Living Hope (LivingHope2055)

How would you handle only knowing your father through stories from family and friends?  How does a young man honor the father he never had the opportunity to meet?  Trent Luna, a freshman in high school shares his journey how at an incredibly young age he went to Washington, DC, to share his story with Members of Congress; attended PurpleLight a yearly ceremony bringing those affected by pancreatic cancer together; walked in PurpleStride Orange County the walk to end pancreatic cancer, all to advocate for the father that was taken from him when he was only three and half months old.  Listen to his journey here on www.octalkradio.biz Orange County’s only community radio station, also on  www.facebook.com/LivingHope2055

www.livinghopepc.com

#PanCAN #PancreaticCancer #octalkradio #PaulRoberts #UCICove #PurpleLight

 

 

 

Thom Mrozek, a 12-year survivor of pancreatic cancer, diagnosed on the unique day of Leap Day. Thom's diagnosis day has become symbolic of his extraordinary journey—rare, remarkable, and filled with unexpected turns. As he celebrates each leap year, he also marks another year of survival, another year of making a difference, and another year of cherishing the gift of time. His story is a profound testament to resilience, courage, and the unwavering human spirit. 

This episode is dedicated to Tom Gregory and his wife Debbie. 

Jennifer Garrepy, Reiki Master, advanced studies in Healing Touch, and one of fewer than 100 Certified Healing Touch for Animals Practitioners worldwide. We chatted about how and why she was called to the healing arts, what to expect, how to prepare as well as my experience with a Healing Touch session.  After my session I felt more relaxed than I had in a long time, a calmness.  

For more information on Reiki/Healing Touch or to schedule an appointment please go to garrepy.com

Ben Franklin has been quoted as saying “In this world nothing can be said to be certain except Death and taxes” Death is a harsh reality that none of us wants to think about or deal with regardless of our health. Death is part of life and planning your estate can give you peace of mind that your wishes will be met, and your loved ones are taken care of.  

Allison Lee is a Trust and Estate Planning Attorney and the Associate General Counsel for Free Will.  Allison, whose career was helping others plan their estate now suddenly found it deeply personal.  She was shocked to learn that her otherwise healthy mother was diagnosed with pancreatic cancer. Allison shares her journey and the importance of estate planning.

Taking care of your Estate Planning will make things go smoothly.  Not having a plan in place your Estate could end up in Court and state law is going to govern where your assets go.  As hard as this can be the best thing we can do for our loved ones and ourselves is to have our arrangements in place.  This episode is not meant to take away hope but more to offer resources.  If you'd like more information, please contact Free Will at F-R-E-E-W-I-L-L-D-O-T-C-O-M   "As long as you speak my name, I shall live forever" - today's episode is dedicated to Melanie Darvin Stratler.

Reflecting back over 25 years with Hirshberg Founder Agi Hirshberg and her daughter Lisa Manheim, Executive Director.  Hirshberg Foundation got its start more than 25 years ago when Ron Hirshberg was diagnosed with pancreatic cancer.  Ron and Agi decided they were going to beat this disease together and live a long life, sadly six months later Ron died.  They had made a promise together to find a cure, it was only natural that Agi would continue after Ron's death.  We chat about how Hirshberg started with only two doctors, the importance of the "Five Pillars," the labs Hirshberg has funded, how five universities in the UC system collaborate together.

"As long as you speak my name I shall live forever" is dedicated to Ron Hirshbert

 

 

Nourishing Wellness: Eating Healthy on the Cancer Journey with Nutritional Therapy and Breathwork Facilitator Andrea O'Donnell

 

Thom Mrozek's decade-long battle with pancreatic cancer is a testament to resilience and determination in the face of a challenging illness. Such a journey likely involved numerous highs and lows, requiring immense strength and perseverance.

When a guest is unable to come, as sorry as we are, that gives Paul and I the opportunity to talk and do a little catch up.  We covered a large range of topics like the Hirshberg Symposium, Taking a Leap of Faith, PanCAN's PurpleStride OC, November Awareness, is COVID still affecting the pancreatic cancer community, mask vs no mask.

 

 

 

 

During the month of June, OC Talk Radio's program "Living Hope: Your Journey with Pancreatic Cancer" acknowledges the hardships that survivors endure and celebrates their strength and resilience. Meet our featured survivor Charles Czajkowski, a remarkable six-year pancreatic cancer survivor who lost his mother to the same disease 25 years ago. Diagnosed early, Charles underwent a robotic Whipple surgery and extensive chemotherapy. Charles lives by the mantra "Carpe Diem." Join us to hear his inspiring story of resilience, advocacy, and a zest for life.

 

Lisa had excruciating back pain but related it to the fact she was a runner.  She went to the Dr and because she was also having digestive issues and just didn't feel "right." It was decided she would also get an appointment with a GI Dr.  Xray on her back didn't show anything so she tried pain management while trying to make an appointment with her gastrologist.  Due to COVID she wasn't able to get an appointment right away.  During her ultrasound she looked up at the screen and saw nothing but her pancreas.  She had a horrible feeling and she remembered a colleague mentioning his wife was a medical student and she would always say "don't F with the pancreas."  When she didn't hear back from the Dr she felt everything must be ok.  They finally got back to her and said we found something, we need to get in there right away. It took two weeks to get the biopsy and that waiting time felt like an eternity. Getting the news from a resident was a horrible experience.  She hadn't heard from her gastrologist and felt left trying to figure out what she was going to do at that point.  Her relationship with her Dr was filled with mistrust.   Things started to look up when her company provided her with information about a group called Pinnacle Care.  They help people who receive a devastating  diagnoses and helps manage the medical world.  Lisa openly talks about chemotherapy, trying to re learn your body again in regards to eating and taking the enzymes. Her family and friends were a great support during this time, support came from people she never met.  Trying to live life with a new normalcy.  3 things -Don't google! Reach out to PanCAN Patient Services for great resources; understand your treatment, do not be afraid to ask your Dr over and over again why are you doing this; you have to believe you are in that 11%, you have to have that mindset that says "I'm in that 11% and never let go of that, never let anyone tell you, you are not. This episode of Living Hope is dedicated to fellow pancreatic cancer survivor Jenna James.

Vic Luna, OC PanCAN PurpleStride Chair shares why he became  involved and why you should join us for PanCAN PurpleStride Orange County 2022!  Do you know how the funds raised by PanCAN PurpleStride fight the worlds toughest cancer? Are you interested in volunteering or becoming a sponsor? 

Find these answers and more here on Living Hope; Your Journey with Pancreatic Cancer livestreaming on www.octalkradio.biz Orange County’s only community radio station. 

UCI Beall Applied Innovation at the Cove pancan.org 

Tori Larrick, is a Manager ll, Patient Services with the Pancreatic Cancer Action Network.  Tori has been with PanCAN for five years and was drawn to the organization due to the loss of her father to pancreatic cancer.  Tori supervises a team of Case Managers in the Patient Services department which provides information and resources to patients and families affected by pancreatic cancer.  Tori oversees the GenomOncology Explorer and biomarker search process for the Patient Services team and has extensive experience with clinical trials. Tori brings to light the importance of clinical trials for those diagnosed with pancreatic cancer and debunks the myths of clinical trials, here @OC Talk Radio Orange County’s only community radio station streaming live from @UCI Beall Applied Innovation at the Cove.

“As long as you speak my name I shall live forever.”

Today’s Living Hope is dedicated to Tori’s father

TIM LARRICK

 

Jay shares his personal journey with pancreatic cancer. Such openness can be incredibly impactful for others facing similar challenges, offering them insight, guidance, and hope.

Jenny Isaacson, Vice President of Stewardship & Partnerships at the Pancreatic Cancer Action Network, is responsible for the overall management and direction of the organization’s stewardship efforts. She also oversees strategic partnerships including the World Pancreatic Cancer Coalition, that came together in 2013 to discuss working together to raise global pancreatic cancer awareness and work collaboratively to support each other's efforts.  The group consists of more than 90 pancreatic cancer organizations in over 30 countries working to raise awareness and rewrite history for the world’s toughest cancer. 

"As long as you speak my name I shall live forever" is dedicated to Sandra Mack, a ten year pc survivor who died in September 2022

 

Mary Mickelson is a Case Manager I at the Pancreatic Cancer Action Network (PanCAN). Mary is passionate about ensuring that patients and caregivers receive all the information they need to be empowered and make informed decisions. On Living Hope, we discuss helping to get patients on the right track, clinical trials, the right team, learn what the Navigation Team is and what they do, clinical trial myths, and more.

"As long as you speak my name, I shall live forever" is dedicated to Mike Krazter.  

For more information please contact Patient Services at 877 2 pancan or 877-272-6226

 

We learned about clinical trials and their importance with Fatima Zelada-Arenas. Fatima is the Director of Patient Services Research and Education at the Pancreatic Cancer Action Network (PanCAN). She works directly with pancreatic cancer patients and caregivers providing resources and information. Fatima has a special interest in patient advocacy, research, and mental health.  We talked about clinical trials and their importance.    You can learn more "Pancreatic Cancer Clinical Trials:  What You Need to Know" https://youtu.be/rf9A1dErCsw

Colleen LaSalle shares her journey with her husband, John, diagnosed with stage lV pancreatic cancer.  John was put in a clinical trial and told with chemo he would have 3 years and without chemo one year, sadly John was gone in four months.  Colleen was John's Caregiver, it was difficult, she went from being his wife to being more like a parent.  She shares how she had to keep things as normal as possible for her two daughters. Colleen received no training or advice on how to be a Caregiver; it was a  learn as you go experience. Colleen has gone from being a wife, mother, caregiver, volunteer, advocate.  She wants to be there for others, to offer them the support and knowledge this journey has brought her, something that unfortunately she learned along the way.  Colleen and her girls are involved in bringing awareness and advocacy because they don't want John to be forgotten "he was here, he was important, he will always be important." This episode of Living Hope is dedicated to John LaSalle.  January is Clinical Trials Awareness Month and finding out John was in a clinical trial with an oral chemo that sadly did not help him but helped many pancreatic cancer survivors including myself was a little emotional for me but really brought the importance of clinical trials to a different meaning.

Agi and Ron met by chance when Agi’s father coached Ron’s son’s soccer team.  Little did they know that on that day they would meet, fall in love and marry 3 months later.   Ron was a real dynamite of a man, they balanced each other immediately.  Ron was a thinker and Agi was a doer. Partners in life, partners in business and partners in fighting pancreatic cancer.  Losing Ron was devastating but, Agi refused to give up on what they had been fighting for.  They were fighting for a cure, they were fighting to live.  After Ron’s death, Agi immediately took her pain and grief and turned it into something positive, the start of a foundation in memory of the man she loved.  Agi's daughter, Lisa had a promising career of her own.  Wanting to support her mother she agreed to help with the foundation while she was on maternity leave.  Though she fully intended to go back and pursue her career, 20+ years later Lisa is now the Executive Director for the Foundation for Pancreatic Cancer Research and Co-Founder of the annual event Tour de Pier. 

Agi, not one to let any grass grow under her feet started working on the foundation immediately after Ron’s death in May 1997.  In July,  that same year, the Hirshberg Foundation for Pancreatic Cancer Research was born.  

When asked what pearls of wisdom Agi could share with other Caregivers – "Have your moments, not just the disease.  Your life is not about the disease, it’s about your relationship and about how you love each other."

For more information on the Hirshberg Foundation and the Tour de Pier please visit www. https://pancreatic.org/

On OC Talk Radio, Orange County’s Only Community Radio Station streaming live every Thursday, at 11:00am PDT from the University of California-Irvine’s BEALL APPLIED INNOVATION CENTER at The Cove.  If you or anyone you know need help with their journey, please contact the Pancreatic Cancer Action Network’s Patient Services at www.pancan.org or call 877-2-PANCAN.  If you’d like to share your story or have story ideas, please contact Roberta Luna at LivingHope2055@outlook.com 

Pancreatic Cancer Action Network 

Dawnie Campbell, a Wife, mother, animal lover and a 2+ year pancreatic cancer survivor, shares her journey on how she went from being a energizer bunny to being exhausted.  While on a business trip Dawnie experienced pain in her side and went to urgent care.  Thinking it was a kidney stone, or infection she was give antibiotics.  After returning home the pain continues, Dawnie decided to see her Dr and was immediately sent to the ER.  Dawnie calls her husband, Scott letting him know she was going for tests and when she returns home they can decorate the house for Christmas.  She walked over to ER thinking they’ll run some tests, give her some medicine and she’ll go home and be fine, but no that was not to be, she was admitted immediately.

What was the best advice Dawnie received during her journey?  What did she do when uncomfortable with her treatment option? Find out the answers to these questions and more on OC Talk Radio Orange County’s only Community Radio Station livestreaming from  from UCI Beall Applied Innovation at the Cove Thursdays at 11:00am PDT 

If you or anyone you know need help with their journey, please contact the Pancreatic Cancer Action Network’s Patient Services at www.pancan.org or call 877-2-PANCAN.  If you’d like to share your story or have story ideas, please contact Roberta Luna at LivingHope2055@outlook.com 

Pancreatic Cancer Action Network 

For those of you that may not know, Marcus Welby, M.D. was a medical drama show that aired from 1969 to 1976.  Dr Welby was a family practitioner, with a great bedside manner, kind heart and made house calls! How do Doctors of today compare to the Dr Welby's of yesteryear?  Why do some give you a heartbreaking diagnosis only to leave you on your own? Are they embarrassed, or do they feel like they failed because once you reach a certain point they can no longer help you?  How do some Doctors handle the diagnosis of a deadly disease?  What are they taught in medical school?  Many of you have expressed these same questions.  We've explored them here on www.octalkradio.biz Orange County's only Community Radio Station livestreaming from UCI Beall Applied Innovation at the Cove Thursdays at 11:00am PDT 

If you or anyone you know need help with their journey, please contact the Pancreatic Cancer Action Network’s Patient Services at www.pancan.org or call 877-2-PANCAN.  If you’d like to share your story or have story ideas, please contact Roberta Luna at LivingHope2055@outlook.com

More Journeys can also be found on facebook.com/LivingHope2055  and our website www.livinghopepc.com

Pancreatic Cancer Action Network 

#PaulRoberts #PancreaticCancer #MarcusWelbyMD

 

 

In this episode of Living Hope we continue our conversation we started on March 24.  What to do when a loved one dies?  This is a subject no one wants to talk about but at some point it's information that can be helpful.  If we can all set down and talk about what we want when we die it would be so helpful for those left behind.  What is a  Advanced Health Care Directive? Is one needed?  Who needs to be notified? What kind of service should we have?  Would a check list be beneficial? These are some of the topics we talked about. It can be a heavy subject but we did have some laughs along the way.  

"As long as you speak my name, I shall live forever"

This episode is dedicated to Lupe Romero, "Inhale life to the fullest"

 

Teona Ducre is a pancreatic cancer survivor who uses her personal journey to raise awareness about the disease, particularly within the Black community. Diagnosed in 2016, she empowers individuals to advocate for themselves and emphasizes the importance of early detection. As a member of PanCAN’s Survivor Council Alumni, she promotes genetic and biomarker testing to improve treatment outcomes and assess familial risk, appearing in public service campaigns to amplify her mission.

In celebration of National Survivor Month this episode is dedicated to Survivor Kay Kays who was diagnosed in 1994

Dr. Jose Trevino serves multifaceted roles one as the Surgeon-in-Chief at Virginia Commonwealth University Massey Cancer Center. He is dedicated to not only providing patient care and education but also contributing to the field of pancreatic cancer research.  Developing novel therapies and advancing research in health disparities related to pancreatic cancer are crucial efforts that can have a significant impact on improving outcomes for patients.  Clinical trials play a crucial role in advancing medical research and improving healthcare outcomes. We had a honest in depth talk with Dr. Trevino about the world of clinical trials.  

"I wanted to be the that person that was going to tackle the the biggest obstacles and you can't get a bigger obstacle than pancreatic cancer." Dr Trevino

"As long as you speak my name I shall live forever" is dedicated to Shana Stein and the others who have participated in a clinical trial with our deepest appreciation.

 

The holidays for most are usually a time of joy, family gatherings and making lasting memories. This "wonderful time of the year," can also be very stressful for pancreatic cancer patients and their Caregivers. We had the opportunity to talk with Courtney Sparkuhl, about dealing with stress during the holidays. Courtney, is a licensed clinical social worker at UC Irvine Health working in the Comprehensive Digestive Disease Center (CDDC). Courtney provides supportive counseling and resource connection to patients with IBD, colorectal disease, and liver and pancreas diseases and cancer. Courtney is also a Pancreatic Cancer Action Network PatientChampion. A Patient Champion is a healthcare professional who shares PanCAN's resources with pancreatic cancer patients. 

Dr Kim joined us to talk about the use of the ViewRay MRIdian for treatment of pancreatic cancer at Hoag Hospital.  Dr Kim explains that the tumor needs to be hit with high energy x-ray beams.  To be able to hit the tumor you need to be able to see the tumor.  It's that simple. 

This is the only machine that uses MRI imaging to visualize the tumor. Tumors move with each breath and this machine allows the tracking of the tumor in real time allowing them to be precise in delivering treatment.

This episode of Living Hope is dedicated to the donors of the View Ray MRIdian Dean and Gerda Koontz

#DeanandGerdaKoontz #PancreaticCancer #Hoag Health

See the ViewRay MRIdian https://youtu.be/RRx8kd0vaXw

 

 

A daughter creates a notebook for Caregivers to help keep track of medical information for the family members and patient seeking treatment. The Founder of Hirshberg was impressed and Sarah has been a member of the Hirshberg team for ten years. This year is LA Cancer Challenges 24th annual event and the event always takes place on last weekend of October. The event is fun and festive with costumes, events for kids, trick or treat wall, a little something for everyone and leads up to November which is Pancreatic Cancer Awareness Month.

Held at UCLA Wilson Plaza register at www.lacancerchallenge.com for in person or virtual event. Registration; Fit Family Expo; Candyland Kids Zone opens at 7:30am.  Opening Ceremony begins at 8am with event start at 9am.

The most important part of the event is having Survivors, Patients and families attend, Sarah feels it's about having a sense of community.

Join Dr Li, the Honorary Medical Chair and Esther Lee, Honorary Starter, a pancreatic cancer survivor at LA Cancer Challenge on Sunday, October 31

Visit www.lacancerchallenge.com to register, for more event information and packet pickup details.  Also go to https://pancreatic.org/ for their webinar series. 

This episode of Living Hope is dedicated In Memory of Jane Dorr-Banks In Celebration of Survivor Esther Lee

 

 JB Jaso and Tyler Noesen were childhood friends.  Life has a way of moving on, Tyler, married the love of his life and JB went on to join the US Army and serve our country.  Even though they had not seen each other for a while, when Tyler was diagnosed with stage IV pancreatic cancer he asked JB to join him in Washington, DC and participate in PanCAN's National Advocacy Day.  JB didn't know what to expect that day, but from that day on he continued the fight with Tyler and still continues today even after Tyler's death in 2012. Whether you watch or listen as JB shares his journey you will be moved.  Taken from Tyler's Blog of Live "Dream as if you'll live forever, Live as if you'll die today."

Nikki was an oncology nurse practitioner for 15 years in the Chicago area.  Nikki relocated to Nevada and began volunteering with the Nevada Affiliate. Nikki’s journey with pancreatic cancer started when her brother-in-law was diagnosed in February 2014 and died in November that year. She made a promise to him that she would continue the fight and work on bettering the outcome for patients and for families.  She continued his fight by first volunteering with the Nevada Affiliate and later retiring from nursing to go on to her now position with PanCAN as a Case Manager with their Patient Services.  Nikki connects with newly diagnosed patients and their families, provides them with information and resources allowing them to make informed decisions.  Nikki provides great information on what Patient Services is and does and she leaves us with an important message. “Everyone needs to be their own advocate.  You have to push if you know something is different with your body, make sure you see your health care provider.  We’re your purple family that can help support you so please utilize us.”

This episode of Living Hope is dedicated to Patient Services and all the Case Managers. They play an important role in the patient and caregivers journey.

Thom Mrozek's willingness to share his experience with the Whipple Procedure offers invaluable insight into a significant aspect of pancreatic cancer treatment. The procedure is known for its complexity and challenges, and hearing firsthand from someone who has undergone it can provide a unique perspective. Thom's journey and his insights could help demystify the procedure for others facing similar decisions and offer them a sense of what to expect in terms of recovery and adapting to post-operative life. What specific aspects of his experience did Thom find most challenging, and what advice does he have for individuals preparing for or recovering from the Whipple Procedure?

JB's childhood friend, Tyler Neosen was diagnosed with pancreatic cancer when he was only 25 years old.  Tyler invited JB to attend his first PanCAN Advocacy Day in 2010, leading JB to continue to fight in Tyler's memory and becoming a volunteer with the Orange County Affiliate.  JB has only been Affiliate Chair for 3 months and with the core leadership group has devoted many hours planning the goals for FY 2022.   Besides supporting PanCAN's goals the OC Affiliate will hold monthly meetings giving updates about PanCAN, Affiliate updates, guest speakers and planning and supporting upcoming events.  A main goal will be supporting our Survivors and Caregivers, maintain federal advocacy efforts, increase our social media presence and turn Orange County Purple!   This episode of Living Hope is dedicated to Tyler Noesen. 

While facts are critical to understanding and treating the disease, feelings are equally important in shaping the patient's experience and approach to care. The podcast serves as a reminder that in the face of a challenging diagnosis, the fusion of facts and feelings guides not just survival, but the quality of life.

Eleven people out of one hundred will be alive five years after their pancreatic cancer diagnosis. The five-year survival rate for pancreatic cancer patients has increased recently from a single digit number to 11%. Tori Larrick, Patient Services Manager ll with the Pancreatic Cancer Action Network recently shared with us why early detection and better treatment options are some of the reasons why we are seeing this increase.

This episode of Living Hope is dedicated to PanCAN's Survivor Council and Survivor Council Alumni. The Survivor Council was formed to represent the voice of survivors and they are committed to ensuring that the survivor perspective is integrated into all that PanCAN does.

 

Andrea O'Donnell is a certified Nutritional Therapy Practitioner and owner of Rising Roots Nutrition. She started her business after years of struggling with her own health issues.  She went to the doctors but felt she was not being heard or supported by doctors. Wanting to bring her daughter into a healthier lifestyle and wanting to help others after her mother's diagnosis of pancreatic cancer, Andrea started her company.  You can contact Andrea at  andrea@risingrootsnutrition.com

Looking back this has been an amazing year for Living Hope and for myself.  Coming out of my comfort zone going from Podcast Producer to Podcast Producer and Podcast Host!  Never in my wildest dreams did I ever think I'd be here doing this.  This year we have shared my personal journey as well as the journeys of so many.  2021 has been anything but normal but hopefully the journeys shared have given us all hope and have inspired us in some way.  Though many of the journeys did not end the way we wanted, we shared in the tears, laughter, the understanding we weren't alone.  In 2022, we look forward to hearing from you.  Sharing your journey, ideas of what you'd like to hear more about.  Some may be controversial, but we hope you take something positive away from what you may hear.  In closing this episode of Living Hope is dedicated to all those that shared their journey, that watched or listened to Living Hope, the many non-profits that supported us helping us get off the ground.  A special thank you to Dawn Kamber, Public Affairs Director/Podcast Host of Impact OC, who started this many years ago and Paul Roberts, CEO and Station Manager who came up with the idea.  If you'd like to share your journey or have ideas for future episodes please email me at  livinghopepc@outlook.com or paul.roberts@octalkradio.net

 Thank you for being part of our 2021 journey and to future journeys!

What happens when you take two people out of their comfort zone and turn the tables?  Special guest Dawn Kamber, Public Affairs Director and Host of “Impact OC” is usually on the other side of the mic.  Dawn interviews guests who impact Orange County in a positive way.  We turned the tables when we asked Dawn to share her journey with pancreatic cancer which started with a simple media release.  Even being in the media, like most, Dawn had never heard of pancreatic cancer until she heard Michael Landon had been diagnosed.  Why aren’t we hearing more about the disease before reading it in the obituary?  What do we need to do to get and keep pancreatic cancer in the media forefront and not just when a celebrity is involved?  Why does someone who doesn’t have a personal connection with pancreatic cancer become involved? Answers to these questions and more on OC Talk Radio Orange County’s only Community Radio Station livestreaming from  from UCI Beall Applied Innovation at the Cove Thursdays at 11:00am PDT 

If you or anyone you know need help with their journey, please contact the Pancreatic Cancer Action Network’s Patient Services at www.pancan.org or call 877-2-PANCAN.  If you’d like to share your story or have story ideas, please contact Roberta Luna at LivingHope2055@outlook.com 

Pancreatic Cancer Action Network 

#PaulRoberts #PancreaticCancer #DawnKamber #TheCove 

Dr. Lighter Chen's exploration of acupressure and its potential to facilitate the body's natural healing process by balancing energy flow aligns with traditional Chinese medicine principles. Acupressure is believed to stimulate specific points on the body to alleviate pain, enhance relaxation, and promote overall wellness by addressing imbalances in the body's energy pathways.

Karen Mooney, a Board-Certified Registered Nurse with more than 12 years of inpatient oncology experience at an acute care hospital, joins us again to share information about barriers in clinical trials here on OC Talk Radio Orange County’s only community radio station streaming live from UCI Beall Applied Innovation at the Cove

How did a 19 year pancreatic cancer survivor start a crusade?  Find out by listening to our interview with Pancreatic Cancer Action Network Volunteer and Survivor Council Member, Roberta Luna. She’s a 19-year pancreatic cancer survivor who started a crusade to bring awareness, hope and inspiration to others in their journey with pancreatic cancer. Only on OC Talk Radio, Orange County’s Only Community Radio Station. Pancreatic Cancer Action Network’s Patient Services: pancan.org or call 877-2-PANCAN

 

 

Susie Lemieux was the Caregiver for her husband, Peter.  Peter survived 11 months before his death.  Six months after losing her husband, Susie was diagnosed with pancreatic cancer. People came to her and asked how did she get it, was it contagoius? Susie had nothing to compare it with and assumed in a year she would also be dead.  

Susie moved back to California with her daughter, Natascha.  Natascha became her Caregiver and was very supportive and involved in her healing journey.  Susie decided to take a little different route for her healing.  Susie shares her unique journey from Caregiver to Patient/Survivor and Natascha shares her journey as Caregiver for her mom.  Hear their inspirational journey.

"As long as you speak my name, I shall live forever." This episode is dedicated to Susie's husband, Peter Lemieux.

Julia Tominaga shares her journey with her brother Curtis, “the kind of brother that always looked out for his sisters...almost like having a third parent.” Curtis was diagnoses with stage IV pancreatic cancer after being taken to the ER.  There were few treatment options.  Curtis lived only two and half weeks after being diagnosed. After losing her brother, Julia wanted to do something to help others who were affected, she wanted them to know they weren't alone.  Hear why over 10 years later, Julia is still involved in helping others devastated by a pancreatic cancer diagnosis. Only on www.octalkradio.biz Orange County's only Community Radio Station livestreaming from UCI Beall Applied Innovation at the Cove Thursdays at 11:00am PDT

If you or anyone you know need help with their journey, please contact the Pancreatic Cancer Action Network’s Patient Services at www.pancan.org or call 877-2-PANCAN.  If you’d like to share your story or have story ideas, please contact Roberta Luna at LivingHope2055@outlook.com

More Journeys can also be found on facebook.com/LivingHope2055  and our website www.livinghopepc.com

Pancreatic Cancer Action Network 

#PaulRoberts #PancreaticCancer #DemandBetter

 

PS We're Back!  PanCAN Orange County Affiliate JB Jaso, joins us and we talk about PurpleStride Orange County!  Last time we had an in person PurpleStride was in 2019.  We're so excited to be back!  We talk about the route, the new way to do the Path of Heroes and how you can get involved!

This episode of Living Hope is dedicated to all those who helped put Orange County PurpleStride together:  JB, Vic Luna, Rosa and Juan Velasco, Ross Swartz, Rick Pinson, Colleen LaSalle, Madison, Julia, Silvia, Stephannie, Angels staff, Media sponsor OC Talk Radio, Paul Roberts, Le Grand Marketing, Sprouts

JB surprised me with a dedication to my 20th year survivor-versary!

Melissa knew at a very young age that she wanted to help those with cancer.  Initially she wanted to be an oncologist.  A professor took her aside and told her "you have a gift in you as a teacher, educator, researcher, you don't you consider this as a career?" 

Melissa Rowland-Goldsmith, affectionally referred to as Dr RG by her students took that advice and is the Associate Professor of Biological Sciences and Biochemistry and Molecular biology and Co-Director, Center for Excellence in Teaching and Learning at Chapman University.  We welcome Melissa back to learn about her unique teaching program for future physicians and researchers. 

 

"As long as you speak my name I shall live forever" is dedicated to Sandra Mack

This episode of Living Hope is a continuation of a pervious conversation about being a Caregiver with Stephanie Ruvalcaba Ho. What is a Caregiver? If you provide help to another person in need, you are a caregiver. Caregivers can be professional - hired through an agency or a family member stepping up.  Caregivers come in all different types - the one who takes care of all the medical needs, runs errands, meals, personal needs.  There is a lot to being a Caregiver, many challenges, roll coaster of emotions. Even with all these feelings there are some good things that can come out of this difficult situation. Listen as we have a very open and honest discussion here only on OC Talk Radio, Orange County's only community radio station streaming live from UC I Beall Applied Innovation at the Cove.

This episode of Living Hope is dedicated to all Caregivers and thank them for their care, support and love during our journey.  I’d like to end with a quote from Former First Lady, Rosalynn Carter: “There are only four kinds of people in this world: those who have been caregivers, those who are currently caregivers, those who will be caregivers and those who will need caregivers. Caregiving is universal.”

Christina Parrish, is a 14 year "Sur-Thriver" of Stage 4 Pancreatic Cancer.  Christina describes herself as sur-thriver because she strives to thrive everyday.  "It's important to realize that you are surviving everyday no matter the struggles."  Christina is the Founder of The Purple Iris Foundation.  Their mission is to raise awareness, provide support, and give hope to indivduals and families affected by cancer, in Maine.  Christina was in great shape and exercised regularly. She will share her journey with us and how her workout on a Pilates ball sent her to the doctor.

If you or anyone you know is in Maine you can contact The Purple Iris Foundation 

• https://www.purpleirisfoundation.com/
• purpleirisfoundation@gmail.com
• PHONE: 207-579-1969

"As long as you say my name, I shall live forever." This episode of Living Hope is dedicated to Peggy Kessler.  Peggy was diagnosed in 2001 and died in 2018.  Chris and I had the honor of meeting Peggy.  Peggy was a great inspiration not only to us but those she came in contact with.

 

Let's Win launched in 2016 with a goal of breaking down the barriers between the doctors, the patients and the researchers so that everyone diagnosed with pancreatic cancer has easy access to the latest information about the best treatment options.   Join us as we talk about the growth of Survivor stories, importance of clinical trials and genetic testing.  Let's Win platform educates patients and guides them to get to treatments and to clinical trials and information in lawmans terms.   "As long as you speak my name, I shall live forever," today's episode of Living Hope is dedicated to Anne Glauber  

What are the odds of going on your first date, talking, enjoying each others company.  You feel this amazing connection and in getting to know each other you ask the question "how did your spouse die?" Imagine the dismay they must have felt to realize they both lost their spouse to pancreatic cancer.

Lee and Dwaine are open and honest about their relationship, their relationship with their pervious spouses, their loss, how they found each other and their common passion to help others and how they keep fighting the world's toughest cancer in honor of their spouses.

This episode is dedicated to Sally Reitler and Chuck Mattei

Dr. Diane Simeone, a leader in the field of pancreatic cancer research currently serves as the Director of the Moores Cancer Center at UC San Diego Health. Dr. Simeone founded (PRECEDE) the Pancreatic Cancer Early Detection Consortium. Dr Simeone shares her insights into the challenges and advancements in combating one of the toughest forms of cancer. 

#PRECEDEConsortium #CancerBreakthroughs #DrDianeSimeone

#PancreaticCancer #CancerResearch #EarlyDetection #MooresCancerCenter

A quote from Hamlet is how Kitty felt when getting her diagnosis of pancreatic cancer.  Kitty was going through a difficult time dealing with her father's illness, a friend in the hospital, so much going on at one time.  It felt like the whole army was marching down on her.  How does someone diagnosed with pancreatic cancer feel like they are the luckist person in the world?  Kitty is very open in sharing her journey with us.  Kitty shares advice given to her husband from her Dr "Your wife is not a statistic, she is a person."  As well as her own advice, "Dont' lose hope, don't lose hope, be here while you're here."

"As long as you speak my name, I shall live forever." This episode is dedicated to Charlotte Rae, a great inspiration and the woman who introduced us.  We love you Charlotte!

Kitty Swink is an actress, activist, artistic director and a two time cancer survivor. She thought when at 39 she survived Breast Cancer she was done. Not so fast. 12 1/2 years ago at 49, she was diagnosed with Stage 2 Pancreatic Cancer, had a Whipple Procedure, chemo, radiation and more chemo and now at 62 she still shows no signs of disease. Grateful to be healthy and working at her craft she devotes a lot of time to helping others diagnosed with Pancreatic Cancer move forward with their lives. It has blessed her with many great friends, not the least of which is her adopted mom, Charlotte Rae. Her career began in commercials, regional theatre and off Broadway. She moved to California with husband of the year, every year, actor Armin Shimerman. She has appeared on dozens of television shows starting from It's Garry Shandling's Show and Designing Women, through Star Trek DS9 and Law and Order, on through The Fosters. She currently has two films on the Festival circuit, Penumbra and Diani and Devine Meet the Apocalypse. She is Associate Artistic Director of the award winning Antaeus Theatre Company. She has been nominated for Ovation, LA Drama Critic and Broadway World Awards and she has received an Independent Series Award, multiple Scenie Awards and an LA Drama Critics Award.  She is a former National VP of Screen Actors Guild.

Sarah Banks from Hirshberg Foundation joins us to discuss her own mother's journey with Pancreatic Cancer.  Sarah Banks' personal connection to pancreatic cancer through her mother's journey likely provides a deeply heartfelt and insightful perspective. Her experience may offer a unique blend of personal and professional insights into the challenges faced by both patients and their families when dealing with this disease.

June is National Cancer Survivor Month, a time dedicated to honoring cancer survivors, offering hope to those newly diagnosed, supporting their families, and engaging the community. During the month of June, OC Talk Radio's program "Living Hope: Your Journey with Pancreatic Cancer" acknowledges the hardships that survivors endure and celebrates their strength and resilience. Meet our featured survivor Camille Moses a dedicated patient advocate in the fight against pancreatic cancer. Camille tirelessly raises awareness and provides support for those battling this disease. Her commitment and contributions are invaluable in the battle against cancer. Join us to hear Camille's inspiring journey and her relentless efforts to make a difference. 

 

Rick Pinson and his wife Linda became involved with PanCAN’s Orange County Affiliate in 2009 after Linda was diagnosed with pancreatic cancer.  Rick shares his journey on why he still volunteers even after Linda's death in 2012.  Rick remains actively involved and advocates in memory and in honor of Linda.  Rick has been a leader serving as Advocacy Chair for the past 6 years and more recently accepted another role as PurpleStride Logistics Chair for the Orange County Affiliate. 

Hear how you can make your voice heard with your Members of Congress and request funding for pancreatic cancer research.  Only on www.octalkradio.biz Orange County's only Community Radio Station livestreaming from UCI Beall Applied Innovation at the Cove Thursdays at 11:00am PDT

If you or anyone you know need help with their journey, please contact the Pancreatic Cancer Action Network’s Patient Services at www.pancan.org or call 877-2-PANCAN.  If you’d like to share your story or have story ideas, please contact Roberta Luna at LivingHope2055@outlook.com

More Journeys can also be found on facebook.com/LivingHope2055  and our website www.livinghopepc.com

Pancreatic Cancer Action Network 

#PaulRoberts #PancreaticCancer #BeAnAdvocate #DemandBetter

 

 

 

Sisters, Allison and Erica start a non profit organization to honor their mother and continue her legacy.  Miracle for Melanie continues the Legacy that their mother started many years ago and continued during her fight with pancreatic cancer. 

For more information please visit the website www.miracle4melanie.org

"As long as you speak my name, I shall live forever," is dedicated to Melanie Darvin Stridler and to our Nation's Heroes she dedicated her life to.

 

 

 

 

 

 

 

 

Erica’s way of navigating her own grief by trying to make an impact or a difference

in the lives of others.

 

Jenny Isaacson was attending a conference when she heard Julie Fleshman, President and CEO of The Pancreatic Cancer Action Network, speak about her vision of progress to double the survival rate for pancreatic cancer by the year 2020.  Jenny was so impressed by Julie and her vision that she also wanted to be part of that vision. Jenny picked up the phone called Julie, that was ten years ago.  Though Jenny has filled different positions since joining PanCAN her position now allows her to oversee partnerships including the World Pancreatic Cancer Coalition.  Learn more about PanCAN, the World Pancreatic Cancer Coalition and why it is so important to have a month, November and a day, November 18, dedicated to pancreatic cancer?  Only on OC Talk Radio, Orange County’s Only Community Radio Station which streams live from @UCI Beall Applied Innovation Center www.livinghopepc.com  www.pancan.org #WPCD 

This episode of Living Hope is dedicated to Brenda Coleman a 13 year pancreatic cancer survivor at the time of her death.

“At the end of the day, I want everyone to know that our experiences with pancreatic cancer can serve a purpose. Every experience, everyone’s journey, can bring hope and inspiration, if we all work together to make a difference.” 

Laurie Paolone went to lunch with friends.  Later when she wasn't feeling well she thought she had food poisoning.  When the symptoms became worse she went to the Dr and was treated for an ulcer. It wasn't until someone noticed she was jaundice (yellowing of skin/eyes) that she was told to go to the ER immediately and learned she had pancreatic cancer.   The first thing Laurie thought of was "oh my God, I can't have my parents bury me."  Laurie shares her inspirational journey through the roller coaster ride of diagnosis, the Whipple, chemotherapy, radiation, being cancer free to reoccurrences, only OC Talk Radio, Orange County’s only community radio station, live streamed from UCI Beall Applied Innovation Center at the Cove.

 

’

Hear how a daughter used her grief to start the nonprofit Pancreatic Cancer Action Network.  For others going thru this same journey. Find out by listening to our interview with Pancreatic Cancer Action Network Founder, Pamela Acosta Marquardt. Only on OC Talk Radio, Orange County’s Only Community Radio Station. Pancreatic Cancer Action Network’s Patient Services: pancan.org or call 877-2-PANCAN. 

 

Losing someone can make the holiday season incredibly tough. It's okay to feel sad during these times. Finding ways to honor and keep the memories of our loved ones alive by sharing stories about them can be a beautiful way to keep their spirit alive during the holidays and help us through the grieving process. Guest Stephannie Ruvalcaba Ho shared some ways to remember our loved ones only on OC Talk Radio livestreamed from @UCI Beall Applied Innovation Center.

Not everyone is up to the Holiday cheer, this episode is dedicated to St James in Newport Beach “Annual Blue Christmas” service on Thursday, December 21 at 7pm “to pray, meditate and console your heart.” For information please email info@stjamesnewport.org

At the time of this episode, Courtney Sparkuhl was a licensed clinical social worker at UC Irvine Health. Courtney has sense left UC Irvine Health to start her own private practice, "Counseling for Cancer and Chronic Illness"

Is death the last taboo topic in America? It's a difficult conversation but one we all should have.  This topic is not meant to take away hope or pose a negativity but to provide the resources when the time comes.  We talk about what we should do.  What to do first, telling friends and family and so much more. 

@OC Talk Radio Orange County’s only community radio station streaming live from @UCI Beall Applied Innovation at the Cove.

“As long as you speak my name I shall live forever.”

This episode of Living Hope is dedicated to

Greg Willard

 

Why volunteer for a cancer that has such a dismal outcome? Bringing awareness being around people that you share something in common with helped her to heal having a voice helped her to feel empowered. 

Stephannie was the Caregiver for her Grandmother in the non tradional sense.  She would visit her, read to her, dance for her or just hold her hand and talk with her.

Stephannie's favorite event is PurpleStride, this year she had a different role, she was able to speak with people attending and was able to share her story and hear their story.  In talking to people they expressed they felt hope, felt love and gratiful to have so many people there fighting for a cure.

Stephannie feels volunteering with this group is rewarding in itself.  Being a part of something that is giving back to people. The deep friendships you make with the people you volunteer with is rewarding.  

"As long as you speak my name, I shall live forever." Is dedicated to my dad, Bill Whitson "Gramps" who died on June 1, 1998 - 25 years ago.

Amy Reiss, Director of Patient Programs with the Hirshberg Foundation for Pancreatic Cancer Research joined Living Hope to talk about the 18th Annual Hirshberg Symposium taking place on April 13 at UCLA Luskin Conference Center.  Symposium topics include the latest in pancreatic cancer care, genetic testing, enzyme research, just to name a few.  There’s also a chance to ask questions of the experts and connect with survivors.  You can attend in person or virtually, go to pancreatic.org to register.

This episode is dedicated to Survivors Julie Lopp and Tom Arai

 

We talk a lot about pancreatic cancer but for those who don't have a connection,  who may be newly diagnosed or just curious may not have a understanding of what we are talking about.  Hopefully this episode will help answer some questions.

 

Kelly Barber and her sister Wendi Cihacek share their journey with pancreatic cancer. Kelly talks honestly and emotionally about losing her husband, George, in 2006 to Pancreatic Cancer. Wendi did the unimaginable and moved across the state to support her sister and help with her niece, Megan, who was 2 at the time. Kelly took her pain and grief and turned it into something positive. She became involved with her local PanCAN affiliate, attending meetings, raising awareness and funds and sharing her journey with Members of Congress. Not surprisingly Wendi stepped in and supported her at every turn. Kelly shares, “When we first got started, it was just for George. Today, it’s still for George, but it’s also for all the people we’ve met who are alive and fighting.”  Only on www.octalkradio.net Orange County's only Community Radio Station, livestreams from UCI Beall Applied Innovation Center @TheCove www.facebook.com/LivingHope2055

www.livinghopepc.com 

www.pancan.org #PancreaticCancer #DemandBetter 

Rosa Velasco's journey with pancreatic cancer began after learning her coworker’s wife was fighting this deadly disease.  Instead of running away, Rosa ran towards Roberta and they soon became fast friends, “Besties.” Rosa and her husband Juan became a great source of support for Roberta and her husband Vic. During a PurpleLight in Orange County, a tribute to those affected by pancreatic cancer, Rosa, found out her grandmother died from the disease years earlier. Since learning about Roberta and her grandmother she has learned many of her coworkers have experienced pancreatic cancer in their lives as well.  Rosa, a real-life Angel feels she gets more than she gives.  Rosa is open, honest and vulnerable as she takes you through her journey and why she became, and stays involved with the world’s toughest cancer. Though she says, “its all about Roberta,” others like Lupe Romero, a six-year survivor before her death in 2019, touched her heart.  Rosa wants to keep fighting for all survivors and for their families. Though the journey can be hard at times, it is a way to give back and can be a joyous ride as well.  Rosa’s journey may cause you to shed some tears, but it will also bring some laughter and hopefully will encourage you to get involved.  Listen to her journey here on OC Talk Radio, Orange County’s only community radio station.  If you or anyone you know need help with their journey, please contact the Pancreatic Cancer Action Network’s Patient Services at 877-2-PANCAN.  If you’d like to share your story or have story ideas, please contact Roberta Luna at LivingHope2055@outlook.com

www.pancan.org

#voluntold #PanCAN #PancreaticCancer #Volunteer #octalkradio #PaulRoberts #UCICove #PurpleLight #RealLifeAngel

Elissa Oblath joined the Hirshberg Foundation for Pancreatic Cancer Research after hearing stories about her sister-in-laws father who had died from pancreatic cancer.  Though he died before they met, hearing her sister-in-law share stories about her father, inspired Elissa to get involved.  This connection drew Elissa to Hirshberg and she now serves as their Communication Director.  She shared her connection to pancreatic cancer, what a Communications Director does and upcoming event "Tour de Pier," on octalkradio.net Orange County's only community radio station. Livestreamed from UCI Beall Applied Innovation at the Cove 

If you or anyone you know need help with their journey, please contact the Pancreatic Cancer Action Network’s Patient Services at www.pancan.org or call 877-2-PANCAN.  If you’d like to share your story or have story ideas, please contact Roberta Luna at LivingHope2055@outlook.com

More Journeys can also be found on facebook.com/LivingHope2055  and our website www.livinghopepc.com

 

Ken Parme, a husband, father, grandfather a man with many talents when asked how he wants to be remembered he replied very simply "as a kind man." Ken is a very kind, friendly, talented man who I've had the pleasure of knowing for a number of years.  It wasn't until he shared his journey with us that I realized how much we had in common in regards to our diagnosis.  In December 2012 Ken was diagnosed with an inoperable tumor.  The tumor was wrapped around his veins, and lying against his aorta.

Ken took good care of himself, ate right and was active. He was a power walker and one day on a walk with his wife Rebecca, he couldn’t keep up with her. Rebecca insisted he go see his doctor. Tests were done and Ken was told he was a diabetic and started on insulin immediately. After starting insulin, Ken still felt lousy, so his wife made an appointment with an endocrinologist. Ken, shares his journey starting with his diagnosis of an inoperable pancreatic cancer tumor, his treatment with chemotherapy, the use of the new Cyber-Knife, his eight years "stable status" and a book he and his wife wrote together. Ken and Rebecca Parme wrote a book “In The Gaze of The Divine, Life with Pancreatic Cancer.” from the patient/survivor and caregiver point of view. Available on Amazon.  Ken has also written a children's book available on Amazon “The Adventures of Madde Mckinsey

This episode of Living Hope is dedicated to Ken's wonderful, wife and Caregiver, Rebecca. We want to leave you with a quote from their book, “May we all get to the place where we can accept -let go- and focus on the blessing of the day.”

Tori Larrick, Patient Service Manager with the Pancreatic Cancer Action Network guides us through clinical trials, what to expect and why clinical trial participation is safe.  Tori encourages anyone considering clinical trials to feel comfortable with reaching out to Patient Services and asking questions.  The first step is to feel free to contact PanCAN Patient Services.  They're happy to talk through any fears or concerns before making a decision. 

You can reach out to them on the website pancan.org, call 877-2-PANCAN or email patientservices@pancan.org

This episode of Living Hope is dedicated to our Caregivers.  Caregivers are important to the Survivor's journey.  We thank our Caregivers and want you to know you are not alone, we are here for you.  Regardless of where you are as a Caregiver you can reach out and speak with a Patient Service Case Manager and also ask to be connected with another Caregiver to share experiences.

Clarification on what is the Institutional Review Board: An IRB consists of at least five members of varying and diverse backgrounds. IRB members should have the professional experience to provide appropriate scientific and ethical review. An IRB must have at least one scientist member and at least one member whose primary concerns are nonscientific.

Diagnosed in June 2021, Mike Kratzer is an incredibly resilient individual. Facing pancreatic cancer with positivity can be a tremendous challenge, but it also speaks volumes about his strength and mindset. Maintaining such a positive attitude during a difficult journey like this can inspire and uplift not only himself but also those around him. How did he find the strength to stay positive, and what advice does he have for others facing similar challenges?

June is National Cancer Survivor Month, a time dedicated to honoring cancer survivors, offering hope to those newly diagnosed, supporting their families, and engaging the community. During the month of June, OC Talk Radio's program "Living Hope: Your Journey with Pancreatic Cancer" acknowledges the hardships that survivors endure and celebrates their strength and resilience. Our first featured survivor is Robert Panacci.

"From the very beginning of this unwanted journey, I have believed that not only could I survive this, but that I had to because I wasn’t ready to accept any other alternative.” Robert Panacci

Would you or maybe the question is could you run 52 marathons in one year? Who does that? That is one marathon every week! All of this while holding down a full-time job from 9am-5pm Monday through Friday.  Traveling Friday or Saturday, running on Sunday, returning home in time to be back at work on Monday.  Was it her love of running or something deeper and more personal? Our special guest Julie Weiss or maybe you know her as the “Marathon Goddess” shares her personal journey and why she runs for pancreatic cancer.  Here only on www.octalkradio.net Orange County’s only community radio station.

If you or anyone you know needs help with their journey, please contact the Pancreatic Cancer Action Network’s Patient Services at pancan.org or call 877-2-PANCAN.  If you’d like to share your story or suggest story ideas, please contact Roberta Luna at livinghope2055@outlook.com

More Journeys can also be found on facebook.com/LivingHope2055  and our website www.livinghopepc.com

Pancreatic Cancer Action Network UCI Beall Applied Innovation at the Cove

#PaulRoberts #MarathonGoddess #52Marathons #PancreaticCancer 

 

 

Dr. Lee Reitler and Dwaine Mattei-Reitler share their unique journey with pancreatic cancer.  You'll hear how they meet, how a conversation during their first date lead them to a  surprising connection and why they are passionate about helping others battling the world's toughest cancer. 

I can't believe a year has come and gone! Who knew, for me the first episode I would go from "Executive Producer," to actually becoming the host.  Looking back through our first year, so many amazing journeys, each one left me with wanting to learn more.  We shared so many emotions, laughter and tears but each one filled with love. Many of the journey's may not have had the outcome we hoped for but we still found something positive, some strength we could take from every journey.  Join us on our weekly journey as we provide hope here only on OC Talk Radio Orange County's only radio station live streaming from our station here at UCI Beall Innovation Center at the Cove

For Patient Services please contact the Pancreatic Cancer Action Network at

877-PAN 2-CAN

Share your journey by contacting us at octalkradio.net or paul@octalkradio.net

https://www.facebook.com/LivingHope2055

or email livinghopepc@outlook.com

Check out the Hirshberg Foundation for Pancreatic Cancer Research https://pancreatic.org/ for the recording of the 16th Annual Symposium that took place on April 23, 2022

Sarah Banks is the Development Manager for the Hirshberg Foundation for Pancreatic Cancer Research.  The 25th annual LA CANCER CHALLENGE was a walk/run benefitting the Hirschberg Foundation and their ongoing work battling Pancreatic Cancer.  LACC was held on Sunday, October 23rd, on the beautiful campus of UCLA, where much of the foundation’s research is conducted.  LACC is an annual Halloween-themed event benefiting pancreatic cancer research and includes a Fit Family Expo, activity tents, Candyland Kids Zone, Kids costume contest and so more!

#LACC #UCLA #pancreaticcancerawareness

 

How many of us can say "I know what I want to be when I grow up?" Dr Rowland-Goldsmith knew exactly wanted she wanted to be at a very young age.  She was horrified to hear a couple of girls make fun and laugh at a classmate when her wig fell off while changing for P.E.  You see this little girl and been diagnosed with leukemia and lost her hair during chemotherapy.  This event affected Melissa profoundly and she knew then she would be a oncologist.  Her path took a little detour but she still has a tremendous affect on those diagnosed with pancreatic cancer. Hear how her journey with pancreatic cancer will help mold future Doctors and Researchers to communicate better with patients.

Only on www.octalkradio.biz Orange County's only Community Radio Station livestreaming from UCI Beall Applied Innovation at the Cove Thursdays at 11:00am PDT 

If you or anyone you know need help with their journey, please contact the Pancreatic Cancer Action Network’s Patient Services at www.pancan.org or call 877-2-PANCAN.  If you’d like to share your story or have story ideas, please contact Roberta Luna at LivingHope2055@outlook.com

More Journeys can also be found on facebook.com/LivingHope2055  and our website www.livinghopepc.com

Pancreatic Cancer Action Network @ChapmanUniversity

#PaulRoberts #PancreaticCancer #IknowWhatIwant2BeWhenIgrowUp #DemandBetter #ChapmanU #DrRG #MeanGirls #Leukemia

 

Chemotherapy is a difficult treatment to go through.  As difficult as it was Dawnie found a way to not only help her get through it, but it helped her support group as well.  Dawnie is also very open about her experience with chemo side effects, neuropathy and having to learn her body again and neuropathy.  Only on www.octalkradio.net Orange County's only Community Radio Station, livestreams from UCI Beall Applied Innovation Center @TheCove www.facebook.com/LivingHope2055

www.livinghopepc.com 

 

Sunday, October 31, 2021 marked the 24th annual "L.A. Cancer Challenge." Due to the pandemic, last years event was virtual but this year the Hirshberg Foundation was excited to be back in person and on UCLA's Campus at Wilson Plaza. The 5K walk/run is always held on Halloween weekend, a fun festive event that leads up to November - Pancreatic Cancer Awareness Month.

Dr Zhaoping Li, served as Honorary Medical Chair.  Esther Lee, a one year+ Survivor was the Honorary Starter.

Congratulations! LA Cancer Challenge surpassed their goal of $500K by raising almost $530K!

 

 

  

 

Paul and I sat down and had a chat about the ways in which COVID has complicated people's battle with pancreatic cancer.  The affects it had on the patient and their families. Being back in person at PurpleStride, how having a positive outlook can get you through the difficult times.  What we hope for the future of Living Hope and more!

#PurpleStrideOC #PurpleStride #PancreaticCancer #COVID

 

November is important for those affected by pancreatic cancer in that it gives us a designated month to go the extra mile to bring awareness to the world's toughest cancer. World Pancreatic Cancer Day, is celebrated on the third Thursday of November.  This year it falls on November 18 #WPCD a day to nationally recognize pancreatic cancer, bring awareness by wearing purple, decorate home/office take a photo and post on social media.  Please use the following hashtags and post on social media. #WPCD #pancreaticcanceroc #PancreaticCancer #DemandBetter

PurpleLight is an event to recognize those that have died from pancreatic cancer and honor those who have fought and are still fighting.  Luminaire bags, garden rocks with names positive thoughts, breaking a glow stick are some ways loved ones are acknowledged. This year is a little different in that it will be a virtual event. 

"As long as you speak my name I shall live forever." This episode of Living Hope is dedicated to Rosa's grandmother "Rosa Dominguez"

Join us as we talk with Ariya Selvakumar and Haley Kamola, Co-Directors of the Kesem Chapter at Chapman University. Kesem is a national nonprofit dedicated to supporting children through and beyond a parent’s cancer diagnosis. With over 120 college chapters nationwide, Kesem provides free, year-long services to affected families. Discover how Kesem at Chapman University offers a unique and empathetic community in Orange County, highlighted by their annual Camp Kesem summer camp, which connects kids with similar experiences at no cost to their families.

#Kesem #CampKesem #ChapmanUniversity #OCTalkRadio #UCICove

#ChildhoodCancerSupport #CancerAwareness #CancerCommunity

#SupportForKids #OrangeCounty

 

US Army Ranger Veteran and pancreatic cancer survivor Chris Calaprice traveled 43,000 miles - on a Victory motorcycle to bring awareness.  He formed "Road to a Cure," and traveled one mile for every person diagnosed with pancreatic cancer that year.  Chris shares he "got a little crazy," in 2010, was angry and frustrated and wanted, needed to do something. Chris was on the road for 9 months, bringing awareness to the streets and small towns all the while doing chemo.  Chris and his partner are looking to start a PTSD equine therapy program and refocusing "Road to a Cure," to help veterans and cancer patients with the challenges of survival, survivors guilt, physical trauma and other concerns.  Chris is very open and honest in sharing his feelings and personal journey with pancreatic cancer.  This episode of Living Hope is dedicated to all the men and women serving or who have served our country and those who are battling pancreatic cancer.

Dr. Raymond Wadlow is the Director of the High Risk Pancreatic Cancer Clinic, which focuses on early detection and prevention for individuals at high risk of developing pancreatic cancer. This clinic is part of the Pancreatic Cancer Early Detection (PRECEDE) Consortium, an international effort to improve the five-year survival rate for pancreatic cancer patients.

Dr. Wadlow is a highly regarded oncologist at the Inova Schar Cancer Institute, specializing in gastrointestinal oncology. His commitment to cancer research and treatment is driven by the personal loss of his mother, former Virginia State Senator Emily Couric, to pancreatic cancer. In addition to his role at the clinic, he serves as Co-Director of Gastrointestinal Oncology Research, Program Director of the Hematology-Oncology Fellowship Program, and is an Assistant Professor at the University of Virginia School of Medicine.

 

What is the pancreas, where is it and what does it do? Can you live without your pancreas? What do you do after getting a pancreatic cancer diagnoses? Hear the answers to these questions and others, only on OC Talk Radio, Orange County's only community radio station live streamed from UCI Beall Applied Innovation Center at the Cove.

Pamela Acosta Marquardt and Julie Fleshman have both been profoundly impacted by the loss of their parents to pancreatic cancer, which fueled their dedication to creating change. In 1996, Pam faced the loss of her mother after a six-month struggle with the disease. Confronted by the lack of resources and support for pancreatic cancer, she was driven to take action, ensuring that individuals and families affected by this illness would have access to vital information, resources, and hope. Similarly, Julie's journey at PanCAN was ignited by personal tragedy when she lost her father just four months following his diagnosis at the age of 52. Dissatisfied with the inadequate treatment options available, Julie has spent over two decades as a leader and a global catalyst for change, fighting for better outcomes for those facing pancreatic cancer. Together, their personal experiences have not only shaped their leadership at PanCAN but also exemplified their unwavering commitment to the cause.

Amy Reiss, the Patient and Family Support Coordinator from the Hirshberg Foundation previewed their 17th Annual Symposium on Pancreatic Cancer (in collaboration with the UCLA Hirshberg Center for Pancreatic Diseases) that was held at UCLA's Luskin Conference Center March 11, 2023.

Watch the 17th Annual Symposium https://youtu.be/OgMZ-TqgrCc

SAVE THE DATE: The 18th Annual Symposium on Pancreatic Cancer is on Saturday, April 13!  Registration opens in January 2024

Monica loses both her parents to pancreatic cancer, first her mother and later her father.  Her mother wasn't given many options - either chemo or let nature take its course.  With the low survival rate the decision made was to let nature take its course.  Monica being a researcher googled pancreatic cancer and found a chat group.  After reading a few stories posted by family members, Monica felt her mother had been given a death sentence.  After losing her mother in 2003 she continued to do research but found nothing was really being done.  She joined the PanCAN Albuquerque, New Mexico Affiliate in 2012 after attending her first PurpleLight. Monica always loved to volunteer, pancreatic cancer ended up choosing her mother and that lead her into the direction of volunteering with PanCAN.  Monica is the Social Media Chair of the Michigan Affiliate and has also served as the Advocacy Chair.  The first thing she tells people she meets who have been diagnosed or their family members is to contact PanCAN.  "I'd let them know there is hope not to give up, different things going."  Monica feels going to Advocacy Day and sharing your stories with members of congress is very empowering.  It's important our representative know "My mother was just not a statistic, she was not a number she was a real person."  Monica was completely blindsided when she found out her dad was diagnosed with pancreatic cancer some years later.  Her father had seen what his wife and gone through so he was a little more aware and his was found earlier.  His symptoms were different, jaundice, itchy skin, he was able to have the whipple but sadly died less than a year later.  Monica hasn't really come to terms yet in losing her father, she is still  mourning  her mother.  Losing both parents to pancreatic cancer Monica is more involved and invested in the fight against pancreatic cancer.  Quoting one of her favorite researcher, Dr Howard Crawford "It can be bent."  Monica's goal is to raise as much awareness, keep her mothers legacy alive, "I don't want her to ever be forgotten and she won't be forgotten through me or the work that I do."

This episode of Living Hope is dedicated to Monica's mother Ranjana Upadhyaya "MAA"

You can reach Monica through the affiliate facebook https://www.facebook.com/groups/2095769850634842

or email mmishra@pancanvolunteer.org

A family friend gave 14 year old Tori a purple journey to help her cope with her feelings after learning her father had been diagnosed with pancreatic cancer.  Ironically at that time neither realized purple is the awareness color for pancreatic cancer.  Tori felt her journal offered her a safe place to write about her journey and also used this journal not only to write about her feelings but to also keep track of her dads symptoms, treatments, medications, test results, anything to do with his journey.  Hear how this teenage girl helped co-facilitate a support group for other teenagers who had lost their parent and how her experience led her to where she is today.  Only on OC Talk Radio, Orange County's only community radio station live streamed from UCI Beall Applied Innovation Center.  

Living Hope: Your Journey with Pancreatic Cancer host Roberta Luna and her husband Vic, recap the recent PurpleStride event at the Honda Center. This was the 16th such event in Orange County and is known as "the ultimate walk to end pancreatic cancer." Anaheim Ducks Goalie Coach Sudarshan “Sudsie” Maharaj was diagnosed with pancreatic cancer in May 2023, was the guest speaker.

Founder, Pamela Acosta Marquardt shares "What Only PanCAN is Doing."  Pam talks about how Patients/Survivors and their families can call "Patient Services," they will be assigned their own personal Case Manager and provided with the most updated resources and information at no cost. Information like "Know Your Tumor," "Clinical Trial Data Base," and the "Patient Registry," along with other helpful information. Updates on PanCAN's Advocacy, Research and so much more is explored here on www.octalkradio.biz Orange County's only Community Radio Station livestreamed from UCI Beall Applied Innovation at the Cove 

If you or anyone you know need help with their journey, please contact the Pancreatic Cancer Action Network’s Patient Services at www.pancan.org or call 877-2-PANCAN.  If you’d like to share your story or have story ideas, please contact Roberta Luna at LivingHope2055@outlook.com

More Journeys can also be found on facebook.com/LivingHope2055  and our website www.livinghopepc.com

Pancreatic Cancer Action Network 

"I was determined not to let cancer control my life.” Laurie MacCaskill a Professional Speaker, Motivator, Patient Advocate, Cancer Life Coach and a 17-year pancreatic cancer survivor shares her journey and some invaluable tools she developed to help in her fight with the world’s toughest cancer.

How does a man who can fix anything deal with learning his wife has pancreatic cancer?

Vic Luna, “Roberta’s Husband,” shares his journey of being a Caregiver for his wife of 46 years and his father-in-law and mother-in-law.  Years ago, Vic was given the nick name "nino fix it," by family and friends.  You had a problem, or something didn't work or was broken, Vic could always fix it.  "Nino fix it," could fix anything until pancreatic cancer, the world's toughest cancer entered his life. Here only on OC Talk Radio, Orange County’s only community radio station.  If you or anyone you know need help with their journey, please contact the Pancreatic Cancer Action Network’s Patient Services at pancan.org or call 877-2-PANCAN.  If you’d like to share your story or have story ideas, please contact us at LivingHope2055@outlook.com

www.pancan.org

Tom, away from home, gets a call on his 65 birthday from his Dr, not wishing him a happy birthday but instead telling him she needed to see you as soon as possible.

Tom, very active and an enthusiast bike rider is diagnosed with stage 4 pancreatic cancer.  Tom was not a candidate for surgery but went on a clinical trial.  Treatment went on for 15 months after which Tom received good news - he was "NED" - no evidence of disease.  Tom started an oral chemo and continues to take it today.  We talk about the importance of clinical trials, how he has been able to return to a "normal" way of life, he continues to ride his bike, play golf and enjoy life.  Tom continued to be as active as possible during treatment and found this was a way to help him through his treatment and the anxiety that goes along with treatment.  Tom shares his inspiration journey and how he continues to help others through their treatment and journey by hosting a support group through Zoom, every Friday 9am -10:30am PT - to join this support group or for more information regarding group please email Tom at ta20390@yahoo.com

"As long as you speak my name, I shall live forever."  This episode of Living Hope is dedicated to Susan Stueber.  When the pandemic hit Susan wanted to provide a weekly support group to help patients/survivors and caregivers.  She formed a group through Zoom and asked Tom to help her co-host the group which Tom has continued to do since Susan's death on September 29, 2022 her 70th birthday.

"As long as you speak my name, I shall live forever," is dedicated to Susan Stueber who in response to the pandemic wanted to offer a safe place for other pancreatic cancer patients/survivors and their Caregivers to turn.  To join the Friday morning support group please reach out to Tom at ta20390@yahoo.com

Stephannie helped take care of her grandmother, she wasn't her Caregiver in the traditional sense.  When asked to describe her grandmother Stephannie lovingly replied "tomboy and lace." Stephannie visited her grandmother everyday after she got home from work.  While others took care of her physical needs, Stephannie, which is just as important, took care of her emotional needs. Whether it was reading her stories, telling jokes, or modeling, Stephannie and her grandmother shared a very special time.

Stephannie, not yet over the loss of her beloved grandmother, finds herself dealing once again with a loved ones diagnosis of pancreatic cancer.  This time it is her mother-in-law, a woman she loves and respects.  Obviously, this woman feels the same way, she asks Stephannie to be her Caregiver.  Stephannie felt honored and she and her family moved to be closer to her mother-in-law.  Stephannie assumed the full responsibility of being her Caregiver, sometimes upsetting other family members.  Watch/listen as Stephannie shares her experience as a Caregiver in different capacities. @OC Talk Radio Orange County’s only community radio station streaming live from @UCI Beall Applied Innovation at the Cove.

“As long as you speak my name I shall live forever.”

This episode of Living Hope is dedicated to

Viola Galvan and Trang Huyng

 

 

"It's not what you know but who you know," was certainly true for 10-year pancreatic survivor Thom Mrozek.  Thom wasn't sure how public he wanted to be about his diagnosis, but when his daughter, who at that time attended an episcopal school asked at Chapel "can we pray for my dad?" her request started the ball rolling.   Thom woke up one morning with a recurring pain that went on for a few days.  The pain became worse, and he took himself to urgent care.  The location of his pain caused the urgent care Dr to check his heart.  His heart looked good, and the Dr felt it was a stomach problem probably an ulcer or acid reflux. He was given some medicine and told to follow up with his Primary Care doctor.  Thom went to his internist who ordered a series of tests.  Thom, standing in front of his office received a phone call from his Dr "Thom it's your pancreas, stop eating!" that comment lead to a "six-week testing treadmill."   Thom shares his inspirational journey and how a prayer request led to a community of support for Thom and his family.   "As long as you speak my name, I shall live forever." This episode is dedicated to Lupe Romero                  

In this episode of Living Hope, we welcome Mike Greenstein, a committed advocate in the battle against pancreatic cancer, driven by his experience as a caregiver for his sister Jackie. Mike combines his business expertise with deep compassion in his work at Let's Win! Pancreatic Cancer, aiming to strengthen the network of support for patients and their families. He delves into the caregiver's view on recognizing a patient's struggles and discusses ways to assist his sister within this reality. Additionally, Mike highlights the vital role that coaches play in guiding families through the pancreatic cancer journey. Tune in for a heartfelt discussion on empathy, assistance, and united efforts towards hope.

"As long as you speak my name, I shall live forever" is dedicated to Jaclyn Hope Greenstein. Jackie is remembered for her spirit and profound love for her family and friends, she was the embodiment of courage. Facing her fears with unwavering bravery.  Her legacy of inspiration continues to touch lives daily.