FUMS: Giving Multiple Sclerosis The Finger (Kathy Reagan Young)
Explore every episode of FUMS: Giving Multiple Sclerosis The Finger
| Pub. Date | Title | Duration | |
|---|---|---|---|
| 17 Jan 2020 | FUMS 052 – Dr. Aaron Boster Returns! | 01:14:17 | |
Today's episode of the FUMS Podcast Show features another fascinating conversation with Dr. Aaron Boster MD. If you missed his last appearance make sure you check out Episode 49. At the end of 2019, Dr Boster published an article called Treating MS: A Simplified Strategy Boosts Patient and Provider Satisfaction. The common-sense approach he outlines is certainly a lot more rare than it should be! So Kathy wanted to find out more about this and his exciting plans for treatment in the future. Topics covered include:
Resources for this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, get on the waiting list at FUMSnow.com/PatientsGettingPaid. AND be sure to join the Patients Getting Paid Facebook Group! ** If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It’s quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Page and on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!! -- ++++++ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him here: https://podcastingeditor.com/ | |||
| 31 May 2019 | FUMS 040 – MS Stories From Around the World #5: Col Chandler (Australia) | 00:52:20 | |
This episode is the fifth part of our international series where Kathy talks to MS’ers from around the world, to see how their diagnosis and treatment experiences differ from in the U.S. Today's guest is Col Chandler,a surfer, artist, entrepreneur and energetic MS Ambassador from Queensland, Australia, who was diagnosed in 2014. Col is relentlessly positive, seeing his diagnosis with Primary Progressive MS as an opportunity for change, not necessarily for diminishment. Topics covered include:
Resources mentioned in this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, get on the email list at FUMSnow.com/PatientsGettingPaid. **If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It’s quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Page and on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!! | |||
| 01 Nov 2019 | FUMS 050 – The 50th Episode Celebration! | 00:13:33 | |
Today's episode of the FUMS Podcast Show is a special one. We’ve reached a significant milestone - our 50th Episode! Many thanks to everyone who has appeared on or has listened to or shared the FUMS podcast. This show is for all the FUMS’ers out there. We’ll see you for the next fifty! Including:
As a special gift to the FUMS Nation, go here to download “Wash Your Mouth Out With Hope”, the FUMS podcast theme song, written by Kathy Reagan Young. ** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, get on the waiting list at FUMSnow.com/PatientsGettingPaid. AND be sure to join the Patients Getting Paid Facebook Group!
**Don’t forget to join us on the FUMS Facebook Page and on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!! -- Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him here: https://podcastingeditor.com/ | |||
| 20 Sep 2019 | FUMS 047 – Stem Cell Treatment and MS with Peggy Manchester | 00:31:24 | |
Stem Cell Treatment is still the biggest story in Multiple Sclerosis - despite the fact that this option is not possible for the vast majority of patients. Peggy Manchester took the plunge and tells Kathy all about her experiences in this podcast. Peggy is a Professional Board-Certified Wellness Coach and has over twenty years' experience in the health and fitness industry. She was diagnosed with MS in 1996 and had Stem Cell therapy after becoming frustrated by her DMT options AND her neurological team. Topics covered include:
Full show notes and resources at https://fumsnow.com/fums-047-stem-cell-treatment-and-ms-with-peggy-manchester | |||
| 08 Jan 2021 | FUMS 072 - Coronavirus Vaccines & MS - WTF? Featuring Dr. Aaron Boster | 01:02:28 | |
It's a New Year! And although the COVID-19 crisis is still ongoing, there is light at the end of the tunnel with vaccines beginning to be rolled out. But even though this is really positive, there is a lot of misinformation out there about the COVID vaccines in general and how they interact with chronic health conditions like Multiple Sclerosis. If we need someone to cut through all the BS and talk about this, who else are we going to turn to other than Dr. Aaron Boster MD? He's been featured on the podcast twice before (FUMS 049 and 052) so he's the perfect person to bring on to sort through the noise and speak directly to how this affects us! He also spends time answering questions from FUMSers and tearing down a few Anti-Vaccine myths. This conversation was originally published as a Facebook Live even - see the original video on the FUMS YouTube channel. Topics covered include:
Resources for this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 17 May 2019 | FUMS 039 – MS Stories From Around the World #4: Dave Head (Canada) | 01:11:14 | |
This episode is the fourth installment in our international series where Kathy talks to MS’ers from around the world, to see how their diagnosis and treatment experiences differ from in the U.S. Today's guest is Dave Head, a writer and patient advocate from Calgary in the Canadian province of Alberta. Canada not only has the second highest rate of MS globally, it also has the highest rate per capita in the world. Topics covered include:
Resources mentioned in this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, get on the email list at FUMSnow.com/PatientsGettingPaid. **If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It’s quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Page and on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day! | |||
| 03 Aug 2018 | FUMS 018 - An Ankle Brace to Revolutionize Ankle Braces | 00:20:54 | |
Dr. Fred Ferlic is a man on a mission. He is a recently retired orthopedic surgeon whose career spans 40 years, and 20 of those he spent as the team doctor for both the men’s and women’s basketball teams at his Alma Mater, the University of Notre Dame. He has partnered with the inventor of the TayCo Brace to take this revolutionary product to help millions of people around the world. He passionately believes that the TayCo Brace can have such a huge impact and help millions of people who are suffering from ankle sprains, ankle fractures, MS, diabetes, osteoarthritis, rheumatoid arthritis, and other injuries to be able to regain their balance and ultimately function in their everyday lives. This brace will allow you to do the three things needed in the 21st century life – shop, drive and work. | |||
| 22 Jun 2018 | FUMS 015 - Country Music Singer Julie Roberts and Her MS Journey | 00:33:22 | |
Humble, kind, unassuming – those are just a few words I’d use to describe my guest today, country music singer Julie Roberts. I’d also say talented, brave, loving, strong and selfless. Hers is an amazing story – from a small town in South Carolina where she, her sisters and her mother were victims of domestic abuse, to Nashville, Tennessee making gold records, to a stage in Asheville, North Carolina where she lost the feeling in her hands and her sight went blurry while on stage one evening! That led to her diagnosis of Multiple Sclerosis. | |||
| 08 Mar 2019 | FUMS 034 – Get a FREE Personal Health Coach Through Pack Health as Outlined by Guest M’Kayl Lewis | 00:18:50 | |
Today’s guest on the FUMS Podcast is M’Kayl Lewis, Vice President of Member Services at Pack Health. Pack Health is a groundbreaking digital health coaching platform for chronic disease management, which partners patients with their own personal health advisor. Through weekly coaching sessions, as well as personalized follow-ups online, over the phone and via text, Pack Health aims to enable anyone who has or is at risk for a chronic condition to live their healthiest, happiest life. Best of all, Pack Health's services are provided FREE OF CHARGE to its members. Even better, M’Kayl has 80 programs available to share with FUMSers today! Topics covered include:
Resources mentioned in this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack email newsletter at FUMSnow.com. And for more information about Patients Getting Paid, please visit FUMSnow.com/PatientsGettingPaid. **If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It's quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Page and on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com And remember to speak to this stupid disease as it deserves: tell it FUMS every day!! | |||
| 26 Oct 2018 | FUMS 024 – Social Security Disability Benefits & MS | 00:47:40 | |
This episode features an interview with Mary Dale Walters, the Senior Vice President of Strategic Communications at Allsup - a company specializing in providing disability services. For over 30 years, the company has successfully helped more than 300,000 individuals receive their Social Security Disability benefits. In this episode, she will walk us through a large number of resources and relevant information necessary to have a clearer understanding of the application process for Disability Insurance and other benefits. She advises us to be specific in addressing our needs when applying for disability benefits. "It's not that you have a disability, it's that you can't work because of your disability." | |||
| 09 Nov 2018 | FUMS 025 – Getting Paid For YOUR Patient Experience | 00:23:18 | |
Today’s episode is an interview with Jen Horenjeff a patient advocate, Ph.D. and the founder of Savvy Cooperative, a platform that connects patients and others in healthcare, providing the industry with real patient input and experiences to help improve products and services for a better patient experience. And it compensates those patients for that valuable information. In this episode, Jen explains how being a patient and a professional opened the door for her to connect the patient experiences and knowledge to create a platform to improve the work of medical professionals and provide better patient experience through research, products, and services. She also shares the value of being in a cooperative. It’s all about being valued and understood, knowing that your perspective matters. Every patient has something very unique to offer and professionals should be aware of that. The beauty of being in coop is that it's a union that’s more powerful the more members join and engage in it. Full show notes and resources: https://fumsnow.com/fums-025-getting-paid-for-your-patient-experience | |||
| 15 May 2020 | FUMS 060 - MS Advocate Cathy Chester Shares Her Journey | 00:31:37 | |
Cathy Chester is an unstoppable, one-woman advocacy machine! And because of this, she's an FUMSer to the core. Cathy experienced her first symptoms of MS shortly after graduating from college. But like so many of us, it was a number of years before she received a formal diagnosis. Since then she has dedicated herself to advocating for her condition and ensuring that the patient voice is heard loud and clear. Cathy's writing has been featured on MultipleSclerosis.net, Huffington Post, and Multiple Sclerosis News Today. And she has been featured in Woman's Day magazine, Momentum magazine, Everyday Health, and Harvard Radio to name but a few. In this episode, Kathy-with-a-K talks to Cathy-with-a-C about how she got started out in patient advocacy through hard work and making connections. Topics covered include: Cathy's MS diagnosis story Early experiences of patient advocacy and her decision to start writing a blog Her work as a speaker consultant for pharmaceutical companies which means she is a #PatientGettingPaid The value of finding your own patient voice Resources for this episode (clickable links): Visit Cathy's An Empowered Spirit blog Cathy's writing on MultipleSclerosis.net, Huffington Post, Multiple Sclerosis News Today An Empowered Spirit on Facebook Cathy Chester on Twitter, Instagram and YouTube Help keep FUMS alive at the FUMS Podcast Patreon page Buy FUMS merch in the FUMS shop Sign up for the Patients Getting Paid email waiting list ** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him here: The Podcasting Editor | |||
| 24 Mar 2018 | FUMS 009 - MS and Marijuana | 00:39:53 | |
Teri Heede is an MS warrior, cannabis advocate and activist, mother, grandmother, wounded vet, widow and an inspiration. In this episode, she tells her story of her MS diagnosis, trying ALL the meds available, failing on them all and finding cannabis to immediately relieve her MS pain and spasticity. | |||
| 25 Jan 2019 | FUMS 031 - Multiple Sclerosis and the Science of Sleep with Tamara Sellman | 01:05:19 | |
Our guest today is Tamara Sellman. Although Tamara has Multiple Sclerosis, she is also a medical board-certified sleep technologist and a medical board-certified sleep educator. And it's her professional life which is the main focus of this fascinating conversation. Topics covered include:
Full show notes and resources at https://fumsnow.com/fums-031-multiple-sclerosis-and-the-science-of-sleep-with-tamara-sellman | |||
| 23 Mar 2021 | FUMS 077 - Tamara Sellman: Author of New MS Poetry and Prose Book "Intention Tremor" | 00:38:58 | |
Tamara Sellman was last on the FUMS podcast back on Episode 31 - when she was talking about sleep disorders and her professional life as a medical board-certified sleep technologist and sleep educator. It was during her training that she was diagnosed with Multiple Sclerosis. A widely published writer in the years following her diagnosis in 2013, Tamara wrote the collection of prose and poetry which makes up her "hybrid memoir", Intention Tremor, which was published in early 2021. We talk about why she writes, why she writes about MS in particular, and the difficulties of launching her first book during a global pandemic. Topics covered in this episode include:
Resources for this episode (clickable links):
** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 26 Jul 2019 | FUMS 043 – Flexible, Remote Work Opportunities for the Chronically Ill with Hannah Olson | 00:24:50 | |
Today's guest is Hannah Olson. Hannah was diagnosed with Lyme disease in 2015. Frustrated by a feeling that her chronic illness was incompatible with her career goals, Hannah founded Chronically Capable, a company that connects chronically ill people with legitimate flexible work opportunities. Additionally, she works as a National Lyme Ambassador and a workplace inclusion speaker, advocating for the chronically ill community. Topics covered include:
Resources mentioned in this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, get on the email list at FUMSnow.com/PatientsGettingPaid. Or join the Patients Getting Paid Facebook Group! **If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It’s quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Page and on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!! | |||
| 11 May 2018 | FUMS 012 - Low Cost High Tech Help For MS'ers | 00:40:37 | |
In today’s episode, Occupational Therapist Gabe Byars shares all the ways that assistive technology can help us in our everyday life with MS. Learn about integrating various technologies to turn your lights off and on, adjust the heat or air conditioning, see who’s at the door and let them in, raise and lower the blinds – all on voice command! Imagine the energy you’d save. Gabe also shares tips and tricks like using your smart phone’s calendar to free up your mind from having to remember everything, using a medicine reminder app to keep us on track with all of our meds, setting a reminder to prompt us to stretch throughout our day or use an app to track us when we go out for a walk so our loved ones feel reassured of our safety. Learn about the future of smart tech for healthcare, including smart monitoring of health conditions like using a contact to continually check blood sugar as opposed to a diabetic having to stick themselves repeatedly. There is a lot of research going on now regarding biomarkers in MS. Perhaps in the not-too-distant future, we’ll see remote monitoring of our symptoms with a predictive ability! How great would that be?! | |||
| 17 Aug 2018 | FUMS 019 – Adaptive Yoga, Mindfulness, and Meditation with Mindy Eisenberg | 00:33:03 | |
Mindy Eisenberg is a former hospital administrator, turned yoga instructor who’s dedicated to increasing the quality of life for those with disabilities. She does this in loving memory of her mother who had progressive MS. Mindy is the author of Adaptive Yoga Moves Any Body and manages the fast growing Yoga Moves MS community. In today’s episode she shares her philosophy of healing and the importance of the mind body relationship to health and healing. At the end the episode Mindy guides us with a beautiful and very relaxing breathing meditation that you can try at home, at the doctor’s office, in an MRI, and anywhere or anytime you need to feel relaxed and centered. Enjoy this episode, and namaste. | |||
| 08 Jun 2018 | FUMS 014 - TV News Anchor Shares Her MS Story | 00:41:21 | |
Katie Collett is an Emmy-nominated news anchor on WAVY-TV 10 and Fox 43, the local NBC affiliates in southern Virginia – where I live. She’s also a wife, a mother, a daughter, a friend, etc. – and she has MS. She’s up at 2:15 am and works from 3:30 am – 1:00 pm! And that’s just her day job. She has a 4-year-old little boy at home too! AND she is a very vocal advocate for MS awareness and a participant in a multitude of fundraising efforts. She’s pretty amazing – but I think she’d deny that. She’s also really humble and down-to-earth. She tells me all about her first symptoms and how she was diagnosed. We talk in depth about disclosing at work and she offers some great advice. This is a “can-do” woman and she’s got MS in her sites. I’m really glad she’s on our team. She’s not going to give up until there’s a cure. And she’s got a great FUMS attitude, always looking at the bright side and using phrases like “I’m very fortunate,” “I appreciate life,” and “I refuse to lose.” Hers is an interesting and inspirational story. | |||
| 10 Jul 2020 | FUMS 064 - Damian Washington – YouTube Star and MS Sunshine | 00:45:53 | |
Damian Washington is a true force of nature! Prior to his MS diagnosis, Damian was an actor who was also dipping his toes into vlogging. When he started to turn the camera onto his life with MS, the immediate response guided him to embrace a new career - which eventually led to him becoming a Patient Getting Paid. In this fun conversation with Kathy, Damian talks about how MS impacted his life and career, and how he pivoted to another area where he continues to use his energy for positivity! Topics covered include: The story of how his wife was able to recognize that something wasn't quite right with Damian's mobility Damian's early experiences of vlogging and how he found his authentic voice Where Damian gets his energy! His dream guest Damian's experiences of DMTs and how he combines medication with diet to manage his condition Resources for this episode (clickable links): Visit NoStressMS, Damian's YouTube channel Damian's website Follow Damian on Twitter, Instagram and Facebook Help keep FUMS alive at the FUMS Podcast Patreon page Sign up for the Patients Getting Paid email waiting list ** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him here: The Podcasting Editor | |||
| 04 May 2021 | FUMS 079 - He Has MS and He’s Running 162 Miles | 00:19:48 | |
Matt LaFrance is a 37-year-old husband and father of three young boys from San Jose, CA. He was diagnosed with MS in 2009 at the age of 25. In May he will be running 162 miles in six days as part of the 2021 MS Run the US relay team. I’ll let that sink in. 162 miles in six days. AND he has MS! MS Run the US is the longest annual relay run across America. It’s an epic 3,260-mile run to stop MS! The relay begins in April in Santa Monica, CA and finishes in August in New York. The relay team is made up of 19 runners hand-selected from a pool of applicants nationwide. Matt is running the MS Run The US relay to inspire those who have been recently diagnosed and support those living with MS who have not been as fortunate as him. If you're able, please consider donating to this worthy cause and supporting Matt. Topics covered in this episode include: Matt’s diagnosis story and his life since then Why he decided to combat his illness with exercise, diet, and supplements, rather than DMTs Why Matt views his MS diagnosis as a blessing in disguise How Matt got involved with MS Run The US How you can support him in his epic run Resources for this episode (clickable links): MS Run The US website Matt’s fundraising profile on the MS Run The US website MS Hope website Follow Matt on Instagram, Facebook, and LinkedIn Help keep FUMS alive at the FUMS Podcast Patreon page Sign up for the Patients Getting Paid course email waiting list ** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 23 Aug 2019 | FUMS 045 – Ivy Larson: Clean Eating, Exercise, Medical Marijuana… and no MS meds! | 00:53:18 | |
Today's guest is wife, mother and author Ivy Larson. Ivy was diagnosed with MS when she was 22. Her neurologist at the time suggested that an anti-inflammatory diet could help slow the progression of her disease. By following the Swank diet alongside changes to her lifestyle, Ivy has managed to go without any MS flare-ups or disease progression in the last 20 years - all without taking any meds. Topics covered include:
Resources mentioned in this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, get on the email list at FUMSnow.com/PatientsGettingPaid. Or join the Patients Getting Paid Facebook Group! **If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It’s quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Page and on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!! | |||
| 04 Oct 2019 | FUMS 048 – Aging and MS with Caroline Craven | 00:26:30 | |
Today's episode of the FUMS Podcast Show features the return of Caroline Craven. She has been featured a couple of times before but she always brings a really interesting viewpoint so we thought we'd get her back in! In this chat with Kathy, they talk about aging (gracefully or otherwise) with MS, and things we should all be thinking about to live our best lives with this stupid disease. Topics covered include:
Full show notes and resources at https://fumsnow.com/fums-048-aging-and-ms-with-caroline-craven | |||
| 14 Sep 2018 | FUMS 021 – Travel Without Limits with Tarita Davenock | 00:43:08 | |
Going on a trip, be it on a cruise ship, train or an airplane, can be a daunting task for someone who has MS. You have to worry about mobility issues, access to bathrooms, restaurants and hotel rooms and access to medical care. Tarita Davenock loves traveling and exploring the world, and was diagnosed with multiple sclerosis during the prime years of her life. As her MS progressed, she started traveling with a wheelchair and saw a certain need in the market for people like her and filled it with “Travel for All”! Tarita is the owner and founder of Travel for All, a travel agency specializing in accessible travel and helping people who are physically challenged and need special care and services. In this episode, she shares with us all the possibilities that exist to still go to different places and experience different things despite MS. As this episode ends, Tarita encourages us to spread our wings as we explore the beautiful places on this earth. Yes, you have MS but it shouldn’t hinder you as there are people like Tarita who want to help others with disabilities to travel. | |||
| 20 Jul 2018 | FUMS 017 - Autoimmune Health Coach Alene Brennan | 00:34:44 | |
Alene Brennan is a certified nutrition coach, natural food chef, yoga instructor, and personal trainer who helps people with autoimmune disease heal through diet and lifestyle. Oh, and she has MS. And migraines. And she learned how to affect her chronic illness positively through diet and lifestyle – and now she helps others do the same through her coaching. She’s really an amazing person with a ton of passion to really help people. It was her tagline that first caught my attention: “less pharm more table!” I LOVE it! In this episode, Alene shares how she was diagnosed with MS in 2016 in the midst of helping her mother during the end stage of her cancer battle. After her mother passed, she turned her attention to her own battles with both MS and Migraines and found ways to mitigate the symptoms. She started by going to a conference and getting certified in Dr. Terry Wahl’s Protocol, then expanded her repertoire to include the Autoimmune Protocol Diet certification. Yoga and nutrition coach certifications along with a certification as a natural food chef just added the final pieces to the puzzle and help her to serve her community – those of us with an autoimmune disease. Alene is not a purist in the sense of rejecting western medicine. On the contrary, she believes you need to do what’s best for you and compliment each therapy with the other. Recognizing how valuable her knowledge and experience was, she started a 1:1 coaching business that embraces medication AND lifestyle upgrades to include: diet, exercise, supplementation, stress reduction and sleep enhancement. She has wonderful suggestions for each component of her plan and works to meet each client where they are in their journey – and then acts as both support and accountability partner. She does this right over the phone – no need to travel or leave your home. She stresses the importance of building resiliency and believes that which you focus on, gets bigger – so mindset is another component of her coaching that she brings to the table. | |||
| 22 Feb 2019 | FUMS 033 – MS Challenges and Lyfebulb Moments with Dr. Karin Hehenberger | 00:24:35 | |
Today’s guest on the FUMS Podcast is Dr. Karin Hehenberger. After being diagnosed with type 1 diabetes at a young age, Karin has since gone on to dedicate her life to helping others impacted by chronic disease. She eventually created Lyfebulb, an innovative patient-empowerment platform whose mission is to reduce the burden of chronic disease through the power of the patient - an idea that all of us in the FUMS nation can get behind! Most excitingly, Karin talks about the forthcoming MS Innovation Challenge, which looks to support patient entrepreneurs whose companies are developing solutions which address needs currently unmet in MS. Topics covered include:
… and so much more! Resources mentioned in this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, please visit FUMSnow.com/PatientsGettingPaid. **If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It's quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Pageand on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!! | |||
| 05 Feb 2021 | FUMS 074 - Dr. Gretchen Hawley Providing the MSing Link for MS with PT | 00:38:34 | |
Dr. Gretchen Hawley is an MS-specialist Physical Therapist. She began treating people with Multiple Sclerosis during her first year of professional practice. The positive results she saw in her patients propelled her to immerse herself even deeper into the treatment of MS, taking every opportunity to attend workshops and conferences dedicated to improving lives through PT. Gretchen previously appeared on the podcast in 2018 - see FUMS 022 - and is back to share exciting news about her new online MS wellness program, The MSing Link, something she talked about way back in 2018! Topics covered include:
Resources for this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 03 Apr 2020 | FUMS 057 - Are Your Silver Dental Fillings Poisoning You? | 00:52:51 | |
If you’ve been diagnosed with MS for any length of time, it’s highly likely that you will have come across – or been offered – all kinds of theories about the kind of things which can impact on your health. One of the most long-standing is the effect of mercury amalgam fillings on the body. But it’s so hard to find any evidence for this theory, or even to get a dentist to talk about it. In today’s episode, Kathy presents a fascinating chat with Dr Carl McMillan, who describes himself as a Holistic Dentist. While traditional dentistry focuses only on the oral cavity, holistic dentistry looks at the patient as a whole and how the mouth relates to the rest of the body. Rather than using fillings made of mercury (the second most toxic element known to man!), holistic dentists focus on the use of non-toxic restorative materials. Topics covered include:
Full show notes and resources at: https://fumsnow.com/fums057 | |||
| 25 May 2018 | FUMS 013 - Cog Fog in MS | 00:47:33 | |
In today's episode, I talk to Dr. Victoria Leavitt, a clinical neuropsychologist and the director of the Multiple Sclerosis Cognitive Neuroscience Laboratory at Columbia University Medical Center in New York. I had a TON of questions about the dreaded COG FOG (linked to a previous blog post I wrote about it)! Chances are, if you have MS, you've experienced COG FOG. Dr. Leavitt is a brilliant clinician and researcher, which gives her extra authority on this subject based both on her experience with MS patients as well as her research. And she had plenty to say. She gave great, understandable explanations and a multitude of suggestions on how to try to mitigate and alleviate the rat bastard COG FOG!! | |||
| 30 Apr 2018 | FUMS 011 - Sex, Constipation, Incontinence - Oh My! | 00:36:51 | |
Erin Glace, MSPT, PRPC, BCB-PMD, is the clinical director of the Physical Therapy and Urodynamics departments at Urology of Virginia. She is a graduate of the University of Florida with her bachelor’s degree in Physical Therapy and a graduate of Old Dominion University with an advanced master’s degree in Physical Therapy. Her sole focus of treatment is pelvic floor dysfunction. In this episode, we talk all about what's in that book, what issues she sees most commonly in her practice and she answers some of YOUR questions. We cover overactive bladder, gotta go syndrome, leakage, constipation, sexual dysfunction, arousal, orgasm, intercourse (from "don't feel much" to "it hurts"). | |||
| 11 Mar 2020 | FUMS 55 - Coronavirus and Chronic Illness: A Message for the Healthies | 00:03:38 | |
Today’s very short (less than 4 minute) message is one from the heart – Kathy’s heart – to the Healthies among us that are learning about fear of germs, viruses, and bacteria, as they are exposed to the worldwide Coronavirus outbreak. This podcast episode is designed to be shared – with every chronic illness community member and every Healthy you know. It pertains to each - and Kathy has a job for each. Chronics – share with your community – on and offline – Chronics and Healthies alike Healthies – learn the lessons now about hygiene protocol during this scary time – to protect yourself and your loved ones. Then, when this Coronavirus scare is over – and it will be over – carry the lessons forward – to protect the Chronics that walk amongst you - and on this fine line - daily. | |||
| 28 Dec 2018 | FUMS 029 – The Holistic Way of Living with Erin Clayton | 00:37:33 | |
In today’s episode, we’re welcoming back Erin Clayton! A fellow MS’er who was featured back in 2015 on Episode 6. From getting her Non-profit Management Certification to raising funds for MS research, she has now decided to focus all of her time and energy into being a stay-at-home mom for her little boy, Parker. Today we’re talking about her transformation and her journey into living a more holistic lifestyle. Erin has made major changes in her life and now treats her MS purely holistically, with great success for herself and her family. Today she shares how YOU can do it too! In this episode we discuss:
Full show notes and resources: https://fumsnow.com/fums-029-the-holistic-way-of-living-with-erin-clayton | |||
| 28 Sep 2018 | FUMS 022 – Benefits of Physical Therapy for MS with Dr. Gretchen Hawley | 00:27:20 | |
Being able to brainstorm and solve the symptoms people are having and how to help them in their daily lives is what Gretchen Hawley loves most about her job. Even with the uncertainty of how the disease manifests itself with different people. Gretchen is a Doctor of Physical Therapy who specializes in Multiple Sclerosis. It has become her advocacy to help each of her patients reach their goals in as many ways as she can. It's never boring to do things when your heart is in the right place. At the end of this episode, Dr. Hawley tells us about her plans on launching a virtual PT program. She walks us through how she started a Youtube Channel and an Instagram account to better reach her patients from different locations. She created these in order to teach and encourage people that they can exercise in the comfort of their homes. | |||
| 26 Jun 2020 | FUMS 063 - Former Radio DJ, MS Advocate, and Author Kim "Kid" Curry | 00:33:56 | |
Kim "Kid" Curry was a successful DJ and radio executive when he was diagnosed with Multiple Sclerosis. After research into MS disease progression, he decided to leave his broadcasting career of 33 years and become a writer. In this wide-ranging conversation with Kathy, Kim talks about politics, the role of caregivers and vitamin supplements, and the "survivor's guilt" he feels when he sees other patients whose MS symptoms are worse than his.
Topics covered include:
Resources for this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him here: The Podcasting Editor | |||
| 14 Dec 2018 | FUMS 028 – Important Supplements for MS Patients with Caroline Craven | 00:24:31 | |
My first returning guest, Caroline Craven a.k.a the Girl with MS (from the website girlwithms.com), is back to talk about the wonderful benefits we can get from vitamins and supplements. Caroline is a motivational speaker, freelance writer and has won Best MS Blog several years in a row. She's also a life coach, and - oh yeah, she has MS. She has toured the country promoting healthier living for MS patients through stress management, healthy eating, and a positive attitude. Now, she’s our repeat contributor for tools, tips, and resources she finds along the way. | |||
| 25 Dec 2020 | FUMS 071 - Exploring The (Virtual) Reality Of Life With MS With MXTreality | 00:30:26 | |
Prepare to have your mind BLOWN! MXTreality is an XR company based out of Seattle, WA. XR is an umbrella term for various technologies and incorporates Virtual Reality, Augmented Reality and Mixed Reality. The company has made over 100 experiences to meet client needs, further accessibility, as well as interactions that are just fun. MXTreality is working with Swedish Hospital in Seattle, and local MS patients, to design MS CART (working title), a Virtual Reality experience that incorporates Creative, Artistic, Relaxation, and Therapeutic elements. Even more interestingly, these elements are being designed in collaboration with the MS community. I think you'll agree that the possibilities of treatments for people living with Multiple Sclerosis are super exciting! Enjoy this conversation with Rodger Caudill, the Head of Communications at MXTreality. Topics covered include:
Resources for this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 03 May 2019 | FUMS 038 – MS Stories From Around the World #3: Katrine Bonde (Denmark) | 00:41:05 | |
This episode is the third installment of our international series where Kathy talks to MS’ers from around the world, to see how their diagnosis and treatment experiences differ from our own. Today's guest is Katrine Bonde, a university student from Aarhus in Denmark. Denmark has one of the highest rates of Multiple Sclerosis in the world (only San Marino and Canada have a higher prevalence). Now aged 24, Katrine was diagnosed with MS in June 2014.
Topics covered include:
Resources mentioned in this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, get on the email list at FUMSnow.com/PatientsGettingPaid. **If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It’s quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Page and on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!! | |||
| 05 Apr 2019 | FUMS 036 – MS Stories From Around the World #1: Steve Woodward (England) | 00:49:07 | |
This episode is the first in a series where Kathy talks to MSers from around the world about their diagnosis and treatment experiences, to see how they differ from our own. The first guest in the series is Steve Woodward, who lives in England. He and Kathy had a lot of fun recording this, even if some parts were proof that the US and the UK are still "two nations divided by a common language"! Topics covered include:
Resources mentioned in this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, please visit FUMSnow.com/PatientsGettingPaid. **If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It's quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Page and on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!! | |||
| 22 Jan 2021 | FUMS 073 - A New MS Fitness Plan with David Lyons | 00:34:10 | |
David Lyons was a healthy athlete, gym owner and TV & film producer when he was diagnosed with Multiple Sclerosis in 2006. After immediately being told that he would be wheelchair bound, David, along with his wife Kendra, decided to battle MS in the gym! David founded the MS Fitness Challenge (MSFC) charity to help educate and train both MSers and fitness professionals on the importance of fitness in the fight against MS. In 2009, at age 50, David competed in his first bodybuilding contest with MS, winning a Most Inspirational trophy. He went on to be presented with the Milestone Award by the National MS Society for his accomplishments. Listen in for David's inspiring story, as well as details of his new OptimalBody membership program for MS exercise and fitness. Topics covered include: David's background in fitness and his diagnosis story Why, after succumbing to depression, he decided to get back into the gym David's first bodybuilding competition - with MS - at age 50! The realization that bodybuilding and available exercise programs weren't helping him to beat his disease, and his decision to create his own training methods The motivational benefits of group membership and accountability for David's fitness programs Details of David's OptimalBody membership program for MS exercise and fitness - and the response to the program so far PLUS information about a lifetime discount for members of the FUMS Nation when they sign up for the OptimalBody membership program using the discount code FUMS5 Resources for this episode (clickable links): Information about the OptimalBody membership program for MS exercise and fitness - use the discount code FUMS5 for a lifetime discount DavidLyonsFitness.com - online personal trainer The MS Fitness Challenge website, Facebook group and Facebook page MS Fitness Challenge on Twitter Help keep FUMS alive at the FUMS Podcast Patreon page Sign up for the Patients Getting Paid course email waiting list ** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 08 Feb 2019 | FUMS 032 – MS and LDN (Low Dose Naltrexone) – The Little Pill That Could | 00:56:18 | |
Today’s guest on the FUMS Podcast Show is Linda Elsegood, founder of the LDN Research Trust. After her diagnosis and rapid decline pushed her to the very edge, she began hearing about Naltrexone (Nalorex), a drug used to treat addiction to opiate drugs such as heroin or morphine as well as alcoholism. Linda found that low doses of this inexpensive drug might help the symptoms of people with a wide range of autoimmune conditions, including MS. She started taking the drug and found that it made a huge difference to her MS. She also learned that it was very difficult to get a prescription for LDN. Since then she has dedicated herself to spreading the word about LDN, setting up the LDN Research Trust in 2004, and helping people around the world find an LDN prescribing doctor. Topics covered include:
… and so much more! Resources mentioned in this episode (clickable links):
**If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It's quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Pageand on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!! | |||
| 11 Jan 2019 | FUMS 030 – How Cannabis, Diet, and Exercise Has Helped MS'er Meg Lewellyn | 00:56:37 | |
Our guest today is Meg Lewellyn of BBHwithMS.com – which stands for Boots, Boobs and Hair with Multiple Sclerosis. In a frank and funny conversation with Kathy, Meg covers subjects including being open with her three kids about her MS and how she is now managing her symptoms with marijuana. In this episode we discuss:
… and much more! Resources mentioned in this episode (clickable links):
**Today’s episode is brought to you by: Patients Getting Paid – a new course being developed by FUMS – to help patients find legitimate work from home opportunities and paid patient advocacy gigs. There are all kinds of companies looking for the kind of knowledge you have in living with your disease. You’ve got the disease, you’ve got the knowledge – you should get paid. Sign up now for more information at FUMSnow.com/PatientsGettingPaid. **Don’t forget to join us on the FUMS Facebook Page and on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!! | |||
| 28 Jun 2019 | FUMS 041 – International Series Roundup | 00:27:03 | |
For the final part of our current series of interviews with MS’ers from around the world, we're doing something a little different. To discuss all the things she has learned throughout these episodes, Kathy herself is interviewed by Steve Woodward, FUMS Podcast Editor and the first interviewee in the series (see FUMS 036). Topics covered include:
** Previous FUMS Podcast episodes in the International Series can be found here.
To have your voice heard, to ask your representative to work on your behalf, and to participate in this democracy, find all the federal, state, county and local officials who represent you in government here and CONTACT THEM!
** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, get on the email list at FUMSnow.com/PatientsGettingPaid. **If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It’s quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Page and on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!! | |||
| 10 Apr 2018 | FUMS 010 - Dr. Terry Wahls On Her Diet vs. Dr. Roy Swank's Diet for MS | 01:09:49 | |
Dr. Terry Wahls is a clinical professor of medicine at the University of Iowa where she conducts clinical trials. She is also a patient with secondary progressive multiple sclerosis, which confined her to a tilt-recline wheelchair for four years. Dr. Wahls restored her health using a diet and lifestyle program she designed specifically for her brain and now pedals her bike to work each day! She is the author of The Wahls Protocol: How I Beat Progressive MS Using Paleo Principles and Functional Medicine, and the cookbook The Wahls Protocol Cooking For Life: The Revolutionary Modern Paleo Plan to Treat All Chronic Autoimmune Conditions. In this episode, we discuss her journey with MS, how she found her way to nutrition as a treatment and all of the lifestyle components of her protocol as well – exercise, meditation, e-stim, etc. She is currently involved in an NMSS-funded study comparing her diet with the diet of Dr. Roy Swank, author of The Multiple Sclerosis Diet Book: A Low-Fat Diet for the Treatment of M.S. Early indications are very encouraging. | |||
| 06 Sep 2019 | FUMS 046 – Finding Flexible Work While Dealing with Lyme Disease: Jessica Donaldson | 00:17:07 | |
When Jessica was diagnosed with Lyme disease, she was forced to put aside her dreams of a career in nursing. Eventually she found a way to utilize and monetize her skills in patient advocacy and grant writing to find a new career path, one which can accommodate living with a chronic health condition. Topics covered include:
Full show notes and resources at https://fumsnow.com/fums-046-finding-flexible-work-while-dealing-with-lyme-disease-jessica-donaldson | |||
| 26 Nov 2020 | Bonus: FUMS Holiday Gift Guide 2020 | 00:03:33 | |
The holiday season is just kicking off so in today's episode of the FUMS Podcast Show, Kathy has a special message for all FUMSers. Please enjoy the celebrations but remember to take care of YOU. Pace yourself. Ask for help when you need it. And be big enough to accept help when it's offered. In order to lessen your load, use the 2020 FUMS Holiday Gift Guide. It’s updated every year with new products that either Kathy has come across or which have been suggested by others in the FUMS community. And don't forget to check out the FUMS Merchandise Shop! We hope you find this helpful – and, if you have suggestions for great gifts, please share them with Kathy@FUMSnow.com so we can add them to this list. Wishing you a happy and healthful holiday season! See the 2020 FUMS Holiday Gift Guide Visit the FUMS Merchandise Shop Help keep FUMS alive at the FUMS Podcast Patreon page Sign up for the Patients Getting Paid course email waiting list ** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 23 Jan 2018 | FUMS 007 - Chiropractic Care & Supplements Reversed Her MS | 00:33:01 | |
Michelle Nelson woke up one day and was totally blind in her left eye! The doctors at the ER thought she was faking!! She finally received a diagnosis and within 2 years was unable to work, began losing her hair, she was exhausted, blind off and on, and in pain. She found herself declining further and further into disability from MS. A chance meeting at a garage sale changed everything. A chiropractor suggested she make an appointment because she was confident she could help Michelle. She did - and the results were miraculous. Learn what Michelle did and how it worked. Maybe it could work for you! | |||
| 12 Jun 2020 | FUMS 062 - CrossFit Helps Kim Toliver Find Her MS Advocate Voice | 00:33:17 | |
From the age of 12, Kim Toliver used exercise as a way to regain control of her weight - and also to ensure that she wasn't being micro-managed by doctors! While studying for her Masters in Athletic Training, she began to experience strange physical symptoms which she initially wrote off. But only six months into her dream job, Kim was diagnosed with Multiple Sclerosis. Kim eventually recognized that CrossFit’s fitness and health concept suited her perfectly in trying to accomplish the task of being the best version of herself physically, mentally, and spiritually. However, Kim chose not to be open about her MS, and took 12 years to fully accept her diagnosis. Now she is a proud advocate - and FUMS’er!
Topics covered include:
Resources for this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him here: The Podcasting Editor | |||
| 09 Mar 2021 | FUMS 076 - How YOUR Saliva Can Help Advance MS Research | 00:40:33 | |
The popularity of personal DNA testing and genome sequencing has really increased in recent years. As someone with MS, have you ever thought about getting it done yourself? Patrick Short is the co-founder and CEO of Sano Genetics, a platform that helps patients match with precision medicine research and learn more through personalised reports, and other content including patient stories. The platform is patient-centric and private-by design, and through data-driven matchmaking and home genomic testing, has enabled precision medicine studies in common and rare diseases, including autoimmune and neurology (MS in particular) as an area of focus. Sano Genetics empowers people to access research, information, and their DNA through their platform. It works as a guide for people who want to take part in research and inform them of different types of research. Participants can also gain access to their DNA through some of Sano's research projects. Exclusive FUMS giveaway! You can enter a giveaway for a free Sano Genetics DNA kit through this link. You must create and validate an account in order to enter and a winner will be picked after the giveaway closes (two weeks after the episode is published on Tuesday March 9th, 2021). Topics covered in this episode include:
Resources for this episode (clickable links):
** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 29 Nov 2019 | FUMS 051 – Special Message from Kathy - and a Gift for YOU! | 00:05:49 | |
The holiday season is just kicking off so in today's episode of the FUMS Podcast Show, Kathy has a special message for all FUMS'ers.
In order to lessen your load, use the 2019 FUMS Holiday Gift Guide. It's updated every year with new products that either Kathy has come across or which have been suggested by others in the FUMS community. We hope you find this helpful – and, if you have suggestions for great gifts, please share them with Kathy@FUMSnow.com so we can add them to this list. Wishing you a happy and healthful holiday season!
** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, get on the waiting list at FUMSnow.com/PatientsGettingPaid. AND be sure to join the Patients Getting Paid Facebook Group!
**Don’t forget to join us on the FUMS Facebook Page and on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!! -- Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him here: https://podcastingeditor.com/ | |||
| 23 Feb 2021 | FUMS 075 - Manage Your MS With Yoga And Mindfulness With Mindy Eisenberg | 00:32:14 | |
My guest today is Mindy Eisenberg. Mindy is the Founder and Director of Yoga Moves MS, a nonprofit company with the mission of improving the quality of life for individuals with MS, Parkinson's Disease, and neuromuscular conditions. She is the author of Adaptive Yoga Moves Any Body and the creator of Adaptive Yoga Cards, which show daily yoga moves for all ages and abilities. Mindy has provided yoga therapy to individuals with mobility challenges for over fifteen years and thrives on building a strong, mighty community for her students and families. She is also a Qualified Mindfulness-Based Stress reduction teacher. Mindy previously appeared on the podcast in 2018 - see FUMS 019 - and is back to talk about how her practice has developed and continues to grow! Topics covered include:
Resources for this episode (clickable links):
** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 30 Nov 2018 | FUMS 027 – Chronic Christmas Celebration with Lene Andersen | 00:30:20 | |
Lene Andersen is a writer, health and disability advocate, photographer and chronic illness navigator who has had rheumatoid arthritis since she was four years old. She is the author of the book “Chronic Christmas: Surviving the Holidays With a Chronic Illness” and that’s exactly what we’re talking to her about today! She is extremely grateful to be given a second chance in life. Despite her illness, she feels the need to honor it and decided to help other people dealing with chronic illnesses as well as their family and friends through her books. In this episode, Lene emphasizes the importance of letting go of the perfectionist mindset. If not, you’ll lose the joy of Christmas - being with people you love, chilling and enjoying the moment. Learn to have a good time and enjoy yourself as you listen to today’s episode of FUMS! Enjoy and Happy Holidays! | |||
| 18 Oct 2019 | FUMS 049 – Dr. Aaron Boster Answers Your MS Questions | 00:59:21 | |
Today's episode of the FUMS Podcast Show features a conversation with Dr. Aaron Boster MD. Dr. Boster is that rare thing - an MS Specialist Neurologist with his own YouTube channel (and over 15,000 subscribers). In this fun and fascinating chat with Kathy, Dr. Boster talks about his career, his YouTube videos and even has time to answer a selection of questions submitted to the FUMS Facebook Page. Please Note: we had some technical issues with the early parts of Dr Boster's interview. We hope you agree that everything he shares is so valuable that you'll stick with it! Topics covered include:
Resources for this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, get on the waiting list at FUMSnow.com/PatientsGettingPaid. AND be sure to join the Patients Getting Paid Facebook Group! **If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It’s quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Page and on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!! -- Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him here: https://podcastingeditor.com/ | |||
| 24 Jul 2020 | FUMS 065 - "But You Look So Good" | 00:15:13 | |
Today’s episode is special in that there is no guest to interview. It’s just Kathy – talking about something that we, as MS’ers, hear often - "but you look so good." Kathy suggests that there are two ways to take that: good and bad! As a compliment or as someone questioning either your diagnosis or your suffering. In typical FUMS fashion – Kathy suggest questioning our knee-jerk reactions and asks us to instead, "take a minute and examine intent." Her opinion may be a bit controversial in the MS community – but Kathy welcomes comments and opinions here, on the FUMS Facebook page, on the FUMS Twitter account, on Instagram, or FUMSvideos on YouTube.
Topics covered include:
BIG NEWS: The FUMS Podcast has been nominated for a WEGO Health Award for Best Podcast!! If you would be so kind as to cast a vote for Kathy – we’d really appreciate it! Here’s the link: Best Podcast Award - then choose “Endorse This Patient Leader” in blue under the award category. Thank you so much. Get on the email list for the FUMS Friday Night 6-Pack and have the topic 6 topics in MS that week delivered right to your inbox every Friday!! Sign up here: Friday Night 6-Pack Want to learn how to find and create flexible, remote work opportunities to better accommodate your health? Get on the waiting list to learn when Kathy launches the Patients Getting Paid membership community and courses. Sign up here: Patients Getting Paid
~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him here: The Podcasting Editor. | |||
| 01 May 2020 | FUMS 059 - A Solution for Heat Sensitivity in MS | 00:21:28 | |
Extremely hot temperatures can be unbearable for people with MS due to what is called Uhthoff's Phenomenon. This is the temporary worsening of MS symptoms caused by an increase in temperature. It's usually applied to optic neuritis and other visual symptoms but can also increase fatigue, pain, balance, weakness, bladder issues, cognitive or sensory symptoms. Imagine if there was a product that could not only help with this but which was actually designed for and with people with MS? Well… Kurtis Kracke and Brad Dunn met when they were graduate students at Rochester Institute of Technology in New York. While taking part in an access technology initiative with the Rochester chapter of the National MS Society, they realized that the hot July weather was preventing members of the chapter from attending research meetings. So after collaborating with people with MS, they came up with the Undercool Cooling Vest. In this episode, Kathy talks to Kurtis and Brad about their company and their products, with a special discount for FUMSers Topics covered include: How Kurtis and Brad formed ThermApparel The research Kurtis and Brad undertook with people with MS as they developed the Undercool Cooling Vest A special offer for the FUMS nation of 10% off any product through the ThermApparel website Resources for this episode (clickable links): Help keep FUMS alive at the FUMS Podcast Patreon page Sign up for the Patients Getting Paid email waiting list Call ThermApparel on 855-232-7233 or email contact.us@thermapparel.com ThermApparel website ThermApparel on Twitter, Instagram and Facebook ** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him here: The Podcasting Editor | |||
| 20 Apr 2021 | FUMS 078 - Clean Cosmetics You Can (Almost) Eat with Skincare Chef and MS Entrepreneur Natalie Schultz White | 00:36:21 | |
The benefits of a healthy diet and lifestyle for people living with MS have been of increasing interest over the last few years. But have you ever stopped to think about the effect of the cosmetics you put on your face? Following her diagnosis with Multiple Sclerosis, Natalie Schultz White was determined to put a positive spin on her experiences, through her website, MS Saved My Life. At the same time, she came to the conclusion that toxins in her life and the food she was eating were contributing to her illness, and began treating her MS with a real whole-food lifestyle, bypassing all traditional MS medication. After three days, she began feeling better, her symptoms began to dissipate and her energy began to return. Listen in to hear her inspiring #chronicpreneur story! Topics covered in this episode include: Natalie’s MS diagnosis story How she chose to explore the benefits of a healthy diet with the support of her family What is clean eating? Why Natalie used the same principles to build her skin care business - “If you wouldn’t put it in your mouth, you shouldn’t put it on your skin” Get 10% off your first order at the be well company - with code FUMS10 Resources for this episode (clickable links): FUMS Podcast Episode 010: Dr. Terry Wahls On Her Diet vs. Dr. Roy Swank's Diet for MS Natalie’s website, MS Saved My Life Website for the be well company - get 10% off your first order with code FUMS10 Follow the be well company on Instagram, Facebook, Twitter and Pinterest Help keep FUMS alive at the FUMS Podcast Patreon page Sign up for the Patients Getting Paid course email waiting list ** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 08 Feb 2018 | FUMS 008 - Revolutionary MS Diagnostic Blood Test | 00:31:09 | |
Getting an MS diagnosis has been more about exclusion than a definitive answer. Until now. IQuity, Inc. has cracked the code. They introduced a simple blood test that provides an answer in a week with a better than 90 percent accuracy rate! This. Is. Big. Most of us with an MS diagnosis went through a battery of tests - including a lumbar puncture - to settle on a diagnosis of MS likelihood. And even that could take years to get. Listen as IQuity, Inc. CEO Chase Spurlock and CFO and Chief Strategy Officer Julia Polk describe the process of discovering this amazing technology, and all of the potential it has for revolutionizing diagnostics for Multiple Sclerosis and other previously difficult-to-diagnose diseases. | |||
| 22 Mar 2019 | FUMS 035 – Myetin and the 90 day challenge | 00:27:30 | |
Our guest today on The FUMS Podcast Show is Stephen Camp, the President and Founder of Avior Nutritionals. Avior Nutritionals is the company behind Myetin, which has been mentioned previously both on the FUMSnow blog and on the podcast. Myetin is an oral supplement which can help people experiencing nerve damage, so it is obviously an exciting option for people with MS. It works to support the body’s nutritional deficiencies at a cellular level and is the only product that has both NAD+ and Biotin as active ingredients. Here comes the science bit! Biotin is a water-soluble B vitamin, which is involved in a wide range of metabolic processes, primarily related to the utilization of fats, carbohydrates, and amino acids. NAD+,or nicotinamide adenine dinucleotide, is a coenzyme found in all living cells, and it's required for the fundamental biological processes that make life possible. Topics covered include: How Myetin can support and strengthen the body at a cellular level What the benefits are for people with chronic illnesses, including MS How Myetin can work alongside Disease Modifying Therapies to support people with MS Stories from people with MS who are taking Myetin The Myetin 90 Day Challenge! Resources mentioned in this episode (clickable links): Myetin on the FUMS podcast and blog Avior Nutritionals website Avior Nutritionals on Facebook Avior Nutritionals on Twitter Avior Nutritionals on Instagram Where to go to learn more about or order Myetin ** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, please visit FUMSnow.com/PatientsGettingPaid. **If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It's quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Pageand on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!! | |||
| 23 Nov 2018 | FUMS 026 – A Personal Holiday Message from FUMS (Kathy Reagan Young) | 00:06:33 | |
Today’s episode is a special one. The holiday season is kicking off and it could really be hectic and stressful for anyone, but especially for we MS'ers. I just want to take a minute to remind you to take a moment for yourself. As people with MS, we have to be extremely mindful of our stress load. The holiday season should be a time for relaxation and celebrating with family, friends and loved ones. Holidays are meant to be enjoyed, not stressed over. And so I’m here to remind you to take a deep breath, let go of the things that stress you out, and come up with a plan to lessen your load. Whatever that is, decide right now that you're going to do everything in your power to reduce the holiday stress. In this episode, I share helpful tips and suggestions you can utilize to better enjoy the holiday season! Wishing you all a wonderful and (hopefully) healthy, happy holiday season! | |||
| 12 Jul 2019 | FUMS 042 – Mari L. McCarthy: Journaling For The Health Of It | 00:39:23 | |
In this episode Kathy talks to Mari L. McCarthy, the Founder and Chief Empowerment Officer of CreateWriteNow.com Following a diagnosis with MS, and after becoming disillusioned with the medical options available to her, Mari now treats herself through a combination of diet and Therapeutic Journaling. Topics covered include:
Resources mentioned in this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, get on the email list at FUMSnow.com/PatientsGettingPaid. **If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It’s quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Page and on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!! | |||
| 05 Oct 2020 | FUMS 067 - Why Did I Go Missing | 00:13:55 | |
Trigger warning: this episode is a raw explanation of why the FUMS Podcast has been quiet recently. It's a difficult listen but Kathy felt that she owed it to the FUMS community to share what she has been going through. As always, Kathy welcomes your comments and opinions here, on the FUMS Facebook page, on the FUMS Twitter account, on Instagram, or FUMSvideos on YouTube. Or email Kathy@FUMSnow.com. And please keep the conversation going and support each other! Further resources: Get the MS Healthline app on Google and Apple app stores (US only) Help keep FUMS alive at the FUMS Podcast Patreon page Send Kathy a message of support and appreciation by email, on the FUMS Facebook page, on the FUMS Twitter account, on Instagram, or FUMSvideos on YouTube Rate and review the FUMS Podcast Show on Apple Podcasts | |||
| 07 Aug 2020 | FUMS 066 - It's Time To "Marie Kondo" The Toxic People From Your Life | 00:13:39 | |
Today's episode is another solo issue where Kathy tackles another something that she's learned over the years - removing toxic people from your life is good for you and your health! Unless you're insanely lucky, you've probably already that there are some friends or family members who cause your anxiety to skyrocket. As stress can be a major factor in causing MS exacerbations, you can see the logic in cutting them out of your life. Or, at the very least, setting some ground rules - and STICKING TO THEM! Listen as Kathy likens this action to deadheading plants. The more you get rid of the blooms that are faded and wilting, the better the whole plant does because it’s energy isn’t being diverted to something that isn't savable anyway. As always, Kathy welcomes comments and opinions here, on the FUMS Facebook page, on the FUMS Twitter account, on Instagram, or FUMSvideos on YouTube. Topics covered include: Help keep FUMS alive at the FUMS Podcast Patreon page Rate and review the FUMS Podcast Show on Apple Podcasts Buy Co-Dependent No More by Melody Beattie Get on the email list for the FUMS Friday Night 6-Pack and have the topic 6 topics in MS that week delivered right to your inbox every Friday!! Sign up here: Friday Night 6-Pack Want to learn how to find and create flexible, remote work opportunities to better accommodate your health? Get on the waiting list to learn when Kathy launches the Patients Getting Paid membership community and courses. Sign up here: Patients Getting Paid ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him here: The Podcasting Editor. | |||
| 21 Feb 2020 | FUMS 053 – Rob Roberts and the MS Push-Up Challenge | 00:18:21 | |
Have you ever tried to describe what it’s like to have Multiple Sclerosis? Well today Kathy is talking to one man who is trying to SHOW people what it can be like, all while raising awareness of this stupid disease. Rob Roberts’s wife Danielle had her first MS relapse the day after they were married. Rob left his job in federal law enforcement and customer service to start his businesses, Never Stumble Consulting, LLC, and Muscle To Bone Fitness System to help people and support his wife and young family. After talking with Danielle, Rob devised the muscle-to-bone push-up and the MS Push-Up Challenge to replicate the pain and fatigue she was feeling. And – inspired by the Lip Sync Challenge and the Ice Bucket Challenge – the hashtag #PushUp4MS is now helping to raise awareness of MS around the world on Twitter and Instagram! Topics covered include:
Full show notes and resources: https://fumsnow.com/fums053 | |||
| 06 Jul 2018 | FUMS 016 - 2 Girls, 2 Bikes, 50 States | 00:16:31 | |
Today I’m talking with Rachael Bubbs and Dayle James, two women who decided to ride their bikes in all 50 states to raise awareness and research funds for MS. They got their National MS Society Bike MS Passports and they’re ready to ride! BTW – they’re carrying a “champions bandana” with them on all of their rides – with MS warrior’s names on it. So – you could go along for the ride – well, your name could anyway! Learn all about it and how you can get your name on that bandana. Listen NOW!! | |||
| 20 Mar 2020 | FUMS 056 – Ardra Shephard: Making Mobility Aids Fashionable | 00:21:58 | |
Ardra Shephard is the writer behind the irreverent and insightful blog, Tripping On Air. When she started using mobility aids, she was disappointed to note that there weren't any images - in fashion or the media - of disabled people using their mobility aids, looking GOOD. So she decided to change the narrative! Ardra is a perfect fit for the FUMS brand - she's another smart-ass MS’er who enjoys a good f-bomb! Topics covered include:
Resources for this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. — Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him here: https://podcastingeditor.com/ | |||
| 17 Apr 2020 | FUMS 058 - Help With YOUR Medical Bills – With Medical Bill Guru Daniel Lynch | 00:36:29 | |
Listeners in the US don't need to be told that, with our healthcare system, it doesn't take too long before MS’ers can feel overwhelmed. Wouldn't it be great if there was somebody who was able to help you navigate the mistakes, diagnosis coding errors, deductibles, in-network and out-of-network charges, the whole nine yards? In today's episode, Kathy talks to Daniel Lynch of Medical Bill Gurus, a company that is working to redefine medical billing in order to move healthcare forward. When the model tends to be that the medical billing company for the provider over-bills and the insurance underpays, it's easy for people with chronic illnesses to feel overwhelmed by the financial burden. Listen as Daniel talks about what Medical Bill Gurus can do to help, and gives advice on how you can approach your financial future with confidence. Topics covered include: The personal inspiration which made him move from structural engineering to set up Medical Bill Gurus The most common mistakes which Daniel says you should be looking out for on your medical bills, the reasons why they might be there - and what you can do about them How Medical Bill Gurus could help people with MS, depending on the type of insurance they have What people need to have in place before they take part in any treatments which come under the term Medical Tourism Medical Bill Gurus' no-win, no-fee business model, and the process you should be following How Medical Bill Gurus might even be able to help you to choose the right insurance for your condition! Resources for this episode (clickable links): Help keep FUMS alive at the FUMS Podcast Patreon page Sign up for the Patients Getting Paid email waiting list Call Medical Bill Gurus at 1-800-674-7836 Medical Bill Gurus website Medical Bill Gurus on Instagram and Facebook ** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him here: The Podcasting Editor | |||
| 19 Apr 2019 | FUMS 037 – MS Stories From Around the World #2: Robert Joyce (Ireland) | 00:53:27 | |
This episode is the second of a series where Kathy talks to MSers from around the world about their diagnosis and treatment experiences, to see how they differ from our own. Kathy's guest today is Robert Joyce, who lives in a beautiful part of the world, Connemara in Ireland. Now aged 50, Robert was diagnosed with MS while he was living and working in England at the age of 23. Although his fatigue meant that he couldn't continue working at the same rate, over the years he has owned several businesses, operated as a business consultant, and was the head of a sporting organisation in Ireland. However, following a minor car accident his MS, which had been in remission for nearly a decade, returned and since then his life has to be lived in 30-minute blocks Topics covered include:
Resources mentioned in this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, please visit FUMSnow.com/PatientsGettingPaid. **If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It’s quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Pageand on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!! | |||
| 29 May 2020 | FUMS 061 - Essential Oils and MS with Alene Brennan | 00:37:00 | |
Alene Brennan has already appeared on the FUMS Podcast (Episode 017) but she returns today to talk about Essential Oils and their potential benefits for MSers. After noticing how essential oils positively affected her illnesses, Alene now views them as being as important to her healthy lifestyle as diet. Alene is a certified nutrition coach, natural food chef, yoga instructor, and personal trainer who helps people with autoimmune disease heal through diet and lifestyle. Oh, and on top of all this, she has MS. And migraines. Listen up for an exclusive offer for the FUMS nation - a FREE 3 Day Course, Essential Oils for MS Warriors!
Topics covered include:
Resources for this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him here: The Podcasting Editor | |||
| 27 Nov 2020 | FUMS 069 - MS Warrior Jessie Ace Chooses To Go From DISabled to ENabled | 00:35:37 | |
Following her diagnosis with MS at just 22 years-old, Jessie Ace has been on a mission to fill the internet with positivity after her doctor told her to 'go home and google' her condition, leading her to find every scary story going. As a podcast host, writer, public speaker and illustrator, she provides help and advice for people living with all chronic health conditions. Jessie is the author of the ENabled Warrior Symptom Tracker book which helps you manage multiple conditions, medications, spot symptom patterns, prioritize your energy, achieve your goals, and accurately keep symptom records for your doctor. Listen in to find out more about her story and the Enabled Warrior Symptom Tracker.
Topics covered include:
Resources for this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 06 Mar 2020 | FUMS 54 – Autoimmune Disease IS a Legal Disability - with Holly Bertone | 00:31:41 | |
Has living with MS disrupted your ability to work? If the answer is "HELL YES" then you have to listen to this episode! Holly Bertone was diagnosed with breast cancer on her 39th birthday! After taking time out from her career to recover, she was diagnosed with Hashimoto’s disease, an autoimmune disorder that shares some symptoms with MS, most notably chronic fatigue and joint pain. When she had a Hashimoto’s flare-up, her employer at the time illegally rescinded her FMLA (Family and Medical Leave Act) allowance of unpaid leave. After looking all over for information about her rights, she compiled everything she found into an Amazon best-selling book, Thriving in the Workplace with Autoimmune Disease: Know Your Rights, Resolve Conflict, and Reduce Stress. Aside from her amazing story, Holly also gives some tips that could help YOU navigate the workplace with Multiple Sclerosis. Topics covered include:
Resources for this episode (clickable links):
The FUMS Podcast needs YOUR help! Do you find value in this podcast? Want to see it continue? We need YOUR help. Visit the FUMS Podcast Patreon page to see how you can help. Thanks for whatever level of support you are able to offer! ** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. — Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him here: https://podcastingeditor.com/ | |||
| 13 Nov 2020 | FUMS 068 - How Taopatch is Improving MS Symptoms | 00:36:02 | |
After hearing from other MSers about the benefits of using Taopatch, Kathy just had to find out more. So she reached out to Dimitri Leonov, Co-Founder and CEO of Taopatch USA to bring you the scoop. Taopatch is a wearable device which captures heat from your body and converts it into light, which it emits into specific points on your body. These photons stimulate your Central Nervous System and "remind" it how it was meant to communicate with the rest of your body. By combining light therapy with acupuncture, Taopatch can naturally boost your immune system, improve posture, balance and mobility, and improve emotional and mental wellbeing. The results they’ve seen with Multiple Sclerosis, Parkinson’s and other neurological diseases are incredible. Listen in to find out more about how Taopatch works, the company's no-questions-asked money back guarantee and a special discount for the FUMS nation. Topics covered include:
Resources for this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 11 Dec 2020 | FUMS 070 - The Role of Social Support in MS | 00:40:59 | |
Neuropsychologist Dr. Victoria Leavitt was previously a guest way back on Episode 13 of the FUMS Podcast Show. She's back with us today to talk about her new role as cofounder of eSupport Health, a telehealth company which provides easily accessible online support groups for people with MS. The eSupport Health model is based on Dr. Leavitt's research into the benefits of social support groups for people with MS. And I think that - in 2020 and the time of COVID - we can all agree that social interaction is more important than ever. Topics covered include:
Resources for this episode (clickable links):
** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 31 Aug 2018 | FUMS 020 – Natural & Holistic Treatments with Caroline Craven | 00:29:54 | |
There are a number of different natural treatments available to improve the quality of life of MS patients | |||
| 12 Oct 2018 | FUMS 023 – Flexible Jobs for Chronic Conditions with Brie Reynolds | 00:25:01 | |
Brie Reynolds, a Senior Career Specialist at FlexJobs, helps people find the jobs that will best accommodate their chronic condition life challenges. FlexJobs is the leading online service for professionals seeking remote, flexible schedule, part-time, and freelance jobs. Imagine not having to take time off of work for your doctor's appointment, or not having to call in sick when your not feeling well. That's what flexible jobs are all about! Flexjobs offers ancillary services as well as jobs boards for job seekers. There's 1-on-1 coaching, help with resumes, webinars with featured companies, and a blog with tips and tricks to help you get the job you want and need. **SPECIAL OFFER** Use the code FUMS when subscribing to a membership at FlexJobs to get 30% off of any subscription level! | |||
| 09 Aug 2019 | FUMS 044 – Work For The Chronically Ill | 00:23:23 | |
In a change from our regular programming (!), Kathy's guest on the FUMS Podcast today is… herself. Following her MS diagnosis in 2008, Kathy has spent a huge amount of time advocating for patients and finding legitimate, flexible work opportunities. Topics covered include:
Full show notes and resources at https://fumsnow.com/fums-044-work-for-the-chronically-ill | |||
| 08 Mar 2022 | FUMS 101 - GYST: Estate Planning with MS part 1 | 00:41:50 | |
This is the first in a series of episodes where I'll be looking at the messier parts of life - estate planning, divorce, digital death, end-of-life planning, wills, etc. Y'know - fun stuff like that. And in true FUMS style, I'm calling the series G.Y.S.T. - "Get Your Shit Together" Sooner or later, we are all going to have to start thinking about what happens at the end of our life - whether we have a lot or a whole lot of nothing, it's a fact of life! And while this is the same for everyone, if we have a chronic health condition there are a whole lot of other considerations. What if I'm unable to stay in my home? What if I can't make decisions about my finances or care? With this in mind, I looked for an attorney whose practice concentrates on estate planning for the chronically ill. I bet you can guess how many results that particular google search threw up. What I did find was a professional with a personal connection to chronic illness - MS, in fact. Martin M. Shenkman (call him Marty) is an attorney whose private practice concentrates on estate planning. When his wife was diagnosed with MS, he recognized how different planning looks for people with chronic illness and it changed his whole approach to estate planning. Marty was so generous with his time, and this interview is so full of important, actionable content, that we decided to split it over two podcasts. And far from being a depressing topic, estate planning is more about planning for life rather than death. It's the process of providing peace of mind for you, and your loved ones (however you define the term). Full show notes and resources at https://fumsnow.com/fums101/ | |||
| 25 Jan 2022 | FUMS 098 - HSCT and Life and Death Choices with Jenny Angus | 00:45:16 | |
Jenny Angus was very physically active, with a career in property management, when what she calls the Poltergeist took up residence in her life. Originally misdiagnosed in 2004, it took 10 years before she received her correct diagnosis of MS - during which time her disease had been left to run unchecked. Along the way, she had to stop her artistic career, which was so closely tied up with her identity. Jenny's story is a difficult one. She has investigated assisted dying, an arduous process that is legal in Canada. But with the help of her friends, family, and countless strangers, she is having HSCT (haematopoietic stem cell transplantation), an intense chemotherapy treatment for MS, in Mexico in January 2022. Recently she has been helping others through her patient advocacy work, and she is planning on blogging (and vlogging!) through her HSCT treatment. Full show notes and resources at https://fumsnow.com/fums098/ | |||
| 01 Nov 2022 | FUMS 118 - Comic Artist and MSer Brooke Pelczynski's Perfect, Shitty Situation | 00:25:02 | |
Brooke Pelczynski's life with Multiple Sclerosis is an inspiring example of someone taking their diagnosis and turning it into something great. Most recently, her varied career has led to her working for Marvel Comics! Brooke was undertaking her BFA in Illustration in New York when the fatigue and clumsiness that resulted in a number of ruined artworks was diagnosed as Multiple Sclerosis - at the age of only 21. Although she now feels that MS had crippled her career, Brooke has since used her disease to build a career as an artist, illustrator, and comic-creating multiple sclerosis fighter! As well as her full-time role providing illustrations for MultipleSclerosis.net, her work - in a variety of forms - has been featured by a variety of clients and publications including Yahoo, Momentum Magazine, Hotel Indigo, Lifewire, and many more. Brooke also worked as a story consultant for Marvel's Darkhawk comic series, using her experiences to inform the title character's own journey toward an MS diagnosis. Topics covered in this episode include:
Full show notes and resources at https://fumsnow.com/fums118/ | |||
| 27 Jul 2021 | FUMS 085 - Amber Tuma Talks About MS & Her Rock & Roll Lifestyle | 00:22:34 | |
Amber Tuma was studying for her music degree in Texas and raising two kids with her husband when MS reared its ugly head. So she says FU to MS by continuing to write and play music with her band The Gallows Crow. Hear the inspirational story of how Amber refuses to let MS get in the way of how she lives her life. Go, Amber! Topics covered in this episode include:
Resources for this episode (clickable links):
** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 17 May 2022 | FUMS 106 - Caring for Caregivers with Elizabeth Miller | 00:26:30 | |
If you listen to this podcast, there's a strong chance that you receive care - from a friend, a loved one, or from within your community. You might also be in the position I was in a few years back, caring for elderly relatives, young children, and myself as a person with a chronic illness! My guest today is Elizabeth Miller, a family caregiver, caregiver advocate, speaker, author, podcast host, and Certified Caregiving Consultant. Her personal experiences of caring for aging parents with chronic and terminal illnesses and for a sibling with developmental disabilities inspired her to create Happy Healthy Caregiver in 2015. Elizabeth's aim is to make caregiving sustainable and prevent burnout by encouraging intentional self-care. Like I said, you might be a caregiver or the one receiving care. Regardless, there are some great tips in our conversation for looking after yourself. And please remember that self-care is not selfish! Topics covered in this episode include:
Full show notes and resources at https://fumsnow.com/fums106/ | |||
| 22 Feb 2022 | FUMS 100 - The 100th Episode! | 00:17:31 | |
It seems crazy to me but my ‘lil podcast is 100 episodes old today! So in a change from our regular schedule, I’ll be taking a personal look back at the highs (which are many) and lows (not so much) of my podcasting journey since launching in 2015. I’ll be talking a bit about why I started the podcast, my favorite episodes, as well as sharing some comments which have been sent in by some of you, the wonderful FUMS community. Here’s to the next 100 episodes. And don’t forget to speak to this stupid disease as it deserves and tell it FUMS, every single day. Love, Kathy xox Full show notes and resources at https://fumsnow.com/fums100/ | |||
| 28 Dec 2021 | FUMS 096 - Let’s Talk About Sex (Differences), Baby w/Dr. Rhonda Voskuhl | 00:36:06 | |
It is a truth universally acknowledged that women are up to three times more susceptible to developing MS than men. But men are more likely to have worse outcomes than women, as far as disability accumulation is concerned. We know it to be true - anecdotally, at least. But have you ever wondered why? Well, my guest certainly has. Dr. Rhonda Voskuhl is the Director of the UCLA MS Program, holds the Jack H. Skirball Chair in MS, and is a Professor in the UCLA Department of Neurology. She has received national and international awards for her research and sees MS patients in the neurology clinic, mentoring at the faculty, postdoctoral, graduate, and undergraduate levels. Full show notes and resources at https://fumsnow.com/fums096/ | |||
| 19 Oct 2021 | FUMS 091 - Move It Or Lose It with MS Specialist Fitness Trainer Kathy Chester | 00:43:17 | |
“Which part of our body are you ok with losing?” - this is the question that fitness trainer Kathy Chester will sometimes ask her clients. Prior to opening Disrupt Fitness Gym, Kathy had been a leader in the fitness industry for almost a decade. However, it wasn’t until she was diagnosed with Multiple Sclerosis that she decided the time had come to take it to the next level. Having MS while being an instructor has allowed Kathy to not only push past places she'd been told she would never physically reach but has provided her with the gift of offering encouragement while working through different adversities with her clients. And why did she choose the name “Disrupt” for her gym? Well, that’s because she’s disrupting the idea of what we can and cannot do with MS and related autoimmune conditions. In other words, she says FUMS every day! Topics covered in this episode include:
Resources for this episode (clickable links):
** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 30 Nov 2021 | FUMS 094 - The National MS Society's MS Navigators Program | 00:19:33 | |
For most of us in the US, when we join the lucky MS'ers club, the first place we turn is likely to be the National Multiple Sclerosis Society. The National MS Society's vision is a world free of MS - something which we can all get behind! But while the bastard refuses to die, they also focus on ensuring that people affected by MS can live their best lives. One of the ways in which they do this is the MS Navigator program. The Navigators exist to connect you with the help you need, wherever and whenever you need it. To tell us more, my guest today is Allison Krehbiel, the Director of MS Navigator Services Delivery. Allison provides leadership to the nationwide team of MS Navigators who receive direct referrals from healthcare providers - utilizing the power of collaboration to improve client outcomes. Allison has been with the National MS Society since 2005 when she started as a contracted Case Manager. She received her Masters in Social Work from the University of Washington and has a certificate in non-profit management and in Diversity, Equity, and Inclusion. Topics covered in this episode include:
Full show notes and resources at https://fumsnow.com/fums094/ | |||
| 05 Oct 2021 | FUMS 090 - Heat Intolerance and Exercise with MS Specialist Dr. Gretchen Hawley | 00:37:18 | |
It’s a third-time visit for MS-specialist Physical Therapist Dr. Gretchen Hawley. She began treating people with Multiple Sclerosis during her first year of professional practice. The positive results she saw in her patients led her to specialize in the treatment of MS, taking every opportunity to attend workshops and conferences dedicated to improving lives through Physical Therapy. She has previously appeared to talk about the benefits of PT for People with MS, and the launch of her online MSing Link wellness program - which coincided with the global COVID-19 shutdown. I’ve been hearing her name mentioned in lots of MS-related areas recently, so she’s back to talk about all the exciting things she’s working on now - including the launch of her own podcast, and a FREE 5 Day MS Strength Challenge!
Resources for this episode (clickable links):
** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 08 Feb 2022 | FUMS 099 - The Psychology of MS with Dr. Meghan Beier | 00:22:46 | |
Even without a pandemic, a life with MS can be a lot to deal with. So, many of us will seek help for our mental health at some point. I know from personal experience how frustrating it is to have to explain exactly what MS is whenever I’m speaking to a new mental health therapist. Which is why I’m delighted that today’s guest is working to educate therapists about psychological difficulties that are specific to a variety of chronic illnesses, including MS. Dr. Meghan Beier is a psychologist at Johns Hopkins University School of Medicine who specializes in MS. Her passion for improving care led her to create Find Empathy, which provides continuing education for mental health professionals on how best to serve patients who live with life-altering illnesses. Not only will Find Empathy provide learning for health professionals, but it will also help patients to find a provider with expertise in their particular condition. It’s a win-win for everyone! Full show notes and resources at https://fumsnow.com/fums099/ | |||
| 06 Sep 2022 | FUMS 114 - The Art of Rebellion With Kick-Ass MSer Lydia Emily | 00:52:51 | |
Content warning: this episode includes a discussion about Lydia's personal experiences of Primary Progressive MS and her plans with regards to Death with Dignity, aka Suicide. Lydia Emily Archibald is an artist to her core. She was born in Chicago to globe-trotting activist parents, and this laid the foundation for her socially-conscious and politically-motivated artworks, including the creation of large-scale murals. Lydia Emily's work has been featured at gallery shows in Milan, Berlin, Los Angeles, New York, Miami, Washington DC, and San Francisco. After battling cancer, Lydia was diagnosed with Multiple Sclerosis in 2012. She later became a spokesperson for the MS Society, sharing the story of her diagnosis and life with MS and her message of hope for others with the disease. Lydia Emily is the subject of the recent documentary The Art of Rebellion, a feature-length film from Bluprint Films directed by Libby Spears. I think she is an amazing person, living an amazing life, and I'm sure you'll agree. Topics covered in this episode include:
Full show notes and resources at https://fumsnow.com/fums114/ | |||
| 16 Nov 2021 | FUMS 093 - Eating Healthy Over The Holidays with Alene Brennan | 00:39:51 | |
As the song says, it’s the most wonderful time of the year! And many of us traditionally mark the season - and please know that the FUMS Podcast is a no-shame space - by giving up on eating and living in a healthier way. But increasingly, many of us living with MS and related chronic conditions are managing our health through nutrition and lifestyle. So how do we keep this up without missing our family traditions? Luckily, Functional Nutrition Counselor and Chef Alene Brennan is on-hand to show us the way. Alene knows first-hand what it’s like to live, and rise above, a chronic illness and debilitating migraines. Following her diagnosis with Multiple Sclerosis in 2016, she now coaches individuals from around the world to manage autoimmune disease through diet and lifestyle. Listen in as she shows us that we don't have to compromise our healthy habits during the holidays to enjoy this special season. Topics covered in this episode include:
Resources for this episode (clickable links):
** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 13 Jul 2021 | FUMS 084 - Run A Myelin My Shoes with Cheryl Hile | 00:20:19 | |
When Cheryl Hile’s neurologist told her to “lower her expectations”, the marathon runner showed that she was an FUMS’er to her core. Adopting the mantra “I do what I can and never give up”, she has now completed 56 (FIFTY-SIX!!!) marathons, 41 following her diagnosis. After running 7 marathons on 7 continents in 12 months, Cheryl founded the running and walking team Run A Myelin My Shoes to challenge the perception that strenuous exercise is bad for MS. Listen in as I chat with this amazing MS Warrior and even get strong-armed into taking part in the 2021 event! Topics covered in this episode include:
Resources for this episode (clickable links):
** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 23 Aug 2022 | FUMS 113 - An Invitation From Dr. Terry Wahls To Be Part of Her Latest Study | 00:19:45 | |
More and more often, we're all hearing and talking about the use of diet and lifestyle as a way to manage chronic illness - and not just on the FUMS Podcast! In this episode, Dr. Terry Wahls (now officially our most featured guest) is here to tell us all about how we can get involved in her latest study, which asks a couple of simple but important questions: Can diet improve my quality of life with MS? And which diet is the best? If you don't know by now, Dr. Terry Wahls is an Institute for Functional Medicine Certified Practitioner and a clinical professor of medicine at the University of Iowa where she conducts clinical trials in the setting of Multiple Sclerosis. In 2018 she was awarded the Institute for Functional Medicine's Linus Pauling Award for her contributions to research, clinical care, and patient advocacy. She is the author of The Wahls Protocol: A Radical New Way to Treat All Chronic Autoimmune Conditions Using Paleo Principles, and the cookbook, The Wahls Protocol Cooking for Life. As you'll hear, Dr. Wahls will be carrying out a long-form study - entitled Efficacy of Diet on Quality of Life in Multiple Sclerosis - which examines how a participant's quality of life is affected by one of three very different diets - Ketogenic, Modified Paleolithic, and usual diet. And YOU could take part - even if you don't live in the US! Topics covered in this episode include:
Full show notes and resources at https://fumsnow.com/fums113/ | |||
| 20 Sep 2022 | FUMS 115 - MSer Sue Casey says "Grab The Happy!" | 00:19:48 | |
If you're connected with Multiple Sclerosis in any way - whether you're a patient, or a caregiver, family member, or loved one of somebody with the disease - it's easy (and NATURAL) to live in the what-ifs. We can all wallow in the negatives - hey, there's a reason why this podcast is called FUMS! But Sue Casey, my guest today, tries to live by a different mantra - "Grab The Happy!" Sue has been living with MS for nearly 50 years. This means that when she was first diagnosed, they didn't have MRIs or any of the procedures that we all experience today. And Disease Modifying Therapies? Forget about it! Even though her neurologist told her to never get married or have children, Sue has lived a full and happy life and as her MS has progressed, she has learned to appreciate the small things. And whenever I speak to her she just exudes kindness and love. As you'll hear, Sue has not had it easy, so her positive attitude is hard-won. And, listening to this, you might not be ready to adopt even the smallest part of this mindset. But at some point, you do have a decision to make, and I hope you'll be inspired by Sue's approach to life with MS. Topics covered in this episode include:
Full show notes and resources at https://fumsnow.com/fums115/ | |||
| 10 Aug 2021 | FUMS 086 - Funny Shit About MS with Comedian Shari Short | 00:48:18 | |
If you’ve been following us for any amount of time, you’ll know that we always give a big FU to MS (the clue’s in the name!) And even though we’ll have our ups and downs, we try to inject a little humor along the way. Now, we know that MS is NO JOKE. But if you allow yourself to see the funny side of it occasionally, it can help with getting through the day-to-day. My guest this week is Shari Short, a comedian, writer and, naturally, a developmental psychologist working in healthcare communications. Since her MS diagnosis in 2008, Shari has used humor to deal with MS, communicate about MS and cope with MS - and she thinks that you might benefit from doing the same. Topics covered in this episode include:
Full show notes and resources at fumsnow.com/fums086. | |||
| 07 Sep 2021 | FUMS 088 - Psychedelic Experiences, Frogs, and MS - with Neurobiologist Caitlin Thompson | 00:36:19 | |
I, like many of us, have been watching with interest the current research into the potential benefits of psychedelics in the treatment of depression - because, obviously, depression is pretty common when you're dealing with a life-changing MS diagnosis! Maybe like me, you asked yourself, "Hmmm. I wonder if anyone has been looking into its potential usage for chronic illnesses like MS?" Well, guess what?! Neurobiologist Caitlin Thompson is an independent scientific researcher studying the potential of psychedelic compounds as a novel approach to the treatment of autoimmune conditions. During her healing process from Lyme disease, chronic fatigue, PTSD, pain, and a plethora of other autoimmune symptoms, Caitlin became fascinated with the potential of using psychedelic substances to treat and relieve autoimmune and chronic health conditions. She is also an active practitioner and educator of Kambo, a traditional Amazonian medicine. Please note It should be noted that much of the research so far is anecdotal at best, and there remain a number of questions that need to be answered about efficacy, safety, and the long-term effects. However, this is potentially a really interesting area for further study. Full show notes at https://fumsnow.com/fums088 | |||
| 26 Jul 2022 | FUMS 111 - The Owner's Manual for MS with Author Debbie Petrina | 00:30:45 | |
I don't know about you, but when I was diagnosed with MS my medical care team couldn't answer all of my questions. Although, to be honest, the stress and cog fog meant that I forgot most of the questions I wanted to ask anyway. And the pamphlets that were forced on me just didn't cut it. What I really needed was an operator's manual. But that doesn't exist, right? Well… Over the past four decades, Debbie Petrina has lived with MS and spoken to thousands of people in the MS community - via social media, as a trained peer counselor, and as a participant in numerous MS-related events. She is the author of "Managing MS: A Roadmap to Navigate MS", a practical, easy-to-read handbook about understanding and managing MS. Informative and inspiring, it offers guidance and tips on a wide array of topics, including symptoms, people management, and long-term disability. The book is written for anyone who is interested in learning about MS and managing it effectively. With a newly-edited and expanded second edition, Debbie is here to talk about her MS journey, her long history of advocacy, and what is inside this amazing resource! Topics covered in this episode include:
Full show notes and resources at https://fumsnow.com/fums111/ | |||
| 29 Jun 2021 | FUMS 083 - Don’t Just Survive - THRIVE! with Jen DeTracey | 00:40:03 | |
I’m sure that all of us can agree that MS sucks for a lot of the time. But having an FUMS attitude means not just surviving with MS - but THRIVING! Jen DeTracey is a certified coach and the founder of Women Thriving with MS. In 2010, Jen was a successful consultant and professional speaker when, during a speaking tour, she found she could barely walk, write or smile. 48 hours later she was diagnosed with Multiple Sclerosis. At that time, she thought she would never be able to work again. Jen has been living with MS for over 10 years and has now discovered how to thrive. And now she’s guiding women on how to empower themselves to live life better with MS. Listen in to find out how! Topics covered in this episode include:
Resources for this episode (clickable links):
** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 09 Aug 2022 | FUMS 112 - Using Pilates to Combat MS with Mariska Breland | 00:52:35 | |
The truth has been out for a long time - exercise is good for MS and other neurological conditions. But of all of the programs suggested for us, how many of them really know what it's like to live with MS? My guest today is Mariska Breland. She was a video producer living a very high-stress life when she was diagnosed with MS at the age of 27. She started doing Yoga and Pilates and eventually began teaching Pilates, ultimately turning it into her full-time job. Mariska has created multiple neuroscience and exercise workshops, including Pilates for MS (now expanded and taught as Pilates for Neurological Conditions). She is also the co-founder of the Neuro Studio, a Pilates studio focusing on people with neurological conditions, and has even invented her own fitness and rehabilitation equipment! Topics covered in this episode include:
Full show notes and resources at https://fumsnow.com/fums112/ | |||
| 05 Apr 2022 | FUMS 103 - Diet and Lifestyle to Halt Your MS w/Dr. Terry Wahls | 00:38:41 | |
The idea of using diet and lifestyle changes as a way to manage MS was still pretty radical until fairly recently. But as more research is done, the benefits are becoming more recognized day-by-day. My guest today is Dr. Terry Wahls, who has been studying the links between lifestyle and MS outcomes since getting her first symptoms twenty years ago. After being confined to a tilt-recline wheelchair, Dr. Wahls restored her health using a diet and lifestyle program of her own devising. Dr. Wahls previously appeared on the FUMS podcast back in 2018, so I figured it was time to get her back. I wanted to find out about recent clinical findings about the efficacy of diet and lifestyle as a way to treat multiple sclerosis - which is increasingly gaining traction as a recognized way to manage your health! We also talk about the findings of recent studies into Paleo, Swank, and Mediterranean diets. Full show notes and resources at https://fumsnow.com/fums103/ | |||
| 02 Nov 2021 | FUMS 092 - Music Therapy For MS with Dr. Cindybet Pérez | 00:53:07 | |
If you're anything like me, music is a big part of your life. It can lift me up, it can wipe me out, but it's always there. And you'll likely also have seen incredible videos which show people with Dementia or Alzheimer's responding to music when they otherwise are non-responsive. But did you ever think that music could make a difference to the health of people with MS? Dr. Cindybet Pérez is a board-certified clinical and neurological music therapist practicing in Puerto Rico. A faculty member at the Pontifical Catholic University, she also participated in a national-level project specially designed to promote health and wellness through evidence-based interventions for MS patients called MS in Harmony. In our fascinating conversation, Dr. Cindybet talks about how music therapy can help MS patients cope with their diagnosis, becoming another potential weapon in our arsenal - not simply lifting our mood but improving our movement and memory! Topics covered in this episode include:
Resources for this episode (clickable links):
** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||
| 04 Oct 2022 | FUMS 116 - Managing Daily Life as MS Progresses w/Jenn Powell | 00:34:39 | |
My guest today is Jenn Powell. She's an active advocate in the MS community, imparting her hopeful optimism to the real-life challenges facing those of us living with MS. Now with secondary-progressive MS, Jenn continues to elevate the patient voice to better the lives of our community. Jenn is the Brand and Marketing Manager for BioNews, an organization that strives to create dynamic communities that give patients and caregivers a powerful voice. Jenn also writes for Multiple Sclerosis News Today (a subsidiary of BioNews) and is the host of the Multiple Sclerosis Podcast. Jenn's attitude is optimistic, taking each day as it comes, recognizing her victories and being thankful for her gifts, but realistic about the limitations that MS has placed on her. I think it's an attitude that - if we can adopt even a small part of - it will do us, and the people around us, some good! Topics covered in this episode include:
Full show notes and resources at https://fumsnow.com/fums116/ | |||
| 24 Aug 2021 | FUMS 087 - Let's Talk About Sex - and MS - with Dr. Fred Foley | 00:39:14 | |
There are countless ways that MS can MesS with your life. But one of the most infuriating, most common, and most difficult to talk about, is sexual dysfunction. Obviously, this is something that can affect anyone. But a shocking 80% of people with MS report having sexual concerns or issues. The symptoms can include loss of sensation to an inability to climax, and the causes can run the whole gamut from depression, poor body image, and medications to treat your MS and associated conditions. So Dr. Fred Foley is here to help you bring your sexy back! Dr. Foley is Professor of Psychology at Yeshiva University, in the Bronx, NY, and the Director of Neuropsychology and Psychosocial Research at the Multiple Sclerosis Center at Holy Name Medical Center in Teaneck, NJ. The most important thing to learn from this podcast is that there are lots of ways you can still get busy and get happy! But the key is communication - with your partner, your doctor, and healthcare professionals. So Dr. Fred also offers guidance on how to do that. Full show notes and resources at https://fumsnow.com/fums087 | |||
| 01 Jun 2021 | FUMS 081 - Butts, Guts, and MS with Neurogastroenterologist Dr. David Levinthal | 00:36:22 | |
As part of the rich buffet of joy that MS lays out for us, problems with your gut and pooping have to be right at the top of the charts - or the shit-list, if you will. Just to state it for the record, not everyone with MS will have these issues - as we know, MS isn’t a one-size-fits-all deal. But it is something that a lot of people deal with, which is why we’re covering it here. So my guest today is Dr. David Levinthal, the Director of the Neurogastroenterology and Motility Center at the University of Pittsburgh Medical Centre. Dr. Levinthal got his doctorate in Neuroscience and has a particular interest in functional and motility disorders of the GI tract, and GI symptoms that arise in the context of neurological disorders, including MS. So as far as gut issues and MS are concerned, it’s safe to say that he knows his shit! Topics covered in this episode include:
Resources for this episode (clickable links):
** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com | |||