In this episode, Harriet and Jenny continue with an exploration of thinking about change, and motivating carers and people with an ED to change. Today’s episode will focus on the DARN-C skill and Solution Focused Questioning. Another skill to have in your tool box when you are thinking about change or helping your loved one to think about change.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

In this episode, Barry, our Research and Policy Officer, speaks to Dr Dawn Branley-Bell, Northumbria University, about challenging mainstream framing of eating disorders.

Research mentioned:

It’s not all about control: challenging mainstream framing of eating disorders: https://jeatdisord.biomedcentral.com/articles/10.1186/s40337-023-00752-9

Remote Healthcare for Eating Disorders throughout COVID-19: https://research.northumbria.ac.uk/rhedc/

In this episode, Barry Murphy, our Research and Policy Officer speaks with Dr Jennifer Harriger, Pepperdine University, about social media and body image.

Notes:

• TikTok, TikTok, the time is now: Future directions in social media and body image - ScienceDirect
• Research for CULT Committee - The influence of social media on the development of children and young people | Think Tank | European Parliament (europa.eu)

This time of year is dominated for many by 'Back to school'. It can be a challenging time for anyone and especially for a person with an eating disorder and their family. In this episode, Jenny and Harriet discuss many scenarios of going back to school and which New Maudsley skills are helpful to use over the next couple of weeks.

Notes:

Click here to download Jenny's Back to School capsule

In this episode, Barry Murphy, our Research and Policy 0fficer, speaks with Anna Rose of Eating Disorders Neurodiversity Australia about the connection between eating disorders & neurodivergence. Notes:

Eating Disorders Neurodiversity Australia (edneuroaus.com)

Eating Disorders and Neurodivergence (nedc.com.au)

Harriet and Jenny are back with a new season of the New Maudsley Carer Skills (NMCS) podcast series. In this episode, they discuss what they've been up to and what they plan to talk about in the upcoming season.

Find out more:

Jenny's website: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

In this episode, Barry speaks to Samantha Whithnell of the Psychobiology of Eating and Related Disorders (PEAR) lab to talk about her research into Other Specified Feeding or Eating Disorders (OSFED).

The study mentioned 'How Different Are Threshold and Other Specified Feeding and Eating Disorders? Comparing Severity and Treatment Outcome' can be accessed here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8898928/

Other resources:

NEDC Management of eating disorders for people with higher weight: clinical practice guideline: https://nedc.com.au/eating-disorder-resources/clinical-practice-guideline/

If you have any questions, you can reach Barry on: research@bodywhys.ie

Gillian Todd worked with Prof Janet Treasure on the Adult eating disorder ward at the Maudsley Hospital in London for 17 years. During this time, the New Maudsley Carer Skills was developed.

In this episode Jenny and Harriet discuss the development of the Maudsley Carer Skills with Gill, as well as thinking through how to support adults with EDs, and what recovery, or ‘discovery’ can look like for people with a severe and enduring eating disorder. With stories of recovery, this episode is enlightening and interesting for all carers of people with eating disorders.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

In this episode, Jenny and Harriet talk through how to make the most of a GP visit, how to plan what to say, what will be important information to give, and how to manage both the appointment and what happens afterwards. They also discuss making the most of the appointment if you are an adult with an eating disorder.

Resources mentioned:

• MEED guidelines: https://www.rcpsych.ac.uk/docs/default-source/improving-care/better-mh-policy/college-reports/college-report-cr233---annexe-1.pdf?sfvrsn=1ba7e785_10
• FREED resources: https://freedfromed.co.uk/resources-for-patients-carers

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

In this episode, Barry speaks with Dr Veya Seekis, Griffith University, about social media detox strategies, body image and well-being.

Notes

To detox or not to detox? The impact of different approaches to social media detox strategies on body image and wellbeing - ScienceDirect

Growing skincare use by children is dangerous, say dermatologists

In this episode, Barry speaks to Dr Anisa Jafar, University of Manchester, and Dr Aileen McCabe, Tallaght University Hospital about eating disorders in the emergency department.

Notes:

Recognising and managing eating disorders in the emergency department

Assessment of Patients with Eating Disorders in the Emergency Department – Irish Medical Journal

TW: This episode discusses specific numbers and weights. 

In this episode, Barry, our Research and Policy Officer, speaks to Jenny Langley, Keith Russell and Dr Jason Nagata about men’s experiences of eating disorders.

Jenny's website: https://newmaudsleycarers-kent.co.uk/

Keith's podcast 'The Endless Spiral': https://theendlessspiral.com/

Dr. Jason Nagata (Assistant Professor of Pediatrics & Adolescent Medicine, UC San Francisco): https://profiles.ucsf.edu/jason.nagata

Resources and studies mentioned:

Medical Management of Restrictive Eating Disorders in Adolescents and Young Adults

https://www.jahonline.org/article/S1054-139X(22)00577-8/fulltext

Sex differences and associations between zinc deficiency and anemia among hospitalized adolescents and young adults with eating disorders https://link.springer.com/article/10.1007/s40519-022-01396-5

Relative energy deficiency in sport (RED-S)

https://www.sportireland.ie/institute/performance-service/nutrition/red-s

In this episode, Jenny talks Harriet through the adaptations to the ALVS (Attend, Label, Validate, Soothe) technique when supporting an autistic person with an eating disorder. Using examples from carers Jenny has worked with, she explains the technique and how adaptations can be really helpful to establish connection with the person with an eating disorder.

Notes:

Jenny's website: https://newmaudsleycarers-kent.co.uk/

Bodywhys website: www.bodywhys.ie

This webinar was recorded as part of Eating Disorders Awareness Week 2024. Our thanks to Emmy, Johnny, Laura, Chris and Bláithín for sharing their experiences.

See the YouTube video here: https://www.youtube.com/watch?v=qGtEMErXEic

In this episode, Barry, our research and policy officer speaks with Dr. Rachel Langbein about psychological recovery from relative energy deficiency in sport (RED-S).

Notes:

Rachel’s website

https://theramblesofrachel.wordpress.com/

“It's hard to find balance when you're broken”: Exploring female endurance athletes’ psychological experience of recovery from relative energy deficiency in sport (RED-S)

https://www.sciencedirect.com/science/article/abs/pii/S2211266921000402

“I’d got self-destruction down to a fine art”: a qualitative exploration of relative energy deficiency in sport (RED-S) in endurance athletes https://www.tandfonline.com/doi/full/10.1080/02640414.2021.1883312

The IOC consensus statement: beyond the Female Athlete Triad—Relative Energy Deficiency in Sport (RED-S)

https://bjsm.bmj.com/content/48/7/491?hootPostID=0116e43013bf35a19d2c4f30c76050b1

Mental health in elite athletes: International Olympic Committee consensus statement (2019) https://bjsm.bmj.com/content/53/11/667

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Dr Andrea LaMarre & Dr Kathryn McGuigan of Massey University about families experiences with avoidant restrictive food intake disorder (ARFID).

Notes

• Listening, learning, caring: exploring assemblages of, ethics of and pathways to care for avoidant restrictive food intake disorder (ARFID) | Medical Humanities (bmj.com)

In this episode, Barry Murphy, our Research and Policy Officer, speaks to Dr Megan Reay, Clinical Psychologist at Oxford Health NHS Foundation Trust, about the current research related to patients with longstanding eating disorders.

Study mentioned:

Creating a care pathway for patients with longstanding, complex eating disorders

https://jeatdisord.biomedcentral.com/articles/10.1186/s40337-022-00648-0

In this episode, Harriet and Jenny talk about the stages of change model that is used within the New Maudsley model. 

We all know the idea that unless somebody wants to change, or is ready to change, trying to make them change is a frustrating and exhausting challenge. When carers understand the different stages of change, they can use their energy and love to support their loved one in a more helpful way. Jenny writes, “If carers rush in too early, before Edi is ready, this is likely to create too much tension and a breakdown in communication.” 

This podcast episode helps carers to think about the stage their loved one is at, how they can support them at that stage and plant seeds of change.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

In this episode, Jenny and Harriet are joined by Livia Sara, a well-established autistic advocate, recovery coach and eating disorder (ED) survivor. Livia is passionate about supporting families to learn how to support their loved one to use their autistic and ADHD traits to their advantage in ED recovery through a combination of science and lived experience. Livia has created a vast treasure trove of books, videos and podcasts. In this episode, Livia tells us her story, how she has come to reframe her experience to help her discover who she is without her ED, and how recovery for Livia, is not about overcoming fear, but rather understanding that what we fear most, is precisely what we most want to do.

Notes

Liv Label Free | Neurodiversity-Affirming Eating Disorder Recovery

In this episode, Barry speaks with Hannah Kuhn about her personal experience of an eating disorder.

Notes:

Hannah's thesis: "Pretty Girls Don't Eat Pizza: How an Eating Disorder Taught Me I Am En" by Hannah Kuhn (liberty.edu)

In this episode, Barry Murphy, our Research and Policy 0fficer, speaks with Marissa R. Carney, Rebekah Mack ( Johns Hopkins Hospital) & Caroline E. Stanton (Prisma Health Kidnetics) about occupational therapy & eating disorders.

Notes:

• The importance of including occupational therapists as part of the multidisciplinary team in the management of eating disorders: a narrative review incorporating lived experience https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9996838/

In this episode, we speak with staff from eating disorders organisations around the world about their experiences of supporting people during Covid-19. Thank you to Sian, Nicola, Liz, Ranjani and Kaitlyn.

The Butterfly Foundation: https://butterfly.org.au/

Eating Disorders Association Northern Ireland (EDANI): https://www.eatingdisordersni.co.uk/

Sheena's Place: https://sheenasplace.org/

National Eating Disorders Association (NEDA): https://www.nationaleatingdisorders.org/

BEAT: https://www.beateatingdisorders.org.uk/

In this episode, our Research and Policy Officer, Barry speaks with Dr Vanessa Yim, Clinical Psychologist, Oxford NHS Trust about adult patients' experiences of clinical team meetings (ward rounds).

Patients’ experiences of clinical team meetings (ward rounds) at an adult in-patient eating disorders ward: mixed-method service improvement project | BJPsych Bulletin | Cambridge Core

Supplementary material:

https://static.cambridge.org/content/id/urn:cambridge.org:id:article:S2056469423000141/resource/name/S2056469423000141sup001.docx

In this episode, Barry speaks with Dr Ann Haynos about the challenges of getting eating disorders research published.

Not niche: eating disorders as an example in the dangers of overspecialisation | The British Journal of Psychiatry | Cambridge Core

In this episode, Harriet and Jenny talk about The Reassurance Trap, a trap that we all fall into, and need to think about. As Jenny writes, “Carers often get caught up in the reassurance trap and can see no way out. A vicious cycle ensues in which Edi asks for more and more reassurance and there is no obvious learning to change happening. This is exhausting and quickly becomes counterproductive.” This episode helps us to think through both why carers get caught in this trap and how they can start to avoid it.

In this episode, Jenny and Harriet talk about an important part of recovery from an eating disorder - food and eating. They look at the non-negotiable eating boundary, and at how carers can think about how to manage and support their loved one to start eating more normally. This episode and the following couple of episodes will look at this difficult topic. 

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

In this episode, Barry, our Research and Policy Officer, speaks to Dr Laura Renshaw-Vuillier, Bournemouth University about emotion difficulties and eating disorders.

Resources and studies mentioned:

Vuillier, L., Joseph, J., Greville-Harris, M. et al. (2022) What about males? Exploring sex differences in the relationship between emotion difficulties and eating disorders. Journal of Eat Disorders, 10, 193. https://doi.org/10.1186/s40337-022-00715-6

PEACE - Pathway for Eating disorders and Autism developed from Clinical Experience: https://www.peacepathway.org/

Content warning: This episode discusses self-harm. Please know, Pieta provides support to people who are in suicidal distress and those who engage in self-harm. Pieta Free 24/7 Crisis helpline: 1800 247 247 (For more see: https://www.pieta.ie/)

In this episode, Harriet and Jenny talk through planning for change, using the New Maudsley Model's 5 Step Approach to change. This episode focuses on how carers can work with the person with an eating disorder to introduce, plan, implement and review behaviour change experiments. As with the last episode, a key message is to take the path of least resistance. Our confidence builds as we experiment and experience change, and this approach helps us all to do that.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

In this episode, Harriet and Jenny talk about building and improving emotional intelligence using five key principles (DEARS). An important part of the New Maudsley Model is working with carers to develop their emotional intelligence and in turn role modelling this for their loved one with an eating disorder. There are many important skills that the workshops focus on to do this and one is DEARS - five key principles for helping to develop emotional intelligence. The five key principles are; Develop Discrepancy, Express Empathy, Amplify Ambivalence, Roll with Resistance, Support Self-Efficacy. This episode explains these principles and illustrates these advanced communication skills.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

In this episode, Harriet and Jenny talk about the Decisional balance. Following the previous episode on the stages of change model, the decisional balance is a tool “to help carers to empathise with the conflicts/internal dialogue Edi is facing as they progress through the stages of change.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

In this episode, Barry Murphy, Research and Policy Officer at Bodywhys, speaks with Cat Papastavrou Brooks (Sussex Partnership NHS Foundation Trust) & Dave Chawner (Lived Experience) about co-producing principles to guide health research.

Notes:

• Co-producing principles to guide health research: an illustrative case study from an eating disorder research clinic - PMC (nih.gov)

In this episode Jenny and Harriet talk about ways of managing Christmas when a person in the house has an eating disorder. They discuss how to use the New Maudsley Skills to make the occasion and the days afterwards easier for everyone.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

In this episode, Harriet and Jenny focus on the nutritional risk ruler and the concept of reasonable risk. The nutritional risk ruler is similar to the readiness ruler, and is a useful tool carers can use to open up conversations about change / moving forward in terms of the Edi taking more responsibility for their own nutritional health.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

In this episode, Jenny introduces Harriet to the purple balloon. The episode begins with a recap of the red and blue balloon and then Jenny describes, using lots of examples, how the purple balloon can help us support autistic / neurodivergent people with an eating disorder.

Notes:

• Jenny's website: ⁠https://newmaudsleycarers-kent.co.uk/⁠
• Bodywhys website: ⁠⁠www.bodywhys.ie

In this episode, Barry speaks to Emy Nimbley, PhD student, University of Edinburgh, and Jennifer O'Connor, AsIAm, about sensory processing, eating behaviours and autism.

Study mentioned:

Sensory processing and eating behaviours in autism: https://onlinelibrary.wiley.com/doi/10.1002/erv.2920

In this episode, Barry Murphy, Research and Policy Officer at Bodywhys speaks with Emily Colton, Monash University, about neurocognitive factors and binge eating.

Notes:

• Dysfunctional decision-making in binge-eating disorder: A meta-analysis and systematic review - ScienceDirect
• New Research: Revealing the True Duration of Binge-Eating Disorder (psychiatrictimes.com)

In this episode, Barry Murphy, our Research and Policy Officer speaks with Dr Jessica Alleva of Maastricht University about body functionality, positive body image and well-being.

Notes

Body functionality: A review of the literature - ScienceDirect

PaRx: A Prescription for Nature (parkprescriptions.ca)

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Laura Kiely of Western Sydney University about the conceptualisation of longstanding anorexia nervosa.

Notes

Laura's Website: https://www.seeinganorexia.com/ 

• Conceptualisation of severe and enduring anorexia nervosa: a qualitative meta-synthesis | BMC Psychiatry

• Listening in the dark: why we need stories of people living with severe and enduring anorexia nervosa | Journal of Eating Disorders

• Lived experience perspectives on labeling and defining long-standing anorexia nervosa | Journal of Eating Disorders

In this episode, Jenny and Harriet talk about the difficult situation of supporting a person (autistic or not) who is not ready to acknowledge they have a problem. They provide lots of suggestions for how to manage and approach this situation, and how as a supporter to not get totally exhausted when in this situation.

Bodywhys website

Jenny's website

In this episode, Harriet and Jenny talk about The Accommodation and Enabling Scale for Eating Disorders. As Jenny writes in the manual, “ It is common for the eating disorder to cause carers to do things we refer to a enabling and accommodating to the Edi. This scale is used at the Maudsley to help carers to reflect on whether and how they accommodate and enable the eating disorder by submitting to the eating disorder voice.” 

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

In this episode, Barry talks to Dr Madeleine Tatham, Norfolk Community Eating Disorders Service, about the impact of a podcast-based pre-treatment psychoeducation intervention. Dr Tatham also describes working with adults affected by eating disorders.

Notes

Enhancing assessment for eating disorders: the impact of a podcast-based pre-treatment psychoeducation intervention

Keeping Safe Programme | CPFT NHS Trust

In this episode, Harriet and Jenny focus on communicating and collaborating with care teams. For the most part, people with eating disorders are treated by a team. Regardless of the circumstances, communication, and collaboration between team members, which includes family / carers, is vital for progress to be made. Frequently difficulties and differences arise and in this episode, we think through ways of getting through these difficulties, to make the process better for everyone.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

In this episode, Barry, our Research and Policy Officer, speaks to Dr Ekaterina Malova, Department of Communication Studies, University of Miami about their research into men’s eating disorders experiences as shared on YouTube.

Research mentioned:

Men have eating disorders too: an analysis of online narratives posted by men with eating disorders on YouTube

https://www.tandfonline.com/doi/full/10.1080/10640266.2021.1930338

In this episode, Jenny and Harriet outline the adaptations and developments of the New Maudsley Carer Skills model when applied to supporting an autistic or neurodivergent person with an eating disorder.

Notes: 

• PEACE Pathway: https://www.peacepathway.org/
• PEACE BOB: https://peacepathwaybob.org/autism-and-eating-disorders/
• Jenny's website: https://newmaudsleycarers-kent.co.uk/
• Bodywhys website: ⁠www.bodywhys.ie

In support of Pride Month 2024, Barry Murphy, Research and Policy Officer at Bodywhys speaks with Dr Philip Joy, Mount Saint Vincent University, about compassion, recovery and LGBTQ experiences.

Notes

• Wicked Bodies
•  “It’s beautiful and it’s messy and it’s tragic”: exploring the role of compassion in the eating disorder recovery processes of 2S/LGBTQ + Canadians | Journal of Eating Disorders
•  New research report highlights stark deterioration in mental health of LGBTQI+ people since 2016  - Belong To - LGBTQ+ Youth Ireland

In this episode, Barry Murphy, Research and Policy Officer at Bodywhys speaks with Dr Gemma Sharp, Monash University, about artificial intelligence and ethics in relation to eating disorders.

Notes

• Journal of Medical Internet Research - Ethical Challenges in AI Approaches to Eating Disorders (jmir.org)
• CoRe-ED

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Dr Karina Allen, South London and Maudsley NHS Foundation Trust, about conceptualising early intervention for eating disorders.

Notes

• A framework for conceptualising early intervention for eating disorders - European Eating Disorders Review
• First Episode Rapid Early Intervention for Eating Disorders | FREED (freedfromed.co.uk)

In this episode, Jenny and Harriet continue to discuss ARFID, this time in children. Harriet and Jenny talk about treatment, how the Maudsley skills can be used, and lots of resources and books that are helpful.

• ARFID Avoidant Restrictive Food Intake Disorder: A Guide for Parents and Carers - By Rachel Bryant-Waugh
• PEACE pathway: https://www.peacepathway.org/
• Child and Adolescent PEACE pathway: https://peacepathwaybob.org/
• FBT for ARFID
• CBT for ARFID
• Food Chaining: The Proven 6-Step Plan to Stop Picky Eating, Solve Feeding Problems, and Expand Your Child's Diet: By Cheri Fraker 
• Food Refusal and Avoidant Eating in Children, including those with Autism Spectrum Conditions: A Practical Guide for Parents and Professionals: By Gillian Harris and Elizabeth Shea
• Jenny's ARFID/Autism capsule - Please email info@bodywhys.ie or jenny@newmaudsleycarers-kent.co.uk to request this
• Jenny's website (Expert ED dietitians): https://newmaudsleycarers-kent.co.uk/expert-eating-disorder-dietitians/
• Jenny's website: https://newmaudsleycarers-kent.co.uk/
• Bodywhys website: www.bodywhys.ie

In this episode Jenny and Harriet explore binge eating within the context of adhd and autism. What drives binge eating behaviour? What carer skills can support a person struggling with binge eating?

Kent New Maudsley website

Bodywhys website

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Akansha Mahesh Naraindas (University College Dublin) & Dr Rachel Rodgers (Northeastern University) about body image from a global perspective.

Notes:

• Body image as a global mental health concern | Cambridge Prisms: Global Mental Health | Cambridge Core
• Perfectionism Is Increasing Over Time (apa.org)

In this episode, Jenny and Harriet talk through the third subtype of ARFID - fear of aversive consequences. Using real life examples, Jenny discusses the menu of Maudsley skills that can help carers supporting a person with this type of ARFID.

Notes

Bodywhys website

Jenny's website

In this episode, Harriet speaks with Michelle Kickham about living with a severe and enduring, or long standing eating disorder (SEED/L-ED).

In this episode, Harriet and Jenny continue to talk about module 10, feeding and eating. The episode focuses on thinking about communicating and coaching for rigid rules and compensatory behaviours including overeating and purging. As Jenny writes, ‘The brain’s natural appetite system can be overridden by a combination of emotional problems, unusual eating habits and fluctuating blood sugar levels. Roadblocks to recovery from an ED can present themselves in many forms. Two of the most difficult are: Rigid rules around eating and Compensatory behaviours.'

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

UCD's Youth Mental Health Lab  https://www.ucd.ie/psychology/research/researchcentresandlaboratories/youthmentalhealthlaboratory/

Ciara's study: Processing Body Image on Social Media: Gender Differences in Adolescent Boys’ and Girls’ Agency and Active Coping https://www.frontiersin.org/articles/10.3389/fpsyg.2021.626763/full

A meta-analytic review of the relationship between social media use and body image disturbance
https://www.sciencedirect.com/science/article/abs/pii/S0747563219302717

A systematic review on the effects of media disclaimers on young women’s body image and mood
https://www.sciencedirect.com/science/article/abs/pii/S1740144519302220

In this episode, Jenny and Harriet talk about an important part of recovery from an eating disorder - food and eating. They look at the non-negotiable eating boundary, and at how carers can think about how to manage and support their loved one to start eating more normally. This episode and the following couple of episodes will look at this difficult topic. 

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

In this episode, Barry, our Research and Policy Officer speaks with Akansha Naraindas (UCD) about interoceptive sensibility and body image.

• Body image disturbance, interoceptive sensibility and the body schema across female adulthood: a pre-registered study

In this episode, Jenny and Harriet continue talking about binge eating, this time within the context of a person experiencing extreme hunger in recovery. They discuss hypermetabolism and coping with the difficulties this throws up for the person recovering and their carer.

Notes:

Bodywhys website

Jenny's website

Eating Disorder Recovery for Adults by Tabitha Farrar

Livia Sara: Liv Label Free | Neurodiversity-Affirming Eating Disorder Recovery

In this podcast we share a our 2023 'Coping with Christmas' webinar with Harriet Parsons, Psychotherapist and Training & Development Manager with Bodywhys.

Notes: Find our 'Coping with Christmas' resources here: https://www.bodywhys.ie/free-coping-at-christmas-resources/

Bodywhys website: www.bodywhys.ie

In this episode, Barry speaks with Dr Andrea Goldschmidt, University of Pittsburgh School of Medicine, about FBT in the home.

Adapting family-based treatment for adolescent anorexia nervosa delivered in the home: A novel approach for improving access to care and generalizability of skill acquisition | Journal of Eating Disorders

In this episode, Barry Murphy, Research and Policy Officer at Bodywhys speaks with Dr Amanda Raffoul, University of Toronto, about auditing social media algorithms.

Notes:

• Social Media Algorithm Auditing | STRIPED | Harvard T.H. Chan School of Public Health

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Dr Ella Guest of the Centre for Appearance Research (CAR) about body image interventions.

Notes

• The effectiveness of interventions aiming to promote positive body image in adults: A systematic review
• A systematic review of interventions aiming to promote positive body image in children and adolescents
• Centre for Appearance Research (CAR) - Research centres and groups | UWE Bristol

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Therese Kenny of the University of Guelph about an ecological framework for recovery.

We share this episode as part of World Mental Health Day 2023 #WMHD23

Notes

• More than an outcome: a person-centered, ecological framework for eating disorder recovery | Journal of Eating Disorders

In this episode, we hear from members of our Media Panel about their experience of living with an eating disorder over the Christmas season and New Year. We would like to thank Mirin, Mary, Lauren, Emmy and Michelle for taking the time to share their stories and contribute to this podcast.

For more about our support services, see here: https://www.bodywhys.ie/recovery-support-treatment/support-services-2/

To find out more about our Media Panel, see here: https://www.bodywhys.ie/media-research/media-panel/

In this episode, Barry speaks with Cato Benschop, Utrecht University, about the life project account of eating disorders.

Notes

The life project account of eating disorders: agency in the pursuit of dietary goals

Cato's website

Trigger warning: This podcast discusses suicidal feelings. If you have been affected by anything you have heard, please contact Samaritans on 116 123 or visit their website on www.samaritans.org.

In this podcast, we speak to Irish journalists about their experience of covering sensitive topics such as eating disorders. Please find our media guidelines here: https://bit.ly/3O7MoQy

In this episode, Barry speaks to researchers Hannah Cribben and Rachel Batchelor of King's College London Eating Disorders Research Group about the experiences and perspectives of siblings and partners in caring for someone with an eating disorder. 

The study mentioned 'The experiential perspectives of siblings and partners caring for a loved one with an eating disorder in the UK' can be accessed here: https://bit.ly/3poGv6g

Trigger warning: 

This podcast discusses eating disorders. If you have been affected by anything you have heard, please know our support services are available to you. Our email support can be accessed at any time via: alex@bodywhys.ie, see more support services here.

In this podcast, we speak to Clare Austick, President of the Union of Students in Ireland about mental health and eating disorders at third level. 

Studies mentioned:

My World Survey 2: http://www.myworldsurvey.ie/

In this episode, Harriet and Jenny talk about the famous Maudsley ‘Animal Metaphors’, which help carers to think about how interpersonal relationships can impact the recovery process. As Jenny writes in the manual, “The New Maudsley Model uses animal metaphors as a light-hearted yet powerful way of illustrating how carers’ initial and instinctive reaction to the eating disorder are not always helpful and can lead carers to inadvertently accommodate to the illness'

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

In this episode, Barry speaks with Hanna Christian, Clinical Research Coordinator, University of Pennsylvania, about challenges with diagnostic crossover.

Notes: “You’re Just Looking at One Piece of the Puzzle… My Weight”: A Phenomenological Examination of Diagnostic Crossover in Eating Disorders

In this episode, Harriet and Jenny think about preparing for summer holidays. Summer can often be a difficult time for someone living with an eating disorder. The change from a set routine to ‘free time’ stretching out ahead can bring lots of panic and anxiety. This episode thinks through how the New Maudsley carer Skills, and ideas around planning can make this time less difficult.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

Resources mentioned: Preparing for the holidays when your loved one has an eating disorder: New Maudsley Capsule

In this episode, Jenny and Harriet continue to explore adaptations of the New Maudsley Carer Skills when supporting an autistic / neurodivergent person with an eating disorder. Learn how we can adapt OARS (Open questions, Affirmations, Reflective listening and Summarising), the communication skills at the heart of the Maudsley model.

Notes

Jenny's website: https://newmaudsleycarers-kent.co.uk/

Bodywhys website: www.bodywhys.ie

In this episode, Harriet and Jenny discuss the Readiness Ruler and how it helps carers to think about where they are at, and what they can do to create a seed of progress, both in relation to their own emotional resilience, and that of their loved one with an eating disorder.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

In this episode Harriet and Jenny talk through planning for change, using the New Maudsley Model's 5 Step Approach to change. This episode focuses on how carers can first practice this approach themselves, and in the following podcast episode, we will learn how to work with a person with an eating disorder, to plan and implement change. A key message is to take the path of least resistance. Our confidence builds as we experiment and experience change, and this approach helps us all to do that.

In this episode, Barry Murphy, our Research and Policy 0fficer, speaks with Dr Kai Kummer of Medical University of Innsbruck about male eating disorders in midlife.

Notes:

Male eating disorders in midlife—possible links between excessive sports and hormones (tandfonline.com)

In this episode we speak with Michelle Mc Carthy, Bodywhys Media Panel member and volunteer, about her experience with an eating disorder during Christmas and New Years.

Notes:

Find our 'Coping with Christmas' resources here: https://www.bodywhys.ie/free-coping-at-christmas-resources/

In this episode, Barry, our Research and Policy Officer, speaks to Dr Connor Strobel, Harper-Schmidt Fellow, University of Chicago, about their research into gender salience in eating disorder recovery.

Research mentioned:

The Shadow that Hovered Over: Gender Salience in Eating Disorder Recovery. https://doi.org/10.1007/s12147-022-09294-x

This podcast series intends to bring the New Maudsley Carer Skills to life, in bite size pieces. In this episode, we learn more about the origin of the New Maudsley Carer Skills and get an insight into the red and blue balloon analogy.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk .

For more information on the red and blue balloon exercise, see here: https://www.youtube.com/watch?v=qlEBXwOOZmQ&t=1s

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Dr Lisa Anderson and Dr Erich Kummerfeld, of University of Minnesota, about causal discovery analysis & precision medicine.

Notes

• Causal discovery analysis: A promising tool in advancing precision medicine for eating disorders - Anderson - 2023 - International Journal of Eating Disorders
• Applying Causal Discovery to Intensive Longitudinal Data - PMC (nih.gov)

In this episode Harriet and Jenny talk about – probably the most important skill in the New Maudsley Carer Skills manual – the communication skills known as OARS. As Jenny writes in the manual, “OARS is one of the most important communication skills when using the MI (Motivational Interviewing) approach, it helps keep the conversation reflective and mindful. The aim is to be aware of everything we say and how we say it. The important thing is to keep practising it in everything we do.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Autism and Eating Disorders – thinking about how the New Maudsley Carer Skills can help.

More and more we are hearing from families who have a loved one with an eating disorder and a diagnosis of autism. When supporting an autistic person with an eating disorder we have to take account of this added layer of difficulty often due to the three areas where both cross over – high levels of anxiety, rigidity and emotional dysregulation.

In this episode, Jenny and Harriet talk through how carers can use the New Maudsley Carer Skills to improve the support they provide.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

Resources mentioned:

• ARFID Avoidant Restrictive Food Intake Disorder: A Guide for Parents and Carers by Rachel Bryant-Waugh
• Applying family-based treatment (FBT) to three clinical presentations of avoidant/restrictive food intake disorder: Similarities and differences from FBT for anorexia nervosa: https://www.anzaed.org.au/wp-content/uploads/2021/04/FBT-for-ARFID.pdf
• Supporting Autistic People with Eating Disorders: A Guide to Adapting Treatment and Supporting Recovery by Kate Tchanturia
• PEACE Pathway: https://www.peacepathway.org/
• Irish Society for Autism: https://autism.ie/

Please note: Harriet mistakenly refers to this episode as episode 23. This will be corrected going forward.

In this episode Jenny and Harriet talk about ways that families can think about reclaiming core family values. This involves identifying what your family values are, how to have conversations about them and then how to implement changes in your household to reclaim family life from the eating disorder.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

In this episode, Harriet and Jenny talk about emotional intelligence, and the importance of carers reflecting on their own emotions using a technique called ALVS (Attend, Label, Validate, Soothe)

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

In this episode, Jenny and Harriet talk to Chris, a dad who has experience using the New Maudsley Skills when caring for his adult daughter with an eating disorder. We learn how Chris found the New Maudsley carer groups, and how the skills he learned and support he received have helped him, and his daughter through her anorexia and to a better place.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys animation: Kate's Dad - A father's perspective: https://youtu.be/XyXtSFRUzR0

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Catherine Armour of Dalhousie University (Nova Scotia, Canada) about improving the adult inpatient experience.

Notes

• Improving Adult Inpatient Eating Disorder Treatment: Perspectives of Canadians with Lived Experience (dal.ca)
• Wicked Bodies
• Adult hospital admissions for eating disorders at highest level in a decade – The Irish Times

In the first episode of our mini-series on ARFID, Jenny and Harriet outline what ARFID is and how the New Maudsley Carer Skills can be helpful when supporting a person with ARFID. 

Notes

Jenny's website: https://newmaudsleycarers-kent.co.uk/

Bodywhys website: www.bodywhys.ie

In this episode, Harriet and Jenny focus on the final component of the planning for change module: SMART goals and the anxiety hierarchy.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

In this episode, Barry Murphy, Research and Policy Officer at Bodywhys speaks with Dr. Jennifer Hamer about sports coaches & relative energy deficiency in sport (REDS).

Notes:

• A review exploring coach knowledge, attitudes/beliefs and behaviours towards low energy availability in athletes - Jennifer Hamer, Ben Desbrow, Chris Irwin, 2023 (sagepub.com)
• Are Coaches of Female Athletes Informed of Relative Energy Deficiency in Sport? A Scoping Review in: Women in Sport and Physical Activity Journal Volume 29 Issue 1 (2021) (humankinetics.com)
• 2023 International Olympic Committee’s (IOC) consensus statement on Relative Energy Deficiency in Sport (REDs) | British Journal of Sports Medicine (bmj.com)

In this episode, Harriet and Jenny think through the difficult situation when a carer needs to take a person with an eating disorder to A&E in an emergency. Listen to Jenny and Harriet talk through ways of managing this situation, and ways that the New Maudsley Carer Skills can make this situation easier to manage.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

In this episode, Barry speaks with Dr. Bryony Davies, University of Plymouth, about microinterventions for body image.

Notes:

It helps to be funny or compassionate: An exploration of user experiences and evaluation of social media micro-intervention designs for protecting body image - ScienceDirect

In this episode, Harriet and Jenny think about preparing for college/university. Whether the person living with an eating disorder will be staying at home or moving away, this huge change in a person’s life can bring up unique challenges and new responsibilities. This episode explores these challenges, from different perspectives, and thinks through ways to support someone during this transition.

You can find Jenny's website here.

Bodywhys support:

• Bodywhys website

• Bodywhys: Online student support group (19+)
• Bodywhys: Body image at third level

Resources mentioned: 

• FREED resources
• Jenny's capsules

In this episode we hear from the Bodywhys team on a range of topics discussed during Eating Disorders Awareness Week 2022. 

If you have been affected by anything you have listened to, please know our support services are available to you at any time. 

Helpline: 01-2107906 Email support: alex@bodywhys.ie

In this episode, Barry Murphy, our Research and Policy 0fficer, speaks with Dr Una Foye (King's College London) & Hannah Lewis (Queen Mary University of London) about how lived experience of eating disorders can inform research & practice.

Notes

• From prevention to peer support: a systematic review exploring the involvement of lived-experience in eating disorder interventions: https://www.emerald.com/insight/content/doi/10.1108/MHRJ-04-2021-0033/full/html

• CHIME https://www.therecoveryplace.co.uk/chime-framework/

In this episode, Harriet and Jenny talk about supporting adults with ARFID.

Bodywhys website https://www.bodywhys.ie/

Jenny's website. https://newmaudsleycarers-kent.co.uk/

In this episode, Barry Murphy, Research and Policy Officer at Bodywhys, speaks with Dr Blair Burnette of Michigan State University about the ignored role of disadvantage in eating disorders.

Notes

• The ignored role of disadvantage in eating disorders: Trends in Molecular Medicine (cell.com)
• A systematic review of sociodemographic reporting and representation in eating disorder psychotherapy treatment trials in the United States - Burnette - 2022 - International Journal of Eating Disorders

In this episode Jenny and Harriet discuss two common and difficult situations. Firstly, when a person is physically well and eating regularly but not yet recovered, and when a person has reached a safe level of nutrition and health but is unwilling to keep going.

You can find Jenny's website here: https://newmaudsleycarers-kent.co.uk

Bodywhys website: www.bodywhys.ie

In this episode, Barry Murphy, our Research and Policy Officer, speaks with Phaedra Longhurst of Anglia Ruskin University about autism and body image.

Show notes:

• Body image and autism: A scoping review - ScienceDirect

• “We Have to Try to Find a Way, a Clinical Bridge” - autistic adults' experience of accessing and receiving support for mental health difficulties: A systematic review and thematic meta-synthesis

• “For Me, the Anorexia is Just a Symptom, and the Cause is the Autism”: Investigating Restrictive Eating Disorders in Autistic Women

• Self & Body Lab

Please note - a small section of this episode contains minor audio inconsistencies. We apologise for any inconvenience.