this groundbreaking book, leading global scholars in disability law, Professor Lisa Waddington and Professor Anna Lawson, give the reader unique insight into the influence that the CRPD is having in domestic courts. The first part of the book provides an extensive comparative analysis of the role of the courts in bringing about compliance with the Convention. The second half of the book brings together these findings, offering understandings into the implications for human rights law and theory, contextualised more broadly in international human rights law. This work will be the basis for extensive research into the uses and application of the CRPD, especially with regards to the function and limits of the role of the courts in disability rights enforcement.  The book is be an essential resource for any scholar or student of disability law, international law, and human rights.   Lisa Waddington is a Professor, and Endowed Chair of International and European Law in the faculty of law in Maastricht University in the Netherlands. She holds the European Disability Forum Chair in European Disability Law and her principal area of interest lies in European and comparative disability law, the UN Convention on the Rights of Persons with Disabilities, and European and comparative equality law. Anna Lawson is a Professor in disability and law at the University of Leeds. She is the Joint Director of the University wide interdisciplinary Centre for Disability Studies and the Co-ordinator of the Disability Law Hub. She holds membership, trustee and advisory positions in a range of local, national and international disabled people’s and human rights organisations and regularly advises policy-makers, governments and intergovernmental organisations.  Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK Learn more about your ad choices. Visit megaphone.fm/adchoices

This volume of Osiris places disability history and the history of science in conversation to foreground disability epistemologies, disabled scientists, and disability sciencing (engagement with scientific tools and processes). Looking beyond paradigms of medicalization and industrialization, the volume authors also examine knowledge production about disability from the ancient world to the present in fields ranging from mathematics to the social sciences, resulting in groundbreaking histories of taken-for-granted terms such as impairment, infirmity, epidemics, and shōgai. Some contributors trace the disabling impacts of scientific theories and practices in the contexts of war, factory labor, insurance, and colonialism; others excavate racial and settler ableism in the history of scientific facts, protocols, and collections; still others query the boundaries between scientific, lay, and disability expertise. Contending that disability alters method, authors bring new sources and interpretation techniques to the history of science, overturn familiar narratives, apply disability analyses to established terms and archives, and discuss accessibility issues for disabled historians. The resulting volume announces a disability history of science. Jaipreet Virdi is a historian of medicine, technology and disability. Her research and teaching interests include the history of medicine, the history of science, disability history, disability technologies and material/visual culture studies. She received her Ph.D. from the Institute for the History and Philosophy of Science and Technology at the University of Toronto (2014). Mara Mills is Associate Professor and Ph.D. Director in the Department of Media, Culture, and Communication at New York University. She is cofounder and Director of the NYU Center for Disability Studies; a founding editor of the award-winning journal Catalyst: Feminism, Theory, Technoscience; and a founding member of the steering committees for the NYU cross-school minors in Science and Society and Disability Studies. Sarah Rose is an associate professor of history at the University of Texas at Arlington, where she founded and directs the Minor in Disability Studies. There are more than 120 Disability Studies graduates from UTA now. She also co-founded and serves as faculty advisor for UTA Libraries’ Texas Disability History Collection, for which she and Trevor Engel co-curated the Building a Barrier-Free Campus traveling and digitized exhibit. Her book, No Right to Be Idle: The Invention of Disability, 1840s-1930s, was published by University of North Carolina Press in 2017 and was awarded the 2018 Philip Taft Prize in Labor and Working Class History and the 2018 Disability History Association Outstanding Book Award, among other awards. She has also published with Dr. Joshua Salzmann in LABOR on how baseball players and teams have managed health and fitness and in the Journal of Policy History on disabled veterans’ access to the GI bill and higher education after World War II. Learn more about your ad choices. Visit megaphone.fm/adchoices

Is medical assistance in dying, or MAID letting the government off the hook from providing what they should be providing? Should we respect people's choices on harm reduction grounds, even if those choices are severely constrained by an unjust social and political context? Should we give doctors this power over the mentally ill and disabled, given the racist and ableist nature of our crumbling health care system? Gordon Katic debates this and more, with perspectives from either side. Professor Trudo Lemmens argues that MAID sends a disturbing message: disabled lives aren't worth living. Next, Dr. Derryk Smith (formerly of Dying with Dignity) says just the opposite: excluding certain people from this civil liberty is tantamount to stigmatization. SUPPORT THE SHOW You can support the show for free by following or subscribing on Spotify, Apple Podcasts, or whichever app you use. This is the best way to help us out and it costs nothing so we’d really appreciate you clicking that button. If you want to do a little more we would love it if you chip in. You can find us on patreon.com/dartsandletters. Patrons get content early, and occasionally there’s bonus material on there too. ABOUT THE SHOW For a full list of credits, contact information, and more, visit our about page. Learn more about your ad choices. Visit megaphone.fm/adchoices

Colonising Disability: Impairment and Otherness Across Britain and Its Empire, c. 1800-1914 (Cambridge UP, 2022) explores the construction and treatment of disability across Britain and its empire from the nineteenth to the early twentieth century. Drawing on a wide range of sources, Esme Cleall explores how disability increasingly became associated with 'difference' and argues that it did so through intersecting with other categories of otherness such as race. Philanthropic, legal, literary, religious, medical, educational, eugenistic and parliamentary texts are examined to unpick representations of disability that, overtime, became pervasive with significant ramifications for disabled people. Cleall also uses multiple examples to show how disabled people navigated a wide range of experiences from 'freak shows' in Britain, to missions in India, to immigration systems in Australia, including exploring how they mobilised to resist discrimination and constitute their own identities. By assessing the intersection between disability and race, Dr Cleall opens up questions about 'normalcy' and the making of the imperial self. Learn more about your ad choices. Visit megaphone.fm/adchoices

A detailed exploration of parents' fight for a safe environment for their kids, interrogating how race, class, and gender shape health advocacy The success of food allergy activism in highlighting the dangers of foodborne allergens shows how illness communities can effectively advocate for the needs of their members.  In Food Allergy Advocacy: Parenting and the Politics of Care (U Minnesota Press, 2022), Danya Glabau follows parents and activists as they fight for allergen-free environments, accurate labeling, the fair application of disability law, and access to life-saving medications for food-allergic children in the United States. At the same time, she shows how this activism also reproduces the culturally dominant politics of personhood and responsibility, based on an idealized version of the American family, centered around white, middle-class, and heteronormative motherhood. By holding up the threat of food allergens to the white nuclear family to galvanize political and scientific action, Glabau shows, the movement excludes many, including Black women and disabled adults, whose families and health have too often been marginalized from public health and social safety net programs. Further, its strategies are founded on the assumption that market-based solutions will address issues of social exclusion and equal access to healthcare. Sharing the personal experiences of a wide spectrum of people, including parents, support group leaders, physicians, entrepreneurs, and scientists, Food Allergy Advocacy raises important questions about who controls illness activism. Using critical, intersectional feminism to interrogate how race, class, and gender shape activist priorities and platforms, it shows the way to new, justice-focused models of advocacy. Danya Glabau is a medical anthropologist and science and technology studies scholar who researches patient activism, the political economy of the global pharmaceutical industry, and feminist cybercultures. She is a faculty member at the NYU Tandon School of Engineering and the Director of the Science and Technology Studies Program. Autumn Wilke works in higher education as an ADA coordinator and diversity officer and am also an author and doctoral candidate with research/topics related to disability and higher education. Learn more about your ad choices. Visit megaphone.fm/adchoices

“Three generations of imbeciles are enough” were the infamous words U.S. Supreme Court Justice Oliver Wendell Holmes Jr. wrote in 1927. In Buck v. Bell, an almost unanimous Court upheld a Virginia law allowing the sterilization of people the state found to be “socially inadequate” and “feebleminded.” This landmark decision allowed the eugenics movement to take full effect, with multiple states passing similar laws.  In Three Generations, No Imbeciles: Eugenics, the Supreme Court, and Buck v. Bell (Johns Hopkins UP, 2022), Dr. Paul Lombardo unpacks the case of an individual – Carrie Buck – to argue that the case not only represents the collective power of the eugenics movement in the early 20th century but an individual miscarriage of justice. Using extensive archival sources, Dr. Lombardo demonstrates that Carrie Buck was neither a “moral degenerate” or “feeble-minded.” She was a rape victim of sound mind. Her sterilization was based on fraudulent evidence. The powerful eugenics lobby manufactured a case – and a sympathetic court gave them a precedent that justified Carrie Buck’s sterilization – and over 60,000 sterilizations in the following decades. Three Generations, No Imbeciles frames the history of sterilization as essential to understanding contemporary legal fights over birth control and abortion. Does the constitution’s promise of “liberty” include the right to become pregnant or end a pregnancy? Dr. Lombardo’s epilogue and afterward outlines the connections between Buck and modern cases involving abortion, disability rights, and reparations for those sterilized. Originally published in 2008, the book has been updated in 2022 with a terrific epilogue and afterward with an eye towards contemporary events in reproductive politics. Dr. Paul A. Lombardo is Regents’ Professor and Bobby Lee Cook Professor of Law at the Center for Law, Health & Society at Georgia State University. He has published extensively on topics in health law, medico-legal history, and bioethics and is best known for his work on the legal history of the American eugenics movement. His website houses the images and all documents discussed in the podcast including the petition for rehearing created by the National Council of Catholic Men. Daniela Campos served as the editorial assistant for this podcast. Susan Liebell is Dirk Warren '50 Professor of Political Science at Saint Joseph’s University in Philadelphia. Learn more about your ad choices. Visit megaphone.fm/adchoices

Throughout her new book, HandiLand: The Crippest Place on Earth (University of Michigan Press 2019), Elizabeth A. Wheeler uses a fictional place called HandiLand as a yardstick for measuring how far American society has progressed toward social justice and how much remains to be done. In a rich array of chapters, Wheeler considers the new prominence of youth with disabilities in contemporary young adult and children’s literature. From these and other sources, she derives principles for understanding social justice from the everyday experiences of adults and families with disabilities, including her own. Wheeler intersperses literary analysis with personal memoir in an effort to fashion tool kits for those whose “work, ideas, and hands touch young people with disabilities,” which is all of us. Carrie Lane is a Professor of American Studies at California State University, Fullerton and author of A Company of One: Insecurity, Independence, and the New World of White-Collar Unemployment. Her research concerns the changing nature of work in the contemporary U.S. She is currently writing a book on the professional organizing industry. To contact her or to suggest a recent title, email clane@fullerton.edu. Learn more about your ad choices. Visit megaphone.fm/adchoices

Heide Hausse's book The Malleable Body: Surgeons, Artisans, and Amputees in Early Modern Germany (Manchester University Press, 2023) uses amputation and prostheses to tell a new story about medicine and embodied knowledge-making in early modern Europe. It draws on the writings of craft surgeons and learned physicians to follow the heated debates that arose from changing practices of removing limbs, uncovering tense moments in which decisions to operate were made. Importantly, it teases out surgeons' ideas about the body embedded in their technical instructions. This unique study also explores the material culture of mechanical hands that amputees commissioned locksmiths, clockmakers, and other artisans to create, revealing their roles in developing a new prosthetic technology. Over two centuries of surgical and artisanal interventions emerged a growing perception, fundamental to biomedicine today, that humans could alter the body - that it was malleable. Jana Byars is an independent scholar located in Amsterdam. Learn more about your ad choices. Visit megaphone.fm/adchoices

In the thirty years since the Americans with Disabilities Act was signed into law, the lives of disabled people have not improved nearly as much as activists and politicians had hoped. In Crip Negativity (U of Minnesota Press, 2023), J. Logan Smilges shows us what’s gone wrong and what we can do to fix it. Leveling a strong critique of the category of disability and liberal disability politics, Smilges asks and imagines what horizons might exist for the liberation of those oppressed by ableism—beyond access and inclusion. Inspired by models of negativity in queer studies, Black studies, and crip theory, Smilges proposes that bad crip feelings might help all of us to care gently for one another, even as we demand more from the world than we currently believe to be possible. J. Logan Smilges (they/them) is assistant professor of English language and literatures at the University of British Columbia and author of Queer Silence: On Disability and Rhetorical Absence (Minnesota, 2022). Clayton Jarrard is a Research Project Coordinator at the University of Kansas Center for Research, contributing to initiatives at the nexus of research, policy implementation, and community efforts. His scholarly engagement spans the subject areas of Cultural Anthropology, Queer Studies, Disability Studies, Mad Studies, and Religious Studies. Clayton is also a host for the Un/Livable Cultures podcast. Learn more about your ad choices. Visit megaphone.fm/adchoices

A transformative spiritual companion and deep dive into disability politics that reimagines disability in the Bible and contemporary culture. "What's wrong with you?" Scholar, activist, and rabbi Julia Watts Belser is all too familiar with this question. What's wrong isn't her wheelchair, though--it's exclusion, objectification, pity, and disdain. Our attitudes about disability have such deep cultural roots that we almost forget their sources. But open the Bible and disability is everywhere. Moses believes his stutter renders him unable to answer God's call. Jacob's encounter with an angel leaves him changed not just spiritually but physically: he gains a limp. For centuries, these stories have been told and retold in ways that treat disability as a metaphor for spiritual incapacity or as a challenge to be overcome. Through fresh and unexpected readings of the Bible, Loving Our Own Bones: Disability Wisdom and the Spiritual Subversiveness of Knowing Ourselves Whole (Beacon Press, 2023) instead paints a luminous portrait of what it means to be disabled and one of God's beloved. Belser delves deep into sacred literature, braiding the insights of disabled, feminist, Black, and queer thinkers with her own experiences as a queer disabled Jewish feminist. She talks back to biblical commentators who traffic in disability stigma and shame. What unfolds is a profound gift of disability wisdom, a radical act of spiritual imagination that can guide us all toward a powerful reckoning with each other and with our bodies. Loving Our Own Bones invites readers to claim the power and promise of spiritual dissent, and to nourish their own souls through the revolutionary art of radical self-love. Ilana Maymind is a lecturer at the Religious Studies Department at Chapman University. Learn more about your ad choices. Visit megaphone.fm/adchoices

In The Lives of Jessie Sampter: Queer, Disabled, Zionist (Duke UP, 2022), Sarah Imhoff tells the story of an individual full of contradictions. Jessie Sampter (1883-1938) was best known for her Course in Zionism (1915), an American primer for understanding support of a Jewish state in Palestine. In 1919, Sampter packed a trousseau, declared herself "married to Palestine," and immigrated there. Yet Sampter's own life and body hardly matched typical Zionist ideals. Although she identified with Judaism, Sampter took up and experimented with spiritual practices from various religions. While Zionism celebrated the strong and healthy body, she spoke of herself as "crippled" from polio and plagued by sickness her whole life. While Zionism applauded reproductive women's bodies, Sampter never married or bore children; in fact, she wrote of homoerotic longings and had same-sex relationships. By charting how Sampter's life did not neatly line up with her own religious and political ideals, Imhoff highlights the complicated and at times conflicting connections between the body, queerness, disability, religion, and nationalism. Learn more about your ad choices. Visit megaphone.fm/adchoices

The Life Worth Living: Disability, Pain, and Morality (U Minnesota Press, 2022) investigates the exclusion of and discrimination against disabled people across the history of Western moral philosophy. Building on decades of activism and scholarship, Joel Michael Reynolds shows how longstanding views of disability are misguided and unjust, and he lays out a vision of what an anti-ableist moral future requires. More than 2,000 years ago, Aristotle said: "let there be a law that no deformed child shall live." This idea is alive and well today. During the past century, Supreme Court Justice Oliver Wendell Holmes Jr. argued that the United States can forcibly sterilize intellectually disabled women and philosopher Peter Singer argued for the right of parents to euthanize certain cognitively disabled infants. The Life Worth Living explores how and why such arguments persist by investigating the exclusion of and discrimination against disabled people across the history of Western moral philosophy. Joel Michael Reynolds argues that this history demonstrates a fundamental mischaracterization of the meaning of disability, thanks to the conflation of lived experiences of disability with those of pain and suffering. Building on decades of activism and scholarship in the field, Reynolds shows how longstanding views of disability are misguided and unjust, and he lays out a vision of what an anti-ableist moral future requires. The Life Worth Living is the first sustained examination of disability through the lens of the history of moral philosophy and phenomenology, and it demonstrates how lived experiences of disability demand a far richer account of human flourishing, embodiment, community, and politics in philosophical inquiry and beyond. Joel Michael Reynolds is an Assistant Professor of Philosophy and Disability Studies at Georgetown University, Senior Research Scholar in the Kennedy Institute of Ethics, Senior Bioethics Advisor to The Hastings Center, Faculty Scholar of The Greenwall Foundation, and core faculty in Georgetown’s Disability Studies Program. He is the founder of The Journal of Philosophy of Disability and co-founder of Oxford Studies in Disability, Ethics, and Society from Oxford University Press. Dr. Reynolds’ work explores the relationship between bodies, values, and society. He is especially concerned with the meaning of disability, the issue of ableism, and how philosophical inquiry into each might improve the lives of people with disabilities and the justness of institutions ranging from medicine to politics. These concerns lead to research across a range of traditions and specialties, including philosophy of disability, applied ethics (especially biomedical ethics, public health ethics, tech/data ethics, and ELSI research in genomics), 20th c. European and American philosophy (with an emphasis on phenomenology and pragmatism as practiced in connection with the history of philosophy), and social epistemology (particularly issues of epistemic injustice as linked to social ontology). Autumn Wilke works in higher education as an ADA coordinator and diversity officer and is also an author and doctoral candidate with research/topics related to disability and higher education. Learn more about your ad choices. Visit megaphone.fm/adchoices

In Queer and Trans Madness: Struggles for Social Justice (Palgrave Macmillan), Merrick D. Pilling urges those invested in social justice for 2SLGBTQ people to interrogate the biomedical model of mental illness beyond the diagnoses that specifically target gender and sexual dissidence. In this first comprehensive application of Mad Studies to queer and trans experiences of mental distress, Pilling advances a broad critique of the biomedical model of mental illness as it pertains to 2SLGBTQ people, arguing that Mad Studies is especially amenable to making sense of queer and trans madness. Based on empirical data from two qualitative research studies, this book includes analyses of inpatient chart documentation from a psychiatric hospital and interviews with those who have experienced distress. Using an intersectional lens, Pilling critically examines what constitutes mental health treatment and the impacts of medical strategies on mad queer and trans people.  Ultimately, Queer and Trans Madness: Struggles for Social Justice explores the emancipatory promise of queer and trans madness, advocating for more resources to respond to crisis and distress in ways that are non-coercive, non-carceral, and honour autonomy as well as interdependence within 2SLGBTQ communities. Clayton Jarrard works at the University of Kansas Center for Research, contributing to initiatives that bridge research, policy, and community efforts. His scholarly engagement spans the subject areas of cultural anthropology, queer studies, disability studies, mad studies, and religious studies. Learn more about your ad choices. Visit megaphone.fm/adchoices

In Clustered Injustice and The Level Green (Legal Action Group, 2020), Professor Luke Clements tackles the problem of the way in which "our legal system generates and exacerbates disadvantage." Examining the interconnectedness of disadvantage faced by many minorities - such as people who are homeless, Roma, Gypsies and Travelling people, disabled people, those within the criminal justice system, people who are chronically poor and more - he makes an argument that law segregates individuals' problems into isolated incidences, but rather than solving problems, this segregation exacerbates disadvantage. Injustice is clustered, it is interconnected and law, policy and bureaucracies'  failure to recognise this keeps people in positions of relative disadvantage and limits their opportunities to flourish in their own conception of the good life.  However, it is not all bad news. building on a wealth of professional experience and theoretical insight, Luke offers a roadmap for reform. He seeks to imagine a better system which would be better not just for those who face disadvantage, but for all members of the community.  Luke is the Cerebra Professor of Law and Social Justice at the School of Law, Leeds University. He practised as a solicitor between 1981 and 2021 and in that capacity had conduct of a number of cases before the European Commission and Court of Human Rights. In 1996 he was the solicitor who took the first Roma case to reach the Strasbourg Court Buckley v. UK (1996) Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK Learn more about your ad choices. Visit megaphone.fm/adchoices

Building on work in feminist studies, queer studies and critical race theory, this volume challenges the universality of propositions about human nature, by questioning the boundaries between predominant neurotypes and 'others', including dyslexics, autistics and ADHDers. Neurodiversity Studies: A New Critical Paradigm (Routledge, 2020) is the first work of its kind to bring cutting-edge research across disciplines to the concept of neurodiversity. It offers in-depth explorations of the themes of cure/prevention/eugenics; neurodivergent wellbeing; cross-neurotype communication; neurodiversity at work; and challenging brain-bound cognition. It analyses the role of neuro-normativity in theorising agency, and a proposal for a new alliance between the Hearing Voices Movement and neurodiversity. In doing so, we contribute to a cultural imperative to redefine what it means to be human. To this end, we propose a new field of enquiry that finds ways to support the inclusion of neurodivergent perspectives in knowledge production, and which questions the theoretical and mythological assumptions that produce the idea of the neurotypical. Working at the crossroads between sociology, critical psychology, medical humanities, critical disability studies, and critical autism studies, and sharing theoretical ground with critical race studies and critical queer studies, the proposed new field - neurodiversity studies - will be of interest to people working in all these areas. Christina Anderson Bosch is faculty at the California State University, Fresno. She is curious about + committed to public, inclusive education in pluralistic societies where critical perspectives on questions of social and ecological justice are valued enough to enact material dignity and metaphysical wellbeing on massive scales. Learn more about your ad choices. Visit megaphone.fm/adchoices

Out of the carnage of World War II comes an unforgettable tale about defying the odds and finding hope in the most harrowing of circumstances. Wheels of Courage: How Paralyzed Veterans from World War II Invented Wheelchair Sports, Fought for Disability Rights, and Inspired a Nation (Center Street, 2020) tells the stirring story of the soldiers, sailors, and marines who were paralyzed on the battlefield during World War II-at the Battle of the Bulge, on the island of Okinawa, inside Japanese POW camps-only to return to a world unused to dealing with their traumatic injuries. Doctors considered paraplegics to be "dead-enders" and "no-hopers," with the life expectancy of about a year. Societal stigma was so ingrained that playing sports was considered out-of-bounds for so-called "crippled bodies." But servicemen like Johnny Winterholler, a standout athlete from Wyoming before he was captured on Corregidor, and Stan Den Adel, shot in the back just days before the peace treaty ending the war was signed, refused to waste away in their hospital beds. Thanks to medical advances and the dedication of innovative physicians and rehabilitation coaches, they asserted their right to a life without limitations. The paralyzed veterans formed the first wheelchair basketball teams, and soon the Rolling Devils, the Flying Wheels, and the Gizz Kids were barnstorming the nation and filling arenas with cheering, incredulous fans. The wounded-warriors-turned-playmakers were joined by their British counterparts, led by the indomitable Dr. Ludwig Guttmann. Together, they triggered the birth of the Paralympic Games and opened the gymnasium doors to those with other disabilities, including survivors of the polio epidemic in the 1950s. Much as Jackie Robinson's breakthrough into the major leagues served as an opening salvo in the civil rights movement, these athletes helped jump-start a global movement about human adaptability. Their unlikely heroics on the court showed the world that it is ability, not disability, that matters most. Off the court, their push for equal rights led to dramatic changes in how civilized societies treat individuals with disabilities: from kneeling buses and curb cutouts to the Americans with Disabilities Act of 1990. Their saga is yet another lasting legacy of the Greatest Generation, one that has been long overlooked. Drawing on the veterans' own words, stories, and memories about this pioneering era, David Davis has crafted a narrative of survival, resilience, and triumph for sports fans and athletes, history buffs and military veterans, and people with and without disabilities. Paul Knepper was born and raised in New York and currently resides in Austin. His first book, The Knicks of the Nineties: Ewing, Oakley, Starks and the Brawlers Who Almost Won It All is available on Amazon and other sites. You can reach Paul at paulknepper@gmail.com and follow him on Twitter @paulieknep.   Learn more about your ad choices. Visit megaphone.fm/adchoices

A full transcript of the interview is available for accessibility. Mara Mills and Rebecca Sanchez's Crip Authorship: Disability as Method (NYU Press, 2023)is an expansive volume presenting the multidisciplinary methods brought into being by disability studies and activism. Mara Mills and Rebecca Sanchez have convened leading scholars, artists, and activists to explore the ways disability shapes authorship, transforming cultural production, aesthetics, and media. Starting from the premise that disability is plural and authorship spans composition, affect, and publishing, this collection of thirty-five compact essays asks how knowledge about disability is produced and shared in disability studies. Disability alters, generates, and dismantles method. Crip authorship takes place within and beyond the commodity version of authorship, in books, on social media, and in creative works that will never be published. The chapters draw on the expertise of international researchers and activists in the humanities, social sciences, education, arts, and design. Across five sections—Writing, Research, Genre/Form, Publishing, Media—contributors consider disability as method for creative work: practices of writing and other forms of composition; research methods and collaboration; crip aesthetics; media formats and hacks; and the capital, access, legal standing, and care networks required to publish. Designed to be accessible and engaging for students, Crip Authorship also provides theoretically sophisticated arguments in a condensed form that will make the text a key resource for disability studies scholars. Mara Mills is Associate Professor in the Department of Media, Culture, and Communication at New York University, where she co-founded and co-directs the Center for Disability Studies. Rebecca Sanchez is Professor of English and director of the disability studies program at Fordham University. An open access version of Crip Authorship can be found at Open Square of NYU Press. Clayton Jarrard is a Research Project Coordinator at the University of Kansas Center for Research, contributing to initiatives at the nexus of research, policy implementation, and community efforts. His scholarly engagement spans the subject areas of Cultural Anthropology, Queer Studies, Disability Studies, Mad Studies, and Religious Studies. Clayton is also a host for the Un/Livable Cultures podcast. Learn more about your ad choices. Visit megaphone.fm/adchoices

In her new book Fat, Pretty, and Soon to Be Old: A Makeover for Self and Society (AK Press 2019), sociologist and storyteller Kimberly Dark considers what it means to look a certain way. Integrating memoir with cultural critique, Dark describes her experience navigating the world as a fat, queer, white-privileged, gender-conforming, eventually disabled, and inevitably aging “girl with a pretty face.” Her essays take on self-improvement, self-acceptance, sexual attraction, language, aging, queer visibility, fashion, family, femininity, feminism, yoga culture, airplane seats, and the vilifying of fatness in the name of good health, among other compelling topics. Along the way, Dark edges readers toward a deeper understanding of how privileged (and stigmatized) appearances function in everyday life, and how the architecture of the social world constrains us all. Carrie Lane is a Professor of American Studies at California State University, Fullerton and author of A Company of One: Insecurity, Independence, and the New World of White-Collar Unemployment. Her research concerns the changing nature of work in the contemporary U.S. She is currently writing a book on the professional organizing industry. To contact her or to suggest a recent title, email clane@fullerton.edu. Learn more about your ad choices. Visit megaphone.fm/adchoices

Anna Ott died in the Wisconsin State Hospital for the Insane in 1893. She had enjoyed status and financial success first as a physician's wife and then as the only female doctor in Madison. Throughout her first marriage, attempts to divorce her abusive second husband, and twenty years of institutionalization, Ott determinedly shaped her own life. Kim E. Nielsen explores a life at once irregular and unexceptional. Historical and institutional structures, like her whiteness and laws that liberalized divorce and women's ability to control their property, opened up uncommon possibilities for Ott. Other structures, from domestic violence in the home to rampant sexism and ableism outside of it, remained a part of even affluent women's lives. Money, Marriage, and Madness: The Life of Anna Ott (U Illinois Press, 2020) tells a forgotten story of how the legal and medical cultures of the time shaped one woman--and what her life tells us about power and society in nineteenth century America. Learn more about your ad choices. Visit megaphone.fm/adchoices

In Crip Spacetime: Access, Failure, and Accountability in Academic Life (Duke University Press, 2024), Margaret Price intervenes in the competitive, productivity-focused realm of academia by sharing the everyday experiences of disabled academics. Drawing on more than three hundred interviews and survey responses, Price demonstrates that individual accommodations--the primary way universities address accessibility--actually impede access rather than enhance it. She argues that the pains and injustices encountered by academia's disabled workers result in their living and working in realities different from nondisabled colleagues: a unique experience of space, time, and being that Price theorizes as "crip spacetime." She explores how disability factors into the exclusionary practices found in universities, with multiply marginalized academics facing the greatest harms. Highlighting the knowledge that disabled academics already possess about how to achieve sustainable forms of access, Price boldly calls for the university to move away from individualized models of accommodation and toward a new system of collective accountability and care. Learn more about your ad choices. Visit megaphone.fm/adchoices

Disability, Care and Family Law (Routledge 2021) examines the issues at the intersection of disability, care and family law. Professors Beverley Clough and Jonathan Herring challenge dominant narratives in family law, which disadvantage people with disabilities. The book enables the questioning of structural norms in policy and society which situates disability as private familial concern. It calls to the forefront marginalised voices to unveil complexities in seemingly neutral laws when applied to people with disabilities. The book engages with highly topical issues - for example, mothering a child who is in prison and is disabled, children who care for their disabled parents, deprivations of liberty of children with disabilities, and more. By bringing these complex issues together, the book moves beyond the dyad between care and disability relations in the context of family law. This is an important book for disability lawyers, family lawyers and scholars of vulnerability, care theory and relational theory. It will have significant implications for policy makers and practitioners.  Professor Beverley Clough is a Professor of Law and Social Justice at Manchester Metropolitan University. She is also the author of The Spaces of Mental Capacity Law: Moving Beyond Binaries. Professor Jonathan Herring is the DM Wolfe-Clarendon Fellow in Law, Exeter College, University of Oxford. He is the author of several monographs, including The Right To Be Protected From Committing Suicide.  Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK Learn more about your ad choices. Visit megaphone.fm/adchoices

Nate Holdren is the author of Injury Impoverished: Workplace Accidents, Capitalism, and Law in the Progressive Era, published by Cambridge University Press in 2020. Injury Impoverished looks at the history of U.S. workplace injuries in the late-19th and early-20th Centuries. As the workers, employers, and reformers attempted to tackle the drastically high rates of workplace injuries and deaths, the nation passed a number of compensation laws that fundamentally changed how the law approached workplace injuries. Holdren, in examining this history illustrates the many shortcomings of these laws, and how laws meant to help employees were often used to do the exact opposite. At the heart of Holdren’s study is whether or not the economy and the legal system was interested in and able to do justice for a workers. Dr. Holdren is an Assistant Professor at Drake University. Derek Litvak is a PhD candidate at the University of Maryland—College Park. His dissertation, "The Specter of Black Citizens: Race, Slavery, and Citizenship in the Early United States," examines how citizenship was used to both bolster the institution of slavery and exclude Black Americans from the body politic. Learn more about your ad choices. Visit megaphone.fm/adchoices

All families have secrets but the facts requiring secrecy change with time. Nowadays A lesbian partnership, a “bastard” son, an aunt who is a prostitute, or a criminal grandfather might be of little or no consequence but could have unravelled a family at an earlier moment in history. In Keeping Family Secrets: Shame and Silence in Memoirs from the 1950s (NYU Press, 2023), Dr. Margaret K. Nelson is interested in how families keep secrets from each other and from outsiders when to do otherwise would risk eliciting not only embarrassment or discomfort, but profound shame and, in some cases, danger. Drawing on over 150 memoirs describing childhoods in the period between the aftermath of World War II and the 1960s, Dr. Nelson highlights the importance of history in creating family secrets and demonstrates the use of personal stories to understand how people make sense of themselves and their social worlds. Keeping Family Secrets uncovers hidden stories of same-sex attraction among boys, unwed pregnancies among teenage girls, the institutionalisation of children with mental and physical disabilities, participation in left-wing political activities, adoption, and Jewish ancestry. The members of ordinary families kept these issues secret to hide the disconnect between the reality of their own family and the prevailing ideals of what a family should be. Personal accounts reveal the costs associated with keeping family secrets, as family members lie, hurl epithets, inflict abuse, and even deny family membership to protect themselves from the shame and danger of public knowledge. Keeping Family Secrets sheds light not only on decades-old secrets but pushes us to confront what secrets our families keep today. This interview was conducted by Dr. Miranda Melcher whose doctoral work focused on post-conflict military integration, understanding treaty negotiation and implementation in civil war contexts, with qualitative analysis of the Angolan and Mozambican civil wars. Learn more about your ad choices. Visit megaphone.fm/adchoices

Yoshiko Okuyama's book Tōjisha Manga: Japan’s Graphic Memoirs of Brain and Mental Health (Palgrave Macmillan, 2022) defines tōjisha manga as Japan’s autobiographical comics in which the author recounts the experience of a mental or neurological condition in a unique medium of text and image. Yoshiko Okuyama argues that tōjisha manga illuminate otherwise “faceless” individuals and humanize their invisible tribulations because the first-person narrative makes their lived experience more authentic and relatable to the reader. Part I introduces the evolution of the term tōjisha, the tōjisha movements, and other relevant social phenomena and concepts. Part II analyzes five representative titles to demonstrate the humanizing power of tōjisha manga, drawing on interviews with the authors of these manga and examining how psychological or brain-related symptoms are artistically depicted in approximately 40 drawings. This book is highly recommended to not only scholars of disability studies and comic studies but also global fans of manga who are interested in the graphic memoirs of serious social issues. Shu Wan is currently matriculated as a doctoral student in history at the University at Buffalo. As a digital and disability historian, he serves in the editorial team of Digital Humanities Quarterly and Nursing Clio. On Twitter: @slissw. Learn more about your ad choices. Visit megaphone.fm/adchoices

The word "glitch" implies an incidental error, as easy to patch up as it is to identify. But what if racism, sexism, and ableism aren't just bugs in mostly functional machinery--what if they're coded into the system itself? In the vein of heavy hitters such as Safiya Umoja Noble, Cathy O'Neil, and Ruha Benjamin, Meredith Broussard demonstrates in More than a Glitch: Confronting Race, Gender, and Ability Bias in Tech (MIT Press, 2023) how neutrality in tech is a myth and why algorithms need to be held accountable. Broussard, a data scientist and one of the few Black female researchers in artificial intelligence, masterfully synthesizes concepts from computer science and sociology. She explores a range of examples: from facial recognition technology trained only to recognize lighter skin tones, to mortgage-approval algorithms that encourage discriminatory lending, to the dangerous feedback loops that arise when medical diagnostic algorithms are trained on insufficiently diverse data. Even when such technologies are designed with good intentions, Broussard shows, fallible humans develop programs that can result in devastating consequences. Broussard argues that the solution isn't to make omnipresent tech more inclusive, but to root out the algorithms that target certain demographics as "other" to begin with. With sweeping implications for fields ranging from jurisprudence to medicine, the ground-breaking insights of More Than a Glitch are essential reading for anyone invested in building a more equitable future. Learn more about your ad choices. Visit megaphone.fm/adchoices

In 1967, the US government funded the National Theatre of the Deaf, a groundbreaking rehabilitation initiative employing deaf actors. This project aligned with the postwar belief that transforming bodies, minds, aesthetics, and institutions could liberate disabled Americans from economic reliance on the state, and demonstrated the growing belief that performance could provide job opportunities for people with disabilities.  Disability Works: Performance After Rehabilitation (NYU Press, 2024) offers an original cultural history of disability and performance in modern America, exploring rehabilitation’s competing legacies. The book highlights an unexpected alliance of rehabilitation professionals, deaf teachers, policy makers, disability activists, queer artists, and religious leaders who championed performance’s rehabilitative potential. At the same time, some disabled artists imagined a different political itinerary for theatrical practice. Rather than acquiescing to the terms of productive citizenship, these artists recuperated rehabilitation as a creative resource for imagining and building a world beyond work.  Using previously unexplored archives, Disability Works portrays the history of disabled Americans’ performance labor as both a national aspiration and a national problem. The book reveals how disabled artists and activists ingeniously used rehabilitative resources to fuel their performance practices, breaking free from the grasp of rehabilitation and fostering more just institutions. From state-funded “sign-mime” to Black modern dance, community theatre to Stanislavskian actor training, speculative infrastructures to epistolary performance, Disability Works recovers an expansive repertoire of aesthetic and infrastructural investigations into the terms of how disability works in modern American culture. Learn more about your ad choices. Visit megaphone.fm/adchoices

Music lovers and researchers alike have long been fascinated by the story of Ludwig van Beethoven who became profoundly deaf as an adult and could not hear some of his most famous compositions including the Ninth Symphony. Many people have written about Beethoven’s deafness and speculated how he might have been able to compose despite his disability. Robin Wallace, however, is the first musicologist to write about Beethoven’s life and music who has had an intimate experience with deafness. Hearing Beethoven: A Story of Musical Loss and Discovery published by University of Chicago Press in 2018 pairs a new consideration of the effects of Beethoven’s deafness on his life and music with a loving memoir of the last years of Wallace’s first marriage after his wife, Barbara, suddenly lost her hearing. Written for a general audience as well as musicologists, in Hearing Beethoven, Wallace applies what he learned from Barbara’s experiences to Beethoven’s life. Wallace focuses on three main areas: Beethoven’s social life, the technology he used to help him hear speaking voices and music, and his compositional method and music. While providing new insights into Beethoven’s biography and compositions, Wallace also undermines some of the most enduring myths about Beethoven. He reminds us that neither Beethoven nor his wife Barbara overcame the challenges presented by their deafness, instead they strove to find “wholeness by learning to live within them.” Robin Wallace is a Professor of Musicology in the School of Music at Baylor University. He has published widely on the critical reception of Beethoven’s music including his first book, Beethoven’s Critics: Aesthetic Dilemmas and Resolutions During the Composer’s Lifetime (University of Cambridge Press, 1986). In addition to his scholarly publications, Wallace is the author of an introductory music textbook from Oxford University Press titled Take Note: An Introduction to Music through Active Listening. Kristen M. Turner, Ph.D. is a lecturer at North Carolina State University in the music department. Her work centers on American musical culture at the turn of the twentieth century and has been published in several journals and essay collections. Learn more about your ad choices. Visit megaphone.fm/adchoices

In Disability Worlds (Duke UP, 2024), Faye Ginsburg and Rayna Rapp chronicle and theorize two decades of immersion in New York City’s wide-ranging disability worlds as parents, activists, anthropologists, and disability studies scholars. They situate their disabled children’s lives among the experiences of advocates, families, experts, activists, and artists in larger struggles for recognition and rights. Disability consciousness, they show, emerges in everyday politics, practices, and frictions. Chapters consider dilemmas of genetic testing and neuroscientific research, reimagining kinship and community, the challenges of “special education,” and the perils of transitioning from high school. They also highlight the vitality of neurodiversity activism, disability arts, politics, and public culture.  Disability Worlds reflects the authors’ anthropological commitments to recognizing the significance of this fundamental form of human difference. Ginsburg and Rapp’s conversations with diverse New Yorkers reveal the bureaucratic constraints and paradoxes established in response to the disability rights movement, as well as the remarkable creativity of disabled people and their allies who are opening pathways into both disability justice and disability futures. A transcript of this discussion is available here. Learn more about your ad choices. Visit megaphone.fm/adchoices

During the COVID pandemic, billions of dollars in relief aid was sent out to help us ride out the storm, although many people who struggled through it might scratch their heads at such a number, having seen little of it make any concrete impact in their own lives. This discrepancy is indicative of the underlying problem with the contemporary care economy, a series of federal and state programs, healthcare facilities and NGO’s, all trying to bend the needs of those under their care to the mechanisms and incentives laid out by capitalism. The result is a massive apparatus that regularly fails to fulfill its supposed intentions, leaving workers and those in need of help in precarious and often dangerous situations.  This apparatus is untangled and explained in clear detail by Premilla Nadasen in her book Care: The Highest Stage of Capitalism (Haymarket Books, 2023). Informed by both her work as a historian and as a political activist, she manages to untangle and explain why the massive apparatus regularly fails to fulfill its purpose. She also outlines offramps, forms of resistance that workers and activists have taken to develop alternative anticapitalist forms of care that might someday allow us to truly flourish together. Premilla Nadasen is a professor of history at Barnard College, Columbia University. She is the co-director of the Barnard Center for Research on Women. She is also the author of Welfare Warriors: The Welfare Rights Movement in the United States and Household Workers Unite: The Untold Story of African American Women Who Built a Movement. Learn more about your ad choices. Visit megaphone.fm/adchoices

The Intelligence Quotient is a measure of intelligence that has life-or-death consequences. Should we trust it? GUEST Alan Gouddis is a Partner with Sherman & Sterling. He was recognized by The Legal 500 as a “Leading Lawyer” in M&A Litigation Defense in 2021.   This episode was produced by Andrew Middleton  and Liya Rechtman. Learn more about your ad choices. Visit megaphone.fm/adchoices

Jessica Lowell Mason and Nicole Crevar's Madwomen in Social Justice Movements, Literatures, and Art (Vernon Press, 2023) boldly reasserts the importance of the Madwoman more than four decades after the publication of Sandra Gilbert and Susan Gubar's seminal work in feminist literary criticism, 'The Madwoman in the Attic'. Since Gilbert and Gubar's work was published, the Madwoman has reemerged to do important work, rock the academic boat, and ignite social justice agency inside and outside of academic spaces, moving beyond the literary context that defined the Madwoman in the late 20th century. In this dynamic collection of essays, scholars, creative writers, and Mad activists come together to (re)define the Madwoman in pluralistic and expansive ways and to realize new potential in Mad agency. This collection blazes new directions of thinking through Madness as a gendered category, comprised of a combination of creative works that (re)imagine the figure of the Madwoman, speeches in which Mad-identifying artists and writers reclaim the label of "Madwoman," and scholarly essays that articulate ambitious theories of the Madwoman. The collection is an interdisciplinary scholarly resource that will appeal to multiple academic fields, including literary studies, disability studies, feminist studies, and Mad studies. Additionally, the work contributes to the countermovement against colonial, sanist, patriarchal, and institutional social practices that continue to silence women and confine them to the metaphorical attic. Appealing to a broad audience of readers, 'Madwomen in Social Justice Movements, Literatures, and Art' is a cutting-edge inquiry into the implications of Madness as a theoretical tool in which dissenting, deviant, and abnormal women and gender non-conforming writers, artists, and activists open the door to Mad futurities. Learn more about your ad choices. Visit megaphone.fm/adchoices

In her book Hell Hath No Fury: Gender, Disability, and the Invention of Damned Bodies in Early Christian Literature (Yale University Press, 2021), Meghan Henning illuminates how the bodies that populate hell in early Christian literature are punished after death in spaces that mirror real carceral spaces, effectually criminalizing those bodies on Earth. Contextualizing the apocalypses alongside ancient medical texts, inscriptions, philosophy, and patristic writings, this book demonstrates the ways that Christian depictions of hell intensified and preserved ancient notions of gender and bodily normativity that continue to inform Christian identity. Meghan R. Henning is associate professor of Christian origins at the University of Dayton. Schneur Zalman Newfield is an Associate Professor of Sociology and Jewish Studies at Hunter College, City University of New York, and the author of Degrees of Separation: Identity Formation While Leaving Ultra-Orthodox Judaism (Temple University Press, 2020). Visit him online at ZalmanNewfield.com. Learn more about your ad choices. Visit megaphone.fm/adchoices

John T. Maier's The Disabled Will: A Theory of Addiction (Routledge Press, 2024) defends a comprehensive new vision of what addiction is and how people with addictions should be treated. The author argues that, in addition to physical and intellectual disabilities, there are volitional disabilities - disabilities of the will - and that addiction is best understood as a species of volitional disability. This theory serves to illuminate long-standing philosophical and psychological perplexities about addiction and addictive motivation. It articulates a normative framework within which to understand prohibition, harm reduction, and other strategies that aim to address addiction. The argument of this book is that these should ultimately be evaluated in terms of reasonable accommodations for addicted people and that the priority of addiction policy should be the provision of such accommodations. What makes this book distinctive is that it understands addiction as a fundamentally political problem, an understanding that is suggested by standard legal approaches to addiction, but which has not received a sustained defense in the previous philosophical or psychological literature. This text marks a significant advance in the theory of addiction, one which should reshape our understanding of addiction policy and its proper aims. Jeff Adler is an ex-linguist and occasional contributor to New Books Network! Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, I speak with Federico R. Waitoller about his book, Excluded by Choice: Urban Students with Disabilities in the Education Marketplace (Teachers College Press). This book highlights the challenges faced by students of color who have special needs and their parents who evaluate their educational options. We discuss the services to which students with disabilities are entitled, how they are manifested in neighborhood and charter schools, and how they may be in tension with practices sometimes found in schools marketing themselves based on high test scores and college enrollment numbers. You can follow him on Twitter at @Waitollerf. His recommended books included the following: Ghosts in the Schoolyard: Racism and School Closings on Chicago's South Side by Eve L. Ewing (University of Chicago Press, 2018) Culturally Sustaining Pedagogies: Teaching and Learning for Justice in a Changing World by Djano Paris and H. Samy Alim (Teachers College Press, 2017) Savage Inequalities: Children in America's Schools by Jonathan Kozol (Broadway Books, 2012) Federico R. Waitoller is an associate professor in the department of special education at the University of Illinois at Chicago. Trevor Mattea is an educational consultant and speaker. His areas of expertise include deeper learning, parent involvement, project-based learning, and technology integration. He can be reached by email at tsmattea@pm.me or on Twitter at @tsmattea. Learn more about your ad choices. Visit megaphone.fm/adchoices