Conversations About Advance Care Planning (Clare Fuller)
Explore every episode of Conversations About Advance Care Planning
| Pub. Date | Title | Duration | ||
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| 24 Oct 2022 | #35 When doing nothing is doing everything with Dr Erica Borgstrom | 00:34:08 | ||
When doing nothing is doing everything. In this episode it is my pleasure to talk with Dr Erica Borgstrom, we explore research that led to the amination Not Intervening as a Form of Care and the complexities of language in advance care planning. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 12 Feb 2024 | #80 Why I started a Death Café with Ewout Van-Manen | 00:29:04 | ||
I’d heard about Death Cafés but never attended one and have always wanted to learn more about the movement. In this episode I have the pleasure of talking with Ewout, facilitator of the Death Café Suffolk Transitions. We talk about the origins of Death Cafés, how they run in practice and what drew Ewout to become involved.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 09 Jan 2023 | #41 How to find a voice for Advance Care Planning when you can’t talk, with Speech and Language Therapist Sophie Whitehead | 00:30:36 | ||
How to find a voice for Advance Care Planning is dedicated to the memory of Keith, an incredible gentleman I met many years ago and who taught me about the power and importance of voice in truly seeing a person. In this episode I talk with Sophie Whitehead, a speech therapist specialising in palliative care. We talk about the crucial role Speech Therapists have on patient wellbeing, dignity and quality of life as well as supporting Advance Care Planning. This episode links to previous podcasts, check out episode 34 in which Caroline England discusses voice recording for people with MND and episode 1 with the late Clair Fisher who has influenced Sophie’s work. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 02 Oct 2023 | #72 What changes are there as someone approaches the end of life? | 00:27:08 | ||
This is the fifth in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about what changes to be aware of as someone approaches the last days of life. Dying at home, what you need to know and how to be prepared 1. Recognising when someone might be approaching the last stages of life and why this matter
If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | ||||
| 13 Mar 2023 | #50 Conversations that are making a difference with Martin Whiskin | 00:37:46 | ||
Well that was fun! Way back in June 2021 I reflected with Martin, the editor of Conversations About Advance Care Planning, on the podcasts produced and how they had impacted him. If you haven’t listed yet – do! It really is a super episode and sums up perfectly how we can normalise these important conversations. During our 2021 discussion, Martin mentioned a number of things he was planning and we pledged to catch up in a few months to see what had been put in place. Talking with Martin today I was blown away by what he has done, including the innovative audio diaries he’s making for his children and the music list created. The episode is proof that the podcast is starting Conversations That Matter, demystifying Advance Care Planning and helping people to take real action.
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| 26 Feb 2024 | #82 What living well with dementia looks like with Peter Berry and Deb Bunt | 00:55:53 | ||
In this episode it is my pleasure to talk with Peter Berry and Deb Bunt. Peter was diagnosed at 50 with early onset Alzheimer’s. Previously the owner of a thriving timber business, Peter’s life changed upon the diagnosis. He has emerged through depression and two suicide attempts to be a passionate advocate of living well with dementia. A keen cyclist, Peter has used his cycling to raise money for and awareness of Alzheimer’s. He is often seen cycling around rural Suffolk on his penny farthing bike. Deb retired to Suffolk from London and found a new purpose in life when she befriended Peter. One of Deb’s ambitions had been to be a publisher author and meeting Peter has enabled her to achieve this. Her friendship with Peter has also instilled a new-found confidence in Deb which she describes as a wonderful gift from Peter. We talk about what living well means to Peter and the legacy he is creating through his work. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 06 Mar 2023 | #49 Reflecting on Conversations About Advance Care Planning with Martin Whiskin | 00:47:27 | ||
It is with great pleasure that I am re -releasing episode 25 this week. This was a hugely popular episode in which Martin sets out the steps he will take for his Advance Care Planning and challenges me to produce episodes on Ordinary Dying, financial planning and alternative funerals. In next week’s episode, you can follow up the pledges Martin makes and hear how subsequent podcasts have met the challenges he set for me. You’ll also hear the very real impact Conversations in Advance Care Planning is having.
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| 17 Jul 2023 | #61 Living with the end in mind with Wendy Mitchell | 00:36:32 | ||
In this episode it is my pleasure to talk with Wendy Mitchell, author of the best-selling books Somebody I Used to Know, What I wish people knew about dementia and the recently published One Last Thing; How to live with the end in mind. We connected back in 2022 to explore Wendy’s Advance Care Planning and spoke about the work we did together in an earlier podcast. Wendy writes about her Advance Care Planning journey in her recent book and in discussion today we reflect on missed opportunities to plan ahead, the importance of language and of normalising these important conversations. We also talk about Assisted Dying and what Wendy learned through writing her book. Wendy is a true inspiration, teaching us all how to live with the end in mind.
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| 17 Jan 2022 | #3 The role of Treatment Escalation Plans in Advance Care Planning with Dr Amy Heskett | 00:32:44 | ||
In episode 3 I talk with Dr Amy Heskett about Treatment Escalation Plans, or TEPS. TEPs are a part of Advance Care Planning and focus on planning ahead in case of a crisis situation including guidance on a person's wishes about being admitted to hospital. Amy shares how to start important conversations and what makes a good Treatment Escalation Pan. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 15 Apr 2024 | #89 Getting Your House in Order: Thinking about what you don’t want with Clare Fuller & Dani Ayre | 00:26:40 | ||
In the third episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and move on to explore thinking about the things you don’t want and how this can be documented in an Advance Decision to Refuse Treatment. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | ||||
| 24 Jul 2023 | #62 David Bowie & Advance Care Planning: a conversation with Prof. Mark Taubert | 00:57:30 | ||
In this episode it is my pleasure to talk with Professor Mark Taubert, palliative care consultant, founder of Talk TalkCPR.com and chair of a national strategy group for Advance and Future Care Planning. We cover the famous Thank you to David Bowie Letter, Advance Care Planning in Wales and acknowledge both the complexity and simplicity of Advance Care Planning.
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| 14 Aug 2023 | #65 Living and Dying with Kidney Disease with Dr Barny Hole & Dr Emma Murphy | 00:48:20 | ||
In this episode it is my pleasure to talk with Dr Barny Hole and Dr Emma Murphy. Barny is a kidney doctor currently studying for a PhD. Barny’s research looks at how older people with kidney failure decide between dialysis and comprehensive conservative care. Emma is an Associate Clinical Professor in Nephrology Nursing with a combined clinical and academic role. Emma is currently leading the QUALYCARE Kidney study which aims to understand the variations in the quality of end-of-life care for patients with kidney disease on dialysis. We explore the trajectory of kidney disease, conversations around stopping dialysis and what Advance Care Planning with kidney disease looks like. The episode is one of two that we recorded. We touch on language and terminology in this episode and agree to talk again, focusing on the complexity of language associated with Palliative and End of Life Care and discontinuing treatment. You can hear that discussion in the next episode.
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| 10 Oct 2022 | #33 How Conversation Analysis can support Advance Care Planning with Professor Ruth Parry | 00:52:55 | ||
In this episode it is my pleasure to talk with Professor Ruth Parry about Conversation Analysis. I learn the science behind skilled conversations and we discuss how this can be applied to Advance Care Planning. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 01 Jul 2024 | #100 Planning not panicking: Advance Care Planning with Martin Whiskin | 00:49:25 | ||
In this very special 100th episode I talk with Martin Whiskin, an award winning voiceover artist and podcast editor. Martin is very importantly the technical expertise behind Conversations About Advance Care Planning. We reflect on episodes 75 to 100 and how they have impacted us both personally and professionally. As ever, I am blown away by Martin’s revelations and how Advance Care Planning has become such a normal and comfortable part of his life planning. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | ||||
| 25 Apr 2022 | #17 The Waiting Room Revolution with Dr. Hsien Seow and Dr. Samantha Winemaker | 00:43:31 | ||
In this episode it is my pleasure to talk with Dr. Hsien Seow and Dr. Samantha Winemaker, co-creators of the Waiting Room Revolution. I learn how the Waiting Room Revolution began and we discuss the skills they have identified to be hopeful and prepared when facing a serious illness. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 18 Sep 2023 | #70 What equipment might be needed to help look after a person who is dying at home | 00:12:45 | ||
This is the third in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about what equipment might be needed to help look after a person who is dying at home. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | ||||
| 03 Oct 2022 | #32 Using tender conversations in Advance Care Planning with Dr Kathryn Mannix | 01:08:37 | ||
In this episode it is my pleasure and honour to talk with Dr Kathryn Mannix, retired palliative care consultant and best-selling author. We talk about the tender conversations that underpin Advance Care Planning, how to initiate Important Conversations with people you care about, and reflect on the influence and legacy of Deborah James and Clair Fisher. Kathryn describes the process of Ordinary Dying, breaking down myths and describing the universally similar yet profoundly individual experience of dying.
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| 21 Feb 2022 | #8 My Care Matters with Zoe Harris | 00:34:59 | ||
In episode 8 I talk with Zoe Harris about the inspiration behind My Care Matters and how it can help with Advance Care Planning. Zoe describes the benefits of the My Care Matters Handbook and how the Buddy Service can help people to complete the Handbook. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 21 Mar 2022 | #12 DNACPR: Case Law, headlines and facts with Ken Spearpoint | 00:43:58 | ||
In this episode I discuss DNACPR with Ken Spearpoint. We talk about what CPR is, the cases that have been tested in court, the rulings and what we can learn from these. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 21 Nov 2022 | #39 ReSPECT and Advance Care Planning with Dr Zoe Fritz | 00:38:13 | ||
In this episode it is my pleasure to talk with Dr Zoë Fritz, a Consultant Physician at Addenbrooke’s Hospital and ethicist. Zoe shares the catalyst for and development of the ReSPECT process, and why ReSPECT is so much more than a decision about resuscitation.
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| 22 Aug 2022 | #26 Advance Care Planning in Diabetes Care with Dr David Strain | 00:41:18 | ||
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 03 Jun 2024 | #96 Advance Care Planning: making it real with Tara Humphrey | 00:35:08 | ||
In this episode it is my pleasure to talk with Tara Humphrey, founder and CEO of THC Primary Care. It is a super episode in which we explore why Advance Care Planning is so important to Tara and how to use the model of Getting Your House in Order to guide planning ahead. Our conversation shows how to normalise Advance Care Planning and I am so grateful to Tara for having such an important conversation so publicly. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | ||||
| 05 Jun 2023 | #55 Lasting Power of Attorney, Deprivation of Liberty Safeguards and the Court of Protection - a family's experience | 00:30:31 | ||
In this episode it is my pleasure to talk with Anna about her experience at the Court of Protection. I hear how Anna and her family were unprepared for the experience and we explore the tension between deprivation of liberty and appropriate compassionate care and supervision of a person. This is the first in a series of three podcasts; in the next episode I talk with Anna’s sister Mary about how it felt to experience the Court of Protection and in the third I talk with Victoria Butler Cole KC who explains the terminology and legal framework that underpin deprivation of liberty safeguards.
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| 05 Feb 2024 | #79 Helping to see the person behind the patient with OT Justine Robinson | 00:39:11 | ||
In this episode it is my pleasure to talk with Justine Robinson, Occupational Therapist and Wellbeing Services manager at the Pilgrims Hospice. I learn about the role of an Occupational Therapist and we talk about how therapy work can help find the person in a patient. I learn too about the innovative Blackbird project, the story behind the project and how it is helping to make precious memories. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 29 May 2023 | #54 Anticipatory Prescribing: what it is, what research tells us and what we can do better with Dr Ben Bowers | 00:34:08 | ||
In this episode it is my pleasure to talk with Dr Ben Bowers. We talk about Ben’s research focusing on Anticipatory prescribing, the practice he found and what we can learn from this to deliver more personalised care.
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| 02 May 2022 | #18 Making Memories with Karen Pardoe | 00:36:30 | ||
In this episode I talk with Karen about the many innovative and creative ways that memories can be kept. This episode will be of interest to those working in a specialist hospice environment but also shows how some memory making can be used in a generalist environment too. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 05 Sep 2022 | #28 The Platinum Rule and Advance Care Planning with Dr. Harvey Max Chochinov | 00:40:29 | ||
Care for others how you would wish to be cared for yourself. It sounds a great and is a maxim embedded in healthcare, but is there a better way? In this episode I talk with Dr. Harvey Max Chochinov about The Platinum Rule, Advance Care Planning and truly personalised care.
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| 16 Oct 2023 | #74 Changing plans, anticipatory grief and planning ahead | 00:11:52 | ||
This is the last in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about changing plans, anticipatory grief and being prepared.
Dying at home, what you need to know and how to be prepared 1. Recognising when someone might be approaching the last stages of life and why this matter 2. What support is available to help look after a person who is dying at home 3. What equipment might be needed to help look after a person who is dying at home 4. Symptom control and medication as someone approaches the end of life at home 5. What changes are there as someone approaches the end of life? 6. What we need to do after a person has died at home 7. Changing plans, anticipatory grief and being prepared
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | ||||
| 31 Jul 2023 | #63 Advance Care Planning through the lens of a surgeon, daughter and patient with Dr Liz O’Riordan | 00:44:24 | ||
In this episode it is my pleasure to talk with Dr Liz O’Riordan. We talk about Advance Care Planning through three very different lenses, from Liz’s experience as a surgeon, a daughter and as a patient. Liz shares what she has learned through these experiences and why we should all have the conversation and start planning early.
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| 17 Jun 2024 | #98 Stopping chemotherapy: Treatment, hope and time with Louisa Nicoll, wife of John | 01:02:13 | ||
In this episode I talk with Louisa Nicoll, wife of John and palliative care nurse. Louisa generously shares their family experience following John's sudden and life changing diagnosis of cancer.
We talk about what it felt like for John to receive chemotherapy and the decision to stop palliative chemotherapy. We also explore what the word treatment means and the changing nature of hope.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 09 May 2022 | #19 Advance Care Planning in Canada & running a national Advance Care Planning Day with Karine Diedrich | 00:47:09 | ||
In this episode I talk with Karine Diedrich about Advance Care Planning in Canada. We discuss how the Advance Care Planning Canada movement evolved and how to run a national Advance Care Planning Day. There are links to the fabulous resource in the show notes, many of which are transferable to the UK. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 18 Mar 2024 | #85 The Safari Concept with Dr. Christian Ntizimira | 01:07:24 | ||
In this episode it is my pleasure to talk with Dr. Christian Ntizimira, author of “The Safari Concept: An African Framework on End-of-Life Care” and Founder/Executive Director of the African Center for Research on End-of-Life Care. Christian shares the journey which led him to write the Safari Concept and we explore how culture and belief impact communication and care. It is a powerful episode with messages about bias, development of culturally appropriate models and recognition of Ubuntu – I am because we are.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 22 Jan 2024 | #77 What Matters Most in action and the power of Communication and kindness with Caroline England | 00:30:38 | ||
Peter Camrass of Camrass Wills kindly supplied sponsorship to produce this episode. Peter has had no influence in the creation, development or content of this podcast and full control remains the responsibility of Clare Fuller.This is an important episode of Conversations About Advance Care Planning. It’s a very reflective episode with learning for us all. I met with Caroline England, founder and writer of Featherbed Tales, over a year ago – we recorded an episode called Featherbed Tales and the power of voice which you can access in the show notes. This time, as the saying goes, it’s personal. Caroline shared with me the writing she has produced to try and make sense of her experiences of death and bereavement. It took me a few goes to read and touched so many nerves – I really did smile at some reflections but also found myself in tears at others. We talk about what What matters most looks like in action and the power of communication and kindness. Caroline also shares what happened towards the last days of her Mum’s life when anticipatory medications had not been thought through. I am exceptionally grateful to Caroline for sharing her story and hope that listening to it highlights the importance of care, compassion and preparation towards the end of life.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 23 Oct 2023 | #75 Having fun with Advance Care Planning | 00:37:48 | ||
In this episode it is my pleasure to catch up with Martin and look back at episodes 51 to 74 of Conversations About Advance Care Planning. We talk about the episodes that have had the greatest impact on Martin and address barriers to creating Martin’s Lasting Power of Attorney. As ever, I am surprised and blown away by Martin’s creative approach to Advance Care Planning, and even the fun he is having in planning ahead.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 11 Mar 2024 | #84 Alison Gardner & Sophy Horner Last Days Matter | 00:46:30 | ||
In this episode it is my pleasure to talk with Alison Gardner & Sophy Horner from St John's Hospice about their incredible programme Last Days Matter. The programme aims to support people in looking after their loved ones at home and is very much a compassionate community approach to care. I learn how the programme was developed, what it includes and how to access the Last Days Matter resource.
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| 11 Apr 2022 | #15 Tower Hamlets Advance Care Planning Project with Lauren Preece | 00:42:25 | ||
In this episode I talk with Lauren Preece, Team Lead of the Tower Hamlets Advance Care Planning Team. This innovative team leads on Advance Care Planning, working with patients and supporting healthcare professionals. Lauren talks about how they have moved from Difficult Conversations to Important Conversations and the impact of asking “what is important to you?” If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 23 May 2022 | #21 How Joy Lists can help Advance Care Planning with Andrew Saunderson | 00:37:39 | ||
Have you ever wondered just how to start an Advance Care Planning conversation? In this episode I talk with Andrew Saunderson about how Joy Lists can be an effective way to elicit values on which to base Advance Care Planning decisions. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 27 May 2024 | #95 Organ donation with Dr Radha Sundaram | 00:40:55 | ||
In this episode it is my pleasure with Radha Sundaram an NHS consultant in intensive for the last 16 years in Scotland. Radha is an advocate for organ donation and improving awareness amongst our diverse society. She has had a long-standing interest in end of life care and has been responsible for the guidelines in NHS Greater Glasgow and Clyde. Radha also does pro bono work for a charity called Pallium in India which was described in the Lancet as model for end of life care and for the Mohan Foundation which is India’s largest organ donation advocacy organisation We talk about Radha’s work in supporting organ donation in a diverse and multi ethnic society and cultural perspectives that can translate into organ donation. I learn about PALLIUM and the Mohan Foundation and current work in India around Advance Care Planning. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 16 May 2022 | #20 Organ Donation: hope and transition after an unexpected death with Vicki Caldwell, mother of organ donor Fi | 00:45:57 | ||
Organ Donation: hope and transition after an unexpected death with Vicki Caldwell, mother of organ donor Fi. This very special episode explores a mother’s lived experience of traumatic and unexpected death of losing a child, saying yes to organ donation and the transition to finding hope and a new way of living. The podcast is released to coincide with the second anniversary of Max and Keira’s Law (on 20.5.2022), which brought the change to an opt out system for organ donation. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 23 Jan 2023 | #43 Clair Fisher re-release | 00:40:41 | ||
Clair Fisher advocated for the benefits of early intervention palliative care, more open conversations around death and dying and normalising Advance Care Planning. Clair made these aims part of her retirement project after she was diagnosed with stage 4 bowel cancer. I had worked with Clair and was aware of how thoroughly she had addressed her Advance Care Planning, to hear her shout out on Twitter that her wishes were not being heard inspired the podcast. We recorded in the final weeks of Clair’s life and the episode has since been downloaded over 500 times. Many of the podcast’s subsequent guests have spoken about the impact Clair’s work has had on them. I am proud to have known Clair professionally, and to have had the honour of recording this episode with her. Clair talked about how Advance Care Plan helped her prioritise quality of life, the challenges she had in ensuring her wishes were heard and the wellbeing advantages of planning ahead. Clair shared the strategies and tools she used to document her wishes and what mattered most to her. On the anniversary week of her death I am re-releasing the podcast, do listen, share and have those Important Conversations.
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| 10 Jul 2023 | #60 Advance Care Planning: a relational context with Dr Julian Abel | 00:40:38 | ||
In this episode it is my absolute pleasure to talk with Dr Julian Abel who became a consultant in palliative care 2001, working initially at a district general hospital and a hospice. For more than a decade he has become increasingly involved in finding ways of building compassionate communities around people at end of life. He has run projects at local, regional and national levels. He was Vice President of Public Health Palliative Care International. He is an international keynote speaker and has published regularly on models of public health palliative care. He is the editor, along with Professor Allan Kellehear, of the Oxford Textbook of Public Health Palliative Care. We explore Advance Care Planning from a relational context, I learn the origins of the What Matters Most work and have an opportunity to share how much this has influenced my practice.
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| 14 Nov 2022 | #38 Advance Care Planning and dementia with Wendy Mitchell | 00:41:50 | ||
In this episode it is my pleasure to talk with Wendy Mitchell, bestselling author of “Somebody I Used to Know” and “What I wish People Knew about Dementia”. Wendy also has young onset dementia following a diagnosis aged just 58. We talk about the words that were used when Wendy received her diagnosis and how framing this differently could have significantly improved Wendy’s experience. We also discuss Wendy’s Advance Care Planning journey and why it is so important to her. This is an inspirational episode and has learning for us all. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 19 Jun 2023 | #57 The legal framework that underpins Lasting Power of Attorney and Deprivation of Liberty with Victoria Butler-Cole | 00:58:24 | ||
In this episode it is my pleasure to talk with Victoria Butler-Cole KC , a barrister at 39 Essex Chambers. TorShe specialises in health and social care law, in particular the Court of Protection. She is a member of the Nuffield Council on Bioethics and an advisor to the Open Justice project. This episode is the third in a series exploring a family’s experience at the Court of Protection and what we can learn from it. In the first episode I talk with Anna about her experience at the Court of Protection, I hear how Anna and her family were unprepared for the experience and we explore the tension between deprivation of liberty and appropriate care and supervision of a person. In the second episode I talk with Mary about how it felt as a daughter to experience the Court of Protection, and what she learned about being an attorney for her Mum. You can access both of these episodes through the website www.speakforme.co.uk If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 07 Feb 2022 | #6 How to start your Digital Legacy with James Norris | 00:31:28 | ||
In this episode I talk to James about what a Digital Legacy is and how to get started. Like many people, I have heard about Digital Legacy, but have always been a little uncertain how to take the first steps in managing my own Digital Legacy. James gives some excellent advice and I can proudly say I have taken those first steps. James Norris is the founder of the Digital Legacy Association and MyWishes. James researches and develops end of life technologies, apps and websites. He organises the annual Digital Legacy Conference and publishes regular tutorials helping to empower both professionals and the general public. James runs educational workshops, has consulted various governments and provides thought leadership in digital death, bereavement, technology and the internet. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 20 May 2024 | #94 What we can learn about S46 funerals and Advance Care Planning with Evie King | 00:54:27 | ||
In this episode it is my pleasure to talk with Evie King, author of the incredible book Ashes to Admin. I learn from Evie what it means to have a Section 46 council funeral and, most importantly, that nobody is nobody. Evie describes the care and detail that goes into a council funeral dispelling myths about what it means to die alone and sharing what the role has taught her about planning ahead. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 22 Apr 2024 | #90 Getting Your House in Order: Thinking about who would speak for you with Clare Fuller & Dani Ayre | 00:23:52 | ||
In the fourth episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and build on our discussions to start thinking about who would support you to make decisions or make decisions on your behalf if you ever lost the ability to speak for yourself. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | ||||
| 12 Sep 2022 | #29 Why an Advance Care Plan should include your finances with Toby Freeman | 00:33:23 | ||
In this episode it is my great pleasure to talk with Toby Freeman. Toby describes himself as a “financial advisor fortunate to have called rugby his job for 15 years”. We talk about transitioning from professional rugby player to Financial Planner, how personal experiences impacted Toby and the things that could be considered as part of financial planning ahead.
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| 21 Aug 2023 | #66 Terminology and language around discontinuing dialysis | 00:59:06 | ||
In the previous episode I spoke with Dr Barny Hole and Dr Emma Murphy about the trajectory of kidney disease, conversations around stopping dialysis and what Advance Care Planning with kidney disease looks like. We realised there was so much more we had to talk about and met again to explore the complexity of language associated with Palliative and End of Life Care, focusing particularly on language around discontinuing dialysis. You can hear our discussion in this episode; it was so interesting to explore the variance in our thoughts and highlight the importance of effective communication.
If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
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| 29 Aug 2022 | #27 Frailty and Advance Care Planning with Dr Patricia Cantley | 00:53:34 | ||
In this episode I talk with Dr Patricial Cantley, Consultant Geriatrician, about frailty, triggers for Advance Care Planning in frailty and Dr Cantley describes the famous Paper Boat story. Dr Cantley shares her personal experiences of Advance Care Planning with family members, too and we reflect on how we can plan ahead as part of everyday life.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 17 Oct 2022 | #34 Featherbed Tales and the power of voice with Caroline England | 00:34:54 | ||
In this episode I talk with Caroline England, founder of Featherbed tales. Caroline shares the inspiration behind Featherbed Tales, how the books, cards and poetry can be used and the power of voice in memory making. Caroline also describes the innovative work with libraries, childrens’ hospitals and the Motor Neuron Disease Association and how the Featherbed Tales technology can support Advance Care Planning.
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| 20 Sep 2022 | #30 Following up Zoe’s pledge to sort out her Digital Legacy | 00:15:12 | ||
In this follow up episode I talk with Zoe Harris, founder of My Care Matters and creator of My Future Care Handbook and Buddy service. The podcast follows up a conversation I had with Zoe six months ago in episode 8 of Conversations About Advance Care PLanning. Like every guest, I asked Zoe what she had sone as part of her planning ahead and what was on her to do list. Zoe identified a need to sort out her Digital Legacy and we agreed to check in in 6 months to see Zoe’s progress.
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| 26 Jun 2023 | #58 The challenges of Advance Care Planning for people experiencing homelessness with Dr Naheed Dosani | 00:41:43 | ||
In this episode it is my pleasure and honour to talk with Dr. Naheed Dosani. Naheed is a palliative care physician and health justice activist dedicated to advancing equitable access to healthcare for people experiencing structural vulnerabilities like poverty and homelessness. Naheed’s achievements include founding the Palliative Education and Care for the Homeless (PEACH) Program at the Inner City Health Associates, serving as the Medical Director of Kensington Hospice in downtown Toronto, a Health Equity Expert Advisor at the Canadian Partnership Against Cancer and as a palliative care physician at St. Michael’s Hospital at Unity Health Toronto. We talk about early influences in Naheed’s life and career, the impact of structural vulnerability, and I learn how the PEACH programme is supporting Advance Care Planning for people experiencing homelessness. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 29 Apr 2024 | #91 Getting Your House in Order: Legacy & memory making with Clare Fuller & Dani Ayre | 00:27:19 | ||
In the fifth episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance Care Planning. This quite emotive episode focuses on legacy and memory making and includes wonderful examples of what this looks like in practice. You will also find a wealth of material in the show notes and resource section for this podcast. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 28 Feb 2022 | #9 Advance Care Planning & learning from research with Sarah Combes | 00:38:19 | ||
In episode 9 I talk with Dr Sarah Combes about her role as a clinical academic and what she has learned from researching. Sarah shares findings from her work and barriers and enablers to Advance Care Planning with older people. Sarah highlights some of the professional challenges in Advance Care Planning and shares a great message: Advance Care Planning is simply about what matters most to a person. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 20 Feb 2023 | #47 The importance of having a will in place with Sara Sheppard | 00:27:00 | ||
In this episode it is my pleasure to talk with Sara Sheppard, an Estate Planning Consultant. We talk about wills, probate and some common myths that surround this area.
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| 07 Nov 2022 | #37 Choice is meaningless unless you know all the options with Holly Lyon Hawke holistic funeral director | 01:00:06 | ||
In this episode it is my absolute pleasure to talk with Holly Lyon Hawke, a multi award winning holistic funeral director. I learn the difference between the process and ceremony of a funeral, what a true natural burial is and hear about the innovative work Holly does with pets as well as her book aimed at supporting children with the process of death and dying. Talking with Holly was eye opening and I think will be the first of many conversations we have as I learn about the choices we have in caring for those we love even after death.
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| 25 Mar 2024 | #86 Think, Talk, Act with Wendy Hills | 00:42:53 | ||
In this episode it is my pleasure to talk with Wendy Hills. Wendy has over 30 years’ experience as a Nurse qualifying in 1992, and specialising in Cancer and Chemotherapy. For a decade she developed chemotherapy services, including developing Nurse led chemotherapy and intravenous access in East Kent Hospitals. Wendy is currently the Director of Nursing and Care Services for Pilgrims Hospices. I learn about the Advance Care Planning Project Think, Talk Act and why this is so important to Wendy. We talk about upstreaming Advance Care Planning, the importance of identifying patients who may benefit from Planning earlier and share our excitement at the May Advance Care Planning conference and book tour with Sammy Winemaker & Hsien Seow, pioneers of the Waiting Room Revolution and authors of Hope for the Best Plan for the Rest.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 20 Jun 2022 | #25 Reflecting on Conversations About Advance Care Planning with Martin Whiskin | 00:47:08 | ||
We talk about the history of the podcast and which episode had the greatest impact on Martin and why. Martin shares the actions he has taken as a direct result of listening to the episodes and some very personal reflections on how it has changed his views on talking about death and the importance of planning ahead. Martin uses the term Speaking, Listening and Planning (and Talking, Listening and Planning!), a phrase which perfectly summarises Conversations About Advance Care PLanning.
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| 06 May 2024 | #92 Getting Your House in Order: Planning End of Life Care with Clare Fuller & Dani Ayre | 00:53:37 | ||
In the final episode of our series of podcasts, we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance Care Planning. This episode focuses on Advance Care Planning associated specifically with End of Life Care. We explore what is meant by End of Life Care and break down care into the last years, months and days of life. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | ||||
| 16 Sep 2024 | #101 Ageing Without Children and Advance Care Planning with Penny Shepherd | 00:43:59 | ||
In this episode it is my pleasure to talk with Penny Shepherd. Penny is the coordinator and co-founder of Ageing Without Children East Kent (AWOC East Kent), a group run by and for people who are ageing without the support of adult children, either because they never had children or for other reasons. We explore the Advance Care Planning challenges and healthcare assumptions faced by people who are ageing without children and the campaigning work of AWOC. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 22 May 2023 | #53 The power of Memorial Jewellery with Ros Wood | 00:46:50 | ||
In this episode I talk with Roslyn Wood. Ros is a specialist metalworker and artisan jeweller. For over a decade she has been helping families capture precious moments in life through the art of jewellery-making. I talk with Ros about how her passion for memorial jewellery began, the variety of work she creates for people and how memorial jewellery can help with grief. You can see Ros’s work and some of her beautiful creations at roslynjewellery.co.uk In our discussion Ros shares the joy she experiences in creating unique work which reflects so beautifully what mattered to a person. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 07 Aug 2023 | #64 Mental Capacity: it’s decision specific, not a binary concept with Dr Maggie Keeble | 00:33:08 | ||
In this episode it is my pleasure to talk with Dr Maggie Keeble, a retired GP with a special interest in End of Life Care. Maggie spent the later part of her career working in care homes and during that time became involved in many Lasting Power of Attorney discussions. We have a great conversation and Maggie really breaks down the Mental Capacity Act in relation to making a Lasting Power of Attorney and explains how we assess capacity to make the different types of Lasting Power of Attorney. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 27 Feb 2023 | #48 To dialyse or not to dialyse? How research can support decision making with Dr Lucy Selman | 00:34:24 | ||
In this episode it is my pleasure to talk with Dr Lucy Selman. Lucy is Associate Professor in Palliative and End of Life Care and a social scientist who has published extensively on experiences of serious illness; decision-making and communication; family care-giving and bereavement; and widening access to services. Lucy is currently conducting the OSCAR study focussed on improving how renal clinicians communicate with older people about their treatment options and we dive into some fascinating early findings in our discussion. Lucy is based at the University of Bristol and works closely with researchers Dr Ryann Sowden and Dr Chloe Shaw on the study.
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| 04 Sep 2023 | #68 Recognising when someone might be in the last stages of life | 00:15:41 | ||
This is the first of a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about how to recognise when someone might be approaching the last stages of life and why this matters. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | ||||
| 09 Oct 2023 | #73 What we need to do after a person has died at home | 00:21:29 | ||
This is the sixth in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about what to do after a person has died at home and the difference between verifying and certifying a death. Dying at home, what you need to know and how to be prepared 1. Recognising when someone might be approaching the last stages of life and why this matters 2. What support is available to help look after a person who is dying at home 3. What equipment might be needed? 4. Symptom Control 5. What changes are there as someone approaches the end of life? 6. What we need to do after a person has died at home 7. Looking after yourself and changing plans
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | ||||
| 10 Jan 2022 | #2 Using What Matters Most and the Dignity Question in Advance Care Planning with Dr Miriam Colleran | 00:31:10 | ||
In episode 2 I talk with Dr Miriam Colleran. Dr Miriam is a consultant in palliative care working in the hospice, communiuty and acute hospital settings close to Dublin. We talk about the impact of introducing the Dignity Question in person centred care and how to include What Matters Most into Advance Care Planning. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 24 Jan 2022 | #4 Talking about planning ahead with family and friends with Sonia Kinnair | 00:28:44 | ||
In this episode Sonia shares how she has introduced Advance Care planning across three generations of her family and with her friends. Sonia talks about an experience she had at an early age and how this shaped her views on planning ahead. Sonia shares three different ways she has started Important Conversations using If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 01 Apr 2024 | #87 Getting Your House in Order: Thinking about what matters most to you with Clare Fuller & Dani Ayre | 00:26:01 | ||
In this episode we explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We start at the very foundations and talk about why What Matters Most is at the heart of Advance Care Planning. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | ||||
| 28 Mar 2022 | #13 Title Donating Your Body for Medical Education | 00:43:26 | ||
In this episode I talk with Kim Claridge from the London Anatomy Office. I learn about what it means to donate your body for medical education, the history and current regulations and hear the respect given to all donors. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 28 Aug 2023 | #67 Why we need to talk more about Ordinary Dying with Lizzi Collinge | 00:40:46 | ||
In this episode it is my pleasure to talk with Lizzi Collinge. We talk about what happened following her Grandma's stroke focusing on missed opportunities to talk about Ordinary Dying and the difference this would have made. We discuss the emotive subject of Clinically Assisted Hydration and Lizzi explains what she has learned about her Grandma's death and how different conversations at the time could have helped. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 03 Jul 2023 | #59 Advance Care Planning from Student Nurse to PhD Student | 00:27:03 | ||
Stephanie Craig is a Registered Nurse and a PhD Student at Queen’s University Belfast. Since qualifying Steph has worked on a number of projects including the implementation of an Advance Care Planning educational tool for undergraduate nursing students. I connected with Steph on Twitter and was keen to learn what was covered in Steph’s education about Advance Care Planning as a student nurse and how this translated into practice. We talk about the fabulous project work that Steph has been involved with since qualifying and the difference this is making for nurses of tomorrow – building their confidence to learn, do and share Advance Care Planning skills.
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| 06 Feb 2023 | #45 Fast Track CHC: Accessing Care to support Advance Care Planning with Jo Armstrong | 00:34:59 | ||
In this episode it is my pleasure and honour to talk with Jo Armstrong. Jo is a physiotherapist with an interest in rehabilitation and spinal injury. Jo cared for her husband Barry following the sudden diagnosis of a rapidly deteriorating brain tumour supporting him in his wish to die at home.
We talk about the care needed to look after Barry, specifically Fast Track Continuing Health Care. Issues around assessment, responsiveness and flexibility are covered with the acknowledgement that without the correct care in place advance planning wishes cannot be met.
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| 15 Jan 2024 | #76 Companion Voices with Judith Silver | 00:48:23 | ||
In this episode it is my pleasure to talk with Judith Silver, founder of Companion Voices. I learn about the origins, development and current work of Companion Voices. Judith shares what Companion Voices offers to people who are dying and describes how groups normalise conversations around death and dying. We talk about raising awareness of Companion Voices and how this could fit with a person’s Advance Care Planning.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 26 Sep 2022 | #31 Organ Donation: hope and transition after an unexpected death with Vicki Caldwell, mother of organ donor Fee. A special episode re-released for Organ Donation Week 2022. | 00:45:24 | ||
This episode has been re-released to raise awareness and discussion during Organ Donation Week 2022. It was humbling to listen to Vicki share her experience of Organ Donor Fi and I am honoured to share Fi’s message and legacy.
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| 04 Apr 2022 | #14 What can happen if you don’t have an LPA in place & a story of systematic failure. | 00:32:09 | ||
In this episode I talk with the lady of a daughter with Alzheimers who didn’t have an LPA in place. The episode demonstrates multiple systemic failures and a lack of professional understanding about a Lasting Power of Attorney. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 24 Jun 2024 | #99 The Victoria & Stuart Project: helping people with learning disabilities plan for the end of their life | 00:56:23 | ||
In this episode it is my pleasure to meet the team behind the Victoria and Stuart Project, a tool kit and resource for end of life planning for people with learning disabilities within all care settings. I learn about the triggers for the project, how the work developed and find out about the incredible resource that has been created.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 10 Jun 2024 | #97 The End of the Road Show - how the arts can support Advance Care Planning with Su Squire | 00:36:26 | ||
In this episode it is my pleasure to talk with Su Squire. Su is a storyteller, poet, theatre-maker and Death Cafe facilitator. Her performance company, Off the Twig, creates work that encourages conversation and positive action around themes of death, dying and grief. We explore the catalyst that led to Sue’s creative work and the impact that storytelling has on Advance Care Planning.
If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 15 May 2023 | #52 The Elephant in the Room Advance Care Planning simulation training with Dr Anna Steel | 00:36:39 | ||
In this episode of Conversations About Advance Care Planning it is my pleasure to talk with Dr Anna Steel. Anna is a Consultant Geriatrician at Barnet Hospital and co-founded the “Elephant in the Room” Advance Care Planning simulation course. We talk about what led Anna to create the course, how it is delivered and the impact it has made..
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| 30 Jan 2023 | #44 Why you need a Lasting Power of Attorney - Clare is a guest on the Medics Money podcast | 00:00:42 | ||
I first heard Dr Tommy Perkins talk about Medics Money on The Business of Healthcare Podcast with Tara Humphry in 2020. I have followed the growth of Medics Money with interest ever since and was delighted to guest on their podcast to talk about what a Lasting Power of Attorney is and why we ALL need one. Listen to the episode: https://www.medicsmoney.co.uk/ep-139-why-you-need-a-lasting-power-of-attorney/
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| 13 Feb 2023 | #46 Clare talks on the Magnificent Midlife podcast with Rachel Lancaster | 00:00:29 | ||
https://magnificentmidlife.com/podcast/132-later-life-planning-clare-fuller/ I was delighted recently to be a guest on the Magnificent Midlife podcast. I talk all things Advance Care Planning with Rachel Lancaster, including triggers for Advance Care Planning and how to have Important Conversations. To listen in full head to https://magnificentmidlife.com podcasts. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 19 Feb 2024 | #81 Talking through the intersection between critical care & EoLC with paramedic Jim Walmsley | 00:45:09 | ||
In this episode it is my pleasure to talk to Jim Walmsley, a specialist paramedic in critical care. Jim talks about how Advance Care Planning impacts the work he does, sharing stories and experience.Jim also explains why he is fundraising for the Intensive Care Society and how you can follow and support his iconic high alpine challenge.
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| 08 Apr 2024 | #88 Getting Your House in Order: Thinking about the things you do want with Clare Fuller & Dani Ayre | 00:18:11 | ||
In the second episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and move on to explore thinking about the things you do want and how this can be documented. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | ||||
| 25 Sep 2023 | #71 Symptom control and medication as someone approaches the end of life at home | 00:20:01 | ||
This is the fourth in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about how to recognise when someone might be approaching the last stages of life and why this matters.
Dying at home, what you need to know and how to be prepared 1.Recognising when someone might be approaching the last stages of life and why this matter 2. What support is available to help look after a person who is dying at home 3. What equipment might be needed to help look after a person who is dying at home 4. Symptom control and medication as someone approaches the end of life at home 5.What changes are there as someone approaches the end of life? 6. What we need to do after a person has died at home 7. Changing plans, anticipatory grief and being prepared
If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | ||||
| 11 Sep 2023 | #69 What support is available to help look after a person who is dying at home | 00:16:29 | ||
Dying at home, what you need to know and how to be prepared - What support is available to help look after a person who is dying at home. This is the second in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about what support is available when a person is dying at home. We talk about Fast Track Continuing Health Care as well as agencies and organisations that can help fill the “space around the edges” of formal care. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY | ||||
| 14 Feb 2022 | #7 Advance Decisions to Refuse Treatment with Celia Kitzinger | 00:37:57 | ||
In episode 7 I talk with Celia Kitzinger about Advance Decisions to Refuse Treatment and the Mental Capacity Act. Celia shares how a devastating family experience provided the catalyst for her work and provides clarity and insight into ADRTs and the MCA. Celia talks through the process of making an ADRT and why an Advance Statement of wishes and preferences is so very important. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 13 Jun 2022 | #24 Sally and the Brain Bank | 00:42:23 | ||
In this very personal episode I talk with Professor Steve Gentleman, director of the Parkinson’s Brain Bank, and Dr George Gverich - Tissue Bank Manager the tissue bank manager. We talk about the unique Parkinson's Brain Bank work and also hear from my family members impacted by Parkinson’s Disease.
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| 28 Nov 2022 | #40 Working when living with a terminal illness with Joanne Smithson and Sam Royston | 00:35:19 | ||
In this episode it is my pleasure to talk with Joanne Smithson from What Works Wellbeing and Sam Royston from Marie Curie about working when living with a terminal illness. We reflect on the legacy of Clair Fisher and how Clair spoke so passionately about the impact on working on wellbeing. We talk about the research that has grown from this legacy and what the next steps look like. This is a great episode which challenges many assumptions of working while living with a terminal diagnosis.
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| 30 May 2022 | #22 The role of End of Life Doulas in Advance Care Planning | 00:34:03 | ||
In this episode I talk with EoL Doula Aly Dickinson. I learn more about the role of an EoL Doula and explore how they can help people and organisations in Advance Care Planning. Our conversation highlights the components of Advance Care Planning, and Aly’s approach shows how to create a practical plan from your initial thoughts. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 04 Mar 2024 | #83 Lasting Power of Attorney with Gary Ryecroft | 00:37:19 | ||
In this episode it is my pleasure to talk with Gary Ryecroft, a solicitor and resident legal expert on Rip Off Britain. Gary has also been a trustee for what was the National Council for Palliative Care and later a chair of the Dying Matters Forum. This is a supper conversation, we talk about the podcast Gary created as part of the We Need to Talk About Death series with Dame Joan Bakewell and we talk about Gloria Hunniford’s live televised Lasting Power of Attorney signing. We also cover capacity, digital assets and Advance Decisions to Refuse Treatment and there is so much to learn from this rich conversation. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 18 Apr 2022 | #16 The views of Disabled People on Advance Care Planning. What we can learn from research by scholar activist Gill Lomes Quinn | 00:40:13 | ||
In this episode I talk with Gill Lomes Quinn and learn about her research into the views of disabled people on Advance Care Planning. Gill describes her research and we talk about what we can learn and apply from her work. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 13 May 2024 | #93 Dying Matters with Dr Lucy Pain | 00:35:36 | ||
In this episode it is my pleasure to talk with Dr Lucy Pain, who is this year’s Dying Matters Awareness week expert. I have the chance to thank Lucy publicly for recommending Conversations About Advance Care Planning as part of the recommended books (and more) for Dying Matters Awareness Week. We explore the importance of week, why language matters and what resource is available through Hospice UK. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.
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| 31 Oct 2022 | #36 If I get dementia, will they serve me meat? Advance Care Planning for vegans and vegetarians with Amanda Woodvine | 00:28:36 | ||
In this episode it is my pleasure to talk with Amabda Woodvine, CEO of Vegetarian for Life.I learn about the surprisingly high number of older vegans and vegetarians living in care homes, the challenges that can be experienced and I find out about some of the great resources available to help.
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| 16 Jan 2023 | #42 Advance Care Planning across ages - Common ground and challenges | 00:39:26 | ||
In this episode I talk with Dr Annabel Howell, Medical Director of Children’s’ hospice across Scotland, Trustee/Vice Chair at the My Name’5 Doddie Foundation and keen sportswoman. We talk about how sport has influenced Annabel’s practice as a Dr, what Advance Care Planning with children looks like, and the differences and similarities with adult Advance Care Planning. We talk about Advance Care Planning when living with Motor Neuron Disease and explore sensitive decision making around the withdrawal of ventilation. We also explore Annabel’s work with the My Name’s Doddie Foundation and pay tribute to a remarkable man who died shortly after this episode was made highlighting Doddie’s ongoing legacy and impact.
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| 07 Mar 2022 | #10 Advance Care Planning and Learning Disabilities with Sue Marsden | 00:23:32 | ||
In this episode I talk with Sue Marsden about Advance Care Planning for people with Learning Disabilities. Sue’s shares her experience of working as a specialist nurse in both LD and EoLC and the value this brings to each role. Sue talks about some of the barriers to planning ahead for people living with a Learning Disability and is passionate about educating others to overcome those barriers. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 12 Jun 2023 | #56 The Court of Protection: Experience of a daughter | 00:25:40 | ||
In this episode it is my pleasure to talk with Mary about how it felt as a daughter to experience the Court of Protection, and what she learned about being an attorney for her Mum. I talk with Mary about what it felt like to experience the Court of Protection, the challenges, the positives and what impact the Open Justice Court of Protection Project had. This is the second in a series of three podcasts; previously I spoke with Anna, Mary’s sister about the interplay between Lasting Power of Attorney and Deprivation of Liberty Safeguards. I learned about the circumstances leading to being in the Court of Protection and the interplay between Lasting Power of Attorney and Deprivation of Liberty safeguards. In the third episode I’ll be talking with Victoria Butler Cole KC who explains the terminology and legal framework that underpin the mental capacity act, lasting Power of Attorney and deprivation of liberty safeguards. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 29 Jan 2024 | #78 Advance Care Planning: Listening not box ticking with Professor Alison Leary | 00:27:35 | ||
In this episode it is my pleasure to talk with Professor Alison Leary. Alison is a Senior Consultant at the World Health Organisation, Human Resources for Health, and the Chair of Healthcare & Workforce Modelling at London South Bank University. It’s an important episode and based on Alison’s family experience. We talk the impact of receiving a form in the post to initiate Advance Care Planning, what it felt like and how valuable messages and nuances were lost. We also acknowledge the importance of having conversations and listening to cues as the basis for person centred Advance Care Planning.
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| 14 Mar 2022 | #11 No Barriers Here | 00:45:32 | ||
In this inspirational episode I talk with Gemma and Jed about the No Barriers Here work; we discuss their innovative co-productive Advance Care Planning work and learn stories behind the No Barriers Here film. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||
| 06 Jun 2022 | #23 Anticipatory Care Planning in Scotland with Dr Tony Duffy | 00:46:14 | ||
In this episode we explore Advance Care Planning, or Anticipatory Care Planning as it’s called in Scotland and discuss the challenges of ACP conversations in a Community setting as well as the steps to a successful ACP conversation.
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| 08 May 2023 | #51 Marking anniversaries and walking alongside a person who is grieving. | 00:20:43 | ||
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| 31 Jan 2022 | #5 Planning ahead for end of life care with critical care and former End of Life Care paramedic with Jim Walmsley | 00:38:08 | ||
In episode five I talk with Jim about what he learned from working in a hospice and how he walks two roads between life saving active interventions and supporting people at the end of life. Jim talks about what can happen when Advance Care Planning is not in place, describing some of the calls he has attended to demonstrate the reality. We know that many people express a wish to be in their own home at the end of life, yet often the planning to facilitate this is missing; Jim describes what can happen without these important plans in place. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. | ||||